About SNOMED CT • 40 year old medical terminology – 322,544 concepts (and growing) Growth of SNOMED 388,289 (Jul 2009) 400,000 (Apr 2012) International Core + UK national extensions + DM+D (+ US drug extensions) 350,000 368,590 (Jan 2006) SNOMED 357,135 (Jan 2004) SNOMED CT R1 325,856 (Jan 2002) 300,000 Total: 709,742 concepts (of which 504,084 active) 1,199,678 ‘en’ descriptions 250,000 262,231 Oct 2004 Concepts SNOMED RT (Beta) 200,000 SNOMED International 150,000 (V 3.1) (V 3.2) 100,000 (V 3.0) SNOMED II 50,000 (V 3.4) 395,346 (Apr 2012) 378,111 (Jan 2008) 237,557 Oct 1999 249,081 Mar 2002 270,600 Apr 2006 308,032 282,253 292,524 (Apr 2012) Apr 2008 (Oct 2009) CTV3 (V 3.5) (V 3.3) 81,885 Sep 1999 83,076 Oct 2001 85,647 86,865 Oct 2003 Jul 2004 90,956 Apr 2007 93,717 (Oct 2009) 95,832 (Apr 2012) READ2 37,502 (Jan 1991) 1990 1991 1992 1993 1994 1995 1996 1997 1998 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009 2010 2011 2012 • Attempting an ‘in situ’ migration to EL+ – And ‘seamless’ deployment into an industry based on enumerated classifications – 18-country international effort, $9.3M annually SNOMED CT in UK • Many secondary care sites – Some primary care • • • • 13,353,775 Summary Care Records 33M Choose & Book referrals Electronic TFR of prescriptions Soon: Radiology & Pathology messaging Issues • Change management – Migration from/integration with legacy systems – Changes in SNOMED CT itself – Death by 1,000 mutual dependencies • Implementation skills • User interfaces (or, data repair) • Tools – Time to load & classify – Content refactoring – ‘Linkage’ to external resources • Business case SNOMED CT 39 months @ a busy UK A&E Department • One ‘reason for encounter’ code per completed visit – 408,823 coded episodes • • • • 39 months (Oct 2008 – Dec 2011) 12,323 distinct codes selected at least once 8,387 not coded (or uncodable?) = 1 in 50 episodes 20-50% miscoding rate Relative code use 20000 1000 distinct SNOMED CT codes account for 84% of the data 18000 16000 Top 15 tunes…(22.8% of all episodes) 18332 282026002|Soft tissue injury (disorder) 13995 21522001|Abdominal pain (finding) 10588 82271004|Injury of head (disorder) 9466 29857009|Chest pain (finding) 6861 213257006|Generally unwell (finding) 6113 367391008|Malaise (finding) 4656 161891005|Backache (finding) 4435 44465007|Sprain of ankle (disorder) 4309 34014006|Viral disease (disorder) 3777 399221001|Bleeding from vagina (disorder) 2871 35933005|Laceration (morphologic abnormality) 2690 281794004|Viral upper respiratory tract infection (disorder) 2622 68566005|Urinary tract infectious disease (disorder) 2404 19130008|Traumatic abnormality (morphologic abnormality) 2280 281245003|Musculoskeletal chest pain (finding) 14000 12000 10000 8000 6000 4000 2000 0 1 1001 2001 3001 4001 5001 6001 7001 8001 9001 10001 11001 12001 7.8% ‘Ontology-driven’ miscoding… (disorder) 234693 (finding) 123430 (procedure) 6583 (situation) 6379 (event) 4592 (regime/therapy) 1344 TOTALS 377021 (morphologic abnormality) (qualifier value) (body structure) (substance) (attribute) (observable entity) (physical object) (product) (cell) (navigational concept) (organism) (physical force) (record artifact) (ethnic group) (environment) (assessment scale) (person) (specimen) (administrative concept) (tumor staging) (social concept) (cell structure) (occupation) (inactive concept) 17024 4544 3517 2340 1293 1139 746 233 226 206 199 152 97 17 15 14 10 9 6 5 4 3 2 1 31802 Miscoding examples 1097 17 373 136 82 78 Temperature Drug used ETOH - Alcohol intake Nasogastric tube Catheter Dressing 246508008|Temperature (attribute)| 246488008|Drug used (attribute)| 160573003|Alcohol intake (observable entity)| 17102003|Nasogastric tube, device (physical object)| 19923001|Catheter, device (physical object)| 37898001|Dressing, device (physical object)| 110 83 43 53570002|Removal of foreign body from eye (procedure)| 172828005|Removal of foreign body from nose (procedure)| 172278002|Removal of foreign body from eyelid (procedure)| 293 166 7 82576008|Retained foreign body in eye (disorder)| 74699008|Foreign body in nose (disorder) 25012008|Retained foreign body of eyelid (disorder)| Variable Data Quality • 23% of 74 abdominal aortic aneurysms miscoded as a Drug Trade Family (9192101000001100 AAA (product)); AAA make sore throat spray(and not much else) • 25% of 939 stabbing victims miscoded as a qualifier value (‘stabbing sensation quality’, as in heart attack) • 33% of 3771 patients with some form of high temperature miscoded as either an attribute, or a physical force • 38% of 1101 failed consultations (patient left the department, or did not attend an appointment) miscoded as either a laterality (left) or as deoxyribonucleic acid (DNA = Did Not Attend) • 44% of 575 patient attending with a fish bone stuck in their throat miscoded as the bone itself (7661006|Fish bone (substance)|) • 49% of 5,062 alcohol-related attendances miscoded as either the substance (alcohol, ethyl alcohol) or just feeling elated/intoxicated but not necessarily involving alcohol intake at all Not all bad news: Admissions for sickle cell • Clinical impression – ‘They stop coming once they get older; most of the attendances will be in the 15-20 age group’ • Clinical lore – Cold weather triggers attacks ‘People with sickle cell disease should try to avoid any potential triggers for a sickle cell crisis as much a possible. For example: try to keep warm in cold weather, try to avoid becoming dehydrated and take precautions if you undergo extreme exercise’ (patient.co.uk) • Clinical Data…??? 60 50 AGE at presentation vs DATE of presentation 60 day average, rolling count of attendances in last 14 days 1336 A&E attendances, 410 patients Completed episodes October 2008 thru December 2011 Reason for attendance: sickle cell But: We could probably have got this particular result using ICD. Overall, is the ontology (as implemented) helping or hindering primary data capture and secondary data analysis? WINTER 2011-12 70 WINTER 2008-9 80 40 30 20 10 0 Sunday, June 1, 2008 Monday, June 1, 2009 Tuesday, June 1, 2010 Wednesday, June 1, 2011 Thursday, May 31, 2012