Work and Pensions Committee Inquiry into the impact of the Work Programme on different user groups Response from the Centre for Mental Health, Mind, and the Scottish Association for Mental Health (SAMH) 1. Introduction 1.1 The Work Programme works with an unprecedented number of benefit claimants, with vastly different circumstances, barriers, prospects and needs, within a single back-to-work scheme. It is therefore absolutely vital that the programme is able to identify these circumstances, recognise these barriers, and support these needs. 1.2 People with mental health problems make up a significant proportion of people on the Work Programme. People with ‘mental and behavioural disorders’ accounted for 44 per cent of claims for the old Incapacity Benefit.1 For the new out-of-work disability benefit, Employment and Support Allowance (ESA), 32 per cent of claims are primarily for mental health problems. 2 Many people on Jobseekers Allowance (JSA) may experience depression and anxiety, linked to their unemployment. It is therefore essential that the Work Programme is able to adequately cater for this user-group. We agree that returning to work can be an important step in someone’s recovery from a mental health problem. However, it is vital that any back-to-work programme does not jeopardise this recovery through inappropriate conditionality or insufficient support. 1.3 This submission is built upon information we have gathered from people with mental health problems who have received back-to-work support and from Work Programme providers. 2. Key concerns 2.1 Work Capability Assessment (WCA): The WCA, which determines the payment a provider receives when someone finds work, is an insufficient assessment tool to determine levels of support needed. 2.2 Pricing Categories: The current pricing categories are too broad. As a result there are people in the same group who have vastly different 1 DWP, Statistics tabulation tool (Benefit Caseload National Statistics (WPLS) data) http://83.244.183.180/100pc/tabtool.html (statistics run up to February 2012) 2 DWP, Main health condition reported by Employment and Support Allowance claimants, by employment situation immediately before claim , http://statistics.dwp.gov.uk/asd/asd1/adhoc_analysis/2012/ESA_claimants_health_fro m_work_final_20121101.xls needs. Those whose needs are less time intensive are prioritised. The impact of contracting based on such broad categories is driving providers to focus less on participants who face greater barriers to work. 2.3 Focus on Outcomes: The exclusive focus on outcomes (finding work) fails to recognise the importance of progress made by people on the Work Programme. If payments were also made on progress, specialist providers would be more incentivised, and have more resources, to work with people facing the largest number of barriers to getting back into the workplace. 2.4 Conditionality and Sanctions: The disproportionate emphasis on conditionality and sanctions presupposes that people who are out of work do not want to get back into work and fails to help build people’s confidence. 2.5 Specialist training and Integrated services: The Government must ensure that that all staff are appropriately trained in mental health problems and that providers have more mental health experts. The Government should also ensure that Work Programme providers are given the financial incentives to work with health and social care services to offer clients integrated health and employment support. 3. The Work Capability Assessment 3.1 The WCA decides which people are eligible for ESA, and if so whether they are placed in the Work-Related Activity Group (WRAG), where they are required to start preparing for a return to work, or placed in the Support Group where any preparation would be voluntary. 3.2 It is therefore essential that the WCA works properly in assessing needs. 3.3 However, overwhelming evidence from people who have undergone the WCA shows that it is unfit for assessing people with mental health problems. Between October 2008, when ESA was introduced, and May 2011 (the most recent figures available for condition-specific appeals data), 43 per cent of ‘Fit for Work’ decisions for applicants with ‘mental and behavioural disorders’ were appealed and 41 percent of these appeals were successful. 3 3.4 We regularly hear from people who have received zero points on the WCA and are declared ‘Fit for Work’ who then have the decision overturned after a long and distressing appeals process: DWP, Employment and Support Allowance: Appeal Outcomes (Tables) http://statistics.dwp.gov.uk/asd/asd1/adhoc_analysis/2012/ESA_Appeal_Outcomes.xls 3 3.5 “I wasn’t asked any questions about my illness or how I was coping. Even though I volunteered information none of my responses were documented in the subsequent report. It was decided that I was completely fit for work having scored O on the medical assessment.” 3.6 One of our local Minds in South East London, which runs a welfare advice service, reported that they frequently receive referrals from the Jobcentre. Referrals are made up of clients on the Work Programme, but who the Jobcentre believes are currently unfit to participate in back-to-work activities. The local Mind will help the client to appeal the decision of the WCA. In the last three months they have received 1012 of these types of referrals. 3.7 We have also heard from Work Programme providers that they spend a significant amount of time helping people appeal the decision of the WCA rather than offering them back-to-work support because providers felt the decision was incorrect. 3.8 For more details about our concerns about the WCA, please see our joint submission to the third Harrington review, which was recently passed onto the Clerk of the Committee. 3.9 As a result of these problems with the WCA, people are getting inadequate support or being forced to undertake activities with which they cannot cope. 3.10 For people placed in the WRAG, the point at which they are referred to the Work Programme is largely set by the ‘functional prognosis’ from their WCA. Initially people in the WRAG were referred to the Work Programme three months before this date. This period was then extended to six months and is now being extended to twelve. We are concerned that there will be a lack of adequate assessments put in place to ensure that people are actually well enough to properly engage with back-to-work-support so far in advance of the date that the WCA has decided that they will be better. 3.11 We have heard from significant numbers of people experiencing high levels of stress and anxiety as a result of the WCA. This results in them feeling much less positive about engaging in back-to-work support and less likely to return to work sooner. We have also spoken with Work Programme providers who described how negative experiences of the WCA can make participants less likely to positively engage with back-towork support. They also told us that that information passed onto them about someone’s health condition from the WCA offers little to no insight into their mental health problems and the support they require. 4. The Work Programme 4.1 Pricing Work Programmes providers receive a higher level of payment for securing work for people on ESA than those receiving JSA. A higher payment is made for clients on ESA in the Support Group than those in WRAG. 4.1.1 Given the complex and intangible nature of many mental health problems and the tendency for conditions to fluctuate over time, finding sustainable employment for a client in these groups is a huge challenge. We therefore support the policy of paying providers more for finding work for people in these groups in order to reflect the additional costs associated with placing and supporting clients. 4.1.2 However, that there is one payment level for all ESA WRAG claimants results in a very broad group of claimants within one price band. A person’s mental health diagnosis is not a good predictor of their employability or the barriers they face to getting work. We have spoken with sub-providers, specialising in helping disabled people to find sustained employment, who reported that such broad categorisation and payment structures forces them to focus on clients whose needs are less complex as payments do not cover the amount needed for clients with more complex needs, despite that fact that this goes against the values of their organisation. 4.1.3 The system needs to be better able to reward providers according to their clients’ personal needs and barriers. 4.2 Greater Focus on Progression 4.2.1 Currently providers can claim a job outcome payment after a participant has been in a job for three to six months. After receiving a job outcome payment, providers can claim sustainment payments every four weeks when a participant stays in work. 4.2.2 The current system fails to recognise the progress that specialist providers are making with participants who have mental health problems, but who may not yet have gained employment. These participants face greater barriers to work and often need a considerable amount of support in building work-skills. However, the current payment structure fails to recognise this important work that specialist providers are performing. 4.2.3 We welcome a payment structure which would reward, not simply the outcome of employment, but also the progress made by clients with more complex needs. This payment structure would make it much more viable for small specialist providers to work with clients, who have complex needs, over a longer period of time and better support their return to work. 4.3 Conditionality and Sanctions 4.3.1 The majority of people with mental health problems on ESA are placed in the WRAG and are required to participate in back-to-work support. They face sanctioning if they do not participate. We are increasingly concerned that the system is characterised more by coercion rather than by a genuine attempt to support individuals into the workplace. 4.3.2 Significant numbers of people have described to us the negative impact threats of sanctioning have upon their return to work: 4.3.3 “I got a nasty letter which said my benefit was at risk because I didn’t attend an appointment and I had to give a really good explanation within a week or my benefit would be cut. It quoted all these regulations I broke. I freaked out because I couldn’t understand what I hadn’t done. …It turns out there was a mistake” 4.3.4 “I was made very anxious and sleepless by what I perceived as threatening letters and terms from Jobcentre Plus and a4e. I became depressed because I could see that my hopes to return to work were being made unrealisable by this route” 4.3.4 These comments demonstrate how sanctioning is detrimental to people’s mental health and weakens their ability to successfully engage with back-to-work support. Supporting this evidence, the Employment Related Services Association analysis of Work Programme statistics at the end of November 2012 showed that there are better job outcomes for people claiming ESA who voluntarily participate in the Work Programme.4 4.3.5 The only international evidence on the impact of conditionality on people with mental health problems found that the system does not incentivise job searching or work-related activity; rather it leads to a loss of income as sanctions are applied, with a consequent risk to the person’s health: “Rather than creating behavioural change, sanctions imposed on unresponsive groups are punitive.”5 4.3.6 We have also heard from Work Programme providers who find the policy of sanctioning detrimental to their engagement with clients with mental health problems. Currently sub-providers are required to report to the Jobcentre if clients fail to engage with any element of back-towork support. They explained that often this means they are forced to report clients for sanctioning whom they feel had a legitimate reason for not fully engaging with back-to-work-support. Whilst they can submit details of mitigating circumstances to the DWP, they felt that this policy often weakened their relationship with clients. The ERSA Analysis of Work Programme Job Start Data and Work Programme Briefing, November 2012. 5 Meara E and Frank R, 2006, Welfare Reform, Work Requirements and Employment Barriers. National Bureau of Economic Research, Cambridge MA 4 4.3.7 Furthermore, the focus on sanctions as a tool for ‘encouraging’ people in the WRAG to engage with support presupposes that people with disabilities do not want to work, and that the principal barrier in not doing so is their motivation. Significant numbers of people have described to us how this approach has led them to feel increasingly stigmatised, further disengaging them from back-to-work support. One person stated: 4.3.8 “I always feel that benefits treat me as if I am lying all the time, they assume I’m like some others and trying to avoid work” 4.4 Barriers to Successful Employment Outcomes 4.4.1 Whilst people with mental health problems have one of the lowest employment rates among disabled people (at 27 per cent for depression and anxiety, and 14 per cent for more severe conditions, compared to 46 per cent for disabled people as a whole), they have the highest ‘want to work’ rate among benefit claimants.6 The Government should therefore focus on external barriers that people with mental health problems face in employment, including workplace discrimination. One claimant we spoke to commented: 4.4.2 “My objective for the last 11 years in unemployment has been to find appropriate work for my condition and qualifications that would make claiming state benefit unnecessary. Such dictatorial and penalising attitudes would increase my levels of anxiety and depression and would be counterproductive, replicating what happened with my last employer” 4.4.3 Fewer than four in ten employers would knowingly employ someone with a mental health problem7 and 40 per cent of employers view workers with mental health issues as a ‘significant risk’.8 A 2011 Populus poll of 2,006 adults in employment found that of those who disclosed a mental health problem, 22 per cent were sacked or forced out of their jobs,9 demonstrating that many of the fears that people have about re-entering the workplace are well founded. The Work Programme should therefore also consider external barriers and the Government should focus on resolving workplace stigma and discrimination. 4.4.4 People have also described to us how activities were focused on getting people any form of work, rather than the most appropriate forms of work: 6 Social Exclusion Unit (2004) Mental Health and Social Exclusion DWP (2001) One Evaluation 8 Shaw Trust (2010) Mental Health: Still The Last Workplace Taboo? 9 Populus survey for Mind, in 2011, interviewed 2,006 adults in employment. Data have been weighted to be representative of all GB adults in terms of gender, age, SEG and region. Of the 2,006 interviewed, 516 had experienced a mental health problem while in employment and 294 had told their boss. Press release retrieved from: http://www.mind.org.uk/news/5053_workers_face_the_sack_for_admitting_they_feel_stressed 7 4.4.5 “Support was only really to get me into a job, however unsuitable, in order to tick a box and provider to get money in and achieve targets” 4.4.6 Whilst we know that work based on a person’s preferences and accessed with the right kind of support can be a vital part of recovery from a mental health problem, we also know that inappropriate work can be worse for someone’s mental health than not working at all.10 Often the Work Programme does not account for the skill and experience that someone might have, and people are offered lower paid roles which require less experience. This approach does not support aspiration or wellbeing. 4.4.7 Work Programme providers also reported to us that at present, due to cuts to other services, they spend significant amounts of time assisting people with issues such as housing and health. These issues should also be recognised as key in helping someone re-enter the workplace, and greater focus and resources should be allocated by government to help providers address multiple needs. 4.5 Work Choice 4.5.1 We would also recommend that more people with mental health problems are referred to Work Choice, the Government’s specialist employment programme. Participation in Work Choice is voluntary, which we believe, and is reflected in the ERSA recent analysis of Work Programme statistics, is a basis through which to successfully work with people facing multiple barriers and ensure their sustain return to the workforce.11 Work Choice however, is limited to 115,000 placements over the lifetime of a five year contract and only 14 per cent of all referrals to Work Choice so far have been ESA claimants.12 5. Mental Health Expertise and Integrated Support 5.1 Specialist Mental Health Training Many of our supporters have commented that there is a lack of understanding of mental health among Work Programme providers: Comments include: 5.1.1 “She said of depression things like if I felt a bit down then I should really just make more of an effort to do stuff even if it is a chore. It’s lovely having your feelings being made light of” 5.1.2 “When I eventually got to see a disability specialist the first thing he said was he didn’t understand my diagnosis and was going to get an occupational therapist to reassess me… when I turn up to an appointment it 10 Butterworth, P, Leach, L, Strazdins, L et al 2011, 'The psychosocial quality of work determines whether employment has benefits for mental health: Results from a longitudinal national household panel survey', Occupational and Environmental Medicine, vol. 68, no. 11, pp. 806-812. 11 The ERSA Analysis of Work Programme Job Start Data and Work Programme Briefing, November 2012. 12 See November 2012 data: http://statistics.dwp.gov.uk/asd/workingage/wchoice/wc_nov12.pdf seems pretty clear that no thought has been given to me between appointments or even before the appt as the advisor … [had] look on her computer to refresh her memory of what my diagnosis [was]” 5.1.3 We also heard from providers who described how, with greater funding could recruit extra staff to coordinate health and social care with backto-work support. They described that this approach would be more sensitive to the multiple needs people with mental health problems face and better support their transition into the workplace. 5.2 Individual Placement Support (IPS) Model 5.2.1 There is clear evidence that employment support is most effective for people with mental health problems if it is integrated with health care. The IPS approach, which is used in secondary mental health care, is twice as likely to enable people with severe mental health problems to enter competitive work than any other type of work programme.13 Advisers who understand mental health help the person to identify what barriers they face, how they might overcome them, and what work they would like to do. The adviser proactively seeks out employers who might be well suited to the person’s abilities and needs. The individual and their employer are then supported within the workplace for as long as required. 5.2.2 Participation in IPS is voluntary, so conditions and sanctions are not necessary. As already discussed recently published DWP figures show that there are better job outcomes for people claiming ESA who voluntarily participate in the Work Programme. We believe that voluntary participation coupled with specialist support for people with mental health problems, demonstrating to people that the system was genuinely designed to help them, would result getting far larger numbers of people back into sustained employment. 6. Recommendations 6.1 The Government should ensure that the WCA is fit to properly identify the needs and barriers that people with mental health problems face in the workplace. 6.2 The principle focus of Work Programme providers should be on demonstrating to clients that the back-to-work process is a positive one, rather than using sanctions to enforce involvement. Discussions about sanctioning should not take place until it is clear that the client does not want to engage with back-to-work support. 6.3 Any conditionality should take account of the individual client’s circumstances and needs, and should not result in any negative impact 13 The Centre for Mental Health, ‘The Work Programme, supporting individuals with severe mental health conditions into work’, http://www.centreformentalhealth.org.uk/pdfs/work_programme_providers_briefing2.pdf, (accessed 19/11/2012) on the clients’ mental health. 6.4 The ambitions and expectations of the client should be central to any programme designed to help them back to work. 6.5 The Work Programme should function to ensure that providers are properly incentivised to cater for the needs of all clients, including those with greater levels of need and barriers to the workforce. 6.6 The Government should ensure that external barriers including workplace discrimination are tackled in order to guarantee successful long-term employment of people with mental health problems.