THE CASH AND COUNSELING QUALITATIVE STUDY:
FLORIDA CONSUMER DIRECTED CARE
INDEX
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Careworker
Family
Former
FL2; 16 FL3; 35 FL5; 53 FL6; 62 FL7; 69 FL8; 74 FL18; 153 FL22; 174
FL23; 184
Future plans
FL2; 22-23 FL3; 38 FL5; 58, 59 FL16; 142
Most important service
FL3; 34 FL5; 52-53 FL12; 102 FL15; 132 FL16; 139 FL23; 182-183
Paid
Hours per week
FL2; 21, 22 FL3; 34 FL4; 43, 46 FL5; 54 FL6; 67 FL7; 72 FL8; 76 FL11; 93
FL12; 102 FL15; 132 FL16; 140 FL18; 155 FL22; 175 FL23; 183 FL24; 192
Salary
FL2; 22 FL3; 35 FL4; 43 FL5; 54 FL6; 67 FL8; 76 FL11; 95 FL12; 102
FL15; 132 FL16; 140 FL18; 155 FL22; 175 FL23; 183 FL24; 192
Unpaid
FL2; 21 FL3; 34 FL4; 43 FL5; 54 FL6; 67 FL7; 72 FL8; 77 FL11; 94-95
FL12; 102 FL14; 124 FL15; 132 FL16; 140 FL18; 155 FL22; 174, 174 FL23; 183
FL24; 192-193
Race/ Ethnicity
African American
FL16 FL17 FL22
European American
FL1 FL2 FL3 FL4 FL5 FL6 FL7 FL12 FL24
Eastern European
Hispanic
FL8 FL9 FL18
Other
Relationship
Children
Daughter
FL2 FL4 FL15 FL16
Son
FL3 FL5
Grandparents (see also Children with Developmental Disabilities)
Grandfather
FL11 FL12
Grandmother
FL11 FL12 FL18 FL22 FL24
Parents
Father
FL12
THE CASH AND COUNSELING QUALITATIVE STUDY:
FLORIDA CONSUMER DIRECTED CARE
INDEX
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Parents
Mother
FL6 FL8 FL9 FL12 FL17 FL22 FL23
Siblings
Brother
Sister
FL7
Spouse
Husband
Wife
Other
Aunt
FL18 FL22
Brother in law
Daughter in law
FL3
Granddaughter
FL14
Grandson
Grandniece
Nephew
Niece
Son in law
Uncle
FL24
Sex
Male
FL3 FL5 FL11 FL12
Female
FL2 FL3 FL4 FL6 FL7 FL8 FL9 FL11 FL12 FL15 FL16 FL17 FL18 FL22
FL23 FL24
Supervision
FL2; 22 FL4; 43 FL5; 55-56 FL15; 133 FL22; 175 FL23; 183
Training(see also Skilled Medical Care)
Non-Professional
FL2 FL6 FL7 FL8 FL12 FL16
Professional
FL15 FL18 FL22
Non-family careworker
Former
FL1 FL6 FL10 FL11 FL14 FL21
Future Plans
FL10; 90
Most important service
FL1; 9 FL6; 66 FL10; 88 FL11; 95 FL14; 123 FL21; 171-172
THE CASH AND COUNSELING QUALITATIVE STUDY:
FLORIDA CONSUMER DIRECTED CARE
INDEX
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Non-family careworker
Paid
Hours per week
FL1; 10 FL2; 14, 27 FL6; 62, 67 FL8; 77 FL9; 81 FL10; 89 FL11; 93-94
FL14; 124 FL19; 160 FL20; 165-166 FL21; 171
Salary
FL1; 10 FL6; 67 FL8; 77 FL11; 95 FL14; 125 FL19; 160 FL20; 165-166
FL21; 171
Unpaid
Hours per week
FL6; 66-67
Relationship
Acquaintance
FL8; 77
Agency (see also Operation of Program, Previous Experience Agency)
FL1; 9-10 FL2; 27 FL6; 64 FL10; 87 FL14; 121
Friend
FL6; 66 FL9; 81 FL21; 169
Neighbor
Non-acquaintance
Other
FL11; 95 FL13; 112 FL20; 166
Sex
Female
FL2 FL6 FL8 FL9 FL10 FL11 FL13 FL14 FL20 FL21
Male
FL6
Supervision
FL1; 9 FL6; 63 FL9; 83 FL10; 89 FL14; 125 FL19; 160-161 FL20; 166
Training (see also Tasks, Skilled Medical Care)
Non-Professional
FL5 FL6 FL23
Professional
FL6 FL10 FL14 FL19
Number of careworkers
Multiple
FL2 FL3 FL6 FL8 FL9 FL10 FL11 FL12 FL13 FL14 FL18 FL19 FL20
FL22 FL24
One
FL1 FL4 FL5 FL7 FL15 FL16 FL17 FL21 FL23
Primary careworker
Family
FL2 FL3 FL4 FL5 FL7 FL8 FL9 FL11 FL12 FL13 FL15 FL16 FL17 FL18
FL22 FL23 FL24
THE CASH AND COUNSELING QUALITATIVE STUDY:
FLORIDA CONSUMER DIRECTED CARE
INDEX
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Primary careworker
Non-Family
FL1 FL6 FL10 FL14 FL19 FL20 FL21
Qualities and skills
Careworker perspective
FL3; 36 FL4; 44-45 FL5; 58 FL7; 72 FL14; 127 FL15; 135 FL16; 142
FL18; 156 FL19; 161 FL20; 167 FL21; 172 FL22; 176 FL23; 185 FL24; 193-194
Consultant perspective
Consumer/family perspective
FL1; 9 FL2; 23 FL4; 44 FL5; 58 FL6; 67 FL8; 78 FL9; 84 FL10; 90 FL11; 95
FL12; 103 FL13; 115 FL14; 127 FL15; 135 FL16; 142 FL17; 147 FL20; 167
FL21; 172 FL22; 176 FL23; 185 FL24; 193
Representative perspective
Tasks
Medical Treatment
FL23; 181
Monitor Health
Nutrition
FL12; 110-111
Personal Care
ADL’s
FL1; 8-9 FL2; 18-19, 20 FL3; 33-34 FL4; 39 FL5; 52-53 FL6; 65-66 FL7; 70
FL8; 75-76 FL9; 82 FL10; 88 FL11; 94 FL13; 114 FL14; 123-124 FL18; 153-154
FL19; 158-159 FL20; 165 FL21; 170-171 FL22; 175 FL23; 181-183 FL24; 190-191
IADL’s
FL1; 8-9 FL2; 19 FL3; 33-34 FL4; 39, 42 FL5; 52-53 FL6; 65-66 FL7; 70
FL8; 75-76 FL9; 82 FL10; 88 FL11; 94 FL12; 99, 101-102 FL13; 113-114
FL14; 123-124 FL15; 130, 131-132 FL16; 139 FL17; 145-146 FL19; 158-159
FL20; 165 FL21; 170-171 FL22; 175 FL23; 181-183 FL24; 190-191
Skilled Medical Care (see also Careworker Training)
FL8; 75 FL13; 114-15 FL19; 158- 159 FL23; 181
Special Needs
FL5; 53 FL6; 66 FL8; 75 FL9; 81 FL11; 94 FL12; 99, 101-102 FL13; 114-115
FL19; 159-160 FL23; 181
Transportation
FL3; 35 FL5; 53 FL7; 72 FL8; 76 FL11; 95 FL12; 99 FL13; 115 FL17; 149
FL21; 170 FL23; 181
Other
Children with Developmental Disabilities (see also Consumer Demographics)
Age
Under 18
FL11 FL12 FL18 FL19 FL20 FL22 FL24
Over 18
FL8 FL9 FL13 FL17 FL21
Family Relationships
FL8; 177, 178 FL9; 83-84 FL12; 103-104 FL17; 145 FL18; 155-156 FL20; 166
THE CASH AND COUNSELING QUALITATIVE STUDY:
FLORIDA CONSUMER DIRECTED CARE
INDEX
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Family Relationships
FL21; 169 FL24; 187-188, 192-194
Parents of Children with Developmental Disabilities
Plans for future
FL8; 78 FL19; 162 FL24; 194-195
Responsibility
FL8; 77-78 FL9; 85 FL12; 100-101 FL13; 113-114 FL17; 150 FL20; 166
Special needs
FL8; 76 FL9; 84 FL12; 100-101 FL13; 113-114
Work
Children
FL8; 74 FL17; 146, 148
Parents
FL8; 74, 76, 77 FL11; 94 FL12; 101 FL21; 169
Consumer Demographics (see also Children with Developmental Disabilities)
Age
< 18
FL11 FL12 FL18 FL19 FL20 FL22 FL24
18-34
FL9 FL13 FL21
35-44
FL6 FL8 FL10 FL17
45-54
FL4 FL5 FL23
55-64
FL7
65-74
FL16
75-84
FL1 FL3
85+
FL2 FL14 FL15
Household composition
Alone
FL1 FL10 FL15
Family
FL2 FL3 FL4 FL5 FL6 FL7 FL8 FL9 FL11 FL12 FL13 FL14 FL16 FL17
FL18 FL19 FL20 FL21 FL22 FL23 FL24
Non Family
Marital Status
Divorced
FL4 FL7 FL10 FL16
Married
FL5
THE CASH AND COUNSELING QUALITATIVE STUDY:
FLORIDA CONSUMER DIRECTED CARE
INDEX
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Marital Status
Single
FL6 FL8 FL9 FL13 FL15 FL17 FL21 FL23
Widowed
FL1 FL2 FL3 FL14
Race/ Ethnicity
African American
FL11 FL15 FL16 FL17 FL19 FL22 FL23
European American
FL1 FL2 FL3 FL4 FL5 FL6 FL7 FL10 FL12 FL13 FL14 FL21 FL24
Hispanic
FL8 FL9 FL18 FL20
Other
Self reported disabilities
Cognitive
Alzheimer's Disease
FL3
Autism
FL9 FL19
Cerebral Palsy (see also Physical)
FL8 FL12 FL13 FL20 FL24
Dementia / Memory loss
FL14
Depression, Anxiety, Bipolar Disorder
FL4
Developmental Disabilities (see also Physical)
FL12 FL13 FL17 FL18 FL19 FL22 FL24
Down’s Syndrome
FL11 FL21
Other
Physical
Accident
FL23
AIDS
Amputation
Arthritis
FL2 FL23
Arteriosclerosis
Asthma, Bronchitis, Pneumonia, Breathing Difficulties
FL1 FL6 FL7
Back problems
Blood transfusion
FL2
Brain damage
Cancer
THE CASH AND COUNSELING QUALITATIVE STUDY:
FLORIDA CONSUMER DIRECTED CARE
INDEX
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Self reported disabilities
Physical
Cerebral Palsy (see also Cognitive)
FL8 FL12 FL13 FL20 FL24
Chronic Obstructive Pulmonary Disease
FL1 FL5
Communication impairment
FL13 FL19
Developmental Disabilities (see also Cognitive)
FL12 FL13 FL22 FL24
Deaf/mute, hearing difficulties
FL8
Depression
Diabetes
FL1 FL7
Dialysis / Kidney failure
FL23
Digestive tract problems
FL1 FL2 FL4 FL7
Encephalitis
FL13
Heart condition/ attack
FL1 FL2 FL5
High/ low blood pressure
FL2 FL4 FL14
Hydrocephaly
Mobility difficulties
FL1 FL13 FL15
Multiple sclerosis
FL4 FL10
Muscular Dystrophy
FL6
Osteoporosis / Brittle bone syndrome
FL2 FL4 FL5
Overweight
FL8
Paralysis
FL6 FL7 FL10 FL12 FL23
Seizures
FL13 FL20
Stroke
FL2 FL3 FL7
Thydroid problems
FL1
THE CASH AND COUNSELING QUALITATIVE STUDY:
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INDEX
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Vertigo/ dizziness
FL4 FL5
Vision difficulties, blindness
FL4 FL8 FL14 FL16
Wheelchair/bed bound
FL5 FL6 FL7 FL10 FL12 FL24
Sex
Female
FL1 FL2 FL4 FL5 FL7 FL8 FL9 FL12 FL14 FL15 FL17 FL18 FL20 FL22
FL23
Male
FL3 FL6 FL10 FL11 FL13 FL16 FL19 FL21 FL24
State
FL
Rural
FL13
Suburban
FL2 FL3 FL5 FL6 FL7 FL8 FL9 FL10 FL11 FL12 FL14 FL15 FL16 FL17
FL18 FL20 FL21 FL24
Urban
FL1 FL4 FL22 FL19 FL23
Operation of Program
Advice to others/ Opinion
FL1; 8, 11-12 FL2; 30 FL3; 38 FL4; 41, 48 FL5; 60 FL8; 79-80 FL9; 85
FL10; 87, 91-92 FL11; 96-97 FL12; 110-111 FL13; 119-120 FL16; 142-143
FL24; 194
Benefits
For Consumer/Family
FL1; 11-12 FL2; 29-30 FL3; 38 FL4; 43, 48 FL5; 60 FL6; 68 FL7; 73
FL8; 79-80 FL9; 85 FL10; 91 FL11; 96, 97 FL12; 102-106, 110-111 FL13; 119-120
FL14; 125, 129 FL15; 130, 135 FL16; 143 FL17; 149 FL18; 157 FL19; 163
FL20; 167-168 FL21; 173 FL22; 176 FL23; 186 FL24; 194-195
For careworker
Family
FL2; 30 FL4; 48 FL5; 60 FL11; 96
Non-family
FL13; 119-120 FL14; 125, 127-128
Enrollment
FL1; 8 FL2; 15-16 FL3; 32-33 FL4; 41 FL5; 50-51 FL6; 62-63 FL8; 75
FL10; 86 FL11; 93 FL12; 99 FL13; 112 FL14; 121-122 FL15; 130-131 FL16; 138
FL17; 144 FL18; 153 FL20; 164 FL21; 169-170 FL22; 175 FL23; 180 FL24; 189
Language issues
Careworker
FL8; 78
Consultant
FL8; 78-79
THE CASH AND COUNSELING QUALITATIVE STUDY:
FLORIDA CONSUMER DIRECTED CARE
INDEX
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Language Issues
Consumer
FL8; 78-79
Representative
FL8; 79
Other uses of cash allowance
Dentist
FL8; 75 FL17; 146 FL17; 146
Home modifications
FL10; 91 FL12; 104 FL24; 194
Home Appliances
FL15; 133
Medications
FL4; 45-46 FL5; 59 FL6; 63 FL23; 184
Medical equipment
FL4; 45, 46 FL8; 77 FL11; 95 FL13; 116 FL24; 194
Personal care
FL3; 35 FL4; 45, 46 FL5; 59 FL8; 77 FL12; 105-107 FL14; 125 FL23; 183-184
FL24; 194
Respite care
FL8; 74, 77 FL11; 96, FL12; 102 FL19; 159 FL20; 165-166 FL24; 187
Supplies
FL11; 94-95 FL13; 116 FL14; 125 FL15; 133 FL22; 176 FL23; 183-184
FL24; 194
Transportation
FL15; 133 FL21; 170, 172
Other
FL2; 22 FL8; 77 FL9; 83 FL10; 91 FL11; 95 FL12; 105-107 FL13; 116 FL14; 125
FL15; 133 FL17; 146 FL22; 176 FL24; 194
Previous Experience (see also Children with Developmental Disabilities)
Former careworker
Family
Non-Family
Agency
FL2; 15-16, 17-18 FL3; 33 FL4; 41 FL5; 51-52 FL8; 75 FL10; 87 FL11; 97
FL14; 122 FL15; 130 -131 FL16; 138-139 FL17; 144, 145 FL19; 158 FL20; 164-165
FL22; 174-175 FL23; 180 FL24; 189-190
Non-Agency
Nursing Home /Rehab Center
FL1; 9
Other Program
FL2; 15-16 FL11; 93, 97 FL16; 138-139 FL21; 170 FL22; 174-175
THE CASH AND COUNSELING QUALITATIVE STUDY:
FLORIDA CONSUMER DIRECTED CARE
INDEX
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Program Problems/drawbacks
For careworker
Bureaucratic problems
FL1; 12 FL3; 38 FL8; 79 FL13; 119 FL17; 149 FL18; 156 FL20; 167
Low Salary
FL1; 9 FL2; 28 FL23; 183-184, 186 FL24; 192-193
Lack of benefits
FL2; 28
Reduced amount of hours
FL23; 183
Other
FL16; 141
For consumer/ family
Bureaucratic problems
FL2; 27-28, 29 FL4; 46, 47-48 FL6; 68 FL9; 85 FL10; 91 FL11; 96 FL12; 109
FL13; 119 FL24; 194
Getting/Keeping careworkers
FL1; 10 FL2; 28 FL4; 44
Reduced amount of hours
FL1; 12
Reduced amount of allowed money
FL2; 28 FL3; 35, 37 FL7; 71 FL15; 135
Other
FL3; 37 FL8; 79 FL12; 109-110 FL13; 119 FL16; 141-142
Other source of assistance
Adult / Child Care Center for People with Disabilities
FL12 FL13 FL15 FL17
Agency
FL7 FL9
County Health Department aid / transportation
FL5 FL6
Family
FL2 FL3 FL7 FL8 FL14 FL16 FL19 FL22 FL24
Friends
FL1 FL4 FL10 FL12 FL19 FL23
Meals on wheels
Neighbor
FL1 FL2 FL6 FL10 FL19
Other
FL10 FL17 FL19 FL21
Religious
FL1 FL4
Senior Citizen Center
THE CASH AND COUNSELING QUALITATIVE STUDY:
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INDEX
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Representative
Family
Formal
FL2 FL3 FL7 FL8 FL9 FL11 FL12 FL13 FL14 FL15 FL17 FL18 FL20
FL22 FL24
Informal
Relationship
Child/Grandchild
FL2 FL3 FL2 FL3 FL14 FL15
Parent/ Grandparent (see also Children with Developmental Disabilities)
FL8 FL9 FL11 FL12 FL13 FL17 FL20 FL22 FL24
Spouse
Other
FL7
Non-family
Formal
Informal
Relationship
Tasks
FL13; 116-117 FL15; 133-134 FL17; 147 FL20; 167 FL22; 175
State Consultant
Consultant’s opinion
FL1; 11 FL3; 32 FL4; 44, 46, 47, 48 FL6; 63, 68 FL9; 81-82 FL10; 91
FL12; 108-110 FL16; 141-142
Consumer relationship
FL1; 11 FL2; 22, 29, 31 FL3; 38 FL4; 46-47 FL5; 59-60 FL6; 68 FL7; 73
FL8; 78-79 FL9; 83 FL11; 95 FL12; 107-110 FL14; 128 FL15; 135 FL16; 141-142
FL18; 156 FL19; 163 FL24; 194
Problems
FL2; 29 FL12; 107-110 FL13; 117-118 FL16; 141-142
Tasks
FL2; 31 FL3; 38 FL4; 46-47, 48 FL5; 59-60 FL6; 63, 68 FL7; 73 FL8; 78-79
FL9; 83 FL11; 96 FL12; 107-110 FL13; 117 FL14; 128 FL15; 135 FL19; 163
FL24; 194
THE CASH AND COUNSELING QUALITATIVE STUDY:
FLORIDA CONSUMER DIRECTED CARE
INDEX
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ADL’s
Toileting
Bathing
Feeding
Transferring
Dressing
IADL’s
Bills
Cleaning
Cooking
Laundry
Shopping
Buying medication