RCMAR Analysis Core Conference Minutes December 17, 2013 8:00 A.M. to 9:00 A.M. (Pacific) I. Roll call, availability, and role assignments for next teleconference Name Hays, Ron (UCLA) Kapteyn, Arie (USC) Moore, Mignon (UCLA) Mungas, Dan (UC Davis) Schwartz, Steve (U Wash/U Colorado) Stewart, Anita (UCSF) Templin, Tom (WSU/U Mich) Teresi, Jeanne (Columbia U) Wallace, Steve (UCLA Coord Center) Weech-Maldonado, Rob (UAB) Facilitator Present Dec 17 Yes Yes Yes Yes Yes Yes Yes Yes Yes No Dan Mungas Recorder Ron Hays Available Jan 21 Yes Yes Yes Yes Yes Yes Yes Yes Yes Yes Rob WeechMaldonado Anita Stewart II. Review and approval of minutes from November call The minutes were approved and will be forwarded to Steve W. for posting on the password restricted area of the RMCAR web site (http://www.rcmar.ucla.edu/). Use rcmar, rcmar-II (capitol I’s). III. Additional/deletions to agenda Issues about the website section on annotated bibliographies were discussed (V below). IV. Announcements Steve W. announced that the GSA Preconference workshop proposal for NIA funding received a perfect 10. A proposed workshop of particular relevance is the 2015 workshop on use of well-being measures in minority aging research. The paragraph and table submitted about that workshop is provided below. 2015: Use of Well-being Measures in Minority Aging Research. As the interest in healthy aging has grown, measuring subjective well-being has become part of identifying trends in aging and evaluating the impacts of policy on health. A NIA/Brookings 2011 workshop concluded that subjective well-being measures could be useful and appropriate for targeted populations and policies, although the usefulness for the general population was uncertain.13 Key issues included variations in how behavior is influenced by well-being in different groups, how to account for adaptation to objectively bad circumstances, how different groups interpret survey questions on well-being, and how to include equity considerations. The goals of this conference are to introduce minority aging researchers to the usefulness and impact of research on well-being, to connect leading researchers in the measuring well-being to scholars in minority aging, to Page 1 stimulate new research using state of the art measures on well-being relevant to minority elderly populations, and improve the utility of research on well-being among elders of color in policy and practice. The objectives are for participants to improve their understanding of wellbeing theory, methods, and application so that they are better able to incorporate well-being in their research questions, analysis, and dissemination. The morning will be devoted to presentations from leaders in the field of well-being measures reviewing key domains in wellbeing as they apply to minority aging. The afternoon will focus on practice skills and include a small group breakout session led by the speakers to discuss to incorporate well-being measures into their own minority aging research agendas. 2015 Topics Speaker Affiliation Keynote: State of the Art Arthur Stone, PhD Distinguished Professor, Stony Brook in Measuring Subjective University.; Chair, NAS panel on Well-being Measuring subjective well-being Economic Approaches Arie Kapteyn, PhD Prof., Econ.; Assoc. Dir. USC RCMAR; Former Dir., Roybal Center, Financial Decision-making, RAND Psychological Approaches Carol Ryff, PhD Professor, Psychology, Univ. of Wis.Madison Cross national/cross Carol Graham, PhD College Park Professor, Univ. of Maryland cultural perspectives School of Public Policy Integrating minority aging James S. Jackson, Professor, Univ. of Michigan & RCMAR issues, Discussion by PhD Distinguished Prof., U Colorado-Denver RCMAR directors Spero Manson, PhD &RCMAR Eliseo PérezStable,MD Ron Hays, PhD Testing measurement equivalence Subjective well-being vs. Anita Stewart, PhD health-related quality of life Measurement of well-being Jacqui Smith, PhD in national datasets Professor, UC-San Francisco & RCMAR Professor, GIM/HSR, UC-Los Angeles & RCMAR Professor, Institute on Aging, UC-San Francisco & RCMAR Professor, Psychology; Co-I, Health & Retirement Study, Univ. of Michigan & RCMAR Arie K. mentioned and circulated by email a copy of “Subjective Well-Being: Measuring Happiness, suffering, and other dimensions of experience” (authored by Kapteyn, Lee, Tassot, Vonkova, and Zamarrow) and a National Research Council of the National Academies report, “Panel on measuring subjective well-being in a policy-relevant framework” (edited by Arthur A. Stone and Christopher Mackie). Arie also noted that Arthur Stone is moving to USC from Stony Brook. Page 2 Tom T. suggested we consider using web meeting for some future calls. Steve W. will have the coordinating center use Adobe Connect on the next call. Dan M. indicated he has had success using this software with voice over IP or with a separate call-in number. Gotomeeting.com has also been used by RCMAR analysis core members. Steve W. pronounced that the annual RCMAR meeting will be at USC on March 31, 2014 and the RCMAR Analysis Core will have 45 minutes to meet that day. V. Annotated Bibliographies – Disseminating Research Methods The Appendix shows the current status of the Annotated Bibliographies: http://www.rcmar.ucla.edu/rcmar_wiki/References.html There was discussion about the structure of the annotated bibliographies. Suggestions made by Dan M. and others during the call are reflected in the Appendix to these minutes (hopefully). Also, Anita S. would like the bibliographies to be downloadable. Tom T. wants feedback on the draft bibliographic section he circulated by email. VI. Possible RCMAR webinar series related to minority aging methods The group agreed that it was time to close this topic. Our focus shall be on the 2015 GSA preconference workshop and on the possibility of a 2014 GSA symposium. VII. Issues in Use of NIH Toolbox We agreed to expand this topic to include measures included in the forthcoming NCI PersonCentered Outcomes Research Resource (PCAR) effort. The goal of PCAR is to bring four existing person-centered outcome measures together (PROMIS, Toolbox, Neuro-QoL, Adult Sickle Cell Quality of Life Measurement Information System—ASCQ-Me) and to educate, equip and enable researchers and clinical providers to use them correctly and effectively. VIII. Miscellany (no items discussed) Page 3 IX. Post Call Details 2014 RCMAR Measurement and Methods Conference Call Assignments Recorder Month January 21 February 18 March 18 April 15 May 20 June 17 July 15 August 19 September 16 October 21 November 18 December 16 Anita Stewart Facilitator Rob Weech-Maldonado Summary of 2013 completed conference call participation Name Ron D. Hays Arie Kapteyn Mignon Moore Dan Mungas Steve Schwartz Anita Stewart Tom Templin Rob Weech-Maldonado Email Addresses Ron D. Hays Arie Kapteyn Mignon Moore Dan Mungas Steve Schwartz Anita Stewart Tom Templin Jeanne Teresi Steven P. Wallace Rob Weech-Maldonado # Recorder 2 1 2 1 1 3 1 1 # Facilitator 2 2 0 2 1 1 2 2 Total count 4 3 2 3 2 4 3 3 drhays@ucla.edu kapteyn@usc.edu moore@soc.ucla.edu dmmungas@ucdavis.edu stevesch@u.washington.edu anita.stewart@ucsf.edu ac0410@wayne.edu teresimeas@aol.com swallace@ucla.edu rweech@uab.edu Page 4 Agenda for Next RCMAR Analysis Core Conference Call January 21, 2014 11:00 A.M. to 12:00 P.M. (Eastern) Call in information is 888 921-8686 (3103120536#) Pin code for moderator: 6769 I. Roll call, availability, and role assignments for next teleconference II. Review and approval of minutes from last call III. Additions/deletions to agenda IV. Announcements V. GSA Symposium (www.geron.org/abstracts) VI. Annotated bibliographies VII. Issues in Use of NIH Toolbox, PROMIS, ASCQ-Me, and Neuro-QOL VIII. Miscellany Page 5 APPENDIX: ANNOTATED BIBLIOGRAPHIES December 17, 2013 The currently available annotated bibliographies, plus those being proposed or in process (in italics), are shown below. We note the source (which center created the bibliography) and the last time it was updated. Questions remain for several lists. Methods for Developing, Adapting, and Evaluating Measures for Minority Populations Overviews of Measurement Issues (All; updated April 2013) Using Focus Groups in the Development of Structured Surveys (UCSF; updated Sept 2010) Using Cognitive Interviews to Develop Structured Surveys (UCSF; updated June 2010) IRT & DIF Readings (UCLA; updated July 2010) Guidelines for Translating Surveys in Cross-Cultural Research (UCSF; updated May 2010) Analyzing qualitative data (UCLA, Mignon Moore to draft) Strengthening Causal Inference in Nonrandomized Health Disparity Designs (UMICH: updated April, 2013) Longitudinal methods (UMICH; Tom is working to finalize this and will contact Arie for input on econometrics- targeted for 2014) Online panels (USC, UCLA, UCD: Arie and Ron will draft by January 2013) Race/Ethnicity and Ethnic Identify Concepts and Measures Ethnic Identity References (UW/UC; updated 2005)) Race/Ethnicity - Conceptualization (Coordinating Center; updated August 2011) Race/Ethnicity - Data Quality (Coordinating Center; updated August 2011) Racial/Ethnic Discrimination Measurement (UCSF; updated February 2010) Health-Related Concepts and Measures Cognition and Cognitive Function o Measuring and Modeling Cognitive Function (Columbia U/Jeanne; updated April 2010) o Issues in Measuring Cognition in Alzheimer’s Disease (Dan, under development) Affect/Emotion o Measuring Depression (Columbia U/Jeanne; updated April 2007) Dan might be able to make additions) Measuring Health-Related Quality of Life o SF-36 in Older Minority Populations (UCLA; updated July 2010) Measuring Health Literacy (U PENN, updated June 2010) Secondary Data Analysis and Available Datasets Secondary Datasets on Minority Aging Issues (UAB; Giyeon Kim, a RCMAR scholar, is developing this based on a paper on this topic) Methodological Issues Conducting Interventions to Reduce Disparities Methods for adapting interventions for vulnerable population groups (UCSF; updated November, 2013) Page 6