Allegheny County System of Care Initiative Presented by: Ellen Beatty, Parent Robert Clanagan, Early Childhood Family Support Coordinator Keith Solomon, Operations Coordinator Allegheny County Department of Human Services Office of Behavioral Health System of Care Initiative Overview • National Perspective • Allegheny County System of Care Initiative (SOCI) – History & Values – Practice Model • Consumer/Family, Community, and System Partnership • Value-Based Service Process • Continuous Quality Improvement (CQI) – What makes SOCI Different? – Questions & Answers What is a System of Care? • A coordinated network of community services and supports for children and youth with serious mental health needs. • Families, youth and providers become partners so that each child can function better at home, in school, and the community. Defining Characteristics • A broad array of coordinated services & supports • Care Planning and Management is integrated across multiple levels • Cultural and Linguistic Competence • Building Partnerships – Families – Youth – On all levels • Service Delivery • Management • Policy Goals of System of Care • Improve functioning of children, youth and their families at home, at school, and in the community • Improve coordination and service integration by overcoming system fragmentation • Empower families by providing information, education, and choice National Perspective: System Reform Initiatives FROM TO Fragmented service delivery Categorical programs/funding Limited services Reactive, crisis-oriented Coordinated service delivery Blended resources Comprehensive service array Focus on prevention/early intervention Least restrictive settings Focus on “deep end,” restrictive Children out-of-home Centralized authority Creation of “dependency” Children within families Community-based ownership Creation of “self-help” National Perspective: Frontline Practice Shifts FROM TO Control by professionals Only professional services Partnerships with families Partnership between natural and professionals supports and services One service coordinator Single plan for child & family Family partnerships Strengths Cultural Competence Multiple case managers Multiple service plans Family blaming Deficits Mono-cultural National Perspective: Case Management vs. Care Coordination • Case Management – Little authority over resources – Child centered – Reactive – Service provided to placement – Organization of existing services – Uses current system • Care Coordination – More control over resources – Family centered – Proactive – Unconditional care – Creation of services when not available – Family and community supports Allegheny County: • Community Connections for Families (CCF) – SAMHSA Grant (1998) – 5 Community-based sites for ages 6-16 • Partnership for Youth Transition (PYT) – SAMHSA Grant (2002) – Expansion of 2 CCF sites for ages 14-25 • Early Childhood – SAMHSA Grant (2005) – Planning year; 4 new sites for ages 0-6 Community Teams • Community Partner Sites – Program Supervisor • Staff supervision and outreach activities • Invisible caseload – Family Support Specialist – Youth Support Specialist • Serving all consumers and interested community members • Outreach and individual support/support group activities – Service Coordinators • CCF: 15-20 assigned consumers • PYT: 10-15 assigned consumers SOCI Team • Allegheny County Department of Human Services • Office of Behavioral Health • SOCI Central Office – Administration • Project Director • Administrative Support – Operations • Family and Youth Coordinators • Community Development – Evaluation – Training & Technical Assistance SOCI Core Values CASSP Foundation Consumer/Family Focused & Driven Youth Centered & Driven Community Based Least Restrictive Multi-System Culturally Competent SOCI Additions Safety (Consumer, Family, Community) Individualized Relentless Advocacy Outcomes-Based Cost Effective / Cost Responsible Education / Vocation Physical & Mental Well-Being Strength-Based Collaboration SOCI Practice Model • Partnerships – Consumer & Family – Community – System • Value-Based Service Process • Continuous Quality Improvement (CQI) Consumer/Family Partnerships Family Organization Support Groups Natural Supports Value-Based Service Process Engagement Crisis Stabilization Strengths and Needs Disc. Establish a Team Plan Supports/Services Implement Plan Track & Adapt Transition System Partnerships Formal Services State/County/Federal System Partners Community Partnerships Advisory Boards Community Support Teams Informal Supports SOCI Practice Model: Partnership • Consumer/Family Focused & Driven – Focus on Empowerment & Advocacy – Family and Youth Involvement at all levels (as recipient and staff) • Community Empowerment – Staff are hired from communities served – Outreach to and engagement of community as a whole • Collaboration – Knowledge and respect of multiple systems – Opportunities for partnership & understanding Philosophy of Service Coordination • • • • Know Your Consumers & Families Know Your Community Know Your System Partners Wrap the Community around the Consumer/Family • Develop a Service Plan that is built around consumer/family and community strengths (From the Value-Based Service Process) Value-Based Service Process Elements • Consumer/Family Engagement – Listen to story, record hopes and dreams – Staff is easily accessible and flexible – “Open the door” to extended family & natural supports – Establish an environment where the consumer/family drives the process • Crisis Planning and Stabilization – Utilize natural supports – Proactive planning/crisis prevention – Address immediate crisis and safety concerns Value-Based Service Process Elements • Functional Strengths & Needs Assessment – CANS/YANSA – Consumer/Family Strengths Assessment – Input from support team • Developing & Maintaining Support Teams – – – – Create the Village Consumer/Family driven, reflect culture/preferences Include all natural, community, and system resources Recruit any additional formal & informal supports Value-Based Service Process Elements • Service/Support Plan Development – – – – Family vision is the focus of the plan Strengths-based goals, objectives & strategies Individualized, creative, blend of informal & formal Collaborative effort across all systems • Service/Support Plan Implementation – Consistent check-in/review/revision – Linkage to services, supports & resources – Increase use of informal supports over time Value-Based Service Process Elements • Transition – Planning from the beginning – Consistent follow-up – Ongoing availability (informal basis) • Tracking & Adapting (CQI) – Data-driven process – Communicate findings Outcomes Continuous Quality Improvement SOCI Evaluation MIS Partnerships: Consumer/Family Community System Continuous Quality Improvement • Partnership between Operations & Evaluation • Efforts to Outcomes – Get out what you put in – Mission & Values • Defining • Measuring – Efforts • Tracking • Linking to Outcomes Why Measure Efforts? • Track Consistency of Practice with Mission and Values • Asks: Are we doing what we said we’d do? • Accountability to Consumers/Families • Inform Quality Improvement • Inform Outcomes • Replication CQI Model: Components • Value-Based Service Process Indicators • Value-Based Service Process Monitoring Tools – – – – Record/Case Review Team Meeting Satisfaction Survey CQI Survey Observation Forms • Initial Meeting • Team Meeting • Partner Community Review (PCR) • eCAPS • Performance Based Contract Additional CQI Model Components • Community Evaluation Team (CET) • CANS / YANSA • CART Satisfaction Surveys • Flex Fund Analyses • Focus Groups Creating a Feedback Loop • Report and Discuss Data – – – – – Regular Reporting Schedule Combine with Outcome Data Community Evaluation Team (CET) Supervision Meetings Advisory Committees • Use Results in Planning • Use Results in Training • Operations Training Operations Evaluation CCF Study Participants • Descriptive Study N = 373 • Outcomes Study N = 201 • Interviewed by Family Members & Youth 11+ • Baseline and 6 Months up to 36 Months • Average Follow-up Rate = 85% • Data Collection Occurred between 12/01/99 and 10/31/04 CCF Demographics • Gender – 75% Male – 25% Female • Race – 64% African American – 28% Caucasian – 8% Other Races (Native American, Bi-racial, Hispanic/Latino) • Diagnosis – 66% have more than one MH Diagnosis – 65% have ADHD – 45% Have ODD/Conduct Disorder • Average Age – 11 years CCF Serves a Hard to Reach Population • Almost half are self-referred (46%) • Over half are African-American males • Many CCF Children: – Have parents with mental illness (62%) – Live in households with incomes < $20,000 (85%) – Have a parent with a substance abuse problem (59%) – Have a parent who was convicted of a crime (49%) – Have been exposed to domestic violence (39%) Risk Factors • Prior to CCF Enrollment, consumers had experienced: – Running away (14%) – Attempting Suicide (5%) – Psychiatric Hospitalization (15%) – Physical Abuse (9%) Outcomes Highlights • Families are More Stable – Caregivers report a statistically significant reduction in strain – Caregivers report significant improvements in: • Resource availability • Adequate income • Access to childcare • Ability to maintain employment Baseline to 24-months Outcomes Highlights • Children are Doing Better in School – Detentions Decreased (17%) – Suspensions Decreased (16%) – A & B Averages Increased (19%) – Homework Completion Increased (9%) – Class Attention Increased (28%) • Caregivers Feel More Positive About School System Baseline to 24-months Outcomes Highlights • Caregivers Like the System of Care Approach – High Caregiver Satisfaction – Caregivers Feel Respected – Family Engagement Process is Highly Rated Baseline to 24-months Outcomes Highlights • System Partners Report: – Improvements in Interagency Collaboration – Better Understanding of Advocacy – Keener Awareness of Natural and Community Supports – Greater Ability to Form Trusting Relationships with Children and Families Baseline to 24-months What Makes System of Care Different? • Consumer/Family Involvement and Participation – Participation in all aspects of program development – Family Support Specialist and Family Support Coordinator positions for parent-professionals – Youth Support Specialist and Youth Support Coordinator positions for professional young adult consumers – Consumer/Family/Community Review What Makes System of Care Different? • Emphasis on Community Empowerment, Development, and Organization – Offices are located in a natural setting within the community – Staff have been hired from the community – Staff are involved in their community – Community Support Team – “It takes a village” – Community Advisory Boards What Makes System of Care Different? • Focus on Informal Supports and Resources – Grandparents & Extended Family – Friends – Churches – Other Local Community Organizations What Makes System of Care Different? • Cultural Competency – Have Developed Trust – Recognized Nationally – Self-Referrals – Consumer Satisfaction • Continuous Quality Improvement (CQI) Process Contact Information • Ellen Beatty, Parent – 412-758-7740 • Robert Clanagan, E.C. Family Support Coordinator – 412-350-3060 – rclanagan@county.allegheny.pa.us • Keith Solomon, Operations Coordinator – 412-350-3817 – ksolomon@county.allegheny.pa.us • Gwen White, Project Director – 412-350-4944 – gwhite@dhs.county.allegheny.pa.us Questions & Answers