MENTAL CAPACITY ACT POLICY 2014 LONDON BOROUGH OF MERTON 1 CONTENTS Title Page Table of Contents Introduction Context Objective Scope Statement of Commitment Key Principles of the Act Assessment of Capacity What is ‘Capacity’? When to assess Who should assess The two stage test Temporary or Fluctuating Capacity Duty to Support Decision Making When to Involve Others Burden of Proof What Happens When the Assessment is Completed? Refusal to be Assessed Best Interests Who is the decision-maker? How does the decision-maker decide what is in a person’s best interests? Best Interests Checklist Using the best interests checklist How to Formalise a Best Interest’s Decision Implementing The Best Interest’s Decision Specific Guidance on Best Interests Meetings Who should chair the meeting? When to hold the meeting? What should the meeting cover? After the meeting Dispute Resolution When to Refer For an IMCA Who instructs an IMCA? The IMCA’s role How should assessments be recorded? Confidentiality and Disclosure Information Governance Liability and Staff Protection for Acts Done Under Section 5 MCA Change of Residence Healthcare and Treatment Restraint Transport Advance Decisions Regarding Treatment for Customer’s LPA, Enduring Power of Attorney and Advance Decision Children Interface With The Mental Health Act 1983 Policy Overlap Appendix 1 - Record of Mental Capacity Assessment Appendix 2 - Record of Best Interests Decision PAGE NUMBER 1 2 3 3 4 4 4 5 6 6 6 6 7 8 8 9 9 9-10 10 10-11 11 11 12-13 13-14 14 14 15 15 15 15-16 16 16-17 17 18 18 18 18 18-19 19 19 20 20 20 21 21 21-22 22 23 24-26 27-30 2 Introduction The Mental Capacity Act 2005 (MCA) for England & Wales provides the legal framework for acting and making decisions on behalf of people age 16 years and over, who lack the mental capacity to make decisions for themselves. It is legislation, and everyone who is caring for or supporting someone who may lack capacity to make their own decisions must comply with the MCA. This applies to everyone - paid or unpaid carers, family, friends, trained professionals and care assistants. The MCA can be used to make routine and major decisions for someone who lacks capacity; everything from what to wear to where to live. This places responsibility on the people making the decisions – but in fact the MCA does not give anyone more power than previous laws. Decisions have always been made for those people who can’t make them for themselves: the MCA merely provides a legal framework for ensuring that decisions are made and recorded in a consistent, transparent way and in the person’s best interests. Context The Act provided for reform of the previous statutory schemes of Enduring Power of Attorney and of Court of Protection Receivers and created the Office of the Public Guardian (OPG). It created a new legal framework for Lasting Powers of Attorney and of Deputies of the Court of Protection, in relation to property & affairs and personal welfare. The Act further established the legal status of Advanced Decisions to refuse treatment. The MCA also brought into effect, under s.44, the creation of a new criminal offence of wilful neglect or ill-treatment, and the statutory provision of independent Mental Capacity Advocate Service (IMCA). The Deprivation of Liberty Safeguards (DoLS) came into effect on 1st April 2009, and although they were introduced later, they are part of the MCA. The safeguards provide for the lawful deprivation of liberty of people who lack capacity to consent to arrangements for their care or treatment in either hospitals or registered care homes, but who need to be deprived of their liberty in their best interests to protect them from Harm. Unlike the main part of the MCA, DoLS applies to people in England & Wales aged 18 years and over. The safeguards and accompanying regulations assign specific statutory responsibilities to local authorities, Primary Care Trusts (PCT) and care homes. Under the Health & Social Care Act 2012, PCTs were abolished from 1st April 2013, and the way the DoLS were applied in health settings in England changed. The duties previously held by PCTs were transferred to local authorities. There is therefore a need to ensure the local authority DoLS Service is aware and accommodates this need. 3 From March 2014, due to a Supreme Court judgement regarding the Cheshire West case, the threshold for DoLS authorisations lowered meaning any person in a care home, aged over 18 and lacks capacity that is: Not free to leave and Is under continuous supervision may be required to have a DoLS authorisation request. The Deprivation of Liberty policy explains the process in further detail and should be read in conjunction with this policy. Objective The main objective of this document is to ensure compliance with the requirements of the Mental Capacity Act 2005, associated Codes of Practices, and Schedule 5 to the Health & Social Care Act 2012, by providing guidance as to the operation of the Act within the Adult Social Care. Specifically, this document contains: An overall statement of the commitment of London Borough of Merton to the principles and objectives of the act A procedure for assessing capacity and making best interest decisions; A procedure for dispute resolution General guidance on Advanced Decisions, Lasting Power of Attorney, and the court of protection A procedure for management of DoLS from 1 April 2013 A framework for training and quality assurance A governance structure Scope The MCA affects all staff working in health and social care. This policy & procedure is for staff working within, or on behalf of London Borough of Merton’s Adults Social Care service, and who are involved in the care and/or treatment of customer’s who may lack capacity to make decisions. In relation to DoLS, this policy & procedure applies to both publicly and privately funded care and treatment, in hospitals and care homes registered under the Care Standards Act 2000. Statement of Commitment London Borough of Merton is committed to ensuring that people who use Merton services and who may lack capacity to make decisions are provided with high quality care from a knowledgeable and competent workforce. This policy and the following procedures, aims to ensure that staff understand the requirements of the MCA and are able to comply with their legal duties. 4 Key Principles of The Act Staff must be aware and mindful of the five principles that underpin the legal requirements of the MCA when working with people who may lack capacity to make decisions.1. They are part of the legislation, and therefore, it is a legal obligation to follow them whenever the MCA is used. The 5 principles are summarised on below: 1. Assumption of capacity Every adult has the right to make their own decisions if they have the capacity to do so. In practice, this means that irrespective of the person’s presentation or diagnosis, staff must assume that the person has capacity to make decisions, until they have established otherwise. Staff who believe that a person lacks capacity must be able to prove their case. 2. Support to make decisions Before concluding that individuals lack capacity to make a particular decision, it is important for staff to take all possible steps to try to help them reach a decision themselves. This principle aims to stop people being automatically labelled as lacking capacity to make particular decisions. 3. Right to make unwise decisions Everybody has their own values, beliefs, preferences and attitudes. People have the right to make decisions that others might think are unwise. A person who makes a decision that others think is unwise should not automatically be labeled as lacking the capacity to make a decision. Therefore, what matters is the ability to make a decision and not the outcome. Practitioners may need to exercise some caution when operating this principle in practice. While an unwise decision should not in itself be sufficient to indicate a lack of capacity, it may be sufficient to raise doubt about the person’s capacity. 4. Best Interests principle Any act done for, or any decision made on behalf of a person who lacks capacity, must be in their best interests. It is important to note that this does not simply involve family or professionals imposing their view of ‘best interests’ on the person that lacks capacity to make the decision. Reference should be made to the statutory best interests’ checklist. 5. Least restrictive option Any act done for, or any decision made on behalf of, someone who lacks capacity must be an option that is the least restrictive of their basic rights and freedoms. Before somebody makes a decision or acts on behalf of a person who lacks capacity to make that decision or consent to the act, they must always question if they can do something else that would interfere less with the person’s basic rights and freedoms. 1 MCA Code of Practice 2005 Chapter 2 5 Assessment of Capacity Assessment of capacity is central to the Act. The Act sets out a single test for assessing whether a person lacks capacity to take a particular decision at a particular time based on the principles detailed previously. It is only possible to make decisions on behalf of a customer if it has clearly been determined that they lack capacity to decide for themselves. This section gives specific guidance to staff about assessing capacity. What is ‘Capacity’? The MCA defines a lack of capacity by stating that: “a person lacks capacity in relation to a matter if at the material time he is unable to make a decision for himself in relation to the matter because of an impairment in the functioning of the mind or brain”2 Capacity is therefore decision-specific and time-specific and the inability to make the decision in question must be because of an ‘impairment of, or a disturbance in the functioning of the mind or brain’. When to assess? An assessment of a person’s capacity should be carried out when there is doubt about a person’s ability to make a specific decision at the time it needs to be made. 3 The code of practice states that there are a number of reasons why people may question a person’s capacity to make a specific decision: The person’s behaviour or circumstances cause doubt as to whether they have capacity to make a decision Somebody else says they are concerned about the person’s capacity The person has previously been diagnosed with an impairment or disturbance that affects the way their mind or brain works, and it has already been shown they lack capacity to make other decisions in their life4 Who should assess? The MCA stipulates that the person who assesses capacity to make a decision will usually be the person who is directly concerned with the individual at the time the decision needs to be made5. In practice this means that family members and carers are responsible for assessing capacity when a decision needs to be made about day-to-day care, such as what 2 MCA S2(1); Code of practice 4.3 4.4 code of practice 4 Code of practice 4.35 5 MCA code 4.38 3 6 clothes to wear on a particular day. The MCA does not require people who provide day-to-day care to undertake a formal capacity assessment each time they deliver care. Instead, they need to have ‘reasonable belief’ that the person lacks capacity for the specific decision. Professionals are responsible for assessing capacity for actions they are proposing. This means, for example, that a nurse will be responsible for assessing a person’s capacity to consent if they are proposing a particular treatment or intervention, and a social care professional will be responsible for assessing a person’s capacity if a decision needs to be made about a move into residential care. A Court of Protection Deputy or Lasting Power of Attorney may be responsible for assessing capacity for decisions that fall within the scope of their authority. The two stage test The MCA introduced a 2-stage process for assessing capacity: Stage 1: Is the person unable to make a specific decision at the time it needs to be made (the functional test). If so; Stage 2: Is it because of an impairment of, or a disturbance in the functioning of their mind or brain? For example, a disability, condition or trauma that affects the way their mind or brain works (the diagnostic test). Stage 1 (the functional test) – Is the person unable to make a specific decision at the time it needs to be made. This stage of the assessment considers whether the person can make the specific decision at the time it needs to be made. The first step of the functional test is to be clear what the decision is that needs to be made. If it is a complex situation, there may need to be several capacity assessments concerning different decisions. The assessor then needs to establish whether the person can: Understand information relevant to the decision: Relevant information includes the nature of the decision, the reason why the decision is needed and the likely effects of deciding one way or another, or making no decision at all Retain that information in their mind: A person must be able to hold the information in their mind long enough to use it to make a decision. It does not matter that they could not remember the information prior to the discussion or remember it afterwards, but they do need to be able to keep key pieces of information in their mind at one time, in order to be able to weigh them up Weigh or use that information as part of the decision-making process: In addition to understanding relevant information, people must have the ability to weight it up and use it to arrive at decision. Sometimes an 7 impairment or disturbance may cause a person to inevitably arrive at one decision. Although they understand the information, they cannot use it as part of the decision making process Communicate their decisions by any means: This will only apply if a person is unable to communicate their decision in any way at all. Stage 2 (the diagnostic test): Is it because of an impairment of, or a disturbance in the functioning of their mind or brain? For example, a disability, condition or trauma that affects the way their mind or brain works This requires evidence that there is an impairment of the person’s mind or brain, or a disturbance that affects the way the person’s mind or brain works. An impairment or disturbance may include, for example, dementia, significant learning disabilities, brain injury, concussion following a head injury, the effects of stroke, brain tumours, physical and medical conditions that cause confusion, drowsiness or loss of consciousness, neurological disorder, conditions associated with some forms of mental illness, delirium, and the effects of drug or alcohol use. Most people at some point will be covered by this diagnostic test and some people will also come within it. This does not necessarily mean that the person lacks capacity to make a specific decision at a particular point in time. Temporary or Fluctuating Capacity The MCA Code of Practice6 makes specific reference to people with fluctuating or temporary capacity. Staff must consider whether the customer’s lack of capacity is temporary. This might be due to the effects of drug or alcohol use, or acute illness. For example, a person with a psychotic illness may have delusions that affect their capacity to make decisions at certain times but disappear at others. A urinary tract infection can cause a person to temporarily lose capacity to make decisions. What is relevant is the person’s ability to make a specific decision at a specific time. In cases of temporary or fluctuating capacity, staff must consider whether it is possible to postpone the specific decision until a later date when a person might have capacity to make it. In an urgent situation, it might not be possible to postpone the decision. Staff must then ensure that they review the person’s capacity to make the decision at a suitable future date. Duty to Support Decision Making Following principle 2, “a person is not to be treated as unable to make a decision unless all practicable steps to help him to do so have been taken without success.” Before reaching the conclusion that a person lacks capacity to make a specific decision, it is the responsibility of staff to do everything they can to enable the person the best chance of making their own decision. This would involve asking the following questions: 6 4.26 & 4.27 8 Does the person being assessed have all the relevant information they need to make the decision? If they are making a decision that involves choosing between alternatives, do they have information on all the options? Would the person have a better understanding if information was explained or presented in another way? Are there times of day when the person’s understanding is better? Are there locations where they may feel more at ease? Can the decision be put off until the circumstances are different and the person concerned may be able to make the decision? Can anyone else help the person to make choices or express a view? (for example, a family member or carer, and advocate or someone to help with communication) (Reference: code of practice 4.36) When to Involve Other People It may be appropriate and necessary for the person assessing capacity to enlist the help of others. For example, a social care professional assessing a person’s capacity to make decisions about their care needs when being discharged may need to seek an opinion from family and friends, ward staff, or anyone with knowledge of the person. The assessor may also need to ask for an opinion from a professional who has specialist training or knowledge about a particular condition or disorder. For example, a Speech & Language Therapist might be able to help if there are communication difficulties; or a clinical psychologist specialising in learning disabilities, might be able to offer an opinion about a person understands The final decision about a person’s capacity must be made by the person intending to make the decision or carry out the action on behalf of the person who lacks capacity, and not the professional who is there to advise. Burden of Proof Capacity assessments are decided on balance of probabilities. In practice, this means deciding whether, on balance, the individual is more likely to have capacity or more likely to lack capacity to make the decision. What Happens When The Assessment is Completed? If the assessor concludes that the person has capacity to make the decision or could be supported to make the decision themselves, no further action can be taken under the MCA. If the conclusion is that the person lacks capacity to make the decision then a decision will need to be made in the persons best interests. 9 The assessment should be recorded on the council’s mental capacity form (Appendix 1). Refusal to be Assessed There may be circumstances in which a person whose capacity is in doubt refuses to undergo an assessment of capacity. The code of practice makes it clear that nobody can be forced to undergo an assessment of capacity, and if someone refuses to open the door to their home, it cannot be forced. There are a number of steps that should be considered if a person refuses to engage in the assessment: If applicable, re-allocate to another social care professional Consider whether anyone else can facilitate access. This might be a friend neighbour, family member of other professional who the person engages with Consider whether there is another professional that the person engages with and who, so they could give an opinion about the person’s capacity Consider whether there is an alternative venue. For example, a GP surgery or day centre If all attempts to engage the person fail, it will be necessary to gather evidence about the customer’s capacity from: Anything they have written which gives insight into their capacity to make the specific decision Any witness who can give information about the customer’s capacity to make the decision in question. This could be from family, friends, neighbours, or professionals Where there are serious concerns about the persons mental health, contact SouthWest London & St Georges Mental Health Trust, Approved Mental Health Practitioner team for advice about whether the situation requires use of the Mental Health Act 1983. The Service Manager for Access & Assessment and Safeguarding Adults and DoLS Manager must be notified of any situation in which a person refuses to undergo an assessment of capacity, and there are serious concerns about their safety and wellbeing. The safeguarding adults / DoLS Manager will provide advice and guidance on the way forward and if necessary will seek legal advice. Best Interests When it is established that a Customer lacks capacity to make a particular decision, the MCA establishes ‘best interests’ as the criterion for any action taken or decision made on that person’s behalf. It requires the decision maker to think what the best course of action is for the person. It should not be the personal views of the decision maker. Instead it considers both the current and future interests of the person who 10 lacks capacity, weighs them up and decides what course of action is, on balance, the best course of action for them.7 Who is the decision-maker? The person who decides what is in a person’s best interests is referred to in the MCA as the ‘decision-maker’. The decision maker is the person who is proposing the service or element of care. Under the MCA, many different people may be required to make decisions or act on behalf of someone who lacks capacity to make decisions themselves in relation to certain things: Most routine decisions, this will usually be the person caring or supporting the person on a day to day basis For medical interventions, it would be the Doctor or whoever is responsible for carrying out the particular treatment or procedure For social services care plans, the best interest’s decision maker will be the relevant social care professional An LPA or deputy will be decision maker within the scope of their authority How does the decision-maker decide what is in a person’s best interests? There is no definition of ‘best interests’ in the MCA. Instead, s.4 of the MCA sets out a ‘checklist’ of factors that the decision maker must apply when determining what is in a person’s best interests (the best interests checklist). Staff must follow this checklist when making a best interests decision. Points to consider when using the best interests checklist 7 The decision must not be made merely on the basis of the person’s age or appearance The person’s behaviour should not lead to assumptions about what might be in their best interests Have all relevant circumstances been considered? Consideration must be given as to whether the person will regain capacity and if so, can the decision wait? BPS guidance 11 Best Interests Checklist Criterion Encourage Participation Guidance Make every effort to permit and encourage the customer to participate in the decision to be made. Staff may need to seek support from family members, friends or other professionals to facilitate participation. Identify all relevant circumstances Find out the person’s wishes, feelings, beliefs and values Try to identify all the issues and circumstances relating to the decision in question which are most relevant to the customer. Try to find out the person’s past and present wishes and feelings – both current views and whether any relevant views have been expressed in the past, either verbally, in writing or through behaviour or habits. Any beliefs and values (e.g. religious, cultural, moral or political) that would be likely to influence the decision in question. Any other factors the person would be likely to consider if they could make the decision themselves. This could include the impact of the decision on other people, such as dependents. It is important that the decision-maker understands that they are not trying to take the choice that they think the person would have made. Instead, the decision-maker is taking the person’s views into account as a factor in making the best interest’s decision making process. Avoid discrimination Assess whether the person might regain capacity If the decision concerns lifesustaining treatment Consult others Working out best interests cannot be based simply upon age, appearance, condition or behaviour. Staff therefore needs to take care not to make assumptions about what is in a persons best interests. For example, assuming that people with learning disabilities are better off not living with their parents would be discriminatory if applied to all customers irrespective of their individual circumstances. Consider whether the person is likely to regain capacity and if so, whether the decision can be delayed. For example, staff will need to address whether the person’s condition will improve for treatment. Not be motivated in any way by a desire to bring about the person’s death. They should not make assumptions about the person’s quality of life (This only applies to medical decisions, and LBM staff will not be the best interests decision-maker when a decision needs to be made about life sustaining treatment). For views about the customer’s best interests and to see if they have any information about the person’s wishes, feelings, beliefs or values. Staff must consult: Anyone previously named by the person as someone to be 12 Avoid restricting the person’s rights Take all of this into account consulted on the decision in question or matters of a similar kind; Anyone engaged in caring for the person, or close relatives, friends or others who take an interest in a person’s welfare Any attorney or Lasting Power of Attorney (LPA) made by the person (even if they are not the decision-maker for this specific decision). Any deputy appointed by the Court of Protection to make decisions for the person (even if they are not the decisionmaker for this specific decision). An Independent Mental Capacity Advocate (IMCA) in prescribed circumstances Reasons where consultation may not be practicable or appropriate may include the following: The person lives abroad and has no contact with the service user; An estranged relative A family member who refuses to be consulted. The decision maker must assess whether there is a less restrictive option. The decision-maker should be open to all options, and for each identify the risks, and whether restricting the customer’s rights would be a proportionate response to the level of risk. For example when a person lacks capacity to make a decision about where they should live, the options might be: staying in their present accommodation with a higher level of care, moving to residential or nursing care, living with relatives or moving to extra-care housing. The decision maker needs to weigh up all of these factors in order to work out what is in a person’s best interests. It is helpful to use a ‘balance sheet’. This involves drawing up a list of the emotional, medical, social and welfare benefits and disadvantages of the proposed alternatives (including the likelihood of each benefit or disadvantage occurring). Using the best interests checklist The MCA gives the decision maker authority to make a best interests decision, as long as they have reasonable belief that what they have decided is in the customer’s best interest, and they have complied with the requirements of the checklist The decision-maker must consult and involve other relevant people as much as possible The decision-maker does not have to follow the view of anyone else, but needs to be able to provide a clear and well-reasoned rationale for discounting the views of others Do not avoid consulting with people who may disagree with the decision maker or where there may be an apparent conflict of interest. For example, if a family member is financially abusing a person who lacks capacity to 13 manage their finances, the decision-maker should still consult them before discounting their views A best interest’s decision needs to consider a holistic assessment of the individual. For example, if an admission to residential care is indicated by an assessment of need, this may not be in the person’s best interests when the stress of the admission is considered How to Formalise a Best Interest’s Decision The MCA does not prescribe the process by which a best interest’s decision should be made. The circumstances of each case will be different, and the decision-maker will need to refer to the following local guidelines in deciding the process to use for making a best interests decision: For routine or non-contentious decisions, staff can meet the requirements of the best interests’ checklist without the need to hold a formal meeting. This might involve consulting with relevant people in person or by telephone. A best interests decision may be included as part of a wider multi-disciplinary meeting, such as a discharge planning meeting. Whatever method is used, the decision-maker will need to ensure that participants understand that they are contributing to the best interest’s decision making process and be informed of the outcome For decisions that are complex or contentious decisions, a formal best interests meeting will be required (see specific guidance below). This includes (but is not limited to): o Accommodation changes o Proposed management of financial or property affairs o Any proposal that would intervene in a customer’s family life or personal relationships o Where the person concerned is repeatedly making decisions that place him or herself at risk or could result in preventable suffering or harm Implementing The Best Interest’s Decision In some instances it may not be possible to act on behalf of a person who lacks capacity without using some form of restriction or restraint. Section 6 of the MCA permits the use of restraint in circumstances where it is: proportionate to the risk of harm absolutely necessary at the time in the person’s best interests A restriction could include anything from an instruction to physical or chemical restraint. Chapter 6 of The Code of Practice outlines the types of restraint that may be used under the MCA. It does not sanction restrictions or restraints that are so intense that the person’s right to liberty under article 5 of the European Convention of Human Rights is breached. If a person needs to be deprived of their liberty in order to receive care or treatment deemed to be in their best interest authorisation must be sought. Please refer to the council’s DoLS policy. 14 Specific Guidance on Best Interests Meetings Who should chair the meeting? The decision-maker may not be the best person to chair the meeting, as they will probably need to give a lot of information at the meeting. The meeting should be chaired by someone with the necessary skills and experience to manage a complex meeting, such as an Assistant Team Manager or Team Manager. When to hold the meeting? The meeting needs to be held at the time the decision needs to be made, while still allowing sufficient time for the decision to be acted upon. This means that it should not be so far in advance that circumstances might have changed by the time the decision needs to be acted upon. If the decision can be delayed until the customer has regained capacity, then this should happen. However, the meeting must not be postponed in the hope that a customer may regain capacity if this will place them at unnecessary risk. Before the meeting the Chair should liaise with the decision maker to: Check there is an appropriate and valid capacity assessment Be clear exactly what the decision is and confirm it is not an excluded decision Confirm the decision maker has authority to implement the decision. Be clear what information is necessary to make the decision Plan the meeting – where will it be held? When should it happen? Who needs to attend? Who can represent the views of anyone who can’t attend? Who will take minutes? If the person who lacks capacity is to attend, what support do they need? They may need help to understand the purpose and process of the meeting; they may need support to present their views If any family or friends are to attend, do they need any support? Prepare an agenda What should the meeting cover? Introductions A statement about the confidentiality of the information to be discussed and of the minutes Clarification of the purpose of the meeting – what is the decision that is to be made? Confirmation of the capacity assessment Review of the Best Interests Checklist – to make sure everyone is clear about their statutory responsibilities under the MCA Information from relevant parties. What does the person who lacks capacity want now? What is known about their previous wishes, their values and beliefs? Views from anyone named, any LPA, EPA or deputy. Views from any 15 IMCA or other advocate. Views from any family, friends or supporters. Views of any professionals. Any other relevant information (s4 MCA) Discussion. The Chair will need to ensure that everyone can participate Summary – It will be the Chair’s role to summarise the information and discussion Decision of the meeting about the person’s best interests. The decision maker is still responsible for making the decision. The decision maker is not obliged to follow the decision of the meeting – but would need to give clear reasons why they did not do so (see above authority of decision maker) Action plan. It may be that the meeting asks for further assessments or reports and will reconvene. There may need to be interim decisions made about the person’s safety or care. Other actions or decisions may become clear during the Best Interests Meeting If an agreement at the meeting cannot be made, decisions will need to be made about how to proceed Make sure the priority remains the welfare and safety of the person whose best interests are being assessed Participants to be given info on how to challenge After the meeting: Ensure an accurate record of the meeting is prepared Ensure this record is distributed to everyone who attends or who gave apologies If further Actions have been agreed, monitor that these are completed It is important to remember that the meeting is not authorised to make the decision to carry out the intervention - that is the responsibility of the person that is going to be carrying it out. The meeting is there to ensure that the decision is made based on all reasonable and appropriate information. If the decision-maker does not agree with the outcome of the meeting they cannot be forced to carry out an intervention in which they do not agree. However, they should also not prevent another person from carrying it out. They are not obliged to follow what is decided in the meeting, although they would need to be able to give good reasons as to why. Dispute Resolution There will be occasions when parties fail to reach agreement on a major decision due to uncertainty or disagreement. The dispute resolution procedure should be followed when: A best interest meeting has failed to reach consensus on a person’s best interests, and the decision-maker cannot decide; Or; One of more parties disagrees with the conclusion of the decision-maker AND The person is at risk of harm if a best interests decision is not made and implemented. 16 Local policy is to refer to the safeguarding adult’s team with details of the dispute. The safeguarding team will review the capacity assessment and best interest’s decision to ensure that the decision maker has used the 2 stage test of capacity and followed the best interest’s checklist. Subsequently, the safeguarding team will give further instructions on how to proceed in resolving the issue. The capacity assessment will be repeated with support from a BIA (best interest’s assessor under DoLS) and a second opinion will be sought. A best interests case conference should be held, and chaired by the safeguarding adults manager or DoLS and Mental Capacity Act Coordinator. A referral to the IMCA service can be made to assist with disputed decisions when the person would not otherwise be eligible for their support. The IMCA will give an independent opinion to assist with disputed decisions when the incapacitated person would not otherwise be eligible for their support. However, this is subject to the availability of the IMCA team. It may be possible to use mediation to enable people to consider a difficult decision. Consider whether any local services can offer mediation. Referral to the IMCA service to assist with disputed decisions when the person would not otherwise be eligible for their support. The IMCA will give an independent opinion to assist with disputed decisions when the incapacitated person would not otherwise be eligible for their support. However, this is subject to the availability of the IMCA team It may be possible to use mediation to enable people to consider a difficult decision. Consider whether any local services can offer mediation When to Refer for an IMCA (Independent Mental Capacity Advocate) The Act places a legal duty on local authorities and the NHS to refer a person to an IMCA in certain circumstances. The aim of the IMCA is to provide independent safeguards for people who lack capacity to make certain important decisions and have no one else to represent them, at the time such decisions need to be made. It is mandatory for an IMCA to be instructed, and then consulted for people lacking capacity who have no-one else to support them other than paid staff, whenever: The person will stay in hospital for longer than 28 days; Permanent or long-term changes of accommodation (this means if the accommodation will be provided for more than 8 weeks) Serious medical treatment It is discretionary for the decision-maker to instruct an IMCA for the following decisions: Care plan reviews, where no one else if available to be consulted Protective measures as part of a safeguarding adults case, whether or not family, friends or others are involved 17 Who instructs for an IMCA? An instruction for an IMCA must come from the decision-maker. It cannot be delegated to another professional. For example, a Doctor cannot instruct an IMCA for a decision about residential accommodation. The IMCAs role The IMCA will meet with the customer, discuss with anyone who may have information, look at medical and other notes. They will try to assist the person to express their views and support them through the decision making process. They will prepare a report for the decision maker. The IMCA does not make the decision, but provides an opinion. The decision-maker must take this into account as part of the process of working out whether a proposed decision is in customer’s best interests. As with any other consultant, the decision maker does not have to follow the IMCA’s opinion. How should assessments and decisions be recorded? There is a Merton template to record mental capacity assessments and Best Interest Meetings. It is expected that Merton Practitioners use these templates to ensure consistency and quality in assessments across the borough. It is the expectation that these records are saved in the customer file (See Appendix 1 and 2). Confidentiality and Disclosure Staff may only disclose information about somebody who lacks capacity to consent to its disclosure when it is in the person’s best interests to do so (or when there are other lawful reasons to do so) [Chapter 5 of the Code of Practice]. Information can be disclosed to LPAs and court deputies if it applies to the decision(s) for which the attorney or deputy has legal authority. Detailed requests should be in writing. Copies of all relevant health or care records can be provided to the Public Guardian or Court of Protection visitor, as well as what the record holder thinks may be relevant to the specific decision can be provided to IMCAs Information Governance People caring for, or managing the finances of, someone who lacks capacity may need information to: assess the person’s capacity to make a specific decision determine the person’s best interests, and make appropriate decisions on the person’s behalf 18 When receiving requests for personal information about someone who may lack capacity, practitioners must have regard to the Data Protection Act and relevant local policy. In addition the Mental Capacity Act Code of Practice will provide guidance. It is only lawful to reveal someone’s personal information if: there is a legitimate aim in doing so a democratic society would think it necessary to do so, and the kind and amount of information disclosed is in relation to the need For further advice contact should be made with the relevant Information Governance Team. Liability and Staff Protection for acts Done Under Section 5 MCA Staff will not be liable because they have not got consent for a course of action in connection with care and treatment (apart from restraint: see below) as long as they: take ‘reasonable steps’ to determine whether the person lacks capacity to consent to the action have a reasonable belief that the person lacks capacity in that context Have considered the Best Interests of that person and are acting within the Five Principles of the Act (see 1.4 above) Do not contravene the wishes of an LPA or deputy, or a valid and applicable Advance Decision to Refuse Treatment This protection is limited to undertaking acts without the consent of a person. It does not protect against the ‘standard’ liability for loss or damage or negligence – either in carrying out a particular act or by failing to act where necessary. Change of Residence Staff should follow the two-stage capacity test and best Interests guidance, and consider referral to an IMCA, if a change of residence is proposed for a person who lacks (or may lack) capacity about such a change. Staff should fully assess capacity and best interests where complex community care packages are proposed, especially when there are concerns about risk. The assessments should be recorded. If there is serious disagreement among proper decision-makers, despite IMCA referral and case meetings, referral to the Court of Protection for a Best Interests decision may be necessary. Section 6 (see below) provides clear limits to the use of force or restraint, for example when helping someone move, nor should a Section 5 action amount to a Deprivation of Liberty. 19 Healthcare and treatment The Code of Practice distinguishes between urgent treatment and treatments with serious implications which require special consideration. The courts will be supportive of healthcare professionals who act in good faith to treat people lacking capacity in urgent situations, unless those professionals are aware of clear reasons why the treatment should not be given. The courts will expect professionals to have considered capacity and best-interests in line with the MCA and Code of Practice in managing people who lack capacity and in whom treatments with serious implications are being considered. Restraint The Act defines restraint as ‘using (or threatening to use) force to do an act which the person resists’ or ‘restricting the liberty of movement of someone who lacks capacity whether or not the person resists’. Restraint can be verbal or physical (for example, threatening a person with an action, holding them down, locking them in a room, or sedating them). The Act allows a limited degree of restraint when carrying out care or treatment only if there is reasonable belief that it is necessary to prevent harm to the person. The restraint must be proportionate to the likelihood and seriousness of harm. Restraint (or restriction) should not be frequent, cumulative or on-going since this may amount to a Deprivation of Liberty (DoL). The Deprivation of Liberty Addendum to the Mental Capacity Act (April 2009) requires that specific authorisation be sought by any individual or organisation restraining or restricting a person in such a way as to deprive them of their liberty. Transport Health and social care professionals and police and ambulance personnel need to take reasonable steps to ascertain capacity to consent and make a best- interests decisions to transport. In general it is lawful to convey people who lack capacity as long as it is done to prevent harm and that it is proportionate to the seriousness of harm (the expectation of prior assessment is lower in urgent or emergency situations). People cannot be transported for treatment if they have made a valid and applicable advance decision to refuse treatment. Health and safety considerations, lone working, insurance provision and appropriate risk assessments continue to have primacy when transporting vulnerable people. Informal Carers can convey a person without specific consent as long as they have taken reasonable steps to ascertain that the person lacks capacity to agree to be conveyed, and that it is in their best interests to be conveyed. 20 Advance Decisions Regarding Treatment for Customer’s The Act supports the use of advance statements, in which people record their wishes and preferences for care and treatment while they still have capacity. General advance statements need not be in writing, but a valid advanced decision about life-sustaining treatment has to be in writing, signed and witnessed. Such advance statements can be withdrawn or altered while the person still has capacity to do so. Staff will need to make reasonable efforts (including if necessary contacting the Office of the Public Guardian) to ascertain whether service users have an LPA, or Court Deputy or Advance Statement or valid ADRT is in place. LPA, Enduring Power of Attorney and Advance Decision Existing Enduring Powers of Attorney are still valid after October 2007. An LPA is a formal process by which a person gives a person(s) they trust authority to make decisions on their behalf should they lose capacity in the future. An LPA must be registered with the Office of the Public Guardian before use. Property and Affairs LPAs deal with finance, and Personal Welfare LPAs deal with personal care issues (including decisions on medical treatment). Clinicians should consider discussing LPAs with patients, but must not use undue pressure. Staff that are concerned that service users may have an EPAs, LPAs or deputy should contact the Office of the Public Guardian to check they are registered. Advance Decisions that are applicable and valid still apply unless they relate to treatment for mental disorder following detention under the MHA when the MHA takes precedence. Children The term ‘children’ is used for people under the age of 16, and ‘ y o u n g people’ for those aged 16 and 17. Children under 16 In most situations the care and welfare of children under 16 will continue to be dealt with under the Children Act 1989. However under the MCA the Court of Protection can make decisions concerning the property and affairs of a child under the age of 16, where it considers it likely that the child will lack capacity to make decisions about their property and affairs even when they are 18. 21 Young People aged 16 and 17 Most of the provisions of the MCA (including requirement for IMCA) apply to people aged 16 & over. However only persons aged 18 or over can make a Lasting Power of Attorney, an advance decision to refuse treatment, or a Will. Some young people who lack capacity, and who have no family or friends able to support them appropriately, will already be using an advocacy service. The decision-maker has discretion to decide whether connection with such advocates is sufficiently robust to constitute an appropriate support for an otherwise ‘unbefriended’ young person facing the sort of decisions that might require an IMCA. Working with parents who may lack capacity Health and social care staff working with children and young people w h o s e parents may lack capacity in relation to important decisions will need t o b e aware of the principles of the Act and the Code of Practice. Interface With The Mental Health Act 1983 Professionals may need to think about using the MHA to detain a person and treat their mental disorder if they lack capacity to consent to treatment (rather than use the MCA), if: it is not possible to give the person the care or treatment they need without doing something that might deprive them of their liberty the person needs treatment that cannot be given under the MCA (for example, because the person has made a valid and applicable advance decision to refuse an essential part of treatment) the person may need to be restrained in a way that is not allowed under the MCA it is not possible to assess or treat the person safely or effectively without treatment being compulsory (perhaps because the person is expected to regain capacity to consent, but might then refuse to give consent) the person lacks capacity to decide on some elements of the treatment but has capacity to refuse a vital part of it – and they have done so, or there is some other reason why the person might not get treatment, and they or somebody else might suffer harm as a result If the person is a resident anywhere other than in a Psychiatric Ward, before making an application under the MHA, decision-makers should consider whether they could achieve their aims safely and effectively by using the MCA instead. 22 Policy Overlap Reference should be made to other relevant local policies which may overlap with this Mental Capacity Act policy. Relevant Policy will include the following (not exhaustive list) Deprivation of Liberty Safeguards Policy Hoarding Protocol High Risk Service Protocol Recording policy 23 Mental Capacity Act 2005 Record of Mental Capacity Assessment Guidance: This form is to be used to record a capacity assessment, when a major decision needs to be taken, and there is concern that the person may lack capacity to make the specific decision. It should be completed by the relevant Decision Maker (who fulfils this role will depend upon the nature of the decision but it is important that this is clarified from the outset). The Decision Maker is responsible for the assessment of mental capacity but can seek the views of others who know the person to help them. Referrals to specialist mental health or learning disability professionals may be needed in some particularly complex cases but is expected that staff will have the necessary skills to carry out mental capacity assessments in most situations. Where a referral for specialist input is needed, the decision maker remains responsible for reaching the final decision about a person’s capacity, and not the professional who is there to advise. Click here for the Mental Capacity Act 2005 code of practice. 1. Basic details Customer name: Carefirst ID: Date of birth: Name of assessor: Job title: 2. Background information What has prompted this assessment (include a summary of relevant history)? What is the specific decision that needs to be made? 3. Stage 1 assessment of capacity Is there an impairment of, or a disturbance in, the functioning of their mind or brain? Please select 24 What is the evidence for this impairment or disturbance? If the person does not have impairment or disturbance in the functioning of their mind or brain, then you should assume that the person has capacity to make the decision. If this is the case go to section 7. Otherwise, proceed to section 4. 4. Support with decision making Can the decision be delayed until the person recovers or gains skills to make the decision themself? (This would apply if a person has fluctuating or temporary capacity) Yes No Comment: What information was given to the person to help them make the decision? (This would include: information about the different options and their likely consequences) How were communication needs addressed? (For example: use of interpreters, symbols or pictures, large print, and/or assisted by Speech & Language Therapist) What additional actions were taken to enhance the person’s capacity? (This may include: meeting at a specific venue or time of day, ensuring the person has support from a family member or advocate) 5. Stage 2: does the impairment or disturbance mean that the person is unable to make a specific decision when they need to? Date of interview(s): Location of interview(s): Does the person understand relevant information about the decision to be made? Yes No 25 Evidence: Can the person retain information for long enough to use it to make the decision? Yes No Evidence: he was able to remember his previous experience Can the person use and weigh information as part of the decision making process? Yes No Evidence: Can the person communicate their decision by any means? Yes No Evidence: A ‘No’ answer in any of the 4 domains above constitutes incapacity 6. Involvement of others (Give name, relationship and views about person’s capacity) Name Relationship/discipline Stated views 7. Assessment summary Signature of Decision maker: Date: If the person has been assessed as lacking mental capacity, the Decision Maker should now use the best interests’ checklist to make the decision 26 Mental Capacity Act 2005 Record of Best Interests Decision Guidance: This form should only be used once it has been established that the person lacks mental capacity to make the specific decision at the time it needs to be made. The decision maker is responsible for assessing the capacity of the relevant person and for making a decision in the person’s best interests. The decision maker should use this form to evidence that they have met the statutory requirements of the best interests checklist. The following people should be consulted when determining best interests: anyone named by the person as someone to be consulted on the matter in question anyone engaged in caring for the person anyone with an interest in their welfare including close relatives an attorney appointed under a Lasting Power of Attorney or Enduring Power of Attorney any deputy appointed for the person by the Court of Protection An Independent Mental Capacity Advocate (IMCA) must be instructed, for people lacking capacity who have no-one else to support them (other than paid staff), whenever a decision needs to be made about: serious medical treatment or accommodation in a hospital or a care home and the person will stay in hospital longer than 28 days, or they will stay in a care home for longer than 8 weeks There is also discretion to instruct an IMCA when carrying out a review, or in a safeguarding adults case. Click here for the Mental Capacity Act 2005 code of practice. 1. Basic details Customer name: Care first ID: Date of birth: Name of decision maker Job title: Decision to be made: Date mental capacity assessment carried out: 27 Is this form being used to record a formal best interests meeting? Yes No Date of meeting: Venue: 2. Do any of the following apply? Enduring Power of Attorney Only applies to property & affairs. If there is a valid EPA and the decision concerns property or financial affairs, then the attorney is the decision maker. If in doubt, ask for evidence. The attorney must still be consulted even if the decision does not fall within the scope of their authority. Lasting Power of Attorney Specify whether for property & affairs or personal welfare. If the decision falls within the scope of a valid LPA, the attorney is the decision maker. If in doubt, seek evidence. The attorney must still be consulted even if the decision does not fall within their scope of authority. Court of Protection Deputy Specify whether specific whether for property & affairs or personal welfare. If the decision falls within the scope of the deputyship order, then the deputy is the decision maker. If in doubt, seek evidence. The deputy must still be consulted even if the decision does not fall within their scope of authority. Advance Decision to refuse medical treatment If there is an valid advanced decision, this is legally binding. If in doubt, seek evidence. Describe any conflicts that may exist with the decision that needs to be made. Independent Mental capacity advocate (IMCA) Refer to criteria above. If an IMCA has been instructed, state the reason why. Yes No Details of EPA: Yes No Details of LPA: Yes No Details: Yes No Details: Yes No Details: 3. Relevant circumstances (Try to identify all the things that the person who lacks capacity would take into account if they were making the decision or acting for themself) 28 4. Views of the person who lacks capacity (This includes past and present wishes and feelings, any beliefs or values, and any other factors the person themselves would be likely to consider if they were making the decision or acting for themselves) 5. Consider whether the person is likely to regain capacity (e.g. after receiving medical treatment. If so, can the decision wait?) 6. Consultation with interested others (e.g. friends, family, carers, LPA, Deputy, IMCA, other professionals) Name Relationship/ Job title Views about best interests 7. Consider less restrictive options (Can the decision be taken in a way which avoids restricting the person’s rights and freedom of action?) N/A 8. If the decision involves admission to a care home, will this involve deprivation of liberty? (This only applies if the decision related to admission to a care home. Refer to ‘factors amounting to deprivation of liberty’ tool) Yes No Not applicable Reasons: The home has a DOL authorisation in place. If yes, inform the safeguarding team immediately to ensure that a deprivation of liberty safeguards (DoLS) authorisation is in place prior to admission. 9. Are there any disputes or conflicts or interest with regards to this decision? How will these be addressed? 10. Best interests decision summary Considering all the factors what decision has been reached? 29 I confirm that this decision is the less restrictive option or intervention available, and that it has not been biased by age, gender, sexuality, religious beliefs, appearance or condition. I confirm that every effort has been made to communicate with the relevant person and interested parties. Signature of decision maker: Date: Please provide a copy of the completed form to everyone who has been consulted as part of the best interest decision making process. 30