THE NORTH WEST REGION RENAL AUDIT PROGRAMME THE 8th ANNUAL REPORT 1999-2000 June 2000 Introduction The North West Region Renal Audit Programme was established in 1992, to improve the quality and effectiveness of the renal services provided to patients over the North West Region. Over the past year, the North West Region Renal Audit Steering Group has expanded a series of developments initiated to further the programme of quality improvement and to assist in the process of clinical governance. The developments include a programme of ongoing prospective audit, a regional renal audit database, clinical effectiveness indicators and a process of benchmarking against data from the UK Renal Registry. They were initiated to establish a more systematic process of audit in which renal units can more readily compare their performance with other units, year on year, regionally and nationally. Those areas in which change is necessary can be identified and processes implemented that will help bring about change. In 1998 funding for the programme was secured for the period commencing 1st April 1998 and ending 31st March 2000. Audit activity for the period 1st April 1998 to 31st March 1999 was reported in the 7th Annual Report. This report summarises the progress that has been made during the period 1st April 1999 to 31st March 2000 in the development of the regional audit programme. It does not include results from any individual audit as time has been given to the development of the programme at the expense of the time needed to process the data for individual audits. A supplement to this progress report, containing the results of audits started between 1st April 1999 and 31st March 2000 will be available later in the year. The regional audit programme The regional audit programme is a standards based programme of quality improvement. Principle aim To improve the quality and effectiveness of the renal services in the North West Region through a continuous collaborative process of multidisciplinary evidence based clinical audit of the care provided in the hospital and community. Participating centres Within the North West Region (which incorporates Greater Manchester, Lancashire and Merseyside), all renal units and their satellites participate in the Regional Renal Audit Programme. The units and their satellites are listed in appendix one. Programme management From the outset, the audit programme has been directed and managed by the multidisciplinary Renal Audit Steering Group that includes physicians and, unit and community based nurses from every renal unit in the region. Members of this group are listed in appendix two. However management of the audit programme has recently evolved to improve the process of feedback and debate. In April 2000, a new 8 member multidisciplinary steering group was established to direct and manage the audit programme. Time and effort previously dedicated to arranging large quarterly steering group meetings will henceforth be dedicated to audit presentation evenings which will take place three times a year. Objectives for 1998/2000 In 1998 funding for the programme was secured for two years (1.4.1998 – 31.3.2000). To take the programme forward a series of objectives were set for this funding period: 1. To systematically monitor improvement in clinical care by developing clinical effectiveness indicators based on National and International Standards and applying them to an annual cycle of ongoing prospective audit. 2. To prospectively evaluate outcome by developing the programme of ongoing prospective audit on a regional renal audit database. 3. To improve cost effectiveness in the audit process by designing the programme of ongoing prospective audit around automated data capture. 4. To benchmark clinical care in the North West Region using data published by the UK Renal Registry. 5. To identify new audits which could lead to improvement in clinical care. Forward plan To meet the objectives the forward plan was to include: A programme of prospective ongoing audit Annual CAPD regional peritonitis audit An audit of haemoglobin and Epo usage An audit of adequacy An audit of cardiovascular risk 98/99 completed 99/00 commenced completed commenced commenced A programme of new individual audit An audit of acidosis An audit of early deaths An audit of patient information An audit of ethnicity An audit of vascular access completed completed completed commenced postponed Progress in meeting objectives 1. Experience from the regional peritonitis audit has shown that the most effective way of bringing about change is through a process of year on year rolling audit, benchmarked against national and regional data. To establish this process, time has been spent over the past year establishing and developing the prospective ongoing audit programme. Thus the rolling audit programme has been expanded and is now based upon six separate audits CAPD Regional Peritonitis Audit Bone chemistry Haemoglobin and Epo usage Cardiovascular risk Adequacy Survival Data collection for this ongoing audit programme has commenced. Clinical effectiveness indicators have been established using national standards and are being used in the annual cycle of ongoing prospective audit. The indicators will be evaluated using the audit data. 2. A regional renal audit database has been established as a basis for the rolling audits and to monitor survival and other outcomes. Again experience from the annual peritonitis audit has shown that the audit process is greatly strengthened by ensuring data capture on all patients treated in the region rather than data capture from a sample. Therefore all patients established on dialysis in the region have been enrolled on the database and this will be updated at 3 monthly intervals. 3. The programme of ongoing prospective audit has been designed around Formic software (an automated data capture system) making the audit process more efficient. 4. Once data collection from the first year is complete clinical care will be benchmarked regionally and nationally; using the data collected for the ongoing audit programme and the data published by the UK Renal Registry. 5. New audits that could lead to improvement in clinical care were identified in the forward plan. With the exception of the audit of vascular access, all these audits have started. Five of the audits included in the forward plan have been completed and were reported in the 7th Annual Report that was circulated last September. A supplement to this progress report, containing the results of audits started between 1st April 1999 and 31st March 2000 will be available later in the year. Audit planning Audit planning follows a well established protocol which is described in appendix 3. Project plans for all of the audits in the 1998/2000 ongoing programme of clinical audit, and of the audits in the 1998/2000 programme of new individual audits are detailed in appendix four. The national audit programme The renal units in the North West Region are committed to participation in the national audit programme of the UK Renal Registry. Two units are now contributing towards the Registry (Royal Preston Hospital and the Royal Liverpool University Hospital) and three sites are developing systems that will allow them to contribute towards the registry (Hope Hospital, Manchester Royal Infirmary and Withington Hospital). The North West Region Renal Audit Programme will continue to provide a standards based programme of quality improvement but will also be developed to address issues of quality and outcome not measured by the UK Renal Registry. Disseminating audit results Throughout the year audit data have been presented at the quarterly steering group meetings and following discussion recommendations for change have been made. Audits and recommendations have then been presented at the participant units where local decisions are taken about the implementation of the recommendations for change. Detailed reports have been published and circulated to those affected by the audit. Results are published openly at unit level. From April 2000, audit data will be presented at audit presentation evenings to which all renal clinicians working in the North West Region will be invited. Every year there will be three audit meetings A summer audit meeting; the programme will include audit presentations and discussion, and presentations from guest speakers. Autumn and spring audit meetings; the programmes will include audit presentations and discussion, and discussion of topics of current interest. Following each presentation discussion will lead to recommendations. Again, audits and recommendations for change will be presented at the participant units where local decisions about implementation of the recommendations for change will be made and detailed reports will be published and circulated to those affected by the audit. Implementation of change The audit cycle is completed by implementing recommendations and monitoring the resultant change. As the move towards a programme of ongoing prospective audit takes place units will be able to compare their performance, identify those areas in which change is necessary and implement processes that will help bring about the necessary change. Change will then be monitored through the Regional Renal Audit Database and by bench marking against data from the UK Renal Registry. Further Information For further details on the North West Region Renal Audit Programme, please contact Dr N M K Reid, the Regional Audit Co-ordinator, or Mrs N Austerberry, the Regional Renal Audit Facilitator at the Clinical Audit Department in Withington Hospital (telephone number 0161 291 3209). Appendix one Renal units participating in the North West Region Renal Audit Programme Accrington & Victoria Hospital - Communicare NHS Trust Arrowe Park Hospital - Wirral Hospital NHS Trust Birch Hill Hospital - Rochdale Healthcare NHS Trust Clatterbridge Hospital - Wirral Hospital NHS Trust Devonshire Road Hospital - Blackpool, Wyre & Fylde Community Health Services NHS Trust Furness General Hospital – Furness Hospitals NHS Trust Hope Hospital - Salford Royal Hospitals NHS Trust Leighton Hospital - Mid Cheshire Hospitals NHS Trust Macclesfield District General Hospital - East Cheshire NHS Trust Manchester Royal Infirmary - Central Manchester Healthcare NHS Trust Broad Green Dialysis Centre - Royal Liverpool & Broadgreen University Hospitals NHS Trust North Manchester General Hospital - North Manchester Healthcare NHS Trust Prestwich Hospital - Mental Health Services of Salford NHS Trust Royal Liverpool University Hospital NHS Trust - Royal Liverpool & Broadgreen University Hospitals NHS Trust Royal Manchester Children’s Hospital - Manchester Children’s Hospital NHS Trust Royal Preston Hospital - Preston Acute Hospital NHS Trust Warrington Hospital - Warrington Hospital NHS Trust Waterloo Day Hospital - Aintree Hospitals NHS Trust Westmorland General Hospital - Westmorland Hospitals NHS Trust Whiston Hospital - St Helens and Knowsley Hospitals NHS Trust Withington Hospital - South Manchester University Hospitals NHS Trust Appendix two Membership of the North West Region Renal Audit Steering Group (Until March 2000) Chairmen of the North West Region Renal Audit Programme Dr R Ahmad Dr R Coward Dr M Venning Consultant Renal Physician - Royal Liverpool University Hospital Consultant Physician and Nephrologist - Royal Preston Hospital Consultant Renal Physician - Withington Hospital Members of the North West Region Renal Audit Steering Group Sister C Blackshaw Sister D Burrows Mr P Cairns Sister E Carville Sister P Cooper Sister M Davies Sister A Elliot Sister A Estrop Sister L Ferguson Dr R Gokal Sister N Heelis Sister P Hughes Dr A Hutchison Mr P Livesley Dr R McClelland Sister T McGloughlin Sister C McGloughlin Sister D McGregor Sister D MacCauley Sister M MacClean Ms S Milligan Dr D O’Donoghue Sister S Orem Mr N Parrott Mr I Paterson Sister S Perrin Sister J Pickles Sister M Pipes Dr M Bradbury Dr F Qasim Mr K Radford Dr L Solomon Sister T Smith Dr D Smithard Sister N Tannerhill Sister L Tronconi Sister L Uttley Dr S Waldek Sister R Worsman Senior Haemodialysis Sister - Birch Hill Hospital Nurse Manager - Warrington Hospital Senior Haemodialysis Charge Nurse - Devonshire Road Hospital Senior Haemodialysis Sister - Whiston Hospital Senior Haemodialysis Sister - Clatterbridge Hospital Senior CAPD Sister - Hope Hospital Nurse Manager - North Manchester General Hospital Senior Haemodialysis Sister - Manchester Royal Infirmary Nurse Manager - Arrowe Park Hospital Consultant Nephrologist - Manchester Royal Infirmary Senior CAPD Sister - Withington Hospital Senior Haemodialysis Sister - Clatterbridge Hospital Consultant Nephrologist - Manchester Royal Infirmary Senior CAPD Charge Nurse - Royal Liverpool University Hospital Consultant Nephrologist - Arrowe Park Hospital Senior Haemodialysis Sister – Broad Green Hospital Senior Haemodialysis Sister - Waterloo Day Hospital Anaemia Co-ordinator - Royal Preston Hospital Senior CAPD Sister - Furness General Hospital Senior Haemodialysis Sister - Hope Hospital Senior Renal Dietitian - Accrington and Victoria Hospital Consultant Nephrologist - Hope Hospital Senior Haemodialysis Sister - Royal Liverpool University Hospital Senior Lecturer in Surgery - Manchester Royal Infirmary Senior Haemodialysis Charge Nurse - Withington Hospital Anaemia Co-ordinator - Manchester Royal Infirmary Nurse Manager - Accrington and Victoria Hospital Senior CAPD Sister - Royal Preston Hospital Consultant Nephrologist - Royal Manchester Children’s Hospital Consultant Nephrologist - North Manchester General Hospital Senior Haemodialysis Charge Nurse - Leighton Hospital Consultant Physician and Nephrologist Clinical Nurse Specialist - Royal Manchester Children’s Hospital Consultant Physician - Birch Hill Hospital Anaemia Co-ordinator - Royal Liverpool University Hospital Senior Haemodialysis Sister - Macclesfield District General Hospital Senior Home Dialysis Sister - Manchester Royal Infirmary Consultant Nephrologist - Hope Hospital Senior Haemodialysis Sister - Westmorland General Hospital Membership of the North West Region Renal Audit Steering Group (From April 2000) Chairmen of the North West Region Renal Audit Programme Dr R Ahmad Dr R Coward Dr M Venning Consultant Renal Physician - Royal Liverpool University Hospital Consultant Physician and Nephrologist - Royal Preston Hospital Consultant Renal Physician - Withington Hospital Members of the North West Region Renal Audit Steering Group Sister M MacClean Sister N Tannerhill Sister L Uttley Sister R Worsman Senior Haemodialysis Sister - Hope Hospital Anaemia Co-ordinator - Royal Liverpool University Hospital Senior Home Dialysis Sister - Manchester Royal Infirmary Senior Haemodialysis Sister - Westmorland General Hospital Appendix three Audit planning To improve the effectiveness of the clinical audit process a project plan is developed for every audit topic. For all audits the plan identifies The reasons for topic selection: the purpose of the audit the patient health improvement the evidence base whether the audit addresses national or regional renal service priorities The methodology: the standards available the methods the disciplines involved The implementation of change: how recommendations might be implemented the persons responsible for monitoring change (this process is developed as the audit is undertaken) In addition, for individual audits the plan identifies The methodology: the sample the time scale of project Appendix four Project plans for the ongoing programme of clinical audit AUDIT OF ADEQUACY PROJECT PLANNING GUIDE AUDIT PROJECT Audit Leads: Specialist registrar: Audit facilitator: Type of audit: REASONS FOR CHOICE Aims & objectives: Proposed health benefits: Evidence base: Priority: METHODOLOGY Standards: Dr G Wood Consultant Nephrologist Withington Hospital Dr Mitra Specialist Registrar in Renal Medicine Withington Hospital Nicola Austerberry Regional Renal Audit Facilitator Ongoing To measure achievement of the Renal Association standard for dialysis adequacy and albumin To examine the characteristics of patients not achieving the Renal Association standard for dialysis adequacy To examine the efficacy of interventions given to patients not achieving the Renal Association standard for dialysis adequacy To improve survival To improve quality of life National Regional Haemodialysis patients Renal Association Recommended MINIMUM standard1 (evidence level B) Every patient for thrice weekly haemodialysis should show EITHER Stable URR > 65% OR Stable Kt/V > 1.2 (dialysis and residual renal function) PD patients Renal Association Recommendation1 (evidence level B) A total weekly creatinine clearance (dialysis and residual renal function) of 50 l/week/1.73 m2 and/or a weekly dialysis Kt/V urea off greater than 1.7, checked 6-8 weeks after the beginning of dialysis, should be regarded as minima. These studies should be repeated at least annually, or if a suspicion arises that residual function has declined more rapidly than usual. 1Standards Guidelines: Patients: Methods: Health disciplines involved: Timescale: ACTION Proposed date for audit presentation: Persons responsible for monitoring change: subcommittee of the Renal Association. Treatment of adult patients with renal failure: Recommended Standards and audit measures. Renal Association 1997 (Second edition). All patients enrolled in a dialysis programme in the North West Region will be invited to take part in the study. Data will be collected prospectively form computer systems and patient records. Data will include Data will be collated and analysed by the regional audit facilitator Nurses Physicians Ongoing October 2000 Physicians AUDIT OF BONE CHEMISTRY PROJECT PLANNING GUIDE AUDIT PROJECT: Audit leads: Audit Facilitator: Type of audit: REASONS FOR CHOICE Aims and objectives: Proposed health benefits: Evidence base: To assess calcium and phosphate control. To assess the use of phosphate binders. To assess local guidelines for the management of bone disease. To assess the drug records. To assess management of bone disease in relation to ethnicity. To assess management of bone disease in relation to the role of the dietitian. To reduce the incidence of hyperparathyroidism Gerakis A et al. Biochemical markers for non invasive diagnosis of hyperparathyroid bone disease and adynamic bone disease in patients on haemodialysis. Neprol Dial Trans 1996 11 2430-2438. Malluche H et al. Risk of adynamic bone disease in dialysed patients. Kid Int 1992 42 (suppl 38) 62-67. Sharrad D et al. The spectrum of bone disease in end stage renal failure – An evolving disorder. Kid Int 1993 43 436-442. National Regional Haemodialysis patients Priority: METHODOLOGY Standards: Dr A Hutchison Consultant Nephrologist Manchester Royal Infirmary Ms S Milligan Chief Dietitian Blackburn Royal Infirmary Ms K Beaven Renal Dietitian Royal Preston Hospital Nicola Reid Regional Renal Audit Co-ordinator Ongoing Renal Association Recommended Standard1 (evidence level B) The following are target ranges for pre-dialysis biochemical variables: Phosphate Calcium Albumin PTH 1.2 – 1.7 mmol/l Total calcium within the normal range quoted by the local pathology laboratory, corrected for serum albumin concentration or normal ionised calcium where available. A target serum albumin within the normal range quoted by the local pathology laboratory in all patients should be the target after 6 months on regular haemodialysis. iPTH should be maintained at between 2 and 3 times the local normal range (130 – 210 pg/ml). Peritoneal dialysis patients Renal Association Recommended Standard1 (evidence level B) The following are target ranges for pre-dialysis biochemical variables: Phosphate Calcium Albumin PTH 1.1 – 1.6 mmol/l Total calcium within the normal range quoted by the local pathology laboratory, corrected for serum albumin concentration or normal ionised calcium where available. The serum albumin of at least 70% of patients should be within the local normal range. iPTH should be maintained at between 2 and 3 times the upper limit of the local normal range. Standards sub committee of the Renal Association. Treatment of adult patients with renal failure: Recommended standards and audit measures. Renal Association 1997 (Second edition). 1 Guidelines: Patients: Methods: Regional guidelines developed from previous audit. All dialysis patients in the North West Region will be invited to take part in the study. Data will be collected prospectively from hospital records. Calcium, corrected calcium, phosphate, albumin, alk phos, PTH and bicarbonate will be collected from the three most recent blood tests. Drug treatment including vitamin D, phosphate binders and steroids, and the systems used to record this information will be recorded. The number of females and their menopausal state will be defined using age and HRT treatment. The number of patients who have received a transplant will be recorded. Ethnic group, first language and ability to read English will be recorded. Dietitian : patient ratio will be recorded for each unit. Dietitians Physicians Pharmacists Ongoing audit April 2001 Health disciplines involved: Timescale: ACTION Proposed date for audit presentation: AUDIT OF CARDIOVASCULAR RISK PROJECT PLANNING GUIDE AUDIT PROJECT Audit Leads: Specialist registrar: Audit facilitator: Type of audit:: REASONS FOR CHOICE Aims & objectives: Proposed health benefits: Evidence base: Priority: METHODOLOGY Standards: Dr R Foley Consultant Renal Physician Hope Hospital Dr L Solomon Consultant Renal Physician Royal Preston Hospital Dr M Venning Consultant Renal Physician Withington Hospital Dr G Wood Consultant Renal Physician Withington Hospital Dr E O’Riordan Specialist Registrar in Renal Medicine Manchester Royal Infirmary Nicola Reid Regional Renal Audit Co-ordinator Ongoing To assess cardiovascular risk in the dialysis population in the North West Region To assess cardiovascular risk intervention in the dialysis population in the North West Region To compare blood pressure control at unit and regional level, with national performance (measured by the UK Renal Registry). To provide a basis for prospective evaluation of the relationship between cardiovascular risk factors, interventions and patient outcome. To reduce mortality To reduce cardiovascular events To improve quality of life RN Foley, PS Parfrey and MJ Sarnak. Epidemiology of cardiovascular disease in chronic renal disease J Am Soc Nephrol 9 S16-S23 1998 P Jungers et al. Incidence and risk factors of atherosclerotic cardiovascular accidents in pre-dialysis chronic renal failure patients: A prospective study. Nephrol Dial Transplant 12 2597-2602 1997 KB Meyer and AS Levey. Controlling the epidemic of cardiovascular disease in chronic renal disease: Report from the National Kidney Foundation task force on cardiovascular disease. J Am Soc Nephrol 9 S31-S42 1998 National Regional Regional Association Recommended Standard1 (evidence level B) Target pre-dialysis blood pressures should be: Age <60: BP<140/90 mmHg (Korotkoff V if auscultation is used) Age >60: BP<160/90 mmHg (Korotkoff V if auscultation is used) 1Standards Guidelines: Patients: Methods: Health disciplines involved: Timescale: ACTION Proposed date for audit presentation: Persons responsible for monitoring change: subcommittee of the Renal Association. Treatment of adult patients with renal failure: Recommended Standards and audit measures. Renal Association 1997 (Second edition). British Hypertension Society Guidelines All patients enrolled in a dialysis programme in the North West Region will be invited to take part in the study. Data will be collected prospectively from patients, patient notes and computer systems onto a standardised data collection sheet. Data collected from patients will include: age, sex, socio-economic status, obesity, smoking history, no alcohol consumption, physical inactivity, history of hypertension, diabetes, menopause, current medication, family history of early onset CVD, history of MI, history of stroke, history of CABG, history of angioplasty, history of vascular surgery. Data collected from patient records will include: blood pressure, Hb, Albumin, PTH, URR, total cholesterol, LDL and HDL cholesterol. Data will be collated and analysed by the regional audit co-ordinator. Physicians Hospital nurses Ongoing April 2001 Physicians AUDIT OF PERITONITIS PROJECT PLANNING GUIDE AUDIT PROJECT Audit Lead: Specialist registrar: Audit facilitator: Type of audit: REASONS FOR CHOICE Aims & objectives: Proposed health benefits: Evidence base: Priority: METHODOLOGY Standards: Dr R Coward Consultant Physician and Nephrologist Royal Preston Hospital Nicola Austerberry Regional Renal Audit Facilitator Ongoing To measure achievement of the Renal Association standard for peritonitis To benchmark peritonitis rates within the North West Region To increase survival To reduce morbidity Golper TA and Tranaeus A Vancomycin revisited Perit Dial Int 1996 16 116 – 117 Keane WF et al Peritoneal dialysis related peritonitis: treatment recommendations Perit Dial Int 1996 16 557 - 573 Port FK et al Risk of peritonitis and technique failure by CAPD connection technique: a national study Kidney Int 1992 42 967 - 974 National Regional Renal Association Recommended minimum standard using the disconnect system1 (evidence level A) Peritonitis rates should be < 1 episode/18 patient-months The negative peritoneal fluid culture rate in patients with clinical peritonitis should be less than 10% The initial cure rate of peritonitis should be more than 80% (without the necessity to remove the catheter). 1Standards Guidelines: Patients: Methods: Health disciplines involved: Timescale: ACTION subcommittee of the Renal Association. Treatment of adult patients with renal failure: Recommended Standards and audit measures. Renal Association 1997 (Second edition). None All peritoneal dialysis patients in the North West Region who present with an episode of peritonitis between 1.4.2000 and 31.3.2001 will be invited to take part in the study. CAPD nurses will collect the data prospectively from nursing records and patient notes onto a standardised data collection sheet. Data will include: patient months per episode, negative peritoneal fluid culture rate and initial cure rate of peritonitis. Data will be collated and analysed by the regional audit facilitator. PD nurses Physicians Ongoing Proposed date for audit presentation: Persons responsible for monitoring change: October 2001 PD nurses AUDIT OF HAEMOGLOBIN AND ERYTHROPOIETIN PROJECT PLANNING GUIDE AUDIT PROJECT Audit Leads: Audit facilitator: Type of audit:: REASONS FOR CHOICE Aims & objectives: Proposed health benefits: Dr P Kalra Consultant Nephrologist Hope Hospital Nicola Austerberry Regional Renal Audit Facilitator Ongoing To determine the extent of Epo therapy in the region To measure achievement of the Renal Association standard To benchmark haemoglobin levels regionally and nationally (using data from the UK Renal Registry) To measure efficacy of treatment To monitor improvement in control of anaemia To reduce morbidity To reduce cardiovascular risk To reduce blood transfusion (hence viral transmission and transplant recipient sensitisation) To reduce iron overload Evidence base: Moreno et al Influence of haemotocrit on quality of life of haemodialysis patients Nephrol Dial Transplant 1994 9 10-34 Eschbach et al Normalising the haemotocrit in haemodialysis patients with Epo improves quality of life and is safe 1993 J Am Soc Nephrol 4 425 Priority: National Regional METHODOLOGY Standards: Regional Association Recommendation1 (evidence level A) A target haemoglobin concentration of not less than 10g/dl should be achieved in the great majority (>85%) of patients after 3 months on HD or PD. Transfusions should be avoided wherever possible in patients likely to be transplanted to avoid sensitisation. 1Standards Guidelines: Patients: Methods: Health disciplines involved: subcommittee of the Renal Association. Treatment of adult patients with renal failure: Recommended Standards and audit measures. Renal Association 1997 (Second edition). Regional guidelines developed from previous audit All patients enrolled in a dialysis programme in the North West Region will be invited to take part in the study. Data will be collected prospectively from computer systems, anaemia coordinator records and patient notes onto a standardised data collection sheet. Data collected will include haemoglobin, Epo therapy, iron status and mode of dialysis. Data will be collated and analysed by the regional audit facilitator Anaemia co-ordinators Timescale: ACTION Proposed date for audit presentation: Persons responsible for monitoring change: Nurses Physicians Ongoing April 2001 Anaemia co-ordinators AUDIT OF SURVIVAL PROJECT PLANNING GUIDE AUDIT PROJECT Audit Lead: Specialist registrar: Audit facilitator: Type of audit:: REASONS FOR CHOICE Aims & objectives: Proposed health benefits: Evidence base: Priority: METHODOLOGY Standards: Dr R Gokal Consultant Nephrologist Manchester Royal Infirmary Dr M Venning Consultant Renal Physician Withington Hospital Dr A Trehan Research Registrar Manchester Royal Infirmary Nicola Reid Regional Renal Audit Co-ordinator Ongoing To measure achievement of the Renal Association Recommendation (provisional targets). To benchmark survival within the North West Region To examine the characteristics of patients who do not achieve the Renal Association Recommendation. To increase survival Brunner FP et al Survival on renal replacement therapy: data from the EDTA registry. Nephrol Dial Transplant 1998 2 109-122 16 116 – 117. Khan IH et al Survival on renal replacement therapy in Europe: is tehre a ‘centre effect’ Nephrol Dial Transplant 1996 11 300-307. Valderrabano F et al Use of APACHE II classification to evaluate outcome and response to therapy in acute renal failure patients in a surgical intensive care unit. Ren Fail 1995 17 731-742. National Regional Renal Association Recommendation1 (provisional targets) The following provisional targets may be set for mean survival: For all patients with ‘standard’ primary disease aged 18-55 years 1 year > 90% 5 years > 80% 10 years > 70% For all patients except those with diabets mellitus aged 18-55 years 1 year > 90% 5 years > 75% 10 years > 65% 1Standards Guidelines: subcommittee of the Renal Association. Treatment of adult patients with renal failure: Recommended Standards and audit measures. Renal Association 1997 (Second edition). None Patients: Methods: Health disciplines involved: Timescale: ACTION Proposed date for audit presentation: Persons responsible for monitoring change: All patients enrolled in a dialysis programme in the North West Region will be invited to take part in the study. Data will be collected prospectively from computer systems onto a standardised data collection sheet. Data will include: date started dialysis and comorbidity. Data will be collated and analysed by the regional audit co-ordinator. Nurses Physicians Ongoing April 2001 Physicians Appendix five Project plans for the programme of new individual audit AUDIT OF ETHNICITY PROJECT PLANNING GUIDE AUDIT PROJECT: Audit leads: Specialist Registrar: Audit Facilitator: Type of audit: REASONS FOR CHOICE Aims and objectives: Proposed health benefits: Evidence base: Priority: METHODOLOGY Standards: Guidelines: Patients: Methods: Dr R Ahmad Consultant Renal Physician Royal Liverpool University Hospital Dr D Smithard Consultant Physician Birch Hill Hospital Dr Anijeet Specialist Registrar in Renal Medicine Royal Liverpool University Hospital Nicola Reid Regional Renal Audit Co-ordinator First time audit To assess the availability of translators. To assess the availability of relevant patient information. To assess equity of treatment. To assess equity in access and waiting times for dialysis and transplantation. To reduce mortality To reduce co-morbid illness To improve quality of life Nazroo JY. Health of Britain’s Ethnic Minoities. PSI 1997 Ayanian JZ et al. The effect of patients’ preferences on racial differences in access to renal transplantation. N Engl J Med 1999 341 1661 – 1669. Garg PP et al. Effect of the ownership of dialysis facilities on patients’ survival and referral for transplantation. N Engl J Med 1999 341 1653 – 1660. Regional None None All patients receiving dialysis in the North West Region on 1.11.2000 will be invited to take part in the study. Data will be collected prospectively via patient questionnaires and from hospital records. Ethnic group, first language, knowledge of other languages, level of communication (i.e. ability to speak and read English if first language is not English), access to translators, access to patient information in first language will be recorded via a patient questionnaire. Hospital record of ethnic group, availability of translators, availability of patient information, age, sex, primary renal diagnosis, diabetes, first mode of treatment, date dialysis started, date of first access formation, blood group, Epo treatment, if on waiting list for transplant after 6 Health disciplines involved: Timescale: ACTION Proposed date for audit presentation: months of treatment and creatinine at first visit to nephrologist will be collected from hospital records. Nurses Physicians April 2000 – March 2001 April 2000