Specialist Palliative Care Services at HEYT Dr Kirsten Saharia Dr Elaine Boland Consultants in Palliative Medicine Definition • Palliative care is the active, holistic care of patients with advanced progressive illness • Management of pain and other symptoms and provision of psychological, social and spiritual support is paramount WHO definition, 1990 Palliative care • Is multiprofessional • Affirms life and regards death as a normal process • Neither hastens nor postpones death • Provides relief from pain and other distressing symptoms • Integrates the psychological and spiritual aspects of patient care Palliative care • Offers a support system to help patients live as actively as possible until death • Offers a support system to help the family cope during the patient’s illness and in their own bereavement Specialist Palliative Care Services Hospice Hospital Palliative Care Team Community Palliative Care Team Specialist Palliative Care Services • 2008 • Now – 1 Consultant (0.8 WTE) – 4 CNS (4 WTE) – 4 Consultants (2.05 WTE) – 6 CNS (5 WTE) – Inpatient specialist palliative care beds – No inpatient specialist palliative care beds – Excellent access to specialist palliative care beds at local hospice Hospital Palliative Care Team • Consultants: – Dr Kirsten Saharia (0.55wte HEYT + 0.3wte Hospice) – Dr Hannah Leahy (0.6wte) – Dr Elaine Boland (0.9wte) – Dr Rachael Dixon (0.8wte Hospice + 0.2wte HEYT) Hospital Palliative Care Team • 6 Clinical Nurse Specialists (5wte) – – – – – – Jane Prutton Steve Morris Maggie Simkiss Debbie Marsh Gill Moy Leanne Joseph • 1 MDT administrator (part –time) – Liz Lawson The role of the Specialist Palliative Care Team in Hospital • Joint working with other specialist teams • Management for complex symptoms & ethical dilemmas – All patients discussed in SPC MDT • Promote advance care planning • Support implementation of end of life care strategy • Education • Clinical governance Advisory Role • Any patient, anywhere in the acute trust • For any patient with life-limiting, advanced progressive disease – Physical symptoms – Psychological issues – Social and family issues – Spiritual issues SPC Consultants Pain team SPC CNSs Psychologist SPC Pharmacist Specialist Palliative Care MDT SPC Social worker Chaplain AHPs SPC MDT administrator SPC Outpatient Clinics • Consultant led • Urgent pain and symptom management • Tuesday afternoon, Thursday and Friday mornings • Held in oncology outpatients • Anyone can refer • Offer educational opportunities Education • Communication skills • Symptom management • End of life care • Principles of palliative care • Ethics • Undergraduates – Medical – Nursing • Postgraduates – Medical – Nursing – Allied health professionals – Auxillary staff Clinical Governance • • • • • Patient safety Audit Guidelines Peer review measures Engagement with HYCCA Research • EPAT study – Edinburgh Pain Assessment Tool – Looks at documenting pain as one of the vital signs in cancer patients – Protocols to follow depending on pain scores and type of pain – Pilot study shows improved pain management Service developments in the last year • • • • • In-reach service to acute services at HRI Daily visits to HRI Collaboration with Dove House Hospice Building links with community services Building links with non-malignant disease services – Heart failure MDTs – Joint working with liver team Inpatient Referral Patterns 2010 2011 2012 2013 (to end May) Number of referrals received 689 763 877 454 (1089 projected) Number of referrals seen 584 647 724 377 (904 projected) Advice to professionals only Not recorded 46 95 47 QCOH 404 (69%) 469 (72%) 487 (67%) 178 (47%) HRI 66 (11%) 68 (11%) 152 (21%) 157 (42%) CHH 114 (20%) 110 (17%) 84 (12%) 42 (11%) Numbers of non-malignant referrals Year Number of patients with nonmalignant disease 2009 11 2010 33 2011 29 2012 84 2013 to end of May 101 The Future • Developing a seamless service across palliative care providers • Developing a 7 day service • Further developing links with nonmalignant disease areas • Improving End of Life Care in the acute hospital Thank you Any questions?