Appendix 3
Programme for Workshop for Parents of Children with Life Limited Conditions
Date: October 14th 2015
Time
09.15-09.30
09.30-09.40
Topic
Registration
Welcome & Introduction
Aims and Objectives of the day
09.40-10.20
Communication with Siblings
-How to include
-How to support
10.20-10.50
Music Therapy
How music can enhance your
child’s quality of life
Tea and Coffee
Building Resilience in Parents
10.50-11.20
11.20-12.00
12.00-12.40
12.40-13.40
13.40-14.40
14.40-15.10
15.10-15.50
Common Misunderstandings
around Terminology used
Symptom Management
Memory Making and Creative
Treasures
LUNCH
Photography
How to compile a treasured
photographic diary
Children’s Outreach Nurse
Purpose of the role
15.50-16.20
Baby/Child Massage
16.20-16.30
Evaluation and Home
Speaker
Helen McDaid
Paediatric Staff Nurse LGH
MSc std Coventry University
Sorcha Bolger
Clinical Psychologist
Early InterventionTeam
Lucia McGinnis
Music Therapist
North west music therapy
Claire Quinn
Lecturer in Care of Child with
Life Limiting Illness
NUIG
Mary Murray
Paediatric Liaison Nurse
LGH
Paula Jennings, Owen Ward &
Caroline Gormley
Special Heroes
Niall
Pure Purple Studios
Colette Goonan
Children’s Outreach Nurse
Galway University Hospital
Noeleen McAteer
Avellanna
Helen McDaid
Paediatric Staff Nurse LGH
MSc std Coventry University