Seeing Beyond Vision Loss A Year in Review 2013-2014: Newfoundland and Labrador Division We’re here every step of the way Established in 1918, CNIB provided food, clothing, residences and library services to blinded veterans and other Canadians living with vision loss. Our organization has evolved over the last 96 years: in addition to charitable programs – such as education, advocacy, research and client support – CNIB has become the primary provider of vision rehabilitation in Newfoundland and Labrador. CNIB’s vision rehabilitation programs and services reduce the personal, social and economic costs of vision loss, while improving the overall health and well being of individuals who are blind or partially sighted. CNIB helps individuals to see beyond vision loss and lead full, active lives. Whether that means learning to cook again after a loss of sight, going back to school, maintaining employment, travelling safely and independently with a white cane or getting support to adjust to the emotional and social impact of vision loss. As we approach CNIB’s centenary in 2018, we look forward to continuing to work in partnership with those we serve, as well as with other organizations, the medical community, and government to create a future in which every Newfoundlander and Labradorian has the opportunity to fully participate in life. COMMUNITY PARTNERSHIPS Collaboration with allied health professionals improves quality of life CNIB is working in partnership with allied health professionals and academic communities to create an exceptional client experience, while improving the quality of life for individuals who are blind or partially sighted. In fact, more than half of the people who come to CNIB in Newfoundland and Labrador are referred by an ophthalmologist or a doctor of optometry. Working collaboratively and leveraging our respective strengths: enables us to reach individuals before their vision loss has a severe, lasting impact on their health, independence and quality of life leads to better outcomes for individuals with vision loss reduces pressures on hospitals and care facilities 1 New peer-support group connects local teens Last fall, CNIB launched its first-ever Teen Support Group connecting seven youth who are blind or partially sighted. This peer-support group serves as an avenue for teens to share their experiences, make friends and assist each other in overcoming the challenges and social barriers sometimes faced by individuals with vision loss. The group has gone a long way towards expanding each participants’ social horizon – and has helped strengthen independent living skills as teens learned how to navigate grocery stores and shop effectively, and participated in cooking lessons. Building a brighter future for children and youth More than 25 children participated in CNIB’s summer intervention program which helps grade-school students maintain and build vision rehabilitation skills during the summer months. Over the last year, CNIB continued to provide post-secondary orientation to grade 11 and 12 students from rural and urban areas who are blind or partially sighted. The program helps students transition from high school to university, college or other post-secondary institutions. Four students toured university and college campuses throughout St. John’s, and took part in orientation and mobility and independent living skills activities. Annual family summer camp helps kids be kids In August 2013, 70 campers from across the province attended CNIB’s annual summer family camp in Bishop’s Falls. The four-day camp featured activities for children and youth with vision loss and their families, including swimming, crafts, Zumba and archery. Heartfelt thanks to the VOCM Cares Foundation who donated $10,000 to fund this year’s family summer camp. In the blink of an eye A few devastating seconds is all it takes to go from 20/20 vision to no vision when a worker isn’t wearing protective eyewear. Over the last year, 953 workers in Newfoundland and Labrador participated in CNIB’s Eye Safety Program, through 32 interactive workshops that focused on the importance of vision health and safety. Developed and launched in 2010, CNIB’s Eye Safety Program educates organizations and their employees about eye protection and aims to foster a culture of eye safety within the workplace. CNIB’s Eye Safety Program is proudly supported by: Workplace Health, Safety and Compensation Commission; Husky Energy; Newfoundland and Labrador 2 Construction Safety Association; Newfoundland and Labrador Doctors of Optometry; and Novartis Pharmaceuticals. Meet the Coveyducks When her six-year-old daughter, Morgan, was diagnosed with astigmatism and two lazy eyes, Robin Coveyduck felt shock and relief. For more than five years, her daughter accepted her vision as ‘normal’ – assuming everyone saw the world the same way she did. Instead of telling her parents that the words in her children’s books were blurry and distorted, Morgan learned to memorize each line by-heart. After receiving notes from Morgan’s school saying her letter recognition wasn’t up to par and that she struggled with concentrating in class, Robin took her daughter to see their local optometrist, Dr. Sarah Hutchens. Morgan’s visual acuity was 20/100 in one eye and 20/200 in the other. “We were shocked to learn how poor Morgan’s eyesight really was and that she’d likely been living with vision problems since birth,” says Robin. Morgan’s family and teachers thought her symptoms were in line with attention deficit disorder; she was even on a waiting list to be tested. “It turned out that things like Morgan’s issues with concentration, not being able to focus on tasks and becoming easily overwhelmed and frustrated...they were all a result of her vision loss, not ADHD,” she says. Following her daughter’s diagnosis, Robin and her family began working with CNIB’s early intervention specialist who helped Morgan and her parents adjust to her vision loss – and ensure the family has access to the programs and resources they need to help Morgan lead a full, active life – just like any other child. The Coveyduck Family’s story is fairly common. Poor vision can often be misdiagnosed as learning problems or behavioral issues. In fact, research shows that one in six school-age children diagnosed with a learning disability actually has a correctable vision problem. More than 80 per cent of early learning is visual, and poor eyesight can significantly affect a child’s ability to perform in school and develop to their full potential – therefore, comprehensive eye exams are critical to protecting a child’s sight. Robin urges all parents to make their family’s vision health a priority, “every parent wants their child to be healthy and happy – and regular visits to the optometrist are an important part of that.” 3 VISION REHABILITATION CNIB’s vision rehabilitation specialists deliver programs and services where Newfoundlanders and Labradorians need them most: in their own homes and communities, over the phone, online and at CNIB centres in St. John’s, Corner Brook, Grand Falls-Windsor and Happy Valley-Goose Bay. Initial Interview Registration and Referral Coordinators assist new and returning clients to identify their needs and then connect them to services, programs and resources. Client Support Services Staff provide clients with information about library services, CNIB ID cards and community concessions. Low Vision Assessments Low Vision Specialists provide explanation and information about eye conditions and vision health, as well as instruction in the use of low vision aids such as magnifiers, and how to use lighting and colour contrast to maximize residual vision. Adjustment to Vision Loss Counselling CNIB’s Counsellors provide one-on-one counselling and facilitate structured peer- support programs to help individuals come to terms with their vision loss, understand their emotions, and accept the support and training that will allow them to continue to live independently. Independent Living Skills Independent Living Specialists provide training in skills, techniques and adaptive aids to carry out everyday activities, like preparing meals safely, identifying money and using the telephone. Instruction also includes organizational and labelling techniques for both household and personal items. Orientation and Mobility Orientation and Mobility Specialists teach people how to travel safely, independently and confidently in their home, community and workplace. Instruction includes the sighted- guide technique (a safe way to walk with a sighted person), way-finding skills, long cane techniques and street crossings. Assistive Technology and Products Assistive Technology Specialists provide information, demonstration and training enabling people to use screen magnification, screen-reader programs, cell phones with accessible features and other technologies. Employment Services Career and Employment Specialists provide career explorations services, 4 workplace accommodation assessment, post-secondary transition planning, and support to employers and employment agencies. Early Intervention Early Intervention Specialists help children and youth reach developmental milestones and build social skills through one-on-one instruction and peer programs. Families discover resources, receive counselling and participate in workshops on raising – and advocating for – a child who is blind or partially sighted. PHILANTHROPY AND VOLUNTEERS Hollywood meets George Street in CNIB event In September 2013, CNIB brought the glitz and glam of Hollywood to St. John’s as we hosted our fifth annual Vision’s Lounge event. Presented by Technip Canada, Hollywood Northeast featured a live auction, music and entertainment, appearances by local CBC celebrities and TV personalities, one-of-kind martinis and extraordinary cuisine...fit for the a-list stars of Hollywood. Hosted at Dusk on George Street, Dr. Edna Turpin returned as honorary chair for the event, which raised more than $120,000 in support of vision rehabilitation services in Newfoundland and Labrador. Blindfolded guests raise funds for vision rehab It’s not unusual to close your eyes to savour a bite of a favourite dish. But have you ever consumed an entire meal that way – replacing sight with touch, taste and texture? That’s precisely what 237 guests did at CNIB’s Dining in the Dark fundraisers in 2013-14. Presented in partnership with Browning Harvey Ltd., Dining in the Dark events were held at Gitanos’ Supper Club and Tapas Bar in Corner Brook, and Raymond’s Restaurant and Gypsy Tea Room in St. John’s. Based on a restaurant concept popularized in Paris and New York, blindfolded guests took part in a unique culinary experience where they explored flavours, textures and aromas in a whole new way. Community Giving CNIB received outstanding support from local foundations this year, including the Cal LeGrow Foundation, Retired Teachers Association, and VOCM Cares Foundation who all funded a number of CNIB’s early intervention programs for children and youth. The International Grenfell Association awarded CNIB $50,000 to equip our Happy Valley-Goose Bay office with the unique products, low vision aids and 5 assistive technologies needed to provide vision rehabilitation assessments and services to our growing number of clients in the Labrador region. Volunteers provide one-on-one sighted assistance Imagine losing some or all of your vision. How would you tackle everyday activities you often take for granted? CNIB’s Vision Mate program matches individuals living with vision loss with specially-trained volunteers who offer friendly companionship and help with day-to-day tasks and errands. Vision Mate volunteers assist individuals with a variety of tasks including reading mail, grocery shopping, labeling and organizing household items, as well as enjoying leisure and recreational activities together – like playing cards and going for walks. Thanks to funding from New Horizons, Vision Mates have been matched with clients in St. John’s over the last year – and the program is expanding across the province. Meet Tyler Butler Although Tyler Butler hasn’t been able to see since he was a toddler, he doesn’t believe that he has a disability. The 18-year-old student hasn’t let anything stop him from reaching his goals and is eager to break down any barriers that get in his way. “I don’t believe that being blind is a disability,” says Butler. “I have to make adaptations, but I’m still able to do everything I want to do. There is nothing that can stop me once I put my mind to it.” Armed with a $3,000 scholarship from CNIB, the Queen Elizabeth Regional High School graduate began his first semester of post- secondary education at the College of the North Atlantic this past fall. The longtime CNIB volunteer and ambassador is currently enrolled in the Business Management Marketing program and hopes to one day use his degree to own and operate his own business. “I like taking on new challenges – and I’m excited to see what the future brings,” he says. “The road to success is never easy, but I’m not going to let anything stand in the way of reaching my goals.” GOVERNMENT FUNDING Towards a common goal CNIB would like to recognize the Department of Health and Community Services and Eastern Health for providing funding for essential vision rehabilitation services. 6 As well, CNIB would like to acknowledge the Department of Advanced Education and Skills for providing funding so that CNIB can continue providing employment assistance services to working-age Newfoundlanders and Labradorians who are blind or partially sighted. Impact of vision loss Compared to people who are sighted, people who are blind or partially sighted experience: Three times as much clinical depression A greater number of medication errors Twice the risk of falls Four times the risk of serious hip fractures Premature admission to nursing homes – three times earlier on average Two to five times more difficulty with daily living Twice as much social dependence Access to vision rehabilitation services significantly reduces the incidence of falls, fractures, medication errors and depression – and enables people to live safely and independently in their homes. Testimonial: “I was working as a registered nurse when I suddenly lost my vision to optic neuritis. After the healthcare system diagnosed my eye condition, I then relied on a charity – CNIB – to learn to live independently again and regain my confidence.” – Cindy A., who volunteers to raise awareness of programs for individuals with vision loss. CNIB FINANCIAL REPORT Revenue Fiscal year ended March 31, 2014 Support from the Public: 29 per cent Government Funding: 54 per cent Fees for Service and Misc Income: 17 per cent Expenditures Fiscal year ended March 31, 2014 Services and Public Education: 79 per cent Philanthropy: 14 per cent Administration: 7 per cent 7 HEARTFELT THANKS CNIB couldn’t do the work we do without the incredible support of our volunteers, community partners and donors. We also recognize the Newfoundland and Labrador Division Board members’ commitment to vision health and thank them for their contributions in 2013-2014: CHAIR Jim Hynes VICE CHAIR Trevor Giles PAST CHAIR Patricia Suvak Danny Barrett Jason Blair Dr. Sarah Hutchens Trina Oake Philip Strong CNIB Centres 70 The Boulevard St. John’s (709) 754-1180 3 Herald Ave., 1st Floor Corner Brook ( 709) 639-9167 1A O’Neill Ave. Grand Falls-Windsor (709) 489-6515 49 Grenfell St. Happy Valley-Goose Bay (709) 896-8302 Visit us online at cnib.ca/nl. 8