Invitation Dear Sir/Madam, I would like to invite you to become a participant in my research study which is entitled: ‘Factors associated with the utilization of assistive technology prescribed by healthcare professionals to facilitate independent living in the community among clients with Multiple Sclerosis (MS)’. My name is Lorraine Morrin and I am a final year student studying Occupational Therapy at NUI, Galway. As part of my final year studies, I am required to carry out a research study to achieve my academic qualifications. I am conducting a study on the condition of Multiple Sclerosis and the that factors impact on why an individual with MS may or may not use their assistive technology that has been provided to them by a healthcare professional. This study will involve completing a short survey (takes approximately 20 minutes to complete) that can be found at the following link https://www.surveymonkey.com/s/CKWR6VY or found on MS Ireland’s national website www.ms-society.ie This study is being conducted with assistance from MS Ireland and NUI, Galway. The target audience for the study are registered members of MS Ireland. Attached to this invitation email is an information sheet describing the purpose of the study, how you can become a participant, and how and what information will be obtained from Before deciding to participate in this research study, please read the participant information sheet for further information. Thank you for taking the time to read and consider this invitation. Yours sincerely, Lorraine Morrin 4th year Occupational Therapy student, NUI, Galway. Participant Information Sheet This information sheet is for individuals who are registered members of MS Ireland, whom we are inviting to participate in the research study, titled ‘Factors associated with the utilization of assistive technology prescribed by healthcare professionals to facilitate independent living in the community among clients with Multiple Sclerosis (MS)’. Name of Principle Investigator: Lorraine Morrin Position: Final year student in Occupational Therapy, NUI, Galway Name of Supervisor: Manigandan Chockalingam Position: Lecturer in Occupational Therapy, NUI, Galway Part 1: Introduction My name is Lorraine Morrin and I am a final year student studying occupational therapy at the National University of Ireland, Galway. As part of my final year studies, I am carrying out research on the condition of Multiple Sclerosis which affects many people in Ireland today. I am going to give you information regarding my research in this document and invite you to be part of this research. You do not have to decide right away whether or not you will participate in the research. If you did not understand any part of the information sheet or need more information about the study before deciding to participate you can contact MS society’s helpline and who will be happy to answer all your questions and help you in every way. The contact number for the helpline is given at the end of this information sheet. Part 2: Purpose of the research In Ireland, approximately 250 people are diagnosed with Multiple Sclerosis (MS) every year. Individuals with MS may experience a wide range of difficulties including tiredness, pain, weakness, bowel and bladder difficulties and limitations in their mobility. This can lead to reduced participation in activities they used to enjoy such as socialising, carrying out day-to-day activities such as self-care or shopping, and engaging in your hobbies. Many methods have been recommended to compensate for these difficulties in functioning, including the use of assistive devices. These include any item or a piece of equipment that is used to improve or maintain ability to carry out tasks and participate in activities. In this study, I would like to find out what factors impact on a person’s use of an assistive device. Assistive device/technology refers to any item or piece of equipment that you use to help you do the things you want to do. I want to find out if people use their assistive devices, how often they use them, and if they do not use them, the reasons for this. By participating in this study, you will assist in providing information to healthcare professionals on their perceptions of assistive devices, and what impacts on their use or non-use of assistive devices. . This will assist to improve healthcare services provided to individuals with MS. Part 3: Procedures We are asking you to help us understand more about the use of aids by people with MS. If you accept to participate in the study, you will be asked to fill out a survey which will be provided and collected by www.surveymonkey.com through the use of MS Ireland’s website. Participation in this study is entirely voluntary and you may choose not to participate at any stage of the survey. If you choose to participate in the study, you need to click on the link to the survey in the email or access it through MS Ireland’s national website. The first part of the survey is will determine your suitability to partake in the study. If you are eligible, you will be asked to complete the survey. . The reminder of the survey may take approximately 20-25 minutes to complete. If you would like to take a break from filling in the survey, you can save your answers at any stage and return to it again at any time. If you find it difficult to complete, you may also opt to get help from anyone (a friend, a relative or a carer) to complete the survey. You will have 4weeks to complete the survey. Following 3 weeks of the survey being opened for completion, a reminder will be sent to all members to inform them that they have 1 week remaining to participate in the study. This survey will require you to reflect on your condition and your present ability to do things with the use of assistive devices. We do not foresee any distress to be caused by this survey however, if you do feel any emotional distress arising from your participation in the study, please do contact MS society’s helpline for support. Your answers will always be kept confidential and you will not be asked to provide any personal details in any part of the survey. Lorraine Morrin, the primary researcher and her supervisor Mr. Manigandan Chockalingam are the only people to have access to your survey. Part 4: End of the study When the survey is closed, information gathered through the survey will be collated and a report will be prepared. If you would like to get a copy of this report you will be able to obtain it by requesting it through MS Ireland. Findings from the study will be published as a final year undergraduate dissertation and also in professional journals and conferences. You will not be identified in any report or publications. Part 5: Consent Because I will not have direct contact with you and your personal details will remain unknown to me, I will not be able to obtain a signed consent form of your participation in the study. Therefore, implied consent is obtained when you complete the survey. Also, by completing the survey, you consent for your completed survey data to be used as part of a report for academic qualification in Occupational Therapy. This report will be made available through MS Ireland if you request to see it. I also have the intention to publish the report in a professional journal that would be made available to the public in the near future. If you have any questions, you can contact the MS society helpline on: MS Ireland helpline: 1850 233 233 Thank you for taking your time to read this information sheet. Yours sincerely, Lorraine Morrin 4th year Occupational Therapy student, NUI, Galway. Supervisor: Mr. Manigandan Chockalingam Lecturer in Occupational Therapy, NUI Galway.