CANSHALA
BMC-CANKIDS SPECIAL SCHOOL
for CHILDREN WITH CANCER
December 2012, Delhi
SCHOOL IN SESSION – EVEN WITH CANCER
School bolsters a young patient’s adjustment to cancer treatment In addition to school
broadening the mind, it also heals the soul for a young cancer patient, CANSHALA will not only
help patients keep up so they can return to school, but also give them a great emotional boost.
Learning with their peers in the classroom environment and having caring interactions with
teachers provides a sense of normality. School helps kids’ self-esteem.
“If people tell a child he can go to school while going through cancer treatment, he
thinks, ‘they must believe I’m strong enough.’ It instills confidence in them.”
December 2012, Delhi
Taklu Takli ki Pathshala –
THE 1ST OF ITS KIND IN INDIA
•
The “school in the hospital” to
serve children with cancer coming
to
Tata,
Wadia,
LTMG-Sion
Hospital and other Cancer Centers
in Mumbai
•
A PPP between local State Govt
and Cankids. We are the local
partner of MCGM and the school
will
run
by
CanKids
with
collaboration of MCGM, Mumbai
•
Children with cancer, registered
at Canshala Mumbai, will not miss
out on Schooling or promotion,
while under treatment
Jagannath Bhatankar Municipal
School, Parel, Mumbai.
Nov 16, 2012
December 2012, Delhi
CANKIDS KIDSCAN
A family support group for children with cancer
and
their
spectrum
families
of
providing
childhood
the
cancer
entire
support
services
Set up in Jan 2004 , under the umbrella of
Indian Cancer Society today we are our own
Society CANKIDS …KIDSCAN.
Members
of
ICCCPO
–
International
Confederation of Childhood Cancer Parents
Organizations; adopting the guidelines of SIOP
–
International
Association
of
Pediatric
Oncologists – as our Mission Statement.
December 2012, Delhi
Our Vision
•
To ensure children with cancer enjoy the highest attainable standards of health and facilities for
treatment, care and support – in accordance with the Article 24 of the UN Convention on the
Rights of the Child.
• To ensure 70-90% survival rates for children with cancer in India. Worldwide 70-90% children can
be cured of cancer. In India over 70% children still die of the disease
• To ensure no child should suffer for want of treatment due to lack of finance
• To provide the entire spectrum of support services to any child with cancer anywhere in the
country - from moment of diagnosis through treatment, in survivorship, or for palliative care for
the terminally ill child and bereavement support for the families
• To create child-friendly, comfortable and
pain free environments for children under treatment of cancer
CK Day Care & Transition Home- Delhi
December 2012, Delhi
We Are
 We are a grass-root level field organization
 We work in and together with the Pediatric Cancer Units of Cancer Hospitals
Pediatrics Depts of Medical College,RCCs, Trust or Private Hospitals
 We are Patient Navigators & Advocates,
 We identify and bridge the gaps – to ensure best treatment, care and support
We are the only organization in India that
provides the entire range of support
services from moment of cancer diagnosis,
through treatment and after, to cancer
affected children and their families.
December 2012, Delhi
CanKids At A Glance - Dec 2012
Cankids Support Units (CSUs)
• 29 Cankids units in Cancer Centers
across India
• 4 regional offices & HO in Delhi
• Pediatric Palliative Care Day
• DCTH - In New Delhi near AIIMS
Care & Transition Home
(DCTH) , Training Center
• Home Away from Home
•CANSHALA Special School for
children
Core Programs & Services
Areas
Projects & Studies
Team CanKids
Gautam Nagar
• HAH Kotla New Delhi & HAH Trivandrum
• Canshala– Special School in Mumbai –
PPP with BMC
• 18 Core Support Services
•
•
•
•
•
9 projects & 2 studies
Pediatric Palliative Care
Bone Marrow Transplant fund
Retinoblastoma Fund etc
Studies: Abandonment & Financial Need
• Up to 200 people
December 2012, Delhi
CANKIDS EDUCATION PROGRAM
I. KEEP THEM LEARNING DURING TREATMENT II. REINTEGRATE THEM BACK TO
SCHOOL/ COLLEGE / SOCIETY –AS
SURVIVORS
December 2012, Delhi
Basic concept –
•
•
•
•
•
•
•
CHILD LIFE DURING CANCER
Childhood cancer treatment is long, between 6
months to 3 years. During this period the children,
are deprived of regular education; formal or nonformal.
They miss out on vital years of learning and
development
They lack the “normalcy of a child’s life”
This impacts their development – physical, mental
and social.
It makes it difficult for them to reintegrate back into
the school system at the end of their active
treatment.
The special school will help to keep the children
learning in a child-centric environment
It will provide continuity of education during their
treatment
period along
with
individualised
remediation and therapeutic intervention as required
December 2012, Delhi
CANSHALA - School in a Hospital
“School in the Hospital” – a service in the Cancer hospital or through an NGO –
that ensures
1.
2.
3.
4.
5.
6.
7.
8.
That the child is registered at the local school - Canshala
Base line testing and educational and psycho-social evaluation is done
an Individualized Education Program (IEP) is developed for him/her
The child attends the school as and when he is able to. His learning is appropriate to his health.
Attendance is not compulsory. Learning is through non-formal approaches and focus is on
drama/art/music/therapy, skill building, self-esteem, vocabulary, life-skills, and the basic 3 Rs.
Curriculum is outcome based.
If the child is older and able to cope with the rigor of regular learning, tutorial schooling is
provided.
Creative adjustments are made for handling the workload, specially to cater to side effects, late
side-effects and learning difficulties resulting from treatment
“Homebound schooling” is provided to the largest extent possible for the times when the child is
too sick to attend the school. This “homebound schooling” may be provided in the ward. Teachers
from the Canshala will visit and provide the support for homebound schooling to the child.
The local school/school in the hospital keeps the child’s school in his home town apprised and
abreast of the child’s treatment, progress, and educational development
December 2012, Delhi
About Bhatankar School and PPP
Mid Day Meal Scheme – food,
books, uniforms, rainboots!
• We share the premises with a BMC
Urdu cum Marathi medium school
• The location of the school is ideal
with its proximity to all cancer
hospitals, dharamshalas and the
train stations
• Infrastructure support and BMC Mid
Day Meal scheme
• 2 senior teachers , School Registrar
from BMC
• A regular school environment
provides a sense of normalcy for the
children and parents
• A child duly registered in the BMC
school will not lose on schooling
December 2012, Delhi
CANSHALA - FEATURES
Counselling
Therapy and
Health Room
L to R : Classroom 1,
Classroom 2, School Office
cum CK Western Region
Office
December 2012, Delhi
Schooling Features
• Entry test to determine child’s
current ability -Baseline evaluation
• Individualized education plan (IEP)
and remedial help/therapy for
children needing them
• Regular, ongoing and informal
education and evaluation
• Curricular and extra curricular
activities
• Physical Exercise, Playground
activity & Sports
• Art, Music, Drama Therapy
• Counseling for children and
parents
• Events and celebrations
December 2012, Delhi
Benefits of being in a School with Other Facilities
Playground
Computer Laboratory
Computer Labs
Auditorium/hallAuditorium
forDecember
functions/events
& Hall
2012,
Delhi
MANAGEMENT
Local Management Committee:
• Additional Commissioner (City), BMC, Mumbai
• Chairman, Education Committee, BMC, Mumbai
• Education Officer, BMC, Mumbai
• Administrative Officer (F/S), BMC, Mumbai
•
Chairman, Cankids, Delhi
•
Regional Director, Cankids, Mumbai
•
Regional Project Officer, Cankids Mumbai
•
Mentor, CanShala- Mumbai
•
Principal, CanShala, Mumbai
•
Education Project Officer, Cankids, Mumbai
December 2012, Delhi
TEAM CANSHALA
•
•
•
•
•
•
•
•
•
•
•
Consulting Oncologist (Hon)
Consulting Psychologist (Hon)
School Advisor/ Mentor ( Hon)
1 Principal
4 Teachers/ Special Educators
1 Counselor
Part time : art, drama and music
therapists
Part time Physical Education , Sports
and Play Instructor
1 School Social Worker cum
Administrator
1 Accountant
2 Care Takers
December 2012, Delhi
TIME LINES
Sr.No.
Activity
Expected Time of
Start
1
Pre-Registrations in Hospitals
Sep 10, 2012
2
Registrations in the School
(Registrations till Dec 31 – 44)
Nov 5,2 012
4
Class 1-7
Nov 16, 2012
5
Counseling Clinic, PE & Sports
Jan 31, 2013
6
Therapy Classes
Mar 1, 2013
7
Homebound –ward side
Schooling
June 1, 2013
December 2012, Delhi
WE LOOK TO YOU FOR HELP
• Capital Cost (one time)
Repair and renovation
• Running & Maintenance
3,00,000
Per Month
Per Annum
Program
Expenses
1,69,500
20,34,000
Furniture and School
Equipment
7,50,000
Inaugural Function
50,000
Total
11,00,000
Admin
Expenses
37,000
4,44,000
Raised thus far
(Pavan Bagai, Ramesh &
Charuta, Poonam Bagai
and others)
Rs 4,50,000
Contingencies
20,650
2,47,800
Total
2,25,600
27,22,200
Raised thus far
0
0
Contact :
surabhik@yahoo.com
Classrooms,
Therapies,
Extracurricular,
Health &Nutrition,
Counseling,
Celebrations,
reintegration,etc
December 2012, Delhi
FUNDING SOURCES
• Individual Donors
• Institutes/ Organizations/
Trusts
• Corporates
• The initial funding is managed
by Founder Chairman of
CanKids to start the school
December 2012, Delhi
Appeal from the CK Team
“We set out to find place for ourselves in Mumbai, as
our demerger from Indian Cancer Society meant
leaving the Cubicle we had in their offices in Parel.
Through Cankids Ambassador Arvind Singh’s good
offices we met Additional Commissioner, Mr Adtani,
who suggested we run a Special School for children
with cancer, for the BMC.
The project has developed fantastically and fills a
niche that was sorely lacking for children with cancer.
Coming to Mumbai for treatment
The kids are loving it. They want to study. They
refuse to do “art and craft’!
Help us to make a success of the 1st of its kind CANSHALA
Surabhi Kakar – Canshala Mentor (Hony) &
Priti Dhall, Regional Director Cankids Mumbai (Hony)
December 2012, Delhi
CANSHALA – a way forward
The success of this first of its kind school will
enable us to execute similar projects in other
States, and work at the Central government
level to advocate:
a. to State Education Departments to
mandate schooling for children during
treatment
b. To Amend Education and Rehab Laws of
the country , to protect the rights of disabled
or health impaired children with cancer
c. secure free and appropriate
education for the cancer child
public
d. and ensure that the child is given an
Individualized Education Plan, permitted
homebound schooling and a tailor made
curriculum around his/her illness.
December 2012, Delhi
All set to go...
THANK YOU!
December 2012, Delhi