Cultural Competency and Adolescent Health Objectives Discuss the relationship between culture and health in the context of adolescent-friendly services Describe the intersection of patient-centered care and cultural competency Utilize the framework of cultural humility to minimize provider bias and optimize health outcomes The Culture of Adolescence Peer dependent Egocentric Distinct language and dress Influenced by popular culture Ongoing search for identity The Growing Diversity of the Adolescent Population 1990 2050 75.7 52.7 21.1 11.8 15 10 9 3 Non-Hispanic White Non-Hispanic Black Asians Hispanics An Adolescent’s Identity Includes Race and Ethnicity Religion/Spirituality Genetics Socioeconomic Status Geography Peer Group Ability Stage of Development Gender Identity Sexual Orientation Family Structure “Minority” Status in One or More Aspects of an Adolescent’s Identity Can Affect How and where health care is sought Ability to obtain and pay for quality care Patient-health care provider interaction Societal stereotyping and marginalizing Lack of Insurance Young Adults aged 19-25: 22.6% uninsured 2nd-highest uninsured age group under 26- to 34-yearolds (23.5%) Teens and children under 19: 7.6% uninsured Teens and children under 18: 7.3% uninsured US Census Bureau (2013) Lack of Insurance = Lack of Care Uninsured adolescents are: Less likely to receive medical care Less likely to have a usual source of care More likely to experience long wait times More likely to be low income and of color Insured adolescents visit a physician’s office twice as often as uninsured teens. Barriers to Care: Provider Attitude Lambda Legal survey through partner organizations, 4,916 LGB respondents, 2009 Almost 8% of LGB and 27% of transgender and gender nonconforming reported being denied care because of their identity/orientation 11% reported that providers refused to touch them or used excessive precautions Transgender and gender nonconforming respondents reported facing discrimination and barriers to care 2-3 times more frequently than LGB respondents 16. Lambda Legal (2010) Youth of Color Face Barriers to STI/Pregnancy Prevention Cultural barriers to consistent condom use for Latinas Machismo Catholicism’s opposition to birth control Cultural expectation to be submissive Memories of medical abuses and mistrust of U.S. government Hampers HIV education in some ethnic communities http://www.advocatesforyouth.org/storage/ advfy/documents/transitions1503.pdf Youth of Color Face Barriers to STI/Pregnancy Prevention Higher rates of medical indigence than white youth Financial, cultural, institutional barriers in obtaining health care Publicly funded health insurance provides limited access to comprehensive, adolescent-friendly health services High levels of worry about AIDS among urban minority adolescents Greater concerns: housing, food, transportation, child care, getting pregnant, street violence http://www.advocatesforyouth.org/storage/ advfy/documents/transitions1503.pdf Barriers Lead to Health Disparities Higher incidences of sexual risk behaviors Higher rates of Pregnancy STIs Delayed medical care For Example… LGB Youth Sexual Behaviors Disparities in Teen Pregnancy Rates Persist Birth Rates, Females Aged 15-19, U.S. 1991-2013 National Vital Statistics System. July 2014. Teen Birth Rates by State Pregnancy Rates: U.S. vs. CHOICE N Engl J Med 2014;371:1316–23 Gonorrhea: Rates by Race/Ethnicity, United States, 2009-2013 CDC STD Surveillance Report 2013 Chlamydia: Rates by Race/Ethnicity, United States, 2009-2013 CDC STD Surveillance Report 2013 Chlamydia: Rates by State, United States and Outlying Areas, 2013 CDC STD Surveillance Report 2013 Primary and Secondary Syphilis: By Sex, Sexual Behavior, and Race/Ethnicity, United States, 2013 CDC STD Surveillance Report 2013 Herpes Simplex 2: Seroprevalence by Race, Sex, and Age Group CDC STD Surveillance Report 2013 Women who Have Sex with Women (WSW) STI Risk Nationwide, 6,935 self-identified lesbians 17.2% reported past history STI Increased Risk • Trichomonas • HPV • Bacterial vaginosis • HIV Consequences of Barriers 1 out of 2 LGBT adults withheld their sexual orientation from a provider 1 of 4 withheld information about sexual practices (5 times more than heterosexual peers) Harris Poll (2002 & 2003). Gran JM et al (2011). Krehely J (2009). How Can Providers Improve These Health Outcomes? Strategies for Providing Optimal Care Cultural Competency Cultural Humility Adolescent-Centered Care Cultural Competency Movement to address health disparities through provider education Trainings often required by many funders, accreditation bodies, and institutions Most Common Definition of Cultural Competency Cultural and linguistic competence: A set of congruent behaviors, attitudes, and policies that come together in a system, agency, or among professionals that enables effective work in crosscultural situations. (Cross, et al. 1989) Cultural Competence: Strengths Brings culture into the discussion about manifestation of disease and notions of health Encourages providers to learn about cultures of patients served Supports respect for cultural differences and diversity Cultural Competence Provider Guidelines Increase knowledge about how culture influences behaviors and outcomes Develop an awareness of providers’ and patients’ cultural issues and their effect on the medical encounter Understand the importance of appropriate language and the use of interpreters Framework for Cross-Cultural Care Cultural Competency in Practice Listen to the patient's perception of the problem Explain your perceptions of the problem and your strategy for treatment Acknowledge and discuss the differences and similarities between these perceptions Recommend treatment while remembering the patient's cultural parameters Negotiate agreement. Understand the patient's explanatory model so medical treatment fits in cultural framework Berlin EA, Fowkes WC.1983 Efficacy of Cultural Competence Programs Patient-centered care (PCC) models with a cultural competence framework have been shown to: 1. Increase provider’s knowledge 2. Increase provider’s awareness 3. Increase provider’s cultural sensitivity One 10-week medical Spanish course for pediatric emergency department physicians showed: 1. Decreased use of interpreter services 2. Increased patient satisfaction with physician concern, respectfulness, and listening/communication. A.M.N. Renzaho et al. 2013. Mazor, et al. 2002. Weaknesses in “Cultural Competency” Not clearly defined Denotes attainment of concrete level of knowledge Risks cultural stereotyping Focus on others instead of reflecting on individual and organizational biases and prejudices Cultural Competency and Adolescent Health What does is it mean to provide culturally competent care to adolescents? How does the “culture of adolescence” differ from commonly held notions of culture? How does the culture of adolescence interact and coexist with racial and ethnic cultures? Building On Cultural Competency: Cultural Humility Cultural Humility Puts onus on provider to self-evaluate how personal biases may affect service delivery Redresses power imbalances in patientphysician dynamic Tervalon and Murray-Garcia, 1998 Health Care Providers’ Identities Race and Ethnicity Profession Marital Status Parental Status Sexual Orientation Training Background Gender Identity Age Medical Specialty Religion Issues to Confront Before Seeing an Adolescent Patient How comfortable are you talking to adolescents? What are your feelings/beliefs about adolescent sexuality? Are you able to separate your own values in order to treat your patient? Self-Evaluation During a Clinical Encounter How do you react when confronted with a patient situation that does not fit your expectations? Does the situation provoke feelings of anxiety and discomfort? Are you able to assess what is going on within yourself as well as within the patient? www.diversityRx.org Cultural Competence and Cultural Humility Combined: Adolescent-Centered Care Elements of Adolescent-Centered Services Adolescent-specific Multi- and interdisciplinary Accessible Financially affordable Adolescent-focused materials on display Peer educator component Adequate space Confidential Flexible scheduling Comprehensive services Continuity of care Help transitioning into the adult medical care system Providing Care to Adolescents Confront personal biases head-on Be prepared to refer patient for appropriate care if unable to provide it Adolescent-Centered Care Assure confidentiality Invite parents to wait in waiting room Explain why you will be asking sensitive questions Treat each patient as an individual, acknowledging all the interacting forces that make him/her unique Ways to Provide Adolescent-Centered Care Ask a question and listen to the response! Wait 30 seconds until you speak after each question Answers will help identify how culture interacts with patient’s health decisions Utilize HEEADSSS Comprehensive HEEADSSS H: Home E: Education/Employment E: Eating A: Activities D: Drugs S: Sexuality S: Suicide/depression S: Safety *Additional questions: Strengths, Spirituality Klein DA, Goldenring JM & Adelman WP. Contemporary Pediatrics. 2014. SHEEADSSS S: Strengths/Spirituality H: Home E: Education/Employment E: Eating A: Activities D: Drugs S: Sexuality S: Suicide/depression S: Safety Klein DA, Goldenring JM & Adelman WP. Contemporary Pediatrics. 2014. Strengths-Based Approach Identify strengths early Look for examples of past difficulties that your patient has successfully overcome Praise Use reflective listening and pause Create a comfortable, trusting, nonjudgmental setting Share your concerns Wrap Up Emphasize that your approach is nonjudgmental and that you welcome future visits “I’m here for you, and I want you to feel comfortable confiding in me. If you have something personal to talk about, I’ll try to give you my best advice and answer your questions.” Provider Resources and Organizational Partners www.advocatesforyouth.org—Advocates for Youth www.aap.org—American Academy of Pediatricians www.aclu.org/reproductive-freedom American Civil Liberties Union Reproductive Freedom Project www.acog.org—American College of Obstetricians and Gynecologists www.arhp.org—Association of Reproductive Health Professionals www.cahl.org—Center for Adolescent Health and the Law www.glma.org Gay and Lesbian Medical Association Provider Resources and Organizational Partners www.guttmacher.org—Guttmacher Institute janefondacenter.emory.edu Jane Fonda Center at Emory University www.msm.edu Morehouse School of Medicine www.prochoiceny.org/projects-campaigns/torch.shtml NARAL Pro-Choice New York Teen Outreach Reproductive Challenge (TORCH) www.naspag.org North American Society of Pediatric and Adolescent Gynecology www.prh.org—Physicians for Reproductive Health Provider Resources and Organizational Partners www.siecus.org Sexuality Information and Education Council of the United States www.adolescenthealth.org Society for Adolescent Health and Medicine www.plannedparenthood.org Planned Parenthood Federation of America www.reproductiveaccess.org Reproductive Health Access Project www.spence-chapin.org Spence-Chapin Adoption Services Please Complete Your Evaluations Now