L O Y O L A U N I V E R S I T Y C H I C A G O S C H O O L O F L AW Emily A. Benfer Clinical Professor of Law; Director, Health Justice Project ebenfer@luc.edu AGENDA FOR TODAY 1. Community Need: Social Roots of Health 12:00 – 12:15 p.m. 2. Interdisciplinary Response to Improve Health of Low-Income Individuals 12:15 – 12:30 p.m. 3. Health Justice Project Outcomes 12:30 – 12:35 p.m. 4. Case Study 12:35 – 12:45 p.m. 5. Application 12:45-12:50 p.m. 6. Questions & Discussion 12:50-1:00 p.m. 2 1. COMMUNITY NEED S O C I A L R O O T S O F H E A LT H FEDERAL POVERTY THRESHOLDS & GUIDELINES 2013 Federal Poverty Guidelines 2011 Federal Poverty Thresholds Family Size Extreme Poverty (049% FPL) Poverty (0-99% FPL) Low Income (100-199% FPL) Poverty – Annual Income 1 $5,742 $11,484 $22,968 $11,490 2 $7,329 $14,657 $29,314 $15,510 3 $8,958 $17,916 $35,832 $19,530 4 $11,511 $23,021 $46,042 $23,550 Source: Federal Register, Vol. 78, No. 16, January 24, 2013, pp. 5182-5183; United States Census Bureau SOCIAL ROOTS OF HEALTH DISPARITIES IN CHICAGO • 1,513,538 people or 57% at or below the poverty line in Chicago • 3rd highest rate of extreme poverty in the nation at 10.4% Source: Heartland Alliance, Illinois’s 33%: Report on Illinois Poverty (January 3013) SOCIAL ROOTS OF HEALTH DISPARITIES IN CHICAGO Poor Housing Conditions • • • • • Lead poisoning Asthma Physical and Mental Disabilities Developmental Delays Injury Lack of Income (Public Benefit/Disability Denials) • • • • • Hunger and Malnutrition Low-birth Weight Developmental Delays Chronic Health Conditions Depression • 81,000 children harmed by lead paint • Higher asthma mortality rate and double hospitalizations than rest of U.S. • 383,954 Chicagoans live in a food desert • 581,558 (20.6%) people are food insecure • 124,228 children live in food desert(enough children to fill 2,484 school buses) • Large immigrant population SINGULAR APPROACH TO HEALTH “Medicine, if it is to improve the health of the public, it must attend at one and the same time to its biologic and to its social underpinnings. It is paradoxical that, at the very moment when the scientific progress of medicine has reached unprecedented heights, our neglect of the social roots cripples our effectiveness.” • Dr. Paul Farmer paraphrasing Dr. Rudolf Virchow, • 19th Century German Physician OVERWHELMING LEGAL NEED Attorney to Potential Client Ratio Legal Aid Attorney Private Attorney = 200 people SILOS BETWEEN PROFESSIONS • Lack of interdisciplinary collaboration • Assumptions about other professions • No referrals 9 2. INTERDISCIPLINARY RESPONSE T O I M P ROV E H E A LT H O F L OW- I N C O M E I N D I V I D UA L S COMPONENTS OF RESPONSE • Interdisciplinary partnership to address whole patient • Early identification of health-harming legal issues before they proliferate • Engage in preventative lawyering and advocacy • Surface systemic issues and engage in policy reform • Train students of law, medicine, social work and public health to work together to address health disparities among low-income populations 11 INTERDISCIPLINARY EXAMPLE: HEALTH JUSTICE PROJECT To address poverty and achieve health justice through social, legal and systemic solutions by • Providing students of Law, Medicine, Public Health and Social Work with an intensive, challenging education in the fundamentals of practice, effective problem-solving, leadership, and interdisciplinary collaboration; • Collaborating with other disciplines, community members, advocates and stakeholders to employ a comprehensive approach to eliminate social determinants of health; • Shaping public policy to create health justice; • Providing highly effective, quality legal representation to low-income individuals to address health harming legal and social issues; and • Promoting best practices to achieve widespread social change Interdisciplinary Collaboration to Improve Community Health Public Health (Loyola) Loyola University Chicago/Beazley Institute for Health Law and Policy Erie Family Health Center Equip for Equality Law Community Health AIDS Legal Council of Chicago Lawyers’ Committee for Better Housing Medicine Northwestern McGaw Family Medicine Residency Program Loyola School of Medicine Legal Allies Social Work (Loyola) Addressing Health-Harming Legal Needs • Income– applications, medical debt forgiveness • Housing–conditions, utilities eviction defense, homelessness • Education–disabled, pregnant and homeless students •Appeals–public benefits and disability denials •Legal Referrals to Partners and Allies Policy Advocacy Partnerships to Develop National Policy Creation of Local Policy Recommendations Use of Creative Advocacy Tools Health 3. HEALTH JUSTICE PROJECT OUTCOMES SELECT OUTCOMES • Trained over 200 health care providers in identifying health harming legal needs and health advocacy • Addressed approximately 1,200 legal issues for patients/clients • Contributed equivalent of over $4 million in attorney’s fees • $600,000 in medical debt forgiveness • $550,000 in Medicaid reimbursement • $200,000 in Social Security Disability income • 100% success on Social Security Appeals • Reduced housing expenses by $38,000 • Created interdisciplinary teams to address local and national policy issues RESULT: BREAK DOWN SILOS • Source: National Center for Medical-Legal Partnerships 19 4. CASE STUDY CASE STUDY: HJP V. THE RATS Health Symptom Underlying Environmental Issues • 1 year-old infant coughs, wheezes, falls in and out of sleep • Mother explains apartment is infested with rats (rat feces on the floor, the furniture; rat in baby’s crib) • Entire 72-unit building is infested with rats • All tenants share 3 copies of the front door key • Child is getting worse by dayis abusive • Father of the child Underlying • Mother will not discuss the abuse Social Issues • Family members are undocumented immigrants Meanwhile, the child is getting worse by the day! 21 CASE STUDY: HJP V. THE RATS • What do you do? • Who do you want on your team? • How do you prioritize possible responses? 22 CASE OUTCOME: HJP PREVAILS! Social Work Team Members counseled mother on domestic violence issue and assisted with housing search Legal Team Members protected family’s right to vacate the unit without penalty and negotiated return of security deposit and damages Medical Team Members continued to monitor child’s respiratory distress (marked improvement) Partners worked to identify other tenants in building and possible interventions 23 5. SUMMARY & APPLICATION CONCLUSION The Problem • Low-income individuals and families encounter negative health outcomes at a higher rate than the rest of the population • All legal aid clients are at risk of poor health outcomes • Majority of health problems among low-income individuals require more than medical intervention • Current system forces attorneys to become “Downstreamers” The Solution • Early identification to meet the client before problem proliferates • Interdisciplinary and “whole” patient intervention (say no to the silo!) • Surface patterns • Collaborate on policy reform 25 APPLICATION • Know your motivation (What drives you toward social change?) • Identify the problem and root causes • Identify what victory looks like • Conduct a stakeholder analysis • Be creative; use all your advocacy tools • Join forces 6. QUESTIONS & DISCUSSION L O Y O L A U N I V E R S I T Y C H I C A G O S C H O O L O F L AW Emily A. Benfer Clinical Professor of Law; Director, Health Justice Project ebenfer@luc.edu