DRAFT Ministry of Health Maternal and Perinatal Death Reviews (MPDRs) Health Workers Trainers Guide March 2013 Acknowledgements Aogu : Dr. Romano Byaruhanga, Dr. Jolly Beyeza, Dr. Imelda Namagembe, Dr. Dan Murokora UPA: Dr. Jolly Nankunda WHO Dr. Olive Sentumbwe UNFPA: Ms Maria Najjemba, Dr. Yvonne Mugerwa MOH. Dr. Jesca Nsungwa, Dr. Collins Tusingwire, Dr. Miriam Sentongo, Ms Juliet, Ms Carol Nalugya, Wilberforce Mugwanya, Sarah Nakitto, Ms Lilliane Luwaga, Rogers Kalyesubula Save the Children Dr Naamala Hanifah sengendo Maternal and Perinatal Death Reviews Trainers’ Guide 1 Acronyms ANC Antenatal Care CS Caesarean Section DHIS2 District Health Information System 2 HC Health Centre HW(s) Health Worker(s) ICD International Classification of Diseases MCH Maternal and Child Health MDSR Maternal Death Surveillance and Response MPDSR Maternal and Perinatal Death Surveillance and Response MOH Ministry of Health MPDR Maternal and Perinatal Death Review RRH Regional Referral Hospital Maternal and Perinatal Death Reviews Trainers’ Guide 2 Table of contents Acknowledgements ........................................................................................................................................................ 1 Acronyms ........................................................................................................................................................................... 2 Table of contents............................................................................................................................................................. 3 Glossary of Terms............................................................................................................................................................ 4 Content Outline ............................................................................................................................................................... 5 Topic 1: Introduction......................................................................................... Error! Bookmark not defined. Topic 2: Quality of care .................................................................................... Error! Bookmark not defined. Topic 3: Preparing to conduct MPDR at the facility level ................................................................................ 4 Topic 4: Forming MPDR committee ...................................................................................................................... 18 Topic 5: Conducting MPDR ...................................................................................................................................... 19 Topic 6: Reporting ....................................................................................................................................................... 30 Topic 7: Follow – up .................................................................................................................................................... 38 Maternal and Perinatal Death Reviews Trainers’ Guide 3 Glossary of Terms Maternal Deaths: Martenal Morbidity Maternal Mortality Rate Maternal Mortality ratio Direct obstetric deaths Indirect Obstetric deaths Perinatal Deaths: Perinatal Morbidity Perinatal mortality rates Perinatal Mortality Ratio Newborn Deaths Stillbirths Early neonatal deaths Near miss Live births Confidential Inquiry Case fatality rate Maternal and Perinatal Death Reviews Trainers’ Guide 4 GENERAL INFORMATION Trainers: Training is provided by persons trained in medical audit and with practical experience in Maternal Deaths Reviews and basic mentoring skills. They should be familiar with Emergency Obstetric and Newborn Care protocols, policies and guidelines. There will be one trainer for every 5 participants. Selection of participants This course is designed: 1. For health professionals: gynaecologist-obstetricians, anaesthetists, intensive care practitioners, paediatricians and/or neonatologists, general practitioners, midwives, nurses, pharmacists/dispensers, and laboratory technicians. 2. For representative(s) of administration or hospital director. The objective is to form a multidisciplinary team. The recommended maximum number of people per session is 15 to 20 people in order to enable active participation. Criteria for selection of participants The main objective of this training is to improve maternal and newborn health, therefore It is important that persons who can are involved in the day today care of the mothers and newborns participate in the process. They should be active in service provision at the facility (administrative or otherwise) Planning for the training When planning to conduct National and District trainings, the facilitators, should do the following; Notify the relevant authorities at least 2 weeks prior to the proposed dates of training Inform the District Directors and or hospital directors/Medical superintendents about the training and request them to select and invite 3-5 participants from hospitals and Health centres. Hospitals should have a minimum of 5 participants. Ideally the incharge of martenity, obstetrician/medical officer, hospital administrator, pharmascist, Laboratory staff, Theatre, biostatistician. Liase with the incharge of the martenity to organize files of maternal and perinatal deaths to be used during the training and make them anonymous.(Hide name of deceased and signatures of the Health worker (s) Maternal and Perinatal Death Reviews Trainers’ Guide 5 Become familiar with the curriculum and review objectives, content outline and learning activities for the sessions. Prepare/obtain the training materials for each session. Plan for and provide simulated situations that offer the opportunity for trainees to practice and be assessed in relevant skills and attitudes. Training The day before training On arrival in the district, the team of trainers/facilitators should; Meet with the DHO and DHMT and Maternal Death surveillance team if it exists. Request to be taken to LC5 and the RDC, Secretary for Health. Pay courtesy call explaining why the MPDR process in the country and inform the District leadership of their own roles and responsibilities in the MPDR activities. (The magnitude of martenal and perinatal deaths in Uganda MPDR Policy their role and responsibilities including establishing committees at district level. Also explain the training and what it will entail) Request for a representative of the DHO, who is attached to Reproductive Health or the DHO himself to participate in the training in the hospital. Check the training venue. Agree on the set timetable and arrange for how meals of participants will be availed. Ensure that all the participants from within the hospital and those from other health facilities have been invited Agree on the coordination for the activity In the hospital Trainers should introduce themselves to the Medical Director and explain the process. Request the participation of the following departmental heads who are also members of the MPDR Committee (potential or ready formed) Hospital Director or Medical Superintendent Principal Nursing Officer Medical Officer/Specialist in charge of maternity unit Sister in charge of Maternity Chief Lab Technician Blood Bank Representative Pharmacy Representative of midwives Hospital Secretary Maternal and Perinatal Death Reviews Trainers’ Guide 6 Biostatistician Anaesthest Training Materials and methods This training in MPDR focuses on competency-based learning and is intended to be as interactive as possible. Much time will be dedicated to practical exercises. The practice will be based on “real” maternal, perinatal and neonatal death cases (previously rendered anonymous) that occurred in any health facility where the training takes place. Different learning methods will be used: Interactive presentations: Practical exercises (individual and by group) on conducting all steps of MPDR based on “real” but anonymized cases records. The last exercises will use patient files (near miss case or death) from the hospital where the training takes place. Role plays are essential activities for the participants to acquire the attitudes needed to conduct a review session and to adopt a systematic approach to address each stage of MPDR. The training materials include: The MPDR guidelines WHO guidance on maternal and perinatal death surveillance and response Additional resources: 5-6 anonymized maternal/perinatal death files prepared by the training team Prepared PowerPoint presentations (PP) for interactive presentations Emergency obstetric care protocols and treatment guidelines Standard operating procedures for maternity. Training Evaluation form Duration of Training: The course will last 3 days How to use this Training Guide: Trainers must read and familiarize themselves with the content of all modules and how they relate to each other as well as the MPDR guidelines. Trainers should use pre- prepared newsprint/powerpoint,. Use the trainee handout as much as possible to guide the participants through various sessions. Maternal and Perinatal Death Reviews Trainers’ Guide 7 HOW THE TRAINING GUIDE IS ORGANISED Following the introduction, the training guide is arranged in … topics. which are in turn divided into sessions. These topics are organized in such a way that they flow sequentially. The information for each topic is organized as follows: i) The topic and session Title ii) Duration – This is the suggested time that each session should take. Depending on the level of skills trainees already have, the sessions may take a longer or a shorter time. iii) Methods and training materials iv) Objectives: These are the expected outcomes of the training activity. They have been presented as specifically as possible for easy understanding v) Procedure or Learning experience indicating the training techniques used TRAINING GOAL The training goal is: To equip health workers with knowledge and skills on maternal and perinatal death review (MPDR) in order to improve quality of Health care delivery thus reducing maternal, perinatal and newborn mortality and morbidity. General training Objectives: By the end of the training trainees will be able to: 1. Acquire knowledge and skills to enable them to conduct MPDR in their health facilities 2. Identify avoidable factors and develop recommendations for quality improvement To improve the quality of documentation and management of information regarding clients 3. To reflect on individual or team attitude performance for and contribution to the improvement of quality of care. Maternal and Perinatal Death Reviews Trainers’ Guide 8 4. To develop plans to address avoidable factors and monitor the progress of the implementation of the recommendations (MPDR cycle). 5. To advocate for MPDR in their workplace 6. To compile reports for dissemination to relevant audiences. Content Outline Topic 1: Introduction Session 1: Climate setting and orientation to training Session 2: Overview of maternal and perinatal death reviews - Magnitude of maternal and perinatal deaths - Trends in the Reproductive Health Indicators - Policy on Maternal/Perinatal Death Review - Maternal and Perinatal death Review o Introduction to the MPDR Cycle Topic 2: Quality of care - Definition - Principles of quality of care - Protocols Topic 3: Preparing to conduct MPDR Topic 4: Forming MPDR committees Topic 5: Conducting the MPDR Review Session 1: The MPDR cycle Session 2: Filing forms and summarizing cases Session 3: Conducting Maternal and Perinatal death review meetings Topic 6: Reporting & feedback Topic 7: Follow – up, monitoring and evaluation Maternal and Perinatal Death Reviews Trainers’ Guide 9 Orientation to the training Description of the Topic This topic seeks to create a conducive climate among trainers and trainees that will enhance effective learning. The roles of trainers and trainees will be identified and agreed on through sharing expectations and Training objectives. This topic will also give an overview of maternal and perinatal death reviews in Uganda and help participants to appreciate it in the context of improving the Quality of care. SESSION 1.1: Climate Setting and Orientation to training DURATION: 30 MINS Materials News print/PowerPoint slides with Workshop Goal and Objectives Workshop schedule PROCEDURE Facilitator: Welcomes trainees. Introduces the trainers/facilitators and Asks participants to introduce themselves and mention their expectations for the workshop Ask trainees to register themselves if they have not already done so Explains briefly the workshop goals and objectives Explain the workshop schedule noting the starting and ending time; breaks, Allow questions and make necessary clarifications Explain workshop logistics i.e. accommodation, meals, allowances, transport refund, any other issues Ask trainees if they have any problems with the schedule and /or logistics and make modifications if possible Allow and answer questions Trainer: Highlight major issues covered during the session Wrap up and introduce the next session. Maternal and Perinatal Death Reviews Trainers’ Guide 10 SESSION 1.2: Overview of Maternal and Perinatal death Review in Uganda Duration: 1 hour Session outline - Magnitude of maternal and perinatal deaths - Trends in the Reproductive Health Indicators - Policy on Maternal/Perinatal Death Review (when & who) - Why Maternal and Perinatal death Review (pg 12 of guidelines) o The MPDR Cycle SESSION OBJECTIVES By the end of the session participants will be able to: 1. Discuss the rationale/justification for conducting MPDR 2. Explain the MPDR policy 3. outline the MPDR cycle Methods: Lecturette, Large group discussion Materials: Handouts/PowerPoint slides on the MPDR cycle, newsprints, markers, masking tape Preparations: Slides/flipchart Procedure: Trainer: Asks participants to mention some of the RH indicators they know Acknowledge response Put up newsprint/slide and discuss one by one (MMR, PMR, NMR, Still birth, CPR, Facility deliveries, causes of MPD (obstetric causes and Contributing factors), Case Fatality Rate) Trainer: Asks participants to share what they know or hear about MPDR Policy in Uganda Acknowledge response Explain the MPDR Policy in Uganda Allow discussion and clarify where necessary Emphasize that there are many factors that contribute to a maternal and or Newborn death, so MPDR is a process to analyze and find Solutions to prevent another death but not a blame game for the Health workers thus not a finger pointing process. Trainer: Maternal and Perinatal Death Reviews Trainers’ Guide 11 Leads a discussion on why Maternal Perinatal Deaths should be reviewed (refer to the MPDR guideline) Allows questions and answers Clarifies as necessary Trainer: Displays newsprint/power point slide of the MPDR Cycle Explains the different steps of the cycle Allows questions and clarifies as necessary Summarizes and closes session Maternal and Perinatal Death Reviews Trainers’ Guide 12 Topic 2: Quality of care / quality improvement (Ms. Najjemba & Dr. Olive) Topic Description The major purpose of this topic is to make participants appreciate MPDR as one of the ways to improve the Quality of care in maternal and new born care. It will discuss the principles and steps to be followed in quality improvement. Topic Outline o Definition of Quality of care and Quality improvement o Principles of Quality of care improvement o Steps in Quality improvement. Duration: 1 1/2 hrs - Session 1 Definition of Quality of care and Quality improvement SESSION OBJECTIVES By the end of the session participants will be able to: 1. Define the terms quality, quality of care and quality improvement 2. Discuss the principles of quality of care/improvement 3. Explain the steps in quality improvement Methods: Materials: Lecturette, Brain storming, large group discussion Handouts newsprints/PowerPoint slides, markers, masking tape INTRODUCTION Trainer : Asks participants to imagine that they are clients. Asks What they would expect of a service, What they would like to have available at the facility and how would they would want to be treated if they went to a health facility for health care? Acknowledges response and introduces the topic Appreciate the relationship between death reviews and quality improvement PROCEDURE Trainer: Asks participants to mention what they understand by the term quality Acknowledges responses Asks participants the meaning of quality of care and what they understand by the term quality improvement Ackonwledges responses Displays newsprint with the meaning of quality of care and quality improvement Maternal and Perinatal Death Reviews Trainers’ Guide 13 Quality Quality” has many definitions – according to context of use • Performance according to standards • Conformance to requirements/specifications • Doing the right thing, the right way and at the right time Quality of care All actions taken to ensure that standards and procedures are adhered to and that delivered products or services meet performance requirements Quality Improvement – Applying appropriate methods to close the gap between current and expected level of quality/performance as defined by standards Trainer; Asks participants to mention the principles ofquality of care/improvement Acknowledges responses Displays newsprint/gives handouts with principles of quality of care/improvement and explains one by one Principles of quality of care/improvement Focus on the client o Clients are a focus of any quality activity o Services that do not meet client needs fail o Satisfied clients comply better with advice / treatment given. And, they will often return to the facility and / or recommend it to others o Satisfied internal clients will work with the system better Focus on systems and processes o Analysis of service delivery system prevents problems before they occur. A system is made up of inputs, processes, outputs and outcomes Use of data o Quality is a measure of how good something is. Measurement is important in improving quality Maternal and Perinatal Death Reviews Trainers’ Guide 14 o Collect data about the activities that one want to improve – collect only the data one needs o Compare analysed data with standard set – reveals gap o Analysed data is information and must be used to improve quality e.g. planning, monitoring (correcting gaps), evaluating etc. It must be used at point of collection o Data may be presented as bar graphs, pie charts etc. A teamwork/collaboration o Team work is at the heart of methods to improve quality o All team members are important- including the smallest member. One big tree does not make a forest! o In an effective team, the humble contribution of each team member should be appreciated o When discussed in a team, problems become opportunities o Team members should support each other’s efforts. Allows questions and craifies as necessary Trainer: Asks participants to outline the steps of qulity improvement Acknowledges responses Displays newsprint/gives handout with the steps of quality improvement and explains one by one Steps of quality improvement • Step one: Identify the problem o Quality Improvement starts by asking questions: o What is the problem? o How do you know that it is a problem? o How frequently does it occur, or how long has it existed? o What are the effects of this problem? Maternal and Perinatal Death Reviews Trainers’ Guide 15 o Identify the gap - Difference between actual and desired performance o Ways of identifying the problem - Use data from surveys, review records, observation, feedback from clients • Step two: Analyze the problem o The purpose is to measure performance of the process or system that produces the effect. o Techniques include flow charts, cause-effect (fish bone) diagrams, review of existing data etc. o Analysis involves answering the following questions; Who is involved or affected? Why, when, where does the problem occur, What happens when the problem occurs? • Step three: Develop possible solutions to the problem (improvement changes) o Changes are possible solutions to problems identified during process of quality improvement. o Developed on basis of knowledge and beliefs about likely causes and solutions to the problem o QI teams should ask themselves the question: What changes can we make that will lead to improvement? o Possible solutions (proposed changes) are then developed based on the hypothesis o Determine possible changes (interventions) we believe may yield improvement o Organize changes according to importance and practicality o Test changes (if possible, one change at a time ) o Improvement usually requires change but not all change is an Improvement! • • Step four: Test /implement the possible solutions o Not every proposed solution (change) leads to improvement. o Test changes that are feasible, realistic and likely to lead to improvement. Maternal and Perinatal Death Reviews Trainers’ Guide 16 o Test proposed solutions on a small scale to see if they lead to expected improvement. o Changes tested need to be observed over some time period to see if they are effective or not. Allows questions and craifies as necessary Summarizes and closes session Topic 3: Preparing to conduct MPDR at the facility level Learning objectives: By the end of the session trainees will be able to: 1. Describe the seven steps of MPDR 2. Discuss the important pre-requisites for conducting successful maternal and/ or perinatal death review Duration: 1 hour Methods: Lecturette, Large group discussion Materials: Handouts on the seven steps, newsprints, markers, masking tape Preparations: Slides/flipchart Procedure: Trainer: Requests trainees to list the steps they have been following to conduct MPDR in their facility Acknowledge responses Display the seven steps of MPDR using slides/newsprint Assure trainees that these steps will be explained in detail in the next sessions. Maternal and Perinatal Death Reviews Trainers’ Guide 17 Trainer: Lead discussion on important pre- requisites for successful review of maternal and or perinatal deaths Display newsprint/slide with good practices for having a successful death review meeting and elaborate one by one. Key issues to consider for successful reviews: Selection of cases MPDR committees established and sensitised identify and select the actors- Stakeholders sensitised on the roles and responsibilities make standards available, identify the cases, Proper documentation, filing and storage - Complete case files for both mother and babies (all information from ANC Cards, Exercise books and MCH handbooks are entered in the file). constitute file, make a clinical case summary and organize a session Medical cause of death (completed ICD 10 Coding) Stakeholders sensitized on the importance of proper documentation, filing and storage The focal person should remind members of the meeting, time and venue Partially fill the audit forms (except for avoidable factors/recommendations) Make preparations for the room/venue Ensure supportive environment Prepare minutes of previous meeting Identify someone (secretary) to take minutes for the meeting *Summarise/link to next session Topic 4: Forming MPDR committee Duration: 1hr Learning objectives: By the end of the session, participants will be able to: 1. Discuss the composition of MPDR committees at different levels 2. Explain the roles and responsibilities of MPDR committee members 3. Discuss the linkages between the different committees at different levels Methods: Lecturette, Large group discussion Materials: Handouts on the seven steps, newsprints, markers, masking tape Preparations: Slides/flipchart Maternal and Perinatal Death Reviews Trainers’ Guide 18 Procedure: Trainer: Trainer displays newsprint with categories of suitable people from which MPDR committee may be drawn from Allows members to discuss and agree on the composition of the MPDR committee (Proposed quality improvement committees) N.B At lower health facilities i.e. HCIII and HCII, all health workers can constitute the MPDR committee Trainer: Asks participants to brainstorm on the roles and responsibilities of MPDR committee Acknowledge Responses Display news print with roles and responsibilities/handout Allow questions and clarify Trainer: Explains the linkages between MPDR committees at different levels (refer to WHO guidance on MPDR) Allow questions and clarify Summarize the session Topic 5: Conducting MPDR Session 1: The audit/ review cycle Duration: 45 mins Objectives: By the end of the session participants will be able to: 1. Discuss the audit cycle Methods: Lecturette, brainstorming Materials: Hand outs Maternal and Perinatal Death Reviews Trainers’ Guide 19 Flip charts Markers Masking tape Preparations: Scenarios Procedure: Trainer: Display the review cycle and ask one participants to read aloud the steps Discuss the steps of the audit cycle one by one Topic 5: Conducting MPDR Session 2: Filling MPDR forms and summarizing cases Session objectives 1. Identify the different sections in the maternal death notification form, maternal and perinatal death review forms 2. Demonstrate how to fill and complete the forms including appending signatures 3. Describe how to summarise the case/s for the review meeting DURATION: 4 HRS METHODS: Brainstorming Role play Lecturette MATERIALS Clinical case notes - MPDR forms (audits) e.g. Maternal death Notification forms, Maternal Death Review and Perinatal Deaths Review forms. Flip charts Masking tapes Markers Maternal and Perinatal Death Reviews Trainers’ Guide 20 Handouts Previous MPDR meeting notes Scenarios based on real clinical cases PREPARATIONS: Role play scripts Handouts PROCEDURE Trainer: Project the learning objectives on a newsprint Read out to the trainee the learning objectives Assess the understanding and get clarification from participants Identifying different sections on the forms Trainer: Introduces and distributes blank maternal and perinatal review forms asks two volunteers to identify the different sections on each of the forms. Tells participants that they are going to learn how to fill the different sections of each form Filling and completing the forms including appending signatures Trainer: Take participants through one form at a time explaining section by section Allow questions and make clarifications where necessary Divide participants into groups of 4-5 people Distribute scenarios and blank forms for each group Allow time for groups to complete the forms Lead discussions in plenary Ensure that forms are understood and correctly filled Clarify where necessary summarising the case/s for the review meeting Trainer: Explain to the trainees that they will need to learn what information to summarize, when it should be done and by whom Ask trainees to brainstorm what information is critical in summarizing a case. Allow a volunteer to list the response on the newsprint Using the filled forms the trainer will point out the most critical information in each section of the form to be summarized (for Maternal Death Review form; the Age, parity, Maternal and Perinatal Death Reviews Trainers’ Guide 21 Address, Gestation, condition on admission, date and time of admission and death, care provided at any level and whether standard management protocols were followed., number of times mother attended ANC, core ANC interventions such as IPT, TT, HIV testing, Syphilis testing, presence of medical conditions such as hypertension, diabetes, HIV, malaria, etc. type of delivery, if instrumental or caesarean section what was the indication and interval between decision making and intervention. probable cause of death, was the postmortem done,) For the perinatal review form, the critical information is age of mother, gestation age, condition of the mother and the fetal heart rate on admission, number of times mother attended ANC, core ANC interventions such as IPT, TT, HIV testing, Syphilis testing, presence of medical conditions such as hypertension, diabetes, HIV, malaria, etc. Type of delivery, if instrumental or caesarean section what was the indication and interval between decision making and intervention. Whether the baby was resuscitated or not. If baby was born alive, length of labour, APGAR score, weight at birth, sex, problems after birth e.g. fever, convulsions, bleeding. If baby born dead, length of labour, was it fresh still birth or macerated? Probable cause of death, underlying factors and avoidable factors. Practical exercise of summarizing a case Ask Participants to go back to their groups and practice summarizing cases. Based on the guidelines and the patients’ records, each group prepares the clinical summary of the case Present in plenary and clarify where necessary Summarise and close the session Topic 5: Conducting MPDR Session 3: Conducting MPDR meetings LEARNING OBJECTIVES: By the end of this session, participants will be able to: 1. Outline the procedures for conducting an MPDR meeting 2. Identify strengths and gaps in the care received 3. Describe how to generate action points for gaps identified 4. Demonstrate how to conduct a successful MPDR meeting Maternal and Perinatal Death Reviews Trainers’ Guide 22 DURATION: 3 HRS METHODS: Brainstorming Role play Lecturette MATERIALS Clinical case notes MPDR forms (audits) Flip charts Masking tapes Markers Handouts Previous MPDR meeting notes Scenarios based on real clinical cases PREPARATIONS: Role play scripts Handouts PROCEDURE Trainer: Project the learning objectives on a newsprint Let one of the trainees read out the learning objectives Assess the understanding and get clarification from participants Trainer: Outline the procedures for conducting maternal and perinatal death review and emphasize that the following must be done by the chair of the committee or the delegated person. - Welcome remarks - Putting people at ease (it is a quality improvement activity not for apportioning blame) - Decide on the number of cases to be reviewed during the meeting - Identify a person to take notes - Agree on length of the meeting - Make presentations of the summarised cases to be reviewed while cross-checking with the source documents and the MPDR Tool. - Discuss the care given and circumstances surrounding each death and agree on what caused the death for each of the case presented. Maternal and Perinatal Death Reviews Trainers’ Guide 23 - Make recommendation to address the identified gaps. Recognise and agree to strengthen good practice. Allocate responsibilities for taking forward the necessary actions and document in the counter-book for audit meetings. Ensure that the MPDR form is fully filled and signed The chair of the MPDR committee must ensure that the case notes are securely returned to the records person. How to identify the strengths and gaps in the care Trainer: Explain that identification of strengths and gaps is based on the set standards of care and protocols. Explain that facilities (hospital administrators, directors, superintendents, S/PNO) should ensure that all the service points have the relevant management protocols and standard operating procedures displayed on the walls and are well understood by the users. Present a scenario: “A case admitted with APH and labour pains, a decision to do a caesarean section was made but the power went off and the generator operator wasn’t around, Caesarean section was delayed and eventually delivered a fresh still birth. She got a retained placenta and a manual removal was done but continued to bleed profusely. Blood as taken for grouping and cross-matching done, but there was no blood group O in the fridge, They sent for blood from the regional blood bank. The mother died after 3 hours of waiting due to PPH and severe anaemia.” OR A mother admitted with a headache for 3 days on examination was found to be obese with pregnancy-induced hypertension (140/90mmHg), fundal height 37 treated with Nefedipine, Panadol, iron and folic acid and asked to return if headache worsened. She was discharged but re-admitted 7hrs later, after Complaining of s severe headache and difficulty in breathing and collapsing suddenly. She died shortly after admission. If time allows screen the video on “Why Mrs. X Died” For a Maternal Death Review; WHY MRS. X DIED Trainer: Explain to the trainee that they are going to watch a video/read a script of “Why Mrs. X died”. Explain that as they view/read they should identify the following: o Possible causes, factors which may have led to her death. Maternal and Perinatal Death Reviews Trainers’ Guide 24 o Factors/obstacles which could have been avoided to save Mrs X. Make sure every participant is ready and is able to see and run the video. Show video or distribute the script and why Mrs X died. Ask participants to list the factors as you write on the newsprint Discuss the factors and emphasize those that could have been avoided. Ask the participants to identify attitudinal factors, gaps in skills, and social community, factors and facility issues e.g. lack of blood, no power/fuel for generator, no blood giving set, no anesthetist on duty, no water, no linen, no oxygen, no spinal needles, no caesarean section sets, no key for emergency cupboard, no airtime, no duty room, no emergency phone, no ambulance fuel. Factors that could have been avoided to save Mrs. X For a Perinatal Death Review; THE DEATH OF BABY LILIANE Trainer: Explain to the trainee that they are going to read a script of “Baby Liliane”. Explain that as they read they should identify the following: o Possible causes, factors which may have led to her death. o Factors/obstacles which could have been avoided to save Baby Liliane Make sure every participant is ready and is able to read the script Distribute the script of Baby Liliane Ask participants to list the factors as you write on the newsprint Discuss the factors and emphasize those that could have been avoided. Baby Liliane was born to Nankya (a prime gravida) who had been on labour for 16 hours in Hospital. The partograph had been filled for the first 4 hours by the midwife on call. However, the midwife who took over for the evening duty did not continue. Baby Liliane did not breathe spontaneously and was blue in colour. “Resuscitation” was attempted by pouring cold water on the baby, tilting it head down and patting on the back. After 15 minutes the midwife gave up as there was no evidence of life (no heart-rate, no breathing, cold and flabby. Factors that could have been avoided to save Baby Liliane: 1. No consistent use of partograph the manage labour 2. Prolonged labour 3. No essential newborn care skills i.e. keeping baby warm, breathing 4. No resuscitation skills 5. Maternal and Perinatal Death Reviews Trainers’ Guide 25 Trainer: Check to see that all the answers in the table are given and make clarifications Now ask trainees to refer to the cases they summarised before Ask trainees to identify and brainstorm on the gaps in the care provided. List responses on newsprint and allow participants to discuss. Emphasize the avoidable factors. Generate action points for gaps identified during death reviews MPDR is aimed at identifying the gaps and addressing them to improve quality of care. However if poorly conducted, the team may fail to identify the relevant gaps at various levels and make recommendations for improvement. How to conduct a successful MPDR Meeting Trainer: Introduce the role plays using a pre-prepared script. Role play 1. How NOT to Conduct a Maternal Audit Session with Maternity Staff The role-play demonstrates how NOT to conduct a maternal death audit session. There are two parts to the role-play. Part 1: The data collector presents the case to the Maternal Deaths Review Committee (department head and midwife). Part 2: The department head provides his analysis, conclusions and recommendations to the committee. Each role-play sessions lasts for 10 minutes and is followed by a 10-minute large group discussion. Three people are required for this role-play: the data collector, the department head, and midwife. The participants who perform the role-play need to be familiar with the case summary described in and decide together how they want to perform the role-play. Familiarize yourself with your (and each) character. Characters in the role play Data Collector During the audit session, you need to present the case from the first role-play using the Data Collection Form for a Maternal Death. You have 10 minutes. Refer to the Data Collection Form for a Maternal Death to relay the events prior to the death of the woman. Department head You have been Head of Maternity in this hospital for 5 years. You are authoritarian. You are worried by the number of deaths happening in your institution. You demand to be in charge of the audit session so discussions can go the way you wish them to. You lead the audit session. Maternal and Perinatal Death Reviews Trainers’ Guide 26 Refer to the Maternal Death Analysis Framework to aid the audit process and ensure that the report is filled out, etc. While audit sessions are not supposed to name names and give rise to punishment, you want to use this case to make an example. At a certain point, you break anonymity and publicly accuse the midwife of not having done what was needed to treat this case of postpartum hemorrhage. You want sanctions to be taken against the midwife by writing to her professional order. You also threaten to talk directly to the hospital’s director to have her suspended for a few weeks. Midwife’s role You are the midwife who managed the woman during delivery. The woman died a few hours after delivery. You don’t agree with the conduct of maternal death audits in this institution. You don’t believe this process will help reduce maternal mortality. Moreover, you’re afraid that, despite what it says, this audit might lead to punishment against you. Following the discussion, the department head threatened you publicly. You firmly deny the allegations and insist that you did nothing wrong. The birthing room was very busy that night and you were the only midwife present, with two nursing assistants. These assistants learned how to perform deliveries by observation only, without any formal training in maternity care. There was only one physician on call. You maintain that you called the physician when you diagnosed the retained placenta, but that the physician didn’t come. You then proceeded to reassess the uterus, after which you judged the woman’s condition to be acceptable when she was transferred to the postpartum section. You weren’t able to keep an eye on the woman as you would have wished because the birthing room was full of other women in labor. Be familiar with how the role-play will unfold. PART 1 of the role-play: The data collector presents the case from the interviews that were conducted earlier to the Audit Committee. The data collector presents the information objectively with appropriate behaviour. The department head and midwife who attended the delivery participate in the audit session. Time provided: 10 minutes BREAK: After this presentation of the case, the instructor then asks the group to comment on the case presentation. Time provided: 10 minutes PART 2 of the role-play: The department head leads the discussion. During this time, the department head accuses the midwife of incompetence, does not respect confidentiality, and states that she will punished. The midwife becomes very scared and no longer participates in the audit session. The data collector tries to mediate the session by attempting to calm down the two of them, reminding them of the ultimate objective of the audit session. Time provided: 10 minutes. FINISH: The instructor asks the whole group to comment on the positive and negative aspects of the session. The instructor concludes the role-play by bringing out the positive and negative elements to an audit session. Maternal and Perinatal Death Reviews Trainers’ Guide 27 Role play on how to identify gaps. Trainer: Request volunteers to participate in two role plays Explain to trainees that they will do a role play to practice what they have learnt For each of the role play, nominate one volunteer to chair and 3-4 to participate as members of the committee Distribute scripts for role plays to the different groups of volunteers. Allow time for the groups to practice the role plays. One group presents at a time Ask the rest of the trainees to observe and make notes on what went well and what needs improvement for each of the role plays. How to conduct a good MPDR and identify possible interventions for quality of care improvement Role play 2 The MPDR committee gathers in the hospital boardroom at 2.30p.m. on Wednesday as per the Memo of MPDR focal person that was circulated 2 days earlier. The chairperson welcomes everybody to the meeting. He requests one of the members to take notes. The chairperson reminds members about recommendations from the previous MPDR meeting and asks responsible persons to inform the meeting what has been done so far. He invites the person who summarised the case notes of the deceased persons to present the summaries and make clarifications as found necessary. He allows questions, answers, clarifications and discussions. He reminds them that the purpose of this meeting is to improve quality of care and no one should blame the other. He guides the members to identify what was done well and what did not go well in the management of the deceased. He/she requests the meeting to make recommendations to address the identified gaps and identify persons responsible to take action. The Chairperson guides the meeting to focus more on the recommendations that would help the facility to improve their performance e.g. address availability of blood and medicines, partograph use, poor surgical notes, inadequate skills, not handing-over duties, poor documentation (clinical notes without date and time, signature and some Maternal and Perinatal Death Reviews Trainers’ Guide 28 interventions not recorded), lack of duty room, inter-staff communication, standard operating procedures, etc. The chairperson advises the meeting to focus more on interventions they can work on themselves. He/she reminds the person taking notes to record in the MPDR report book following the format below. Date Summary – of underlying audit cause death Gap intervention By who? When? How? Indicator He/she thanks the committee members and gives them the next date of the meeting. Maternal and Perinatal Death Reviews Trainers’ Guide 29 Trainer: Emphasize the importance of following: - Ask some of the volunteers for the role plays how they feel about the exercise - Then ask the observers to give their views about how the two meetings were held. - Allow a few minutes for discussion on what went well and what did not go so well. Summarize by emphasizing the key points about conducting a successful MPDR meeting Close and link to the next session. Maternal and Perinatal Death Reviews Trainers’ Guide 30 Topic 6: Reporting and feed back Session Objectives: By the end of the session, participants will be able to: 1. Describe the reporting mechanisms for MPDR at different levels 2. Discuss the reporting formats for the different levels 3. Demonstrate filling of different reports DURATION: 2 HRS METHODS: Brainstorming, Lecturette, Large group discussion, demonstration MATERIALS: Report formats, Newsprints, handouts, markers, slides, Masking tapes, PREPARATIONS: Slides, Flipcharts Procedure Trainer: Tells participants the following story: “KK regional referral hospital conducts MPDR meetings once a month. In the last meeting they noted that MM district hospital sent them 5 mothers due to lack of blood. Two of them died within 30 minutes of arrival. Two of the mothers had incomplete records i.e. the attending doctor could not establish what intervention had been done before the mothers were referred. They also noted that these mothers were sent without any established IV lines.” Asks participants what they think should be done with this information in order to improve the quality of care in both KK and MM hospitals. Notes responses on newsprint Asks participants to mention what they would consider as important to include in the MPDR report from the hospital to the DHO. Acknowledge responses Maternal and Perinatal Death Reviews Trainers’ Guide 31 Displays newsprint/slide with reporting format to the DHO Allows discussion and clarifies as necessary Asks participants to mention what they would consider as important to include in the MPDR feedback report from KK referral hospital to the DHO of the neighbouring district and referring hospital. Acknowledge responses Displays newsprint/slide with reporting format of the feedback to the DHO of the neighbouring district Allows discussion and clarifies as necessary Trainer: Asks participants how often they think this feedback should be Allow some time for discussion Acknowledges responses Inform participants that the written feedback should be done monthly to the neighbouring district and/or facilities. However on an annual basis the referring unit and receiving unit should hold discussions during the regional meeting on how to address the challenges they have in the delivery of maternal and newborn health services. In addition the regional referral hospital has a responsibility of mentoring, monitoring and supervising facilities in the catchment area. Trainer Leads a guided practical session on filling of the MPDR report formats mentioned above. Allow questions and clarifies Summarizes the session Maternal and Perinatal Death Reviews Trainers’ Guide 32 Hand out: REPORTING Flow Chart on Reporting linkages TYPES OF REPORTS AND CONTENT The HMIS health unit monthly summary report (HMIS Form 105) will indicate Number of deaths Hospital Maternity report-……………….(No. of deliveries, no. of deaths, causes of death) Notification – gives a bit of details of the deceased mother (name of the person, age, residence, and possible cause of death) Audit/review form – is a more detailed structured form capturing the chronological events that led to the death of the mother or baby. Other details include circumstances that led to the death, avoidable factors and recommended actions to address gaps identified. There is a detailed handout (no…) on the contents of this form. Copies of the maternal death review forms are currently being forwarded to Resource centre of the Ministry of Health. The Ministry of Health proposes that under District Health Information System 2 (DHIS2), web based version can be developed and analysis done at the Regional level MPDR Summary report captures deliveries, lives births, maternal and perinatal deaths that are reviewed and a summary of avoidable factors, recommendations and action points that have been implemented. Regional referral hospitals serve more than one district. It is important that RRH document and review all deaths that occur within the hospital and give a feedback to a health facility/DHO Maternal and Perinatal Death Reviews Trainers’ Guide 33 where the mother originated. What actions and recommendations were made and what needs to be undertaken by the facility and district of origin on the maternal death/s. Maternal Death Surveillance and Response (MDSR) The MDSR system is a continuous-action cycle designed to provide real-time, actionable data on maternal mortality levels, causes of death, and contributing factors, with a focus on using the findings to plan appropriate and effective preventive actions. While building on established approaches such as Integrated Disease Surveillance and Response and Maternal Death Reviews, it aims to identify, notify, and review all maternal deaths in communities and facilities, thus providing information to develop effective, data-driven interventions that will reduce maternal mortality and permit the measurement of their impact. District Level Since we are moving to MDSR all maternal deaths must be reported to the DHO who has the various officers linked to this work e.g. DHE, District MPDR Focal Person, District Health Inspector, District Surveillance Focal Person, Maternal Health Focal Person, DHO, Biostatistician, Records Officer and Village Health Teams. At the DHO’s office you need to notify them that a death has occurred. The DHO should follow up on all the deaths that have occurred to ensure that a review is done within 7 days. Summary reports about MPDR shall be submitted to the district to elicit response from the DHO’s office. After receiving the reports from the various health facilities, the DHO shall compile a summary report and prepare to disseminate to the District Maternal Death Committee and District Council on a quarterly basis. In order for the national level to compile an annual MPDR report, copies of the summary report will be submitted to the national level. For the time being copies will continue to be submitted to the national level until such a time that DHIS2 is well implemented nationwide. Regional Level: At the regional level there should be a bi-annual MPDR meeting to discuss and follow up on all the MPDR reports accruing in the region so that a regional response can be generated. Health workers should review selected perinatal deaths, make recommendations and actions and report to the DHO’s office The Health unit should ensure that they keep all their reports in a secured file with the In charge of the Health Facility under lock and key. Ideally reports should only be released on written request from the Regional and national team, Ministry of Health, independent assessors and or as required by the law. Review forms shall only be destroyed after data have been synthesized and the report disseminated. National level Maternal and Perinatal Death Reviews Trainers’ Guide 34 Aggregate both reports (summary reports and audit forms) from district health office and regional referral hospitals, analyze and make a national report annually. Publish and disseminate the report to relevant stakeholders. At all levels, timely feedback should be provided and appropriate action taken Maternal and Perinatal Death Reviews Trainers’ Guide 35 REPORTING FORMAT Monthly Report Maternal and Perinatal Death Reviews Name of Health Facility …………………………….......................................... ................................... Report for Period of ................................................................................................................. Total no. of deliveries ............................................................................................................... Total no. of live births ................................................................................................................. Total no. of maternal deaths …………….. .............................................................................................. Total No. of perinatal deaths ............................................................................................. ……………. No. of maternal deaths reviewed ............................................................................................ …………… No. of Perinatal deaths reviewed ............................................................................................ ………….. Date of audit B. Summary of case (Primary underlying cause of death) Avoidable factors / Missed opportunities Key recommendations Person to take action & contact information Action points that have been implemented Comments ................................................................................................................................................................................... ................................................................................................................................................................................... ................................................................................................................................................................................... ................................................................................................................................................................................... ................................................................................................................................................................................... ................................................................................................................................................................................... .............................................................................................................................................................................. Maternal and Perinatal Death Reviews Trainers’ Guide 36 REGIONAL LEVEL FEEDBACK ON MATERNAL AND PERINATAL DEATH Name of Deceased Residence Health unit referring Maternal and Perinatal Death Reviews Cause of death Avoidable factors Comments to referring unit and DHO Trainers’ Guide 37 Topic 7: Follow – up, monitoring and evaluation Session Objectives: By the end of the session, participants will be able to: 1. Describe the importance of monitoring and evaluation 2. Discuss the indicators monitored under MPDR DURATION: 1 HR METHODS: MATERIALS PREPARATIONS: PROCEDURE Trainer: Tells participants that sharing information with other stakeholders will make them more willing to implement recommendations from maternal and perinatal review meetings. asks participants to mention what they think should be monitored to ensure that there is continuous improvement through maternal and perinatal death reviews Acknowledge responses Use handouts to discuss the key issues in monitoring and evaluating MPDR at the different levels and indicators for monitoring Thank participants and close the session Maternal and Perinatal Death Reviews Trainers’ Guide 38 Handout: Monitoring and evaluation Monitoring and evaluation of MPDR is about ensuring that major steps in the system are functioning adequately and improving with time and that the process of conducting MPDR is improving with time. The ultimate goal is that every health facility will be conducting MPDR whenever a maternal/perinatal death occurs. The health system includes health workers as individuals providing care to the mothers and newborns. Therefore correctly responding to some of the recommendations will involve enhancing their own skills. The responsibility of improving individual skills lies with the individual health worker, the health facility in which he/she works and the mentors and supervisors in the region and at the national level. The responsibility of the regional referral hospital is to mentor, monitor and supervise the lower health facilities so as to improve skills of health workers in regard to maternal and newborn health care. And if possible, discuss logistics management and how to improve it. The regional hospitals are also responsible for conducting confidential inquiries periodically. The aim of the independent confidential inquiries by the independent assessors is to ensure that the health facilities are correctly carrying out the MPDR process. They will also lead discussions in regional meetings on MPDR. The national level will ensure the following: That all deaths are being notified according to policy. Maternal Death Review Committees exist at National, District and Health facilities (up to HCIV), function and meet regularly. Verbal autopsies are coordinated at hospitals and HCIVs. National and District MPDR reports are published and disseminated. Ensure that districts have someone responsible for MPDR Gaps in health are being addressed by the responsible departments, units and the community Maternal and Perinatal Death Reviews Trainers’ Guide 39 Recommendations are implemented to complete the audit/review cycle Districts are conducting monitoring and evaluation A system exists for correctly identifying all maternal deaths Districts and regional hospitals are producing relevant reports There is a system in place that continuously monitors maternal and perinatal mortality trends Quality of care is continuously improving Maternal and Perinatal Death Reviews Trainers’ Guide 40 Example of MPDSR monitoring indicators and targets Indicator Overall system indicators Maternal death is a notifiable event National maternal and perinatal death review committee exists - that meets regularly National maternal mortality report published annually % of districts with maternal death review committees % of districts with someone responsible for MPDSR Identification and notification Health facility: All maternal deaths are notified - % within 24 hours Community: % of communities with ‘zero reporting’ monthly % of community maternal deaths notified within 48 hours District % of expected maternal deaths that are notified Review Health facility % of hospitals with a review committee % of health facility maternal deaths reviewed % of health facility perinatal deaths reviewed (neonatal and fresh still births) % of reviews that include recommendations Community % of verbal autopsies conducted for suspected maternal deaths % of notified maternal deaths that are reviewed by district District District maternal mortality review committee exists - and meets regularly to review facility and community deaths - % of reviews that included community participation and feedback Data Quality Indicators Cross-check of data from facility and community on same maternal death Sample of WRA deaths checked to ensure they are correctly identified as not maternal Response Facility % of committee recommendations that are implemented - quality of care recommendations - other recommendations District % of committee recommendations that are implemented Reports National committee produces annual report District committee produces annual report - and discusses with key stakeholders including communities Impact Quality of care (requires specific indicators) District maternal mortality ratio Hospital maternal mortality ratio/lethality rates Maternal and Perinatal Death Reviews Example Target Yes Yes At least quarterly Yes 100% 100% Yes >90% 100% >80% >90% 100% 100% 50% 100% >90% >90% Yes At least quarterly 100% 5% of deaths cross-checked 1% of WRA rechecked >80% >80% >80% >80% Yes Yes Yes Reduced by 10% annually Reduced by 10% annually Trainers’ Guide 41 Timing of sessions Topic 1: Introduction Session 1: Climate setting and orientation to training- 1 hr Session 2: Overview of maternal and perinatal death reviews -1 hr Topic 2: Quality of care 1hr 30mins Topic 3: Preparing to conduct MPDR - 1 hr Topic 4: Forming MPDR committees -1 hr Topic 5: Conducting the MPDR Review Session 1: The MPDR cycle -45 mins Session 2: Filing forms and summarizing cases - 4hrs Session 3: Conducting MPDR meetings -4 hrs Topic 6: Reporting & feedback - 2hrs Topic 7: Follow – up, monitoring and evaluation – 1 hr Total time required 16 hrs 45 mins Maternal and Perinatal Death Reviews Trainers’ Guide 42 Program schedule of training Day 1 : Time 08.30 – 09.30 09.30 – 10.30 10.30 – 11.00 11.00 – 13. 00 Topic Welcome participants Introduction Training objectives, program and methods Overview of Maternal and Perinatal death review in uganda Responsible Length Material Trainers 1 hr Trainers 1hr PP Trainers 1 hr 30 mins PP 1.4 Trainers 1 hr Trainers 1 hr Coffee break Quality of Care improvement 13. 00 – Lunch break 14. 00 14.00 – 15.00 Preparing to conduct MPDR at the facility level 15. 00 – Forming MPDR committees 16. 00 Maternal and Perinatal Death Reviews PP 2.1 PP 2.2 Trainers’ Guide 43 16.00 – 16.30 Coffee break Before leaving the place, distribute MPDR tools and anonymized case notes for deceased mother and / or baby. Ask participants to familiarize themselves with the contents in the notification forms and perinatal and maternal death audit tools as well as the case notes Maternal and Perinatal Death Reviews Trainers’ Guide 44 DAY 2 : Time Topic Responsibl Length Material e 08.3009.00 Recap Trainers 45 mins 09.00 – The Audit cycle 09.45 Trainers 45 mins 09.45 – Filling Perinatal death review form 11.00 & summarizing case Participants and trainers 11.00 – 11.30 11.30 – 13.30 13.3014.30 Participants PP 2.5 MPDR tools Coffee break Filling maternal death review form & summarizing cases Lunch break Group work 14.30 – Practice filling the review forms & 16.00 summarizing cases 16.00 – Tea break 16.15 16.15 – Large Group discussion 17.15 Filling review forms Maternal and Perinatal Death Reviews Participants Trainers & Participants Trainers’ Guide 45 DAY 3 : Time Topic 08.00 – 11.00 Conducting MPDR meeting Responsibl e Length Material Trainers & Participants 3 hrs Tools for MDRs 11.00 – 11.30 Coffee break 30 mins 11.30 – 13.30 Reporting & feedback 2 hrs 13.30– 14.00 Lunch break 60' 14.00 – 15.00 Follow up, monitoring and Evaluation 15.00 – 16.00 Trainers Establish MDR Committee: number, names of members, Plan the calendar of future MPDR sessions 16.0016.30 Coffee break 16.30– 17.00 Evaluation of the training by participants Official closing and distribution of certificates of attendance Maternal and Perinatal Death Reviews 1 hr 30 min 1 hr 15' Officials 30’ Certificates Trainers’ Guide 46