Elective Access Policy Originator: Lead Director: Version No: Implementation Date: Ratified By: Date of Review: Date of Next Review: Patient Access and Waiting List Manager Director of Operations V1.2 September 2014 Outpatients Steering Group March 2015 March 2016 Section Number Contents Page 1. Introduction 6 1.1 Guiding principles 6 1.2 Scope of the policy 6 1.3 Purpose of the Policy 6 1.4 Responsibilities 7 2. General Access Rules 8 2.1 Patients entitlement to NHS Treatment 8 2.2 Patients not eligible to NHS Treatment 8 2.3 Patients transferring from the Private sector to the NHS 9 2.4 Patients transferring from the NHS to private 9 2.5 NHS Provider Commissioning Private Sector Service 9 2.6 Patients requiring commissioner approval 9 2.7 Access to Health Services for Military Veterans 10 2.8 Interpreter Requirements 10 2.9 Disabilities or Special Needs 10 2.10 Patient Transport 10 2.11 Religion and Ethnicity 10 3. National Operating Standards 11 3.1 Key Waiting Time Standards 11 3.2 RTT Monitoring Systems 12 3.3 RTT Rules Guidance 12 Page 2 of 54 4. The Patient Pathway 13 4.1 The Referral Process 13 4.1.1 Choose and Book 13 4.1.2 Specialty Level Referrals 13 4.1.3 Advice and Guidance 13 4.1.4 Direct Access Diagnostics Referrals 13 4.1.5 Urgent GP Referrals 14 4.1.6 Emergency Outpatient Appointments Referrals 14 4.1.7 Consultant to Consultant Referrals 14 4.1.8 Interprovider Transfers (IPT’s) 14 4.1.9 Self-Referrals 15 4.1.10 Fertility Pathways 15 4.1.11 The Trust’s responsibility 15 4.1.12 The Healthcare Professionals responsibility 15 4.1.13 Referral Triage (Grading Process) 16 4.2 Outpatient Booking Processes (Non Admitted Pathways) 16 4.2.1 New Outpatient Appointments 16 4.2.2 Offer of Appointment (New and Follow-up Appointments) 17 4.2.3 Full Booking 17 4.2.4 Partial Booking of Outpatient or Outpatient Diagnostic Appointment 17 4.2.5 Booking of Follow-up Appointments and Partial Booking of Follow-up Appointments 17 4.2.6 Patient Cancellations 18 4.2.7 Hospital Cancellations 18 4.2.8 Clinic Cancellation – Notice period greater than 6 weeks 18 4.2.9 Clinic Cancellation – Notice period less than 6 weeks 18 Page 3 of 54 4.2.10 Clinic templates 19 4.2.11 Failure to Attend an Outpatient Appointment (DNA’S) 19 4.2.12 Late arrival for an appointment 20 4.2.13 Failure to Attend a Paediatric Outpatient Appointment (DNA’s) 20 4.2.14 Failure to Attend suspected cancer, vulnerable adults, and patients with notifiable diseases 20 4.2.15 Unable to contact patients 20 4.2.16 Outpatient Clinic Processes 21 4.2.17 Data Quality 21 4.2.18 Recording Clinical Outcomes 21 4.2.19 Clinical outcome – Open Appointment 22 4.2.20 Clinical outcome – Discharge 22 4.2.21 Clinical Outcome – Added to Elective Waiting List 22 4.3 Diagnostic and Pre-Operative Assessment Appointments 22 4.3.1 Direct Access Referrals (Imaging) 23 4.3.2 Appointments for Endoscopy Diagnostic Tests 23 4.3.3 Appointments for Outpatient Imaging 23 4.3.4 Pre-operative Assessment Appointments 23 4.4 Elective Admissions and Admitted Pathway Processes 24 4.4.1 Procedures of Limited Clinical Values (PLCV) 24 4.4.2 Patient Order for Elective Admission 24 4.4.3 Arranging Elective Admission & Patient Non-response to Contact Attempts 24 4.4.4 Reasonable Offer for Elective Admission and Patient Pauses 25 4.4.5 Patient Requested Review of Treatment Decision 25 Page 4 of 54 4.4.6 Patient Cancellations of an Agreed Date for Admission 25 4.4.7 Removals from the Waiting List for Reasons Other Than Treatment 26 4.4.8 Patients Failing to Attend Elective Admission Date (DNA) 26 5. Appendices Appendix 1 Referral to Treatment (RTT) rules 27 Appendix 2 Outpatient: Cancellation Process 29 Appendix 3 Outpatient: DNA Process 30 Appendix 4 Outpatient: Unable to Contact Process 31 Appendix 5 Inpatient: Cancellation Process 32 Appendix 6 Inpatient: DNA Process 33 Appendix 7 Inpatient: Unable to Contact Process 34 Appendix 8 Endoscopy: Cancellation Process 35 Appendix 9 Endoscopy: DNA Process 36 Appendix 10 Endoscopy: Unable to Contact Process 37 Appendix 11 Glossary of terms 38 Appendix 12 Cancer Services Access Policy 42 Page 5 of 54 1. Introduction Frimley Park Hospital NHS Foundation Trust (hereafter referred to as ‘the Trust’) is committed to providing an exemplary standard of care to patients and an important component part of this is patient access to services. The Trust is committed to provide a service that is fair and accessible to all, providing patient choice and delivering a positive patient experience. This policy outlines the scope and standards which must be followed explicitly for: • Referring patients into the Trust • Pathway management of all patients referred into the Trust • Current national standards and data definitions All clinical and non-clinical staff involved in patient pathway management must ensure that their processes and procedures are consistent with this policy 1.1 Guiding Principles The delivery of patient care will be patient focused, clinically led and consistent with the values of the Trust. Clear communication and transparency between all stakeholders, including referrers, hospital staff and patients, will underpin the delivery of services in the elective pathway. The Trust is committed to provide sufficient levels of resources to provide the best care for our patients and treat them within national waiting time standards. Patients are seen and treated based on their clinical need, providing fair and consistent access for all. Patients have a personal responsibility for their own health. 1.2 Scope of the Policy This policy applies to all patients referred electively into the Trust for investigation and treatment, and for all members of staff employed by the Trust. In particular it applies to those staff involved in delivering or supporting direct clinical care. 1.3 Purpose of the Policy The Purpose of this policy is to guarantee that the best interests of our patients are served by ensuring that the Trust’s services are managed in line with national waiting time standards and the NHS Constitution (April 2010). This document outlines the Trust and Commissioner Requirements and Standard Operating Procedures (SOP) for managing timely patient access to secondary care services from referral to treatment, as well as discharge to primary care. Page 6 of 54 This policy gives guidance to staff within the Trust on providing access to services for patients. This will be achieved by ensuring that all staff understand their role in managing patient access and the delivery of waiting time standards. 1.4 Responsibilities The Director of Operations has Board level responsibility for the Elective Access Policy and will ensure that all clinical managerial and administrative members of staff adhere to the policy. The Clinical Directors are responsible for ensuring that there is sufficient clinical capacity to meet elective demand. The Associate Directors within the Clinical Directorates are responsible for ensuring that their staff understand fully the principles and requirements of the policy and for ensuring that Standard Operating Procedures are in place and that staff fully comply with them. All Trust Managers and Team Leaders within the Clinical Directorates are responsible for ensuring that their individual teams are fully trained and understand the processes and procedures that must be followed explicitly to ensure that the requirements of the policy are met. All clinical staff are responsible for adhering to the policy, and for completing the required outcome documentation for each patient they see. All Staff are responsible for adhering to National guidelines and the principals outlined in this policy when organising and scheduling clinical care for patients. Page 7 of 54 2. General Access Rules 2.1 Patients Entitlement to NHS Treatment The NHS constitution clearly sets out a series of pledges and rights for what patients, the public and staff can expect from the NHS. A patient has the right to the following: The choice of hospital and consultant A referral from their GP for treatment into a consultant-led service, with a maximum waiting time of 18 weeks from referral for elective conditions To be seen by a cancer specialist within a maximum of two weeks from a GP referral for urgent referrals where cancer is suspected If this is not possible, the Trust has to take all reasonable steps to offer a range of alternatives. The right to be seen within the maximum waiting times does not apply: If the patient chooses to wait longer If delaying the start of the treatment is in the best clinical interests of the patient, for example where stopping smoking or losing weight is likely to improve the outcome of the treatment If it is clinically appropriate for the patient’s condition to be actively monitored in secondary care without clinical intervention or diagnostic procedures at that stage If the patient fails to attend appointments that they had chosen from a set of reasonable options, or If the treatment is no longer necessary The following services are not covered by this constitution: Maternity services Obstetric services Patients registered with a GP in either Northern Ireland, Scotland or Wales are also eligible for elective treatment, subject to prior approval from their local health board. Patients must be treated within the national waiting time standards. Failure to achieve these targets and thresholds will put the Trust at risk of breaching its terms of authorisation as a Foundation Trust and may lead to financial penalties within the NHS standard acute trust contract. 2.2 Patients not eligible to NHS treatment Page 8 of 54 The Trust has a legal obligation to identify patients who are not eligible for free NHS treatment. The NHS provides health care for people who live in the United Kingdom. People who do not normally live in this country are not automatically entitled to use the NHS free of charge – regardless of their nationality or whether they hold a British passport or have lived in and paid National Insurance contributions and taxes in this country in the past. All NHS Trust’s have a legal obligation to: Ensure patients who are not ordinarily resident in the UK are identified Assess liability for charges in accordance with Department of Health Overseas Visitors Regulations Charge those liable to pay in accordance with Department of Health Overseas Visitors Regulations The Human Rights Act 1998 prohibits discrimination against a person on any ground such as race, colour, language or religion. The way to avoid accusations of discrimination is to ensure everybody is treated equitably. The Trust needs to check every patient’s eligibility for treatment. An NHS number does not give automatic entitlement to free NHS treatment. Therefore, at first point of entry, patients may be asked questions which will assist the Trust in assessing ‘ordinarily resident status’. 2.3 Patients transferring from the Private sector to the NHS Patients can choose to convert between an NHS and Private status at any point during their treatment without prejudice. All patients wishing to transfer from the private service to the NHS must be offered choice and onwards referral to an NHS provider and their GP should be notified. Patients who are referred from a private service can be added direct to the NHS waiting list on the referral received date. They do not need an NHS appointment prior to the addition. 2.4 Patients transferring from the NHS to private Patients already on an NHS pathway opting to move to private care must have the relevant episodes cancelled from the NHS system. A new NHS to private referral must be created on the Patient Administration System (PAS) when care is transferred within the Trust. 2.5 NHS Provider Commissioning Private Sector Service There may be circumstances where the Trust chooses to commission services provided by the private sector to enable waiting time standards to be met. In this situation the RTT Pathway waiting time would continue with the Trust remaining accountable for the delivery of the RTT pathway standards. 2.6 Patients requiring commissioner approval Page 9 of 54 No referral for an excluded procedure should be accepted without prior approval from the relevant CCG. If the referral does not have the relevant approval the referral should be returned to the GP for them to request treatment funding approval via the relevant CCG panel. In some instances it will not be apparent until the outpatient consultation that the patient requires an excluded procedure. When it is identified at the outpatient consultation, the relevant clinician should request the GP to progress the funding application to the relevant CCG. All patients should be offered an outpatient appointment or other investigations as per the standard pathway. If they require an excluded procedure the GP should apply for approval. There may be instances however where it is more appropriate for the hospital clinician to seek commissioner approval. The contracts department can support clinicians in seeking commissioner approval. The Clinical Guidelines document which details all excluded procedures is available to view at http://www.frimleypark.nhs.uk/gps/clinical-guidelines, accessible in conjunction with a valid username and password. There are details via this link should you not possess valid login details. 2.7 Access to Health Services for Military Veterans It is the Healthcare Professionals responsibility to inform the Trust that the patient being referred is a Military veteran and that the condition they are being referred for is service related. Military veterans should be prioritised over other patients with the same level of clinical need if their condition is service related. An alert must be added to PAS and the patients case notes to identify the patient’s status. 2.8 Interpreter Requirements Where a patient requires an interpreter for an appointment or admission, this must be highlighted at the top of the referral or request, and also must clearly state the type of interpreter required. 2.9 Disabilities or Special Needs The Trust is committed to providing, wherever possible, a booking system to support the requirements of individuals with disabilities; this may involve for example booking an appointment time that is more suitable to the patient’s needs. We will continually work towards ensuring that individuals with disabilities are not disadvantaged by this policy; we will, through the impact assessment process and involvement with local disability groups, identify areas of concern and work to eliminate these issues wherever possible. 2.10 Patient Transport For initial appointments, patients will be required to contact their referring Healthcare Professional to arrange transport with the Central Booking Centre. Transport required for follow-up appointments can be made by the clinic receptionist at the end of the initial appointment. Page 10 of 54 2.11 Religion and Ethnicity The Trust is committed to providing, wherever possible, a flexible booking system to support the ethnic or religious requirements of the service user, for example, more suitable appointment times or female interpreter for female service users. We will continually work towards ensuring that individuals due to their ethnic or religious requirements are not disadvantaged by this policy; we will, through the equality assessment process identify areas of concern and work to eliminate these issues wherever possible. 3. National Operating Standards 3.1 Key Waiting Time Standards 95% of non-admitted patients will not wait longer than 18 Weeks (126 days) for their clock to stop. Non-admitted pathways are those that end in treatment that does not require an elective admission to hospital or where no treatment is required. 90% of admitted patients will not wait longer than 18 Weeks (126 days) for their clock to stop. Admitted pathways are those that end in an elective admission to hospital either as an elective inpatient or day-case for treatment. 92% of patients on an incomplete pathway will be within 18 weeks (126 days) of the referral. 99% of patients will wait no longer than 6 weeks for a diagnostic test, investigation or image. Patients referred on a suspected cancer pathway will be managed as per the Trust Cancer Access Policy (Appendix 9, page 38). The RTT pathway does not replace the Cancer waiting time target. The RTT pathway does not replace other waiting time targets or standards where these are shorter than 18 weeks. This includes waiting times for patients with suspected cancer or waiting times for Rapid Access Chest Pain clinics. Patients may have more than one RTT waiting time running simultaneously if they have been referred to and are under the care of more than one clinician at any one time. Each RTT pathway has to be measured and monitored separately and will have a unique patient pathway identifier in PAS. It should be noted that referral of any of the following patients are not applicable to the RTT waiting time, unless a new decision to treat or significant new plan of care is commenced where a new RTT clock would start: An obstetric or midwifery service The fracture clinic following an Emergency Admission or Emergency Department attendance All patients seen in the Outpatient Department following an emergency admission Page 11 of 54 3.2 RTT Monitoring Systems The Trust needs to know the clock start date, clock stop date and clock pauses for all RTT patient pathways. An RTT status should be recorded at each stage of the patient journey at the time of the patient appointment, contact or intervention. The Trust’s primary system for administrating patients and their pathways is PAS with other systems providing supporting information. All waiting lists must be held and managed on the PAS system, except for some specific services whereby another agreed Trust system is in place. The Trust will utilise patient tracking and booking lists (PTLs) for the management of patient pathways; these will include non-admitted, admitted, diagnostic and cancer. The PTLs are created from RTT entries made on the PAS system. All activities such as referrals, requests for admission and clinic outcome forms must be entered onto PAS in a timely manner and in accordance with this policy and standard operating action card procedures. Failure to add patient activities to the waiting lists and in a timely manner is a serious matter that can delay patient care unnecessarily and non-compliance with this policy may result in action being taken. The PTLs will be the central list of patients being seen at the Trust including those who are no longer on an active RTT pathway, which will be subjected to an audit cycle. The PTLs are distributed by the Information Department through the agreed mechanism and are the responsibility of the appropriate operational management and booking teams to access the information they require to book and schedule patients. The Trust will provide the necessary training to staff in the use of PAS and specific functions within the system relating to each individual member of staff’s job role ensuring a clear understanding of expectations is communicated. RTT training will be available for all staff to ensure accurate and timely data collection is performed which enables the Trust to meet reporting requirements both internally and externally. Standard letters of invitation, such as removal from the list, should be generated from PAS or another Trust system, when this is in place. This provides a uniform approach and an audit trail. The Trust standard letters should be used where appropriate. 3.3 RTT Rules Guidance The RTT pathway applies to elective pathways that involve consultant-led care. The RTT Rules Suite provides further definition of the RTT maximum waiting time standard and should be read in conjunction with this document. The RTT Rules Suite can be located within the following web address http://www.england.nhs.uk/statistics/rtt-waiting-times/rtt-guidance/ Page 12 of 54 4. The Patient Pathway 4.1 The Referral Process A referral is a decision made by a Healthcare Professional to refer a patient to a particular Healthcare Provider and to a particular service. It is the referring Healthcare Professional’s responsibility to inform the patient of the intention to refer into secondary care and ensure that the patient is ready, willing, and able to immediately start their pathway by booking an appointment. The responsibility lies with the referring healthcare Professional to ensure patients understand this before beginning an elective pathway. Where the referring Healthcare Professional knows that the patient is unavailable, for example on a tour of duty, extended holiday or has work or study commitments, the referral should not be made until a more appropriate time. 4.1.1 Choose and Book (CaB) Ultimately, the Trust expects that all referrals will be made via the Choose and Book (CaB) System where possible. CaB is the nationally recommended referral route allowing the patient choice over Provider, date and time of their appointment. All clinical information to support choice is contained within the Directory of Services (DoS). Healthcare Professionals can use the CaB system to search the DoS for clinically appropriate services or request advice and guidance about the most suitable care path for their patient. 4.1.2 Specialty Level Referrals Routine practice will see referrals made to a generic service rather than an individual. This will lead to improved waiting times across consultants and services to ensure patients are seen in a timely manner. As set out within the NHS Constitution, the Trust will work to ensure patients see the consultant of choice where a preference is expressed. 4.1.3 Advice and Guidance The Trust also accepts requests for Advice and Guidance (AaG). To provide a robust audit trail, these are encouraged through the CaB system. The Trust aims to respond to routine requests within 7 days, and urgent requests within 4 days. 4.1.4 Direct Access Diagnostics Referrals Page 13 of 54 The Trust operates a Direct Access Diagnostic Service where the GP can refer the patient for a diagnostic procedure only, with the intention that the responsibility for the patient remains with the GP and there is no intention for the patient to go on to see a consultant or enter a consultant led service at that stage. This does not start a RTT clock. However, if the GP chooses to refer the patient on into secondary care to a consultant led service on the basis of the test results the receipt of the new referral would start a RTT pathway. 4.1.5 Urgent GP Referrals Some patients will present at their GP and will require an urgent referral into a consultant led clinic. This referral is subject to Consultant triage, and once approved will be booked into the relevant slot on PAS. This referral will not be classed as an emergency attendance and therefore will generate a RTT start on the date of the GP telephone referral. A referral letter must also accompany the telephone referral prior to the patient being seen. 4.1.6 Emergency Outpatient Appointments Referrals The Trust accepts emergency referrals from Healthcare Professionals for patients needing to be seen the same day in the Eye Treatment Centre (ETC) and for Ear, Nose and Throat (ENT). These referrals will be made by telephone to the Senior House Officer (SHO) and will be supported by a paper referral accompanying the patient when they attend. These patients are classed as genuine emergencies and are therefore not applicable to a RTT Pathway. 4.1.7 Consultant to Consultant Referrals This type of internal referral should only occur where it is for the same condition as the original referral from the Healthcare Professional. Exceptions to this include any urgent or cancer related onward referrals. Any patient referred consultant to consultant will be managed in line with their RTT waiting time. All other unrelated conditions must be returned to the referring Healthcare Professional for the patient to be offered choice of provider. Where the referral is for the same condition as the original referral, the pathway must be linked. Where the referral is for a new condition, this would result in the generation of a separate RTT pathway and a clock start. These referrals must be prioritised alongside external referrals. 4.1.8 Interprovider Transfers (IPTs) Patients may be referred into the Trust from another provider. This is classed as an IPT and the referring Trust is mandated to accompany the referral letter with a minimum dataset containing the relevant 18 week information if applicable. Any patient transferred from another provider will be managed in line with their RTT waiting time. If the referral into the Trust is for a new condition this would result in the generation of a new RTT pathway and clock start at the receiving Trust. If the referral into the Trust is for a condition that the patient is already being seen for at the referring provider then the referring Hospital must provide the RTT clock position. The minimum dataset must include patient: Name Date of Birth NHS No Page 14 of 54 Address Patient Pathway Identifier (PPI) Current 18 week position Current RTT start date Date of decision to refer Incomplete RTT data is not an acceptable reason for delaying the acceptance of an appropriate referral; however this information must be obtained from the referring provider and the Trust PAS system updated. 4.1.9 Self-Referrals The Trust will only accept a patient self-referral into clinical pathways that have been agreed between the Trust and the relevant CCG. 4.1.10 Fertility Pathways There are specific arrangements for the application of RTT principles and rules to fertility patients and their families which can be found within the DoH website. 4.1.11 It is the Trust’s responsibility to: Ensure accurate, clear and up to date information about Outpatient, Advice and Guidance and Direct Access services provided by the Trust will be included on the CaB DoS and/or Trust Website, to ensure patients are referred into the most appropriate service reducing the need to redirect referrals. Monitor slot availability and forward plan for any identified capacity constraints. Accept and treat all referrals made to them that are clinically appropriate, and in accordance with the patient’s wishes 4.1.12 It is the Referring Healthcare Professionals responsibility to: Ensure that patients are only referred when they are ready, willing, and able to attend an appointment. Use the Choose & Book system wherever possible. Refer and book the patient into the most appropriate clinical service by utilising the information contained within the DoS Ensure that all elective referral letters or forms are clear and concise, stating the clinical priority and reason for the referral request. Generate and send urgent referral letter or form within one working day, and a routine referral letter within three working days of the date of decision to refer. Order any investigations which have been indicated within the CaB DoS as essential, with this referral. Book patient transport if required and they are eligible. In these circumstances, a late morning or early afternoon appointment are more appropriate. State if the patient has any special needs or a learning disability. Do they require an interpreter or signer, and what language is required. To ensure a minimum set of patient information is contained within the referral; I. The GP’s name, and practice details II. NHS Number Page 15 of 54 III. Name, Gender, and Address IV. Date of birth V. Date of the referral VI. Contact details, including evening or daytime and/or mobile telephone number VII. Ethnicity VIII. Current drug regime and significant past medical history (to include drug allergies) Is the patient a military veteran, and are they being referred for a condition which has been caused as a result of their military service. Ensure a Unique Booking Reference Number (UBRN) is generated for all CaB referrals, and where possible an appointment booked before the patient leaves the GP surgery. At the point the UBRN is converted into an appointment date and time this will electronically generate a RTT clock start. 4.1.13 Referral Triage (Grading Process) All referrals must be graded by a Trust clinician prior to acceptance and will be sent to the required department within 24 working hours of the date request received. The triage process is to ensure the patient is allocated to the correct clinic within the correct time frame and that any pre-existing referral criteria agreed with the commissioning CCGs are met. Clinicians should review referrals within 72 working hours of receipt to ensure the patient is booked to the appropriate specialty and with the correct urgency. Any inappropriate referrals will be returned to the referrer by the rejected referral option within CaB or paper referrals manually returned with an explanation as to why they were inappropriate. It is the referring Healthcare Professional’s responsibility to notify the patient of any rejected referrals to ensure the patient does not attend a previously booked appointment. The duty of care rests with the referrer until such time as the referral is accepted by the Trust. 4.2 Outpatient Booking Processes (Non Admitted Pathways) This outpatient section applies to all patients awaiting an outpatient consultation both new and follow-up with the Trust. 4.2.1 New Outpatient Appointments The Trust is committed to ensure that all patients entitled to NHS treatment that are referred to the organisation, will be seen within a maximum of 6 weeks from the start of their RTT clock. This is irrespective of referral source. Consideration must be given to the overall RTT clock for those patients that are Inter-consultant referrals or Inter-provider referrals. This timescale is subject to appropriateness, diagnosis, and patient choice. If the patient is unable to agree a first appointment at the Trust within 6 weeks of receipt of referral the patient will be discharged back to the GP or other Healthcare Professional until such time that they are able to accept an offer of an appointment. This decision must be clearly communicated to the patient and not contrary to their clinical urgency. Patient exceptions that Page 16 of 54 apply to this rule include paediatric patients, those with suspected cancer, vulnerable adults and patients with notifiable diseases. Where patients are discharged back to their GP the RTT clock would stop, and any subsequent re-referral would start a new clock. It must be emphasised to patients by their referring Healthcare Professional the importance of being ready, willing, and able to be seen and treated by the Trust. Responsibility for ensuring that there is sufficient outpatient capacity to meet these waiting times lies with the Service Managers. 4.2.2 Offer of Appointment (New and Follow-up Appointments) The Trust will offer all patients a reasonable choice of appointment. For New Appointments, some patients will have chosen their own appointment on CaB at a date and time most convenient to their needs. For outpatient appointments (excluding diagnostic) both New and Follow-up, the Trust deems a reasonable offer for an outpatient appointment is an offer of a date and time at least two weeks from the date that the offer is made. For a diagnostic outpatient appointment a reasonable offer of appointment is at least three weeks from the date the appointment is being offered as per the national diagnostic guidance. However patients will be encouraged to accept a date within 2 weeks. Further details are covered within the diagnostic section of this policy. The following criteria will determine if the appointment booking was made with reasonable notice or not, utilising the ‘Booking Type’ data field on PAS. 4.2.3 Full Booking - to be classed as a ‘fully booked’ appointment a face to face or telephone communication with the patient, or the patient’s proxy, to mutually agree the outpatient or outpatient diagnostic appointment must have taken place. This booking type would be classed as reasonable for any time frame of offer of appointment. 4.2.4 Partial Booking of Outpatient or Outpatient diagnostic appointment – to be classed as a ‘partially booked’ appointment the Trust invites the patient to telephone the Trust to book a mutually agreeable appointment date and time. . This booking type would be classed as reasonable if the offer of appointment is 2 or more weeks from the date that the offer is made or the patient agrees to an appointment less than 2 weeks’ notice verbally. 4.2.5 Booking Appointments of Follow-up Appointments and Partial Booking of Follow-up Where possible, follow-up appointments required within four months will be booked for the patient in the Outpatient Department immediately following their initial outpatient consultation. Where this is not possible, or the appointment is required more than four months ahead, a partial booking system will be used. These patients will be added to a waiting list, and given a reminder slip advising them to phone us to make an appointment four months before it is due. A reminder letter will be sent to any patient remaining on the waiting list eight weeks prior to when their follow-up is due. Page 17 of 54 4.2.6 Patient Cancellations (See Appendix 2, page 28) A patient cancellation is where a patient contacts the Trust in advance of their appointment, including on the day, stating that they are unable to attend. Patients who attend but are unable to wait for their appointment are included in this category. There will be occasions where the patient will need to rearrange a previously agreed appointment. The Trust will make every effort to book a mutually agreeable date and time with the patient, providing they delay their appointment by no more than two weeks. Should a patient cancel two sequential appointments within a pathway they will be discharged back to their GP. A letter explaining this will be sent to the patient, their GP, and responsible clinician. The Referral to Treatment (RTT) clock will be nullified and a new clock will start on the subsequent patient contact or should the patient be re-referred. If the responsible clinician wishes to reinstate the patient on a clinical need, a further appointment will be made. Should a patient require a delay of greater than two weeks at their first cancellation, they will be able to self-refer back (SRB) within three months. A letter explaining this will be sent to both the patient, their GP, and the responsible clinician. The delay may be reduced or advised against if the clinical need warrants this. 4.2.7 Hospital Cancellations Every effort will be made to avoid cancelling patient appointments. As a key principle the Trust will endeavour never to change a patient’s appointment more than once in any 6 month episode of care. 4.2.8 Clinic Cancellation – Notice period greater than 6 weeks All requests for clinic cancellation or reduction must be submitted in accordance with medical staff leave policy giving a minimum of 6 weeks’ notice and including the relevant authorisation from their Associate Director or Clinical Director. 4.2.9 Clinic Cancellation – Notice period less than 6 weeks A short notice cancellation is defined as any cancellation or reduction of any clinic session with less than 6 weeks’ notice. Cancellations of clinics with less than 6 weeks’ notice will be made only in exceptional circumstances, such as unforeseen sickness or clinician unavailability due to personal circumstances. If the cancellation is due to a clinician’s unavailability, approval must be given by the Associate Director or Clinical Director before any action is taken. The Service Managers, on receipt of this information, will exhaust all options to ensure the clinic session can still go ahead by arranging appropriate cover without either cancellation or reduction taking place. In circumstances where this is not feasible the Service Manager must immediately contact the appropriate appointments Team Leader to progress the cancellation of the session and to organise the rearranged appointments with patients. Page 18 of 54 Should the clinic need to be rearranged then the clinical risk and the potential effect on waiting time targets must be taken into consideration by the Service Manager, and the appointments rearranged appropriately. 4.2.10 Clinic templates The Trust will endeavour to provide accurate clinic templates which allow all theoretical activity to be included. This will assist in making the operational management more effective, and the service development process more informed. Services should adhere to some key principles when reviewing clinic templates: 1. There should be a regular review of clinic templates across all services (at least on an annual basis to coincide with capacity and demand planning for the year ahead). 2. The Trust has set out that each clinic will run for a minimum of 3.5 hours of patient facing time 3. The start and finish time of the clinic should reflect the actual time the clinician is expected to be in the clinic, face to face. 4. The clinician is expected to arrive in clinic on time, allowing for any preparation required for the first appointment. An allowance of 30 minutes administration time is provided within the four hour session. The lead clinician should be involved in any discussions around changing clinic templates. Other departments, such as the outpatient nursing team, phlebotomy, radiology and other diagnostic teams should be consulted in relation to resource availability, to support any changes to clinic templates. 4.2.11 Failure to Attend an Outpatient Appointment (DNA) (See Appendix 3, page 29) The Trust will make every effort to offer the patient a choice of date and time for all Outpatient Appointments. We will confirm all appointments in writing and, where patients have provided a mobile phone number, will send an SMS text message reminder before the majority of clinic appointments. The onus is therefore on the patient to attend their appointment. The following rules apply to the management of DNAs for both New and Follow-up appointments. Patient exceptions apply to this rule covering paediatric patients, those with suspected cancer, vulnerable adults, and patients with notifiable diseases. A DNA of the first appointment following a Healthcare Professional’s referral will result in the RTT clock being stopped, and the patient will be discharged back to the care of the referrer. The receptionist will make the responsible clinician aware of any DNA’s before the end of the clinic. If discharged the patient can be re-referred at the Healthcare Professional’s discretion, in which instance a new RTT pathway will start on the date the new request is received. When the responsible trust clinician requests a second appointment, the clock will start from the booking date of the new appointment. These will be exceptional circumstances (e.g. paediatric patients, vulnerable adults, patients with suspected cancer) and based on clinical concern. Page 19 of 54 In the event of a second DNA the patient will be discharged back to their Healthcare Professional. A letter will be sent to the patient, their Healthcare Professional, and the responsible clinician confirming this. If the patient is referred back to the Trust, a new clock will start on the date of receipt of the re-referral. Follow-up patients who DNA their appointment should be discharged back to their GP. A letter will be sent to the patient, their Healthcare Professional, and the responsible clinician confirming this. When the responsible trust clinician requests a second appointment for a follow-up patient, it will be due to exceptional circumstances (e.g. paediatric patients, vulnerable adults, patients with suspected cancer) and based on clinical concern. 4.2.12 Late arrival for an appointment Where a patient arrives late for their appointment and the clinic is still running, the Trust will endeavour to see them wherever possible. If this is possible they will need to be informed that they may have to wait until the end of the clinic session. If the patient chooses not to wait they will be recorded as “arrived late, not seen” on PAS, and a new appointment will be made before they leave. 4.2.13 Failure to Attend a Paediatric Outpatient Appointment (DNA) As per the Trust’s Safeguarding Children Policy, two or more Paediatric DNA’s should be notified to the Safeguarding Team to investigate. Any decision to discharge the patient must be made in consultation with the Paediatric Clinic. If the appointment is rebooked the RTT pathway will continue. If the patient is discharged back to their Healthcare Professional the RTT clock will stop. If the patient is re-referred by their Healthcare Professional, then a new RTT pathway will start. 4.2.14 Failure to Attend: Suspected Cancer, Vulnerable Adults, and Patients with Notifiable Diseases It is at the responsible clinician’s discretion whether to request further appointments following a DNA for the above set of patients. In most instances patients will be sent a further appointment after the first DNA; however the Trust must make every reasonable effort to ensure that the patient attends for their appointment. This process is explained in Appendix 3, page 29. If the appointment is rebooked the RTT pathway will continue where applicable. If the patient is discharged back to the referring Healthcare Professional, the RTT clock will stop where applicable. If the patient is re-referred by the Healthcare Professional, then a new RTT pathway will start. 4.2.15 Unable to contact patients (See Appendix 4, page 30) Where contact cannot be made by telephone with a patient to arrange an appointment, a letter will be sent asking them to contact us within seven days. If no response is gained from this letter within 14 days, the bookings team will check the patient’s details with their Healthcare Professional and attempt contact by telephone again. Page 20 of 54 If this is still unsuccessful, a further letter will be sent stating that we will make no further attempts to contact them if they do not respond within seven days. No contact after this final time period will result in the patient being removed from the waiting list, and care being discharged back to the Healthcare Professional. A letter explaining this will be sent to the patient, their Healthcare Professional and the responsible clinician. All attempts at contact must be recorded on the appropriate clinical booking system. 4.2.16 Outpatient Clinic Processes Each clinic MUST be fully prepped by the very latest the day prior to the clinic taking place for all but emergency patients. This will include ensuring that: The patient medical notes are available for each consultation The patient medical notes are prepared adequately to record the consultation in accordance with the prepping SOP Any referral letters are available for all new appointments Any tests and investigation reports are completed and available for the clinician to view wherever applicable Every patient has a relevant yellow bookmark with the current RTT status and Breach Date (where applicable) recorded, to enable the RTT pathway to be managed appropriately 4.2.17 Data Quality It is essential that accurate patient demographic data is held on PAS at all times, therefore it is paramount that at every opportunity this information is confirmed with the patient. This will take place either by the clinic receptionist, or at the self-check-in terminal. This will include: Patient Name Date of Birth Patient Address and postcode GP details Telephone contact details Next of Kin Religion Ethnicity Any special requirements If any patient details have changed since the patients last attendance this information must be amended by the receptionist on PAS. New medical notes front sheet and labels will be produced, and any old front sheets will be removed from the notes and placed in the confidential waste. 4.2.18 Recording Clinical Outcomes To be able to record a clinical outcome, a yellow bookmark must be completed by the clinician for every patient. This needs to be completed whether the appointment is a New or Follow-Up. It Page 21 of 54 is the responsibility of the clinician to complete all relevant information including any outpatient procedures or diagnostic tests. In every instance a primary diagnosis code should also be recorded. The patient should ensure the yellow bookmark is returned to the clinic receptionist on the Outpatient reception desk at the end of the consultation. This will also be used to provide the information for the booking of the next appointment, if applicable. Every outpatient attendance must have a defined clinical outcome and RTT status. Outpatient receptionists must ensure that all patients have a clinical outcome and RTT status recorded accurately on PAS, at the end of every clinical session. All clinic outcomes MUST be completed fully within 24 working hours of the clinic taking place. A daily un-reconciled clinic report will be sent to the Outpatient Clinic Supervisor for immediate action. This will be monitored through internal audit processes. 4.2.19 Clinical Outcome – Open Appointment There is a clinical option to offer a patient an open appointment for a period of 6 months following their last outpatient attendance. If a patient does not book an appointment within these 6 months, they will be classed as discharged back to their Healthcare Professional. A letter will be sent to the patient, their GP, and the responsible clinician confirming this. If they require further consultation, a new referral must be sought which will start a new RTT pathway and clock. 4.2.20 Clinical Outcome – Discharge The patient has been discharged from the Trust back to the care of the referring Healthcare Professional and no further consultation is required. A letter will be sent to the patient and their GP confirming this, as part of the clinic letter from the responsible clinician. If further consultation is required a new referral must be sought from the Healthcare Professional which will start a new RTT pathway and clock. 4.2.21 Clinical Outcome – Added to Elective Waiting List Patients can be added to a diagnostic, therapeutic or planned waiting list as a Day-case or Inpatient Admission. Please refer to the Elective Admissions section for further guidance. 4.3 DIAGNOSTIC AND PRE-OPERATIVE ASSESSMENT APPOINTMENTS Many patients require diagnostic tests to determine the appropriate diagnosis and their subsequent treatment. Diagnostic tests must be performed within a maximum of 6 weeks of request for the test to ensure delivery of the national waiting time target. In many instances they will also form part of the patients RTT 18 week journey. The importance of timely access to diagnostics and their reporting is a key element to ensuring that patients are not made to wait unnecessarily for treatment within 18 weeks. Diagnostic patients cannot have their RTT clock paused. The diagnostic phase of treatment has a maximum waiting time of 6 weeks. Page 22 of 54 4.3.1 Direct Access Referrals (Imaging) The rules of booking and administering patient appointments equally apply to appointments for GP direct access services (plain film x-rays and ultrasound). Patients who DNA these appointments will be returned to their GP and discharged. Patient cancellations and failure to contact will follow the same process as outlined for outpatient appointments. 4.3.2 Appointments for Endoscopy Diagnostic Tests The rules of booking and administering patient appointments equally apply to appointments for endoscopy diagnostic procedures. Patients who DNA their appointment will be returned to their GP and discharged. Patient cancellations and failure to contact follow the same principles as daycase/inpatient procedures. Endoscopy specific booking flowcharts have been developed by the endoscopy booking team which can be found in appendix 8, 9 and 10. 4.3.3 Appointments for Outpatient Diagnostics The rules for booking and administering outpatient diagnostics are the same as for outpatient clinic appointments; however patients will be encouraged to accept dates within three weeks of referral due to the total patient journey timeframes required. Patient cancellations and failure to contact will follow the same process as outlined for outpatient appointments. 4.3.4 Pre-operative Assessment Appointments The rules for booking and administering patient appointments equally apply to pre-operative assessment appointments; however patients will need to be available for dates that are sufficiently in advance (normally 2-3 weeks) of their operation date. This is due to the total patient journey timeframes required. Patient cancellations and failure to contact will follow the same process as outlined for outpatient appointments. Where a patient fails to attend an agreed date for their Pre-Operative Assessment Appointment the relevant secretary or booking clerk will be informed and will contact the patient to ascertain the reason for the non-attendance. Where a genuine reason is given and the patient wishes to proceed, and where the agreed admission date will not be affected, the patient will be offered a further date for Pre-Operative Assessment. It will be explained to the patient that a further failure to attend will result in them being removed from the elective waiting list. All decisions to remove from the waiting list must be agreed and made by the responsible clinician, who must inform the GP in writing with a copy to the patient. The consultants Medical Secretary is responsible for removing the patient from the waiting list and appropriately stopping the waiting time clock. Page 23 of 54 4.4 ELECTIVE ADMISSIONS AND ADMITTED PATHWAY PROCESSES 4.4.1 Procedures of Limited Clinical Value Local commissioners have identified a range of procedures and treatments which are classified as Procedures of Limited Clinical Value (PLCV). These procedures are available to view at http://www.frimleypark.nhs.uk/gps/clinical-guidelines, accessible in conjunction with a valid username and password. There are details via this link should you not possess valid login details. Together with our local CCGs, we have developed Trust specific guidelines regarding PLCV. These guidelines apply to all patients who are treated at the Trust, regardless of which CCG they belong to. 4.4.2 Patient Order for Elective Admission Patients will be selected for elective admission chronologically on their RTT breach date. Priority will only be given to patients highlighted as clinically urgent by the responsible clinician or highlighted as war pensioners and service personnel injured in conflict (DH 2007). 4.4.3 Arranging Elective Admission and Patient Non-response to Contact Attempts (see appendix 7, page 33). In order to arrange a date for elective admission, the patient should be contacted twice within 5 working days of addition to the waiting list by telephone. These attempts should be made at varying times on separate days, and should be recorded on the appropriate clinical booking system. Where the attempt to contact the patient has been unsuccessful, a letter should be sent out to the patient asking them to contact the appropriate Secretary within 7 days. Where the patient has not made contact at the end of the 7 day period, a further attempt to contact the patient by telephone will be made. If this is unsuccessful, another letter will be sent to the patient explaining that no further attempts will be made to contact them and after a further 7 working days they will be removed from the waiting list. If still no response from the patient the Secretary will check the patient’s contact details with the GP. If they are found to be incorrect the process will be restarted, if correct the patient will be highlighted to the responsible clinician with a view to removal from the waiting list and discharge back to their GP. The responsible clinician will ensure a letter is sent to the patient and GP explaining this. The RTT clock will be stopped and a new clock will start should the patient be re-referred. The responsible clinician can request a further contact attempt is made; this is offered only in exceptional circumstances based on clinical concern. Some consultants or clinical departments within the Trust may wish to set up blanket arrangements whereby the waiting list staff do not need to seek individual permission to remove a patient from the waiting list. This may include all patients for which they are responsible or those meeting specific criteria such as day surgery patients. Page 24 of 54 4.4.4 Reasonable Offer for Elective Admission and Patient Pauses Patients should be offered two dates a minimum of two weeks apart for surgery with at least three weeks’ notice. Should the patient not wish to accept either of these dates but do wish for a later date, this later date should be agreed with the patient and a pause recorded from the earlier of the two dates offered until the patient is available. Where a patient makes it known immediately that they are unavailable until / during a certain period and this clashes with actual, potential, indicative or likely TCI dates, the waiting time will be paused from the first of these until the date they wish to accept. It is not necessary to discuss these dates with the patient in this instance. Patient initiated pauses of up to 3 months will be made before the advice of the responsible clinician is sought with regard to further delay. Delays of up to 6 months can be accommodated, after which consultant discharge of the patient back to the care of their GP will be considered. In some cases when discussing pauses with a patient it may be obvious they wish to be ‘paused’ or deferred until a certain period. In this case the pause should be applied from the first date they were or could have been offered to the date they wish to accept. This discussion needs to be recorded and dated on PAS, and the responsible clinician must be informed, to ensure that this is clinically appropriate. Should a patient subsequently wish to delay a TCI date and their clock is already paused, this pause should be left in place and extended until the newly agreed TCI date. Note: If the patient is listed for a diagnostic procedure they cannot be paused. All admission offers (actual, potential, indicative or likely) should be recorded on PAS to show dates that the patient could have attended to provide an audit trail. 4.4.5 Patient Requested Review of Treatment Decision Where a patient already on a waiting list for surgery subsequently decides they wish to review or further discuss the treatment, they will be offered the opportunity to discuss with the clinician or member of their team over the telephone, or in clinic with pre-operative assessment staff. Alternatively they will be encouraged to discuss matters with their referring Healthcare Professional. If the patient still wishes to discuss matters with the responsible clinician in person in an outpatient clinic they will be removed from the elective waiting list and their waiting time clock stopped. A new waiting time clock will start should the patient decide to proceed with the procedure following discussion with the responsible clinician. This process and the likely impact on waiting time must be made clear to the patient before it is enacted. 4.4.6 Patient Cancellations of an Agreed Date for Admission A patient cancellation is where a patient contacts the Trust in advance of their appointment, including on the day, stating that they are unable to attend. Patients who attend but are unable to wait for their appointment are included in this category. Should a patient cancel two sequential appointments within a pathway they will be discharged back to their GP. A letter explaining this will be sent to the patient, their GP, and responsible clinician. The Referral to Treatment (RTT) clock will be nullified and a new clock will start on the Page 25 of 54 subsequent patient contact or should the patient be re-referred. If the responsible clinician wishes to reinstate the patient on a clinical need, or if the cancellation is at short-notice for medical reasons, a further appointment will be made. This process is demonstrated in Appendix 5, on page 31 4.4.7 Removals from the Waiting List for Reasons Other Than Treatment There are a number of scenarios where a patient may need to be removed from an elective waiting list without initially identified treatment taking place. This may include the procedure no longer being required, the patient no longer wanting procedure or the patient has chosen to seek treatment privately. In any event of a patient being removed from the elective waiting list they must only be removed from the waiting list on PAS and not deleted. This is to ensure a robust audit trail exists. 4.4.8 Patients Failing to Attend Elective Admission Date (DNA) Should the patient not attend on the agreed date for surgery, the facility (ward or theatre admission lounge) will notify the appropriate Medical Secretary. Patients who DNA their operation admission will be removed from the waiting list and discharged to the care of their GP following clinical review. A letter will be sent to the patient and GP confirming this and their RTT clock will stop. The responsible clinician can request a second date for elective admission; this is offered only in exceptional circumstances based on clinical concern, for example paediatric patients, vulnerable adults and patients with suspected cancer. This process is demonstrated in Appendix 6, on page 32 5. Appendices Page 26 of 54 Appendix 1 – Referral to Treatment (RTT) rules RTT Pathway Start A RTT pathway commences under the following circumstances when any Healthcare Professional or service permitted by an English NHS commissioner to make such referrals, refers to: A consultant led service, regardless of setting, with the intention that the patient will be assessed and, if appropriate, treated before responsibility is transferred back to the referring health professional or general practitioner An interface or referral management or assessment service, which may result in an onward referral to a consultant led service before responsibility is transferred back to the referring health professional or general practitioner A waiting time clock also starts upon a self-referral by a patient to the above services, where these pathways have been agreed locally by commissioners and providers and once the referral is ratified by a Healthcare Professional permitted to do so Upon completion of a consultant-led referral to treatment period an RTT pathway recommences under the following circumstances: When a patient becomes fit and ready for the second of a consultant-led bilateral procedure Upon the decision to start a substantively new or different treatment that does not already form part of that patient’s agreed care plan Upon a patient being re-referred in to a consultant-led; interface; or referral management or assessment service as a new referral When a decision to treat is made following a period of active monitoring When a patient rebooks their appointment following a first appointment DNA that stopped and nullified their earlier clock RTT Pathway Stop A RTT pathway stops under the following circumstances for treatment or non-treatment where a clinical decision is made and has been communicated to the patient, and subsequently their Healthcare Professional without undue delay. Clock stops for treatment First definitive treatment is defined as being an intervention intended to manage a patient’s disease, condition or injury and avoid further intervention. The date where first definitive treatment starts will be the date that stops the clock - this may be either in an interface service or a consultant-led service. Clock stops for ‘non-treatment’ It is clinically appropriate to return the patient to primary care for any non-consultant led treatment in primary care A clinical decision is made to start a period of active monitoring Page 27 of 54 A patient declines treatment having been offered it A clinical decision is made not to treat A patient DNAs their first appointment following the initial referral that started their waiting time clock, provided that the provider can demonstrate that the appointment was clearly communicated to the patient A patient DNAs any other appointment and is subsequently discharged back to the care of their GP, provided that the provider can demonstrate that the appointment was clearly communicated to the patient; discharging the patient is not contrary to their best clinical interests; discharging the patient is carried out according to local, publicly available/published, policies on DNAs; These local policies are clearly defined and specifically protect the clinical interests of vulnerable patients (e.g. children) and are agreed with clinicians, commissioners, patients and other relevant stakeholders. Active Monitoring The concept of active monitoring stops the clock and caters for periods of care without (new) clinical intervention e.g. three monthly routine check-ups for diabetic patients. This is where it is clinically appropriate to monitor the patient in secondary care without clinical intervention or further diagnostic procedures, or where a patient wishes to continue to be reviewed as an outpatient without progressing to more invasive treatment. Active monitoring can be initiated by either the clinician or the patient. If after a period of active monitoring, the patient or responsible clinician decides treatment is now appropriate, a new pathway and a new clock starts, where the patient must receive their first definitive treatment within a maximum of 18 weeks RTT Pathway Clock Pauses A clock may be paused only where a decision to admit for treatment has been made, and the patient has declined at least two reasonable appointment offers for admission. Clocks may not be paused for patient initiated delays at any other part of the RTT pathway, including all outpatient and diagnostic stages. Reasonableness is defined as an offer of a day case/inpatient appointment with at least 3 weeks’ notice. The 3 weeks’ notice reasonableness for day case and inpatient appointments rule does not prevent patients from being offered earlier appointments. It just means that if the patient declines the earlier appointment then this offer date cannot be used in a clock pause adjustment. If a patient makes themselves unavailable for a set period of time (e.g. due to school holidays or other reasons) then this may mean that offering actual dates which meet the reasonableness criteria would be inappropriate (as the patient would be offered dates that the provider already knew they couldn’t make). In this case the waiting time clock can be paused from the earliest reasonable offer date that the provider could have given the patient, had they been available up until the time that the patient makes themselves available for admission again. The clock is paused for the duration of the time between the earliest reasonable offer and the date from which the patient makes themselves available again for admission for treatment. Appendix 2 – Outpatient: Cancellation Process Page 28 of 54 Outpatient Appointments - ‘Cancellation’ Process Patient added to the waiting list. Appointment date booked and agreed with patient. Patient contacts and cancels the appointment date. They are informed that no further cancellations are permitted. Offered another appointment within 2 weeks of the original date. If an appointment is not available, offer earliest possible date and refer to responsible clinician for review. Patient is unable to attend the new appointment date. Patient agrees to self-refer back (SRB) when they’re free (within 3 months). Letter sent to GP (cc’ing patient and responsible clinician). Patient contacts and new appointment booked. New clock starts. Patient cancels appointment date again. Patient agrees to new date. Patient cancels 2nd appointment. No contact for 3 months. Patient attends on appointment date. Patient removed from the waiting list and letter sent to GP, (cc’ing patient and responsible clinician), discharging care back to GP. Appendix 3 – Outpatient: DNA Process Page 29 of 54 Outpatient Appointments - ‘DNA’ Process Patient added to the waiting list Appointment booked and confirmed Patient DNAs; Receptionist provides responsible clinician with medical notes Clinician reviews notes before leaving clinic, and informs receptionist of decision. Patient is considered vulnerable, or classed as clinically urgent. Unable to contact patient Phone call is made to patient Follow ‘unable to contact procedure’ 2nd appointment is booked and confirmed. Patient attends appointment Patient DNAs 2nd appointment Appendix 4 – Outpatient: Unable to Contact Process Page 30 of 54 Patient is not considered vulnerable, or classed as clinically urgent. Patient removed from the waiting list and letter sent to GP, (cc’ing patient and responsible clinician) discharging care back to GP Outpatient Appointments - ‘Unable to contact’ Process Patient added to the waiting list Booking team rings the patient on two separate days, at different times, within 5 working days, when an appointment becomes available. No contact made with patient Send letter asking for the patient to contact within 7 days No contact after a further 14 days Check patient contact details with GP and ring again Contact details incorrect Update PAS with correct details Contact details correct Contact made with patient Send letter stating that no more attempts will be made to contact the patient and if they do not respond within 7 days, they will be taken off the waiting list No contact Appointment booked. Patient removed from the waiting list and letter sent to GP, (cc’ing patient and responsible clinician), discharging care back to GP Appendix 5 – Inpatient: Cancellation Process Page 31 of 54 Daycase/Inpatient Procedures - ‘Cancellation’ Process Patient added to the waiting list TCI date booked and agreed with patient Patient contacts and cancels the TCI date Given another TCI date, but told that if they cancel again, they will be removed from the waiting list Patient attends on TCI date Patient cancels TCI date again Patient is removed from the waiting list and letter sent to GP, (cc’ing patient and responsible clinician), discharging care back to GP Appendix 6 – Inpatient: DNA Process Page 32 of 54 Daycase/Inpatient Procedures - ‘DNA’ Process Patient added to the waiting list TCI date booked Patient advises procedure is no longer required. DNA pre-op Unable to contact patient Follow ‘unable to contact procedure’ Patient is removed from the waiting list and letter sent to GP, (cc’ing patient and responsible clinician), discharging care back to GP Patient contacted Given another pre-op date and informed that if they DNA again, they will be taken off the waiting list Pre-op attended (if applicable) DNA again DNA operation on TCI date Patient is removed from the waiting list and letter sent to GP, (cc’ing patient and responsible clinician), discharging care back to GP Appendix 7 – Inpatient: Unable to Contact Process Page 33 of 54 Operating Consultant reviews the notes. Default = discharge back to GP. One more date can be requested if there is clinical concern Patient attends on TCI date Daycase/Inpatient Procedures - ‘Unable to contact’ Process Patient added to the waiting list Secretary rings the patient on two separate days, at different times, within 5 working days, when an appointment becomes available. Failed contact with patient Send letter asking for the patient to contact within 7 days No contact after 14 days Contact made with patient Check patient contact details with GP and ring again Contact details incorrect Update PAS with correct details Contact details correct Send letter stating that no more attempts will be made to contact the patient and if they do not respond within 7 days, they will be taken off the waiting list 1) Lets them know they’re on the WL 2) States the av. current wait 3) Check contact details 4) Establishes availability 5) Asks if available last minute 6) Asks whether they would be willing to go with another member of the team Patient is removed from the waiting list and letter sent to GP, (cc’ing patient and responsible clinician), discharging care back to GP No contact after 7 days Appendix 8 – Endoscopy: Cancellation Process Page 34 of 54 Endoscopy Procedures - ‘Cancellation’ Process Patient added to the waiting list TCI date booked and agreed with patient Patient contacts and cancels the TCI date Given another TCI date, but told that if they cancel again, they will be removed from the waiting list Patient attends on TCI date Patient cancels TCI date again Booking officer removes patient from waiting list and sends a letter to GP, discharging the patient, cc’ing clinician and patient. Blue card is kept in the booking office for 1 month in case clinician wants to review. Card is filed in the notes after 1 month. Appendix 9 – Endoscopy: DNA Process Page 35 of 54 Endoscopy Procedures - ‘DNA’ Process Patient added to the waiting list TCI date booked and agreed with patient Confirmation letter sent out Patient rung 48 hours before the TCI date to remind them Patient DNA’s Clinician expresses concern and informs booking office to offer another date Default Booking office contact patient and offer 1 more date but inform patient that they will be removed from the WL if they DNA again Booking officer removes patient from waiting list and sends a letter to GP, discharging the patient, cc’ing clinician and patient. Blue card is kept in the booking office for 1 month in case clinician wants to review. Card is filed in the notes after 1 month. DNA again Appendix 10 – Endoscopy: Unable to Contact Process Page 36 of 54 If unable to contact, follow the ‘unable to contact procedure’ Endoscopy Procedures - ‘Unable to contact’ Process Clinician refers patient for an endoscopy procedure. Patient informed they are able to ring the booking office to choose their appointment date straight away Booking office ring patient to book if they do not hear from the patient Failed contact with patient Ring the following working day Failed contact with patient Send letter asking for the patient to contact within 7 days Contact made with patient and procedure date agreed No contact after 14 days Check patient contact details with GP and ring again Contact details incorrect Contact details correct Confirmation letter sent out No contact Send letter stating that no more attempts will be made to contact the patient and if they do not respond within 7 days, they will be taken off the waiting list No contact Booking officer removes patient from waiting list and sends a letter to GP, discharging the patient, cc’ing clinician and patient. Blue card is kept in the booking office for 1 month in case clinician wants to review. Card is filed in the notes after 1 month. Appendix 8 - Glossary of terms Page 37 of 54 Adjustment The length of a patient pathway may be adjusted for admitted patients only, if they choose to wait longer than the dates they are offered for admission for treatment for their own convenience. Advice and Guidance AaG – A system which allows one clinician to seek advice from another without the need to refer Breach Patient episode, which would run over the maximum referral to first definitive treatment time of 18 weeks. This excludes cancer and rapid access chest pain patients as these have separate shorter access targets Choose and Book CaB – National Electronic referral and booking system Clinical Assessment CAS – Referrals are clinically assessed to determine whether the patient Service is first seen in Outpatients or is directed straight to test. Clinical Commissioning Group CCG – Primary Care Commissioners Clock Start / Stop Refers to the start of a period of counting days/weeks in a patient pathway, until first definitive treatment is given, the time period ends, and the clock is stopped. Day Case Patient who requires admission for treatment but who does not need to stay overnight Directly Bookable Services DBS: Part of CaB – GP’s are able to use DBS to make appointment in the hospital clinics from their surgery Did Not Attend Patients who have agreed their admission date (inpatients / day cases) or (DNA) appointment date (outpatients) and who, without notifying the hospital did not attend for admission / outpatient appointment Department of Health DH - The department of the United Kingdom government responsible for policy on health and adult social care matters in England Decision to Admit DTA - the point at which the clinician and the patient agree that treatment, as a Day Case or inpatient is required Fast Track Special arrangements that are made for a patient who has been unable to continue on a pathway, as they are medically unfit or unavailable for care. Fast tracking the patient back into the service starts a new clock but it is not expected that a patient would have to wait a maximum of 18 weeks for their first definitive treatment. Generic referral A referral to a specialty rather than a named clinician, i.e. Dear Doctor or Dear Colleague GRACe “General Referral Assessment Centre” Page 38 of 54 An Administration and triage facility for GP referrals within Primary Care. A clock is started upon receipt at GRACe for a referral appropriate for a consultant led service. The pathway is continuous until first definitive lptreatment is given Healthcare Professional HCP - A trained person who delivers medical care in a systematic way, following prescribed protocols and procedures. The term “Healthcare Professional” in this policy covers any person who is authorised to refer a Patient to secondary care Indirectly Bookable Service IBS - a CaB service that is not mapped to the Trust PAS system. The Patient telephones the Trust Booking staff to convert their Unique Booking Reference Number (UBRN) and agrees an appropriate appointment Inpatient Patient who requires admission to the hospital for treatment and who will stay at least one night Inter-Provider Transfers A patient pathway managed between more than one organisation. Patient may receive first definitive treatment in a “tertiary centre” – that specialises in their condition. A specific form and minimum data set (MDS) must be completed. Minimum Data Set MDS – specific information about a patient that should be included in all referrals between clinicians in any part of the patient’s pathway Medically Unfit A patient who has a condition that prevents them from continuing along their current pathway of care. Special arrangements must be made for these patients to address their medical condition either in primary or secondary care and to fast track them back into the service if appropriate when they are fit and able to restart a pathway of care. (Note a new clock will start for these patients) Outpatient Patient referred by a general practitioner, general practitioner with special interest (GPSI), general dental practitioner, consultant, optometrist, or other medical professional for clinical advice or treatment, which does not require an admission to the hospital Picture Archiving PACS - for storage and distribution of computerised images And Communication System Partial Booking Patients who have had their addition to the schedule (waiting list) acknowledged, and who are given the opportunity to agree a future date for their outpatient appointment or admission. Patient Administration System PAS – electronic system for building maintaining clinic templates Patient Cancellation A patient who has previously accepted an outpatient time or date Page 39 of 54 for an operation and they subsequently notify that they wish to change or cancel their appointment Primary Care Services commissioned by the PCT provided in the community, usually by a GP, GPSI or other specialists. Patient Tracking List PTL– a model for collection of prospective waiting times. The report details patients awaiting elective admission, diagnostic or outpatient appointment and the starting point of their pathway. The information team refreshes the list daily. All operational staff will refer to the list to ensure that patients are treated equitably within a maximum waiting time of 18 weeks to their first definitive treatment Procedures of Limited Clinical Value PLCV - The Commissioners have agreed a range of procedures that are considered outside of the services routinely provided. Prior approval for referrals of limited clinical value must be gained prior to the referral being sent to the Trust for treatment. Rapid Access Chest RACPC – A fast track service for patients with chest pain for referral to a Pain Clinic cardiologist – These patients must be seen within 2 weeks from the date of the GP referral. As they are subject to their own waiting time target they are not counted within the 18-week rules Reasonable Offer Refers to the notice given to a patient by the hospital for a forthcoming appointment or admission. For an offer to be reasonable two dates with at least 3-weeks’ notice must be given to a patient undergoing surgery. For outpatients good practice guidance suggests notice of at least 10 days. Referral Support Service RSS – referral management service used by local primary care commissioners for triage and onward referral management Referral To Treatment RTT- the measurement of the length of an 18 week pathway Secondary Care Services provided in a hospital setting Self-Deferral A patient initiated pause in the 18 week pathway. It may involve patient initiated cancellation for an appointment or admission. Self-Referral A patient who contacts the hospital directly. They have usually been undergoing care but have been either medically unfit or unavailable to come in for further treatment. Arrangements have been put in place by the Hospital for the patient to contact a named person directly once they are fit and ready to continue with treatment. Sequencing / Some patients may require more than one procedure but the nature of the Page 40 of 54 Sequential Treatments procedures means that they need to happen in order – i.e. Right Total knee replacement followed by the left Total Knee Replacement. A pathway will start for the first side. When the patient becomes fit to commence a pathway for the second side a new clock will start. Standard Operating Procedures SOP – A detailed explanation of how a policy is to be implemented. It will include details of who will perform a task, what materials are necessary, where the task will take place, when the task shall be performed and how it will be executed. To Come In TCI – a date and time for a patient to come to the hospital for a day case or inpatient admission. Tertiary Centre A third party organisation that usually supplies specialist services to a regional area Transient Ischaemic Attack TIA - A fast track GP referral system for patients with suspected “stroke” to see a specialist neurologist Tolerance The aim is for all patients to be treated within 18 weeks. However, it is recognised that there is a proportion that may not be treated in the time frame due to patient choice or medical reasons where it is “not in the patient’s best interest to be treated within 18 weeks” Unique Booking Reference Number UBRN – a number given to a patient to progress a Choose and Book referral. The number is unique to a specific pathway for a patient and is used to identify a single patient clock or pathway. A patient may have more than one pathway simultaneously Urgent 2 week wait referrals QMCW Rapid access 2-week referral process for a patient with suspected cancer. Such referrals are not part of an 18 week pathway Appendix 9 – Cancer Services Access Policy Page 41 of 54 ACCESS POLICY CANCER SERVICES AGREEMENT COVER SHEET Page 42 of 54 This policy has been agreed by: Position: Trust Cancer Lead Manager & Associate Director, Surgical Services Name: Mrs. Elizabeth Howells Organisation: Frimley Park Foundation NHS Trust Date Agreed: March 2014 Position: Trust Lead Clinician for Cancer Name: Mr. Ian Laidlaw Organisation: Frimley Park Foundation NHS Trust Date Agreed: March 2014 Policy Author Position: Cancer Information Manager Name: Simon Gifford Organisation: Frimley Park Foundation NHS Trust Last review date: March 2014 Review by: Simon Gifford, Cancer Information Manager Lauren Lakritz, Cancer Services Manager Operational Policy Review Date: March 2016 CONTENTS Page 43 of 54 SECTION HEADING PAGE NO. 1 Introduction 4 2 General Principles 4 3 Waiting Time Targets 5 4 Suspected Cancer (TWR) Referral Process 5 5 Tertiary Referrals 6 6 Registering Referrals & Upgrade Referrals 7 7 Prioritising Patients Requiring Admission 7 8 Hospital Initiated Cancellations 7 9 Patients Who Do Not Attend (DNA) 8 10 Patient Initiated Cancellations 9 11 Patient Initiated Delays 9 12 Patient Tracking Lists (PTL) 10 13 Stopping of Pathway Clocks 10 14 Applications for PCT Funding 11 15 Patients Who Choose the Private Sector 11 16 Communication with GPs 11 17 References 11 18 Glossary 11 Process Maps 13 APPENDIX A 1. INTRODUCTION Page 44 of 54 The purpose of the procedure is to ensure that all patients referred to the hospital who are suspected of and/or diagnosed as having cancer (either at the time of referral or at some point in their pathway) are managed along the appropriate Cancer Pathway in a consistent manner throughout the Trust. It is essential that, during all stages of the patient’s pathway, information is given and recorded in a consistent and accurate manner. The length of time a patient needs to wait for hospital treatment is an important quality issue and is a visible and public indicator of the efficiency of the hospital services provided by the Trust. The Trust uses the Somerset Cancer Registry (SCR) to monitor Cancer Waiting Times. This procedure applies to all staff involved in the process of managing the patients’ cancer pathways throughout the Trust. The Trust’s medical records, retention and information Governance policies will also apply to any aspect of the patient’s pathway as appropriate. 2. GENERAL PRINCIPLES 3. The policy covers outpatients, inpatients, pre-assessment, diagnostics and treatments. The Trust will work with primary care colleagues to ensure all referrals are appropriate and are only made once a patient is physically and psychologically ready to accept appointments within the National Access Targets Framework. The Trust will work with primary care colleagues to ensure that the patient is aware of the reason for referral on a TWR pathway (where appropriate) Contact with the patient concerning their pathway and its administration, or any changes should be documented in a timely manner. Pauses to pathways will only be used for treatments at the decision to treat (add to waiting list) point in a patient’s pathway and only for non clinical (patient choice) reasons. Except in the case of the “Earliest Clinically Appropriate Date” for a subsequent treatment. Management decisions on patients who cannot proceed with their pathway due to medical/clinical reasons will be made by a clinician. These patients can no longer be suspended (paused). Patients and GP’s will be kept fully informed and have a point of contact at the Trust at all times in their pathway. Patients should not leave one hospital attendance without knowing when the next stage of their pathway is booked or intended to be booked. Minimum data sets will be completed within 48 hours for all patients requiring referral to another Trust for advice or treatment. Coordination of this function will be the responsibility of the relevant MDT coordinator. WAITING TIMES Page 45 of 54 Two Week Rule (TWR) All patients referred to the Trust with suspected cancer or breast symptoms (including those not deemed as being suspicious of cancer) should be offered their first appointment within a maximum of two weeks from receipt of the GP referral by the Trust or the date offered should be within two weeks. Patients with breast symptoms not suspicious of cancer may be referred using choose and book, and in such cases the clock will start from the date that the patient converts their Unique Booking Reference Number (UBRN). The first appointment will either be a Consultant Outpatient appointment, Radiological Imaging, Endoscopy or some other form of diagnostic tests (excluding attendance for routine blood testing). Patients who are referred due to a family history of breast cancer that are not symptomatic and those referred for cosmetic reasons are not covered by the two week rule but will be covered by the 18-week access policy. 62-Day Pathways Patients referred by their GP with suspected cancer under the two week rule who go on to be diagnosed with cancer should receive their first treatment within a maximum of two months (62 days) from receipt of the GP referral. Patients not referred by their GP under the two week rule but who are later suspected as having cancer should be upgraded by the Consultant (or a member of their team) who feels that the patient may have cancer. The patient should then receive their treatment within a maximum of two months (62 days) from the date that the Consultant upgrades the patient. The consultant should email the details of the upgrade to the Cancer Unit at the time that the decision to upgrade is made. 31-Day Pathways All patients diagnosed with cancer should be treated within one month (31 days) of the decision to treat (DTT) being made (or the date offered should be within one month (31 days). All patients who require subsequent treatment following first definitive treatment should be treated within one month (31 days) of the DTT for subsequent treatment being made or the Earliest Clinically Appropriate Date (ECAD) (or the date offered should be within one month (31 days). Any patient who is referred with suspected cancer or who is upgraded and then found not to have cancer but still requires further investigations and/or treatment will be seen under an 18week pathway and the 18-week access policy will apply. 4. SUSPECTED CANCER (TWR) REFERRAL PROCESS All patients meeting the criteria for fast track referral under the Two Week Rule (including those patients with breast symptoms not suspicious of cancer) should be seen within 14 days Page 46 of 54 of the Trust receiving the referral. If a patient rearranges a fast track appointment the patient should be offered another appointment within 14 days of the original appointment date. If the new appointment is then subsequently cancelled by the Trust the patient should be seen within 14 days of the original referral. If a patient cancels their appointment to be seen within 14 days they will be rebooked as soon as possible and still within the 14 days where we can. All referrals must be faxed to the Two Week Rule Office on 01276 604506. On receipt of the referral, the TWR administrator will stamp the referral with TWR and the date received. The referrals will then be processed in accordance with the process at Appendix A. Due to the time constraints associated with these appointments patients should normally be telephoned to agree a mutually convenient date and time. If the patient does not have a telephone contact number, a written offer of appointment will be sent inviting the patient to attend. If the patient is unable to attend on the date given they are advised to make contact to enable them to rearrange the appointment. To help ensure that the Trust achieves the required standards for TWR’s, GP’s will need to ensure that: Relevant conversation will have taken place with the patient by the GP, and the patient will be aware they will be seen within 2-weeks of referral The patient will advised that they are being referred to exclude the diagnosis of cancer and must therefore make themselves available for the diagnostic pathway. Referrals are faxed to the TWR Office in a timely manner Referrals are appropriate and are clearly marked as per cancer services’ protocols and addressed to an appropriate tumour site (e.g. Breast, Skin, etc.) Referrals made to the Colorectal, Lung, Gynaecology and Urology (Bladder/Renal) teams require eGFR blood tests to be taken prior to referral. Failure to provide this information will result in the referral being returned to the GP. All patients referred with suspected cancer should be offered an appointment date within 14 days. If a Consultant feels that a patient does not meet the criteria for a TWR referral, they (or a designated member of their team) will contact the GP by telephone to discuss the issue and, if they are in agreement, the GP will revoke the TWR referral and re-refer the patient under an 18-week pathway. This does not apply to breast symptomatic patients as all patients with breast symptoms should be seen within two weeks. The Trust must not return TWR referrals to the GP as a result of repeated cancellations by the patient unless it is agreed with the patient that they no longer require the appointment. Similarly, patients must not be referred back to their GP if they are unable to attend an appointment within two weeks, no matter what the reason for non-attendance is. However if the patient DNAs 2 or more times they will be referred back to the GP for management. Page 47 of 54 5. TERTIARY REFERRALS It is important that tertiary referrals to or from the Trust include a specific set of details about the patients pathway to enable the receiving Trust to continue managing the patient’s pathway in accordance with Cancer Waiting Times. The appropriate MDT Coordinator will ensure that a copy of the patient’s CWT page from SCR is emailed (using nhs.net) to the tertiary centre with 48 hours of the decision to refer being made. This includes patients who are seen at FPH by a visiting Consultant and require treatment under the same consultant’s care at the Tertiary Centre. A tertiary referral received by the Trust must be accompanied by the relevant cancer pathway details. It is the responsibility of the MDT Coordinators to ensure that the Trust has all the pathway information for any referrals received from another Trust. If the details are not sent automatically by the referring Trust, the MDT Coordinator must contact the referring Trust on receipt of the referral to obtain the details so that the SCR can be updated appropriately. 6. REGISTERING REFERRALS & UPGRADE REQUESTS All paper referral letters and diagnostic requests will be registered within 24 hours of receipt by the TWR Coordinator on SCR. The TWR Coordinator will then fax the letter to the Pre-Reg Department or radiology so that it can be logged on the Trust’s PAS (Appendix A). It is essential that the date of receipt of referral is registered to ensure that maximum waiting times can be calculated and audited. All Consultant Upgrade requests must be forwarded to the Cancer Office using the “Cancer Unit” distribution list on the Trust’s email system. It should clearly state in the email the date that the consultant (or an authorised member of their team) decided to upgrade the patient when the decision was made and which tumour site pathway the patient will now be on. 7. PRIORITISING PATIENTS REQUIRING ADMISSION All elective inpatient, day case, outpatient and diagnostic waiting lists will be managed so that patients with an urgent clinical need are seen first. It is the responsibility of the medical secretaries to add the patients to the waiting lists using the appropriate priority. The MDT Coordinators must ensure that the patient’s pathway information is provided to the medical secretaries to enable all additions to be made appropriately. 8. HOSPITIAL INITIATED CANCELLATIONS Patients on Cancer Pathways must only be cancelled by the hospital for non-clinical reasons if it is absolutely necessary. Outpatient and Diagnostic Test Appointments Page 48 of 54 If an agreed appointment needs to be cancelled the patient will be contacted either verbally or in writing dependant on time constraints. In either instance the patient will be offered an alternative date within the target period and the opportunity to rearrange this if it is convenient. This action will be clearly recorded on PAS/Patient Centre as a hospital initiated cancellation to enable audit to be carried out. The information must also be communicated to the Cancer Office by the relevant department. Inpatient & Day Case Admissions This section covers the circumstances when a patient’s admission may have to be cancelled by the hospital for non-clinical reasons. Every effort must be made not to cancel patients at the last minute (e.g. on the day of admission or day of surgery). If it is necessary to cancel an Inpatient/Day Case Admission, the patient should be contacted by telephone and offered an alternative date at the earliest opportunity. The new date should still be before the patient’s Cancer Pathway breach date. Patients who are clinically urgent are annotated on reports by the clinical category to highlight the patient’s clinical need to staff. This provides bed managers and ward staff a way or prioritising the allocation of beds when there are capacity problems. 9. PATIENTS WHO DO NOT ATTEND (DNA) If a patient DNAs any hospital appointment, a check should be made that the contact details held by the Trust are correct; this should include checking the details held at the patient’s GP. If the contact details were incorrect, the patient should be given another appointment as soon as possible and within the patient’s pathway timescales. If the patient contact details are correct and they are booked to another appointment which they subsequently DNA again they will be referred back to the GP for management. First Appointment (inc. Diagnostic Appointments) If a patient DNAs their first appointment following the referral that started their cancer pathway, the clock will be stopped. A new clock will start on the day contact is made with the patient and the appointment is rebooked by the patient. If a patient DNAs for a second time, the managing Consultant (or an authorized member of their team) should review the referral to decide if they feel it would be clinically appropriate to refer the patient back to their GP. If it is deemed to be clinically appropriate, a letter should be sent to the GP advising them that the referral is being returned due to the patient not attending their appointment without giving notice, so their pathway has been stopped. The letter should be copied to the patient for information. If the clinician feels that it would be more appropriate to offer the patient another appointment, contact should be made with the GP to ask them to speak to the patient about the importance of attending the appointment and another appointment should be made as soon as possible in conjunction with the patient. Follow Up Appointments (inc. diagnostic Appointments) Page 49 of 54 If a patient DNAs a follow up appointment they should be given a further appointment. The patient should only be discharged back to the care of their GP, providing that discharge of the patient is in their best clinical interests. Once the decision has been made to discharge the patient back to the care of their GP, both the patient and the GP should be informed in writing. If a patient refuses to have any type of diagnostic test that could potentially diagnose a cancer then they are removing themselves from a 62 day pathway and will no longer be monitored as such. They will continue to be investigated on an 18 week pathway and in the event they are diagnosed with cancer will be monitored on a 31 day target. 10. PATIENT INITIATED CANCELLATIONS If a patient repeatedly cancels an appointment relating to their cancer pathway (irrespective of the nature of the appointment) the relevant Clinical Nurse Specialist (CNS)/Consultant should be informed so that they can ensure that the patient has fully understood the implications of their decision (unless the patient has opted for care in the private sector). If the patient decides they no longer require their appointment/admission, this is deemed to be a patient cancellation and should be noted as such on SCR and removed from cancer pathway and noted on PAS/Patient Centre, and the GP informed by letter with a copy filed in the patient’s notes. If a patient cancels an appointment on the day, this will be classified as a DNA. It will not be possible to utilise the appointment slot at short notice, and will effectively be under capacity. 11. PATIENT INITIATED DELAYS Outpatients and Diagnostics A record should be made of all requests from a patient to delay or defer appointments for investigations as fulfillment of these will protract the pathway. The request should be annotated on SCR along with the reason for the request if known i.e. patient on holiday. See section 13 below. Inpatients and Day Cases Patients on a cancer pathway need to be offered one date for admission for treatment as an inpatient (including day case admission) within their 31/62 day period for it to be classed as a reasonable offer. If a patient chooses to delay their admission for treatment for social reasons, a clock pause can be applied from the date of the first reasonable offer until the date that the patient indicates they are ready for admission. If a patient stipulates at their treatment decision appointment that they are delaying their treatment for whatever reason until a particular date the hospital does not need to offer them a date in this period to be able to make a patient Page 50 of 54 pause but must be able to advise that a date could have been offered, this will be well documented on SCR. It is essential that staff keep accurate records when handing patient choice delays noting the date of the first reasonable offer and the date the patient says that they are available for admission from... If a patient states that they are unavailable for admission between two dates (e.g. due to holiday) and the earliest date that the Trust could have offered was between these dates, a clock pause can still be applied without actually making the offer to the patient as they have already made themselves unavailable. The date that could have been offered should still be recorded on SCR/in the patient’s notes and the clock pause will start from this date. If a patient agrees an admission date but then subsequently cancels it, a clock pause can be applied between the date of the cancelled admission date and the new admission date. Clock pauses also cannot be applied to outpatient appointments or admissions for diagnostic testing (unless the test will also be treatment, e.g. excisional biopsies). 12. PRIMARY TARGET LISTS (PTL) It is the responsibility of the MDT Coordinator to track the patient’s progress through their cancer pathway from receipt of referral (or decision to treat to treatment in the case of subsequent treatments) up to the date of treatment. However, the consultant is responsible for all clinical aspects and decisions relating to the patient’s pathway, including deciding on appropriate treatment and ensuring the patient is clinically fit for any treatment. All patients whose pathway target date falls within 28 days will be discussed at the weekly PTL meetings, chaired by the Cancer Information Manager (or nominated deputy), in order to ensure any delays are avoided wherever possible. 13. STOPPING OF PATHWAY CLOCKS The 62/31- Day pathway clock stops when the patient has received first definitive treatment (FDT). Such treatments could be surgery, anti-cancer drugs, Teletherapy, Bracytherapy, Specialist Palliative Care, active monitoring and non-specialist palliative care. Enabling treatments are not classed as FDT except for the following: Colostomy for bowel obstruction Insertion of oesophageal stent Non-small cell lung cancer (NSCLC) stent Uteric stenting for advanced cervical cancer Insertion of pancreatic stent if planned to resolve jaundice before the patient has resection or commences chemotherapy. If a patient has an enabling treatment prior to surgery and remains an in-patient between the enabling treatment and the surgery, this date of admission would stop the pathway clock. Page 51 of 54 If a patient undergoes open and close surgery which does not result in the removal of the tumour, it can be counted as FDT as the procedure is intended to be “anti-cancer” despite the outcome not being successful. Active monitoring should only be used if active treatment is not appropriate at that point in time but may be required at a future date. It is the responsibility of the MDT Coordinators to ensure that all pathways are stopped appropriately and that the information recorded on SCR is a true reflection of events. The information recorded on SCR will be audited periodically by the Cancer Information Manager to ensure compliance with the relevant guidance. Patients who are not clinically well enough to undergo diagnostics/treatment within the relevant pathway timescales must not have their clock stopped. Patients who are offered a date for treatment of their cancer, but choose to delay this for any reason including preferential choice of clinician (i.e. Named Surgeon) or treatment (i.e. Robotic) will effectively pause the pathway from the date of offer treatment until the next preferential choice is available. 14. APPLICATIONS FOR PCT FUNDING When PCT approval of funding is required, the Cancer pathway clock will continue. There are no adjustments available for this reason. Applications for funding will be made by the clinical team. 15. PATIENTS WHO CHOOSE THE PRIVATE SECTOR If a patient chooses to be seen under the private sector for any diagnostic tests following a referral to the NHS for the same condition, the patient’s NHS pathway will be closed down and “No cancer diagnosed” on SCR. If the patient then chooses to return to the NHS for treatment following a diagnosis being made in the private sector, they will be covered by appropriate 31Day Standard. If a patient is diagnosed with cancer in the NHS but then chooses to have their treatment in the private sector, the SCR record will be closed as “Diagnosis of new cancer confirmed – no NHS treatment planned”. 16. COMMUNICATION WITH GP’S Page 52 of 54 GP’s will be kept fully informed of their patient’s flow through clinical pathways. When a patient is given a diagnosis of cancer, the clinical team will notify the GP by fax within 24-hours of the diagnosis being communicated to the patient. 17. REFERENCES 18. BCC CNC CNS CUO CWT DNA DTT ECAS FDT FPH GP IPT MDT NHS NSCLC OPA OPC PAS PCT PTL SCR TWR UBRN Cancer Waiting Times (CWTs) – A Guide v8.0 (Department of Health) Frimley Park Hospital 18 weeks RTT Access Policy GLOSSARY Basal Cell Carcinoma Cancelled Clinical Nurse Specialist Cancer Unit Office Cancer Waiting Times Did Not Attend Decision to Treat Earliest Clinically Appropriate Date First Definitive Treatment Frimley Park Hospital General Practitioner Inter Provider Transfer Multi-Disciplinary Team National Health Service Non-Small Cell Lung Cancer Outpatient Appointment Outpatient Clinic Patient Administration System Primary Care Trust Primary Target List Somerset Cancer Registry Two Week Rule Unique Booking Reference Number Page 53 of 54 Appendix A Cancer Unit Office - Processing the Referral Letter TWR Fax from GP GP faxes referral to Cancer Unit Office TWR coordinator stamps letter with date received Fax back to GP Cancer Unit Office faxes confirmation to GP TWR coordinator reads letter Does the patient have a hospital number? No Contact Pre- reg for a number Yes TWR coordinator stamps letter with green TWR stamp TWR coordinator notes date patient must be seen by on letter above date stamp Can TWR coordinator identify specialty ? Yes TWR coordinator processes letter End stage Page 54 of 54 No TWR coordinator takes letter to consultant for clarification