Windows to Success: Developmental Screening In the Early Years Jane Squires, Ph.D. Chile Grows With You November, 2008 Santiago, Chile Jsquires@uoregon.edu Objectives What is risk in early development? What is the importance of early identification? Why screen young children? Risk factors Factors that hamper typical development in young children Environmental • Poverty • Teen parents • Abuse/neglect Biological • Low birth weight Identified/established delays • Down syndrome Cumulative Effects of Risk Sameroff et al, 1987 Poverty How does poverty affect developmental outcomes? Is not a direct cause of poor outcomes Parents in poverty are not “poor parents” Produces a constellation of stresses and risks Poverty Lack of food Iron deficiency • Anemia • Problems with problem-solving, concentration, lower IQ Housing Problems Homelessness • Infant mortality, asthma, delayed immunizations • Frequent moving • Not completing high school Poverty Family stress • Perceived financial hardship • Parent stress and depression • Family conflict, less effective parenting behavior • Child behavior problems, aggressiveness, learning problems Poverty Fewer resources for learning Inferior child care • Less exposure to print, learning materials • More child stress--anxious, aggressive, less active Financial barriers for school, college • Less educational attainment Meaningful Differences in the Everyday Experiences of Young American Children Hart & Risley, 1995, Brookes Publishing Meaningful Differences in the Everyday Experiences of Young American Children Hart & Risley, 1995, Brookes Publishing How can we improve child outcomes? Early Child Development Series of interactions between child and environment Series of qualitative reorganizations among and within biological systems stimulated by environmental interactions Transactional Model of Development Reciprocal, ongoing exchanges between the child and environment serve as the foundation of development. Child is active participant in development. Outcomes depend upon quality of caregiving environment as well as the child’s characteristics. Plasticity of Young Brain Brain imaging research shows affects of stimulating environment on young children Children of depressed mothers show 40% less brain activity (Shore, 1997) With rich interactions from the environment, brain develops in optimal way Differential genetic susceptibility to effects of caregiving environment Genes + caregiving environment = adult outcomes Early Identification On going monitoring of young children’s development Identifying children with delays in development Providing enrichment activities and/or special education Early Intervention Early intervention provides continuum of supports to children and families Intervening early is necessary to compensate Continued intervention and support are often necessary to sustain gains Early intervention makes a substantial difference in the lives of young children and families Evidence for Early Intervention Intelligence is enhanced in some children. Substantial gains are made in all developmental areas Secondary handicapping conditions are inhibited or prevented. Family support is provided. Evidence for Early Intervention Dependency is reduced Need for special education services at school age is reduced. Substantial cost savings in health care and education costs. Incidence of children identified as having a disability by age 2.3% 5.9% 11.6 % Prevention Triangle Tertiary Level Special education, OT/PT Secondary Prevention Targeted interventions with risk population Primary Prevention Building Positive Relationships for Families Screening, education, health Early childhood programs save money 3 to 1 benefit-cost ratio Better health and academic outcomes $3-9 for every dollar invested 16% annual return • http://epinet.org • http://brookings.edu • http://minneapolisfed.org/ Heckman, J. (2006). Skill formation and the economics of investing in disadvantaged children. Science 312(5782), pp. 1900-1902. Risk Factors and Development: Review • Environmental, medical, and combination risk factors affect development • Quality of caregiving environment can mitigate effects of risk • Poverty presents most devastating risk factors for young children • Prevention is cost-efficient and effective WHAT IS SCREENING? Screening A brief assessment procedure designed to identify children who should receive more intensive diagnosis or evaluation from local education, health, mental health agencies Screening Beyond Cutoff Professional Assessment Eligible Not Eligible Near Cutoff Not near cutoff Continue to monitor (re-screen) & use curriculum-based assessment to develop learning plans WHY SCREEN YOUNG CHILDREN? Why use screening tests? Clinical judgment is not accurate Increases identification rates of children with delays If used system-wide, increase communication, collaboration among agencies Why screen? Increased rates of poverty for families with young children Poverty associated with increased medical, developmental, and social-emotional problems Medical interventions increasing numbers of children with delays Children born below 1500 grams have greatly increased chance for developmental delays Increased use of illegal substances by stressed families Why screen? Early childhood time for brain plasticity and growth Neurons to Neighborhoods, http://www4.nationalacademies.org/ Early intervention is effective For low-birth weight children McCormick et al. 2006 Ecological focus on family and child Bronfenbrenner, 1977; Sameroff & Fiese, 2000 Home and center based programs effective Olds, 1997; Ramey & Ramey, 2000 Identification by pediatricians In U.S. 60-80% with delays not identified early American Academy of Pediatrics 2006: Pediatricians recommended screening at 9, 18-24, 30 months Referral rates in 1 practice increased 224% in one year with formal screening test (Hix-Small, Marks, Squires & Nickel, 2007) What are effective screening measures? Qualities of assessment tools to consider Validity Reliability Adequate normative population Cultural sensitivity Comprehensiveness Attractiveness to children Types of screening instruments Professionally-administered Parent-completed Information on screening tools http://www.dbpeds.org/ http://www.fpnotebook.com http://www.cimh.org Individual publishers Professionally-administered Battelle Developmental Inventory Screen, 2nd (http://www.assess.nelson.com) Bayley Scales of Infant Development Screen, 3rd (http://harcourtassessment.com) Brigance Screens (http://www.curriculumassociates.com) Denver II (http://www.denverii.com/DenverII.html) Early Screening Inventory (www.pearsonearlylearning.com) Parent-Completed Pediatric Evaluation of Developmental Status PEDS--Glascoe • www.pedstest.com MacArthur Communicative Development Inventory--Fenson et al. Minnesota Child Development Inventories • http://www.childdevrev.com/cdi.html Ages & Stages Questionnaires • http://www.brookespublishing.com • http://agesandstages.com Assessment “the science of examining the strange behaviors of children in a strange situation with strange adults for the briefest possible periods of time” (Bronfenbrenner, 1979) Advantages of Parent-Completed Screening Measures Engaging families in the assessment of their child Parents are reservoirs of rich information about their children Parental involvement reduces cost Screening structures observations, reports and communications about child development Engaging families in the assessment of their child Screening may become a teaching tool for parents and teaching staff Information/communication can be useful for primary health care providers and communication based rehabilitation center Effective and efficient method of early identification Research on parent report of child developmental level As accurate as formal measures for identifying cognitive delay (Glascoe, 1989, 1990; Pulsifer, 1994) As accurate as formal measures for identifying language delay (Tomblin, 1987) As accurate as formal measures for identifying symptoms of ADHD and school related problems (Mulhern, 1994) More accurate than Denver for predicting school-age learning problems (Diamond, 1987) Accuracy of low and middle income parents Agreement between parent-completed ASQ and professionally administered standardized assessment: Low income parents .85 (below federal poverty level) Middle income parents .89 No statistical significance between groups (Squires, Potter, & Bricker, (1998) Early Childhood Research Quarterly,13, 2, 345-354.) Advantages of parent-completed screening tests Parents/caregivers can provide rich information about child across settings Parent involvement reduces cost • 3-5 times less Screening structures observations, reports, communications about child development Cost Effective Parent-completed assessments range between $3-10 per assessment (U.S. interview/mail models) Professionally-administered cost 3-5 times more (Chan & Taylor, 1998; Dobrez Lo Sasso, Holl et al., 2001; Glascoe, Foster, & Wolraich, 1997) Factors that may affect the accuracy of parental report Characteristics of parents Impaired mental functioning Mental health issues Cultural and language differences Involvement with child protective agencies Low literacy PARENTS’ EVALUATION OF DEVELOPMENTAL STATUS A Method for Detecting and Addressing Developmental and Behavioral Problems • For children 0 through 8 years • In English, Spanish and Vietnamese • Takes 2 minutes to score • Elicits parents’ concerns/family-focused/culturally competent • Sorts children into high, moderate or low risk • 4th – 5th grade reading level • Score/Interpretation form printed front and back • and used longitudinally • Screens for developmental and behavioral/mental health problems PEDS Response Form 1. Please list any concerns about your child’s learning, development, and behavior. 2. Do you have any concerns about how your child talks and makes speech sounds? Circle: Yes No A little Comment: 7. Do you have any concerns about how your child gets along with others? Circle: Yes No A little Comment: What are the ASQ and ASQ:SE? Series of parent- completed developmental questionnaires Screen children for possible developmental delays, difficulties Monitor the development of young children from 1 month to 5 years Enlist parents and caregivers in assessment process ASQ Communication 12 month ASQ • Does your baby follow one simple command, such as Come here, Give it to me, Put it back, without your using gestures? Yes Sometimes Not Yet • Does your baby say one word in addition to Mama and Dada? Yes Sometimes Not Yet ASQ Fine motor 24-month ASQ • Does your child turn the pages of a book by himself? (He may turn more than one page at a time.) Yes Sometimes Not Yet • Does your child flip switches off and one? Yes Sometimes Not Yet 12 month ASQ:Social Emotional • Does your baby laugh or smile at you and other family members? (z)Most of the time (v) Sometimes (x) Rarely or never • Does your baby like to be picked up and held? (z)Most of the time (v) Sometimes (x) Rarely or never 24 month ASQ:Social Emotional • Does your child seem too friendly with strangers? (x)Most of the time (v) Sometimes (z) Rarely or never • Do you and your child enjoy mealtimes together? (z)Most of the time (v) Sometimes (x) Rarely or never ASQ & ASQ:SE for autism ASQ identified 76/76 children in retrospective study (Nickel, 2006) 70/76 parents made comments in overall section ASQ:SE in clinical settings is identifying children with autism Two studies just beginning using ASQ and ASQ:SE ASQ Office Study 12 and 24 months 20 pediatric practitioners 76% agreement between ASQ and pediatrician estimate of development (OK, at risk) Pediatricians referred mostly for communication, gross motor delays Referrals for further assessment increased 224% in one year Control and screening year referrals 70 60 50 40 control year screening year 30 20 10 0 12-months 24-months Control and screening year referrals 45 40 35 doc control year doc screening year asq screening 30 25 20 15 10 5 0 12-months 24-months Recommendations for a screening system Best practices in screening Use formal, validated screening measures Include parents in decision making Consider cultural adaptations Develop systematic screening and referral procedures Include personnel and agency training Evaluate screening system Cost Efficacy Utility Include social-emotional areas Links between earliest emotional development and later social behavior. (Cicchetti & Cohen 1995; Reynolds et al., 2001) Behaviors, even in infancy, signal the need for intervention (Shonkoff & Phillips, 2000) Links between early risk factors, poor outcomes & violence (Conroy & Brown, 2004) By third grade, programs for children with antisocial behavior are mostly ineffective (Walker, 2004; Greenberg et al., 2003) 21st Century Screening Programs Short, effective screening tests Increased use of parent report Internet-based Touch screens at health and educational centers Follow-up through health and educational outreach staff In Summary Early identification is critical for improving developmental outcomes Valid and reliable screening tests are central to early identification efforts Several parent-completed screening tests assist in early identification efforts Early identification and intervention have extensive cost savings as well as improving child and family outcomes To make change, we must have unwarranted optimism about our children and our future • “All this will not be finished in the first 100 days.. Nor will it be finished in the life of this Administration, nor even perhaps in our lifetime on this planet. But let us begin.” John F. Kennedy, 1961 • “We must become the change we seek to create.” Gandhi Thank you