Primary & Community Services Care Group Yorkshire & Humber Local Education & Training Board Strategic Initiative – Improving Dignity & Respect in Care October 2012 – March 2013 Jan Blaylock Modern Matron June 2013 ACKNOWLEMENTS : Julie Anthony Support Worker Community Dental Service Paula Crosby Head of Health and Wellbeing Services / Deputy Nurse Director Diane Dorling Graphic Designer,Medical Illustration David Equeall Audio Visual Officer,Medical Illustration Sharon Fitzpatrick Service Manager, Health and Wellbeing Services / Healthcare Governance Lead Sue Gallagher-Clarke PA to Head of Care Closer to Home and Head of Rehabilitation Services Donna Glossop Specialist Nurse,Care Home Support Team Margaret Graham Graphic Designer,Medical Illustration Mandy Higginbottom Head of Interface Services Jackie Homer Transfer of Care Sister,Discharge Team. Tim Hunt Training & Development Officer – Patient Opinion Ltd Bev Moulding Senior Administrator, Healthcare Governance Team Penny Napier Administrator Learning and Development Team Bob Scaife Risk and Governance Support Officer Alexandra Smith Administrator, Care Closer to Home and Health and Wellbeing Services Rachel Smith Senior Facilitator, Clinical Effectiveness Unit Emma Wathall Administrator, Care Closer to Home and Health and Wellbeing Services 1 CONTENTS Page Introduction …………………………………………………………………………….. 3 Objectives ............................................................................................................. 4 Actions: HumanResources .......................................................................................... 4 Communication: Primary and Community Services Patient Engagement & Experience Group ..................................................... 4 Service Development – Registration with Patient Opinion ............................ 5 Service Initiative: Dignity Roadshow ............................................................ 6 Primary and Community Services Dignity Chain ........................................... 7 Primary and Community Services Dignity Chain - Response Themes …….. 8 Primary and Community Services - Recruitment of Dignity Champions …… 9 Conclusion ............................................................................................................ 10 Recommendations ............................................................................................... 11 References ……………………………………………………………………………… 12 Appendices: 1. Yorkshire & Humber Local Education & Training Board Strategic Initiative: Improving Dignity & Respect in Care: Primary and Communtiy Services Action Plan October 2012 – March 2013 ………………………………………… 13 2. Primary and Community Services Patient Experience & Engagement Group Terms of Reference …………………………………………………………………. 15 3. Patient Opinion:Information & Proposal for Sheffield Teaching Hospital NHS Foundation Trust ……………………………………………………………………. 17 4. Budget – Finance Data ……………………………………………………………... 18 5. Dignity Champion Volunteer – Evaluation ………………………………………. 19 2 Intoduction The National Institute for Health & Clinical Excellence (NICE) quality standard for ‘Patient Experience’ states: ‘Patients are treated with dignity,kindness,compassion,courtesy,respect,understanding and honesty’. (2012) Dignity has been linked with patient satisfaction and its maintenance is a key factor used by the Care Quality Commission in the evaluation of quality nursing care.In light of the profound failings at Mid Staffordshire Hospital and the Public Inquiry Report, Sir Robert Frances said ‘Patients are entitled to be the first and foremost consideration of the system and all who work in it...’ (2013). STHFT Corporate Strategy – ‘Making a Difference’ mission statement says ‘…we touch lives at times of basic human need,when our care and compassion are what matters most’. And it promotes adoption of the following values: Patient First - Ensure that the people we serve are at the heart of all we do Respectful - Be kind,respectful,fair and value diversity Ownership - Celebrate success,learn continously and ensure we improve Unity - Work in partnership with others Deliver - Be efficient,effective and accountable for our actions In July 2012 Yorkshire & Humber Local Education & Training Board (YHLETB) launched an initiative called ‘Improving Dignity & Respect in Care’.This provided funding for a limited period between October 2012 and March 2013 to help support services across the region to raise awareness about the importance of providing care that is dignified and respectful. Sheffield Teaching Hospitals Foundation Trust (STHFT) were allocated funding as part of this process,and then gave all its Care Groups opportunity to develop initiatives within their own service areas. In response to this, Primary & Community Services Care Group (P&CS) developed an action plan( see appendix 1) This report provides progress and achievements made against this plan.It also provides data analysis of patient and staff opinion,an evaluation of dignity champion volunteer experience and makes recommendations in terms of securing commitment and maintaining momentum to help services develop and implement dignity preserving strategies,which have potential to improve the overall experience of our patient care. 3 Objectives The action plan overall objectives were as follows: Improve communication infrastructure to support and progress the dignity and respect agenda through out STHFT. Promote engagement by providing opportunity to listen to patients and staff to help develop our understanding of what dignity means to different people. Positively influence future planning of care by identifying and sharing good practice. Encourage open dialogue between patients and services by investment in patient feedback mechanisms. Support staff learning and education by developing professional and sustainable training resources. Actions The action plan provided enhanced focus on key areas including Resources,Communication,Service Development and Service Initiative: Human Human Resources Band 7 – Modern Matron hours were increased by 7.5 per week for a temporary period from October 2012 to March 2013 Band 3 – Admin Support 7.5 hours per week commenced for a temporary period from October 2012 to March 2013 Band 2 – Support Worker 7.5 hours per week commenced for a temporary period from January to March 2013. Communication Dignity & respect work streams were reorganised and are now being progressed under ‘Patient Experience & Engagement’ agenda. P&CS ‘Patient Engagement & Experience Group’ has been established with membership from relevant service and former Dignity & Respect Steering group. P&CS Patient Engagement & Experience Group - Terms of Reference have been agreed (see appendix 2) and dignity and respect workstreams incorporated into Patient Experience & Engagement annual plan. Progress updates have been provided to P&CS Healthcare Governance Group, STHFT Equality & Human Rights Operational/Strategic Group and Patient Experience Committee Work has commenced developing P&CS web page.Dignity & Respect information is being incorporated into this process,with a view to establishing a dignity & respect web page in due course P&CS Dignity Champion data base has been developed.This is currently located on P&CS Ldrive and will be moved to the P&CS web home page when available 4 Service Development – Registration with Patient Opinion The drive towards delivering patient centered care and a competitive healthcare market,means that providers of care are increasingly keen to understand more about the experience of their patients.This patient insight can inform activities to improve overall patient experience and the quality of the care delivered. As part of the action plan, P&CS have undertaken research to explore some of the services available to obtain patient experience information. NHS Choices provide information about healthcare services and a forum for patients to share stories of their experience.While acute healthcare services and GP practices nationwide are listed on the website,unfortunately there is no current provision for individual Community Services, so an alternative option was sought. ‘Patient Opinion’ is a website service where the public can share their experience of local health services.The website allows staff to ineract with patients to help improve care. It is a not-for-profit social enterprise,which helps improve dialogue between patient and health service providers.Patient Opinion are keen to evolve their website to include individual Community Services,to ensure patient feedback mechanisms are available across the healthcare pathway. In light of this,investment has been made to register P&CS Community Nursing service with Patient Opinion (see appendix 3) A 12 month pilot is being organised with 2 teams from Community Nursing service.This pilot will give P&CS the opportunity to obtain patient feedback from housebound patients and will comprise of the following service: Nominated services to be added to the Patient Opinion website Nominated staff set up with email alerts and reporting functions Tag application for specific team feedback Tag application for feedback relating to dignity & respect 5 Provision of forms for electronic,written and phone feedback Provision of Resource and Guidance pack Provision of training for nominated staff Service Initiative – Dignity Roadshow In 2006 the DH launched the ‘Dignity in Care Campaign’ .The aim of the campaign is to inspire health & social care staff and local people to place dignity and compassion at the heart of care services and communities.The campaign is about ‘winning hearts and minds,changing the culture of care services and placing greater emphasis on the ‘quality’ of our care provision’ In the UK,there are now over 40,000 people registered as ‘Dignity Champions’.Dignity Champions are people who believe that being treated with dignity is a basic human right,not an optional extra.Each Dignity Champion’s role varies depending on their knowledge and influence and type of work they are involved in.But the role need not be onerous,there are small things people can do that have a big impact.For exampe,simply commending staff on a personal level for respecting dignity helps the campaign. Every year ‘Dignity Action Day’ gives people the opportunity to promote dignity in their communities and place of work.DH Dignity in Care Ambassador,Dame Joan Bakewell said ‘’ Dignity Action Day highlights a more respectful way of behaving towards vulnerable people.The very old and the very young clearly need our respect,but it wouldn’t do any harm to spread the dignity message across the population - then we all can benefit’’ In support of DH Dignity in Care Campaign – Dignity Action Day,P&CS arranged a ‘Dignity Roadshow’.The roadshow was developed to help : Raise awareness around the importance of providing dignified and respectful care. Promote DH Dignity in Care Campaign. Develop a dignity network by recruitment of Dignity Champions. Obtain staff and patient opinion related to dignity & respect. Identify and share good practice that promotes dignified and respectful care. Develop professional and sustainable dignity & respect training resources. In collaboration with STHFT Medical Illustration Department,a variety of professional and thought provoking resources were developed for the roadshow, including desk top materials, powerpoint presentation,CD and portable poster displays.These promote DH Dignity in Care Campaign, and patient feedback initiatives i.e. STHFT ‘Tell us what you think…’ leaflet and ‘Patient Opinion’. 6 The Dignity Roadshow visited various Community Service bases between 10am – 4pm over a 2 week period on the following days : Jordanthorpe Health Centre – Monday 25 February 2013 Beech Hill Intermediate Care Facility – Wednesday 27 February 2013 Lightwood – Mon 4th March 2013 Firth Park Health Clinic – Wed 6th March 2013 Manor Health Clinic – Fri 8th March 2013 Each venue posed different challenges in terms of accomodating the roadshow equipment and itinery. However, resident staff were extremely helpful and most resourceful in ensuring the roadshows were well received and fully supported. A timetable was developed and a team of dignity champion volunteers from a variety of Community Services kindly donated their time to help support the roadshows. Volunteers were issued with STHFT Dignity Champion T shirts and assisted with the following roadshow activities : P&CS Dignity Chain People were offered free refreshments and the gift of time with a free ‘Shoe Shine’ ! They were then offered time to consider ‘what does dignity mean to you?’and put their responses onto ‘people shaped cards’ to create our very own‘Dignity Chain’. 7 The Dignity Chain proved to be a lively initiative and successful in engaging with staff and patients and generated considerable thought provoking discussion.People were really keen to share their professional views and personal stories.During the initiative we received a total of 220 responses,creating an impressive 33 meters of P&CS Dignity Chain! An analysis of all the responses received,confirmed that dignity is a subjective concept and means different things to different people,and this can vary at different times in peoples lives.However,general themes also emerged from the responses that suggested there was an overall consensus of understanding and opinion. Dignity Chain – Response Themes 25% Treated as an individual 6% 5% 21%Kindness / compassion 25% 6% 18%Treat others as wish to be treated yourself 10% 13%Communication / listening 12%Maintaining privacy 12% 21% 12%Respecting other people's values 10%Politeness / courtesy 12% 6%Maintaining independence 18% 13% 6%Feeling valued 5%Offering choices Examples of Responses: ‘Dignity is the thing you cant see,but need to preserve...treating people with respest...preserves dignity’ ‘Dignity is having my wishes respected,being taken seriously,having opportunity to express myself and make a contribution to my community so that I feel valued’ ‘Having dignity recovery’ means being comfortable,being comfortable means swift ‘Ask + Listen + Understand + Act = Dignity’ 8 P&CS Dignity Champion Recruitment As part of the roadshow,people were also asked to consider the ‘DH 10 Point Dignity Challenge’ and were then given the opportunity to register as a ‘P&CS Dignity Champion’.Dignity champions are people who, in their own way,are committed to helping develop care services that are not only efficient,but are also compassionate and respectful aswell. The overall response to the recruitment of dignity champions was very positive.However, a few people did express concerns about the potential of extra responsibilities that maybe associated with the role.Ressurance was given to people that the role of a dignity champion need not be onerous.The Dignity in Care Campaign boasts ‘there are many small things we can do, that will positively influence our patients experience of health and social care’. Dignity champions were given a variety of information about the campaign and associated resources and training materials that are available from its website www.dignityincare.org.uk They were also given ideas for promotional events and ways of developing dignity preserving strategies at both operational and organisational level. During the roadshow,P&CS recruited an impressive total of...169 Dignity Champions! 9 Conclusion P&CS action plan for utilising the funding from YHLETB Strategic Initiative – Improving Dignity & Respect in Care, has provided P&CS with an excellent opportunity to review its current arrangements for progressing the dignity & respect agenda and improve its communication infrastructure to support this. A considerable amount of comittment,thought and effort has been undertaken by numerous staff from a variety of services and disciplines to successfully deliver this plan.It was completed on time and within its designated budget (see appendix 4) and achieved the following: P&CS Patient Experience & Engagement Group has been established creating an appropriate forum to discuss and progress the dignity & respect agenda. Substantial investment has been made to register P&CS with ‘Patient Opinion’ website service. The pilot with Community Nursing service will provide a structured process to receive feedback specifically related to dignity from housebound patients, and offer staff opportunity to respond and interact with its patients,to help inform and improve quality of care provision. Professional dignity & respect training materials and promotional resources have been developed and designed specifically for STHFT.These versatile and portable resources have been created to be sustainable and are now available for use within other services areas across the trust. A significant scoping exercise has been undertaken to obtain patient and staff opinion to understand peoples individual perception of dignity.This has helped provide a benchmark for P&CS,with useful data which can be used to influence future dignity preserving strategies. A remarkable amount of staff agreed to register as a Dignity Champion,demonstrating their interest and commitment to the essential principles of health care. A P&CS Dignity Champion data base has been developed, providing an excellent forum for all these staff to network and share inovative practice that promotes dignified care. An evaluation of the Dignity Champion volunteer role at the dignity roadshow event has been undertaken using Survey Monkey, and has provided extremeley positive feedback in terms of overall experience and associated learning (See Appendix 5). This action plan has now been entered on DH Dignity in Care website www.dignityincare.org.uk and registered as STHFT activity for ‘Dignity Action Day – 2013’ and is considered as a shared resource to help inspire others. This action plan embraces STHFT ‘PROUD’ values and may be used as evidence to measure against quality improvement for Care Quality Commission and Commissioning for Quality Innovation (CQUINS) Payment Framework. Delivery of this action plan has been successful in raising awareness and generating thought provoking debate with staff and patients around the importance of providing dignified care. 10 Preserving dignity evokes a very personal response.Overall people seem very clear about what dignity means to them as individuals and common themes have been identified. It is also clear that there are many barriers to preserving dignity, and entering the healthcare system can challenge this and lead to people feeling undervalued and vulnerable. However, during this time, we have also identified a ‘most caring workforce’. They are interested,willing and committed to help improve the quality of service for their patients.Its now vital we maintain momentum and secure this commitment and nurture the potential of P&CS Dignity Chain. Recommendations Promote and utilise P&CS Patient Experience & Engagement Group as a ‘dignity forum’ to share dignity preserving strategies. Encourage dignity champions to utilise pool of dignity & respect materials/resources and undertake dignity awareness initiatives within their own service areas. Encourage and support dignity champions to identify and develop dignity preserving strategies within their own service areas. Develop dignity & respect in-service training awareness sessions that provide staff with opportunity for reflective practice using ‘Patient Stories’. Consider and explore possibility of implementing NHS Institute for Innovation and Improvement – ‘The 15 Steps Challenge – Quality from a Patients Perspective’. Report prepared by : Jan Blaylock, Modern Matron On behalf of : Paula Crosby Deputy Nurse Director and Head of Health and Wellbeing Services 30 May 2013 11 References National Institute of Health & Clinical Excellence – Quality Standards – CG 138 Information for People who use NHS Services – Standard for Patient Experience in Adult NHS Services (2012) The Mid Staffordshire NHS Foundation Trust – Public Inquiry-Press Statement (2013) Robert Francis QC. Sheffield Teaching Hospital NHS Foundation Trust – Making a Difference – Corporate Strategy 2012-2017 NHS Institute for Innovation and Improvement – The 15 Step Challenge - Quality from a Patients Perspective (2012) 12 Appendix 1 STHFT Primary & Community Services Care Group Dignity & Respect Action Plan - Incorporating Yorkshire & Humber Local Education & Training Board funding. This action plan compliments the P&CS Care Groups current Dignity & Respect Action Plan 2012 / 2013 providing enhanced focus on specific areas for a limited period between October 2012 and March 2013 Objectives Raise awareness/enhance focus around the dignity & respect agenda Obtain staff and patient opinion related to dignity & respect issues Identify current practice that actively promotes dignified & respectful care and share throughout the P&CS Care Group. Actions Protected Time Band 7 - Modern Matron hours increased by 7.5 for temporary period from October 2012 to March 2013 Band 3 - Admin support 7.5 for temporary period from November 2012 to March 2013 Band 4 - Link Worker 7.5 support for temporary period from Dec/Mar 2013 Communication Reorganise and progress dignity & respect work streams under ‘Patient Experience & Engagement’ agenda Establish P&CS Care Group ‘Patient Engagement Group’ with membership from relevant service and former Dignity & Respect Steering Group Promote DH Dignity Campaign and obtain Dignity Champion representation for each Business Unit Add all new Dignity Champions to DH data base and P&CS Care Group data base Provide P&CS Care Group Risk & Governance Group with quarterly progress update Provide update for Learning & Development Newsletter Create P&CS Dignity & Respect web page. Scoping Exercise All Community Services to undertake baseline assessment of current practice which promotes dignified & respectful care Promote use of STHFT ‘Tell us what you think’ leaflet among all Community Services via Dignity Champion network Register P&CS Care Group with ‘Patient Opinion’ and promote its use among all Community Services via Dignity Champion network 13 Awareness Initiative Develop and launch P&CS Care Group – ‘Dignity & Respect Road Show’ This will incorporate display stands with professional resources promoting the ‘DH Dignity Campaign’ and the recruitment of ‘Dignity Champions’. A programme of visits to various Care Group locations and specific promotional events will be developed. The road show will also include the following initiatives: ‘Gift of Time - Shoe Shine!’. In exchange for registering as Dignity Champions, staff and patients will be offered the gift of time with a free shoeshine. ‘Dignity Chain’ – Staff and patients will be offered the opportunity to consider what dignity & respect means to them, and then be asked to put their responses on ‘people shaped cards’ to create our very own Dignity Chain. Services will be given the opportunity of creating and promoting their own Dignity & Respect initiative at local level. Outcomes The initiative will inform and support P&CS Care Group quality improvement against outcomes for CQC and CQUINS. Establishing P&CS ‘Patient Engagement Group’ and developing the Dignity Champion network will provide robust infrastructure to progress the dignity & respect agenda effectively throughout the Trust. Investment in professional materials will ensure resources are sustainable and available for future dignity & respect awareness initiatives throughout the Trust. Engagement with patients/staff and the sharing of good practice will develop our understanding of dignified & respectful care, influencing future action plans, leading to enhanced patient care and experience. The initiative will be registered as the P&CS Care Group activity for the DH Dignity Campaign - ‘Dignity Action Day 2013’. Prepared by: Jan Blaylock – Modern Matron On behalf of : Paula Crosby – Head of Well Being & Deputy Nurse Director Date : 19th November 2012. 14 Appendix 2 P&CS Patient Experience & Engagement Group – Terms of Reference SHEFFIELD TEACHING HOSPITALS FOUNDATION TRUST TERMS OF REFERENCE NAME OF GROUP TYPE OF GROUP COMMUNITY PATIENT EXPERIENCE AND ENGAGEMENT GROUP Management group Purpose of the Group 1 2 To ensure that the engagement of patients is an integral part of practice for all staff and services within the Primary and Community Services Care Group. Objectives of the Group To ensure that the people we care for are treated with respect and to maintain their dignity. To develop, deliver & monitor patient engagement action plan. To be advocates for patient engagement activities within the Care Group. To disseminate and implement good practice. To develop & identify tools to monitor Care Quality Commission outcomes: 1: Respecting & involving people who use services 7: Safeguarding people who use service from abuse 10: Safety & Suitability of premises To ensure the focus of the group is in line with national policy drivers: NHS Outcomes Framework (2012-13 and 2013-14) Domain 4 ‘Ensuring that people have a positive experience of care’ and it’s 9 improvement areas. DH Patient Experience Policy Programme. To be aware of any new guideline in development for patient engagement and experience (NICE). To refer to recommended resources for work undertaken such as: NHS Institute for Innovation and Improvement: http://www.institute.nhs.uk/patient_experience/guide/the_policy_framework.html NHS Quality Board: Patient Experience Framework. 15 3 Membership Chair : Mandy Higginbottom ( Head of Interface Services) Jan Blaylock : (Modern Matron) Andy Niblock (PCASS) Lynette Hall (Matron) Ros Neal (IT) Lisa Farndon (Podiatry) Gill Agar (Physiotherapy) Keith Gower (Performance) Catherine Firth Sue Hunter (Matron) Adele Eckherdt Sue Barnston (Stroke Nurse Specialist) Brian Hodges (Patient Representative) Anne Rutland (Evening and Night Service) Marie Dixon Liz Eaton (GP Collaborative) Mike McCrave (PCASS) Mirriam McCheleka Karen Rodgers (ICT Nurse Lead) Jayne Stocks Wesley Vernon (Podiatry) Carole Wraith (ICT Nurse Lead) Rebecca Wheater (Physiotherapy) Sue Blakemore (Case Manager) 4 Quorum There must be 10 members of the group in attendance with the chair or nominated deputy chair present 5 Frequency of Meetings Bi monthly and ad hoc meetings to be called when necessary. 6 Accountability Accountable to Primary & Community Services Risk and Governance Group. 7 Inception of group and review responsibilities Date of group inception January 2010 Date of last review in terms of membership January 2010 Name of Chair/Lead who is responsible for reviewing terms Mandy Higginbottom Date of next review October 2013 16 Appendix 3 Patient Opinion Information for professionals Thousands of people are sharing their stories about their experiences of health services on Patient Opinion. Hundreds of organisations are listening and responding to their patients on our site. Millions are reading these conversations. Do you know what your patients are saying about you? What does Patient Opinion do? Patient Opinion is a website where the public can publish their experiences of local health services. The website allows health service staff to interact with these patients to help improve care. Patient Opinion is a not-for-profit social enterprise. We exist to help improve dialogue between patient and health service providers and to improve health services. How does it work? Members of the public anonymously post a story (positive or negative) on the website about a local health service (we have their email address, but you wont know who they are). Our highly experienced team moderates all stories to ensure they are not defamatory for any member of staff. Health service staff can then be alerted when a story is posted about the health service, ward or department that they are interested in. The organisation can then publish a response to the story on the website Proposal for Sheffield Teaching Hospitals Community Services These are the main elements of the support available from Patient Opinion to support Sheffield Teaching Hospitals Community services work on “dignity and respect”. 1. Patient Opinion would build nominated services onto the site, in a way which will be most accessible for both patients and staff. All feedback will be tagged to that service. 2. Patient Opinion will set up as many staff as required with email alerts and reporting functions so that staff can easily see, respond to and report on all the feedback generated. Postings will be tagged appropriately with dignity, respect or any other chosen tags. 3. Patient Opinion will provide coded feedback leaflets for patients and carers to submit feedback as an alternative to going online. 4. Patient Opinion will provide a resource pack with guidance on responding, generating feedback and administering the website. They will also provide WEBEX training and telephone support to up to 5 key staff. 5. Patient Opinion will provide a workshop with key staff and any other stakeholders to scope out posting generation, share ideas and experiences and help set key targets for the work. 6. Patient Opinion will help monitor and review the progress of the work and provide links with work in other areas where appropriate. For example current work with the RCN around nurse education. 17 Appendix 4 Yorkshire & Humber Local Education & Training Board Strategic Initiative – Improving Dignity & Respect in Care. Budget – Finance Data £ Staff Management Admin Support 4672 1323 Sub Total Road show & other events Printing & Stationery Hobbycraft supplies Display Boards Patient Opinion Registration T Shirts Refreshments SPA Vouchers Miscellaneous 1741 102 1754 3000 223 40 60 65 Sub Total Total Expenditure Refunded Grand Total 5995 6985 12980 2000 14980 18 Appendix 5 Dignity Champion Voulunteer –Survey Feedback 19 20 21 22 23 24 25 26 27