fall 2011
LEND Program Expands in NH and to Maine
Bookstore Spotlight
The NH Leadership Education in
Neurodevelopmental and Related Disabilities
(NH-LEND) Program, a partnership of
Dartmouth Medical School and the UNH
Institute on Disability, has received a $4.25
million grant from the U.S. Department of
Health and Human Services. The funding, a
major increase from the program’s previous
funding level, will support NH-LEND as it
significantly expands trainee opportunities
in NH and Maine. The five-year grant is the
highest level of funding for such programs.
Navigating
Choice and
Change in
Later Life:
Frameworks
for PersonCentered
Planning
Patty Cotton, M.Ed., and Susan
Fox, M.Ed., MA
This manual provides a set of tools
to help professionals and families
navigate the complex issues that
arise as we age and our need for
supports to live as we choose
increases. Included with the manual
is a 11”x17” fold-out poster of the
Drexler/Sibbet Team Performance
Model® that is adapted to personcentered planning.
The increase in funding has already allowed the
program to add to its faculty, double the number
of trainees, and increase the trainee stipend,
making the ten-month, 300-hour program a
more accessible opportunity for professionals,
students, and family members.
Additionally, the increase in funding supports a
new partnership with the Center for Community
Inclusion and Disability Studies at the
University of Maine-Orono to include up to five
UMaine trainees annually. Through the use of
eLearning and videoconferencing technology
at UNH, these trainees participate remotely in
the weekly NH-LEND seminar. Ultimately, this
new partnership will reach an area not currently
served by a LEND training program, develop
infrastructure, and address regional needs,
particularly in rural underserved regions of
Maine.
Available for $30 at
www.iodbookstore.com.
Join Our
Mailing List
The IOD produces a variety of
publications, including Vision &
Voice, which communicate the ways
we are connected to individuals and
activities in New Hampshire and
across the country. If you would
like to be added to our mailing
list, e-mail contact.iod@unh.edu
or call 603.862.4320.
“We have
a talented
cohort of
trainees
from New
Hampshire
and Maine
2011-2012 NH-LEN
and 26
D trainees
during orientatio
faculty
n
members
from three institutions,” says Betsy Humphreys,
NH-LEND interdisciplinary training director.
“We are very excited about this collaboration.”
NH-LEND provides graduate-level
interdisciplinary training for students and
professionals from diverse disciplines, including
developmental pediatrics, early childhood
education, nutrition, occupational therapy, social
work, and speech-language pathology. The
curriculum includes coursework and experiences
working with faculty at Dartmouth Medical
School and UNH, as well as with families,
community partners, and legislators, both in
NH and nationally. Program activities include
leadership development, clinical training,
continuing education/technical assistance,
research, and cultural competency field work.
For more information about the NH-LEND
Program, visit www.mchlend.unh.edu.
Celebrating Real Choice
New Hampshire celebrated over 10 years of
Real Choice long term care grants at a luncheon
in September 2011. The event welcomed
representatives from the NH Department
of Health and Human Services, community
organizations, self-advocates, and other key
stakeholders to reflect on past accomplishments
and look toward the future of community-based
long term care.
What’s Inside
IOD Launches Online Planning Tool . . . . . . . . . 2
Intensive Course in Emergent Literacy. . . . . . . 2
“We have changed the face of long term care
in New Hampshire,” said Mary Maggioncalda,
Administrator of Community Programs and
Long Term Care at the NH Bureau of Elderly
and Adult Services. “These initiatives have
had the ability
to bring people
together, develop
consensus,
and get people
on board with
systems change.”
Did You Know?. . . . . . . . . . . . . . . . . . . . . . . . . 2
Calendar of Events . . . . . . . . . . . . . . . . . . . . . 3
IOD Releases National Disability Statistics. . . . . 4
Center on Aging and Community Living . . . . . 4
Real Choice
is known for
its success
in infusing a
person-centered
Real Choice stake
holders gather to
celebrate
approach across multiple human service
systems, its success in transitioning numerous
individuals from institutional facilities to
home and community-based services, and its
annual conferences to disseminate best-practice
information about community-based long term
care services in NH. Real Choice was also
involved in the development and enhancement
of ServiceLink, a local network of 13 free
information and referral resource centers where
individuals can ask questions and be connected
to services for healthy and independent living.
“While much has been accomplished over these
past ten years, we still have much to do and
many challenges facing us over the next several
years,” said Sue Fox, director of several Real
Choice grants at the IOD. “The aging of NH’s
population will present new challenges for the
state in supporting all residents to live and age
in the communities of their choice.”
For more information on Real Choice, visit
www.realchoicenh.org.
800315
10 West Edge Drive, Suite 101
Durham, NH 03824
Institute
on
Disability
/ UCED
Intensive Course in
Emergent Literacy
IOD staff member Leigh Rohde, Ph.D.,
will offer an intensive graduate level
course in Emergent Literacy during the
2012 January term at UNH.
This course will focus on how young
children develop the skills and
understandings (print and phonological
awareness, language, and early writing)
associated with emergent literacy
learning. Students will review current
research on how children best learn as
well as what skills and understanding
correlate with later reading and
academic success in school. Given
that the majority of young children
identified with educational disabilities
have speech and language concerns,
particular attention will be paid to
supporting those children. Students
will be observing and working with
young children as a part of the course.
The course, available for four graduate
credits, will run January 3–20, 2012 on
Tuesdays, Wednesdays, Thursdays, and
Fridays, 9am–12:30pm.
For more information, email
leigh.rohde@unh.edu. To register,
contact the UNH Registrar’s Office at
603.862.1500.
2
Did You Know?
In New Hampshire, the median annual
salary/wages of people with disabilities
who worked full-time was $21,900 in
2010, compared to $32,800 for their
peers without disabilities—a difference
of $10,900. This “gap” in annual
salary/wages is slightly larger than the
national gap of $10,500.
IOD Launches Online Person-Centered Planning Tool
Planning for and providing support to a loved
one who is aging or living with a chronic illness
or disability is a common experience for almost
everyone at some point in life. The process,
however, can be arduous and presents a number
of challenges that prevent individuals from
living as they choose. The path to navigate the
maze of medical and community supports can
be complex and time consuming. Individuals
and families often struggle to define and create
a network of supports, and service providers
frequently experience significant time and
funding constraints.
With the help of Look Back, Plan Forward, a
new website launched by the IOD in November
2011, individuals with disabilities and people
who are aging have a place to record and reflect
on important life events in a web-based timeline.
When used by family caregivers and service
providers as a framework for planning tailored
services and supports, this online record can
prove invaluable for understanding and focusing
on the individual’s desires and preferences.
“We are very excited about the launch of this
online tool for person-centered planning,”
said Susan Fox, Institute on Disability project
director. “We hope that individuals with
disabilities and people who are aging will find
it to be a useful resource in capturing their life
history in a way that is simple to use and can be
shared with others.”
New Hampshire has the smallest
salary/wages gap in New England.
Vermont’s gap is $11,000; Rhode
Island’s, $11,600; Connecticut’s,
$11,800; Maine’s, $12,300; and
Massachusetts’, $15,400.
For more statistics on people with
disabilities in New Hampshire and
other states, visit
www.DisabilityCompendium.org,
a collaborative effort of the Institute
on Disability, Hunter College, and the
American Association of People with
Disabilities.
“The Bean Foundation is pleased to be able
to support the expansion of the well-designed
and in-depth NH Leadership Series program
of the Institute on Disability into Manchester
and Amherst,” says Kathy Cook, Foundation
Grant Manager. “We anticipate that it will have
a significant positive impact on the individuals
and families who participate.”
Feedback
The NH Leadership Series provides training for
individuals with disabilities and their family
members from across the state. Participants
engage in an intensive seven-month program,
gaining the confidence and skills to build better
lives for themselves and better communities
across New Hampshire.
Share the IOD with a friend:
Please let friends or colleagues
know about us. Pass us along!
• Enter their personal history.
• Print and share their history with family,
friends, health care or home care providers,
and others who can support them in the way
they prefer.
• Save their history so they can update it over
time.
All personal information is password-protected,
and sharing of personal information is at the
sole discretion of the site user.
For more information on how to create a
timeline, visit lookbackplanforward.com.
Highlighting IOD Donors
Grant Support for NH Leadership Series
The Norwin S. & Elizabeth N. Bean
Foundation has awarded a $13,636 grant to the
New Hampshire Leadership Series to support
the recruitment and participation of individuals
with disabilities and their family members,
particularly those living in the Manchester/
Amherst region of New Hampshire. To date,
participants from Manchester and Amherst
represent just five percent of all NH Leadership
Series graduates, although the area is home to
close to sixty percent of all New Hampshire
individuals with disabilities.
Have a comment, suggestion, or
story idea? We value your input.
E-mail contact.iod@unh.edu or
call 603.862.4320 to let us know
how we’re doing and how we can
better serve you.
After creating a profile, site visitors can:
Support for Film Dissemination
The Lincoln Financial Foundation (LFF) has
awarded an $11,000 grant to the Education
Revolution project (working title). The film
project, created by Including Samuel director
Dan Habib, documents the lives of students with
emotional/behavioral challenges, and shows
innovative educational approaches that help
these students to succeed, while improving the
overall school culture and climate.
LFF funds will be used to support extensive
outreach and engagement in New Hampshire
in 2012. Outreach supported under this grant
will include NH-based screening events at
conferences, in school districts, and for the
general public, and will include discussions
about the benefits and challenges of including
youth with complex emotional/behavioral
challenges in schools and communities. The
grant will also contribute to the development of
NH-specific educational resources, as well as
dissemination of the DVD and Education Kit.
“Dan Habib’s work has raised the level of public
discourse on how we collectively benefit when
our community adopts a policy of inclusion
towards people who live with a disability,” said
Byron Champlin, Program Officer for LFF. “We
hope that Lincoln Foundation’s support can help
broaden this discussion here in New Hampshire
around Dan’s new film.”
The Education Revolution project was also
recently awarded $25,000 in support from the
American Federation of Teachers who will
integrate the film, mini-films, and Education Kit
into the AFT’s training materials.
To learn more about making a tax-deductible
gift to the IOD, please contact:
Mary Schuh, Ph.D. – Associate Director of
Consumer Affairs and Development
Institute on Disability / UCED
56 Old Suncook Road, Suite 2
Concord, NH 03301
603.228.2084 | mary.schuh@unh.edu
or visit www.iod.unh.edu for easy and secure
online donation.
Navigating Choice and Change in
Later Life: Frameworks for Facilitating
Person-Centered Planning
An introduction to person-centered
planning for adults, including an
overview of what is meant by a personcentered system of care. Information
on how to facilitate person-centered
planning meetings and tools to use
in the planning process will also be
presented.
Dates & Location: November 7, 2011
& April 13, 2012 – IOD Professional
Development Center, Concord, NH
Time: 9am – 3:30pm
Cost: $90
Presenters: Susan Fox, M.Ed., MA, & Patty
Cotton, M.Ed.
Instruction and Assessment for
Alternate Learners: Understanding
and Using the NH Alternate Learning
Progressions
This series will take an in-depth look at
each of the four content areas assessed
by the NH Alternate Assessment Learning
Progressions. Workshops will focus on
how using the Learning Progressions can
support IEP development, instruction
that connects to the general education
curriculum, and assessment for students
with a variety of sensory profiles, levels of
communication, and learning styles.
Sessions:
November 10, 2011 – Climbing the
NH-ALPs: Developing Proficient Readers
Using the NH Alternate Reading
Learning Progressions
November 17, 2011 – Adding Up to
Success! Highlighting Student
Academic Achievement Using the
NH Alternate Mathematics Learning
Progressions
December 1, 2011 – Write This Way!
Using the NH Alternate Writing Learning
Progressions to Develop Student Writing
Skills
December 12, 2011 – Eureka! I’ve Got
It! Demonstrating Science Skills Using
the NH Alternate Science Learning
Progressions
Time: 4pm – 7pm
Location: IOD Professional Development
Center, Concord, NH
Cost: $75 each
Presenter: Laurie Lambert, M.Ed.
NH Transition Community of Practice
Summit: Youth-Driven Transition
The NH Transition Community of Practice
announces its fifth Transition Summit,
the only statewide conference for
training, collaboration, networking, and
information, focused on post-secondary
outcomes for students.
Date & Location: November 16, 2011 –
Grappone Conference Center,
Concord, NH
Time: 8am – 3:30pm
Cost: $50
Presenters: Jason Corning, Dan Habib,
and Kelsey Carroll
Creating a Dementia-Friendly Home
Training on how environmental factors
can affect an individual with dementia,
along with many simple, low-cost
modifications that can be made in most
households.
Dates & Location: November 18, 2011
& March 16, 2012 – IOD Professional
Development Center, Concord, NH
Time: 9am – 4:30pm
Cost: $99
Presenters: Cathy Creapaux & Janet
Dineen
Challenging Kids, Challenged
Teachers
Learn about the cardinal features
of Tourette’s syndrome, OCD, ADHD,
Executive Dysfunction, Mood Disorders
like Depression and Bipolar Disorder, and
the memory deficits, sensory issues, and
“storms” that sometimes accompany
them. Strategies, assistive technology
supports, and simple social skills and
problem-solving interventions will be
identified.
Date & Location: December 5, 2011 –
Grappone Conference Center,
Concord, NH
Time: 9am – 4pm
Cost: $99
Presenter: Leslie E. Packer, Ph.D.
Getting a Handle on Hoarding
Learn about the clinical disorders and
cognitive traits associated with hoarding
as well as recent research findings.
In addition, the presenter will provide
methods and tools for intervening in
hoarding issues.
Date & Location: December 5, 2011 –
IOD Professional Development Center,
Concord, NH
Time: 9am – 12pm
Cost: $45
Presenter: Elizabeth Burden, LICSW, MPH
Inclusive Practices in Action
Workshop series supporting busy special
education teachers, general education
teachers, paraprofessionals, and other
service providers trying to fully include
their students in the general education
curriculum.
Remaining Sessions:
December 8, 2011 – Developing
Number Concepts through Everyday
Mini-Lessons
January 17, 2012 – Free Web-Based
Books for Developing Literacy and
Other Academic Skills for Students with
Disabilities*
February 15, 2012 – Using Activity
Task Strips to Assist Students with Task
Completion
March 15, 2012 – Using Web-Based
Adapted Books to Connect Students
with Disabilities to the General
Education Curriculum*
April 12, 2011 – Writing Standards-Based
Individual Education Plans (IEPs) with
Measurable Objectives
May 10, 2011 – Using Collaborative
Teaming to Support Learning of the
General Education Curriculum by
Students with Disabilities
Time: 4pm – 6pm
Location: IOD Professional Development
Center, Concord, NH
Cost: $59 each
Presenter: Laurie Lambert, M.Ed.
*Laptop with wireless internet capabilities
required. A limited number of laptops
are available; call 603.228.2084 to
reserve.
Foundations in Transition: PersonCentered Strategies for Students with
Disabilities
Five-part series includes training in
practices shown to improve the selfdetermination skills of youth and
will provide educators, community
providers, and family members with
tools to help youth develop transition
plans relevant to their areas of interest,
and to use resources effectively to
ensure success.
Sessions:
December 13, 2011 – The Basics of
Secondary Transition
January 12, 2012 – The Foundation for a
Student-Driven Process: Personal Futures
Planning
February 16, 2012 – Assistive Technology
and Transition
March 29, 2012 – Think Outside the Box:
Student-Centered Educational and
Employment Options
May 3, 2012 – Resource Development
for Transition
Time: 8am – 2:30pm
Location: Holiday Inn, Concord, NH
Cost: $99 each
Presenters: Dawn Breault, CAGS,
C.R.C.; Kim Carter; Heidi Cloutier, MSW;
Donna Couture, M.Ed.; Jennifer Cunha;
Jonathon Drake, MSW; David Hagner,
Ph.D.; McKenzie Harrington, M.Ed.; Amy
Jenks; Michelle Lewis, M.Ed.; JoAnne
Malloy, Ph.D.; Therese Willkomm, Ph.D.;
Heidi Wyman, MSW
For more information and to register, visit www.iod.unh.edu or call 603.228.2084
3
IOD Leadership
Charles E. Drum, MPA, JD, Ph.D. – Director
Linda Bimbo, MS – Deputy Director
Susan Fox, M.Ed., MA – Clinical Assistant
Professor
Matthew Gianino, BA – Associate Director,
Communications & Technology
Andrew Houtenville, Ph.D. – Research Director
Mary C. Schuh, Ph.D. – Associate Director,
Consumer Affairs & Development
Executive Committee
Carol Stamatakis – Executive Director
New Hampshire Developmental
Disabilities Council
www.nhddc.org
Matthew Ertas – Bureau Chief
Bureau of Developmental Services
New Hampshire Department of Health
and Human Services
www.dhhs.state.nh.us/DHHS/BDS
Neil B. Vroman, Ph.D. – Associate Dean
College of Health and Human Services
University of New Hampshire
www.chhs.unh.edu
Santina Thibedeau – State Director of
Special Education
New Hampshire Department of Education
www.ed.state.nh.us
Richard Cohen, JD – Executive Director
Disabilities Rights Center
www.drcnh.org
UCED Partners
Tom Bunnell, JD – Director
Institute for Health, Law and Ethics
Franklin Pierce Law Center
www.fplc.edu
John Moeschler, MD – Program Director
Dartmouth Center for Genetics and Child
Development
Dartmouth Hitchcock Medical Center
www.dhmc.org
4
Consumer Advisory Council
Robin Carlson – Laconia, NH
Gina Colantuoni – Bow, NH
Jeff Dickenson – Concord, NH
Bonnie Dunham – Concord, NH
Nathan Gams – Hampton, NH
Amy Howe – Hopkinton, NH
Sandy Hicks – Manchester, NH
Dan Louney – Bedford, NH
Kirsten Murphy – Hanover, NH
Julie Noel – Concord, NH
Mary Schuh – Concord, NH
Chrissy Shaffer – Litchfield, NH
Julie Smith – Durham, NH
Jim Tobin – Effingham, NH
Pat Vincent-Piet – Concord, NH
Kathryn Wallenstein – Concord, NH
Marian West – Concord, NH
Support the IOD!
As a community oriented nonprofit focused on ensuring that
equal opportunities and a
satisfying quality of life are
accessible to all persons, we
rely on the generosity of
supporters like you to help
further the mission of the IOD. If
you would like to contribute to
the IOD, tax-deductible
donations can be made:
Online
www.iod.unh.edu
IOD Releases National Disability Statistics
The UNH Institute on Disability and its partners
released the 2011 Annual Disability Statistics
Compendium at a workshop at the U.S. Capitol
on November 2, 2011. The Compendium,
published as a printed report and web-based
tool, pools yearly disability statistics from
various federal agencies, making finding and
using disability statistics easier. It is designed
to serve as a reference guide for disability
advocates, policymakers, researchers, and those
working on legislative and other matters relating
to people with disabilities.
The release of the Compendium was
accompanied by two public events, a briefing
and the first annual Research-to-Policy
Roundtable, at the U.S. Capitol Visitor Center
in Washington, D.C. In addition, the briefing
was webcast live on the Research on Disability
website (www.researchondisability.org).
The Compendium release briefing included
several presentations on the sources and uses
of disability statistics. The Research-to-Policy
Roundtable provided an opportunity to discuss
ways that research can assist policymakers in
developing better coordination between safety
net programs and employment services for
persons with disabilities.
on Disability
Statistics and
Demographics
(StatsRRTC), a
joint effort of the
UNH Institute on
Disability and
Hunter College
in collaboration
with the
American
Association of
People with
Disabilities, the Center for Essential
Management Services, the Council of State
Administrators of Vocational Rehabilitation,
Cornell University, and the Center for Studying
Disability Policy at Mathematica Policy
Research. StatsRRTC is funded by a cooperative
agreement from the National Institute for
Disability and Rehabilitation Research.
To access the Compendium data in a searchable,
sortable format online, visit
www.disabilitycompendium.org.
To download a PDF of the report or request a
hard copy, visit www.iod.unh.edu or
www.researchondisability.org.
The Compendium is produced annually by the
Rehabilitation Research and Training Center
UNH Launches Center on Aging and Community Living
The University of New Hampshire’s Center on
Aging and Community Living (CACL) hosted
over 80 UNH faculty and community partners
at their fall launch event, New Perspectives
on Aging, on October 6, 2011. The program
brought together key stakeholders to discuss
issues related to the aging of NH’s population.
It explored ways for the CACL to build
relationships between UNH and state and
community partners to better support older
adults to live and age in the communities of
their choice.
“We want to help individuals move away from
simply piecing life together to living a full life
in the community,” said Ned Helms, director of
the New Hampshire Institute for Health Policy
and Practice (NHIHPP), during his welcome
remarks. “By tapping into faculty resources
and growing our partnerships with the state,
the CACL hopes to be the vehicle for shaping a
system to support and achieve this goal.”
Dr. Edward Ansello, Director of the Virginia
Center on Aging and Director of the Virginia
Geriatric Education Center at Virginia
Commonwealth University, addressed the
group, discussing the intersections of aging
and disability values, service provision, and
public policy in his keynote presentation. He
encouraged the work of the CACL and its
stakeholders to move forward in creating a
stronger network and coalition for change.
A panel responded to Dr. Ansello’s address,
reflecting on how the CACL can support the
Dr. Edward Anse
llo presents at th
e
CACL launch eve
nt
work of state government, University faculty
and staff, community agencies, advocates,
and state legislators. Panel members included
Nancy Rollins, Associate Commissioner, NH
Department of Health and Human Services;
Joan Hahn, Professor of Nursing, UNH; Susan
Ruka, Vice President, Elderly and Quality
Services, Memorial Hospital, North Conway,
NH; Barbara Salvatore, Community Advocate;
and Laurie Harding, Legislator, NH House of
Representatives.
The CACL is a collaboration between the
Institute on Disability and NHIHPP at UNH.
Having been actively engaged in projects
related to aging and long term care issues for a
number of years, the CACL was established to
coordinate the work of both institutes, maximize
available resources, and provide assistance to
state agencies and community organizations.
For more information on the CACL, visit
www.agingandcommunityliving.org.
Mail
56 Old Suncook Road, Suite 2
Concord, NH 03301
Phone
603.228.2084
An IOD staff member will assist
you with the process and
answer any questions you may
have about your contribution.
Stay Connected
For the latest IOD news, follow the Institute on Disability on Facebook and Twitter:
www.facebook.com/instituteondisability
www.twitter.com/unhiod