fall 2009 The new DVD release of Dan Habib’s awardwinning film Including Samuel features all new extras, including extended interviews, a discussion on inclusion by subjects in the film, the New Hampshire Public Television Outlook Special The Impact of Including Samuel, 17 language translations, and more! Including Samuel is available for educational, instructional, and institutional use for $180. A DVD is also available for personal use only for the new, low price of $25. Both can be found online at www.iodbookstore.com. Join Our Mailing List The IOD produces a variety of publications, including Vision & Voice, which communicate the ways we are connected to individuals and activities in New Hampshire and across the country. If you would like to be added to our mailing list, e-mail contact.iod@unh.edu or call 603.862.4320. What’s Inside New Project to Serve Transitioning Youth. . . . . .2 Mental Health in Schools Conference. . . . . . . 2 Did You Know?. . . . . . . . . . . . . . . . . . . . . . . . . 2 Calendar of Events . . . . . . . . . . . . . . . . . . . . . 3 IOD Welcomes Two New Staff Members . . . . . 4 Transportation in NH to Undergo Analysis. . . . . 4 Jan, internationally known for her work in the disability field, was one of three finalists for the position. As associate professor of education and founding director of the IOD, she received the UNH Alumni Association’s most prestigious award, the Pettee Medal, in 2007, for extraordinary achievement and distinguished service to the state, the nation, and the world in 2007. She also has received the UNH Excellence in Research, and Excellence in Public Service awards. Jan founded the Institute on Disability in 1987 and has successfully competed for more than $100 million in federal and state funding. She will be leaving her position as director to assume this new position. “Dr. Nisbet has demonstrated creativity and leadership in a number of arenas,” said Provost Aber. “The institute she leads addresses some of the most difficult questions that we face in advancing the quality of life for those in challenging circumstances. In leading her team, she has worked effectively with agencies at the state and federal level, and has demonstrated the ability to judge her own success by the success of those who work with her. She understands opportunities for support, as well as the regulatory hurdles that need to be addressed. She will be able to help all of our faculty achieve their goals in scholarship and research.” world where all people, including those living with disabilities, are fully engaged members of their communities and where support is available to help individuals and families achieve independence, productivity and a satisfying quality of life. “I am so pleased to be offered this important position,” said Jan. “I decided to apply for the position after serving as co-chair of the President’s Blue Ribbon Panel on Research with [Physics Professor and Institute for the Study of Earth, Oceans, and Space Director] Amitava Bhattacharjee. The entire process was a wonderful learning experience and inspired me to want to, as Mahatma Gandhi said, ‘be the change you wish to see in the world.’ UNH is a place filled with brilliant and tenacious scholars working in departments, centers, institutes, and field-stations trying to advance knowledge; and many are working to address some of the most difficult and pressing issues facing our communities across the world. I look forward to supporting these aspirations and helping to resource them.” For more information on Jan’s new role at UNH, visit www.iod.unh.edu. Under Jan’s guidance, the IOD set as its vision a Including Samuel Airs on Public TV Nationally Dan Habib’s award-winning documentary film Including Samuel, about his family’s commitment to including Samuel in every aspect of life, will be broadcast this fall on public television stations nationwide. Many stations broadcast Including Samuel during the month of October, which was Disability Awareness Month. The program has already aired in New York City, Houston, Boston, and Los Angeles, and is scheduled to air in Chicago in early November. National broadcast of Including Samuel is supported by the National Inclusion Project and CVS Caremark All Kids Can. I NSTITUTE ON D ISABILITY / UCED 10 WEST E DGE D RIVE S UITE 101 D URHAM NH 03824 Including Samuel by Dan Habib University of New Hampshire Provost and Vice President for Academic Affairs John Aber has named IOD Director Jan Nisbet as UNH’s senior vice provost for research. 800315 Bookstore Spotlight Nisbet Named UNH Senior Vice Provost for Research Shot and produced over four years with support from the IOD, Habib’s 58-minute film documents his family’s hopes and struggles as well as the experiences of four other individuals with disabilities and their families. Including Samuel is a highly personal, passionate film that captures the cultural and systemic barriers to inclusion. Since Including Samuel was released on DVD in 2008, Habib and the IOD have shared the film with communities, universities, conferences, film festivals and independent theaters nationally and internationally. The film has also been featured on NPR, in the Washington Post, and in the Boston Globe. Good Morning America called it “a very, very riveting film.” For a complete listing of local television broadcast dates and times, go to www.includingsamuel.com/television. Two free screening toolkits, intended for use by young people and adults who would like to host broadcast viewing parties, are available for download at www.includingsamuel.com. Mental Health in Schools Conference New Project to Serve Transitioning Youth with ASD The IOD, in collaboration with the Endowment for Health, the NH Department of Education, the National Alliance on Mental Illness NH, and the Graduate Program in Community Mental Health at Southern NH University, presented “Mental Health in Schools: Supporting Students with Emotinal and Behavioral Disorders” in October. This conference was an opportunity for educators, mental health providers, family members, policy makers, community based organizations, and researchers to come together to begin to talk about the very real issue of how to support children and youth with emotional and behavioral disorders in schools and communities. Following SPECS training, a planning facilitator will assist students and their families to form a group of supportive individuals—including school and adult services representatives—who will conduct meetings to develop a personalized plan for meaningful community participation following high school. These plans include employment and/or post-secondary educational elements. Once plans are in place, the facilitator In response to the need for better supports will initiate an eight-month process of career and increased family participation during exploration with students, their families, and the transition process, the UNH Institute on participating schools. This phase includes Disability and the Center activities such as job for Community Inclusion shadowing, volunteer work “Young adults need lots of experiences, and college and Disability Studies at opportunities to try things out visits. the University of Maine and explore their interests, are conducting a two-year “Young adults need lots project on family-centered as well as opportunities to sit of opportunities to try transition planning for youth down with people who care things out and explore with ASD. Forty youth about them and begin to their interests, as well as between the ages of 16 and opportunities to sit down 18 from high schools in New shape a vision for the future.” with people who care about Hampshire and Maine and them and begin to shape a their parents will participate. vision for the future,” said David Hagner, Ph.D., Project participants will work through three the project’s principal investigator. “We hope project components designed to empower to show that this kind of approach to transition leading roles in the transition planning process. produces better outcomes than the traditional The first component involves a series of six focus on assessment and placement.” training sessions called SPECS (Specific For more information on the FamilyPlanning Encourages Creative Solutions) Centered Transition Planning project and for family members. These evening group how to get involved, visit www.iod.unh.edu. sessions will inform families about post-school options for their children and teach strategies for negotiating, advocating, and building Keynote speaker Stephen A. Norton from the NH Center for Public Policy Studies presented the findings of the “Mental Health Services in NH’s Schools” report and its implications for the state. Workgroup facilitators from the NH Children’s Mental Health Community of Practice helped participants to reflect and encouraged continued dialogue. For more information on the Children’s Mental Health Community of Practice and how to get involved, contact Deb Grabill at debra.grabill@valley.net. 2 Did You Know? The coordination of mental and physical health care is sorely lacking in New Hampshire. Based on recent research completed by an IOD-led collaborative, evidence continues to build around the growing risks to effective care for those living with mental illness. While community mental health centers face potential cuts to services, emergency facilities are seeing increasing hospitalization rates for mental illness and substance use disorders. At the same time, most physical care doctors report a lack of expertise in a range of mental health areas, leaving the health care system woefully unprepared to meet the complex health care needs of those living with mental illness. – Findings drawn from the IOD’s new research brief: New Hampshire’s Prescription for Mental Health Care For more information and to download the full report, visit www.iod.unh.edu/pmhs.html. Feedback Have a comment, suggestion, or story idea? We value your input. E-mail contact.iod@unh.edu or call 603.862.4320 to let us know how we’re doing and how we can better serve you. Share the IOD with a friend: Please let friends or colleagues know about us. Pass us along! Young adults with Autism Spectrum Disorders (ASD) frequently transition from high school to adult life lacking the skills and supports needed to participate as full members of their communities. The result is social isolation and dependency on families or disability support services. The increased frequency of ASD diagnoses has only made this issue more difficult for families and service organizations to handle. partnerships with service providers. Highlighting IOD Donors Building Leadership Capacity in Manchester and Amherst A generous grant of $7,500 from the Norwin S. and Elizabeth N. Bean Foundation is helping to fund expanded participation in the New Hampshire Leadership Series among Manchester and Amherst residents and support for program alumni in the area. The Leadership Series provides leadership and advocacy training for individuals with disabilities and their family members, building a corps of active community residents working to enhance the quality of life for all residents. This is the first grant to the IOD from the Norwin S. and Elizabeth N. Bean Foundation. A New Documentary Film on the Inclusion of Kids with Kids with Emotional and Behavioral Challenges Award-winning IOD Filmmaker in Residence Dan Habib is producing a new film on inclusion, this time focusing on the unique challenges and successes related to including kids with emotional and behavioral challenges in the classroom and the community. This film will expand the national dialogue on inclusion ignited by Including Samuel since its release in October 2007. Support for the new film is provided in part by the New Hampshire Department of Education and two grants from the New Hampshire Charitable Foundation: a $25,000 Community Impact Grant and a $25,000 grant from a donoradvised fund of the Foundation. Underwriting National Broadcast of Including Samuel Thanks to a nationwide campaign to air the film on local PBS stations, viewers across the country have a chance to see the powerful documentary film Including Samuel this fall thanks to a nationwide campaign to air the film on local PBS stations. To check for current listings, visit includingsamuel.com/SeeTheFilm/Broadcasts. This campaign is being made possible in part by two generous underwriters. CVS Caremark All Kids Can has provided $25,000 in corporate underwriting funds, and the National Inclusion Project, a program of the BubelAiken Foundation, has provided $30,000 in sponsorship funding. To learn more about making a tax-deductible gift to the IOD, please contact: Mary Schuh, Ph.D. – Associate Director of Development and Consumer Affairs Institute on Disability / UCED 56 Old Suncook Road, Suite 2 Concord, NH 03301 603.228.2084 | mary.schuh@unh.edu or visit www.iod.unh.edu for easy and secure online donation. Person-Centered Planning for Older Adults: Facilitation Skills Training in Consumer-Directed Life Planning This workshop offers an introduction to person-centered planning, including an overview of a person-centered system of care, information on how to facilitate planning meetings, and tools to use in the planning process. Additional dates and locations available in spring 2010. Dates & Locations: November 5, 2009 – Courtyard Marriott, Lebanon, NH November 20, 2009 – Lake Opechee Inn and Spa, Lakeport, NH Time: 9am–4pm Cost: $25 Presenters: Susan Fox, M.Ed., MA, and Patty Cotton, M.Ed. Save the Date * No b vem er 4, 2009 * Lake O pec hee 3 In co pa, La nia, NH Voices of Friendship: How Schools Can Help or Hinder the Development of Social Relationships This workshop will help participants learn to identify the barriers to friendship that exist in many schools and classes, and will present a wide variety of strategies that schools and families can use to facilitate the development of friendships. Date & Location: November 10, 2009 – Audubon Society, Concord, NH Fundamentals of Inclusive Education Four workshops on the evidence and practice of including students with disabilities in the general education classroom. Additional dates in spring 2010. Dates & Topics: November 20, 2009 – Is it REALLY Inclusion? Core Beliefs and Best Practices in Inclusive Education Cost: $99 December 10, 2009 – Promoting Membership, Participation, and Learning for Students with Significant Disabilities in the General Education Classroom Cost: $135 (includes a copy of the book “The Beyond Access Model”) Time: 9am – 3pm Location: Holiday Inn, Concord, NH Presenter: Cheryl M. Jorgensen, Ph.D. dS an The Paraeducator’s Toolbox: Practical Strategies to Support Academic Achievement for Students with Learning and Behavioral Challenges These workshops will provide participants with effective and proactive approaches that promote successful academic outcomes, social competency, and management of behavioral challenges. Each workshop has been specifically designed to address the complex social, emotional, and learning needs of students. Additional dates and locations available in spring 2010. Dates: Preschool & Elementary School – Monday, November 9, 2009 Middle School & High School – Monday, November 16, 2009 Time: 9am–3pm Location: Harbor Homes (The Institute at Welcoming Light), Nashua, NH Cost: $95 Presenter: Cathy Apfel, M.Ed. Time: 9am – 3pm Cost: $90 Presenter: Carol Tashie n 2009 Real Choice Conference This one-day conference will address public policy and best practices for ensuring the future of a quality direct support workforce in home and community based services. The keynote presentation on “Valuing Care Work: Priorities for Public Policy” given by Nancy Folbre, Ph.D., will be enhanced by eight breakout sessions on recruiting, training, and retaining direct support workers. Date & Location: October 27, 2009 – Center of NH Radisson, Manchester, NH Time: 8am – 3:15pm Cost: $75 for professionals; $25 for consumers and family members Keynote Presenter: Nancy Folbre, Ph.D., University of Massachusetts Guest Speaker: Lori Sedlezky, MSW, University of Minnesota *Social work CEUs have been requested; call 603.228.2084 for more information. vers Confer regi en a ce C Assistive and Universal Design Technologies This six-part professional development series focuses on the development and implementation of quick and costeffective assistive technology solutions and embraces universally-designed technology to support all students. Additional dates in 2010. Dates: October 22, 2009 – Universal Design Software to Achieve Educational Success (Session 1) Cost: $75 Presenter: Neil MacGregor November 9, 2009 – Technology Tools for Student Access and Success (Session 2) Cost: $75 Presenter: Dan Herlihy Time: 9am – 3pm Location: Holiday Inn, Concord, NH *RESNA (Rehabilitation Engineering and Assistive Technology Society of North America) CEUs are available for an additional $16 per session if requested. gth, Hope and Nobility Stren Dates: November 18-21, 2009 Location: Pittsburgh, PA “You’re Gonna Love This Kid: Educating Students with Autism in General Education Classrooms” and “Joyful Learning: Creating Active and Differentiated Instruction in Inclusive Classrooms” Dates: April 12-13, 2010 Presenter: Paula Kluth For more information and to register, visit www.iod.unh.edu or call 603.228.2084 IOD Leadership Linda Bimbo, MS – Interim Director Mary C. Schuh, Ph.D. – Associate Director of Development and Consumer Affairs Cheryl M. Jorgensen, Ph.D. – Research Assistant Professor Matthew Gianino, BA – Manager of Marketing and Communications Susan Fox, M.Ed., MA – Clinical Assistant Professor Amy Schwartz, MPH – Project Manager Andrew Houtenville, Ph.D. – Research Director Executive Committee Gordon Allen – Executive Director New Hampshire Developmental Disabilities Council www.nhddc.org Matthew Ertas – Bureau Chief Bureau of Developmental Services New Hampshire Department of Health and Human Services www.dhhs.state.nh.us/DHHS/BDS Barbara Arrington – Dean College of Health and Human Services University of New Hampshire www.shhs.unh.edu Santina Thibedeau – State Director of Special Education New Hampshire Department of Education www.ed.state.nh.us Richard Cohen, JD – Executive Director Disabilities Rights Center www.drcnh.org UCED Partners Tom Bunnell, JD – Director Michelle Winchester, JD – Health Policy Analyst Institute for Health, Law and Ethics Franklin Pierce Law Center www.fplc.edu 4 John Moeschler, MD – Program Director Dartmouth Center for Genetics and Child Development Dartmouth Hitchcock Medical Center www.dhmc.org Consumer Advisory Council IOD Welcomes Two New Staff Members The UNH Institute on Disability is pleased to announce the addition of two new staff members. will allow her to expand collaboration within the College of Health and Human Services.” Tobey Partch-Davies returned to the IOD in July as a Project Director, and Andrew J. Houtenville, Ph.D., joined the Institute as Research Director in August. Andrew J. Houtenville, Ph.D., brings his knowledge and ability to the IOD into the newlycreated Research Director position. Andrew is extensively involved in disability statistics and employment policy research. He is a co-Principal Investigator of the Hunter College Rehabilitation Research and Training Center on Disability Demographics and Statistics (StatsRRTC), and he has published widely in the areas of disability statistics and the economic status of people with disabilities. Tobey Partch-Davies rejoins the IOD after serving for six years as founding director of the Center for Community Economic Development and Disability at Southern New Hampshire University. While there, she served as Principal Investigator (PI) for several grants through the National Institute on Disability Rehabilitation and Research and the Centers for Medicare and Medicaid Services. She is the project director for the experimentally-designed REAL Opportunity Study in partnership with the Burton Blatt Institute of Syracuse University, and the New Hampshire Medicaid Buy-In Utilization project in partnership with Mathematica Policy Research. Tobey has completed all coursework for her Ph.D. in Community Economic Development and Policy from Southern New Hampshire University. She will be working jointly with the IOD and the Carsey Institute at UNH. “We are excited to welcome Tobey back to our staff,” said IOD Interim Director Linda Bimbo. “Tobey served as a valuable partner while at Southern New Hampshire University, and having her return to the IOD will not only allow her to focus more closely on her areas of interest, but it Andrew also serves as Associate Professor of Economics with UNH’s Whittemore School of Business and Economics. Andrew received his Ph.D. in Economics from the University of New Hampshire in 1997 and was a National Institute on Aging Post-Doctoral Fellow at Syracuse University in 1998-1999. He was also a Senior Research Associate at Cornell University and New Editions Consulting in McLean, Virginia. “Andrew’s skill set is a perfect match for the direction that the IOD is going strategically,” said Linda Bimbo. “We have already seen increased enthusiasm about Andrew’s role and work within the IOD, within the College of Health and Human Services, and between CHHS and the Whittemore School.” For more information on IOD staff, visit www.iod.unh.edu. Transportation in NH to Undergo Analysis Kathy Bates – Somersworth, NH Regina Bringolf – Hancock, NH Stacey Brooks – Madbury, NH Robin Carlson – Rochester, NH Joyce Chisholm – Concord, NH Gina Colantuoni – Bow, NH Bonnie Dunham – Concord, NH Jocelyn Gallant – Salem, NH Nathan Gams – Hampton, NH Michelle Jarvis – Hampton Falls, NH Dan Louney – Bedford, NH Julie Smith – Durham, NH Jim Tobin – Effingham, NH Maureen Tracey – Merrimack, NH Pat Vincent-Piet – Concord, NH Kathryn Wallenstein – Concord, NH Marian West – Concord, NH As discussed in last quarter’s Vision & Voice As part of its purpose, TSNH will build on newsletter, significant issues exist in New existing research and resources developed within Hampshire’s transportation system. The current and outside of New Hampshire (e.g., The NH transportation funding structure does not provide Climate Change Task Force Report, NHDOT enough resources to meet necessary maintenance Draft Long Range Transportation Plan, NHDOT goals. The system’s heavy reliance on oil creates Multimodal Plan, State Transit Coordination sustainability problems for the environment Plan, regional needs assessments from United and puts a large strain on NH residents’ wallets. Ways and regional planning commissions) And, perhaps most importantly, there is a to educate leaders around a common frame general recognition that the existing modes of of understanding of transportation needs and transportation will not be opportunities. TSNH will also adequate in meeting the demands work with ongoing and forming “The time for action is and needs of the state’s growing now...My hope is that the efforts in the state, including and aging population. These the State Coordination Council TSNH process can be a problems create challenges that for Community Transportation no one organization or sector can catalyst for a new vision and the Transportation Finance and ways to get there.” Commission. address alone. Support the IOD! In response to this need, the Institute on Disability, in partnership with AARP and the Endowment for Health, has initiated a new project which will gather multiple organizations around the issue of a sustainable transportation system. Transportation Solutions New Hampshire (TSNH) will unite leaders from the public, private, and non-profit sectors as a collaborative group to develop a comprehensive vision of a future transportation system and the necessary steps to implement it. The resulting cross-sector coalition of businesses, service providers, government, and advocates will analyze existing issues, provide factual information resources, and initiate policy changes toward a sustainable transportation system. As a community oriented nonprofit focused on ensuring that equal opportunities and a satisfying quality of life are accessible to all persons, we rely on the generosity of supporters like you to help further the mission of the IOD. If you would like to contribute to the IOD, tax-deductible donations can be made: Online www.iod.unh.edu Mail 56 Old Suncook Road, Suite 2 Concord, NH 03301 Phone 603.228.2084 An IOD staff member will assist you with the process and answer any questions you may have about your contribution. “The time for action is now,” said TSNH Project Director Sönke Dornblut. “The pressures on our society are multiplying and one of the leverage points for change is the transportation system. The current infrastructure and society’s goals were developed with certain assumptions in mind, but these assumptions no longer hold. We need to have changing realities be reflected in the way we fund and implement transportation of goods and services here in New Hampshire. My hope is that the TSNH process can be a catalyst for a new vision and ways to get there.” For more information on Transportation Solutions New Hampshire, visit www.iod.unh.edu. IOD Satisfaction Survey To guide us in our work, the IOD depends upon direct input from individuals connected to our mission. We invite you to share your thoughts and ideas by participating in our IOD Satisfaction Survey. The survey is available online at www.iod.unh.edu or you may request a mailed copy by calling 603.862.4320.