Home and Community Based Services Expert Panel August 13, 2010 Minnesota State Retirement System Building 60 Empire Drive St. Paul, MN 55103 Meeting Notes Note: The current versions of most of the documents mentioned in these notes can be found at the HCBS Expert Panel page on the DHS website. Otherwise please contact Lori Lippert if you have questions or comments at Lori.Lippert@state.mn.us. 1. Welcome – Glenda Eoyang, Human Systems Dynamics Institute Glenda started with introductions of the individuals in the room. She then reviewed the agenda and talked about who would be addressing the group today. 2. Elder Justice Act Update – Deb Siebenaler Deb Siebenaler provided an update on the Elder Justice Act and the Minnesota Vulnerable Adult Act (see handout of slide presentation). It protects people 18 years of age and older who are vulnerable to harm due to disability or dependence on health care services. She reported the State has been collecting data in a standard format since 2008. This trend data has potential for informing policy decisions. She reviewed the Elder Justice Act, which is a part of the Affordable Care Act. The Act authorizes formation of an Elder Justice Coordinating Council and Advisory Board on Elder Abuse, Neglect, and Exploitation, however there are not appropriations to implement these authorizations. DHS plans to establish stakeholder meetings to talk about what can come from this legislation, but is waiting for more guidance from CMS. This program opens the path for Tribes to create structures to support/protect their elders, and also includes state demonstration grants, forensic centers, and other supports, which have been authorized, but not appropriated. Deb then focused on part of the act concerning protecting residents of long-term care facilities, explaining details of requirements for reporting and following up of serious bodily injury, which has a specific definition. The department contacted CMS for guidance in interpreting and implementing these requirements. Stella French could not join today’s meting, but she did send a statement explaining the State’s position about current definitions and projections. 3. HCBS Dashboard Project – Hal Freshley, Steve Eiken, and Sara Galantowicz (joined by phone) The State has completed its state profile of available services. The next step will be to identify a short list of key indicators to include in a scorecard to track performance. Hal reviewed the process for developing these indicators and shared the current recommendations. One person expressed concern about the utility of such aggregated data. Discussion explored the complexity of designing/collecting good system-wide data. There was concern that measures, as provided, are less useful than other information might be that can be disaggregated by age, gender, and/or other group. Using the whole system snapshot does not provide information that is easily actionable. Another member suggested that length of service is critical information. Panel members asked about the scope of county or regional breakdown, pointing out that sometimes there are discrepancies within counties and/or regions. What audiences will be seeing this report? The categories used in the suggested indicators have been developed by CMS, and the measures were based on the Expert Panel’s previous input. There is a need for more questions to help figure out how the state leverages the resources they have, dissect the data differently, and to be clear about the resources available. Steve and Hal asked the group to consider what they and their constituencies want and need, and to provide feedback to Steve (steve.eiken@thomsonreuters.com or 651-6871136) by Friday, August 20, so it can be included and/or addressed in their work. Panel members shared the following additional feedback. General responses from Hal and Steve are listed in parenthesis after the questions they addressed. How frequently will this data be updated, and can we get the information? (At least annually, and yes you can.) Who is this for? (Legislators, funders, providers, and general audience to show the progress we are making.) What is found in other states? (It varies state by state) What is important to this Panel? o Focus areas? – Look at the functional assessment o How are measures biased? o Working adults? 4. Impact of 2009 CCA Reform Initiatives – Valerie Cooke, Bob Kane The presenters went through the criteria for nursing home use and their plan to provide a program of evaluation concerning the impact of those criteria across two years. Their research questions included the impact, focusing on program outcomes, including changes in major outcomes between baseline period before the initiatives were introduced and data collected after a period of implementation. This is a long-term project because the first post-implementation “impact” data won’t be available until sometime after the end of the period being studied, which will be at least a couple of years. They are also doing a “process assessment”, looking at the ways the initiatives are being implemented. After reviewing their sampling procedures, they outlined the data sources they will use as primary and secondary resources. They spoke to the difficulty of separating out the measurement artifacts from the indicators of real change. Their handouts included both a set of PowerPoint slides and an evaluation report, and are available on the Expert Panel website. 5. Health Care Reform Discussion – Alex Bartolic, Jean Wood Jean started the conversation by talking about grant opportunities and awards, and identifying the grants the Department is exploring, using two handouts. She stated they plan to update these documents, with the help of panel members, to help interested parties understand what is happening with funding. The updated documents will be kept on the HCBS expert website. If anyone has any corrections or additions to suggest they should email those comments to Lori Lippert (Lori.Lippert@state.mn.us). Expert Panel Notes – August 13, 2010 Page 2 of 5 The group started with a discussion about Money Follows the Person (MFP). MN is exploring this option, looking at transitioning people from long-term institutional care to home and community based services. She invited people’s feedback/comments. Alex explained that the purpose of this discussion is to get input about what to explore and how to think about the opportunities that are coming up. She opened the discussion for suggestions from panel members. They were as follows. Goal: Move people out of Institutions. Can this be a system-wide pool of money to reduce funding constraints and competitions? Like to see this provide a single source of money rather than multiple MA funds. Are there legislative limits? There seems to be little downside to this proposal. We need a variety of implementation plans. Can we eliminate barriers in state law? Does this include IMD’s? Document the initial schematic – What scenarios would be helped and how? Identify and overcome barriers to home-based services. What are those problems? Change the limit for home modification. Work on function, rather than diagnosis. Support for families to plan investment and give them a pot of money to do so. Remove housing barriers (access, find out availability). Provide a menu of options for spending. Support employment options. Address shortage of transportation options for clients to get to services. Extend sustainability beyond 5 years. Remove infrastructure roadblocks at the federal and state levels Expand mental health access. Identify how this meshes with State Operated Systems; move beyond basic continuing care options. Identify and develop systems that don’t squash intent of the MFP and long-term state commitment. o Not consumer-directed care. The money goes for infrastructure changes; it does not go to the person. o This is a 5-year grant period. Each person has a 1-year benefit. Identify global waiver and services. Support housing. Invest in infrastructure for all parts of the state. Level the playing field for providers. Arrange continuity of care for individual at the end of the year. Provide transportation for all counties. Build an overall more efficient housing system based on extant housing Incremental, fairly small changes as it moves forward Focus on Medicaid population o Address labor shortage for needed support (PCA’s, etc.) o Combine with other federal options. o Provide education for providers about chronic, multiple diagnoses. o Use data about people who are moving now to fund what is already happening. MFP is not a new program, per se. Dr. Kane clarified the purpose of the grants and what he sees it means to services. It is a grant to enable states time and financial support to Expert Panel Notes – August 13, 2010 Page 3 of 5 restructure the service system over the five years of the grant. It gives state the resources to invest in system-wide changes. The following questions were developed. 1915 K has incredible potential. Can the spend-down policy continue? Can this money provide help for housing transition? If this is institutional level of care, is this for CMS Residential Treatment? Is LTCC modified for children? How much do we already have in place? Is it that 1915(i) waiver is not time-limited and 1915(k) is time limited? Can the state do all this through rule-making? by capacity? Do the various waivers fit together in sequence? Can healthcare costs be included under a 1915(k) waiver? The group listed what seems consistent with current practice in the new regulations: It is consistent with 1915(j) that the 2007 legislation put PCA funding on hold. 1915(c) waivers and these new options are consistent All target the same, overall, populations All require Medicaid enrollment All seek to avoid institutional placement Deal with PCA alternative 1915K Transforms PCA into 1915 K They also listed what seems inconsistent with current practice: It provides assistive technology. It replaces state money that is matched. Covers services that were cut from PCA. Saves people and services. Offers a big pool rather than lots of little ones. Current PCA is on maintenance. This allows money for enhancing and prompting skills. Under 1915(i) counties are more responsible for day treatment. Under 1915(k) there are supports for work. Serves a new population – 1915(i) New benefit set New funding for the old benefit set Can’t limit the population 1915(i) reduces/slows down the need for others Help with transition 1915(k) adds health-related issues? Compare current and future restriction for PCA No discrimination on basis of kind of need Panel members provided the following comments and questions for the application due on January 7, 2011, for the Money Follows the Person. How different is this from consumer-directed supports? How would it interface for the 5-year demonstration? Is this for people who are currently in an institutional setting? Yes. Is this ICFMRs? Yes. We will apply for a planning grant? Yes. How can we (Expert Panel) be involved going forward? How will this program work with Return to the Community? Use the same service protocol? Consistent data? Would any of this provide single portal money? Expert Panel Notes – August 13, 2010 Page 4 of 5 Would this support personal responsibility? What about nursing homes and ICFMRs? Finally the Panel members identified ways to move forward together on this information. Get electronic copies of the tables to the Expert Panel members Form a subcommittee to bring in other resources for faster and more complete responses (Rapid Response Team) Complete a fiscal analysis of current money against the match and opportunities. (This is available in the materials from the hearings) Work on something positive Work closely with Anne Berg 6. Meeting for October 15 date works for people so it will remain on the calendar. Remaining Meeting dates for 2010 October 15 9:00 a.m. – 12:00 noon Location TBA December 10 9:00 a.m. – 12:00 noon Location TBA Expert Panel Notes – August 13, 2010 Page 5 of 5