R e c o v e r y Overview Part I Background on Recovery – Is Recovery Possible? – What is Recovery? Part II Part III Part IV Part V Recovery Pathways A Vision of Transformation; Creating the Future Recovery in Practice Recovery Coaching R e c o v e r y Who started the idea of recovery? • People speak out and write about recovery experiences • Research findings support the fact of recovery • Vision of recovery described by rehabilitation educators; Dr. Anthony – Changes in our historical understanding – New definitions of diagnosis – New thinking about chronicity R e c o v e r y Let’s hear from Raymond, whose story illustrates the points Dr. Anthony makes about how the system can contribute to “chronicity.” Is Recovery Possible? Study Size # Yrs Outcome Bleuler (1972). Zurich 208 23 53-68% Huber (1975). Germany 502 22 57% Ciompi & Muller (1976). 289 37 53% Tsuang (1979). Iowa 186 35 62-68% Harding (1987). Vermont 269 32 62-68% Ogawa (1987). Japan 140 22.5 57% DeSisto (1995). Maine 269 35 49% Harding used “the medical criteria for recovery”: no current signs and symptoms of any mental illness, no current medications, working, relating well to family and friends, integrated into the community, and behaving in such a way as to not being able to detect having ever been hospitalized….” Harding …but these findings are not new. The results of Moral Treatment in the 1800s McLean Hospital 1818- 59% of 732 were discharged as 1830 recovered, much improved, or improved Bloomingdale Asylum, NYC 1821- 60% of 1,841 patients admitted 1844 discharged as “cured or “improved”. Worcester State Lunatic Asylum 1833- 80% of those ill less than a year 1840 recovered. Pennsylvania Hospital for the Insane 1841- 8,546 admissions. 45% cured and 1882 25% improved on discharge Worcester study completed in 1880 1833- 984 discharged patients. 58% 1846 remained well throughout their life. Robert Whitaker, Mad in America and Gerald Grob, Mad Among Us Moral Treatment Practitioners…. a value on the person “I have nowhere met, except in romances, with fonder husbands, more affectionate parents, more impassioned lovers, more pure and exalted patriots, than in the lunatic asylum… A man of sensibility may go there every day of his life, and witness scenes of indescribable tenderness to a most estimable virtue.” 1801. Philippe Pinel. Paris France R e c o v e r y Moral Treatment Practitioners…. a value on the person “If there is any secret in the management of the insane, it is this: respect them and they will respect themselves; treat them as reasonable beings, and they will take every possible pain to show you that they are such; give them your confidence, and they will rightly appreciate it, and rarely abuse it.” 1833. Samuel Woodward, M.D., Worchester Asylum R e c o v e r y Moral Treatment Practitioners…. HOPE “I think it is not too much to assume that insanity is more curable than any other disease of equal severity; more likely to be cured than intermittent fever, pneumonia, or rheumatism.” 1843. Samuel Woodward, M.D., Worchester Asylum R e c o v e r y Moral Treatment Practitioners…. a value on environment “It should never be forgotten that every object of interest that is placed in or about a hospital for the insane, that even every tree that buds, or every flower that blooms, may contribute in its small measure to excite a new train of thought, and perhaps be the first step towards bringing back to reason, the morbid wanders of the disordered mind..” Thomas Kirkbride, M.D. 1841. Pennsylvania State Hospital R e c o v e r y What does RECOVERY mean? • A common human experience. • Developing new meaning and purpose in life. (W. Anthony, 1993). • Develop and further rebuild important connections (L. Spaniol) R e c o v e r y Our Definition of Recovery Remembering who you are and using your strengths to become all you were meant to be. R e c o v e r y Don’t forget To remember who you are Where you came from Where you’ve been thus far Its so easy for the hard times To leave scars When you forget to remember Who you are Disappointment Difficulties Diagnosis Disappointment Difficulties Disease Diagnosis Disappointment Difficulties Disabled Disease Diagnosis Disappointment Difficulties Disempowered Disabled Disease Diagnosis Disappointment Difficulties Disenfranchised Disempowered Disabled Disease Diagnosis Disappointment Difficulties Demoralized Disenfranchised Disempowered Disabled Disease Diagnosis Disappointment Difficulties Dysfunctional Demoralized Disenfranchised Disempowered Disabled Disease Diagnosis Disappointment Difficulties A person Assets A person Abilities Assets A person Achievements Abilities Assets A person Authentic Achievements Abilities Assets A person Authority Authentic Achievements Abilities Assets A person Autonomous Authority Authentic Achievements Abilities Assets A person R e c o v e r y What We Know . . . • Recovery is an up-and-down process. • Symptoms may remain, but people still RECOVER! • Symptoms are less troublesome and happen less often. • Recovery can happen whether or not we still take medication. • Recovery does not mean that one did not have a mental illness. • Recovery from the consequences of being ill is often harder than recovering from the illness itself. What People Recover From. Lack of opportunities for Growth Numerous Losses Experience of dehumanization and degradation and spirit breaking Lack of commitment from service systems and politicians By permission of Dr. Kaly Low expectation & lack of hope from professionals R e c o v e r y Recovery Pathways from our experience • • • • • Hope Choice Empowerment Recovery Culture Spirituality; meaning and purpose R e c o v e r y Recovery Pathway 1: Hope In the movie “The Beautiful Mind” John Nash hears what Pat Deegan refers to as “the prophecy of doom”. Notice how Professor Nash struggles to hold on to hope, “I can do this,” in spite of Dr. Rosen’s words, “schizophrenia is degenerative, over time you’re getting worse.” R e c o v e r y Hope • Hope is the beginning. • It’s a thought that things can get better and a feeling of courage with a spark of new energy. • Creates a “turning point”. • Hope means “I can have dreams”. • A vision of a better future; there are “no limits.” • Someone else can hold the hope. “And there was this person”. HOPE R e c o v e r y A person comes to our crisis service. They are crying, frightened and filled with despair. How can you communicate hope? R e c o v e r y Recovery Pathway 2: Choice In the movie “The Beautiful Mind” this dramatic scene illustrates the consequences and the fear associated with not having the choice. Recovery Pathway 2: Choice The Old Story overprotection abandonment No choice •Coercion and force •No recovery •Person disappears •No support •Hospitalization, jail, homelessness •No recovery •Person disappears Recovery Pathway 2: Choice The Recovery Story; Its about Relationship Relationship overprotection abandonment •Mutual responsibility •Engagement •Support/love •The person reappears Recovery Pathway 2: Choice The Recovery Story; Its about Relationship = Recovery abandonment •Mutual responsibility •Engagement •Support/love •The person reappears R e c o v e r y Recovery Pathway 2: Choice "It is our choices that show what we truly are, far more than our abilities." J.K. Rowling (1965 - ) Harry Potter and The Sorcerer's Stone • “The more I choose, the more I recover.” (Kristina) • Because, making choices is how we remember/discover who we are. • Recovery value: each person is the expert in what works for them. R e c o v e r y Recovery Pathway 2: Choice The freedom to choose and the right to make mistakes Question: What about risk? • Risk sharing not risk management • Risk prevention plans • WRAP crisis plan • Advance Directives R e c o v e r y Recovery Pathway 3: Empowerment • Resistance is the beginning of getting power back; finding my voice. • Resistance fosters Resilience. The person begins to come back and remember who they are. • Recovery is the person’s job; they have to have the power. Recovery Pathway 3: Empowerment Entitlement old belief was Empowerment Disability; being a victim looking for someone to take The ability to care/fix me. perform; to produce the results I want. Enlightenment Ability; discovering my gifts and strengths Empowerment corresponds to the level of personal responsibility and accountability. Victim Disempowered Personal Responsibility Responsible Accountable 0% Personal Responsibility Responsible Accountable 0% 100% 30% Victim Disempowered 70% 100% Personal responsibility is a willingness to be the source of the results in your life. Personal accountability is a willingness to own the results in your life. R e c o v e r y Recovery Pathway 4: Recovery Culture The belief that “recovery is a fact” invites us to transform our service environments and culture. R e c o v e r y Recovery Culture • Create relationship. Provide support. • Create community. People find a valued social role. • Celebrate diversity. • Maintain a positive level of consciousness. Map of Consciousness David Hawkins, M.D.,Ph.D. God-View Life-View Power Force Self Is All-Being One Loving Wise Merciful Inspiring Enabling Permitting Indifferent Vengeful Denying Punitive Disdainful Perfect Complete Benign Meaningful Harmonious Hopeful Satisfactory Feasible Demanding Antagonistic Condemning Vindictive Despising Level Enlightenment Peace Joy Love Reason Acceptance Willingness Neutrality Courage Pride Anger Disappointing Desire Frightening Fear Tragic Grief Hopeless Apathy Evil Guilt Miserable Shame Death Log Emotion 700 + Ineffable 600 540 500 400 350 310 250 200 175 150 125 100 75 50 30 20 0 Process Pure Consciousness Bliss Serenity Reverence Illumination Understanding Abstraction Forgiveness Optimism Trust Affirmation Scorn Hate Craving Anxiety Regret Despair Blame Humiliation Transcendence Transfiguration Revelation + Intention Release Empowerment Inflation Aggression Enslavement Withdrawal Despondency Abdication Destruction Elimination _ R e c o v e r y In the movie “What About Bob?” Dr. Marvin’s negative level of consciousness (anger) creates disaster. Bob, on the other hand, experiences joy and has good fortune. R e c o v e r y In the movie “A Beautiful Mind” Professor Nash gradually recovers from very serious psychiatric experiences using the level of “reason”. But what John Nash discovers is that it wasn’t until he found the power of love that he had the energy to overcome and fully recover. Recovery Pathway 5: Spirituality • Spiritual expression is not a symptom of a mental illness • Connecting within and beyond the self. • Finding meaning and purpose • Develop spiritual competence – Meditation, contemplation, prayer • Spiritual practices – Service to others. – Treating each other with kindness and respect R e c o v e r y Now let’s listen to Pat Deegan describe the beginning of her recovery process. R e c o v e r y …the best is yet to come!