20 District Health Boards RENAL LIAISON SERVICE STATUS: These service specifications may be NON-MANDATORY amended to meet local agreement needs. Review History Date Published on NSFL July 2002 Amendments changed to non-mandatory status by agreement with DHB GMs Planning and Funding., added PU MAOR0114 July 2012 Note: Contact the Service Specification Programme Manager, National Health Board Business Unit, Ministry of Health to discuss the process and guidance available in developing new or updating and revising existing service specifications. Web site address of the Nationwide Service Framework Library: http://www.nsfl.health.govt.nz/ Renal Liaison Service MAOR0114 1 Kaupapa/definition This service comprises two main components: 2. education and promotion service for organ donation and transplantation support service for people with renal failure. Maori Health The service is expected to contribute to the reduction in health inequalities, the 13 priority Population Health Objectives, as well as the Maori health gain objectives, in particular, targeting services to impact on asthma, diabetes, injury prevention, smoking, hearing, mental health, oral health and immunisation, including violence prevention. The Maori Health Strategy: He Korowai Oranga is referred to and Maori Health requirements are outlined in the General Terms and Conditions and Provider Quality Specifications. In addition the provider arm of the DHB is to develop and implement a Maori Health Plan that outlines how it will contribute to improving outcomes for Maori for the services contained in this service specification. The Plan should include the following objectives as a minimum: 3. How you will ensure that Maori utilisation is at least equal to the Maori population in the provider's catchment. How you will ensure your effectiveness and the acceptability and accessibility of services to Maori How links with primary care - general practice, community providers and Maori providers will be effective for improved outcomes in Maori health; How discharge planning and rehabilitation processes will meet the needs of Maori; Links with the DHB provider arm's Maori Health Plan and other contractual quality specifications, especially consultation with Maori. How these objectives will be monitored and measured for Maori health outcomes. Service Objectives 3.1 Education and promotion service for organ donation and transplantation Traditionally Maori have been reluctant to be organ donors and to accept organ transplantation, because the body and body parts are tapu to Maori according to custom and Maori traditional values. To raise the awareness amongst the Maori community, and to generate a better understanding of the implications of few Maori organ donors being available to Maori needing assistance, it is expected that the service will consult and inform Maori about the issue. The aim of the service is to increase the: understanding of this sensitive issue amongst Maori availability of Maori organs for transplantation where Maori people with renal disease require it as part of their treatment regime. 3.2 Support service for people with renal failure The support service for people with renal failure targets Maori people who are beginning or undergoing treatment. The aim of the support service is to: generate a warm, appropriate, non-judgemental and culturally safe environment for people with renal failure and their whanau develop their understanding and acceptance of the condition assist the client and their whanau with making informed decisions about their choices. The service operates in conjunction with the renal unit at the hospital and with other providers such as GPs, social workers, other hospital services and Maori providers. 4. Scope of Services to be Provided Key elements of the service include: provision of education and information to Maori people about renal failure, organ donation and organ transplantation, in order to seek feedback, create better awareness and understanding and increase availability of organs to those Maori undergoing treatment co-ordination with other providers including hospital services, GPs, Maori providers and with other community services in the area education and advice to people with renal disease about body care, lifestyle, nutrition and exercise. 4.1 Client Group The support service will be targeted at Maori people with renal failure and those undergoing treatment but does not exclude people of other cultures. The education and advice service regarding organ donation and transplantation will be targeted at Maori through hui and consultation forums, advertising and appropriate media. 4.2 Service Components Required Education and Promotion Appropriate and accessible information and advice, and health promotion material that empowers Maori to make informed decisions about organ transplantation and organ donation. Promote the increase in availability of Maori organ donors. Access and availability of specialists (GPs and renal units). Education and information from a Maori perspective promoting and understanding Maori view of health in terms of: taha tinana taha wairua taha hinengaro taha whanau. Reporting to the Ministry of Health on feedback from consultation and other hui in order to assist with development of appropriate policies and purchasing decisions involving renal services. Links with other Providers Integration with other providers, and systems of information sharing and or referral with GPs. Links with local GPs, Maori providers and other providers as appropriate. Support Services for People with Renal Disease Provide information to promote understanding for individuals and whanau of the client’s condition and to facilitate informed decisions. Provide information about available services to individuals and whanau. 4.3 Provision and Level of Service Advice and access to services will be provided from (Insert Service Coverage Area) between the hours 8.30 am - 5.00 p.m., five days per week (Monday to Friday) and via the Renal Unit at the hospital. However some services will be delivered in the home. Education and health promotion hui will be conducted on marae or other venues as considered appropriate to attract targeted clientele, supplemented by advertising and use of media outlets (Maori radio, Maori newspapers). 4.4 Key Linkages The service is required to demonstrate good linkages with: hospital service providers, including renal transplant co-ordinators where appropriate local general practitioners and practice nurses Maori providers other local health care providers including ambulance service, public health nurses, district nurses, etc local providers of social and community services, eg, local schools and Te Kohanga Reo, Department of Work and Income staff, information and advisory services, public health unit activities. You will have written protocols and systems in place to facilitate these linkages. 4.5 Access to the Service Access will be via: 5. self referral referral by GP referral by whanau, marae, Maori providers referral by renal unit. Quality Requirements Philosophy The Ministry of Health wishes to purchase health services for people which meet the needs of the communities served. In doing so, particular attention must be paid to Maori health gain priority areas, and the New Zealand Health Strategy population health priorities and the Maori Health Strategy (Ministry of Health 2001). In regard to Maori health services specifically, the Ministry of Health sees this service as meeting the following Government and Ministry of Health objectives: ensuring purchasing arrangements enable greater participation by Iwi and Maori groups ensuring services provided for Maori are culturally appropriate being responsive to aspirations and interests of Maori recognising the tikanga and mana of each Iwi in the region being aware that Iwi have their own vision for health. In addition to the general quality requirements, the following quality requirements apply to this service: provision of information to eligible people about hours of availability and ways of making contact in an emergency assessment of effectiveness and acceptability through hui or public meetings, which are held at least six-monthly seek feedback from whanau that the service is meeting their needs and that knowledge about health has improved or increased develop relationships with hospital services providing services in other parts of the region. This may be through renal unit staff and/or Maori support/social workers/Maori providers. 6. 6.1 Reporting Requirements Purchase Unit and Reporting Requirements Purchase unit ID Purchase unit short name Purchase unit measure MAOR0114 Maori Primary Health Renal Liaison Service Clients Reporting requirements Frequency Quarterly Hui Reporting units Number of new clients Total By ethnicity* (New Zealand Maori, Pakeha, Other European, Samoan, Cook Island Maori, Tongan, Niuean, Chinese, Indian, Other). Number of new clients by referral source: self referral, GP referral, whanau, marae, other Maori Providers, Hospital Renal Unit, Other. Number of clients exiting the service per quarter Number of on-going hospital clients supported Number of other on-going clients supported Total number of clients using the service Number of clients on dialysis treatment Number of clients who have had a renal transplant Narrative Reports Annual Reports for Maori population health education hui Reports for Maori Provider hui Reports on supporting and facilitating the implementation of Renal Support Groups in designated area Brief narrative report on education and promotion hui (feedback from attendees) Brief narrative report on Maori providers attending education and promotion hui Narrative report on the system developed to monitor extent of impact of organ transplantation education on rate of organ transplants (Maori) undertaken by (insert name of local hospital) Number of annual regional consultation and education hui informing and educating Maori about organ donation and transplantation. *Ethnicity is recorded as perceived by the family/whanau. People may therefore perceive themselves as belonging to /ore than one ethnic group. Ethnicity is to be reported according to the following priority system: if perceived ethnicity includes: Maori, report as Maori Pacific, report as Pacific otherwise, report as Other 6. Financial and Services Reporting Service Reports The provider will report on service delivery and programme development progress using the performance indicators specified in the Schedules. Service reports for each quarter 1st quarter ended 30 September (insert year) 2nd quarter ended 31 December 3rd quarter ended 31 March 4th quarter ended 30 June Report due by 20 October (insert year) 20 January 20 April 20 July Financial Reports The provider will supply the following financial reports to the Ministry of Health. Financial reports for each quarter 1st quarter ended 30 September (insert year) 2nd quarter ended 31 December 3rd quarter ended 31 March 4th quarter ended 30 June Reports due by 20 October (insert year) 20 January 20 April 20 July Monthly payments will be suspended if reports are not received by the due date. The reports are to consist of an Income and Expenditure Account (accrued), Balance Sheet and a Cashflow Statement (not accrued). Draft end of year reports (Income and Expenditure Account and Balance Sheet) are to be supplied to the Ministry of Health within one month of the end of the financial year, ie, 31 July 2001. The provider will use its best endeavours to have audited end of year financial reports (Income and Expenditure Account and Balance Sheet) supplied to the Ministry of Health within three months of the end of the financial year, ie, 30 September 2001.