e-NEWS
April 9, 2010
Dear Families, Friends, Healthcare Providers and Clinicians:
Did you know children and adults with Down syndrome (Ds) may experience a variety
of health-related issues such as Sleep Apnea (57- 80% children/adults), Attention
Deficit Disorder, Atlantoaxial Instability, Mental Health, Disorders, Autism and
more…DSA San Diego is taking the lead on establishing a healthcare network to
design and coordinate a system of healthcare, treatment and research to meet the
diverse and complex needs of children and adults with Down syndrome.
To learn more about health concerns and cutting edge treatment, interventions and
research from national experts on Down syndrome…Register Today for the
DSA San Diego 21st Research & Healthcare Symposium scheduled for April
17th. Please refer to conference/registration details below. View flyer at
http://www.dsasdonline.org/admin/files/HealthcareSympFlyer.pdf
This conference is a MUST for families, physicians, clinicians, educators and
caregivers. Please invite your family physicians, teachers and therapists.
Scholarships are available for both families and professionals. Contact
dsasd@projects.sdsu.edu or call 619. 594-7389 for details.
Sleep apnea occurs in 1-12% of typical children / 57-80% of children with Ds
AAFP report this as serious health concern children – and according to Cincinnati
Children Hosp…, “It has been suggested that the increased arousal rate seen in
children with Down syndrome may affect their daytime function and could exacerbate
learning or behavior disorders. In children with Down syndrome, behavior and learning
disabilities associated with sleep loss tend to be overlooked and assumed to be
associated with the limited intellectual abilities associated with Down syndrome.”
DSA SAN DIEGO
21ST CENTURY DOWN SYNDROME
RESEARCH & HEALTHCARE SYMPOSIUM
Featuring National Experts on Down syndrome
William C. Mobley, Dr. Ira T. Lott, Madeleine Will and Dr. Karen L. Summar.
April 17th
San Diego Sheraton Marina, Bay Tower
Belaire Ballroom
1380 Harbor Island Drive
San Diego, CA 92101
REGISTER TODAY ONLINE…DEADLINE IS APRIL 24TH
www.DSAsdonline.org
DSA San Diego Members: $40/per. or $70/couple (immediate family)
Non-members/Professionals: $50/per. or $90/couple.
Self parking: $8 or Valet parking: $14
-------------------------------------------------------------Down Syndrome Association of San Diego
Family Support Network Meetings:
4/13/10 DSA Family Support Network (Early Childhood) – North County
4/15/10 DSA Family Support Network (Early Childhood) – Central SD
4/22/10 DSA Red de apoyo a familias (Primera infancia) – Central SD
5/12/10 DSA Family Support Network (All Ages) – Central SD
Topic: Music Therapy: An interactive presentation using music to promote
a variety of skills, presented by Rachel Ferguson, MT-BC.
Location: Harold J. Ballard Parent Center, 2375 Congress Street, San Diego, CA
92110 (Old Town). Supervised play area for children up to age 10 will be
available - Please RSVP, as space is limited. For more information or to RSVP,
please call DSA at (619) 594-7389 or email: dsasd@projects.sdsu.edu
Imperial County:
4/17/10 Down syndrome Support Spring Social – Imperial County
A detailed listing of all local Support Groups can be found at
http://www.dsasdonline.org/dsasd.cfm?pid=Support_Groups_2
---------------------------------------------------------------UPCOMING EVENTS:
For all event details go to http://www.efrconline.org/calendar/maincal.cfm
Local/Regional/National:
4/17/10 Ds Research & Healthcare Symposium – San Diego
4/17/10 Armed Services Healthy Kids Day
4/28/10 Supporting Your Child’s Learning at Home
4/28/10 IEP 101
5/07/10 Universal Design for Learning in Higher Education
7/16 – 18/10 National Down Syndrome Congress Convention
Location: Disney’s Coronado Springs Resort at Walt Disney World, FL.
---------------------------------------------------------------Please consider forwarding e-NEWs to educate and inform families, friends and professionals about current
information and resources supporting children and adults with Down syndrome, and to receive notices on
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Down Syndrome Association of San Diego does not promote or recommend any therapy, treatment,
institution, etc. and does not espouse any particular political, educational or religious views. Inclusion of
information or resources does not necessarily imply promotion or recommendation by DSA. Content is
provided for informational purposes only. www.DSAsdonline.org