RCMAR Analysis Core Conference Minutes – Draft #3 June 17, 2014 8:00 A.M. to 9:00 A.M. (Pacific) Call in information is 888 921-8686 (3103120536#) Pin code for moderator: 6769 I. Roll call, availability, and role assignments for next teleconference Name Hays, Ron (UCLA) Kapteyn, Arie (USC) Moore, Mignon (UCLA) Mungas, Dan (UC Davis) Schwartz, Steve (U Wash/U Colorado) Stewart, Anita (UCSF) Templin, Tom (WSU/U Mich) Teresi, Jeanne (Columbia U) Wallace, Steve (UCLA Coord Center) Weech-Maldonado, Rob (Deep South) Facilitator Recorder Present June 17 Yes Yes No Yes Yes No Yes No Yes Yes Available July 15 Yes Yes Yes Yes No No No Yes Yes No Arie Kapteyn Ron Hays Ron Hays Mignon Moore II. Review and approval of minutes from May call The minutes from the May call were approved. They will be forwarded for posting on the password restricted area of the RMCAR web site (http://www.rcmar.ucla.edu/). Use rcmar, rcmar-II (capitol I’s). III. Additional/deletions to agenda Dropped the “Methods of Analysis of Longitudinal Datasets” topic. Ron and Rob asked participants about whether they knew of information about associations of patient evaluations of health care and race/ethnic concordance between health care providers and patients. This issue was raised by someone outside of RCMAR who felt that the Affordable Care Act and value-based purchasing might disadvantage minority providers. Arie noted that Ken Wells mentioned a study in the early 80’s that showed patients in general tended to have negative stereotypes of black doctors manifested in greater distrust of them than white doctors. He also referred Ron to Cleopatra Abdou for suggestions about relevant work. Steve W. noted that Kaiser Northern California has a certification program for providers related to ability to communicate with non-English language patients. Rob suggested that minority providers tend to be more likely to provide care at sites with a higher proportion of minority patients and evaluations of care tend to be less positive by minority patients. Ron suggested we make a list of available webinars/presentation series relevant to our mission, such as http://cmore.med.ucla.edu/ and the VA HSR&D Cyberseminars (cyberseminar@va.gov). Steve W. said we could post this information on the RCMAR measurement website. Page 1 IV. Announcements None. V. Annotated Reference Lists We reviewed the outstanding reference lists to build positive intentions for moving them forward: - Qualitative methods in minority aging research (Mignon Moore, UCLA) - Moderator and Mediator Analyses for Investigating Determinants of Health Disparities (Tom Templin, MCUAAAR) - Measuring and Modeling cognitive function (Dan Mungas, UC Davis) - Online panels (Ron Hays to first draft, cleaned up by Arie Kapteyn, UCLA/USC) - Secondary Datasets on Minority Aging Issues (UAB unnamed scholar) VI. RCMAR Preconference Workshop – 2015 – Use of Well-Being Measures in Minority Aging Research GSA is November 18-22, 2015 (November 18 is the day of the workshop). Arie reiterated Arthur Stone’s commitment to speak. He may ask him to join the next call. Arie indicated that he could speak on the topic of how income related to happiness and life satisfaction. He mentioned that studies do not necessarily show a linear association. Tom referred to positive psychology and meaning and purpose in life concepts. Carol Ryff is listed as a potential speaker to address these issues. Ron mentioned his personal interest in hearing about and perceived importance of how subjective well-being and health-related quality of life intersect and diverge from one another (Anita is listed as the speaker). Steve W. referred to use of well-being measures in national datasets (Jacqui Smith is the listed speaker). Steve also said that NIA really likes written products to come out in association with the workshop and that there is a $1000 in the workshop budget to pay for an RA to help. Page 2 Post Call Details 2014 RCMAR Measurement and Methods Conference Call Assignments Recorder Month January 21 February 18 March 18 April 15 May 20 June 17 July 15 August 19 September 16 October 21 November 18 December 16 Anita Stewart Dan Mungas No March Call Steve Schwartz Tom Templin Ron Hays Mignon Moore Facilitator Rob Weech-Maldonado Anita Stewart No March Call Dan Mungas Rob Weech-Maldonado Arie Kapteyn Ron Hays Summary of 2014 completed conference call participation Name Ron D. Hays Arie Kapteyn Mignon Moore Dan Mungas Steve Schwartz Anita Stewart Tom Templin Rob Weech-Maldonado # Recorder 1 0 0 1 1 1 1 1 # Facilitator 0 1 0 1 0 1 0 1 Total count 1 1 0 2 1 2 1 2 Page 3 Email Addresses Ron D. Hays Arie Kapteyn Mignon Moore Dan Mungas Steve Schwartz Anita Stewart Tom Templin Jeanne Teresi Steven P. Wallace Rob Weech-Maldonado drhays@ucla.edu kapteyn@usc.edu moore@soc.ucla.edu dmmungas@ucdavis.edu stevesch@u.washington.edu anita.stewart@ucsf.edu ac0410@wayne.edu teresimeas@aol.com swallace@ucla.edu rweech@uab.edu Agenda for Next RCMAR Analysis Core Conference Call July 15, 2014 11:00 A.M. to 12:00 P.M. (Eastern) Call in information is 888 921-8686 (3103120536#) Pin code for moderator: 6769 I. Roll call, availability, and role assignments for next teleconference II. Review and approval of minutes from last call III. Additions/deletions to agenda IV. Announcements V. Annotated reference lists VI. 2015 Preconference: Use of Well-Being Measures in Minority Aging Research. Page 4 Annotated Reference Lists Methods for Developing, Adapting, and Testing Measures for Minority Populations Overviews of Measurement Issues Using Focus Groups in the Development of Structured Surveys (UCSF) Using Cognitive Interviews to Develop Structured Surveys (UCSF - updated June 2010) IRT & DIF Readings (UCLA - updated July 2010) Guidelines for Translating Surveys in Cross-Cultural Research (UCSF - updated May 2010) Qualitative methods in minority aging research (Under development by UCLA) Best Practices for Mixed Methods Research in the Health Sciences - NIH Office of Behavioral and Social Sciences Research (also relevant to the next topic listed directly below) Quantitative Analytic Methods Strengthening Causal Inference in Nonrandomized Health Disparity Designs Moderator and Mediator Analyses for Investigating Determinants of Health Disparities (Under development by MCUAAR) Concepts and Measures of Race/Ethnicity and Ethnic Identity Ethnic Identity References Race/Ethnicity - Conceptualization Race/Ethnicity - Data Quality Racial/Ethnic Discrimination Measurement Specific Measures in Minority Populations SF-36 in Older Minority Populations Measuring and Modeling Cognitive Function (Under development by UC Davis) Measuring Depression Measuring Health Literacy Methods for Collecting Data Online Panels, American Association of Public Opinion Research (AAPOR) Report, 2010 Online panels issues (Under development by USC & UCLA) Available Datasets Secondary Datasets on Minority Aging Issues (Under development by UAB) Methodological Issues Conducting Interventions to Reduce Disparities Methodological Resources for Translating Evidence-Based Behavioral Interventions (EBI) to Reach Disparity Populations in Ethnically Diverse Communities (UCSF) Depression (development TBA) Page 5 APPENDIX II: 2015 PRECONFERENCE WORKSHOP Use of Well-Being Measures in Minority Aging Research January 21, 2014 Updates Funding has been received for this full-day workshop (November 18, 2015) based on the following abstract: 2015: Use of Well-being Measures in Minority Aging Research. As the interest in healthy aging has grown, measuring subjective well-being has become part of identifying trends in aging and evaluating the impacts of policy on health. A NIA/Brookings 2011 workshop concluded that subjective well-being measures could be useful and appropriate for targeted populations and policies, although the usefulness for the general population was uncertain. Key issues included variations in how behavior is influenced by well-being in different groups, how to account for adaptation to objectively bad circumstances, how different groups interpret survey questions on well-being, and how to include equity considerations. The goals of this conference are to introduce minority aging researchers to the usefulness and impact of research on well-being, to connect leading researchers in the measuring well-being to scholars in minority aging, to stimulate new research using state of the art measures on well-being relevant to minority elderly populations, and improve the utility of research on well-being among elders of color in policy and practice. The objectives are for participants to improve their understanding of wellbeing theory, methods, and application so that they are better able to incorporate well-being in their research questions, analysis, and dissemination. The morning will be devoted to presentations from leaders in the field of well-being measures reviewing key domains in wellbeing as they apply to minority aging. The afternoon will focus on practice skills and include a small group breakout session led by the speakers to discuss incorporating well-being measures into minority aging research agendas. Additional topics raised on January call: Are they differences in the meaning of SWB by race/ethnic group? The only confirmed speaker is Arthur Stone. We need to discuss the draft content and speakers. Topics Keynote: State of the Art in Measuring Subjective Wellbeing Economic Approaches Speaker Arthur Stone, PhD, CONFIRMED Psychological Approaches Cross national/cross cultural perspectives Carol Ryff, PhD Carol Graham, PhD Arie Kapteyn, PhD Affiliation Distinguished Professor, Stony Brook University.; Chair, NAS panel on Measuring subjective well-being Prof., Econ.; Assoc. Dir. USC RCMAR; Former Dir., Roybal Center, Financial Decisionmaking, RAND Professor, Psychology, Univ. of Wis.-Madison College Park Professor, Univ. of Maryland School of Public Policy Page 6 Topics Integrating minority aging issues, Discussion by RCMAR directors Speaker James S. Jackson, PhD Spero Manson, PhD Eliseo Pérez-Stable,MD Testing measurement equivalence Subjective well-being vs. health-related quality of life Ron Hays, PhD Measurement of well-being in national datasets Jacqui Smith, PhD Anita Stewart, PhD Affiliation Professor, Univ. of Michigan & RCMAR Distinguished Prof., U Colorado-Denver & RCMAR Professor, UC-San Francisco & RCMAR Professor, GIM/HSR, UC-Los Angeles & RCMAR Professor, Institute on Health & Aging, UCSan Francisco & RCMAR Professor, Psychology; Co-I, Health & Retirement Study, Univ. of Michigan & RCMAR In December, Arie Kapteyn circulated by email a copy of “Subjective Well-Being: Measuring Happiness, suffering, and other dimensions of experience” (authored by Kapteyn, Lee, Tassot, Vonkova, and Zamarrow) and a National Research Council of the National Academies report, “Panel on measuring subjective well-being in a policy-relevant framework” (edited by Arthur A. Stone and Christopher Mackie). Arie also noted that Arthur Stone has moved to USC from Stony Brook to head the Center for Self-Report Science. Page 7