Embedding cultural change in mental health services in Bristol: Views from the voluntary and community sector Report for Bristol NHS December 2012 1 Contents Page 1.0 Foreword 3 2.0 Introduction 4 3.0 The culture required to deliver new mental health services in Bristol: Overarching themes 5 4.0 Recommendations for action: How to embed cultural change in Bristol’s new mental health services 12 5.0 Acknowledgements 15 6.0 About The Care Forum 16 2 1.0 Foreword: Rachel Robinson, Chief Executive The Care Forum The engagement and consultation phases of modernising adult mental health services in Bristol have offered voluntary and community sector (VCS) organisations the opportunity to share their views and shape services. The challenge ahead will be to sustain the diversity, vibrancy and responsiveness of the sector as new mental health services in Bristol take shape. Many organisations have embraced this opportunity. Their commitment to this process does not demonstrate the fact they have time on their hands. Indeed most VCS organisations have faced an unprecedented and less well resourced demand for their services in recent times. Instead, by engaging in this process the VCS in Bristol have shown their commitment to the individuals and communities they serve and their desire to help shape truly responsive services. This report builds on the initial work The Care Forum undertook with VCS organisations in the summer of 2011. The findings were drawn together in the report “Improving and modernising mental health services in Bristol: Views from the voluntary and community sector” and were reflected during the subsequently drafted model and pathways for mental health services which were subject to consultation in the summer of 2012. The next steps will be towards implementation of new services. I welcome the opportunity this event and report gave to gather together the views of the VCS on embedding cultural change in mental health services. 3 2.0 Introduction: Louise Hudson The event hosted by The Care Forum on Tuesday, 20 November aimed to facilitate voluntary and community sector organisations to share their views on embedding cultural change in Bristol’s new mental health services. The intention was to inform the next phase of modernising mental health services in Bristol and the commissioning of new services. The event was delivered in partnership with NHS Bristol. Andrew Keefe, Associate Director for Mental Health in Bristol set the scene while independent facilitator Amy Shortridge chaired discussions and challenged the audience to consider the concept of culture. Three discussions groups were facilitated by Ruth Hallett, David Harris and Andrew Keefe from NHS Bristol. Participants were asked to consider three key questions: were coded and analysed. Alongside those themes, the voices of the voluntary and community sector participants remain prominent throughout this report, as their insights on cultural change deserved highlighting. The recommendations in this report arise from the themes emerging from the discussions with and between VCS providers and are wholly based upon the views of the participants. The recommendations are designed to inform the work of commissioners as modernising mental health in Bristol moves towards its implementation phase. Lastly, I would like to thank the voluntary and community sector organisations who took part in the meeting and gave their time to share their views. 1. What is the culture required to deliver the newly commissioned mental health services for Bristol? 2. How would you notice cultural change in practice? 3. Using your own experience, what do you consider works to positively influence cultural change? Please share examples from your own organisation or other places you have worked. Verbatim notes were taken and key themes emerging from the discussions 4 3.0 The culture required to deliver new mental health services in Bristol: Overarching themes Demonstrates strong leadership Cultural change requires leadership. “What I have seen in Modernising Mental Health are senior commissioners in meetings. That is positive.” Participants want commissioners to continue to communicate with providers during the implementation phase of new mental health services. “A lot of VCS groups feel that the culture has been dominated by NHS providers and not commissioners.” Strong leadership from commissioners with a focus on outcomes will enable providers to be clear about what is expected from their services. Shared expectations among providers and commissioners will enable cultural change to happen. “Compared to drug services it feels like providers are not so responsive to commissioners.” Providers must be accountable to commissioners. Bold leadership from commissioners should be followed by bold leadership within organisations themselves with a shared vision for change and for what good services should look like. Participants described this as “leadership with vision for change.” Supports staff Better staff morale will lead to staff retention. There was a desire amongst participants to see people enjoying their jobs and feeling positive about where they work. The view was that a positive culture will come from staff who are not overwhelmed and who are supported and resourced to do their jobs. “Consistency of care and staff retention will lead to better services and will avoid people being continually asked the same questions about their needs.” Internal and external communications should celebrate success stories. “Organisations must truly want to bring out the best in people.” Innovates and embraces change “Recognise that there will be other ways of doing things. Keep an open mind and be innovative.” Organisations must be open to new approaches and embrace change. “Have a can do attitude and support new ideas even when it’s different from what you have done before.” “Where there is a need create a project to meet it.” Organisations should be open to receiving assistance from the outside 5 to enable them to change and to deliver new projects. An example was given of a statutory service working with the National Autistic Society (NAS) and using NAS to monitor how staff changed their practice following training in autism awareness. “When staff understand why the previous way is not always right they will find change easier to accept.” Staff can be encouraged to recognise that small steps towards change are of value and are important. “Change takes time and small ideas can make a difference.” A desire for change should filter through an organisation. “Staff from all levels in an organisation should be involved in cultural change. That way they can all feel part of a solution.” Demonstrates a commitment to community engagement “Listen to people and communities, this will result in plans which have needs, strengths and goals included – currently it feels like only needs are included.” Services should work in partnership with the community and value what they have to offer. The knowledge held by communities, individuals and carers is a positive resource that can be used to shape responsive services. of service users and carers to have a say. They should be encouraged to try innovative approaches to giving people a voice. “A theatre company launched a poetry session with mental health service users. This gave a sense of someone as a whole person.” Community engagement must reflect the community and not a narrow section of the community. Services should communicate how they are involving the community. They must also demonstrate what happens as a result of community engagement. “You need people that have used the service to come forward and say that things have changed.” Outward-looking Providers and commissioners must look outward. Collaborative working between service providers from the statutory and voluntary sector services will lead to seamless and less costly services. “We have recently taken a referral from a social worker who wanted to try a different approach. The carer is now getting more support and the client is feeling better and has not been readmitted to hospital since we have been working with them.” Outward-looking organisations can foster a shared understanding and vision and work in partnership effectively. Services and organisations should encourage and support a wide range 6 “I think so far the AQP bit is good. People were working with us. We are now finding groups of organisations contacting us, coming together and having a dialogue. Before it felt like working in isolation.” Relationships between organisations matter and will enable services to become person-centred. Different providers need to be clear about different services and different skill sets. “We are a preventative service. We complement each other. It is about knowledge and shared understanding. It is about clarity.” Positive examples were given of multiagency meetings taking place in the substance misuse and homelessness sectors. “Invest in monthly multi-agency meetings.” Knowledge of services beyond an organisation’s own boundaries will enable providers to refer onto appropriate services. Organisations should support each other, promote each other’s services and be confident about referrals and sharing information. “There should be more information sharing amongst professionals so that service users do not need to keep repeating their stories. Confidentiality can be used negatively.” Organisations that are outward-looking will be able to take an asset-based approach and use the resources that already exist. Pooling budgets to jointly commission services and to invest in multi-agency training was recommended. “In the Vale of Glamorgan, a range of health professionals from different departments and different roles joined budgets together for joint training. This encouraged ward nurses, occupational therapists and other staff to think very differently. The training was carried out in libraries and included role play and positive mental health service role models. Pooling budgets for training works.” The statutory sector must improve their understanding of the value of VCS agencies. The use of less costly resources will lead to savings up the line. There must be a broader view of resources and solutions. Solutions do not lie in services alone. They exist in individuals, carers and communities. “Potentially all the resources that exist can be part of someone’s recovery. Consider all the options for someone. A broader view of solutions is needed.” Recovery-focussed “The person themselves needs to be seen as a potential resource in their recovery. It needs to be a wholeperson assessment. You would know when someone has been listened to because the services they receive start to match not just their needs, but also their goals and strengths.” 7 The relationship between client and provider should be one of partnership. A belief that change is possible should cut across services, organisations and staff/client relationships. Plans should not be “care” plans but instead should be “recovery/outcome” plans. They should be personal and strengthbased. Outcomes should measure achievements and not just stability. “Hope and enthusiasm should replace despair.” “Aspirations need to be raised on both sides (service users and workers). Participants want a culture in mental health services that raises aspirations and demonstrates an enthusiasm about the potential for an individual to positively change their life. Reduces and challenges stigma Mental health services must demonstrate their commitment to reducing and challenging the stigma associated with mental health. “The concept of mental health and what good mental health means should be grounded in all services. At the moment we have a culture where mental health means mental illness. We need a sea-change where mental health can be talked about. It is down to the skills of those working in support organisations and at the moment they are not good enough. Any worker should know about mental health not just mental illness.” Participants articulated a desire to see professionals reducing stigma by not just seeing symptoms and actively promoting inclusion. “Reduce stigma. One way to do this would be for professionals not to reflect people as a bundle of symptoms and problems, as this leads people to label them-selves as mentally ill.” It was suggested that services could be promoted in a way that destigmatises. “There is a danger that we therapise everything. E.g. eco-therapy. We should normalise everything that nourishes us all.” Participants wanted a culture overall where mental health is easier to talk about and this could be enabled through facilitative skills held by more people. “There is a lot that could be done in terms of de-stigmatisation. You need to respond to mental health and not just a diagnosis to be managed medically.” Promoting services commissioned via GPs could help to challenge the stigma associated with mental health and ill-health. Promotion of newly commissioned services means visibility and can promote better quality and better care. Transparent An understanding about statutory sector mental health services – what 8 exists and what people can expect – will encourage people to feel confident about using and referring onto services. Transparency will enable carers and other organisations to understand how people can access help. Transparency about services will enable people to regain trust in mental health services. “People going into mental health services face a dark corridor compared to people accessing other clinical services. People needing mental health services should understand a possible pathway.” swifter access to all services when needed. “Avoid phone lines where people get passed from person to person.” Proactively communicate and engage with stakeholders. “Support people in the community to have the skills to say when people need intervention and provide a fast route when needed.” Community services should have access to mental health services and access should be fast when needed. Provides accessible information and accessible services Linked to transparency, mental health services must be accessible in the widest sense. “We know when we pick up the phone the person at the other end doesn’t always want to pick up the referral. Now we feel we can signpost to other AQP providers.” “Provide meaningful, appropriate accessible information in all formats.” Carers, service users and professional – both experienced and novices – should expect and receive a meaningful response about what they can expect from services in a short timeframe. Information about services and what to expect should be available through a variety of formats and outlets. External and internal communications should reflect an organisation’s values and foster a shared understanding amongst staff and outside stakeholders. “These things [values] need to be visible in literature, the website etc.” A provider’s communications should demonstrate their values and their values should be reflected in accessible services. People want “You want an organisation to respond to emotional/mental distress. You need to get a reliable response about what you can expect from services. Anyone should be able to access professional advice about clients and get a response. Inexperienced colleagues without selfconfidence around mental health don’t get the same response as me.” “Access should not depend on a diagnosis.” 9 Investment in language and communication support will foster accessible services. the service is of value. You need peersupport and you need evidence from survivors.” “We feel we get exploited. For example, they may not have the right worker and they turn to our organisation and ask if we can be there to give language support.” There is a strong culture of userinvolvement in drug services. Examples were given of approaches that were self-directed and mutually supportive. Provides choice Choice matters to service users and carers. “It is very powerful when people can share life experiences. We take a SMART approach – where ex-users run these groups.” “Young people and adults should be able to go to any type of organisation they are comfortable in. Someone with an understanding and a basic level of training should be there to give them advice and direct them. People need a place that is independent, friendly and staffed by a wide group of knowledgeable practitioners that can signpost.” As far as possible organisations delivering mental health services should offer choices and different options to service-users. Non-clinical approaches should be offered when appropriate. “User-involvement is within our culture [drugs services]. It is the engine of our provision. Specialist groups are populated by peer support workers and other people using services.” Participants described how user-led involvement encouraged individuals to feel valued. User organisations can also shape and influence commissioning. “Medication needs to be used as one approach and used appropriately.” “In drug services commissioners funded a user organisation which influences commissioning. It is a vehicle for service users to influence. It was commissioned by the drug action team and not the provider.” Involves service users Participants shared many positive examples of peer-led service user involvement. Responsive to carers Mental health services need to adopt a culture that recognises carers as central to delivery. “In our fathers’ group there is mistrust of statutory services. What is powerful is having the group say that “Understand that carers are an essential part of it all. If carers are not supported, the repercussions will affect 10 service users. Carers need to be central. However, remember that service users’ aspirations are not always the same as those of carers.” Working proactively with carers and carers organisations will help support carers as a resource in an individual’s care and recovery. Carers should be informed of services that exist outside mental health services to support them and to enable them to support those they care for. “Understand cultural differences, in particular around the needs of carers.” Respecting culture and at the same time being proactive, in order to meet needs, will require new approaches. “One size does not fit all. There are big challenges. Understands cultural diversity Voluntary and community sector organisations want mental health services that care about people and understand cultural diversity. “Cultural awareness and being open to other approaches is important.” Organisations must connect with the voluntary and community sector and the grass-roots of a community to understand cultural diversity in all its guises. “Places like the church are important to people that are facing mental health issues. Many people would not go to the doctors to get help. People from my culture [AfroCaribbean] need to see evidence of things changing.” In many communities [Afro-Caribbean and South Asian were given as examples] families will gather round and hide the fact that someone has a mental health need. 11 4.0 Recommendations for action: How to embed cultural change in Bristol’s new mental health services 3. 1. 2. Map services Organisations want a transparent culture that communicates the services available. People and professionals want to direct people to the right services. They want to know how services fit together, who is delivering the different services and what to expect from services. Demonstrate how care pathways will work in practice and how pathways will link to other services. Communicate your values Commissioners must explain and repeat the mantra of cultural change. Organisations must demonstrate their values via internal communications that foster a shared culture amongst staff. External communications provide an opportunity to foster a shared culture with partners. Communications must be accessible for all stakeholders including service users and carers. Communications must be relevant and up-to-date. Demonstrate how you value those with expertise at all levels from service users to family members to psychiatrists. Invest in robust commissioning and monitoring procedures Commissioning must seek to maintain a diversity of provision so that services are responsive and offer choice. Commissioners should lead the way in fostering collaboration and actively seek to avoid organisations competing, duplicating or dominating. Pool resources and commission jointly between statutory agencies to foster the development of creative and less boundaried services. During the implementation phase of modernising mental health senior commissioners need to remain in dialogue with providers across the board. New GP commissioners need to be visible and actively listening and demonstrating their shared understanding of the values underpinning modernising mental health in Bristol. Commissioners must have an open-door so that problems can be aired and resolved. Adopt outcomes-focussed monitoring and robust servicelevel agreements which include goals and outcomes. Measure qualitative and quantitative data. Measure shortterm and long-term outcomes 12 4. 5. Invest time in monitoring to ensure that organisations are accountable. Monitor and audit the diversity of providers. Monitor and audit the quality of recovery and care plans. Monitor and audit multistakeholder customer satisfaction, and user and carer involvement. Monitor the accessibility and quality of culturally appropriate services. Use existing resources Pool budgets and share responsibility amongst commissioners. Actively promote the resources that exist within individuals, families and communities to promote recovery and maintain mental health. Look outwards and use community resources. Actively seek non-clinical solutions and work in partnership with community organisations to deliver innovative approaches. Use signposting and information services to identify community resources. E.g. Well Aware, Happy City and Mind databases. Use care pathways to show the links to and means of accessing community resources. Involve service users and carers Learn from approaches adopted within drug treatment services that have a strong-culture of user involvement and peer support. 6. 7. Fund a user organisation that influences commissioning and is independent from NHS providers. Invest in training Invest in multi-agency training to provide an opportunity for organisations to come together, share approaches and foster shared values and understanding. Ensure multi-agency training takes place in a variety of community settings. Invest in training to upskill organisations to sign-post to appropriate services and community resources. Invest in staff training to engender confidence and to demonstrate to staff they are valued. Monitor changes in practice that come about as a result of training. Pool budgets for training. Involve service users and carers in multi-agency training. Share information Agree a multi-agency protocol for confidentiality and information sharing. Agree a multi-agency protocol for sharing and managing risk. Invest in network meetings to give professionals time-out to meet each other and commissioners. Hold regular, face-to-face multiagency meetings. Make the best use of existing technology to information share e.g. teleconferencing, video- 13 conferencing, web-based communication tools. Share maps of services and named contacts. Agree who is responsible for and paying for access needs to be met. 14 5.0 Acknowledgements Thanks go to the following VCS organisations that took part and shared their views: Alzheimers Society Battle Against Tranquilisers (BAT) Bristol Drugs Project Bristol Mind Dhek Bhal Hartcliffe and Withywood Kick Start (HAWKS) Knightstone Housing Association Life Cycle UK Milestones Trust Nilaari National Autistic Society (NAS) Off the Record Positive Minds Rethink Mental Health Second Step The Carer’s Support Centre Windmill Hill City Farm Womankind 15 6.0 About The Care Forum The Care Forum is a charitable organisation that promotes health and wellbeing and challenges inequalities in heath and social care policy. We have more than 20 years experience of partnership work with statutory, voluntary, community and social enterprise sectors across the west of England sub-region and beyond. Our networks of voluntary and community sector agencies inform and support organisations and their service users to express their views, make their needs understood, participate in decision-making and improve access to health and social care services. The Care Forum researches, evaluates and promotes best practice in health, wellbeing and social care policy and services. We host two Local Involvement Network (LINks) and provide advocacy, social prescribing and information services to help improve individuals’ access to and involvement in health and social care services. To find out more about our services visit www.thecareforum.org.uk or contact The Care Forum 0117 965 4444. For further information about the content of this report email louisehudson@thecareforum.org.uk or 0117 958 9337. 16