spring 2010
New design
for 2010!
The Institute on
Disability T-shirt
features artwork
from the 2008
IOD calendar on
the front, with
the following
inspirational quote by
Pierre Teilhard de Chardin on the
reverse: “It is our duty as human
beings to proceed as though the
limits of our capabilities do not
exist.” T-shirts are preshrunk
tagless 100% heavyweight cotton,
and are available in stonewash
green, stonewash blue, and pebble.
Short-sleeve only. Available for
$15 each at
www.iodbookstore.com.
Join Our
Mailing List
The IOD produces a variety of
publications, including Vision &
Voice, which communicate the ways
we are connected to individuals and
activities in New Hampshire and
across the country. If you would
like to be added to our mailing
list, e-mail contact.iod@unh.edu
or call 603.862.4320.
What’s Inside
Including Samuel Receives Nomination . . . . . 2
Trainees Advocate in Washington, D.C.. . . . . . 2
Did You Know?. . . . . . . . . . . . . . . . . . . . . . . . . 2
Calendar of Events . . . . . . . . . . . . . . . . . . . . . 3
Mary Schuh Receives UNH Diversity Honor. . . . 4
Remembering Brie . . . . . . . . . . . . . . . . . . . . . . 4
with support to cover wages for workers who
attend qualified trainings.
The project also will establish a tuition
scholarship program, providing partner agencies
For more information about DirectConnect,
visit www.iod.unh.edu.
“Direct care workers are the backbone of the
long term care system and provide essential
home and community-based services to persons
of all ages who have disabilities or chronic
health conditions,” said Sue Fox, Principal
Investigator for DirectConnect. “This grant
will provide New Hampshire
“This grant will provide New
with critical support in order
The Institute on Disability
to secure a skilled, stable
will address this growing need Hampshire with critical
support
in
order
to
secure
professional workforce
through DirectConnect, a new
prepared to meet the current
project funded by a three-year, a skilled, stable professional
workforce
prepared
to
meet
and future needs for home and
$3 million grant from the U.S.
the current and future needs community-based direct care
Department of Labor.
for home and communityworkers.”
As part of the project,
based direct care workers.”
Several state agencies and
DirectConnect will recruit,
organizations will be involved as project
train, and place 200 new hires in home and
partners, including the NH Coalition for
community-based direct care jobs. To reach
this goal, DirectConnect plans to implement
the Direct Care Workforce, the Workforce
Opportunity Council, the New Hampshire
statewide training programs which will
include agency-based orientation and training,
Department of Health and Human Services,
the Community College System of NH,
national best practice curriculums, professional
credentialing processes, and established degree
Granite State Distance Learning, Granite
State Independent Living, and three NH Area
programs to prepare workers for placement and
Agencies, among others.
advancement.
Keith Jones Featured in Krumm Lecture Series
The IOD welcomed nationally recognized
disability rights advocate and artist Keith Jones
for the second annual Janet Krumm Disability
& Media Lecture Series on Thursday, April 22
at the University of New Hampshire Memorial
Union Building.
Keith’s presentation, titled “Disability
Movement in the Era of Change and the
Use of Media,” discussed the importance of
how the role and use of media can influence
the acceptance of the differences of others.
Attendees were treated to an engaging afternoon
session filled with Keith’s stories and anecdotes
regarding his own experience as a person
with a disability. The audience also had the
opportunity to
respond to the
presentation and
ask questions.
I NSTITUTE ON D ISABILITY / UCED
10 WEST E DGE D RIVE
S UITE 101
D URHAM NH 03824
Institute on
Disability
T-shirt
With a population aging faster than the national
average, the state of New Hampshire can
anticipate an increasing demand for health care
and support services and a heavier reliance on
home and community-based services for long
term care. It is projected that the need for direct
care workers in home and community-based
services will increase in the near future and
demand will rapidly outpace supply.
800315
Bookstore Spotlight
Expanding and Training NH’s Direct Care Workforce
Keith has been
called a pioneer
in the disability
rights movement.
As president and
chief executive
officer of
SoulTouchin’
Experiences,
he is committed
to multi-cultural,
cross-disability,
progressive, and
effective change
around the
issues of access,
inclusion, and
empowerment.
Keith was
recently featured in
two critically-acclaimed documentaries—IOD
filmmaker-in-residence Dan Habib’s Including
Samuel and Maggie Doben’s Labeled Disabled.
The Janet Krumm Disability & Media Lecture
Series recognizes the power of information
and the contributions of individuals who have
used the media to create an understanding
of the experience of disability, as well as
the community’s collective responsibility to
embrace diversity. The series honors the efforts
of Janet M. Krumm, founder and editor of the
New Hampshire Challenge, a quarterly news
publication for families who have members with
disabilities. Janet passed away in June 2008.
For more information on the New Hampshire
Challenge, visit www.nhchallenge.org.
Trainees Advocate in
Washington, D.C.
Trainees participating
in the New Hampshire
Leadership Education
in Neurodevelopmental
and Related
Disabilities (NHLEND) program
traveled to
Washington, D.C.
NH-LEND trainee
s
in April to attend
talk with Senator
the 2010 Disability
Jean Shaheen in
Policy Seminar.
Washington, D.C
Following two days
.
of training on current policies,
including the newly passed Health
Reform law, the trainees visited New
Hampshire legislators on Capitol Hill.
The purpose of meeting with legislators
was to request that they be leaders who
will advocate for reauthorization and
full funding for The Combating Autism
Act when it is up for reauthorization
in 2011. In addition, the NH-LEND
trainees asked legislators to support The
Autism Acceleration and Treatment Act
as well as Title II of the Developmental
Disability Act which funds family
supports, the training of direct support
staff, and the 67 University Centers for
Excellence in Developmental Disabilities
(including the IOD).
For more information on the
NH-LEND program, visit
www.iod.unh.edu.
Including Samuel Receives Emmy ® Nomination
Including Samuel has been honored with an
Emmy® nomination for Best
Documentary by The Boston/New
England Chapter of the National
Academy of Television Arts and
Sciences (NATAS).
The 33rd Boston/New England
Emmy® Nominations were
announced on April 13, 2010
at a Nomination party held at 28
Degrees in Boston, MA. Peer judges in the
Pacific Southwest, Lower Great Lakes, and Ohio
Valley Chapters of NATAS selected over 250
nominations from more than 600 entries.
“I’m honored that the Boston/New England
Chapter of NATAS believes that Including
Samuel is worthy of an Emmy nomination,” said
Dan Habib, Including Samuel director and IOD
filmmaker-in-residence. “The real value in this
nomination is that more people will be exposed
to the core message of the film—that the social
and educational inclusion of people with
disabilities is critical to the future of this country
and this world. I’m proud to be part of the UNH
Institute on Disability, an incredible institution
made up of dozens of people working every day
toward inclusion and disability rights.”
The New England Emmy® Awards Ceremony
was held at Gillette Stadium at Patriot Place on
Saturday, May 22, 2010. The gala hosted over
500 top television industry professionals and
their organizations across New England.
(L-R) Samuel, Da
n, and Isaiah Ha
bib
at the Including
Samuel premier
in
November 2007
(photo: Lori Duff).
Including Samuel originally aired on New
Hampshire Public Television in April 2009, and
was broadcast nationwide on public television
stations during the fall of 2009. The film has
been featured on NPR and Good Morning
America, as well as in the Washington Post
and the Boston Globe. Including Samuel was
selected for screening at the 2009 Boston
International Film Festival, the 2008 Sprout
Film Festival, and the 2008 Fort Lauderdale
International Film Festival. It won Best
Documentary at the 2007 Somewhat North of
Boston Film Festival and received an Excellence
Award at the Superfest XXVIII International
Disability Film Festival.
For more information on Including Samuel,
visit www.includingsamuel.com.
2
Did You Know?
According to data from the U.S.
Department of Education, in 2007,
the state of New Hampshire served
27,055 children ages six-17 under
the Individuals with Disabilities
Education Act (IDEA) Part B (i.e.,
special education services), or about
13 percent of the total NH population
ages six-17. Nationally, 5,575,244
children ages six-17 were served under
the IDEA Part B, or about 11.4 percent.
New Jersey had the highest percentage
served under IDEA (15.7 percent),
while Idaho had the lowest percentage
served under IDEA (8.6 percent).
For more statistics on people with
disabilities in New Hampshire, visit
www.DisabilityCompendium.org,
which is a collaborative effort of the
IOD, Hunter College, New Editions
Consulting, and the American
Association of People with Disabilities.
Feedback
Have a comment, suggestion, or
story idea? We value your input.
E-mail contact.iod@unh.edu or
call 603.862.4320 to let us know
how we’re doing and how we can
better serve you.
Share the IOD with a friend:
Please let friends or colleagues
know about us. Pass us along!
Highlighting IOD Donors
Friends and Alumni Help to Raise $25,000 to
Support the NH Leadership Series
Over 100 alumni and supporters gathered
on April 16 for the 2010 New Hampshire
Leadership Reunion Gala at the Ashworth by
the Sea in Hampton, NH to celebrate new and
past Series graduates and raise money to support
the program. This year, the gala organizers
had an added boost—a challenge grant from
the Finlay Foundation which committed to
matching up to $10,000 all funds raised in
association with the event.
said Beth Dixon,
NH Leadership
Series program
coordinator. “This
year’s gala was a
terrific example
of the way we all
come together
to make things
happen. This is a
special group of
people.”
All together, the event raised more than $15,500,
exceeding the $10,000 challenge. The total
included direct contributions to the Leadership
Series to help reach the challenge goal, as well
as funds raised through the sale of gala tickets
and raffle tickets for a wide range of donated
items—from elegant gift baskets to a Southwest
Airlines getaway.
The Leadership
Series provides training for individuals with
disabilities and their family members from
across the state. Participants engage in an
intensive seven-month program, gaining the
confidence and skills to build better lives for
themselves and better communities across New
Hampshire.
The reunion was organized with help from the
Friends of Leadership, a group of dedicated
program alumni who contribute their time and
talents to support the program. The evening
provided an opportunity for attendees to visit
with past program alumni and meet the newest
graduates of the program.
“The education, enrichment, and self-confidence
that the Series helps participants gain each
year could not be deeper reaching or more
appreciated,” said Finlay Foundation President
Karin Finlay.
“It was a great evening,” said Friends of
Leadership volunteer Cathy Spinney. “We have
always enjoyed coming together each year, but
this way we were able to have fun and raise
funds for the program at the same time. The
challenge grant from the Finlay Foundation
really gave us extra momentum this year.”
“The Leadership Series would not exist without
the support of program friends and alumni,”
Robin Carlson se
lls
prize balloons at
the
2010 NH Leaders
hip
Reunion Gala
To learn more about making a tax-deductible
gift to the IOD, please contact:
Mary Schuh, Ph.D. – Associate Director of
Development and Consumer Affairs
Institute on Disability / UCED
56 Old Suncook Road, Suite 2
Concord, NH 03301
603.228.2084 | mary.schuh@unh.edu
or visit www.iod.unh.edu for easy and secure
online donation.
Methods, Models & Tools
Person-Centered Planning Facilitation
Training
An intensive five-day course designed
to help develop the competencies
needed to facilitate consumer and
family-directed life planning.
Dates & Location:
May 27, 28 and June 3, 4, & 7, 2010 –
University of New Hampshire,
New Hampshire Hall & Browne Center,
Durham, NH
Time: 9am – 4pm
Cost: $650
Presenters: Patty Cotton, M.Ed. & Pam
McPhee, MSW
*$50 per person discounts available for
groups of three (3) or more.
*UNH course credit available; register
through the UNH Registrar’s Office
(603.862.1500). Course Name: KIN
798/898 – Experiential Methods for
Facilitation and Person-Centered
Planning (4 credits)
Taking Control of Early Stage
Alzheimer’s Disease: A Group Leader
Training to Develop Your Knowledge
and Clinical Skills
Developed more than ten years ago
by Dr. Paul Raia at the Alzheimer’s
Association MA/NH Chapter, this
program was one of the first in the
nation to teach people with early-stage
Alzheimer’s disease and their carepartners about the diagnosis. In this twoday course, participants will have the
opportunity to expand their knowledge
base and clinical skills beyond the
middle and later stages of Alzheimer’s
disease.
Dates & Location:
June 15-16, 2010 –
Courtyard by Marriott, Lebanon, NH
Time: 9am – 3pm
Cost: June 15: $40; June 15 & 16: $60
Presenters: Nicole McGurin and Susan
Antkowiak
AT Boot Camp: 4th Annual Assistive
Technology Summer Institute
An intensive, hands-on, week-long
assistive technology training. The week
includes three days of hands-on AT
fabrication “make and take” with Dr.
Therese Willkomm. On day four, learn
about and explore hundreds of different
Apple and Android mobile device
applications, portable apps, and web
apps for people with disabilities. On day
five, Dan Herlihy will discuss computer
access strategies and devices to
accommodate individuals with physical
disabilities.
Dates & Location:
July 12-16, 2010 – Institute on Disability
Professional Development Center,
Concord, NH
Time: 9am – 3pm
Cost:
Full Week: $640
*Full week registrants receive a copy
of Dr. Willkomm’s book “Make A
Difference Today - Assistive Technology
Solutions in Minutes”
Individual Workshops:
Monday: $225, Tuesday: $150,
Wednesday: $125, Thursday: $115,
Friday: $100
Presenters: Dr. Therese Willkomm and
Dan Herlihy
*Assistive Technology Provider CEUs from
RESNA (Rehabilitation Engineering and
Assistive Technology Society of North
America) are available for an additional
$16 per session.
12th Annual Autism Summer Institute
A NEW View of Students with ASD:
Implications for Inclusive Education
Through a unique combination of
keynote presentations, 35 theme-based
breakout sessions, and action planning
activities, participants will learn practical
strategies to support individuals with
ASD, their families, and the support
systems surrounding their lives. Breakout
sessions have been grouped together
into six theme-based strands to provide
participants with the option of a
concentrated learning experience in a
specific area.
Dates & Location:
August 9-12, 2010 – Crowne Plaza Hotel,
Nashua, NH
Time: MTW - 8:00am to 3:45pm, Th 8:00am to 12:00pm
Cost:
Full Conference:
Professionals: $499
Groups of three or more: $450 each
Parents, Full-Time Students, SelfAdvocates: $350
Single Day(s) (MTW only): $150 each
Keynote(s) Only: $50 each
Keynote Presenters: Ari Ne’eman, Cheryl
M. Jorgensen, Jeff Strully, Judy Endow,
Larry Bissonnette, and Tracy Thresher
*A limited number of rooms at a
reduced rate of $109 per night are
available to ASI participants. To make
reservations, call 603.886.1200. Please
mention the ASI to guarantee reduced
rate. Rate available through July 9, 2010.
Fifth Annual APEX Summer Leadership
Institute – Dropout Prevention and
Positive Behavioral Interventions
and Supports: Improving High
School Culture and Climate through
Teamwork, Leadership, and Databased Decision-making
The APEX Summer Leadership Institute
will provide an opportunity for
teams from high schools including
administrators, teachers, other staff
members, community mental health
providers, students, and parents to build
knowledge, skills, and connections
to resources that will improve the
culture, climate, student engagement,
graduation rates, and student
achievement in their schools.
Dates & Location:
August 18-19, 2010 – Attitash Grand
Summit Hotel and Conference Center,
Bartlett, NH
Time: W - 8:00am to 4:15pm, 6pm
dinner; Th - 7:30am breakfast, 8:30am to
1:15pm
Cost: $275
*Dinner on 8/18: $35 (additional)
*Includes breakfast and lunch on 8/18
and 8/19.
*Does not include accommodations.
Please contact the Attitash Grand
Summit Hotel at 603.374.1900 to make
reservations.
Keynote Speaker: Dr. George Sugai
Featured Presenters: Hank Bohanon,
Ph.D., Dan Habib, LeDerick Horne,
Howard Muscott, Ed.D., William Preble,
Ph.D., Scott Ross, Ph.D., Jessica SwainBradway, Ph.D.
Save the Date
Real Choice Conference
The Real Deal: Yesterday’s Successes
Shaping Tomorrow’s Choices
September 21, 2010
Center of NH Radisson, Manchester, NH
2010 Annual Conference
October 15-16, 2010
Wyndham Milwaukee Airport Hotel
Milwaukee, Wisconsin
For more information and to register, visit www.iod.unh.edu or call 603.228.2084
3
IOD Leadership
Linda Bimbo, MS – Interim Director
Mary C. Schuh, Ph.D. – Associate Director of
Development and Consumer Affairs
Cheryl M. Jorgensen, Ph.D. – Research Assistant
Professor
Matthew Gianino, BA – Manager of Marketing
and Communications
Susan Fox, M.Ed., MA – Clinical Assistant Professor
Monica McClain, Ph.D. – Project Manager
Andrew Houtenville, Ph.D. – Research Director
Executive Committee
Gordon Allen – Executive Director
New Hampshire Developmental
Disabilities Council
www.nhddc.org
Matthew Ertas – Bureau Chief
Bureau of Developmental Services
New Hampshire Department of Health
and Human Services
www.dhhs.state.nh.us/DHHS/BDS
Barbara Arrington – Dean
College of Health and Human Services
University of New Hampshire
www.shhs.unh.edu
Santina Thibedeau – State Director of
Special Education
New Hampshire Department of Education
www.ed.state.nh.us
Richard Cohen, JD – Executive Director
Disabilities Rights Center
www.drcnh.org
UCED Partners
Tom Bunnell, JD – Director
Institute for Health, Law and Ethics
Franklin Pierce Law Center
www.fplc.edu
John Moeschler, MD – Program Director
Dartmouth Center for Genetics and Child
Development
Dartmouth Hitchcock Medical Center
www.dhmc.org
4
Consumer Advisory Council
Kathy Bates – Somersworth, NH
Denise Brewitt – Concord, NH
Regina Bringolf – Hancock, NH
Stacey Brooks – Madbury, NH
Robin Carlson – Laconia, NH
Joyce Chisholm – Concord, NH
Gina Colantuoni – Bow, NH
Bonnie Dunham – Concord, NH
Jocelyn Gallant – Salem, NH
Nathan Gams – Hampton, NH
Amy Howe – Hopkinton, NH
Michelle Jarvis – Hampton Falls, NH
Dan Louney – Bedford, NH
Julie Noel – Concord, NH
Chrissy Shaffer – Litchfield, NH
Julie Smith – Durham, NH
Jim Tobin – Effingham, NH
Maureen Tracey – Merrimack, NH
Pat Vincent-Piet – Concord, NH
Kathryn Wallenstein – Concord, NH
Marian West – Concord, NH
Support the IOD!
As a community oriented nonprofit focused on ensuring that
equal opportunities and a
satisfying quality of life are
accessible to all persons, we
rely on the generosity of
supporters like you to help
further the mission of the IOD. If
you would like to contribute to
the IOD, tax-deductible
donations can be made:
Online
www.iod.unh.edu
Mail
56 Old Suncook Road, Suite 2
Concord, NH 03301
Phone
603.228.2084
An IOD staff member will assist
you with the process and
answer any questions you may
have about your contribution.
Mary Schuh Inducted into UNH Diversity Hall of Fame
On May 1, 2010, IOD Associate Director Dr.
Mary Schuh was honored with the Diversity Hall
of Fame Alumni Award at the University of New
Hampshire’s fifth annual Diversity Celebration
Banquet.
This award is given to University of New
Hampshire alumni for leadership and outstanding
achievement on campus and for continued
dedication to advancing diversity in professional
work and community service. The 2010 Hall
of Fame inductees represented a wide range of
successes: some of those honored are working
in the fields of patent protection, education,
administration of institutes, and student services,
while more recent graduates are leading change
in their communities through their work in such
places as college admissions, music, and the law.
“As one of the newest members of the Alumni
Diversity Hall of Fame, I am deeply honored by
the University of New Hampshire for recognizing
disability as a vital aspect of the cultural diversity
that comprises our communities,” said Schuh. “It
is our differences that we all have in common, and
our goal is to let go of stereotypes and recognize
each other as individuals. As an alumnus, I am
proud to be representing and leading these efforts
within UNH.”
Dr. Mary Schuh (le
ft) stands with oth
er 2010
Alumni Diversity H
all of Fame hono
rees
on Disability where she has worked since its
founding in 1987. She strives to implement and
sustain leadership development opportunities for
individuals with disabilities and their families.
She also promotes the inclusion of students with
disabilities as research assistant professor in
UNH’s College of Health and Human Services.
Mary’s work has taken her beyond national
boundaries to the Czech Republic and the United
Kingdom where she has consulted extensively.
Congratulations, Mary!
For more information on diversity initiatives at
UNH, visit www.unh.edu/diversity.
Mary received her Ph.D. from UNH in 2002
and is the Associate Director of the Institute
Remembering Brie
Brie Dillon’s presence has been felt in systems
and organizations around New Hampshire for
over 20 years. Her gentle bells ringing beneath
her wheelchair became her footsteps in the halls
of Exeter area schools and at the University
of New Hampshire. Her stories of successful
inclusion inspired many families at the NH
Leadership Series and gave thoughtful pause to
numerous school administrators, teachers, and
educators in trainings and meetings. The vision
of a full life and real community participation
became the goal throughout her life.
staff member. “We
didn’t have to be
perfect or have all
of the answers. She
was patient—she
knew we would
eventually figure it
out. All she asked
was that whatever
we did—whatever
we tried—that we did it
with love in our hearts.”
Her influence on the IOD began when she was
While challenges in Brie’s life may have seemed
just three years old. From the Early Education
insurmountable at times—whether it was a system
Committee and initiatives on friendship to
unwilling to change fast enough, a health concern,
full participation in schools and community
or people’s inabilities to be better listeners and
recreation, Brie added that human
problem solvers—Brie never gave
Brianna
Rose
touch to the principles and beliefs
up teaching everyone she met how
of an organization whose mission is
easy it can be to create a life of love
“Brie”
to strengthen communities to ensure
and meaning.
Dillon
full access, equal opportunities,
2/12/85 – 5/1/10 Brie may not be physically with
and participation for all persons.
us any longer, but her 25 years
Her stories and image appeared in
of influence; her grit; her smile; her role as a
several early IOD products as well as in other
teacher, a trooper, a pioneer, a friend, a daughter,
statewide publications.
a sister, and a colleague; her ability to make us
Brie lived an ordinary life among extraordinary
all work just a little bit harder, to listen a little
circumstances, a life that included activities
more deeply, and to laugh at ourselves for making
that most people take for granted. In addition to
the ordinary seem so extraordinary will all be
valuing the broadest spectrum of human diversity, remembered. Brie will continue to influence many
Brie’s greatest gift was her patience.
lives long into the future through the memory of
her credo that life is best when all are celebrated
“All [that Brie] expected of any of us was that
and cherished for the gifts they bring.
we move in the right direction,” said Carol
Tashie, inclusion facilitator and former IOD
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