January 2014 | S.R.A.C. 403-827-7520 2 S.R.A.C Stroking To Recovery January 2014 Newsletter Well, it’s a New Year again and SRAC will turn 35 this coming June. There must have been many different scribes doing this job over those years but right now it’s me. I will tell you what I know of our Volunteer organization during those past 35 years over the time between now and our celebrating it in June of this year. It was started by a stroke survivor and her husband in April of 1977. Their names are Frank and Louise Nieboer. When Louise was involved in rehabilitation at the old General Hospital and talking to other stroke survivors, they found there were really no support groups available for stroke survivors when they were finally released from hospital. So Frank and Louise decided to ask some of the other survivors if they would meet for coffee and a chat, at first in coffee shops then in different survivor’s residences. This was the beginning of the volunteer organization we are all members of now. Member profiles compiled by Ms. Deb Dukes We had our insight into Deb’s profiling starting with herself and your President Vicky Jones. This is what was spoken by Deb. We are honored to have as our Stroke Recovery President the fascinating Vicky Jones. Her nickname was Tricky Vicky (the reason why is for you to find out). Vicky was born in Vulcan Alberta to a family of five children. Three of her siblings have since passed on but we are still able to enjoy her kind, caring wit and knowledge. Other than Jim, her chosen close friend, who fits into many categories on this page, she only admits to playing the piano and painting ceramics. She travelled to Hawaii and Las Vegas as a young woman and made many trips to Toronto and Montreal on business. Her chosen career started out as a cheque typist and she worked her way through the ranks to senior management in the Insurance business, Like most of us Vicky would like more time in a day and her main goal is to walk again using only a cane. Vicky was very athletic as a young woman playing baseball, basketball, raquet ball and bowling. On January 8, 2003 Vicky suffered a brain aneurysm and following brain surgery, she suffered a massive stroke followed 4 months later by a 2nd bad stroke. Thus began a new phase in her life. She had to move, learn to live alone and her children and granddaughter who had been living with her had to go on their own. Vicky has two children and two grandchildren. Her favorite colors are pink and purple and her favorite season is Autumn. Vicky has lived all over Alberta from Vulcan and Lethbridge to Grand Prairie and Leduc, plus a few others. She takes particular pride in her new career and the work involved with the Stroke Recovery Association, having been on the board for the past 8 years. I hope we all appreciate the time and talent Vicky has brought to our time here. January meetings are as follows: SRAC South will meet for lunch and chat on January the 8th at 11:30 AM at the Carriage House Inn on 90th Ave SE. Our luncheon in December was hampered by a very bad snow and wind storm so only had 12 who braved the storm. As usual a great time was had by all. Unfortunately the Nelsons’ were unable to attend due to another important meeting. They were missed as we were hoping to hear of Ruth’s trip to “The Holy Land”. I guess we will have that pleasure at a future time. The lunch meeting of SRAC North will be on Thursday, January 9th at 11:30 AM at the 264 Legion located on Kensington Road NW. At the December meeting even though the weather was far from normal, we had quite a good turnout of 16 and it was on this day that Deb Dukes offered her first rendition of her new member profiles, starting with one of herself and followed by the one mentioned earlier in this newsletter on our President Vicky Jones. Also the persons attending were asked to fill out a small questionnaire for future information to help Deb create profiles eventually on all members. On Tuesday, December 17th we held our Annual Christmas party at the 285 Legion on Horton Rd SW. We had some 55 members and guests present, had a great buffet meal served and according to the praise I heard enjoyed by all. The MC’s job was shared by Vicky and Gary who were also assisted by Vicky’s granddaughter Nikki who also sang Jingle Bells to us. We were looked after musically by a couple of musicians, a husband and wife team called the Craig West Duo. Craig was born blind but managed to obtain a Master’s Degree in Music from the U of C. He plays several instruments, sings and is accompanied by his wife Angie on the piano. “Great music and great couple!” PRESIDENT’S MESSAGE I hope everyone enjoyed the Christmas party. I thought it was a great success. The weather appears to be going to co-operate fully this Christmas, very mild but still with snow on the ground. At this time we have two members currently in hospital, Bert Jarrett in the Foothills and John Cooper in the Fanning Centre. Both have unfortunately suffered another stroke as if one weren’t enough. Our prayers are with them as they begin once again this grueling journey through stroke recovery. I can only imagine having been through it twice myself that the older one gets, the more difficult the rehab and subsequently the more delayed the positive results. As the end of the year draws near, I would like once again to remind everyone of the dedication and selflessness of the Caregivers. Maybe it seems even more evident to me as my dad has been full time caregiver for the dear woman formerly known as “mom” for the past 10 years as she has slipped further and further into the depths of Alzheimer’s Disease. I see what he goes through on a daily, weekly, monthly and yearly basis and I am always amazed at his resolve. As they approach their 62nd wedding anniversary and my mom’s 78 birthday, having been married since my mom was 16, he very lovingly and patiently cares for her even as she regularly asks him when “her Ken is coming home?” (She thinks it is 1959 and her Ken couldn’t possibly be this aged man sitting across from her). She thinks her 5 children are all still small and is constantly looking for them, even though 3 have since passed on. We have many caregivers in our midst who are totally as dedicated and devoted to their own partners, children, siblings or parents. I also ponder their daily lives in amazement and wonder “where on earth would all of these deserving survivors be without the love and care of these courageous, selfless people who now dedicate their lives to the care and recovery of their loved ones”? Long term care in some cases I have no doubt. And in the most severe cases, what of these caregivers lives when the recipient passes on? By the time this occurs, often the caregiver has lost touch with much of their own life. Many friends tend to pull back through much of the caregiving process and may or may not be there in the end. I am assuming “may not” may be the norm. What will my dad do when he no longer has my mom to look after? How will he then fill his days? I guess in most cases this will never be known until the inevitable occurs. Therein lies the dilemma. In some cases when the disease is so severe or there is little quality of life left, you sure don’t want to see your loved ones suffer but you don’t want to let them go either. Jim Patterson was faced with this daily over several years as he watched his dear wife Vi, deteriorate ever so slowly after suffering 9 strokes over 13 years. Although she only passed away 2 years ago in February, she was on life support for nearly 3 years before that. It was after her first 2 strokes though that she needed constant caregiving as her short term memory was affected. Within our group we have as many examples of exemplary caregivers as we have stroke survivors. In my opinion anyway it is the survivors with the cognitive issues that would cause the most challenges on a day to day basis to the caregiver. In my opinion as well, Asphasia would hold the most challenges for the survivor. As Stroke Survivors we know better than anyone that you must live each day to the fullest and celebrate our victories, no matter how small. I know 3 things for sure. I miss my mom every day as we were very close. Alzheimer’s is a very long grieving period and my dad doubles very well as a mom…my mom. There is a special place in Heaven for Caregivers and we need say thanks for them every single day! Did You Know August has the highest percentage of deaths. M & M chocolates stand for the initials of the Inventors, Mars & Murrie . Pop corn was invented by the Aztec Indians in the 1500s. The average person falls asleep in 7 minutes. Unless food is mixed with saliva you can’t taste it. AGM. On January 21st at Good Companions Club situated at 2609 19th Ave SW. Our Annual General Meeting will be held at approximately 7pm. Pre vented by our Annual “Pot Luck Supper”, this is at 6 pm, any Traditional or Exotic food will be equally acceptable, for members with little or no culinary leanings there is usually plenty for all. Book Transport home 9pm to 9 30 pm. Little reminder for our meetings at Canadian legion establishments throughout the year. Donations of non-perishable foods are always welcomed by “The Veterans Food Bank”. Have a great Recovery and safe New Year, From Jim Patterson, Newsletter Editor. l Need some Jewellery for a loved one or yourself call and see a Jeweler who supports the SRAC yearly by contributing lovely door prizes for our Christmas Party and looks after our personal jewellery needs with expertise and a great deal of knowledge and personal service. See “Ralph” at “Fleetwood Jewellery” 8500 Macleod Trail South 100 Heritage Square on Macleod Trail South next to Co-op. Phone Number # 403 252 8850. Need an old clock repairing, Then call. Rudi Oggier At Tic Toc Clock shop 403 460 4273 Get free quote Agree to price Get clock fixed Free pick up and Delivery. ou can also research articles or find “filler” articles by accessing the World Wide Web. S.R.A.C. Stroke Recovery Association of Calgary. PO Box 5051station A Calgary AB. T2H1X1 Treasurer Larry Jarret President Vicky Jones Vice President Gary McVeigh Asst to Gary, Enid McVeigh. 403 827 7520