Interventions to Minimize Behavioral Symptoms of Dementia: Moving Beyond Redirection Part III Margaret Hoberg MSN, GNP-BC Siobhan McMahon MSN MPH GNP-BC Objectives Learning Objectives 1. Explain the effects of dementia on thinking, emotions and communication 2. Use a theory to help explain behavioral and communication changes associated with dementia and to guide interventions 3. Respond to behavioral changes with a calm, validating approach 4. Comprehensively assess verbal and nonverbal messages, including those that are associated with stress 5. Develop a plan whose non-pharmacological interventions reflect an understanding of and respect for the person and their preferences. Interventions based on the Need-driven Dementia-Compromised Behavior Theory Treat Acute Illness Treat pain Treat unmet physical need Treat unmet psychological or social need: Interventions based on the Need-driven Dementia-Compromised Behavior Theory Treat unmet psychological or social need: Recreational activities Individualized for long standing patient preferences for social stimulation Physical environments that minimize social and spatial crowding Staff trained to be sensitive and to validate the nonverbal expression of emotion Individualized schedules that use varied activities to correct arousal imbalance Using validation all the while Interventions based on the Need-driven Dementia-Compromised Behavior Theory Under-arousal: multi-sensory stimulation, live music, lemon aromatherapy, simulated presence Over-arousal activities : simulated presence or recording; aromatherapy with lavender; listening to preferred or live interactive music. Additional learning activity Review web-site page for activity ideas and choose one of the videos in the right hand column to view http://www.thiscaringhome.org/spec_concerns/agitatedactivities.php Interventions based on the Need-driven Dementia-Compromised Behavior Theory Simple Pleasures Tetherball (fabric covered balloon attached to the ceiling for repetitiveness Un-inflated balloons filled with birdseed (squeezies) for those with restlessness Wave machines (clear plastic salad dressing bottle partially filled with water, mineral oil, food coloring, sequins, glitter and a few pennies or shells for those with repetitive hand movements Hot water bottles covered with polar fleece helped those with verbal outbursts Need-driven Dementia-Compromised Behavior Theory Simple Pleasures Resource publication Link to simple pleasures book Interventions based on the Need-driven Dementia-Compromised Behavior Theory What is essential for staff and volunteer training? Define dementia and identify several causes Describe symptoms and stages of AD Explain how it is diagnosed Tips for communication and visits Tools and reminders to download and make available to staff and visitors Make visible tips from sources such as “best friends” Best Friends Hand out: 30 fun things to do Provide information about behavioral symptoms of dementia Alzheimer's Association Information Booklet about Behavioral Symptoms of Dementia Interventions based on the Need-driven DementiaCompromised Behavior Theory Communication strategies Unconditional positive regard Validation One idea at a time Assist with word finding No arguing Avoid sarcastic humor Use the word Yes as often as possible Avoid the words no, don’t, stop. Give simple choices (e.g. do you milk or juice instead of what do you want to eat) Don’t quiz or test Interventions based on the Need-driven DementiaCompromised Behavior Theory Non Verbal Strategies Eye contact Smile! Use pictures instead of words Validation Use appropriate touch Be aware of your own non-verbal messages. No arguing Assume that all nonverbal expressions of the person with dementia are attempts to communicate needs or feelings. Interventions based on the Need-driven DementiaCompromised Behavior Theory Additional Learning Activity Watch this short video describing good ways to help people with dementia using verbal, visual and tactile communication http://www.thiscaringhome.org/spec_concerns/vid_2_3helpi ngtechniques.php Validation Stresses importance of “going with the person” into their reality Validates feelings in whatever “time” is real to them Views all behavior as purposeful Listen carefully for meaning Respond to “emotional” message Validation Advantages Reduces risk of sending “You are Wrong” messages Addresses person in more positive way Often leads to reminiscence, review of life events Promotes self worth Person-centered approach Validation Disadvantages Person may respond to approach “in the moment” but not retain information Feels reassured briefly then forgets again Repeats questions over and over May not be successful in reassuring person Irritability, anxiety may continue Validation: Examples Don’t confront a person’s mis-belief. Distract and redirect instead. Person: “I’m going home!” Don’t: “Your house has been sold. You live here now.” Do: “It’s pretty late now. Stay here with me; we have a place for you that I think you will like and it is safe. We’ll go tomorrow.” Validation: Examples Validate the person’s reality. Avoid “No”, “stop”. “You Are Wrong” messages. Person: “Papa’s coming to get me.” Don’t: “Papa is dead. He’s been dead for years!” Do: “Papa loves you. Papa’s a good man.” “I forget. Tell where Papa lives.” “Papa called. He’ll come tomorrow, not today.” Validation: Examples Listen carefully to “nonsense.” What might message mean in person’s reality? Person: “Hurry up! Up, up, up, up there! Go! Go! Go! Up there! Up there! Whoaaaaa!” Don’t: Assume message has no meaning Do: Ask family, significant other “where” person might “be” in his/her reality. Do words make sense based on history? Validation Misbelief vs. delusion or hallucination? False beliefs may be “harmless” or quite distressing to the person. All are quite real to the individual, and may be Frightening or upsetting Helped by providing information Reduced by reassurances of safety Related to “real life” events (illusions) May be pleasurable Validation Don’t: Reason Argue Confront Remind them they forgot Question recent memory Quiz Take it personally!!! Validation Do: Allow time for your message to “sink in” Slow down. Take your time -- even when you are in a hurry! Take “but” out of your vocabulary “But we just talked about that” “But I just told you why not” “But that’s tomorrow, not today” “But that’s not yours” Validation Approaches Do: Distract them to a different subject, activity Accept the blame for misunderstandings (even if when you know better!) “I’m sorry. I didn’t mean to frighten you.” “I’m sorry if that that hurt.” Leave the room to avoid confrontations “I’m going to the kitchen now. I’ll be back.” “Let’s stop now. We’ll do this later.” Validation Do: Respond to feelings, not words Be patient, cheerful, reassuring Go with the flow! You’re going to work? But you are on vacation this week!!!!! Stay home with us . . . Please? Validation Do: Listen carefully to type and extent of false beliefs Monitor level of distress experienced by the person Persistent, severe, and troubling beliefs may reduce comfort and function Short-term, low-dose medication may be needed if depression is present or psychosis is causing fear and paranoia Assess for underlying triggers and try all other interventions first!! Interventions based on the Need-driven DementiaCompromised Behavior Theory Where does redirection fit in? Identified as a generic intervention to use when a person is in danger Involves gently guiding the person Best reserved for high risk situations and think of it as stepped redirection instead of redirection. E.g. instead of saying Mr. Johnson, ‘don’t , stop etc.’. First make eye contact, indicate you share his concerns and will work with him to find an answer. Then ask / invite him to join you or someone for a cup of coffee or suggest you need help doing …. Kovach et al categorized redirection as a “static” response to a persons needs and did not find that it was effective.