אחים לילדים עם נכות

2015 ילוי

יתחפשמה םייחה לגעמ ךרואל הלחמו תוכנ

76-755-01 ; 76-756-01

רלדניפ הרואיל 'פורפ :הצרמה םש

: רטסמס )

םוקיטקרפו ןוירנימס :סרוקה גוס

2016-2015 ( ו "עשת : םידומיל תנש ש"ש 4 : תועש ףקיה 'ב+'א

סרוקה תורטמ .א

םייחה ךלהמ ךרואל הלחמו תוכנ םע תודדומתה לש םייתרבחו םייתחפשמ ,םיישיא םיטבה ןוחבל הנ יה סרוקה תרטמ

הלחמ תוכלשה ;

םייתוחתפתהה ם

תוכנ םע טרפה

ירבעמ תעבו

םע תודדומתה לש םיינכדע םייטרואת םילדומ :וללכי סרוקה ינכת

םייחה ךלהמב םהיניב םיסחיה לעו

.החפשמה לש

הירבח ראש לע החפשמה ינבמ דחא לש תוכנו

חתפל תנמ לע הרבחה תודמע םע החפשמהו טרפה תודדומתה וללכי סרוקה ינכת ,ןכ ומכ .םייופצ יתלבו םייביטמרונ

.הלחמ/תוכנ םע םידדומתמה םישנאה לש הרבחב האלמ תופתתשה ל ךרוצל תועדומ

:סרוקה ןכות .ב

תבחרומהו תיניערגה

.םדאה לע תוכנו ילוח לש תויתרבחהו תויתחפשמה ,תוישגרה תוכלשהה ונודיי

החפשמב תופסונ תויומד לע תיתחפשמה המרב תוכנהו הלחמה תוכלשה ונודיי

טרפה ת מרב

, ןכמ רחאל

הכימת תוכרעמו ) םידלי םירוה יסחי ,תויגוז ( םיירודניב םירשקו םיסחי תוכרעמ ; )תותבסו םיבס ,םיאחא ,גוז ינב(

.)תילמרופ יתלבו תילמרופ( תיתרבח

םע םישנא

.

לש הלכהו הרדהו םיפיטואירטס ,תודמע

םייחה ימוחת לכב

,)םימחר( תוכנ םע םישנא יפלכ תושגר

םהיתוחפשמו תוכנ םע םישנא לש האלמ תופתתשה ראותת ןכו ,

ונודיי תיתרבחה המרב

םהיתוחפשמ ינב ו תויוכנ

.

סוחיה תיירואית ,תורשקתהה תיירואית ,תיבויח היגולוכיספ ,םוקישה הדשמ םייטרואית םילדומו תושיג בלשי סרוקה

םוקיש תורגסמב םירויסו םיטנדוטסה ידי לע וגצויש תוגצמ ,חרוא תואצרה ,תואצרה ללוכ סרוקה :םירועישה ךלהמ

.תוידוחי

:םירועישה לכל תטרופמ הארוה תינכת

'א רטסמס

תשרדנ האירק

Katz, S., & Florian, V. (1986-1987). A comprehensive theoretical model of psychological reaction to loss.

International Journal of Psychiatry in Medicine, 16 (4) , 325-

רועישה אשונ

אובמ ,תורכה

תרהבה +םוקישל

תולטמ

'סמ

רועישה

1

341.

) 1096144 ( סיפדת

Martz, E., & Livneh, H. (2007). Coping with chronic illness and disability: theoretical and empirical aspects . New York:

םייסאלק םילדומ

םוקישב םישדחו

2

Springer.

היגולוכיספל היירפסב

) 2372913 ( ינורטקלא םגו 616.044 COP 2007 (1137179)

Frank, R.G., &Eliott, T.R. (2000). Handbook of Rehabilitation

Psychology . Washington DC: APA.


) 1179527 ( ינורטקלא םגו 617.03019 HAN 2000 (459726)

Riggar, T. F., & Maki, D. R. (2004). Handbook of Rehabilitation

Counseling.

New-York: Springer.

362.404 HAN 2004 (2375063)



3

1

2


Wilson, S. (2006). To be or not to be disabled: The perception of disability as eternal transition. Psychodynamic Practice, 12

(2), 177-191.

) 1226766 ( ינורטקלא תע בתכ

Livneh, H., & Wilson, L. M. (2003). Coping strategies as predictors and mediators of disability- related variables and psychosocial adaptation: an exploratory investigation.

Rehabilitation Counseling Bulletin, 46 (4) , 194-208.


םע םישנא תקוסעת (Best Practice) יבטימ םושיי .) 2015 ( .ש ,ימרבא

,)םיכרוע( ןמדלפ .קו ,ינבדבד .א ,בבוח .מ ךותב .לארשי תסנכב תולבגומ

'מע( לארשיב תויולבגומ םע םישנא לש הליהקב םייחה הלכהל הרדהמ

למרכ:םילשורי ,ל"קש .) 423-438

) 2403658 ( הל.דהמ E362.4

Warren, S. F. (2007). Reflections on the future of research in developmental disabilities. In J. Blacher, S. L. Odom, R. H.

Horner & M. E. Snell (Eds.). Handbook of developmental disabilities . (pp. 614-624). New York: Guiford Press.

616.8588 HAN 2009 (1216372)

Caroll, W.D. (2013). Families of children with developmental disabilities . Washington DC: APA.

) 2385126 ( ינורטקלא רפס

Cadell, S., Hemsworth, D., Smit Quosai, T., Steele, R.,

Davies, E., Liben, S., Straatman, L., & Siden, H., (2014).

Posttraumatic growth in parents caring for a child with a lifelimiting illness: A structural equation model. American Journal of Orthopsychiatry, 84 (2), 123-133.


Boström, P. K., Broberg, M., & Hwang, P. (2010). Parent's descriptions and experiences of young children recently diagnosed with intellectual disability. Child Care, Health &

Development , 36 (1), 93-100.


Mikulincer, M., & Shaver, P. R. (2007). Attachment in adulthood . New-York: Guilford.

) 1129488 ( MIK יפל רומש

Tessier, R. Tarabulsy, G. M., Larin, S. Laganiere, J. &

Gagnon, M.F. (2002). A home based description of attachment in physically disabled infants. Social Development , 11 (2),

147-165.


Fiamenghi, G. A., Vedovato, A. G., Meirelles, Maira C., &

Shimoda, M. E.

(2010). Mothers' interaction with their disabled infants: two case studies. Journal of Reproductive and Infant

Psychology, 28 (2), 191-199.




תוכנ םע דלי תדיל

תוכנ םע דלי לודיג

תביטקפסרפמ

תורשקתהה

'סמ

רועישה

4

5

6

3

תשרדנ האירק רועישה אשונ


Fonseca, A., Nazaré, B., & Canavarro, M. C. (2013). Parental psychological distress and confidence after an infant’s birth:

The role of attachment representations in parents of infants with congenital anomalies and parents of healthy infants.

Journal of Clinical Psychology in Medical Settings, 20 (2), 143-

155.

)

327130

( ינורטקלא תע בתכ

Florian, V., & Findler, L. (2001). Mental health and marital adaptation among mothers of children with cerebral palsy.

American Journal of orthopsychiatry, 71 (3), 358-367.

) 119203 ( ינורטקלא םגו היגולוכיספל היירפסב תע בתכ

Warner, H. K. (2006). Meeting the Needs of Children with

Disabilities: Families and professionals facing the challenge .

New-York: Routledge.

ןיא

Woodman, A. C. (2014). Trajectories of stress among parents of children with disabilities: A dyadic analysis. Family

Relations: An Interdisciplinary Journal of Applied Family

Studies, 63 (1), 39-54.


וא

Woodman, A. C., Mawdsley, H. P., & Hauser-Cram, P. (2015).

Parenting stress and child behavior problems within families of children with developmental disabilities: Transactional relations across 15 years.

Research in Developmental

Disabilities, 36, 264-276.


Minnes, P., Perry, A., & Weiss, J. A. (2015). Predictors of distress and well ‐ being in parents of young children with developmental delays and disabilities: The importance of parent perceptions. Journal of Intellectual Disability Research,

59 (6), 551-560.


Ellingsen, R., Baker, B. L., Blacher, J., & Crnic, K. (2014).

Resilient parenting of children at developmental risk across middle childhood. Research in Developmental Disabilities, 35

(6), 1364 –1374.


Strecker, S., Hazelwood, Z. J., & Shakespeare-Finch, J.

(2014). Postdiagnosis personal growth in an Australian population of parents raising children with developmental disability. Journal of Intellectual and Developmental Disability,

39 (1), 1-9.


םע דלי לודיג תוכלשה

ומאו ויבא לע תוכנ

ךרה ליגב

םע דלי לודיג תוכלשה

ומאו ויבא לע תוכנ

תודליה ךלהמב

'סמ

רועישה

7

8

4


Findler, L. & Vardy, A. (2009). Psychological Growth among

Siblings of Children with and without Intellectual Disabilities.

Journal of Intellectual and Developmental Disabilities, 47 (1) ,

1-12.

ןיא

Davys, D., Mitchell, D., & Haigh, C., (2011). Adult sibling experience, roles, relationships and future concerns —A review of the literature in learning disabilities. Journal of Clinical

Nursing, 20 (19-20), 2837-2853.


Moyson, T., &Roeyers, H. (2012). The overall quality of my life as a sibling is all right, but of course, it could always be better’.

Quality of life of siblings of children with intellectual disability:

The siblings' perspectives . Journal of Intellectual Disability

Research, 56 (1), 87-101.


תוחפשמב תיתרבח הכימת רוקמכ תותבסו םיבס .) 2005 ( .ל ,רלדניפ

רוד ,תובסהו םיבסה :טבמ תודוקנ שולשמ תורפס תריקס .תוכנ םע םידליל

395-411 , ) 3 ( ה"כ ,החוורו הרבח .עוצקמה ישנאו םייניבה

) 114070 ( ינורטקלא םגו 4 םלוא ב תע בתכ

Findler, L. (2014). The Experience of Stress and Personal

Growth among Grandparents of Children with and without

Intellectual Disabilities. Intellectual and Developmental

Disabilities . 52 (1), 32-48


Lee, M., & Gardner, J. E. (2010). Grandparents' involvement and support in families with children with disabilities.

Educational Gerontology, 36 (6), 467-499.


Trute, B., Worthington, C. & Hebert-Murphy, D. (2008).

Grandmother support for parents of children with disabilities: gender differences in parenting stress. Families , Systems &

Health, 26 (2), 135-146.


Findler, L., Sharaby, M. & Yaniv, I. (2014). The Overlooked

Side of the Experience: Personal Growth and Quality of Life among Grandparents of Children who Survived Cancer.

Journal of family Social Work, 17 (5), 418-437.


Miller, E., Buys, L., & Woodbridge, S. (2012). Impact of disability on families: Grandparents' perspectives. Journal of

Intellectual Disability Research, 56 (1), 102-110.


דלי תוחכונ תוכלשה

ויחא לע תוכנ םע

ויתויחאו

ירוד ןיבה רשקה

םע םידליל תוחפשמב

תוכנ



תוכנ

רויס



תוכנ

'סמ

רועישה

9

10

11

12

13

5


Emmons, R. A. & McCullough, M. E. (2004). The psychology of gratitude . Oxford Uni. Press: New York

155.232 PSY 2004 (1212623)

Tangney, J. P. & Dearing, R. L. (2002).

Shame and guilt .

Guilford: New-York.

ןיא

Erel-Brodsky, H. (2014). Ghosts in the nursery: The secret thoughts of a sick child's parents. American Journal of

Psychotherapy, 68 (1), 81-102.


Jessop, D. J. & Stein, R.E.K. (1993). A non categorical approach to psychosocial research. Journal of Psychosocial

Oncology , 1 (4), 61-64.

תע בתכ

הפשב םינויע .תיזיפ תולבגומ םע תוהמא לש ןלוק .) 2015 ( .נ .כ ,ןמלגיפש

.

169-184 , ) 1-2 ( 7 ,הרבחו


םע םדא שי ןהבש תוחפשמ לש תיתחפשמ תודדומתה .) 2015 ( .ד ,דעלג

הלכהל הרדהמ ,)םיכרוע( ןמדלפ .קו ,ינבדבד .א ,בבוח .מ ךותב .תולבגומ

,ל"קש .) 217-245 'מע( לארשיב תויולבגומ םע םישנא לש הליהקב םייחה

) 2403658

.למרכ

( הל.דהמ

:םילשורי

E362.4

םע םישנא לש תיטילופו תיתרבח תופתתשה .)

.א ,בבוח .מ ךותב .םייחה תואיצמ לומ םיכרע

2015 ( .ט ןמגרב ןטרא

לארשיב תולבגומ אללו

םישנא לש הליהקב םייחה

למ רכ

הלכהל הרדהמ

:םילשורי ,ל"קש .)

,)םיכרוע( ןמדלפ .קו ,ינבדבד

155-180

)

'מע( לארשיב תויולבגומ םע

2403658 ( הל.דהמ E362.4

.תרושקתב תויוקל םע םישנא יגוציי :םיעצופ םייומיד .) 2015 ( .ע ,המק

םייחה הלכהל הרדהמ ,)םיכרוע( ןמדלפ .קו ,ינבדבד .א ,בבוח .מ ךותב

,ל"קש .) 181-213 'מע( לארשיב תויולבגומ םע םישנא לש הליהקב

למרכ :םילשורי

) 2403658 ( הל.דהמ E362.4

Antonak, R. F., & Livneh, H. (2000). Measurement of attitudes toward persons with disabilities. Disability and Rehabilitation,

22 (5), 211-224.


Vilchinsky, N., Werner, S., & Findler, L. (2010). Gender and attitudes toward people using wheelchairs: A multidimensional perspective. Rehabilitation Counseling Bulletin , 53 (3), 163 –

174.


Vilchinsky, N., Findler, L. & Werner, S. (2010). Attitudes toward people with disabilities: the perspective of attachment theory.

Rehabilitation Psychology , 55 (3), 298 –306.


החפשמב תושגר

'ב רטסמס

'סמ

רועישה

1

תירוגטקה השיגה

תירוגטק ןונהו

תודדומתה

םע החפשמה

הרבחה תודמע

םע םישנא יפלכ

תוכנ

2

3

6



Findler, L., & Vilchinsky, N. (2007). The multidimensional attitudes scale toward persons with disabilities (MAS).

Construction and validation. Rehabilitation Counseling Bulletin ,

50 (3), 166-176.


Vilchinsky, N., & Findler, L. (2004). Attitudes Toward Israel’s

Equal Rights for People with Disabilities Law: A Multiperspective Approach. Rehabilitation Psycholo gy, 49 (4) , 309-

316.


Francis, A. (2012). Stigma in an era of medicalisation and anxious parenting: How proximity and culpability shape middleclass parents’ experiences of disgrace.

Sociology of Health &

Illness , 34 (6), 927-942.


Amado, A. N., Stancliffe, R. J., McCarron, M., &McCallion, P.

(2013). Social inclusion and community participation of individuals with intellectual/developmental disabilities.

Intellectual and Developmental Disabilities, 51 (5), 360-375.


Berg-Weger, M., McGartland R., &Tebb, S.S. (2001).

Strengths-based practice with family caregivers of the chronically ill: Qualitative insights. Families in Society, 82 (3),

233-242.

) 136054 ( ינורטקלא םגו תע בתכ

Charuvastra, A., & Cloitre, M. (2008). Social bonds and posttraumatic stress disorder. Annual Review of Psychology,

59 ( 1), 301-328.


Gallagher, S. (2014). Social support and mastery influence the association between stress and poor physical health in parents caring for children with developmental disabilities. Research in

Developmental Disabilities, 35 (9), 2215 –2223.


Fonseca, A., Nazaré, B., & Canavarro, M. C. (2014). The role of satisfaction with social support in perceived burden and stress of parents of six-month-old infants with a congenital anomaly: Actor and partner effects. Journal of Child Health

Care, 18 (2), 178-191.


Park, C. L., Lechner, S. C., Antoni, M. H., & Stanton, A. (2009).

Medical Illness and Positive Life Change.

Washington: APA.

) 1182998 ( ינורטקלא רפס

םיבסו םיאחא ,םירוה :םיעלקה ירוחאמ החימצ .) 2011 ( .ל ,רלדניפ


הכימת תוכרעמ

יתלבו תוילמרופ

תוילמרופ

הכימת תוכרעמ

יתלבו תוילמרופ

תוילמרופ

יארב ילוחו תוכנ

היגולוכיספה

תיבויחה

'סמ

רועישה

4

5

6


'סמ

רועישה

בולישמ .)םיכרוע( ימזוה .בו בבוח .מ ךותב .תוכנ םע םידליל תותבסו

:םתור ) 227-258 דומע( .

םייחה לגעמב החימצו םירגתא : תובלתשהל

.םייתעבג

) 2360912 ( א"עשת הל.לשמ E362.3

McConnell, D., Savage, A., Sobsey, D., & Uditsky, B. (2015).

Benefit-finding or finding benefits? The positive impact of having a disabled child. Disability & Society, 30 (1), 29-45.


Horsley, S., & Oliver, C. (2015). Positive impact and its relationship to well-being in parents of children with intellectual disability: A literature review. International Journal of

Developmental Disabilities, 61 (1), 1-19.


Breitkreuz, R., Wunderli, L., Savage, A., & McConnell, D.

(2014). Rethinking resilience in families of children with disabilities: a socioecological approach. Community, Work &

Family, 17 (3), 346-365.


Elliot, T. R., Kurylo, M., & Rivera, P. (2002). Positive growth following acquired physical disability. In S. J. Lopez & C.R.

Snyder (Eds.). Handbook of Positive Psychology (pp. 687-

799). New-York: Oxford University Press.

150.198 HAN 2002 (551496)

Wehmeyer, M. L. (2013). The Oxford Handbook of Positive

Psychology and Disability . Oxford

155.916 OXF 2013 (2389181)



תיבויחה



תיבויחה

םיטנדוטס תואצרה




הנשה םוכיס

7

8

םירועישה ךלהמב האלמ תוחכונ

:סרוקה תובוח .ג

●

בתכב תיפוס הדובע שגות התיכב בושמ רחאלו סרוקה יפתתשמ ראש ינפל אשונ ה/דימלת לכ גיצת/י הנשה ךלהמב ●

.)'ב רטסמס לש ןורחאה םויב(

:תויורשפא יתש ןיב רוחבל ןתינ

גיצהל טנדוטסה לע .ותדובע םוקממ )'וכו

תובקעבו ,התיכה ינפב הצרי י תי/טנדוטסה

םיסחי תכרעמ , יתחפשמ ךילהת ,המל י ד( אשונ רוחבל תי/טנדוטסה לע .

א

.תומילשמו תונוש תושיג תאבה ךות אשונ ה לש תינכדע תיטרואית הריקס

תורפס תריקסו אשונה תגצה לולכת וז הדובע .תיפוסה הדובעה תא בותכת/ בותכי , הצרמהו התיכה ירבח לש בושמה

.

תוימושיי תוכלשה ל תוסחייתה ךות הקימעמ ו תינכדע )תיריפמאו תיטרואת(

.שבוגמ יטרואית עדי ןיא ויבגלש םוחת וא אשונ לע שושיג רקחמ .

ב

תדובע וא רמאמל ינושאר סיסב כ וז הדובע תוארל ןתינ( הצרמה ידי לע ויבלש לכב הוולי הדובעה תביתכ ךילהת

תיפוס הדובע + התיכה ינפב אשונ תגצה +תוחכונ :

.)הזית

יפוסה ןויצה יביכרמ

9

10

11

12

13

7

סרוקה תולטממ תחא לכב ) 60 = רבוע( רבוע ןויצ לבקל שי ,םכתעידיל

.סרוקב ןולשכ ועמשמ תחא הלטמב ןולשכ

.התיכב הצרמה עידוה וילע ךיראתה דע שיגהל שי תודובעה תא

.תינשב סרוקה תא דומלל ביוחי טנדוטסהו וקדבי אל רוחיאב ושגויש תודובע

לע תססובמ וא רחא סרוקב השגוהש הדובע שיגהל ןתינ אל .תירוקמ תויהל הכירצ הדובע לכ ,קפס רסה ןעמל

.הרקמ ותוא

:היפרגוילביב .ד

:םוקישב תצלמומ תיללכ האירק תמישר

Antonak, R. F., & Livneh, H. (2000).Measurement of attitudes toward persons with disabilities.

:אובמ

Disability and Rehabilitation, 22 (5), 211-224.


Davis, L. J. (2010). The Disability Studies Reader.

New-York: Routledge.

362.4 DIS 2013 (2380803)- ) 2013 ( 4 הרודהמ

Frank, R. G., & Elliott, T. R. (2000).

Handbook of Rehabilitation Psychology, Washington: APA.

) 1179527 ( ינורטקלא םגו

617.03019 HAN 2000 (459726)-


Hammell, K. W. (2006). Perspectives on Disability & Rehabilitation. Contesting assumptions: challenging practice . Edinburgh: Elsevier.

362.4 HAM p (2388881)

Ingstad, B. & Whyte, S. R. (Eds.).(2007). Disability in local and global worlds.

CA, Berkeley:

University of California Press.

362.4 DIS 2007 (2388882)

Katz, S., & Florian, V. (1986-1987). A comprehensive theoretical model of psychological reaction to loss.

International Journal of Psychiatry in Medicine , 16 (4), 325-341.

) 1096144 ( סיפדת

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