COMPREHENSIVE FUNCTIONAL ASSESSMENT REPORT AND RECOMMENDED SUPPORT PLAN Client Confidential Date of Report: December 18, 2003 Referral Date: March 7, 2003 Period of Report: August 25 December 18, 2003 IDENTIFYING INFORMATION Name: Mike Chow Date of Birth: May 20, 1994 Address: 1729 Henderson Dr. Greer, CA xxxxx (xxx) xxx-xxxx Referral Source: Mr. and Mrs. Chow REASONS FOR REFERRAL Mike was referred by Mr. John and Mrs. Linda Chow, his father and mother, for an evaluation. The purposes of the evaluation were to assist Mike in securing the educational services and programming which would enable him to develop and to use his capabilities, to get the most out of the educational opportunities that can be made available to him and to enable him to develop and to use his capabilities for more independent, normal living and more productive activity than his behavior problems presently permit. Accordingly, it was requested that the evaluation focus on these behavior problems, which were characterized tantrums, and the type(s) of behavioral services, support strategies, programming, professional competencies and skills, and environments required to eliminate, minimize, or manage them. Specifically, his parents believe that while he would benefit from a full inclusion program, his school only has him partially included because of his aggression and tantrum behavior. Mr. and Mrs. Chow’s specific request is for a behavioral support plan that would allow Mike to be fully included, so that he could benefit most from his education. The timing of this assessment was delayed because of parent/school disagreements as to whether this it was necessary, given that the school had separately arranged for one by Dr. Sam Jones. Once the conditions under which the performance of this separate assessment were negotiated, further delays we incurred due to scheduling conflicts with my own calendar. Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 2 DESCRIPTION OF ASSESSMENT ACTIVITIES This assessment is based on information obtained from the following sources: A. Interviews with Mr. and Mrs. Chow, his teacher, Ms. Susan Stone, his one-to-one instructional aide, Mr. Jerry Pitman and other school personnel, and his in home service staff from PEAK; B. Direct Observations of Mike in both his home and school settings; C. Review of all the records provided by parents and by the school district; and D. A Reinforcement Survey completed by interview with his parents. BACKGROUND INFORMATION I. Brief Client Description. A. General. Mike is a very good looking nine-year-old boy with neatly crew cut, dark brown hair and dark brown eyes. When I first saw him in his parents home on a Monday morning, he was dressed in a clean red T-shirt, blue shorts and was barefoot. He was with his in home service staff from PEAK, an in-home support agency, and was playing a computer game. When, shortly after I arrived, he lost the game, he had a bit of a tantrum, including crying, throwing himself on the floor, grabbing staff around their legs and hitting them, pushing furniture with his legs, pulling the computer key-board off the computer table, and smashing the “mouse” against the floor. Once he calmed down, he worked cooperatively with staff and after they left, his mom was able to mange him quite well in a number of independent play activities. Throughout my visit he sought out a number of interactions with his mother, seeming to want and enjoy tickling and other physical contact with her. Mike faces life with the challenge of autism. The characteristic associated with this problem were amply apparent during my visit, including his total disinterest or curiosity about my presence in his home. Other characteristics include his ritualized behavior, his lack of tolerance for change, and the obsessive-compulsive quality characterized by so many of his behaviors. These included, but certainly are not limited to his ritual like water play, his insistence on using paper towels, only from the paper towel dispenser, when at school, his “need” to remove his shoes when he enters his home and his “need” to answer the phone when it rings at home, his difficulty in stopping certain activity, Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 3 such his computer play, his “need” to get out of his seat in, and to move around in the classroom. As is increasingly recognized for those facing the challenge of Autism, Mike may have a "movement disturbance." A movement disturbance is defined as a disruption in the regulation of movement which involves the loss of typical movements and excessive atypical movements which affects the person's ability to initiate, switch, efficiently perform, or continue any action, including those involving communication, social interaction or performing useful activities. Each episode of movement disturbance may vary in its frequency, duration, intensity, and composition, given different contexts, emotions, and physical states. Further, the phenomenon of kinesia paradoxa, adds to the complexity of understanding movement disturbance in which the individual who typically experiences severe difficulties with the simplest of movements may suddenly perform complex and skilled movements and then return to the prior inactivity. (Leary and Hill, “Moving On: Autism and Movement Disturbance" Mental Retardation, Vol. 34, No. 1, 39-53, Feb. 1996). Mike has a number of characteristics that are compatible with movement disturbance, as described above and as will be further described in subsequent sections of this report. Other characteristics consistent with movement disturbance include abnormal body movements such as the way he leaves his chair and moves around the classroom, slowness in completing tasks, non-social speech, lack of initiation and apparent lack of interests (except for his “obsessions”) and motivation, and sudden physical aggression and explosive episodes, such as when he pulled a fellow (girl) student’s hair (who was facing away from him) and when he recently physically attached his teacher, Ms. Stone. While these and related behaviors may serve some communicative function in any given context, behaviors may also have more of a non-volitional neurological base. If these and others of Mike's problems reflect a true movement disturbance, our challenge may be to assist Mike in finding a way to regulate and modulate these behavioral states rather than to eliminate them per se. B. Language and Communication Skills. In an excellent Speech and Language Assessment Report carried out in December, 2002, by Ms. Boone, a Speech-Language Pathologist with the Mid-County School District, Mike’s was described as having “severely delayed receptive and expressive language abilities, specifically in the areas of semantics, auditory comprehension, syntax and morphology and pragmatics.” On the Peabody Picture Vocabulary Test, he had an age equivalent score of 4 years, 1 month. On the Preschool Language Scale, he had an age equivalent score of 2 years, 4 months for expressive communication and 3 years, 7 months for auditory comprehension. For example, he is able to correctly label body parts, animals and certain objects but he has difficulty with identifying Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 4 categories. That is, rather than naming the category when shown pictures of various animals, he instead labeled each of the individual animals. Receptively, he can identify colors and certain descriptive concepts, such as long or short, and shows an understanding of object use, such as those used to eat. He can also listen to a simple sentence and point to the corresponding picture, for example, “the girl is pushing the baby.” Based on this formal assessment, however, “auditory comprehension decreases with sentence length and complexity increase,” including those that include conjunctions, such as “because’ and “and,” temporal concepts, such as “before” and “after,” past or future tense, such as “walked” and “will walk,” comparative concepts, such as “heavier,” and “sequencing, making inferences, and identifying higher-level body parts (wrist, heel). He also demonstrated difficulty following novel directions, although, as his parents described, he can follow contextual directions, such as “go into the room and get me the phone.” Expressively, Mike even has more difficulty. He is able to combine three or four words, such as “no more,” and “I want chips,” or even somewhat longer sentences such as “I want to go to bathroom.” However, he is not able to reliably answer simple yes/no questions or use the little speech he has to get his needs met in a social context with others outside his immediate family. Both home and school report that Mike uses the Picture Exchange Communication system (PECS) to initiate communication to have his needs met and can use that system to put together simple sentences, including the use of adjectives. In addition to the challenge of autism and the effect this has had on his speech and language development, another factor that may have had an influence the fact that his parents speak both Vietnamese and Cantonese. In fact, they use Cantonese at home among themselves and when speaking to Mike’s younger sister, while, realizing his difficulty in this area, speaking only in English with Mike. In fact, a Speech and Language Assessment in January of Mike’s communication skills in Cantonese revealed even less ability with this language, being able to identify only one body part and only the phrase in Cantonese “go to the bathroom.” C. Cognitive and Academic Abilities. Mike clearly has areas of strength in which he his cognitive and academic abilities show at their best. For example, he is quite capable of operating the computer and can fluently use the computer key board. He is described by his parents as having a photographic memory and, for example, learned to operate the VCR when he was only three or four years old simply by watching others use it. He can put 24-piece, even 50-piece puzzles together with ease and tell time by the hour. He can read books such as “The Cat in the Hat,” “Goldilocks and the Three Bears,” and “The Shy Little Kitten,” and “Golden Books” at a similar level of difficulty. Further, he is able to sound out unfamiliar words using phonics. During my observation in the classroom, I observed first hand Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 5 some of the skills he had. The teacher was reading/singing a book (The Shirt Song) to the students in the class and they were supposed to be following/singing along with their own books. Mike did not seem to be paying attention at all and required frequent prompting to stay in his chair. However, he spontaneously turned the page without prompting at exactly the place, at the end of every page. This not only demonstrated his ability to follow the written work but suggested that he may be taking more in than is apparent when his attention seem to be wandering or directed elsewhere. Related to his reading skills, Mike is also able to spell. His parents report that he is very good with the “Jump Start-Spelling” CD ROM, which is pitched for ages five through eight. He is able to legibly write his name and write answers to open ended questions such as “What do you do with a book” and “What do you do with a towel” with the correct answer, such as “read with it” and “dry myself with it,” respectively. He can find whole words in an word puzzle in which three to seven letter words are embedded in a 8-letter by 12-letter matrix. He is able to find the listed words that are embedded either left to right or top to bottom somewhere in the matrix. He is able to answer questions on a multiple choice test with questions such as “What school do you go to,” “What city do you live in,” “What is your mother’s name,” etc., with the correct answer listed along with three distracters. He achieved 100% correct responding on the 11-question, multiple-choice, “Safety Questions” test I reviewed. He is also able to respond correctly to simple open-ended tests such as sentence completion exercises. For example, with the written instruction to “fill in,” he was able to complete the statement “My eyes are ______” with the correct answer “black,” correctly spelled, of course. With math, he is able to do addition problems, but is not yet always able to carry over successfully. On one worksheet I reviewed, he received a 100% correct score for all 24 questions with addition problems such as 32 + 5 and even 38 + 7. What makes a totally clear picture of his academic ability difficult to determine is his need for frequent, and on occasion, even continuous prompting. It is not always clear whether he needs to prompting to keep attending and responding, due to his movement disturbance, or whether he needs “hints” as to the correct answer. Even so, his ability to exhibit many of these skills on the computer, which is essentially programmed to provide the former but not the latter, and in isolated instances when he clearly is demonstrating a skill, such as when he turned pages at the correct time, suggest that he may actually have significant academic ability - and potential. Formal testing carried out a year ago by the Mid-County school district, the most recent formal test results available to me, the following interpretation was made of his cognitive functioning, based on the Universal Nonverbal Intelligence Test (UNIT): On this measure, Mike attained a standard score of 90, in the average range. Without considering intervening factors, Mike’s scores Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 6 are likely to fall with a range of 85-97 standard scores at a 90% confidence level, falling within the low average to average range. In addition, the following scores were also obtained: Memory Quotient standard score 91, Reasoning Quotient standard score 91, Symbolic Quotient standard score 87, and Nonsymbolic Quotient standard score 94. Based on the Wechsler Individual Achievement Test-II (WAIT-II), he performed at the age equivalent level of 7:0, 6:4, 4:0 and 6:8 for Word Reading, Math Operations, Math Reasoning, and Spelling, respectively. Based on thee BRIGANCE Comprehensive Inventory of BASIC SKILLS, he performed at the grade equivalent level of 2nd, 1st, 1st, and 1st in the areas word recognition, oral reading, spelling and math, respectively. D. Self Care Skills. Mike also has fairly well developed self-care skills. He can eat the a fork and spoon, although he doesn’t yet use a knife, and can drink through a straw (he is particular about what he eats and won’t each the typical pizza, hot dog, MacDonald’s “junk food” that so many other children tend to favor). He can dress and undress himself and is independent in putting on his shoes with the Velcro lace. He can zip and button and is know learning to tie traditional laced shoes. He is fully toilet trained and even if in the car he will let you know if he needs to use the restroom. If you don’t stop for him, he will have a Tantrum. He is able to wash himself during bath time but does need help putting on the shampoo. He is also able to brush his own teeth using an electric toothbrush, including applying the toothpaste, and gargle his mouth clean after he is done. This was a sequence of skills, the performance of which I had the opportunity to observe myself during my visit in the family home. E. Domestic Skills. Right now, there are no chore expectations for him at home. However, Mike is very “neat” and puts his shoes in the closet when he takes them off when he enter his home and puts his clothes in the clothes basket when he takes them off. While these are skills, Mike’s performance of them is ritualized. He would Tantrum if he were not allowed to complete these tasks or, for example, if his shoes were kept or put somewhere else, for example by his bed. Another manifestation of his movement disturbance is his insistence on picking up the phone when it rings, exhibiting a Tantrum if someone else answers it first. In terms of his skills in and around the kitchen, he is able to independently help himself to crackers, a piece of fruit, and to go into the refrigerator to get and open a yogurt for himself. He is also able, for further example, to get the milk or juice out of the refrigerator and to pour himself something to drink. Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 7 F. Community Skills. Mike has minimal skills for navigating the community successfully. He can tell you his home telephone number and address, but he is not able to cross streets safely. When shopping, he will tend to just grab and want to leave with a lot of things, even more than one of the same thing, and you may find yourself having to pay for more than you had planned. His parents are trying to teach him to tell them what he wants. G. Recreation and Leisure Skills. There are a number of ways that Mike likes to spend his recreational and leisure time. At home, he can spend hours playing on the computer or with his Game Boy and has his favorite TV shows and characters, e.g., Elmo and Barney (especially), that he enjoys watching. He also enjoys coloring books and cut and paste activities. He particularly likes parties, especially birthday parties and even enjoys just listening to the happy birthday song. Outdoors, Mike enjoys riding his tricycle and trips to the beach where he can play in the water and sand. H. Social Skills. As would be expected for a boy facing life with the challenge of autism, it is in the area of social skills that Mike has the most difficulty. He often appears to be, if not unaware, totally uninterested in the people in his presence. He seemed oblivious of the other students in his special education classroom, in the inclusion (math) classroom, and out on the playground, where he played in the sandbox isolated from the others. When I was observing in his home and at his school, while I introduced myself to him, he appeared not to be interested in me or curious about what I was doing. A typical example of his characteristic apparent lack of social awareness or interest in other people is illustrated by an interaction I observed between him and the principle of his school. While transitioning with his aide to the inclusive (math) classroom from his home room the Principal was passing by and said hello to Mike. Mike did not acknowledge this greeting at all. However, when the Principal insisted that he respond, Mike did respond in kind by saying “good morning.” It would be easy to conclude that Mike has neither social skills nor social interest, that he is no interest in nor wants to be with other people, whether children or adults. There is quite a bit of evidence that would belie this. For example: His Tantrums were at a minimum when his cousins from the East Coast, a girl of 9 and a boy of 2, were visiting. He will often ask to visit his cousins who live in the area, saying, for example, “I want to go to Kimberly’s house.” Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 8 When he is with his cousins, he asks them to play with him. example, with Candy Land. He enjoys going over and visiting at Grandma’s house. He is attached to his instructional aide and is upset when he moves away or pays attention to someone else. He is obviously attached to and loves his mother, often seeking her out for a tickle, a kiss and/or an embrace, and laughs and smiles when with her. He will often seek his father out for help. At night, when he needs to use the toilet, he won’t go or stay alone because he is “afraid” of the night and the dark and seeks the reassurance and security of having one of his parents with him. For These are not indicators of a boy who has no interest in other people nor a boy totally lacking in social skills. Rather, it draws a picture of a boy who finds it difficult to establish relationships with other people and who is only confident with those with whom he has a trusting history. The lack of skills may be at the front end of a relationship, during initial meeting and in establishing the predictable basis on which back and forth interactions will occur. II. Living Arrangement and Family History. Mike lives at home with his parents and his and his sister Allison, who is seven-years-old. His mother, Linda Chow, works as a clerk for the LA Daily Journal, and his father, John Chow, a college graduate, has worked in a photo lab but now does free lance graphic design. He acknowledges, however, that for the last year or two he has mostly been preoccupied Mike and advocating for him. For example, Mr. Chow sought and received formal training for himself in using the Picture Exchange Communication System (PECS) that seems to be a relatively successful communication modality for Mike. Mike and his sister were both born in the United States but his parents and many of his extended family immigrated to the US and speak both Vietnamese and Cantonese. At home, Mike’s parents tend to speak Cantonese to each other and to Allison but use English when speaking with Mike. (See Language and Communication Skills above.) The family home is a three-bedroom house on a pleasant tree-lined street in Greer, California. The third bedroom is set up as a computer room (which Mike uses a lot) and the children share a bedroom, although in practice the children sleep with their parents. In addition to the three bedrooms, there is a small kitchen and Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 9 breakfast room, a dining room, and a living room. The home is beautifully and tastefully furnished and decorated and the living room has room for both a large screen TV but also a piano, on which both Allison and Mike have received lessons. The small backyard also has a trampoline for Mike. Mike day is typically very structured and busy. On a typical day after school, he receives two hours of in-home service each day, Monday through Friday from 3 PM to 5 PM. These services are based on the principles of Applied Behavior Analysis and are aimed at teaching and improving various skills and at improving problem behavior. Mike has received such in-home services since 2001 and PEAK is the current service provider. He has benefited significantly as reflected by his mastering the instructional objectives established for him in the various areas, such as social skills, language and communication skills and self-care skills. As only a minor example of this, Mike is now able to button his cloths and correctly answer more than five safety questions, such as “what is your name” and “where do you live,” both of which were objectives pursued by PEAK. 6 PM is bath time with dinner from 6:30 to 7:30 PM and bedtime from 7:30 to 8:30 PM on a typical week day night. Mike does not present any particular problem behavior around bedtime. Weekends also have some regularity to them. On Saturdays, Mike receives on hour of Social Therapy from 1 to 2 PM and an hour of Yoga instruction from 2:45 to 3:45. On Sundays, the family often will go ice skating, swimming and/or to the park for the kids to play and run around. The Tangs are blessed to have many members of their extended family living in relatively close proximity, so visits to Grandma’s house or having some cousins over or visiting them is a frequent rather than a rare occurrence. This is to Mike’s benefit as he enjoys visiting with his relatives and will in fact ask to visit grandma or his cousins. When with his cousins (and sister), he will ask them to play and generally shows more social awareness and interest in playing and interacting with them than with other children. Mr. Chow’s statement that he has been occupied with Mike for the last two years may be an accurate assessment. Not only is Mike’s life a full and productive one, his parents continue to seek out further assessments from various professionals to increase their understanding of all of the aspects of Mike’s challenges and to assertively pursue the acquisition of those services that would be of benefit to him, for example, occupational therapy and music therapy. However, they seem disappointed in what they perceive as the lack of inclusion opportunities for him in school and concerned about the Tantrum behavior, which causes increasing difficulty at home and that has become the major barrier to having these opportunities. Given the situation, the time may be right for the family to adopt a strategy of working toward the consolidation of the services that is currently available to him rather than pursue additional assessments and services at this time. That is, what may benefit Mike most at the current time is not so much a new assessment or service but a consolidation of a coordinated plan across all settings, representing the needed services that have already been identified. Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 10 III. Daytime Services Received and Day Service History. Mike is currently attends the Sam Houston Elementary School (at 409 W. Lake Blvd., in Greer, California) in a special education classroom for students who have the problems associated with autism. His teacher has experience working with this population and his one-to-one aide, Mr. Jerry Pitman has worked with him for four years. In addition, Mike has his math class in with typical students, during which time, he is accompanied by Mr. Pitman. Both Mr. Pitman and his teacher, Ms. Susan Stone, have received training from Positive Behavior Consultants, Inc. (PBC) on Discrete Trial instructional methods and other procedures and strategies that are based on the principles of Applied Behavior Analysis (ABA) and continue to receive consultation and training from that well respected agency regarding Mike and his educational and behavioral needs. This has included formal recommendations for addressing Mike’s Tantrum and other challenging behavior. For example, PBC guided the school on the use of a “wait” card to help mitigate Tantrum behavior. PECS is used as much as possible. While PEAK is the provider of Mike’s ABA services in the home, PBC is the provider of ABA services in the school. There has been disagreement between the school and Mike’s parents about his educational program. On the one hand, Mike’s parents have advocated for Mike to have the opportunity for full inclusion, as they believe that this would provide him with the opportunity to receive optimum benefit from his educational program, both in terms of his academic growth and in his development of communication and social skills. While he was previously receiving more inclusion in the past, his problem behavior and the school feeling that he wasn’t receiving educational benefit led to its sharp curtailment. Mike’s current IEP includes a formal “Positive Behavior Intervention Plan” derived from the FAA carried out by Dr. Sam Jones. In addition, there are goals and objectives for developing social/emotional skills (independent class work, communication using system like PECS); visual motor skills (writing); expressive language (making requests); receptive language (answering “do you want_____?” questions, understanding prepositions), pragmatics (engaging in verbal exchanges with other students); academic reading (decoding two-syllable words); functional academics (demonstrate understanding of common signs); academic writing (writing three self-generated sentences in response to a topic or picture); and academic math (adding and subtracting 20 mixed double-digit problems, not involving regrouping, solving adding and subtracting work problems, identifying hour and 1/2hour on a clock). While the IEP is exemplary in many ways, including the use of discrete trial methods, my concerns are for some of the elements of the behavioral support plan and for maximizing the opportunities for and benefit of inclusion opportunities. These concerns are discussed in subsequent sections below. Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 11 IV. Health, Medical and Psychiatric Status. Mike’s general health is considered to be excellent. His hearing and vision are considered to be within normal limits, as are his fine motor and gross motor skills. He does not have any known motor nor physical disabilities or limitations, although his tactile defensiveness to certain food textures is considered to be the reason he has such constricted food preferences. He has no history of seizure activity. However, funny eye movements and facial twitching led to the suspicion of Tourette’s Syndrome. Various neurological evaluations were carried out and findings were negative for Tourette’s. However, the findings concluded that there was an abnormal EEG due to the presence of generalized background slowing suggestive of a diffuse encephalopathy. A trial of Clonidine was initiated but discontinued when no beneficial effects were noted. The “tics” were observed to improve and he is not now receiving any medication, nor, other than the Clonidine, has he received medications in the past. V. Previous and Current Treatments. Over the years, in his young life, Mike has received various treatments and therapies. These have included intensive Applied Behavior Analysis services, both in the home and school, aimed at both skill development and behavior, social therapy, speech and language therapy, occupational therapy, adapted physical education, music therapy and, as described above, one attempt to address some of his problems with medication. While there is no doubt that his skill development has grown over the years, his behavior has, while having ups and downs, not significantly improved and his parents believe that at the present, they are getting worse. A more detailed description of the history of these problems and the methods that have been attempted in the past are provided in the History of the Problem section below. FUNCTIONAL ANALYSIS OF PRESENTING PROBLEMS While Mike exhibits a number of problem behaviors, many of them can occur together, and as a class can be considered to be “tantrum” behavior. Aggression, of particular concern in school, when it occurs, is also often a precursor to or can occur in conjunction with a Tantrum. Accordingly, a functional analysis was conducted for Tantrums as the priority problem. This analysis endeavored to identify the events that control the emission and non-emission of these clinically important problems. It is therefore organized around six specific subcategories of analysis: (1) Description of the Problem. This analysis attempts to describe the presenting problems in such detail that they can be objectively measured. It presents the topography of the behavior, the measurement criteria for quantifying the rate of occurrence and episodic severity of the behavior (as applicable), the course of the behavior, i.e., how it progresses during an event, and the current strength of the behavior (i.e., the behavior’s current estimated rate of occurrence and degree of episodic severity). Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 12 (2) History of the Problem. This analysis presents the recent and long-term history of the problem. The purpose here is to better understand Mike's learning history, and the historical events that might have contributed to the problem(s). (3) Antecedent Analysis. The antecedent analysis attempts to identify the conditions that control the problem behaviors. Some of the specific antecedents explored include the setting, specific persons, times of the day/week/month, and specific events that may occur regularly in Mike's everyday life. (4) Consequence Analysis. The consequence analysis attempts to identify the reactions and management styles that might contribute to and/or ameliorate the presenting problems. It also focuses on the effects that the behaviors might have on the immediate social and physical environment, on the possible function(s) served by the problem behaviors and on the possible events that might serve to maintain or inhibit their occurrence. (5) Ecological Analysis. The ecological analysis attempts to identify the critical mismatches that may exist between the physical, interpersonal and programmatic environments and Mike’s needs and characteristics. (6) Analysis of Meaning. The analysis of meaning is the culmination and synthesis of the above analyses and attempts to identify the functions served by the problem behaviors. The functional analysis of Tantrums, organized around these headings, follows: A. Description of Tantrums and Operational Definition. 1. Topography. Tantrum include yelling, screaming and/or crying; throwing himself on the floor; while on the floor, physical aggression, i.e., kicking, grabbing, scratching, biting and/or hitting at people or pulling their hair; banging his own head with his hands or against a hard surface, and/or knocking objects off table and/or throwing them. 2. Measurement Criteria. a. Occurrence Measure (Cycle: Onset/Offset). A Tantrum is considered to have begun with the occurrence of any of the above topographies and is considered over with their absence for 15 consecutive minutes. b. Episodic Severity Measure(s). The severity of an episode of Tantrum behavior can be quantified in two ways. The first is by the duration of the event. The second is through the use of a severity scale, as follows: Level 1 – The Tantrum includes one or more of the above topographies, excluding physical aggression. Level 2 - The Tantrum includes two or more of the above topographies, including physical aggression towards and adult. Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 13 Level 3 - The Tantrum includes two or more of the above topographies, including physical aggression towards another child. Level 4 - The Tantrum results in someone being injured requiring first aide or medical attention. 3. Course. There are a number of precursors that can indicate a Tantrum may be about to occur, often depending on how the adult authority figure responds to these warning signs. These precursors include, darting around the room, often away from the supervising adult, grinding his teeth, engaging in stereotypic, repetitive actions, or communicating an unfulfilled need or desire. Following precursor behavior, often depending how the supervising adult(s) responds, the topographies of Tantrum behavior occur in various and varying combinations. The Tantrum I observed during my observation in Mike’s home was apparently typical, although, at nine minutes, perhaps somewhat less severe than usual. He had been playing a computer game and lost. He starting crying and threw himself on the floor, and proceeded to behave as described above. With staff encouragement, he did tend to calm down, but after 30-seconds or so, would start up again, crying, kicking out and hitting and grabbing at staff. This all occurred during a break time from his “work” and he eventually calmed down for good, being cooperative with staff when the timer went off indicating it was time to get back to “work,” a tooth brushing. This pattern of a single Tantrum being interspersed with sort periods of relative calm is typical, being described, as well, by Dr. Jones in his report dated March 7, 2003, based on an incident he observed in the school setting on January 9th. While a Tantrum can be over in as little as 5-minutes, on occasion, such episodes can last up to 30 to 45 minutes or, although rarely, even longer. Once its over, it seems to be forgotten, and Mike seems willing and able to participate in an adult directed activity. 4. Strength. a. Rate. Although his parents report that Tantrum behavior is becoming more frequent and severe at home, currently, it would seem that there are approximately five Tantrums a day, on average, with a range of from one to ten. Formal data for this problem, as described above, have not been collected either in the school setting or at home. At school, the report is that the average occurrence of Tantrum behavior is two times a day. Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 14 b. Episodic Severity. Again, while formal data have not been collected, from reports and interviews, Tantrums last from 5 to 45 minutes, with an estimated average of 20-minutes in length. Further, on the 3-point scale of severity described above, the average level of severity would be placed at 2, with very few incidents involving physical aggression toward children and equally few being free of physical aggression toward adults. B. History of The Problem. Young children often exhibit Tantrum behavior, however, in Mike’s situation Tantrums have not improved and are reported by both home and school to be worse. Physical Aggression also has been present for several years, sometimes as part of a Tantrum and sometimes quite separately. This is reflected in a Special Education Plan from the West San Gabriel Valley dated March 24, 2000 “…He will come and hit the person in order to communicate his needs.” In a behavior plan from the Fremont School dated September 14, 2000, Physical Aggression, Yelling and Screaming and Throwing himself and the floor were targeted to be eliminated or decreased. As indicated above, Physical Aggression can also occur as part of a Tantrum, such as was described by a not by his teacher, Mrs. Kee Lui on September 11, 2001 “…I was called to help Jerry with Mike…Mike was crying and screaming…Mr. Chow came to pick Mike up from school…Mike cried and screamed and sometimes hit his dad.” to pick Mike up at school…Mike continued to cry and scream. He also hit his Father.” These problem continue up to the present time and their have been a number of attempts to carry out a functional assessment to understand these behaviors and to develop plan to reduce and/or eliminate them. Part of the difficulty in resolving these problems include imprecise and varying definitions of exactly what the problem is. I believe the has contributed to the difficulty people have had on getting a handle on just what the problem is and what might be done solve it. An example of these floating and varying targets is illustrated from various reports, plans, data records, etc. over the last several years: Dates Agency Document 3/00 Harvest Valley Special Ed. Plan hits and bites 9/00 Fremont School Behavior Plan Physical Aggression Yelling/Screamin Throwing self on floor 10/01 Cleveland Beh. Assessment Problem Behavior(s) Eloping Aggressive behavior Tantrums Self Stim. Behavior Disruptive Behavior Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 15 Self Injurious Behavior Rigidity 11/02 PBC Beh. Int. Plan Tantrums 3/03 Sam Jones, Ph.D. FAA Harm to self Harm to others Property Damage Disruptive Behavior Repetitive...Behavior Offensive Behavior 4/03 Harvest Valley Pos. Beh. Int. Plan Harm to others Disruptive Behavior Property Damage 9/03 Mid-County School Data Sheets Physical aggression Yelling/screaming Throwing self on floor Expose/touch genetils Throwing objects Vocalization noises Other behavior Off task Licking objects Spitting/saliva play Taking off shoes Scratch back on objects There are a number of difficulties with this myriad of target behaviors. First, there is no commonality for the definition for these different “target behaviors.” For example, The Cleveland assessment lists and doesn’t really define Tantrum behavior but defines Disruptive behavior separately as including screaming, laughing and giggling for no apparent reason. In contrast, Dr. Jones’s report defines disruptive behavior as “…yelling screaming, laughing loudly for no apparent reason, crying for not apparent reason, and tantrums on the floor.” Variations in target behaviors and their definitions makes it difficult to get accurate estimates of the changing rates of these various behaviors over the years. A second problem is that in listing different topographies, such as is illustrated above, without integrating the information, it is not clear how often problem behavior actually occurs. For example, in Dr. Jones’s report, he reports the following rates in the school setting: Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 16 Harm to self: 1 to 10 times a day. Harm to other: 1 to 10 times a day…1 to 6 times a week. Disruptive behavior: 1 to 10 times a day…1 to 6 times a week. Not withstanding the ambiguity of suggesting that a behavior that is reported to occur at least once a day is also occurring at least once a day, a mathematical impossibility, it is also unclear with these event can occur during a single “Tantrum,” or whether these behavior occur separately. That is, can harm to self and harm to others happen as part of an episode of disruptive behavior, i.e., a Tantrum, or do they always occur separately. Finally, the way school/classroom staff track and record behavior is not consistent with the how these behavior are targeted and defined on the behavior plan. Dr. Jones’s report does not make any particular recommendations regarding data recording. The school’s plan dated April, 2003 lists harm to other, disruptive behavior and property damage as the targets and vaguely says that for interfering behaviors, that they “…will be tracked via a weekly survey, provide that interfering behaviors remain stable or continue to decrease. If behaviors are reported to increase for more than a two week period, tracking and reporting will increase to daily until behavior re-stabilizes and then return to the weekly survey method. Even so, the behaviors for which data are being collected by Mid-County School, as list above, from physical aggression to scratching his back on the floor, don’t even include harm to self, disruptive behavior or property damage. Therefore, these rates can’t be compared against the baseline rates established in the plan and, at least to that extent, suggests that Dr. Jones’s assessment has not been taken on board. As there have been various definitions and formulations of Mike’s behavior problems over the years, so there have been various proposals on how to solve these problems. These previous proposals are summarized as follows: Dates Agency Document Intervention Plan 3/00 Harvest Valley Special Ed. Plan Redirect and if he is going to hit, give him a “high five” and ask him to show them what he wants. 9/00 Fremont School Behavior Plan Physical Aggression: remove from classroom. Call Parents to take him home. Yelling/Screaming: Tell him to stop by the count of ten; redirect Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 17 him with books or other materials; if he continues, time-out and returns to classroom when he stops yelling. Throwing self on floor: “It’s time to stop, what do you want?; Told to get at count of ten, take by hand to stand him up; redirect him with books or other materials; stay with him until he complies. Positive Reinforcement: Verbal praise; high five (not otherwise detailed or specified). 10/01 Cleveland Beh. Assessment Differential reinforcement of appropriate behavior, combined with extinction and planned ignoring, and teach him replacement skills using discrete trial training techniques. 11/02 PBC Beh. Int. Plan Prevention: Reinforcement sampling; ubiquitous use of PECS system; high density of behavior specific praise (e.g., good sitting); visual schedules through out day; visual timers and verbal countdowns when access to preferred item is to be restricted; identify break area in the classroom; a separate room for completing follow through with demand tasks during Tantrums; Frequent opportunities to ask for bread and granting them when asked vocally or through PECS; Practice situations for making requests when they will not be restricted. Procedures when Tantrums Occur: Planned ignoring combined with redirection; if disruptive to regular education, escort to planned area and present demand; after he follows instruction for 3-minutes, prompt to use break card; “if he throws items, a restitution procedure will be implemented before he is granted access to a break. For example, staff will use graduated guidance…to prompt him to restore the environment to its original state”; breaks will be limited to 3-minutes. Reinforcement Schedule; All functionally equivalent alternative responses should be reinforced on a continuous reinforcement schedule until objectives have been reached and then thinned to intermittent reinforcement schedule. 3/03 Sam Jones, Ph.D. FAA Small setting, staff trained in autism, gradual introduction to mainstream as he is able to benefit; carryout neurological review; use of common communication system across setting which he can learn to use without prompting; data collection of staff device for social interactions; collect data of independent vs. prompted work & associated occurrence of “interfering” behavior; incorporation of Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 18 consistent strategies (unspecified) that address his difficulty with change; setting up social situations for him to interact in a more structured manner with peers, e.g., with a brief structured game; review of behavior plan in four to six weeks. 4/03 Harvest Valley Pos. Beh. Int. Plan General Strategies: Provide frequent and immediate access to various “rewarding” events; Easily recognized and identified transition times; Require common communication. Schedules of reinforcement: Increased level of Tantrums, reinforce every few minutes or even once a minute; the density of reinforcement should be almost twice a frequent as the Tantrum behavior. Strategies for building adaptive and social behavior: Countdowns for transitions and end of preferred activities; Staff should take a “check in” approach rather than staying by his side to reduce his need for their close proximity, gradually increasing the time and distance away from him; “Rewarding him for saying “I want a bread” or making similar requests; Get him involved in social interactions with peers, beginning, for example, with exchange of preferred items. Managing interfering behaviors: Behavioral momentum, i.e., preceding requests to engage in non-preferred activities with several requests with high compliance histories; Interspersed requests, i.e., alternating more preferred with less preferred activities; positive practice, i.e., when an interfering behavior occurs, practice an incompatible behavior a number of times, using verbal rewards; One Minute Manager, i.e., a brief script for getting into close proximity and providing him with a specific verbal request to engage in an incompatible behavior, using praise; hair pulling: use prescribed physical management techniques. There are a number of observations that can be made about these previous plans. First, there is no doubt that they have become more comprehensive and sophisticated, as simpler plans have proved not to solve the problems identified. Second., more typically than not, there is not sufficient detail for staff to understand the exact specifics they are supposed to follow. For example, Dr. Jones’s recommendation to incorporate consistent strategies to address Mike’s difficulty with change, without specifying the specifics of those strategies, leaves staff on their own for figuring this out. Third, the lack of specificity, either in the plans themselves or in other documents, as might be provided in procedural protocols, makes it impossible to carry out quality checks to determine if staff are in fact being consistent in implementing the behavioral component of the IEP. Fourth, none of the plans call for such quality checks for determining whether a lack of progress is a function of inconsistent implementation of the plan or the ineffectiveness of the specific Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 19 strategies that comprise the plan. There is a total lack of data in the files regarding quality checks and staff consistency in the implementation of the behavioral procedures incorporated into the IEP. Fifth, none of the schedules of reinforcement recommended over the years have been well designed. Even with more specificity and even with consistent implementation, they are not likely to have improved Mike’s Tantrum behavior and Physical Aggression. For example, in the last plan dated April 3, 2003, the schedules are structured in such a way the a high rate of Tantrum behavior results in a density of reinforcement and a low rate of this behavior results in a low density of reinforcement. This, even if consistently implemented, would be likely to reinforce and result in a higher rate of Tantrum behavior. The likelihood of this is not addressed in the plan, nor safeguards against it described. C. Antecedent Analysis. In an antecedent analysis, one tries to identify the events, situations and circumstances that set the occasion for a higher likelihood of the behavior and those that set the occasion for a lower likelihood. Further, in both categories, one tries to identify both the more distant setting events and the more immediate triggers that influence the likelihood of the behavior. Below is firstly an analysis of those setting events and triggers, i.e., those antecedents, that increase the likelihood of Tantrums and their escalation and secondly an analysis of those that decrease the likelihood. Substantiating examples substantiating, based on actual incidents, are also included. A number of antecedents can be identified which increase the likelihood of Tantrum behavior. These include unexpected or undesired outcomes, such as when he loses a computer game, placing demands on him to do things that he doesn’t want to do, for example, to complete a worksheet at school, requiring him to stop certain activities before he is finished, especially those that have a ritual, almost compulsive quality to them, such as his playing with water in the bathroom, taking off his shoes and putting them away when he enters his home, getting out of his seat and running around the classroom, or playing with the computer, transitions (such as moving from an activity in the classroom to one outside), adults directing their attention away from him, people not understanding or not complying with his request for help or for something else, changes in routine, finding things out of place, being required to wear anything other than the narrow range of clothing he insists on, and having to wait for something he wants. A setting event that increases the likelihood of Tantrum behavior is physical discomfort, such as occurred in April, 2002 when he was experiencing skin itchiness. Also, once he has had a Tantrum earlier in the day, he is more likely to have one later that day. Further, if supported by unfamiliar staff he is more likely to exhibit Tantrum behavior. Finally, his longterm, one-to-one aide in school, or for that matter, any supervising adult, not being by his side giving him frequent prompting, is a setting event or, on occasion, even a trigger for making Tantrum behavior more likely to occur. Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 20 There are a number of illustrations of such antecedents. I had the opportunity to observe one of these triggers myself when, as described above, during my home observation he lost a computer game he was playing, which event immediately triggered a Tantrum. In school, it has been reported that he falls on the floor and Tantrums when the paper towel dispenser is empty (“he will not accept paper towels from any other source.” On September 7. 2001, Mike exhibited Tantrum behavior “…the first day that Linda (unfamiliar staff) was covering for Jerry (familiar staff). During Dr. Gales observation in the school, While Mike was writing letters, his aide left his side to introduce himself. Within 15-seconds, Mike “…threw himself out of his chair onto the floor and began to wail.” On another occasion, Dr. Jones reported observing Mike being prompted by his aide to finish his work for five more minutes and then it would be time to go to P.E. However, two minutes later, “…the phone rang and the teacher was informed that Mike would be tested this morning, Jerry prepared to take him which was followed by an immediate and extreme reaction by Mike who began to scream and flail his body…” This is an example of where unannounced and unprepared changes in expected routines or activities can trigger Tantrum behavior. While these antecedents predictably increase the likelihood of Tantrum behavior, there are also a number that decrease the likelihood. These include giving him what he is asking for, not interrupting him, explaining things to him before hand, offering to help him with a problem he is having, and giving him an option. Providing him with a visual orientation as to what is going to happen is also associated with a lower likelihood of Tantrum behavior. Low likelihood setting events include having his aide in close proximity, providing him with necessary prompts to continue with the assigned activity as is being in good health and not having any physical discomfort. D. Consequence Analysis. As described above in the History of the Problem section, a number of attempts to solve the problem using consequences, both with intent to reinforce better behavior and to discourage inappropriate behavior, have been tried over the years. Not only have these strategies not solved the problem, on occasion, for example, when forced responding (“restitution procedure”) was used, they may have exacerbated the problem. Also, as described above, this may be due to the lack of specificity in procedural design, the lack of systems to assure consistency, and the poor design of these strategies. That is, with the current recommendation in place to increase the density of reinforcement when he is exhibiting high rates of problem behavior and to lower the density of reinforcement when he is exhibiting low rates of problem, my concern would be that if there were consistency in implementing this strategy, it is likely that contingent reinforcement will lead to an increase in the rate of problem behavior. Reactions to and consequences for his problem behavior and for alternative responses has varied over time and across and within settings, including both home Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 21 and school settings. Further, the reactions and consequences have been and are, to this day, both planned and unplanned. In addition to the planned consequences described above under History, further reactions and consequences include taking him outside (as his aide will do in school), prompting him to calm down, e.g., “Your OK,” encouraging him to communicate what he wants using PECS, distracting him with something he enjoys, such as the harmonica, giving him his Game Boy, “timeout” (i.e., bringing him and having him stay outside the classroom until he has calmed down), and taking him into bathroom and wiping his face with a face cloth (as his dad sometimes does at home). Prompting and guiding him through a problem solving process, such as PEAK staff did when I observed his Tantrum at home when he lost the computer game he was playing, is also used. At school, the plan has also included calling his father to come and take remove him from school as a consequence for his Tantrum behavior. While these strategies, as planned or unplanned and consistent or inconsistent as they may have been, may not have produced lasting change in the frequency of occurrence of Tantrum behavior, they have often tended to resolve the events with lower episodic severity, i.e., quicker resolution and resolution without or with only minor physical aggression. Proprioceptive feedback may also act to resolve a situation, as Dr. Jones reported in his assessment. On the other hand, other reactions and consequences tend to escalate the situation to higher levels of episodic severity. These include having him restore the environment, verbal reprimands, direct physical intervention, for example, when he is pulling someone’s hair, and planned ignoring. In spite of the lack of good design in the reinforcement procedures that have been attempted in the past to influence the frequency of his problem behavior and the lack of any encouraging results to date, there is evidence that he will work for access to some preferred events. For example, when his piano teacher tried to motivate him to work for candy, he was not willing. On the other hand, when he was asked to work in order to get access to Game Boy, he was willing to put significant effort into his piano lesson. The right events made available in the right format might very well motivate the desired change in his behavior. In the pattern of Mike’s behavior, one can see obvious suggestions of the what may be contributing to the maintenance of these problems. These include the acquisition of desired things, like Game Boy and computer access, and escape, e.g., from the classroom and other demand situations. Such interpretations of his behavior are common across virtually all of the assessments that have been carried out over the years. For example: March 7, 2003: Looking at factors triggering behavior, it appears that there are four motivational factors: 1. Desire for social attention, occasional desire for tangible rewards; 2. Attempt to escape Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 22 from unpleasant tasks; 3. Sensory stimulation /reinforcement; 4. Schedule changes. November 12, 2002: To escape a demand situation or gain access to a preferred item. October 8, 2001: Remaining in the same activity; avoid transition (i.e., escape behavior); or obtain a desired item. However, as discussed in the Impressions and Analysis of Meaning section below, I believe his Tantrum behavior require a deeper and more complex understanding. D. Ecological Analysis. There are a number of ways in which understanding the surrounding ecology, and how it may conflict with Mike's needs and characteristics, may be helpful in understanding the meaning of his behavior and in understanding the ecological changes that may be necessary to provide the necessary support for him. The brief discussion addressing this ecological analysis is presented below. First and foremost is the absence of a well informed, well designed, consistently implemented, positive behavioral support plan, coordinated across his home, school and community settings. Mike needs such a support plan. Among other things, such a plan would emphasize a positive approach, with the role of reactive strategies explicitly being aimed at reducing episodic severity, while the proactive strategies, especially focused support strategies, would be aimed at reducing future occurrences. Further, more attention should be paid to the specific definitions of the target behaviors that are being addressed and the accuracy and reliability of the data being collected and summarized with regards to those target behaviors, specifically regarding target behavior occurrence and episodic severity. While one reason for the current misfit may be that the professionals capable of designing such a plan have not been identified (note the poorly designed reinforcement strategies described above), another lack may be the need for a “single-team” approach facilitated by a single qualified team coordinator. In addition to the need for a well designed, positive behavioral support plan, there is need for a formal plan specifying the objectives of the inclusion opportunities he has, and the specific methods to achieve those objectives. For example, the Math classroom, which is one of the inclusion possibilities that Mike has, involves him, at least on the day that I observed, in an activity, isolated from the other students. Mike’s biggest need is to have the opportunity to develop his social and communication skills. While academic skills can be developed through other modes, e.g., computer assisted instruction, tutoring, etc., the inclusion opportunities he has in the school should emphasize the teaching of interaction, cooperation, and Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 23 communication skills. If a proper inclusion plan cannot be developed without it, outside consultation should be sought. While these environmental conflicts need to be addressed, there are a number of aspects of the current ecology that should be pointed to as being particularly matched to Mike’s needs and characteristics. These include Jerry Pitman, his instructional aide of long standing, who has a strong and positive relationship with him and who seems open to following whatever changes in Mike’s IEP may be made. Second, the PECS (Picture Exchange Communication System) is well suited to Mike’s strengths in the visual modality. Its beneficial influence was mentioned by virtually every body I talked with, including his parents, who have received formal PECS training, his in-home staff from PEAK, and, most notably, his instructional aide and teacher from school. Finally, the use of discrete trial teaching procedures has been used at both home and school and to the extent that it is used, helps Mike focus on the relevant information concerned with the particular lesson plan being implemented at any given time. E. Impressions and Analysis of Meaning. In considering this functional analysis and the background information summarized above, there are a number of factors that are helpful in trying to understand the meaning of Mike's behavior. Firstly is the very obvious movement disturbance that makes so much of his behavior largely non-volitional. This also explains his dependency on the close proximity of Mr. Pitman, his instructional aide in the classroom. Mike’s non-performance of the assigned task and the increased likelihood of his Tantrums and other problem behaviors when Mr. Pitman moves away, appears to be a spoiled child’s demands for constant attention. Rather, with an impaired ability to be in control of his own behavior, due to his movement disturbance, he is quite literally dependent on Mr. Pitman to mediate his behavior. Accordingly, he in all likelihood becomes highly anxious, leading to Tantrum behavior. Being more a function of the neurological influence of his movement disturbance than of his volitional intent to acquire something or avoid something, such behaviors are more easily influenced by the introduction of a stimulus that can is capable of intruding and, in a sense, trumping the neurological imperative that is driving the behavior. This may be why removing him from the classroom at certain times and wiping his face with a wet washcloth may act to resolve a Tantrum. The stimulus conditions that activated the movement disturbance are replaced by alternative stimulus conditions that set the occasion for alternative responses. Further, while for many children, such “consequences” may have aversive qualities, leading to a reduction in future responding due to a punishing effect and to an escalation in episodic severity as a result of escape and avoidance behaviors, for Mike, these types of events tend to resolve the situation. The same effect is seen when his Tantrum behavior is disrupted by introducing Game Boy or other preferred events. In either case, Mike is probably happy that someone has controlled his behavior as he is not able to at those times. Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 24 This is not to say that at times Tantrum behavior, as with any child, may not be influence by Mike’s motivation to acquire or escape something, such as when you don’t stop when he is in the car and tells you he needs to go to the bathroom, but I do not believe such motivations are typically independent of the movement disturbance influence described above. Similarly, while frustration and failure can trigger Tantrum behavior in the typically developing child, in Mike’s case, they often conflict with the behavioral sequencing and patterns set in motion by his movement disturbance, as are his “rituals,” that, when he is unable complete them lead to the anxiety that underlies his behavior. MOTIVATIONAL ANALYSIS A motivational analysis was carried out to identify those events, opportunities and activities that Mike enjoys and that may be used to enhance his quality of life and provide him with incentives to improve his behavior and to enhance his academic progress. The results of the analysis showed a number of events that could be used effectively as positive reinforcement in a well designed support plan to reduce the identified behavior problems. These events include, but are not limited to certain food and drink treats (such as fruit roll-ups, apple juice, with a juicy juice straw, and yogurt), being on the computer and playing computer games, playing game boy, watching Barney on TV, riding his tricycle, going for car rides, going to the water park, riding the roller coaster (at Disneyland and Knottsberry Farm), and keeping things tidy. These reinforcers, and others, should be used in a variety of ways, the least of which would be through the contingencies of formal reinforcement schedules. MEDIATOR ANALYSIS A "Mediator Analysis" was conducted for the purposes of identifying those persons who might be responsible for providing behavioral support for Mike, their abilities to carry out the recommended support plan, given the demands on time, energy, and the constraints imposed by the specific settings, and motivation and interest in implementing behavioral services as recommended. This analysis showed that there are a number of significant mediator issues that may prevent a successful attempt to address Mike’s challenging behavior and to maximize the benefit he can receive from his education. The first is an apparent lack of expertise and leadership, in the design of positive behavioral support plans, in setting up the systems required for their consistent implementation and in coordinating a plan across settings. Examples of the basis for this conclusion include the poor and sometimes counter-productive design of reinforcement procedures and the use of preferred events to motivate and influence change; the lack of concordance between the identified target behaviors in the formal plans and the data that are being collected; and the lack of any systems to assure and document that the Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 25 procedures recommended in a plan are, in fact, being implemented consistently and are coordinated across settings. The second barrier is the adversarial relationship between Mike’s parents and school district personnel. The adversarial nature of this relationship is only partly evidenced by the inches of back and forth correspondence between the two. However, in my interviews with the school, I felt that they had some points of concern that they felt the parents were not acknowledging. For example, I found that school district staff were in support of maximizing inclusion opportunities for Mike but felt that he wasn’t benefiting from them and that a different approach was necessary. As described above, I feel this is a legitimate concern, as, from what I observed, he wasn’t benefiting, either academically nor in terms of socialization and developing language and communication skills, in his inclusive math class. I also got the sense that school district personnel felt that the parents were unending in their demands for ever more assessment and the expansion of services for Mike. It is understandable that parents would want everything possible for their child. Further, I believe that if the following plan is adopted by the school district, everybody, including Mike’s parent would put 100% of their effort into its implementation and the need for further assessments and the inclusion of additional services could be considered as part of a formal annual review facilitated by the agreed upon coordinator of the team, with the input of the various team members, including Mike’s parents. For Mike to benefit, it is necessary for the adversarial conflicts between the parents and the school to stop and for everybody to work in a coordinated approach to his education and behavioral support. RECOMMENDED SUPPORT PLAN A. Long-Range Goal. The long-range goal for Mike is to establish enough self control over his behavior that he will be able to live and work in the least restrictive setting possible that is capable of meeting his developmental and behavioral needs. The goal of his educational plan is to provide him with the academic and other skills necessary to meet his needs, while eliminating those behaviors that tend to stigmatize and isolate him from full community and social presence and participation. Additionally, the goal is to transfer the control of Mike's behavior from external mediators (parents and staff) to internally generated controls. The plans and objectives presented in the following paragraphs are intended to increase the likelihood that the following specific outcomes will occur: 1. That Mike will learn the appropriate social rules of home, school and society, to the extent that his behavioral excesses and deficits will not be a barrier to his full participation in life and the enjoyment of life that every child should have, as a valuable member of his school and of his wider community. Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 26 2. That Mike will have friends whom he enjoys and with whom he enjoys doing things. 3. That Mike will learn to fully communicate his wants, needs, thoughts and feelings. 4. That Mike will be able to live out his childhood with his family, as the loved son he is now, until such time that as an adult he is ready to venture forth in life as an adult, ready to live in his own home and ready to earn money in a real job. B. Operational Definition(s). 1. Tantrums: a. Topography. Tantrum include yelling, screaming and/or crying; throwing himself on the floor; while on the floor, physical aggression, i.e., kicking, grabbing, scratching, biting, choking and/or hitting at people or pulling their hair; banging his own head with his hands or against a hard surface, and/or knocking objects off table and/or throwing them. b. Measurement Criteria. 1) Occurrence Measure (Cycle: Onset/Offset). A Tantrum is considered to have begun with the occurrence of any of the above topographies and is considered over with their absence for 15 consecutive minutes. 2) Episodic Severity Measure(s). The severity of an episode of Tantrum behavior can be quantified in two ways. The first is by the duration of the event. The second is through the use of a severity scale, as follows: Level 1 – The Tantrum includes one or more of the above topographies, excluding physical aggression. Level 2 - The Tantrum includes two or more of the above topographies, including physical aggression towards and adult. Level 3 - The Tantrum includes two or more of the above topographies, including physical aggression towards another child. Level 4 - The Tantrum results in someone being injured requiring first aide or medical attention. Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 27 2. Physical Aggression: Physical Aggression can and sometimes does occur independent of a Tantrum as described above. a. Topography. This includes kicking, grabbing, scratching, biting, choking and/or hitting at people or pulling their hair. b. Measurement Criteria. 1. Occurrence Measure (Cycle: Onset/Offset). An episode of Physical Aggression, alone, is considered to have begun upon the appearance of kicking, grabbing, scratching, biting, choking and/or hitting at people or pulling their hair, separated by at least 15-minutes, from the other topographies included in the definition of Tantrums above. 2. Episodic Severity Measure(s). Level 1 - Physical aggression towards and adult. Level 2 - Physical aggression towards another child. Level 3 - The Physical Aggression results in the need for first aide. Level 4 – The Physical Aggression results in the need for medical attention. C. Short Term Measurable Objectives. The following objectives and plans are suggested on the assumption that Mike has the opportunity to have a comprehensive plan of support, fully coordinated across home, school and community settings. It is unlikely that they would be realistic if he did not have this opportunity. These objectives were also selected as being most reflective of Mike's priority needs and as being the most realistic given his level of functioning at this time. Further objectives may be established as a function of the success or failure of the recommended strategies. 1. Tantrums. a. Reductions in Behavior Over time. To reduce the occurrence of Tantrums from the current estimated rate of five a day, with a range of from one to ten Tantrums a day, across all settings, to a rate of three a day, with a range of one to five a day, within three months of the full and consistent implementation of the focus support strategies below, and to rate of one a month within twelve months. b. Reductions in Episodic Severity. Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 28 1) To reduce the duration of a Tantrum from the current estimated average of 20-minutes, with a range of from 5-minutes to 45-minutes, to an average of less than 5-minutes with a range of from one to 10-minutes, upon the full and consistent implementation of the reactive strategies recommended below, and to a maximum of two minutes within a year. 2) To reduce the average severity rating of Tantrums from the current estimated level of 2, with a range of from 1 to 3, to no more than 1, upon the full and consistent implementation of the focused support and reactive strategies recommended below. 2. Physical Aggression. a. Reductions in Behavior Over Time. To carry out a formal baseline for Physical Aggression to determine how often it occurs independent of a Tantrum and to reduce its occurrence by 50%, within three months of the full and consistent implementation of the focus support strategies below, and to rate of no more than once every three months within a year. b. Reductions in Episodic Severity. To carry out a formal baseline for Physical Aggression to determine its Episodic Severity when it occurs independent of a Tantrum and to reduce the average severity rating of Physical Aggression from the current estimated level of more than 1 to no more than 1, upon the full and consistent implementation of the focused support and reactive strategies recommended below. D. Observation and Data Collection Procedures. 1. Methods. a. Tantrums. A formal data sheet should be available for each day. It should include the formal definition of Tantrums, as defined above, and a place to enter the start and stop time of each Tantrum that occurs, the total duration, and the Level of episodic severity. A Primary Observer should be assigned for each hour of the day, whether at home, school or in the community. When a Tantrum occurs, the details regarding time and severity should be entered on the form, within 15-minutes of its resolution. Rate and episodic severity data should be summarized on a weekly graph by the appointed Team Coordinator. In addition, using a revolving hour method in both the home and school, a full “ABC” sheet should be filled out for the first Tantrum, if any, that occurs Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 29 for the identified hour for the day. For example, if the hour for Monday in school is from 9 to 10 AM, then the first Tantrum that occurs during that hour, if any, would be detailed with the information listed below. On Tuesday, the identified hour would be from 10 to 11 AM and so on, until the last hour of the school day is the identified hour. On the following day, the first hour of the school day would be the identified hour. If a Tantrum occurs during the identified hour, the Primary Observer should record the following on a prepared form: 1) Date of occurrence. 2) Time of episode start and stop and total duration. 3) Each topography that occurred, specifically coding the individual topographies and sub-topographies observed during the episode, including crying and screaming, physical aggression, self-injurious behavior and knocking over or throwing items. Other significant behaviors that occurred during the Tantrum should also be recorded. 4) The people present and/or involved in the incident. 5) The activity at the time of occurrence. 6) The setting in which the behavior occurred. 7) The events (antecedents) immediately preceding each occurrence. This should include environmental events and the closest verbatim record possible of the conversation leading up to the event, including an assessment of the tone and content of the conversation. 8) The consequences or reactions of people, following the behavior, including the use of physical management. 9) For each Tantrum, the assigned person should score it on a four point scale of severity, as described above 10) If property damage occurred, the nature and extent of the damage, with a $ estimate of repair and replacement. 11) Impressions regarding the behavior and its occurrence. For those events that required physical restraint, this information Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 30 should be based on a debriefing session held within 24-hours following the event, attended by everybody present during any of the episode or during the time leading up to the episode. b. Physical Aggression. For each and every occurrence of Physical Aggression that occurs, independent of a Tantrum a similar “ABC” sheet should be filled out, with the exception of item “10” above, which would qualify it as a Tantrum. Rate and episodic severity data should be summarized on a weekly graph by the appointed Team Coordinator. 2. Observational Reliability. a. Tantrums. In school, secondary observer should also be assigned and that person should independently record observed tantrums on the prepared form, excluding the use of the “ABC” sheet described above. The Team Coordinator should carry out weekly phone interviews with parents and in-home staff and note their solicited reports concerning the occurrence of Tantrums. Monthly, secondary records and interview reports should be compared to the primary data sheets to determine the degree of agreement. That is, an index of reliability should be calculated by dividing the number of agreements by the number of agreements plus disagreements and multiplying by 100. This monthly calculation should be documented in a formal log and if the index of reliability is less than .80 a plan of corrective action should be indicated and taken. b. Physical Aggression. Same as above. E. Recommended Strategies. In the following paragraphs, a summary of possible strategies to support Mike is presented. These are by no means meant to be comprehensive or exclusive of other procedures. They simply represent a set of starting points that would be elaborated and modified as services are provided. Support is organized around four primary themes: Ecological Strategies, Positive Programming Strategies, Focused Support Strategies, and Reactive Strategies. 1. Ecological Strategies. Many behavior problems are a reflection of conflicts between the individual needs of a person and the environmental or interpersonal context in which the person must live, go to work or otherwise behave. As part of the above evaluation, several possible contextual (ecological) conflicts were identified. It is possible, that by altering these contextual conflicts, that Mike's behavior may change and his progress may improve, thus eliminating the need for consequential strategies. In the following paragraphs, a number "Ecological Manipulations" are presented with the intention of providing a better mesh between Mike's needs and the environments in which he must behave: Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 31 a. There are a number of things that are important for Mike’s success that are already in place and these should be continued. The include the use of PECS as part of his two-way communication systems with those around him, the use of discrete trial teaching techniques in both the school and home and the presence of in home services, currently being provided by PEAK. b. Word/picture sequences should be used as much as possible to communicate expectations to Mike. This should go beyond merely portraying his daily schedule through a sequence of word/pictures, to which he should be oriented at the beginning of each day and at each transition. They should also be used to orient him to the content of each new activity in which he is going to engage. For example, before going to his inclusion session for math, he can be shown a sequence of word pictures that show him where he is going, who will be present, where he and everybody else will be, or how they might move around, what is going to happen, what he is going to do, etc. Social stories should also be used to show him, in imagery, what interpersonal conflicts he might encounter and how he should behave under these circumstances. Social stories should be used as part of the discrete trial methodology, as described below under Positive Programming. c. As indicated above, one of the most glaring things missing from Mike’s life is the support of a collaborating, cooperative, coordinated support team to work with him in school, at home and in the community. If Mike is to succeed in life, the development of such a coordinated approach in imperative. Therefore, I recommend that a Team Coordinator be appointed. This person should have the confidence and pledge of support from parents, school and the external agencies currently providing support to Mike and home and in school. Among other things, this person should have the ability to take the leadership responsibility for implementing all of the aspects of this recommended plan of support. If such a person cannot be identified among current staff and professionals, an external consultant should be hired to fill this role. My recommendation for the person to fit that role would be Jackie Leigh, M.A., a psychologist with the Whittier School District. Ms. Leigh is an outstanding professional who is more than competent in developing and implementing positive behavioral support plans. I believe she would be acceptable to Mr. and Mrs. Chow and, in fact, the Mid-County School District in fact recommended her to the family as someone who might have performed the functional assessment. d. Both parents and school expressed a desire for a more productive inclusion plan for Mike. Toward this end, I would recommend that the school seek an outside consultant to develop a formal inclusion plan, based on input from both school and parents. The emphasis, of the inclusion plan, as part of Mike’s IEP, should be on social opportunities and development rather than on passive presence in an inclusion setting. Perhaps it is fortuitous that arguably the nation’s pre-eminent expert on inclusion, Dr. Mary Falvey, a professor at California Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 32 State University, Los Angeles. I recommend that the school district contract with Dr. Falvey to consult on the development of a proper inclusion plan for Mike that would maximize the opportunities he has for inclusion, both in terms of the percentage of the day in which he is in inclusive classroom and in terms of maximizing Mike’s educational outcomes, especially with regards to social and communication skills. Ms. Leigh is also qualified to fill this role and can seek consultation from Dr. Falvey, if necessary. e. Academic growth can be emphasized elsewhere on the IEP, and for that matter, at home. For example, Mike is very comfortable and enjoys working on the computer. As an instructional medium, the computer should be maximized. His IEP, home plan, and inclusion plan can focus on generalization of these academic skills and social interaction with peers who are not disabled. f. At school, staff should discontinue the current schedules of reinforcement in which reinforcement density is a function of the frequency of problem behavior, in which a higher rate of problem behavior produces a higher density of reinforcement. Rather, a time-based schedule of preferred event should be developed which provides for a preferred event, such as five- minutes with Game Boy, having a Juicy Juice, etc., on the average of every half-hour, regardless of behavior. To just stop the current schedules would lead to a overall reduction in reinforcement density that could increase problems behavior. Further, research has shown that time-based delivery of preferred events is associated with lower rates of problem behavior. 2. Positive Programming. Challenging behavior frequently occurs in settings that lack the opportunities for and instruction in adaptive, age-appropriate behavior. It is our assertion that environments that provide instruction to promote the development of functional academic, domestic, vocational, recreational, and general community skills is procedurally important in our efforts to support people who have challenging behavior. To the extent that Mike exhibits a rich repertoire of appropriate behaviors that are incompatible with undesired behavior, the latter should be less likely to occur. Positive programming, therefore, should not only result in developing Mike's functional skills, but also contribute to reducing the occurrence of problematic behavior. At the very least, a context of positive programming should make it feasible to effectively and directly address Mike's Tantrum behavior and Physical Aggression. In the following paragraphs, several initial thrusts for positive programming are presented: a. General Skills a.1. Recreational Domain. Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 33 1) Rationale/Logic. While not intended to replace the instructional objectives established for him in his IEP or in his in-home program, the recommendation that follows is being made because it addresses a particular need that Mike has, i.e., how to socialize appropriately with his non-disabled peers, within the context of an activity that he enjoys. 2) Objective. Given the proximity of a familiar, non-disabled peer in a known free-time/recreational and leisure time area, with the Candy Land game visible and available on a table top, Mike will, within 5-minutes of entering the area and being told to relax and enjoy himself, address his peer by name, ask him to play a game of Candy Land with him, play the game from beginning to end, appropriately taking turns and following the rules, and thank him for playing with him when they finish, saying “good game,” whether he wins or loses. Mike will be able to do all of this without prompting and without exhibiting Tantrum behavior or Physical Aggression, five out of five times, by December, 2004. (A similar objective should be established for his home program in which he invites a cousin or neighborhood friend to play “Game Boy” with him. 3) Method. Discrete trial teaching procedures should be employed, with each game considered to be a trial. Global chaining, whole task presentation should be used, with prompt/prompt fading being used throughout. Each trial should be prepped with a “social story,” which shows the conditions being established, Mike asking his friend to play, the children playing, the game ending, Mike saying “good game,” and then his enjoying a Juicy Juice or a yogurt in the presence of his one-to-one aide. This conclusion should be way every successful trial ends. Prompt fading should occur in phases. In the first phase, the necessary verbal, gestural, model or physical prompts should be used and then faded to assure that Mike can play the game while taking turns and following the rules in response to natural cues only. In the second phase, the verbal prompting for him to ask his friend to play and to say “good game” at the end, should be faded to assure that Mike can say these things given the natural cues only. In the third phase, Staff should gradually move their proximity until they are able to remain in but at the opposite end of the room from the children, as they play successfully, in response to the natural cues only. In the final phase, the Social Story set up should be faded back in time, initially in five-minute increments, until it is not longer necessary. a.2. Community Domain. 1) Rationale/Logic. The following is recommended for the reasons described above and to give him greater control and autonomy over accessing his own reinforcers. 2) Objective. By June 30, 2004, when brought to a convenience store during a slow time of day, given a one dollar bill and invited to go in to buy himself a Juicy Juice, Mike will enter the store, find the Juicy Juice, Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 34 take it to the checkout counter, pay for the item and leave the store with both the item and the correct change, without error, without problem behavior and with staff or parent simply waiting for him outside, within five-minutes of the request. 3) Method. I recommend that this skill be taught using a discrete trial, whole task, global chaining methodology, with the opportunity to eat the drink the Juicy Juice being the operative positive reinforcement for the correct response b. Teaching Functionally Equivalent Skills. People engage in seriously challenging behaviors for perfectly legitimate reasons. They use these behaviors to communicate important messages, to assert themselves, to manage unpleasant emotions, to escape unpleasant events, and to gain access to events and activities. One important strategy for helping people overcome their challenging behaviors is to provide them with alternative ways of achieving the same objectives, alternative ways of satisfying their needs. These alternatives are defined as functionally equivalent skills because they achieve the same goal as the challenging behavior or communicate the same message. 1) Rationale/Logic. The above analysis of Mike's Tantrum behavior concluded, among other things, that it is a strong emotional reaction to having one of his rote routines interrupted. This goes beyond his simply being disappointed. Rather, the underlying autism and its associated movement disorder compels him to engage in these “rituals” and when they are interrupted, his universe can feel like it is falling apart. One example of this is his “need” to answer the telephone when it wrings at home. Rather than engage in Tantrum behavior when this occurs, the objective established here is to teach to respond in a different, more socially acceptable way. 2) Objective. Given ten phone calls at home, and with five being answered by someone other than Mike, he will get the “Barney” tape kept on a shelf within five feet of the phone, put it into the tape player, and watch the tape, without prompting and without Tantrum behavior or Physical Aggression, five out of five times, by August, 2004. c. Method. A similar method should be employed here, with a Social Story set up for each trial and the use of prompt/prompt fading strategies. However, difficulty should initially be kept at a minimum and only gradually increased to the terminal objective. For example, the first four steps of the program might look as follows, keeping in mind that teaching trials should be interspersed with trials in which Mike is allowed to answer the phone when it rings: 1) immediately hands it to Mike. The phone rings, someone else picks it up and Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 35 2) The phone rings, someone else picks it up, says hello, and immediately hands it to Mike. 3) The phone rings, someone else picks it up, says hello, clicks on Barney and immediately hands the phone to Mike. 4) The phone rings, someone else picks it up, says hello, someone prompts Mike to click on Barney and then the person who answered the phone hands it to Mike. 5) The Barney tape plays for longer and longer time periods, just seconds at a time, before Mike is handed the phone, and so on, until objective is met. The “pass” criterion for this program should be five correct trials in a row. The “fail” criterion should be ten trial in a row without a “pass.” In such a case, smaller steps for moving forward should be used. Watching the Barney tape should act as a natural reinforcer for this program, and as such, should be renewed at least once a week, and then alternated randomly with the growing library of tapes. c. Teaching Functionally Related Skills. There are many skills that if learned by the person, may have a direct impact on the person's behavior. For example, a person who is taught the difference between demeaning criticism and well intended feedback, may start acting differently to the feedback he receives from others. The purpose of this category of strategies, again, is to empower the person; to give the person greater skills. In the following paragraphs, key communication skills are identified which are thought to be related to Mike's Tantrum behavior and Physical Aggression. 1) Rationale/Logic. Mike’s most notable skills deficits are in the areas of communication and socialization. In particular, he rarely initiates formal communication, other than to make concrete requests for something he wants. The following is an initial objective aimed at the ultimate goal of Mike spontaneously asking “what,” “when,” “where,” “who” and “why” questions under the appropriate circumstances. Accordingly, this instructional program may very well be implemented by Mike’s speech and language therapist. 2) Objective. When with an adult who has a bag, and when the adult looks into the bag, within 5-seconds, Mike will ask “what’s that?” without prompting, five out of five times, by June 30, 2004. 3) Method. Simple discrete trial, prompt/prompt fading should be used. Initially, verbal prompts should be used, but they should be faded to visual prompts, i.e., the printed words “what’s that,” printed on the bag and then Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 36 gradually faded, letter by letter or by the size of the letters. Towards the end, the size of the bags should be varied and bags and boxes randomly used and alternated. Appropriate pass/fail criteria should be established as a part of the formal lesson plan/protocol. d. Teaching Coping and Tolerance Skills. Many of Mike's seriously challenging behaviors are a reflection of his inability to cope with aversive events such as delay in gratification, denial, the need to perform a non preferred activity, etc. While some of these behaviors can be avoided by some of the ecological and focused support strategies described above, aversive events are also naturally occurring. Especially if he is to lead a full life, from time to time, he will face the disappointments we all have to face, for example, not getting something that he wants, when he wants it and having to wait for it, i.e., delay; not getting something he wants, at all, i.e., denial; being told by somebody that a relationship is not possible; being criticized or reprimanded; etc. In the face of these events and the emotions they understandably arouse, Mike's coping responses have not had the opportunity to develop much beyond the primitive responses of a young child; nor is he likely to develop much beyond this level through "natural consequences." Rather, it will be necessary to be systematic in applying sophisticated instructional technology, with the objective of teaching him these very important coping and tolerance skills. The following is a recommendation for how to proceed in this important area of skill development, with the initial focus being on Mike's ability to cope with and tolerate having his time on the computer interrupted; waiting for Game Boy, once he has asked for it; and being in the presence of a young girl with long hair, with her back turned toward him, without pulling her hair. (For this last area, with her parent’s approval, training can begin with his sister using a wig.) 1) Rationale/Logic. These three situations are known problems for Mike. Teaching him how to cope with them in more socially acceptable ways will be important in their own right. Further, with success, parents and staff will be empowered to address additional area for which Mike needs to develop more socially acceptable coping and tolerance skills. 2) Objectives. a) Given that Mike has been playing on his computer for from five to six minutes without interruption, and given that he has not come to natural end of his computer based activity, when staff or parent interrupts by saying “Mike, may I interrupt please. Would you please (some task that will take less than a minute to perform, over which Mike has known mastery), Mike will, within 30seconds, stop, do what he was asked to do, and return to the computer, without prompting and without Tantrum Behavior or Physical Aggression, five out of five times, by September 30, 2004, at both home and school. Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 37 b) Given the game boy in view and he says he wants to play with it when asked, When asked to please wait while “I finish this up,” Mike will wait for 5-minutes, while the adult finishes their task, without Tantrum Behavior or Physical Aggression, without repeated asking again, and without prompting, five out of five times, by June 30, 2004.. c) Given his engagement in a preferred activity, and with a young girl with long hair standing within 3 feet standing with her back to him for 1-minute, Mike will not reach, grab for or pull her hair, five out of five times by June 30, 2004. 3) Method. The general idea for each of these would be to start small and move slow, with explicit pass/fail criteria established. For example, in teaching him to wait for Game Boy, the initial criteria should only be one second and increased in two second increments when the pass criteria is met, until a whole minute is reached. These program can be based on 5 discrete trials a day, with each trial utilizing a “social story set-up,” and reinforcement being immediately delivered for a correct trial, either natural, e.g., access to Game Box, or extrinsic, e.g., the use of exchangeable tokens for not pulling hair. 3. Focused Support Strategies. Some of the ecological strategies that were recommended above, depending on their complexity and/or difficulty, may take time to arrange, and positive programming will require some time before new skills and competencies are mastered. Although these ecological and positive programming strategies are necessary to produce good long term quality of life outcomes for Mike, it is also necessary to include focused strategies for more rapid effects; hence the inclusion of these strategies in our support plans. Specific recommendations for the limited but important need for rapid effects are made below. a. Differential Reinforcement of Low Rates of Responding, Shifting to Differential Reinforcement of Other Behavior with Progressively Increased Reinforcement (DRL/OP). A progressive schedule of reinforcement should be introduced in an effort to rapid control over Tantrum Behavior and Physical Aggression. Specifically: 1) An exchangeable token should be provided to Mike for each day in which there is less than five occurrences of Tantrum Behavior and Physical Aggression (as defined above), combined. 2) Mike should earn 1-5 exchangeable tokens per day depending on the number of consecutive days he meets the criterion. Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 38 3) Tokens should be accumulated on a concrete, visual device that clearly shows progress to an accumulated 70 tokens. 4) grab out of the grab bag. When 70 tokens have been accumulated, Mike get a 5) The grab bag should have five nicely rapped "surprises" in it, including gift certificates for a trip to the water park, Disneyland, or comparable “payoff.” d. Failure should be responded to with encouragement and an expectation of success the following day. Reprimands should be avoided. e. The pass criterion for moving from a criterion of less than five to a criterion of less than four, and than less than three and so on down to less than one (making it technically a DRO schedule of reinforcement should be five days in a row of meeting the existing criterion for receiving tokens. The fail criterion should be based on a monthly review of the summary graph and be considered to have been met if the behavior is not in a downward trend and a pass criterion has not been met within the prior 30-days. f. This schedule should address Mike’s behavior in both home and school and therefore will require careful and accurate communication and cooperation across settings. i. Distraction Menu and Scripts. With the help of Mr. and Mrs. Chow and his one to one aide at school, who has four years experience working with Mike, his team, with the guidance of the Team Coordinator, should develop a distraction menu that can be used to get Mike back on track if he should start to engage in precursor behavior and scripts for how to manage these situations. For example, currently identified precursors include darting around the room, often away from the supervising adult, grinding his teeth, engaging in stereotypic, repetitive actions, or communicating an unfulfilled need or desire. His darting around the room is likely influenced by his movement disorder. What could be placed on the distraction menu has been suggested by his aide, when he said he often deals with such behavior by guiding Mike outside to go for a walk. While in traditional terms, this may have been done both to remove the distraction from the classroom and to provide what was perhaps looked at as a mild “time-out,” it typically worked effectively as a way of interrupting the behavior without escalating it to a Tantrum or to Physical Aggression. More such strategies can be identified by the team for responding to darting, grinding his teeth, engaging in stereotypic behavior and other identified precursors. Similarly, when he is communicating an unfilled desire or unmet need, or is otherwise expressing frustration, Mr. Chow has found that helping him Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 39 communicate what the problem is and problem solving it with him, typically precludes escalation to Tantrum behavior or Physical Aggression. Accordingly, as above, a formal protocol in the form of a script should be developed for all of his staff for them to follow under these and similar circumstances. ii. Avoid or Minimize Triggers. As identified in the analysis above, there are some predictable triggers for Tantrum Behavior. Some of these include transitions, placing demands on him to do things he doesn’t want to do, requiring him to stop certain activities before he is finished and ready to do so, especially those that have a compulsive quality to them, such as playing with water, and so on. A protocol should be developed that clearly identifies these triggers and those that can be identified through continued assessment. The protocol should provide explicit instructions to staff on how to deal with these triggers. For example, in non-critical circumstances, the procedure might be not to interrupt an activity but rather to wait for him to reach a natural finish, such as when he is playing a game on the computer. Another example is that if he must be interrupted because of an urgent need to move on to another activity or to leave, keeping his movement disorder in mind, a formalized script my be necessary to ease him out of the activity. This may be necessary for a behavior like water play. For example, if it was necessary to leave the house to go to school and Mike is engaged in water play, we might distract him from water play with the game boy, distract him from game boy with Juicy Juice, and then after he has the Juicy Juice, use this to transition to the car to leave. A final example is that all transitions may need to be preceded with a picture sequence that allow him to rehearse in imagery where he is going, what will happen, who he’ll see, etc. I believe that the use of such scripts and picture sequences will dramatically reduce the occurrence of Tantrum behavior and Physical Aggression. 4. Reactive Strategies. Efforts to manage the antecedents to Mike's Tantrum behavior, as described immediately above, are likely to have a considerable impact on the rate of its occurrence, as will the described schedule of reinforcement. However, these behaviors and Physical Aggression are still likely to occur, at least to some degree, especially during the initial stages of the implementation of this support plan, as the necessary adjustments to the plan are identified and made. Therefore, staff and parents may need measures for dealing with these behaviors when they occur. Such reactive strategies have an even more limited role than the focused strategies recommended above. Specifically, reactive strategies are designed to produce the most rapid control over the situation, in a manner that keeps both Mike and staff as free from risks to injury as possible and that keep Mike free from risks of exclusion and devaluation as much as possible. That is, the role of reactive strategy is to rapidly and safely resolve the situation and reduce episodic severity. Accordingly, reactive strategies are not intended to produce any change in the future occurrence of Mike's challenging behavior. Both Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 40 rapid and durable changes, instead, are being sought by the Ecological Strategies, Positive Programming Strategies, and Focused Support Strategies described in the preceding sections. These proactive strategies are also expected to prevent any counter therapeutic effects that might accrue from the nonaversive reactive strategies being recommended here. The following procedures are suggested as initial strategies that fit within IABA's "Emergency Management Guidelines." They, along with other strategies that fall within the guidelines that may be considered in the future, are expected to preclude the need for the physical management of Mike's behavior, including the need for physical restraint or the need to send him home from school. a. Problem Solving ProtocolFor Tantrum behavior, the primary strategy recommended here is to engage Mike in a process of problem solving. This formal protocol should include the following elements. 1. Active listening to identify the problem; 2. When transition out of active listening in appropriate, engaging Mike in a process of problem solving for dealing with the situation; 3. Throughout, encourage communication, including the use of 4. Help Mike meet the need, if appropriate and possible. PECS; and b. Stimulus Change and Redirection/Distraction. If the Tantrum includes or if Mike separately exhibits Physical Aggression, the immediate agenda should be to interrupt the behavior. Fortunately, this is where his obsession with certain objects and activities can be used to advantage. For example, if he is being physically aggressive, it is likely that we can interrupt him by introducing an activity that is totally out of context and that has a powerful attraction to him. Example here might be to say something like: “…you are clearly upset, why don’t we (you) go and play with Game Boy and calm down,” or “play in the sink” “go for a walk” or “watch Barney.” This takes advantage of Mike responsiveness to the environment around him. Distractibility can be used here as a very effective strategy for getting control over a Tantrum or Physical Aggression. For this purpose, Mike's family and staff should brainstorm on what activities/or invitations are most likely to distract him. If the proactive parts of this support plan have been implemented, it should even be possible to distract him with a preferred activity, without producing any countertherapeutic effects, i.e., without reinforcing the problem behavior. Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 41 5. Staff Development and Management Systems. Key elements that will determine the degree of success of this support plan are staff competence and management systems that assures staff consistency in providing services to Mike. The following is recommended: a. Procedural Protocols. Each strategy and procedure described above should be broken down into teachable steps. b. Three tiered Training. 1) Each staff person would be required to show "verbal competence" for each procedure. That is, they would need to describe each and every step in the specific procedure. Each staff would be scored using a "+/O" system for each step of the procedure. A 90% criterion is considered passing. 2) Each person would be required to show "role play competence" for each procedure. That is, they would need to demonstrate each step of a procedure to another member of Mike's support team. The scoring system would be the same as for "verbal competence," as described above. 3) Finally, each staff person would need to demonstrate "invivo" procedural reliability; that is, the ability to carry out each program component of Mike's support plan for which they are responsible.. This would require the designated person to observe each staff person as they provide services and to see the degree to which what they do agrees with the written protocols. The scoring procedure described above would be used again, and 90% consistency should be considered as minimally acceptable. For those procedures that do not occur frequently, such as the need to react to infrequent behavior, role play competence should be reconfirmed on a regular schedule. c. Periodic Service Review. Mike's entire support plan should be operationalized into a series of performance standards to be met by the support team and integrated into a Periodic Service Review. Monthly (initially, weekly) monitoring should be carried out by the designated coordinator and the status of the support plan's implementation should be quantified as a percentage score. This score should be summarized on a graph and kept visible to staff as an incentive to achieve and maintain a score of 85% or better. This should be reviewed regularly by management and feedback should be provided. More information on how to develop and implement a Periodic Service Review system can be provided on request. COMMENTS AND RECOMMENDATIONS Comprehensive Functional Behavior Assessment Report and Support Plan Mike Chow Page 42 1. Revisions are certain to be necessary during the initial stages of implementation and as Mike's responsiveness to this new support plan are observed. Early revisions and fine tuning are necessary in the initial implementation of any support plan, especially one as comprehensive as this one attempts to be. 2. I recommend that Jacki Leigh be considered as both the behavioral and inclusion consultant and act as the facilitator for purposes of forging a coordinated team approach for Mike across all settings and across all services. She would help the team sort out who should take responsibility for all of the above recommendations and be responsible for form quarterly progress reports. A format for quarterly progress reports for comprehensive plans such as this is available on request. Among the areas addressed would be the possible need of further consultations, assessments or services. 3. I remain available to provide assistance and guidance to the school district that clearly holds Mike’s education as a high priority and to his family in there determination to see Mike receive the best education possible. _______________________________________ Gary W. LaVigna, Ph.D., Clinical Director