Cross- cultural surveys: Experiences from the field Ans Luyben, PhD PGDE RM, R & D Midwifery Overview of presentation and workshop Experiences of doing a cross- cultural doctoral study: 1. What was done before I did it? 2. Why I did what I did? 3. What happened when I did it 4. And what I learnt…. Cross- national background Born in the Netherlands 1961, trained and worked as a midwife Emigration to Switzerland in 1989, worked as a midwife and teacher PhD study Scotland 2001- 2008- looking for a topic for study; Doubt about content of (Dutch) antenatal care Existing knowledge about antenatal care Doctoral thesis Heringa (1998), based on study of Hall in Aberdeen (1985) Experiences of care providers in practice Studies on effectiveness Effectiveness and satisfaction in antenatal care Effective care in pregnancy and childbirth Cochrane Library, for example Villar 2001 Other studies, particularly those carried out in Europe Summary existing knowledge 1920s: Introduction of antenatal care in Europe Effectiveness determined based on traditional statistical outcome (mortality, morbidity) 1950s: Introduction of confidential enquiries 1989: Effective care in pregnancy and childbirth 2000s: Assessments of content still inconclusive Women‘s complaints hardly changed Primary research question What is effective content of antenatal care in Europe? Existing cross- national studies Comparative surveys and studies in Europe WHO 1979- 1984 HSRC of EU: Heringa & Huisjes 1988 Barriers and Incentives to Prenatal Care 1994 EuroNatal Study 1996 PERISTAT 2003 Several others, like: ESS, OECD, EMA Haertsch, Langer Villar et al. WHO Study 1979- 1984 Questions: What is known about women‘s and children‘s health around childbirth? What health care services are available? How big is the gap between what is known and what is being done? (or not being done) Included: 23 countries Methods: Systematic literature review Two surveys (organisation/ content, psychosocial) Observations of experiences in care WHO Study 1979- 1984 Some results: Wide variety of programmes with similar MMR or PMR Antenatal care should be improved by a better combination of medical and social care Effectiveness of risk selection should be assessed Role of primary provider should be reconsidered Interventions, including risk selection should be better evaluated, eg. in RCTs Evaluation should include the role of the client/ provider relationship Women should be empowered by determining their health needs, planning and evaluating their care Heringa and Huisjes 1988 Health Services Research Committee EU 1986: - Aiming for harmonisation of systems - Evaluation of efficacy, effectivenes, costs and psychological and social impact Heringa & Huisjes 1988: Evaluation of existing screening procedures: Literature review Survey in 67 tertiary hospitals, questionnaire with closed questions (30 procedures) Heringa and Huisjes 1988 Results: Wide variation of 11 to 24 routinely performed screening tests between as well as within countries Only 5 tests in common: blood pressure, glycosuria, weight, blood group/ Rhesus and fundal height Effectiveness for many procedures was lacking „Benefits of routine screening are probably overestimated and disadvantages undervalued“ „Barriers and Incentives“ 1994 Premise: Uptake of antenatal care improves pregnancy outcomes Aim: Studying the utilisation of antenatal care, in particular under- or overutilisation Included: 17 European countries Multi- study design, included: - attendance of antenatal care - incentives - organisation related to utilisation and PMR „Barriers and Incentives“ 1994 Results: No relationship between incentives and attendance of antenatal care Variety in attendance, but women‘s reasons for non- or late attendance were not studied Large variety in services, equally effective in regard to PMR More information needed about relationships between the players and characteristics of the systems EuroNatal Study 1996 Aim: Determining the validity of PMR as an outcome indicator for the quality of antenatal and perinatal care Assumption: PMR can be reduced by 25% by improved standards of care Included: 11 countries Design: - investigation in different registration practices - investigation of risk factors influencing PMR by auditing individual cases EuroNatal Study 1996 Results: 1619 anonymous cases of perinatal death between 1995 and 1998 Linked to prevalence and clinical guidelines 715 cases of suboptimal care Major factors: failure to detect and treat intra-uterine growth retardation and maternal smoking Recommendation: - improvement of quality of care - identification of determinants of quality of care PERISTAT 2003 Aim: Develop indicators for monitoring and describing perinatal health in Europe Included: 15 countries Process: - review of existing international and national perinatal health indicators by experts - Delphi consensus process with a scientific committee in order to determine indicators - feasibility study in involved countries as to assess their use in practice PERISTAT 2003 Results: Four categories of indicators: fetal/ neonatal health, maternal health, sociodemographic associated with health outcomes and health services Few lacking indicators in regard to women, eg. „support to women“ and „maternal satisfaction“ Feasibility: some indicators were not available, some had different definitions and demographic differences influenced their values Villar et al. 2001 Aim: Prove evidence of effectiveness of an antenatal programme with a reduced number of visits and reduced content in four developing countries Setting: Argentina, Cuba, Saudi Arabia and Thailand Design: Systematic literature review Randomised controlled trial with cluster randomisation, including compliance and process outcomes (service use) Cost- effectiveness Women‘s and provider‘s perceptions Villar et al. 2001 Results: Routine antenatal care can be provided with a reduced number of visits and content without affecting its medical effectiveness Primary and secondary clinical outcomes similar, although rates of pre- eclampsia higher in new model Health care costs similar, or even less in new model Care providers were satisfied as long as modifications „did not limit their clinical control“ Women were „satisfied“ with new model, but… Provision of support should be provided by other means than „formal encounters with medical providers“ Concept analysis of effectiveness Perspectives Women Biological/ Other(s) epidemiological disciplines Antecedents/ Aims Becoming a mother; own and family health Reduction of PMR, MMR and morbidity Quality, satisfaction, experience Clinical effectiveness Terminology varying e.g. evaluation Consequences/ Indicators (Dis-) Satisfaction, experience Biomedical/ epidemiological outcome Variety- little available and comparable Evaluation methods Surveys, qualitative interpretive Quantitative, deductive RCTs Depending on agent and perspective Attributes Variety Research question What is effective content of (Westeuropean) antenatal care from women‘s points of view in the Netherlands, Scotland and Switzerland? Methodology and methods Several considerations: Top- down or bottom- up approach ? Deductive or inductive ? Descriptive or analytic ? Access and availability ? Methods ? Methodology and methods Constructionist epistemology Interpretive ontology Grounded theory Symbolic interaction Interviews, and possibly other material Settings and access Cross- national or - cultural Three languages Three health care systems What is culture? „A set of explicit and implicit guidelines which people learn from a particular society and which informs them on how to view the world, how to experience it emotionally, and how to behave in it in reaction to other people, to the supernatural and to the natural environment.“ (Helman 2007, p. 2) GT considerations in regard to culture Symbolic interaction: Culture is the self- defined social world of the participants based on joint meanings of symbols Meanings are a consequence of the research process; they can not be defined in advance The field is addressed as one unit, and every variable has to earn ist place in the theory based on the relevancy for women Need for cultural neutrality and sensitivity (familiarity) What is language? Symbolic interaction: Joint meanings of symbols created through interaction with the social world (Mead 1967) Coding in Grounded Theory: Translating language into a secret set of symbols (Dey 1999) Minimal translation (Barnes 1996, Strauss and Corbin 1998) This meant that meanings had to be created (coding) with women in one language, before creating meaning (coding) between all languages Design: Grounded Theory with Units Continuous comparison Theoretical sampling Maternity care in the 3 countries Care Switzerland Holland Scotland Place Private practice or hospital Midwifery practice or hospital Health care center or hospital Persons Gynaecologist Midwife (Midwife) (Obs/ Gyn) Content KVG, varies Interprofessio- Framework for nal guideline Scotland NHS Philosophy Decentral organisation and choice of care provider Maintenance of divisions of echelons Shared care Health care for all in need Gaining access and ethical approval - Knowing the system Having some relevant informants Speaking the language, knowing the culture „Being there“ or „having been there“ Recruiting and sampling Information and consent forms in 3 languages First sample convenience sample (variation)- clear communication about sampling if more persons involved Other samples: theoretical samples 12 women 14 interviews 10 women 12 interviews 10 women 12 interviews Data collection and field experiences Organisation of units of interviews, planning in advance Semi- structured one- to- one interviews by one researcher in women‘s own languages, tape recorded, minimum interview guideline Excellent way of „meeting“ the context Differences in set up of meetings Field notes, role of field notes Collection of information in practices and hospitals Data analysis Transcription in own language Coding in own language Categorising; primarily in own language, then into the overall unit, using the distinction between an „etic“ and „emic“ dimension (Brislin et al 1973); what fits and what is different ? Four memobooks; one in Dutch, Swiss- German and English and one for the overall unit Theoretical sampling; looking for largest variation No software used for qualitative analysis Coding and categorising „live“ Netherlands Scotland Results after analysis first sample Category Scotland Switzerland Netherlands Responsibility X X X Autonomy X, „control“ ~, not content but X, also „letting organisation go“ Confidence X X X - Information X (++) ~ X - Environment X X X (+) - Baby ~ ~, partly X - Care provider ~ X X Results I: Model of Effective Maternity Care Results III: Model of Content of Care Conclusions and implications Effective maternity care needs: • • • • • Mentorship model of maternity care Choice of an experienced care provider Sharing woman- care provider partnership Women- and process- orientated content of care Continuity of care and carer; from beginning of pregnancy to about one year after giving birth • Involvement of women‘s social environment Reality in the three countries Category Scotland Switzerland Holland Being experienced + + + Providing a familiar environment ~ ~ +, if bond Guidance (care) ~, access/ attitude ~, attitude/ bond +, attitude/ bond Raising awareness + + + Sharing awareness ~ ~/+ + Closing awareness +, self ~/+ + Being there +/ ~ ~/+ + Support ~ ~/+ + Releasing ~ ~ +/~ Results III: Creating a bond with a care provider „Someone who is always there for me..“ Finding access Approaching Being familiar Reality in the three countries Category Scotland Switzerland Holland Someone who is always there for me Shared care Gynaecologist Midwife Gynaecologist Finding access Hospital Health center Private practice Private practice Hospital Approaching Midwife Gynaecologist Known ??? Gynaecologist Midwife Midwife Gynaecologist Being familiar ? ? Midwife Reality in the three countries Effective care: what happens if not continuous? Category Expert/Reference Information/ Raising awareness Sharing Support Guidance Releasing Netherlands Switzerland Scotland Some points of experience One size does not fit all…. „English speaking empirialism“ in literature Underpinning philosophies of systems are very important Language= not language, even in English Words are not always what they seem. Dialectical construction of meaning is an extremely valuable tool Competence of multi- cultural, multi- language researchers (vs. translators eg. Squires 2009) is underestimated The biggest issue in qualitative research done this way is not bias of the researcher, but her loss of reference, which might be a reason why most prefer deductive approaches Some open questions 1. Is what we do important? 2. Do we do what we think we do? 3. Are we measuring what we want to measure? (according to Heringa 1998) Thank you !