Recommendation Accepted/Not Comments/Proposed Action Accepted 1. Long-term pain should be recognised Accepted Lead Responsibility Ministerial announcement at launch of the as a condition in its own right by all HSC Painful Truth report that long term (chronic) organisations who deliver care. pain recognised as a long term condition in DHSSPS its own right. It is considered that to embed this in the HSC it needs to be recognised and acted upon by commissioners, providers and independent contractors. The Department will write to CEs of HSCB, PHA and HSC Trusts advising them that long term (chronic) pain should be recognised as a condition in its own right and asking them to commission/deliver appropriately. The Department will also write to HSCB and Dr Tom Black, GPC seeking them to bring the issues raised in the report to the attention of GPs. 2. Training and/or information leaflets Accepted Through a scoping exercise in 2014/15 aimed at GPs and front line health care consideration to be given as to how professionals should be developed. The established mechanisms for professional HSCB/PHA aim of these resources should be to development, for example training provided increase awareness and inform health through Royal Colleges and universities, care staff on what long-term pain is and might be utilised to address training gaps in its effects on those who have it. respect of long term (chronic) pain at undergraduate and post graduate levels. 3. Information resources developed for Accepted As per Recommendation 2 above. Through a healthcare staff should be directly scoping exercise in 2014/15 identify the need informed by and content/user tested with for information resources which should be those people who live with long-term pain developed in consultation with the P&CC and and/or their carers and relatives. the PANI to ensure that information provided HSCB/PHA is informed by the experience of service users. 4. A Strategic Framework for Pain Not Accepted Whilst recognising that there is scope for Services should be developed. The improvement in pain services across NI, the framework should prioritise local primary Department views the Long Term Conditions care led multi-disciplinary teams and be Policy Framework as an appropriate supported by community pharmacy. mechanism for improving services for people with long term pain. Improvement of pain services should also be taken forward through existing HSCB/PHA commissioning arrangements. The scoping exercise in the 2014/15 Commissioning Plan would be the basis for informing future service delivery. 5. Long-term pain management Accepted in ICP priorities are in place. Long Term approaches need to be embedded into part (chronic) pain as a separate condition would Integrated Care Partnerships so that not fall within the initial tranches of activity. It those with chronic pain benefit from the is unlikely that there would be scope for ICPs delivery of responsive, innovative and to take on new areas for some time. multi-disciplinary health care in the However it is proposed that in the work future. already being taken forward by ICPs to HSCB/PHA review care pathways for those priority conditions, the management of long term (chronic) pain as part of the care pathway should be considered within this process. Department to write to HSCB to ensure that in work being done to review care pathways for the priority conditions, chronic pain is factored in where appropriate. 6. Service models based on local Accepted Service models should be based on HSCB/PHA population needs should be in place assessed need and supported through the across Northern Ireland. commissioning process. Improvement of long term (chronic) pain services to be taken forward through commissioning arrangements. The scoping exercise of long term (chronic) pain services included in the 2014/15 Commissioning Plan will inform future service delivery. 7. Patients should be offered a range of Accepted The Department acknowledges the need to DHSSPS pain management care and support improve access to patient education HSCB/PHA programmes including supported self- programmes to support self management. management. Work is already being taken forward to progress the Programme for Government commitment on access to patient education/self management programmes and in work to support implementation of the LTC Policy Framework. Progress on this will depend on the availability of the appropriate resources to deliver patient education programmes, including both financial resources and personnel with the necessary skills and training to deliver programmes. In the 12/13 data audit of patient education programmes those programmes for people with long term (chronic) pain have been separately identified where this is possible. 8. The role of mainstream alternative Not Accepted As a result of the budgetary pressures facing therapies should be reviewed specifically the Department it is not possible to allocate for support and help for those people resources to the provision of complementary living with long-term pain. and alternative medicines services in order to DHSSPS protect vital front line services. 9. An integrated Northern Ireland cross- Not Accepted Whilst recognising that there is scope for DHSSPS departmental strategy to manage chronic improvement in pain services across NI, the HSCB/PHA pain is needed to allow people to Department views the LTC Policy Framework manage their pain and to empower them is a suitable vehicle for improving services for to lead full and active lives. people with long term (chronic) pain whilst the draft 2014/15 Commissioning Plan includes a proposed scoping exercise for pain services which should inform future service development. It is proposed to write to the Department’s Senior Management Team to highlight the need to ensure that where DHSSPS officials liaise with other departments on the development of cross cutting policies and strategies; issues and implications relating to long term conditions including long term (chronic) pain should be considered as part of the policy/strategy development process. 10. Information resources for patients, Accepted As per Recommendation 2 above. Through a clients, carers and their relatives affected scoping exercise identify need for information by long term pain should be developed to resources for patients, clients, carers and help people understand, make decisions their relatives affected by long term (chronic) about and cope with long-term pain. pain in consultation with the P&CC and the PANI to ensure that information provided is informed by the experience of service users. HSCB/PHA