Design Approaches for Electronic Partographs and Others Tools to Support Intrapartum Care Panel Presentations and Discussion Global mHealth Forum December 11th, 2014 Objectives Consider a range of design approaches for electronic partographs and related tools Identify and discuss common challenges Advance the dialogue and share possible solutions Panelists Jonathan Payne, Merck for Mothers & UN Foundation Neal Lesh, Dimagi Heather Underwood, University of Colorado Shoval Dekel, Jhpiego Session Outline Project Presentations iDeliver (Jonathan Payne) PartoPen (Heather Underwood) mLabor (Neal Lesh) ePartogram (Shoval Dekel) Facilitated Discussion Wrap-Up The PartoPen: A digital pen-based approach to address maternal labor monitoring challenges Heather Underwood University of Colorado Boulder, ATLAS Institute University of Colorado Denver | Anschutz Medical Campus Problem & Motivation Barriers to Correct and Effective Partograph Use GOAL: Improve partograph completion rates by overcoming the primary barriers to use noted in the literature • Form complexity and data interpretation challenges • Inadequate initial and ongoing training • Limited resources • Staff shortages • Retroactive completion • Lack of positive role models • General attitude 6 LIVESCRIBE ECHO Digital Pen the ‘magic’ is in the… ANOTO DOT PATTERN Open Paper vs. Fixed Print Regions Mark Position X Code Y Code 1 1 1 2 0 1 3 1 0 4 0 0 USE INSTRUCTIONS Entire WHO manual is available in short audioprompt format by tapping on the instruction buttons next to each partograph section. DECISION SUPPORT When measurements are made indicating a prolonged labor, text and audio are emitted from the pen to alert birth attendants of possible actions for this patient. REMINDERS ½-Hour 4-Hour PartoPen Reminder IDs allow birth attendants to create short patient-specific identifiers to link the unique pattern encoded in the dot pattern printed on the page to the specific patient. Time-based reminders are set for each patient (specific to the unique dot pattern on the form), to remind birth attendants that one of their patients needs another exam. Digital Pen Benefits & Challenges Benefits • Low power and connectivity requirements • Requires little to no training on the device • Retains paper form without creating double work • Robust, durable, portable, low profile • Fails gracefully Challenges • Digital Pens are not readily available outside the US • Printing challenges illustrated general supply issues • Limited third-party development support 12 High-level Design Considerations 1. digital pens are viable platform for point-of-care health solutions and provide several benefits over other digital solutions 2. the PartoPen did address training barriers where training was the most significant obs 3. partograph completion is affected by many factors; partograph accuracy and completion does not necessarily imply better clinical outcomes or highe levels of nurse training Acknowledgements Dr. Ong’ech, Grace Wangombe, Sabina Wakasiaka, Grace Omoni, and all the KNH and UoN nurses, staff, and students Heather Underwood h.underwood@ucdenver.edu @hmunderwood Landscape of Digital Tools for Intrapartum Care December 11, 2014 Global mHealth Forum Jonathan Payne, MS Project iDeliver Lead paynejd@gmail.com 287,000 “In 2010, women died during and following pregnancy and childbirth. Almost all of these deaths occurred in , and most could have been prevented.” low-resource settings – World Health Organization, 2012 http://goo.gl/kA73FZ Partograph • The partograph is widely used in the developing world (Friedman 1954, Philpott 1972, Levin 2011) • When used correctly, the partograph can help prevent obstructed labor (Philpott 1972, WHO 1994, Mathai 2009, Neilson 2003, Hofmeyr 2004) • Birth attendant training and partograph implementation can improve maternal and perinatal outcomes (Levin 2011, Fahdhy 2005, Bosse 2002, WHO 1994) • Studies in developed countries have shown little or no impact resulting from partograph use (Levin 2011, Lavender 2012) • Barriers exist to correct partograph use in developing countries (Levin 2011, Lavender 2012) LANDSCAPE SUMMARY CATEGORY FINDINGS Clinical Guidelines • International and country-specific clinical guidelines that are up-to-date exist for most of IP care, though not all are validated (updated WHO IMPAC guidelines pending) • Gap in prioritization & adaptation into formats suitable for job aid Geographies, Implementing Partners • Related implementations exist (OpenSRP, mLabor, ePartogram, CliniPAK) • Identified implementers with sufficient interest/preparedness and viable implementation scenarios in geographies with need Quality Measurement & Improvement, Data Use • Standardized measures & data elements exist (ICM, WHO, MEASURE Evaluation, NIPH) but lacking minimum dataset & prioritized measures • Successful QI during intrapartum care exists (SCC, IHI, Jacaranda) • Examples of electronic birth logs/maternity registries replacing paper reporting (OpenSRP, hRHR, Maternity Neighborhood) Architecture, Interoperability • Alignment with OpenHIE / Motech Suite will facilitate technological integration in countries of interest • Terminology management solutions exist (OCL) to facilitate collaborative development of quality measures and core dataset Business Requirements, Specifications • Many business requirements well described (based on existing projects/technologies), but appropriateness varies based on service design, geography, technology, partner Technology • Digital POC tool during intrapartum is feasible and business models exist • Related platforms exist but no one platform meets all iDeliver requirements; extending existing platform(s) will be necessary User Workflows, User Support, Adoption Strategy • Relevant service delivery design is taking place within intrapartum care (e.g. BOLD, SCC), but significant gaps remain on adaptation of content to digital tool at the point of care, in particular on user acceptability and appropriate design Clear path to success Lower risk, but further research & development needed Potential risk; significant focus needed to alleviate risk iDeliver Vision Project iDeliver will be a digital tool primarily for skilled birth attendants to improve the quality of care provided during labor and delivery by enabling provision of standardized care and routine quality measurement. 22 mLabour: Reflections on Early Design Work Neal Lesh, Dimagi Inc nlesh@dimagi.com December 11th, 2014 @dimagi Maryam Khalid Jenny Schweers Clayton Sims Srishti Bishnoi Heather Underwood Manju Chhugani Neal Lesh Stella Luk Team Motivation to create CommCare apps for Intrapartum Care Potential for high impact, e.g., Improve consistency and quality of care Early detection of obstructed labor Improve referrals Android tablets and phones are an attractive platform because are Widely available Good for decision support Operate offline and sync with a central server Many challenges too (e.g., need for paper record, keeping device clean, local sync) mLabour mockups mLabour prototype- case lists mLabour prototype - graphs Contractions Design changes from user testing Allow vaginal exam to be filled by either doctor or nurse Support just-in-time configurability of exam reminders Allow user to specify which key indicators will be tracked over time with minimal key-strokes Provide graphical representation of contraction size Retain logs of past patients. Design requirements and challenges Need to do much more than partograph to provide value to workers and reduce their burden. Great need for flexibility as workflows and users vary greatly Need to design for the gap between how things are supposed to work and how they really work. Open question if tablets will really work in busy wards Still need to identify where greatest impact of ICT can be had Overview of the ePartogram: Jhpiego Shoval Dekel Dec. 11, 2014 Global mHealth Summit, Washington DC Summary Jhpiego’s ePartogram is a tool that will be used by health care providers in LMIC to manage labor and guide decision-making by helping to detect complications during labor and delivery, which will reduce neonatal and maternal mortality and morbidity. Context: the Paper Partograph The appropriate use of the World Health Organization’s (WHO) paper partograph can help decrease maternal and perinatal mortality by reducing prolonged or obstructed labor. The paper partograph along with WHO guidelines for labor management are the basis for the ePartogram ePartogram: What does it do, Why is it unique? Stores multiple patient data in one device Reminds and prompts providers to take critical measurements Automatic graphing Provides alerts and alarms for decision-making support if complications are predicted or occur Telemedicine module transmits all observations to central level remote supervisor for guidance and support 34 Identifying Problems and Potential Solutions Problem with paper partograph How ePartogram addresses the problem Not user friendly: Too cumbersome and time consuming to fill out. Fast data entry to allow providers to spend more time with the women than in filling out data. “Post”agraph effect: When filled out after delivery, users and pregnant women do not benefit from early detection of complications. Reminders signal when women in labor should be examined and alarms sound when abnormalities are found during the exam―shows the value of the partograph as a tool during labor. Hard to share with others: Maintained as a record and is often not transferred with the client during a referral. Data is available at referral facilities before the client arrives, allowing for consultation and preparation. Jhpiego’s Iterative Approach Continuously returning to the Field for end user feedback an involvement in each stage. Review and Feedback from end users determine the next development stage for the ePartogram •User needs assessment •India, Nepal, Tanzania 2010 2011 •Proof of concept •Tanzania •3 Platform prototypes •Review in Kenya, assessment of features 2012 2013 •Development of user interface •Focus groups with end users in Kenya •Software development •Zanzibar, field refinement 2014 Successes to Date Choosing to use a tablet interface opens the opportunity to collaborate with other tools and make data compatible with larger scale electronic medical records. Early involvement of end users, leading to heightened interest of implementation programs in the ePartogram Clinical rigor and integrity- Jhpiego has spent a lot of time and investment in the development of the clinical rules and their validation to ensure the safety and efficacy of the ePartogram. Partners and Donors What is next for the ePartogram? Pilot Testing in Zanzibar Independent Studies in Zanzibar Pilot Implementation in Zanzibar and Tanzania Interest for Pilot Implementation in additional Countries