- The University of Dublin Trinity College Dublin School of Social Work and Social Policy Major Project “The Management of Dual Diagnosis in Ireland, Perceptions and Views of the Professionals” Claire Marie Forrest Submitted as partial fulfilment of the Requirements for the Diploma in Addiction Studies May 2008 1 - The University of Dublin Trinity College Dublin School of Social Work and Social Policy “The Management of Dual Diagnosis in Ireland, Perceptions and Views of the Professionals” Claire Marie Forrest I declare that the content of this assignment is all my own work. Where the work of others has been used to augment my assignment it has been referenced accordingly. Signed_______________________________ Date_____________ Word count:_________________ 2 - Acknowledgements I would like to take this opportunity to acknowledge the following people for their support throughout this study. Firstly I would like to thank the participants for sharing their experiences with me. My tutor Vivienne O’Brien for providing support, patience and guidance throughout the course of this research. The Director and Assistant Directors of Nursing for allowing me to conduct the research and for the opportunity of undertaking the course. The course co-ordinator Marguerite Woods for her support and assistance. My family and friends for their encouragement and patience throughout the course of my studies. My parents for their ongoing loyalty and support throughout my life. 3 - Abstract The increasingly high rates of dual diagnosis in Ireland reflect the high level of substance misuse and mental health co-morbidity in the population. Although studies have explored the management of dual diagnosis at an international level there is a dearth of research which has explored the experiences in the Irish context. The study aimed to gain an understanding of the perceptions and views of professionals from both the addiction and mental health services. A qualitative approach was undertaken. The sample consisted of four professionals, two addiction counselors and two registered mental health nurses working as clinical nurse specialists in the Health Service Executive. Data was collected using semi-structured interviews and analyzed using content analysis. Analysis of the data identified that all professionals possessed a diverse awareness of the problematic issues surrounding the management of dual diagnosis and open to adopting change to their own service and their professional development. Five themes emerged; knowledge of current policies/recommendations, assessment of clients, difficulties in the provision of services, recommendations on the future management of services and existing communication between the mental health and addiction services. It is advocated that policy recommendations need to be implemented as a matter of urgency; guidelines and frameworks need to be developed between the two services in order to provide an effective and collaborative relationship. Both services need to be provided with training to inform professionals of relevant evidence based practice in 4 - working with dual diagnosis. The effectiveness of assessing clients with a co-existing substance misuse and mental health issues need to be evaluated. In order to provide high standards of care both services need to be supported and in order to effectively manage dual diagnosis specialist teams must be executed to bridge the gap between the mental health and addiction services. 5 - Table of Contents Page no Declaration of own work………………………………………………….2 Acknowledgements………………………………………………………...3 Abstract…………………………………………………………………….4 Table of contents…………………………………………………………..6 Chapter 1.Introduction and Aims of the Study 1.0 Introduction ……………………………………………………….9 1.1 Aims of the study……………………………………………………9 Chapter 2.Literature Review 2.0 Introduction ………………………………………………………..11 2.1 What is dual diagnosis?.....................................................................12 2.2 Relationship between Mental Health and Substance Misuse…….13 2.3 Prevalence of dual diagnosis………………………………………..17 2.4 Models of Care………………………………………………………19 2.5 Conclusion……………………………………………………………21 Chapter 3.Methodology 3.0 Introduction ………………………………………………………..22 3.1 Research Design……………………………………………………..23 3.2 Sampling……………………………………………………………..24 3.3 Ethical Considerations……………………………………………...25 3.4 Access ………………………………………………………………..25 3.5 Limitations…………………………………………………………..26 6 - 3.6 Data Analysis ……………………………………………………….27 3.7 Conclusion………………………………………………………….28 Chapter 4.Findings 4.0 Introduction………………………………………………………..29 4.1 Policies……………………………………………………………...29 4.2 Assessments………………………………………………………...30 4.3 Difficulties………………………………………………………….32 4.3.1 Communication……………………………………………………32 4.3.2 Structures between services ………………………………………33 4.3.3 Conceptions of the professionals………………………………….33 4.4 Recommendations on the management of dual diagnosis ………34 4.5 Existing communication between services ………………………36 4.6 Summary…………………………………………………………...37 Chapter 5.Discussion and Recommendations of the Study 5.0 Introduction……………………………………………………….39 5.1 Discussion………………………………………………………….40 5.2 Recommendations for practice…………………………………...43 5.3 Recommendations for education…………………………………43 5.4 Recommendations for future research…………………………...44 5.5 Study limitations…………………………………………………...44 5.6 Personal reflections………………………………………………...44 5.7 Conclusion…………………………………………………………..45 7 - Chapter Six. Conclusion 6.1 Conclusion…………………………………………………………46 Appendices Appendix 1 Glossary of terms…………………………………………….48 Appendix 2 Informed consent form………………………………………50 Appendix 3 Interview Guide………………………………………………51 References…………………………………………………………………..53 8 - Chapter One Introduction and Aims of the Study 1.0 Introduction to the Study The motivation for this research arose from my interest in working with clients with co-existing mental health and substance misuse problems. Working in a Psychiatric Intensive Care Unit (P.I.C.U), I have noticed an increase in the number of patients being admitted with a dual diagnosis. The difficulties in the management of these clients and the lack of follow up or after care in place became evident to me. This chapter will outline the aims of the study. Chapter two will examine, explore and present the available literature on dual diagnosis. Chapter three will describe the methodological approach adopted and present the rationale for the chosen methodology. Chapter four will present findings resulting from the study. Chapter five will incorporate the discussion and recommendations resulting from the study and chapter six will conclude the study. 1.1 Aims of the Study The aim of the study is to gain an understanding of professionals’ experiences of working with clients with a dual diagnosis. The study provides an opportunity to explore, examine and enhance practices, to improve service management, to identify training needs and to improve the quality of care people with a dual diagnosis receive. The intention of the study is to identify current experiences including opinions, attitudes and practices of the professionals in the delivery of services. It is recognized that these experiences may be positive or negative. It is envisaged that an 9 - understanding of their experiences may influence professional development through education and training. As a result of this study the professionals’ experience of the management of dual diagnosis may become clearer, which may lead to an improvement in the management of clients with a dual diagnosis accessing these services and mark a recognizable need for change. 10 - Chapter Two Literature Review 2.0 Introduction The purpose of the study is to examine the management of dual diagnosis services in place in Ireland. Dual Diagnosis is a relatively new phenomenon with its existence being accepted by service providers in the past two decades as a condition requiring treatment. This taken into account it should be recognised that little research has been carried out in Ireland in relation to dual diagnosis and was only recognized by the Irish governments 2006 document ‘A Vision for Change’ prior to this little recognition exists in the Irish context. A research study carried out by the National Advisory Committee on Drugs in 2004 “Mental Health and Addiction Services in Ireland and the Management of Dual Diagnosis” provided a basis for the recognition of dual diagnosis in Irish policies and the need for further research in the area. Mental illness and addiction frequently occur together but have traditionally been treated separately, often in isolation and with an unsuccessful history (MacGabhann et al 2004 p15). MacGabhann et al 2004 (p50) also highlight that successful treatment of either substance disorders or mental illness is extremely challenging if treated separately as complex interactions between the two can have serious consequences for the health and well being of the client. Both disorders are chronic, relapsing, stigmatizing and potentially disabling. To examine the management of dual diagnosis, the following review will focus on the following themes; what is dual diagnosis, the relationship between mental health and substance misuse, prevalence of dual diagnosis and treatment models of care bearing in mind that the NACD 2004 (p11) highlight that there is a dearth of research on dual diagnosis in the Irish context. 11 - 2.1 What is Dual Diagnosis? Varcarolis 2000 (p256) describes dual diagnosis as the co-occurrence of a substance use disorder with a psychiatric disorder. A Vision for Change Report on the Expert Group on Mental Health Policy states that dual diagnosis is a condition where an individual presents with a mental health disorder and concurrently a substance abuse problem. However in 2004 in a report on the management of dual diagnosis in Ireland commissioned by the National Advisory Committee on Drugs MacGabhann et al stated that no consensus exists on what dual diagnosis is and making a dual diagnosis ranges from explicitly identifying two or more classified disorders to establishing problematic substance use with the manifestation of some psychological symptoms (p11). The phrase dual diagnosis has been internationally adopted in order to present a wide range of clinical presentations by those who have both mental health and substance misuse problems. In more recent times dual diagnosis has become common in mental health practice describing the relationship between severe mental illness (mainly psychotic disorders) and substance misuse (NACD 2004 p23). Tyrer 1996 promotes the concept of co-morbidity which is used for the illustration of the presence of more than two concurrent ailments’, this description of dual diagnosis entails various behaviours and consequent problems of two defined components in a clearly defined presentation. Common co-morbid psychiatric disorders include personality disorders (borderline and antisocial), major depression, bipolar disorder and schizophrenia. Varcarolis 12 - 2000 (p257) dual diagnosis must always be identified and the co morbid disorder treated simultaneously if any change in drug related behaviour is to occur. In the Irish context outlined by the policy document A Vision for Change mental disorders are three times as common among those with alcohol dependence in comparison with the general population, 40% of service users managed by the Community Mental Health Teams report to have drug or alcohol misuse problems (p146). Research indicates that the rate of co-morbidity of substance abuse among individuals with schizophrenia is rising at a higher rate than in non-psychiatric populations. In a study carried out by Kamali et al 2006 of in-patients with a diagnosis of schizophrenia 39% fulfilled the criteria for a lifetime history of substance misuse. In this particular study the main substances being misused were alcohol, cannabis or a combination of both. The presence of co-morbidity contributes to greater severity of addiction therefore in turn to the severity of mental illness With this co-occurrence rates of relapse are higher, service utilisation increased, inpatient treatment becomes frequent and poor treatment results exist for both conditions (p146 A Vision for Change). 2.2 Relationship between Mental Health and Substance Misuse The relationship between substance use and mental illness appears to be unique with various possible relationships which lead to a dual diagnosis for the individual. Gafoor and Rassool 1998 (NACD 2004 p25) believe this complex relationship gives rise to a heterogeneous group with defining features of the dual diagnosis changing over time. In 2002 the U.K. Department of Health described a more manageable and clinically relevant interrelationship between psychiatric disorders and substance misuse. The Dual Diagnosis Good Practice Guide outlined these possible 13 - relationships as: A primary psychiatric illness precipitating/leading to substance misuse. Substance misuse worsening/altering the course of a psychiatric illness. Intoxication and/or substance dependence leading to psychological symptoms. Substance misuse and/or withdrawal leading to psychiatric symptoms or illnesses. As the term dual diagnosis is multifaceted all of the above relationships outlined may contribute to an individual being diagnosed with a dual diagnosis. Under the Mental Treatment Act 2001 involuntary admission of a person to an approved centre by reason that a person is addicted to drugs or alcohol is not liable (p11 MTA 2001). The primary aim of the National Drugs Strategy 2001-2008: Building on Experience outlined its strategic objective as to ‘significantly reduce the harm caused to individuals and society by the misuse of drugs through a concerted focus on supply reduction, prevention, treatment and research’ but there is no reference is made to the management of dual diagnosis within the strategy. However the Strategy aims at adopting a balanced approach within an integrated framework it endorses inter-agency co-ordination, integration and community/voluntary sector participation as necessary steps to effective implementation. The Drug Treatment Centre Board (DTCB) on a study regarding Methadone Maintenance Therapy suggests that a significant amount of evidence suggests that poly-substance abuse seriously compromises treatment (DTCB 2004 p1). Results obtained suggest that the effectiveness of psychosocial programmes associated with MMT varies widely among clinics. The DTCB 2004 (p1) recognize early and more frequent counselling contacts associated with lower rates of drug use by patients on 14 - MMT proved more beneficial whilst highlighting that clients with a co morbid mental disorder and substance misuse problem have poorer treatment outcomes, limited research exists on the impact of mental disorders on the treatment of opiate dependence. The DTCB acknowledges that clients attending their service at Trinity Court in Dublin have higher rates of psychiatric co morbidity, serious physical illness and co-dependence on other substances. In their study a co-morbid psychotic illness was present in 6% of clients and a co morbid affective disorder was present in 27% of clients. An unexpected finding of the study was that clients with a dual diagnosis engaged well in terms of opiate abstinence. The DTCB believes this is due to the fact that clients with a dual diagnosis were receiving more intensive treatment from adult mental health teams. Enhanced and multidimensional services have shown to demonstrate increased effectiveness in substance misuse treatment (DTCB 2004 p5). The Health Service Executive developed a Report on the Working Group on Residential Treatment and Rehabilitation (Substance Abuse) acknowledging that because those with co morbid substance dependence and psychiatric problems are seen as a major target group particularly in need of in patient interventions, the level of such dual diagnosis is important in assessing treatment needs (p18 HSE Report). Both the National Drug Treatment Reporting System (NDTRS) and the National Psychiatric Inpatient Reporting System (NPIRS) report the use of psychiatric services for the treatment of drug and alcohol problems. However the implementation of the recommendations of the Expert Group on Mental Health Policy A Vision for Change 2006 will see this practice discontinued as: “individuals whose primary problem is substance abuse and who do not have (other) mental health problems will not fall 15 - within the remit of mental health services” (HSE Working Group Report p41). The Report recommends that significant support is needed for the development of drug and alcohol community based services, including the availability of local detoxification. The Working Group continue to suggest that the treatment of dual diagnosis requires the mental health teams care for adults with co morbid substance misuse and mental health problems where the mental health problem is the primary problem. Also suggesting specialist substance misuse mental health teams for adults with complex severe substance abuse and mental disorders are established. In terms of delivering services to drug users Cox and McVerry 2006 (p4) write that as the number of problem drug users increased in Ireland in the last 25years, many specialist services and agencies have advanced to meet the needs. However due to the lack of an agreed service model for specialist drug treatment provision, and variation in the scale and pattern of problem drug use from area to area, means that different health services, cities and communities provide combinations of services often possessing different theories on problem drug use and addiction (p4 DPAG Report). The authors use the term ’complex needs’ to describe the inter-connected nature of peoples needs rather than using overtly prescribed definitions such as “dual diagnosis”. Turning Point 2005 defines people with ’complex needs’ as individuals with “multiple interconnecting needs that span medical and social issues, individuals with complex needs may have mental health issues combined with substance misuse problems…”. People with complex needs are often seen as lying at one end of the continuum; they are vulnerable people who have multiple and usually intractable problems and seek their solution by attending a number of agencies. In addition the DPAG believe high levels of mental health complaints among problem drug users and 16 - incidences of dual diagnosis mean that some do access mental health services. However, it is recognised that a large proportion of problem drug users have mental health problems which remain undiagnosed (p4 DPAG). Drug workers, service providers, researchers and policy makers are aware that the majority of problem drug users in treatment have complex needs. A high proportion of drug users have multiple problems ranging from psychological (ADHD, depression) or serious mental health problems (schizophrenia). The DPAG 2006 (p5) states that in Ireland health and social care services were designed to meet single, rather than multiple complex needs. Each specialist service has developed a fixed idea of what constitutes their ‘core business’. The isolation of services can cause individuals with complex needs to experience a sense of frustration as the inability to respond adequately to needs beyond the remit of their organisational structures often exists. It is evident from the Report compiled by the DPAG that the separate specialist social care model that currently exists in Ireland fails to provide for the complex nature of drug users’ needs , due to the reality that services which are in place to address such issues of dual diagnosis are often poorly co-coordinated. 2.3 Prevalence of Dual Diagnosis Despite difficulties in establishing prevalence the literature indicate rates of dual diagnosis are increasing over time. Smith and Hucker (1993) propose two factors which may have contributed to this increase. First as services move towards community care individuals with a psychiatric illness may be increasingly exposed to illicit drugs and secondly there is a general increase in the experimentation of illicit drugs in the Irish population as a whole (p31 NACD). 17 - An Irish study carried out by Daly et al 2005 shows that 724 of 22,279 admissions to psychiatric units and hospitals and units in 2004 were for drug disorders. This figure however may underestimate the level of dual diagnosis as many of those with coexisting drug and mental health problems find it difficult to access treatment services (HSE Working Group Report p18). Alcoholic disorders continue to be the main cause of admissions to psychiatric hospitals, particularly for males. In 1999, of all admissions to psychiatric hospitals 26% of male admissions and 11% of female accounted for were alcoholic disorders. Furthermore, in an Irish general hospital it was reported that 30% of all male patients and 8% of female admissions were identified as having underlying alcohol abuse or substance dependency (Strategic Task Force on Alcohol-Interim Report). At an international level the estimated prevalence of dual diagnosis ranges from 1560% of substance misusing clients (EMCDDA Annual Report 2004). The limited Irish data ranges from 26% reported by the National Inpatient Psychiatric Reporting System to 43% in a community sample (Condren et al 2001 p18). In 2006 Whitty and O’Connor detail that 37% of patients attending the Drug Treatment Centre Board had a Dual Diagnosis; of those 26% had been diagnosed with depression and 11% with psychosis. A study conducted on the prevalence rates on illicit substances and alcohol misuse in outpatients with a diagnosis of Schizophrenia showed that there was a prevalence rate of 45% for illicit substances and 33% for alcohol (Condren et al 2001). 2.4 Models of Care Three types of treatment models have been identified from reviewing the literature; serial, parallel and integrated. The Serial treatment model is when one service first 18 - treats that aspect of dual diagnosis which is their specialty, then refers the client to another service (NACD 2004 p73). Difficulties which have been encountered with this model included exclusion which resulted in relapse, as the assumption that one condition was more important when in actual fact both mental health and substance abuse are more likely to co-exist in the same client. MacGabhann et al 2004 (p73) describe the parallel model as involving both services treating the clients simultaneously on the aspect of dual diagnosis which is their specialty. Clients often find this treatment model difficult as over time their level of motivation decreases to attend two different centres for treatment. Also a conflict of interest may occur with the client attending two different services for simultaneous treatment. The final model identified by the NACD 2004 is the integrated model which involves both aspects of dual diagnosis being dealt with simultaneously by one agency. The integrated model has been established as producing the best treatment outcomes in comparison to the other two models (p59). A Vision for Change 2006 (p149) identifies that different models of intervention exist for dealing with problems of co-morbidity. Interventions may be offered simultaneously that separately address the problems of mental illness and addiction or services which exist to address these issues may be offered in succession. Within the context of the specialist mental health teams the recommendation of the policy was to provide a service to those with complex or severe substance abuse problems and severe mental disorders. MacGabhann et al (2004) recommended that training and education should be improved at all levels and that the introduction of a clinical nurse specialist in addiction was desirable. Also included was the belief by the NACD that 19 - guidelines for managing dual diagnosis in Ireland should be developed by a specialist committee representative of stakeholders including the NACD, substance misuse psychiatry, general psychiatry, the Mental Health Commission, the Irish Psychiatric Association and the Irish College of Psychiatrists (NACD 2004 p9). Recommendations on Mental Health Services for Persons with co-morbid severe mental illness and substance abuse problems as outlined in A Vision for Change (2006 p149) included the following: Mental health services for both adults and children are responsible for providing a mental health service only to those who have co-morbid substance abuse and mental health problems. General adult Community Mental Health Teams should generally cater for adults who meet these criteria, particularly when the primary problem is a mental health problem. The post of National Policy Co-coordinator should be established to deliver national objectives and standards, pertaining to primary care and community interventions for drug and alcohol abuse and their linkage to mental health services. Specialist adult teams should be developed in each catchment area of 300,000 to manage complex, severe substance abuse and mental disorder. These specialist teams should establish clear linkages with local community mental health services and clarify pathways in and out of their services to service users and referring adult CMHT’s. Two additional adolescent multidisciplinary teams should be established outside Dublin to provide expertise to care for adolescents with co-morbid addiction and 20 - mental health problems. 2.5 Conclusion As evident throughout the review of literature on the management of dual diagnosis the condition is not clearly understood or formally recognised neither in policy nor in addiction or mental health services. It is of utmost importance that clarity and practice guidelines to provide frameworks for managing dual diagnosis are implemented. All of the above policies, reports and studies, using different methodologies and allowing for various limitations tend towards similar conclusions that there is an ever increasing need to establish effective services to deal with the management of clients with a dual diagnosis. The purpose of the review was to identify the policies and recommendations which have been established for dual diagnosis and by examining these studies identify from the available literature the need for these services to be implemented within the Irish Health Service. As regard this association it has been observed throughout the review that the need for these specific services does exist but have not as of yet been resourced or implemented. Various reports outline the need for these specialist services however in the Irish context there has been limited research into the topic and where statistics exist most can only be estimated. Many areas identified in the review require further research if dual diagnosis is to be more effectively managed. 21 - Chapter Three Methodology 3.0 Introduction As previously stated the intention of this research study is to identify the current practice in place for the management of dual diagnosis in the Irish mental health and addiction services, to identify current treatment processes in place and to elicit views of the health professionals working in the fields of mental health and addiction on the current situation. Findings from the literature review suggest that within the Irish context dual diagnosis is a relatively new phenomenon however even existing recommendations on the management of dual diagnosis are not being implemented or managed effectively. This section will incorporate the research design, how the interviewees were selected and how the access to same was obtained. The ethical considerations and limitations will be identified, and the format of data analysis which the author adopted will be outlined. The explanation of the methodology utilized will lay the foundation for how the research was conducted. 22 - 3.1 Research Design For the purpose of the study the author decided to apply a qualitative approach to engage with the interviewees as Gubrium and Holstein (2002) state that qualitative methods offer researchers access to peoples thoughts and ideas in their own words rather than in the description of the researcher. Strubert and Carpenter (1995) recommend the use of a qualitative approach when the knowledge base of a particular subject is sparse. The form of qualitative research which the author decided would prove most beneficial to the study was semi structured interviews. This was due to a variety of reasons, the most prevalent being the amount of flexibility offered whilst conducting the interviews as Robson 2002 highlights that predetermined questions can be modified based upon the researchers perception of what seems most appropriate. Question wording can be changed and explanations given; particular questions deemed inappropriate with one interviewee can be omitted and additional ones included. Through adopting a qualitative approach the author found that specific individual data would be more suitable to the research. This approach provides an opportunity as each person’s personal perspective and in depth understanding of the personal context within which the research phenomenon is located. Qualitative descriptive studies offer a comprehensive summary of an event in the everyday terms of those events. Although a pattern on trends may emerge and possible links between variables can be observed, the emphasis is on the description of the phenomena (Parahoo 1997). Sandelowski (2000) goes on to argue that qualitative research is especially amenable to obtaining straight and largely unadorned (i.e. minimally theorized) answers to questions of a special relevance to practitioners. Therefore the study consisted of a 23 - series of one-to-one semi-structured interviews. 3.2 Sampling Polit and Hungler (1995) describe a sample as “a subset of a population selected to participate in a research study”. Morse (1991) argues that sampling should be appropriate in that the method fits the aim of the research and that the method will generate relevant quality data. The sample size as outlined by Omery 1983 should be no more than ten people. For the purpose of the study four professionals were recruited to participate the author kept the sample size small due to the length and content of the interview. All participants were purposively selected as the benefits of this for the study were more than obvious. Parahoo (1998) writes that purposive sampling is the researcher deliberately choosing a sample on the basis that the sample are the best people available to provide the data on the issue being researched. The sample identified enabled the researcher to satisfy the specific needs of the project and to ensure the clearest and most accurate experiences are collected from the participants. The Research Participants The interviewees were carefully chosen as the author wished to identify the experiences of professionals from all across the continuum. All participants were interviewed within their own working environment. Interviewee A has eight years experience as a mental health nurse and currently works with prison liaison/ in reach services. Interviewee B has seven years as a mental health nurse and is now a clinical nurse specialist in forensic psychiatry. Interviewee C is an addiction counsellor working with a community addiction team for the past twelve years. Interviewee D is 24 - a trained mental health nurse but has worked as an addiction counsellor for the past eight years. The inclusion criteria for the professionals were; 1: Professionals working in the mental health or addiction services. 2: Professionals who agreed to participate in the study. 3: Professionals with a minimum of five years experience. The exclusion criteria for the professionals were; Mental health nurses working in acute psychiatric units or day hospitals. 3.3 Ethical Considerations The issues of anonymity and confidentiality were ensured to all participants of the study. Where appropriate all the names and identification of services have been changed or not identified. Informed consent was gained from each participant prior to conducting the interviews this was in order to audio record the interview and reassurance was provided that on completion of the study all information and data obtained for its purpose would be destroyed. Information regarding the purpose of the study was explained to each participant and also how the data collected would be utilized was also discussed. 3.4 Access The author initially wished to include clients with a dual diagnosis for the purpose of the study however on reflection the only available access was to clients in acute psychiatric settings; but due to the vulnerability of the clients the author believed that 25 - interviewing them on the subject would be unethical. The participants of the study were recruited from the Southern and Eastern region. In order to gain access to conduct the study with the three Health Service Executive employees access was sought by contacting the HSE Ethics Committee in order to gain approval. Following ethical approval permission was sought and granted from the relevant Director of Nursing and consent was obtained to carry out the interviews within their catchment area. In order to gain access to the addiction counsellor in the Eastern region the relevant Community Addiction Team was contacted and consent was approved by the Project Co-coordinator. Woods and Roberts (2003) acknowledge the necessity for planning, diplomacy and negotiation in gaining access to research participants. Denscombe (2002) highlights the importance of gaining the co-operation of key people known as “stakeholders” who have the authority to grant or deny access. As the researcher had worked in the relevant HSE catchment area a relationship of trust had been established. Therefore the researcher was able to make contact with the key people (Director of Nursing, Assistant Directors of Nursing) necessary to access participants. 3.5 Limitations The researcher acknowledges that the study was not without limitations. The major limitation encountered by the researcher as mentioned previously was the access to clients with a dual diagnosis on an out patient basis. Due to the fact that the HSE catchment area being used had only one addiction counsellor and was on leave at the time of the study there was no access to these clients this proved problematic to the study as the author had to re-arrange the emphasis and focus on only one aspect of 26 - interest which changed the original focal point the author wished to emphasize. Another recognizable limitation is that with qualitative research having a small sample and only four participants in this particular study it is difficult to generalize the findings. However having participants from different regions the results will be from a wider base and will be representative of a larger area. Finally the fact that little research existed on the concept of dual diagnosis in Ireland, as it is a relatively new phenomenon proved another limitation to the study. The concept is identified in many policies and documents and recommendations on the implementation of the management have been identified however this presented as a challenge to the researcher as the basis of which to work from proved difficult. 3.6 Data Analysis The purpose of data analysis is to impose some order on a large body of information so that general conclusions can be reached and communicated in the research report. According to Thorne (2000) data analysis is the most complex and mysterious of all phases of qualitative research. Priest, Roberts and Woods (2002) state that the aim of data analysis is to cast light on the experiences of participants and are one of the most challenging aspects of conducting qualitative research. The data was collected during the semi structured interviews which generally lasted between forty five minutes and one hour fifteen minutes. The interviews were audio recorded which proved extremely effective, the author believed this to be a valuable way to analyze the data due to the fact that parallels such as the use of an interview and arrangement of the recurring experiences were drawn upon during the study. Prior to conducting the interviews informed consent was gained from all participants ensuring confidentiality throughout. Blaxter et al 2001 identify the concept of data 27 - analysis as reducing the size and scope of the data so as to draw attention to what is relevant and significant to the research study. The author chose to analyse the data by using the five steps outlined in Omery (1983). Firstly the researcher read the interviews to obtain a sense of the whole topic. The interviews were then re read to identify certain topics which recurred regularly. The third step involved the elimination of experiences which did not seem significant. Certain sentences outlined by participants were classified into concrete language units, which is to summarize an experience in a few sentences. Finally the author concluded the data analysis by outlining all themes and the meaning was put to the experience. 3.7 Conclusion A qualitative approach consisting of semi structured interviews was chosen for the study. The author identified the advantages and benefits of the approach to this particular study. The sample size was identified and the rationale for their selection justified. Ethical issues and limitations encountered by the researcher were identified. Consideration was also given to the method by which the data was analysed and the same was discussed. In the following chapter the author will demonstrate how the relevant methods were applied, identify the findings and discuss their outcome. 28 - Chapter Four Findings 4.0 Introduction The rationale of the study was to identify the current management of dual diagnosis in Ireland. For the purpose of the research four professionals were interviewed the findings of the study will be identified in following sections under the subheadings; knowledge of current policies/recommendations on dual diagnosis in Ireland, assessment of clients, difficulties identified in the provision of services, recommendations on the future management of services for dual diagnosis and finally existing communication between the Mental Health and Addiction Services. After the findings have been presented they will then be discussed as to what the results of the study identify. 4.1 Policies The participants were asked to identify their knowledge of current policies and recommendations in place for the management of dual diagnosis between the mental health and addiction services at both a local and national level. The general consensus on national policies and recommendations were that they have been established but not implemented. All respondents outlined the major documents published in recent years (A Vision for Change 2006, NACD 2004) however only Interviewee D was able to elaborate on the documents and provide a detailed description of what was entailed in the policies and major recommendations outlined. Interviewees C and D described how they have experienced informal guidelines on service delivery having established relationships with the other relevant services over 29 - a period of time. Although all participants were aware of national policies and had a basic referral protocol as a result of their experience in the field; it seems evident that no specific policies on dual diagnosis exist instead guidelines that address the co-existing aspects rather than addressing the problem inclusively. 4.2 Assessments Of the four participants all acknowledged that no specific assessment tool was in place in either service to assess for dual diagnosis. For the assessment of clients accessing both the mental health and addiction services only three acknowledged that both aspects of a dual diagnosis were addressed in the assessment. However all recognized that the assessment utilized was less than adequate in dealing with the clients needs. Interviewee A reports that in her specific assessment tool areas focused on with regard to substance misuse include “type of substance used, age of first use, duration of use, amount used and expenditure per week” reference is also made to contact with other agencies for treatment. Interviewee B reports “when admitted to acute psychiatric units all clients are routinely screened for traces of substances in their system”. No specific assessment tool exists in this area nonetheless it was stated that that in their care plan and risk plan; history of substance misuse and possible precipitating factors and triggers are identified. 30 - Although substance misuse is assessed the participant accepts the fact that these needs are rarely addressed while the client is an in-patient but on the rare occasion referral or advice is given on treatment options available in the locality. While both Interviewees assess for dual diagnosis at an informal level they recognize that primarily the mental health issues were addressed and the assessment for substance abuse was routine and very occasionally identified as a major problematic area of the clients’ life and not dealt with effectively. As clients mental health needs were addressed within the medical model. Only Interviewee D admitted that she felt confident in addressing a dual diagnosis. The remaining respondents felt they did not possess adequate knowledge or training to manage clients’ complex needs with a dual diagnosis. Interviewees A and B agreed that they had obtained the adequate skills over their professional career to screen for a dual diagnosis but to plan or implement an effective care plan for these clients would prove problematic. Interviewee C indicated that due to the fact that the service for which she worked was a voluntary body the clients were not obligated to give information regarding their mental health. Also stating that they did not have the specialist training to assess a client’s mental health but that “most clients accessing the service have had a psychiatric assessment as at one stage or another have had contact with the mental health services”. Of the four Interviewees all agreed that screening for a dual diagnosis on admission to 31 - either the mental health or addiction services should be mandatory, none of the Sample deemed this as unreasonable or were in disagreement with the recommendation. 4.3 Difficulties in the Provision of Services All Interviewees were requested to identify the difficulties they experienced in the provision of services. The difficulties perceived surrounded a number of areas the main three will be identified under the following subheadings which recurred throughout the study; communication between the mental health and addiction services, current structures in place and the professionals misconceptions on working with a client with a dual diagnosis. 4.3.1 Communication All participants associated the communication between services in the difficulty of stipulation of providing effective management for clients with a dual diagnosis. All Interviewees disclosed that they worked on the treatment basis of a serial model (where one service deals with their aspect of dual diagnosis then refers to another agency). Interviewee C identifies the difficulties by observing the fact “Its back to who owns the problem is it the addiction services or the mental health services”. Interviewee D remarked on the complexity in the referral of clients to either service as “neither service wishes to take responsibility for the issue which leads to a lack of communication and in turn no integrated model of care exists”. 32 - 4.3.2 Structures between services Each service possesses its own difficulties on access to a relevant agency or service. However Interviewee B highlighted another extremely remarkable fact being that mental health day hospitals in her specific catchment area would not accept referrals from clients with a co-existing mental health and substance misuse problem. Interviewee C identified a similar feature that no-one wants to take the responsibility leading to the management of clients being inconsistent. Interviewee D recognized the lack of a “middle man” as a difficulty she perceived which she identified was due to the “lack of resources and no-one taken general responsibility for this group of clients, which she also believes contributes to a high rate of relapse and re-admission to hospital”. 4.3.3 Conceptions of the Professionals Participants from both services identified that the major obstacle in the provision of the management of services was the lack of knowledge professionals possessed to manage dual diagnosis. Lack of education and training on dual diagnosis was identified by Interviewees A and B with Interviewee B emphasizing the “general lack of knowledge on dual diagnosis by those in thee mental health field leads to nurses or medical professionals perceiving this as an area for which they don’t have the confidence to address”. 33 - From the addiction sector the perceptions noted by Interviewee C were that they did not possess adequate knowledge or skills to address complex mental health issues and that unless thy actively seek out training opportunities to educate themselves on issues they don’t receive any training. Interviewee A defines that all complications in service delivery could be overcome by “closer and more open communication between addiction and mental health services and a short term intervention to the problem could be established by providing workshops to both sectors”. 4.4 Recommendations on the Management of Dual Diagnosis Interviewees all agreed that the issue of dual diagnosis is a complex one and due to the increasing needs interventions must be implemented. Participants all believed they require further training in mental health and addiction to address clients’ needs effectively. Interviewee B reiterated by stating “treatment of the clients in not consistent with the holistic model of care which we are aiming to achieve. The needs of theses clients are not being adequately met”. Interestingly both Interviewee A and B responded with a general view for acute psychiatric units believing that ideally a certain number of beds for clients with a dual diagnosis should be in every acute unit and in conjunction with these there should be a team or alternatively a consultant and nurse available on each unit to implement effective care plan for the individuals needs. 34 - The main proposal “specialist teams” was the overall consensus of the Interviewees. Although neither service is dismissing the problem both taking a certain level of responsibility but believe they have neither the knowledge nor resources to address the issues. “A dedicated service would be great or even channeled communication for the immediate future” was perceived by Interviewee C. In the absence of a specialist community based team as all the Interviewees recognized this would not be implemented in the immediate future Interviewee A recognized that a “joint plan or assessment should be devised when a client is attending both services as we could work together to minimize the risk factors of relapse of mental illness which in turn may prevent substance misuse or visa versa”. However due to many addiction services being voluntary and presently “no-one in place to bridge the gap”. Interviewee D suggests that adequate referral protocols must be implemented to ensure continuity of care when clients have been or are currently in need of accessing both services. Interviewee B believes that within the mental health services Clinical Nurse Specialist and Advanced Nurse Practitioner posts need to be developed as well as specialist Community Mental Health Teams in dual diagnosis generally believing “resources need to be put in place as a matter of urgency as not only would it ensure all the clients needs are being met but would also decrease the likelihood of readmissions for the co-existing issues of mental health and substance misuse”. 35 - 4.5 Existing Communication between the mental health and Addiction Services Within this theme Interviewees described and acknowledged that no formal communication exists between the services. As both services acted on the basis of a serial or parallel treatment model of care communication and liaison between services was seen as a fundamental issue. Two participants also identified lack of knowledge on services in their locality and different services having different code of ethics proved an obstacle. No difference existed from the participants in both fields; all distinguished the lack of formal communication as a barrier in the management of dual diagnosis. Interviewee C refers to a difficulty she perceived “a lot of the time the treatment depends on the individual consultant where with the approval of the client a joint three way meeting will take place so we can ensure that all the clients’ needs are being met, but then that’s a rare occurrence”. When Interviewees were asked to comment on communication being an effective treatment to manage clients, results indicated different theories. Interviewee A maintains as a “brief intervention” this could be applied however Interviewee B identified the difficulties with the “referral protocol being lengthy clients mental health could deteriorate over this time if they are treated in an acute unit their level of motivation could decrease and chances of them attending both services on discharge are minimal”. Interviewee D deemed the suggestion “unsuitable” as “clients’ health is top priority 36 - which in theses circumstances requires effective liaison or specialist case managers for these clients”. Another intricacy described was the fact that the services are often run under different management (e.g. HSE, Voluntary bodies), a level of frustration was measured by respondents as some agencies/services will take referrals and others won’t and even with referrals no continuity of care is assured. However acknowledging that no formal protocols existing and three participants conforming in the level of informal communication which they currently experience as being adequate but also associate the need for this to change as a matter of priority due to reasons identified previously certain recommendations were made: An addiction counselor attending acute units. Joint assessments and case management. Primary nurses in situ while the client is an in-patient. A nurse who specializes in dual diagnosis to liaise with the CMHT’s and Addiction Services. Out patient clinics with both services involved in maintenance for the client. 4.6 Summary In summary the participants’ theories on dual diagnosis vary as well as their experience in the management of clients with complex needs. A variety of management approaches were identified by both services however a lack of communication, education and policies were noted to be a major impediment. The participants report that further education and training is needed to manage clients with 37 - a dual diagnosis. Structures and policies must be implemented by both services where an effective dual relationship can be established and maintained. Lack of resources were identified as a barrier to introduce specialist teams however all participants saw the introduction of this recommendation as inevitable with neither service dismissing the problem or the difficulty in its management. 38 - Chapter Five Discussion and Recommendations to the Study 5.0Introduction This chapter draws final conclusions on the findings and discussion of the study. Recommendations for practice, education and further research are made, furthermore my personal reflections of the research process are described. The aim of the study was to gain an understanding of professional’s experience from the mental health and addiction sector and the management of clients with a dual diagnosis. The findings as described in the previous chapter suggest that the participants all have knowledge of dual diagnosis through experience and education in the field. However, they acknowledge that further education and training is required as well as the implementation of specialist teams to provide effective management of these clients. The participants value the role of specialist workers between the services as well as an interest in further education to enhance their skills and knowledge to deal with these clients. The participants demonstrated knowledge of policies and assessment practices but all addressed the need for formal structures to be put in place between the services recognizing the effectiveness of open communication and liaison between services was a vital implication. Ongoing conceptions in the provision of services were noted by all participants; communication, structures between services and impressions of the professionals. Recognizing the need for change in these areas and an increase in resources were 39 - identified as they are additional stressors in the management of dual diagnosis. Effective management of the service were recommended by all participants, but with regard to international evidence on the treatment models of care, Ireland must implement a model which services can implement effectively. The integrated model appears to have the potential as the international evidence identifies, however with communication, policies and structures in place participants recognize this as a possible intervention in Ireland. In summary, participants engaged in a number of informal practices in working with dual diagnosis identified lack of education and training and expressed interest in professional development in this area. They believe with more education and training they would feel more skilled and knowledgeable which would lead to more improved assessment and provide early intervention for these clients, decreasing hospital admissions and ensuring a continuity of care is maintained. These findings have implications for practice, education and research. 5.1 Discussion The literature review discussed the following themes; the relationship between substance misuse and mental illness, the prevalence of dual diagnosis and the existing models of care. The review explored a number of recommendations, however acknowledges that dual diagnosis has not been formally recognized by the mental health and addiction services nor in policy though the overall consensus of the review was that of the utmost importance is the establishment of effective services to deal with the management of dual diagnosis. Similarly the findings highlighted the need for formal policies to be implemented, the formulation of effective assessments of 40 - clients attending mental health and addiction services, the difficulties the participants perceived in the provision of services, recommendations for the delivery of these services and the communication which exists between services. The research identified that the assessment of dual diagnosis was inadequate with three participants acknowledging they assess for dual diagnosis however for two of the Interviewees to plan or implement an effective plan of care would be problematic as they did not possess the knowledge or training, nor did the service provide a specific dual diagnosis service. The assumption could be made that on the basis of the results people with a dual diagnosis are being treated within existing non-specific treatment and services. The general “lack of knowledge” was emphasized by one Interviewee correspondingly in the literature review MacGabhann et al (2004) make the recommendation that training and education should be improved at all levels. People with dual diagnosis are generally treated within the serial and parallel models of care which was identified by the study as requiring good communication between services, however Interviewees acknowledged that informal levels of communication between services were suitable. As in the long term treatment of care with “referral protocol being lengthy clients mental health could deteriorate over this time if they are treated in an acute unit their level of motivation could decrease and chances of them attending both services on discharge are minimal”. communications between services respondents acknowledged Despite good where good communication exists if liaison does not include all people involved effectiveness of the treatment of clients may be compromised. Dual diagnosis is currently being managed between the mental health and addiction services however no formal guidelines exist which may suggest this is not according 41 - to best practice. From the study and literature many indications on how these services could be developed were identified. Suggestions from the study included training for professionals in mental health, substance misuse and a dedicated service for dual diagnosis with implementation of specialist teams in the community and acute psychiatric units; addition counselors attending acute units for the purpose of joint assessments and case management; also specialist out patient clinics with both services involved in the provision of care. An integrated model was identified as the preferred treatment option in the study, however little consistency appears to exist between services. It was identified in the literature that for the implementation of these services effective collaboration, communication and ideologies must exist. It was perceived by Interviewees that services being run under different management proved to reflect how the issue of dual diagnosis is approached and also manifested a level of frustration with professionals as different protocols existed between services resulting in an inconsistent plan of care within services. Some of the participants of the study described that inter-agency and intra-agency structures often exclude those with a dual diagnosis from attending services. Both services acknowledged exclusion criteria within their locality, however all Interviewees were involved at some level in providing care for people who have coexisting mental health and substance misuse problems but did recognize that all needs of the clients were not being addressed. 42 - 5.2 Recommendations for Practice The findings of the study highlight the lack of support in the provision of services varies within sectors whilst working with this client group and also a lack of resources for developing their knowledge base on mental health and substance misuse exist. An awareness of the level of frustration which occurs whilst managing dual diagnosis must also be recognized and appropriate structures put in place for services to liaise effectively. Structured assessment tools need to be prepared to guide practice which could be devised by input from both services. Management of the services needs to provide sufficient resources to ensure that staff has the opportunity to train in addiction, mental health and dual diagnosis. Specialist teams need to be structured liaising with both services and treating the client in the community where appropriate thus enhancing the continuity of care. 5.3 Recommendations for Education A considerable amount of work needs to be carried out in the area of education. The study identified that professionals expressed a desire in gaining further knowledge on dual diagnosis and the management of clients through obtaining adequate skills, training on assessments and greater knowledge of service availability. This illustrates that education in the mental health and addiction field should incorporate a broader range of information relating to mental health and substance misuse. This would address the lack of knowledge expressed by participants. Additionally, in service training days should be provided on practices, services and policies in situ this may occur jointly for services thus leading to formal relations being established and leading to comprehensive holistic care. 43 - 5.4 Recommendations for Future Research It is recommended that this study is repeated and should incorporate service users and their families in order to develop comprehensive continuity of care. This may yield a broader representation of the demographic group, also enabling identification and descriptions of variations in practice to be explored. 5.5 The Study Limitations As the study was completed as part of the Diploma in Addiction Studies and due to a limited time frame, this study would benefit from being replicated on a larger scale and over a wider geographical area. The limited timeframe did not allow for more in depth exploration of issues which emerged from the data analysis process. Due to a large amount of data collected, the findings produced more research questions than the questions identified when the study began. Many issues were not addressed in the interviews resulting in a lack of depth to some of the findings. On reflection this could be addressed by conducting a second interview with participants to follow up on any issues that were not addressed. 5.6 Personal Reflection I found conducting this research study difficult. Interviewing former colleagues proved challenging as I found it problematic to separate myself as a researcher. Also I did not prepare myself for researcher bias due to my former working relationship with two of the participants. Nevertheless, I believe I gave an accurate description of the participants’ experiences of the management of dual diagnosis. 44 - 5.7 Summary This chapter provided the conclusion of the research study. The recommendations for practice, education and research have been described based on the findings of the study. In summary this study has provided a description of the professionals’ experience of the management of dual diagnosis from both the addiction and mental health sectors as told by four professionals. 45 - Chapter six Conclusion Dual diagnosis in Ireland remains to be formally recognized or clearly understood in mental health and addiction services. It is evident from the literature review that the recommendation for the establishment of specialist services is beginning to evolve. The study shows that as of yet no effective implementation for the management of dual diagnosis in these services has been inaugurated. The increase in prevalence of dual diagnosis sees the needs for these services to be implemented as a matter of urgency, as identified that with no specific interventions in place continuity of care cannot be maintained. It can only be assumed that clients accessing mental health and addiction services in Ireland perceive similar problems. The aim of the study was to identify the thoughts and perceptions of the professionals on the management of dual diagnosis. The topic was explored and a number of themes emerged from the following: policies, assessment of clients, difficulties in the provision of services, recommendations for future management and existing communication between mental health and addiction services. Some issues identified were recurrent within the study which suggests that by resolving some of these issues a better approach to the management of dual diagnosis could be established. The study also shows that services over time have adopted informal guidelines and relationships to try and effectively manage clients with a dual diagnosis. However with the introduction of specific guidelines, protocols and policies many of the existing issues may be resolved. The author initially wished to include service users in the study however with limited 46 - access and ethical issues arising, the merits of this could not be achieved. Therefore the author’s focal point was the professionals from the addiction and mental health services and their views and opinions on the management of dual diagnosis within their services. The findings from the study provided an overview of how dual diagnosis is currently being managed in the Irish context, in mental health and addiction services. Highlighted in the study was that strategies need to be applied to combat the difficulties outlined. As the prevalence of dual diagnosis increases also does the need for effective management structures to be introduced. Many challenges were outlined throughout the literature review and similarly within the study, which proved consistent within both services. Each service has adopted informal strategies to manage dual diagnosis however problematic issues exist. Considering a client centered holistic approach is deemed as being the services primary aim the difficulties perceived by professionals in this study should be surmountable. 47 - Glossary of Terms Attention Deficit Hyperactivity Disorder: A neuron-behavioural disorder, which interferes with a person’s ability to stay on task and to exercise age appropriate inhibition (cognitive alone or both cognitive and behavioural). Some symptoms include failure to listen to instructions, inability to organize oneself, fidgeting with hands and feet, talking too much, leaving projects, chores and homework unfinished and having trouble paying attention to and responding to details. Bipolar Affective Disorder: A disturbance in mood, resulting in either depression or elevation, which is often chronic and recurring in nature. Alterations in sleep, activity and appetite often occur. Dual Diagnosis: The co-occurrence of a substance use disorder with another psychiatric disorder. Co-morbidity: The simultaneous presence of two or more disorders often refers to combinations of severe mental illness, substance misuse, learning difficulties and personality disorder. Major Depression: A severely depressed mood, usually recurrent, causes clinically significant distress or impairment in social occupational or other important areas of the person’s life. Personality Disorder: Consist of personality traits that are maladaptive, persistent and inflexible. The intensity and manifestation of presenting problems may vary 48 - widely among clients with personality disorders upon diagnosis an individual characteristics. However all personality disorders have four characteristics in common: (1) Inflexible and maladaptive response to stress (2) Disability in working and loving (3) Ability to evoke interpersonal conflict in family, friends and healthcare workers. (4) Capacity to have an intense effect on others (often an unconscious process and generally produces undesirable results) (American Psychiatric Association, DSM 1994) 49 - Consent Form Title of Study: The management of Dual Diagnosis in Ireland, Perceptions and Views of the Professionals. I agree to participate in the study and consent to be interviewed by Claire Forrest in relation to the above study. I have read the information leaflet and I understand that the interview will be treated in the strictest confidence. I understand that my name or any reference to individual cases referred to in the interview will not appear in any documentation or dissertation resulting from this study. All data will be stored securely, and only those directly associated in this study will have access to the data. I also understand that I am free to withdraw from the study at any time I choose, without any need for explanation. Name (please print) _________________________ Signature _________________________ Address _________________________ Telephone number _________________________ 50 - Interview Guide Interview Questions Q1: For the purpose of the research can you state your current job title? Within your specialist area of work in the addiction/mental health field do you come across individuals with a dual diagnosis/co-existing mental health issues and substance misuse problems? Q2: Are you aware of current policies or structures in place for the management of dual diagnosis at both a regional and national level? A Vision for Change NACD: Mental Health and Addiction Services and the Management of Dual Diagnosis in Ireland 2004 Q3: Are you aware of available treatment for dual diagnosis in either the mental health sector or addiction field? Are you aware of available literature on these services? Q4: In your assessment of clients are there specific areas for you to assess issues regarding the clients’ mental health? Do you have a copy of the assessment? Q5: Within the area of addiction/mental health what difficulties can you identify in the provision of services for those with a dual diagnosis? 51 - Q6: What recommendations could you make on how these services could be provided and how the current difficulties may be overcome? Q7: Can you describe your communication with the mental health/addiction services and the specific protocols in which to access these services? Q8: When treating a client with a dual diagnosis how do you deal with both issues? Do you offer a specialist intervention? Is there a specific treatment model you use e.g. serial, parallel or integrated? Are you aware of these models? In your specific field how do you think these clients may be managed more effectively? 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