Mental Health NHS Providers and System Suppliers Stakeholder User Group Friday 9th October 2015 Leeds Community and Mental Health Team, Health and Social Care Information Centre Welcome and Introductions Nicholas Richman Service Development Manager (Community & Mental Health) Welcome and introductions • • • • • • Welcome Introductions Fire exits Toilets Agenda for the day Political context Scene Setting Nicholas Richman Service Development Manager (Community & Mental Health) 4 Background • Parity of Esteem (for mental health with physical health) • IAPT “gold standard” • 16 care pathways • Access target • NICE concordant interventions • Outcome measures 5 16 Care Pathways • • • • • • • • • • • • • • • • 1. 2. 3. 4. 5. 6. 7. 8. 9. 10. 11. 12. 13. 14. 15. 16. Psychoses incl.Schizophrenia Bi polar disorder Depression Anxiety disorders Obsessive compulsive disorder Phobias Organic brain disorders including Dementia Alcohol and drug misuse Somatoform disorders PTSD Eating disorders Perinatal disorders Personality disorders ( 10) Self harm behaviours Conduct disorders in children Neurodevelopmental conditions – ADHD – Autistic spectrum disorders 6 Implementation approach • “Big bang” approach – sorry for truncated timescales • Use of SNOMED should mean fewer, smaller data set changes which should mean faster implementation of future changes e.g. Forensic PbR • Report to minister on preparedness – early October 7 MHSDS ISN (SCCI0011) • ISN published on 16th July 2015, available here: www.hscic.gov.uk/isce/publication/SCCI0011 • Additional information can be found here: www.hscic.gov.uk/mhsds • Supplier compliance by 1st January 2016 • Providers start collection on 1st January 2016 • Providers start submitting from 1st February 2016 • Submission still in IDB format not XML for this release • Incorporates CAMHS, LD Census and CYP IAPT • Introduction of clinical terminology (SNOMED CT) • Move to relational structure in line with other data sets 8 Transition arrangements • December – only primary MHLDDS submission closing 23rd January 2016 • No December refresh to give time for changeover • Will carry out Operational Assurance Testing with providers • January MHSDS submission 1st – 22nd Feb (tbc) • Publication of EIP waiting times by the end of March – with DQ information per provider where data not available 9 An Introduction to SNOMED CT UK Terminology Centre presented by Ian Spiers, Clinical Terminology Specialist Agenda • • • • • Strategy What is SNOMED CT Withdrawal of the Read codes Use in Mental Health Further resources 11 Strategy Vision: Patient centred care; patients view their EPR Actions: – Paperless – Interoperability – move data around electronically – Move from additional collections for national data returns to data extraction from the EPR 12 Electronic records, national vocabulary Using a single national vocabulary will ensure that data collected in different systems can be transferred and ‘understood’ by the different systems. It also means each organisation is not spending time developing their own clinical vocabulary The international vocabulary the UK has selected is SNOMED CT. The UK has made substantial investment in this and is one of the founder members of the not-for-profit organisation that manages SNOMED CT 13 Framework for Action ‘The NIB endorses the move to adopt a single clinical terminology – SNOMED CT – to support direct management of care, and will actively collaborate to ensure that all primary care systems adopt SNOMED CT by the end of December 2016; the entire health system should adopt SNOMED CT by April 2020. During this time, we must also work with local authorities to understand and address the implications of this for social care’. 14 What is SNOMED CT? Sitting Blood pressure Blood pressure Lung von Recklinghausen's bone disease A national common vocabulary of ‘Clinical phrases’ for electronic systems toe mild moderate inflammation finger severe acute phlegm ischaemic infection exertional angina bacterial cough viral SNOMED CT Content Clinical Findings Causes of Disease Procedures • • • • Disease and deformity – scar Symptoms – difficulty breathing Social – walking aid use Examination findings – tachycardia • Forces – pressure change • Events – road traffic accident • Organisms – felis silvestris (cat) • • • • Laboratory Therapy / regimes Investigation Operation SNOMED CT Content Anatomy Observations Products • Normal – knee joint • Abnormal – ganglion cyst • Lesions – bony callus • Vital signs – blood pressure • Body product properties – normal saliva • Values - present • Drugs and appliances – paracetamol • Substances – latex • Devices – bedpan A Concept in SNOMED CT Preferred Term: Heart Disease Synonym: Cardiopathy Synonym: Disorder of Heart Synonym: Morbus Cordis Synonym: Cardiac Disorder Synonym: Cardiac Diseases Synonym: Heart Diseases Heart disease (disorder) 56265001 Relationships Is a cardiac finding Is a disorder of mediastinum Is a disorder of cardiovascular system Finding site heart structure Severity Episodicity Courses A Concept Codes and descriptions Relationships Is a Attributes Qualifiers & values A Concept in SNOMED CT FSN: Fully specified name Preferred Term: Irritable bowel syndrome Synonym: Irritable bowel Synonym: Irritable colon Synonym: Irritable colon syndrome Synonym: Membranous colitis Synonym: Spastic colitis Synonym: Mucous colitis Irritable bowel syndrome (disorder) 10743008 Relationships Is a disorder of intestine Finding site Intestinal structure Severity Episodicity Courses Disease Infectious disease Disorder by body site Infection by site Disorder of trunk Bacterial infectious disease Disorder of thorax Respiratory tract infection Bacterial infection by site Disorder of lung Lower respiratory tract infection Lung consolidation Pneumonia Bacterial respiratory infection Infectious disease of lung Infective pneumonia Bacterial lower respiratory infection Bacterial pneumonia UK Terminology Centre (UKTC) • Maintenance – Request for change • Distribution • Governance – Editorial – Strategic – Corporate 22 Requests for change 23 Distribution 24 How do I look at SNOMED CT? • Using a browser application • http://systems.hscic.gov.uk/data/uktc/snomed /browser • On-line: – IHTSDO – Snow Owl – Snoflake • On your machine – need access to install – Cliniclue 25 Is it used ? • Cerner Millennium • Lorenzo • Rio • MediTech • Allscripts • EPIC • Summary Care Record • eReferrals • Spine • Care.data 26 Early adopter trusts … • Have over 7 years worth of data … • And are shifting to more clinical based management 27 SNOMED CT: evolved to address issues • Changes undertaken through DH driven projects • NPFiT required SNOMED CT Read v2 Read v3 (CTV3) • In the process of withdrawing the Read codes SNOMED CT Timescales • • • • • The Read codes are deprecated April 2016: Last release of Read v2 Proposing CTV3: no release in October 2016 April 2018: Last release of CTV3 April 2020: Withdrawal of Read 29 Use of SNOMED CT in Mental Health Access and Waiting Times Standards in Mental Health Timely access to evidenced based care • The National Collaborating Centre for Mental Health (NCCMH) has been commissioned by NHS ENGLAND to develop national resources to support implementation of these standards. • NCCMH are producing commissioning guides on establishing and maintaining services for Early Intervention Psychosis and Eating Disorders. • UKTC has worked with the NCCMH and their Expert Reference Groups to map SNOMED CT content to NICE concordant interventions for publication in the guides and to support implementation of NICE Guidance and Pathways in the electronic health record (EHR). 30 Use of SNOMED CT in Mental Health • Subsets of SNOMED CT will be available for download for system suppliers to use in electronic health records. This will enable clinicians to access SNOMED CT content relevant to NICE concordant interventions and facilitate central data collection and analysis derived from the EHR. • The subsets are condition focused with Early Intervention Psychosis and Eating Disorders completed for release in October 2015. This work is ongoing with the next focus to be on Perinatal Mental Health. 31 Resources to help develop an understanding of SNOMED CT UKTC website: http://systems.hscic.gov.uk/data/uktc/training NHS Networks: SNOMED CT NHS Network Case Studies from someone using it for real Why SNOMED CT An overview Brochure Finding out more… • Leeds A&E Department • Moorfields Eye Hospital • Rotherham Foundation Trust • University Hospitals Morecambe Bay • Barts Health SNOMED CT Webinars • Introduction to SNOMED CT • Finding Content in SNOMED CT • Clinical Data Analysis How do I view SNOMED CT content? • Browsers for SNOMED CT data • On-line Browser Where Can I ask questions? • Email: snomedtraining@nhs.net • Discussion Groups: NHS Networks eLearning • ON HSCIC TRUD • UKTC Education and Training Resources How SNOMED-CT applies to the Data Set Nicholas Richman Service Development Manager (Community & Mental Health) PK Local Patient Identifier (Extended) Organisation Code (Local Patient Identifier) Organisation Code (Residence Responsibility) Organisation Code (Educational Establishment) NHS Number NHS Number Status Indicator Code Person Birth Date Postcode of Usual Address Postcode of Main Visitor Person Stated Gender Code Ethnic Category Religious or Other Belief System Affiliation Group Code Language Code (Preferred) Person Death Date Clinical Terminology Diagnosis MHS601 Medical History (Previous Diagnosis) FK1 Local Patient Identifier (Extended) Diagnosis Scheme in Use Previous Diagnosis (Coded Clinical Entry) Diagnosis Date MHS603 Provisional Diagnosis MHS604 Primary Diagnosis MHS605 Secondary Diagnosis FK1 Service Request Identifier Diagnosis Scheme in Use Provisional Diagnosis (Coded Clinical Entry) Provisional Diagnosis Date FK1 Service Request Identifier Diagnosis Scheme in Use Primary Diagnosis (Coded Clinical Entry) Diagnosis Date FK1 Service Request Identifier Diagnosis Scheme in Use Secondary Diagnosis (Coded Clinical Entry) Diagnosis Date MHS606 Coded Scored Assessment (Referral) FK1 MHS101 Service or Team Referral PK Service Request Identifier FK1 Local Patient Identifier (Extended) Organisation Code (Code of Commissioner) Referral Request Received Date Referral Request Received Time NHS Service Agreement Line Number Service Request Identifier Coded Assessment Tool Type (SNOMED CT) Person Score Assessment Tool Completion Date Clinical Terminology Relational Structure Clinical Terminology Data Structure SNOMED CT Description SNOMED CT Code Health of the Nation Outcome Scale for Children and Adolescents item 1 - disruptive, antisocial or aggressive behaviour (observable entity) 895191000000100 Health of the Nation Outcome Scale for Children and Adolescents item 2 - overactivity, attention and concentration (observable entity) 895211000000101 Health of the Nation Outcome Scale for Children and Adolescents item 3 - non-accidental self injury (observable entity) 895231000000109 Health of the Nation Outcome Scale for Children and Adolescents item 4 - alcohol, substance/solvent misuse (observable entity) 895251000000102 Care Activity Identifier Coded Assessment (SNOMED CT) Assessment Score 12345 895191000000100 1 12345 895211000000101 3 12345 895231000000109 2 12345 895251000000102 4 12350 895191000000100 2 12350 895211000000101 2 37 Questions & Answers Lunch 12.15 – 13.15 Reporting of Child and Adolescent Mental Health & Children and Young People’s IAPT presented by Dominic Gair, Section Head – Community Background • The MHSDS provides opportunity for a wealth of CAMHS data to be collected consistently at a national level for the first time. • As with all new datasets it is expected that there may initially be data quality issues that arise and we will work closely with providers to help identify and address these as they do. • Initial reporting of CAMHS data will be as Experimental Statistics. As the dataset matures this will change and the data will become fit for a wider variety of beneficial uses. 41 Intended Future Reporting • A basic report with an associated data quality to be published monthly • A more detailed annual report to be published • Data will also be made available via the use of a Business Intelligence tool called iView Plus which will be refreshed monthly – More interactive – Allows: – Filtering, Charts, Hierarchies, Maps, Dashboards and adhoc queries by the end user. 42 What is iView Plus • An online data visualisation tool • For members of the public and healthcare professionals • Allows access to aggregated HSCIC data • Flexible and interactive • Free view user or Registered user options • iViewPlus development commenced April 2015 • System go live at the end of 2015 and will gives access to various data areas initially from MCDS datasets. Maternity data will be available at launch with CYPHS and CAMHS data to follow early in 2016. 43 iViewPlus The national provider of information, data and IT systems for health and social care Home About iViewPlus Data Data Sets Sets Find Data Welcome to the Maternity Services Data Set (MSDS)/Home Data sets Help Dashboards Help You are viewing MSDS for August 2015 LATEST NEWS 01/10/2015 Maternity Services (MSDS) report published The report that examines the current sources of maternity data has been published by the Health and Social Care Information Centre. Maternity Services Data Set The Maternity Services Data Set (MSDS) has been developed to help achieve better outcomes of care for mothers, babies and children. The data set will provide comparative, mother and child-centric data that will be used to improve clinical quality and service efficiency; and to commission services in a way that improves health and reduces inequalities. As a 'secondary uses' data set, it re-uses clinical and operational data for purposes other than direct patient care. Information from the data set will be made available to commissioners, providers, clinicians and service users and will be used to record, compare and improve outcomes and safety improve clinical quality and service efficiency commission services in a way that improves health and reduces inequalities improve accountability by providing comparative information to service users provide activity data on which to base mandatory tariffs for Payment by Results What information is available? Information from the data set will be made available to commissioners, providers, clinicians and service users and will be used to record, compare and improve outcomes and safety improve clinical quality and service efficiency commission services Maternity Services Data Set report View statistical publications by date on the Publications Calendar The national provider of information, data and IT systems for health and social care Home About iViewPlus Data Sets Find Data Welcome to the Maternity Services Data Set (MSDS) You are here/Dashboards Dashboards Data sets Help Help Icon buttons with drop down function for share/download/save Home Data sets About iViewPlus Help Data Sets Find Data Dashboards Help Home About iViewPlus Data Sets Find Data Dashboards Welcome to the Maternity Services Data Set (MSDS) You are here/Dashboards/Saved Data sets Query builder Saved Dashboards July 2015 Help Help Icons Share/Export/Save Home About iViewPlus Data Sets Find Data Dashboards Welcome to the Maternity Services Data Set (MSDS) You are here/Dashboards/Saved Data sets Query builder Saved Dashboards July 2015 Help Help Icons Share/Export/Save Home About iViewPlus Data Sets Find Data Dashboards Welcome to the Maternity Services Data Set (MSDS) You are here/Dashboards/Saved Data sets Query builder Saved Dashboards July 2015 Help Help Icons Share/Export/Save Benefits of iViewPlus • Enables greater interactivity between users and the data. • Easily accessible • Ability of users to create and share dashboards that meet their own local needs and requirements. iViewPlus and CAMHS Data • Not all reported data fields will be available on iViewPlus at first rather a staged approach will be adopted. • We will be working with customers to determine key reporting requirements in order to prioritise which information is made available in iViewPlus and when it will be available. 52 Feedback • We welcome any feedback in regards to the functionality of iViewPlus and how this may help your reporting needs. • This maybe sent to enquiries@hscic.gov.uk please include the words iViewPlus and CAMHS within the subject title of the email. Adult Mental Health Analysis September 2015 Provider and Supplier Stakeholder User Groups presented by Jo Simpson, Senior Project Manager – Mental Health Overview • Annual Publications • Experimental Data File • Adult Mental Health Analysis from the MHSDS • Early Intervention in Psychosis (EIP) Access and Waiting Times Annual Publications – Mental Health Bulletin 2014/15 • Annual analysis of data from the MHMDS/MHLDDS • Published on the 23rd October 2015 • Format similar to last year • No special feature this time, but more analysis of MHA… Annual Publications – KP90 2014/15 • Annual analysis of data about uses of the Mental Health Act (MHA) 1983 • “Inpatients Formally Detained in Hospitals Under the Mental Health Act 1983 and Patients Subject to Supervised Community Treatment” • Published on the 23rd October 2015 • Streamlined version of last year’s report • Clearer demarcation of data sources following feedback from UK Statistics Authority • Will continue next year, but plan to retire Experimental Data File • The Monthly MHLDS Report from April 2015 data (published in June) includes an additional data file of measures relating to two current areas of interest in secondary mental health services: – – the introduction of access and waiting time measurements for mental health services the use of out of area placements for people requiring mental health hospital care • This data is presented as experimental analysis because the current structure of the data source (MHLDDS) does not support the measurement of waiting times for individual referrals into services, nor does it include the detail of contracting arrangements that might reliably identify an out of area placement. • For both topics the measures presented in this file are a proxy, designed to inform discussion, prompt local investigation into any recording issues and provide a reference point for more accurate measurement in future. • Details of how each measure has been constructed from the dataset are included in the metadata file that is part of the MHLDS Monthly Report. Adult Mental Health Analysis from the MHSDS • The MHSDS is a significant change for us too! • Significant opportunity: – Closer fit to how services are delivered – Pathway analysis • Limited analysis initially, with a focus on EIP • Publish analysis on provisional data for the first time Adult Mental Health Analysis from the MHSDS • Changes to the structure of the dataset from a person based dataset to a referral based dataset give us the opportunity to review the content and format of our existing publications. • We are seeking information about which measures and which elements of existing publications are most useful to you. • We want to ensure that the data collection continues to be relevant and meaningful to the people who use it, and that we are meeting your information and data needs in the best and most cost-effective way. • Ideas for EIP contextual measures • Consultation now closed – results to be published in November Adult Mental Health Analysis • In response to user feedback the validation on many ‘event’ type tables (i.e. those where a status or activity is recorded against a single date, such as Employment Status Recorded Date) has been relaxed. Depending on the type of event, the date validation may be ‘within reporting period’ or ‘date is not after end of Reporting Period’ for example. • This will help in the monitoring of established measures such as ‘Employment status for people on CPA’ and ‘people on diagnosis at end of reporting period’ by allowing some events that preceded the current reporting period to flow with referrals open in the current reporting period, as shown in the examples highlighted below. • Please read the TOS with care and ensure your extracts for the new MHSDS submissions are built according to these revised date validation rules. Adult Mental Health Analysis Data Item / Table Validation Rule Change from MHLDDS Current Measure Impact ACCOMMODATION STATUS RECORDED DATE (MHS003AccommStatus) If Accommodation Status Recorded Date is after the end of the reporting period, the record will be rejected. Validation relaxed, any status not submitted within the associated RP can still be submitted in any subsequent RP. mm13 - People with accommodation status recorded mm14 - People aged 18-69 on CPA in settled accommodation mm15 - Proportion of people aged 18-69 on CPA in settled accommodation EMPLOYMENT STATUS RECORDED DATE (MHS004EmpStatus) If EMPLOYMENT STATUS RECORDED DATE is after the end of the reporting period, the record will be rejected. Validation relaxed, any status not submitted within the associated RP can still be submitted in any subsequent RP. mm16 - People with employment status recorded at the end of the RP mm17 - People aged 18-69 on CPA at the end of the RP in employment. Mm18 - Proportion of people aged 18-69 on CPA in employment DIAGNOSIS DATE (MHS604PrimDiag) If DIAGNOSIS DATE is after the end of the reporting period, the record will be rejected. CARE PROGRAMME APPROACH REVIEW DATE (MHS702CPAReview) If CPA REVIEW DATE is after the end of the reporting period, the record will be rejected. Validation relaxed, any mm20 - People with a diagnosis recorded diagnosis not submitted within the associated RP can still be submitted in any subsequent RP. Validation relaxed, any mm06 - People on CPA for 12 months with review not submitted within review that RP can still be submitted in any subsequent RP. EIP Access and Waits • The new access and waiting time standard requires that, by 1 April 2016, more than 50% of people experiencing a first episode of psychosis will be treated with a NICE approved care package within two weeks of referral. • The standard is ‘two-pronged’ and both conditions must be met for the standard to be deemed to have been achieved, i.e. – A maximum wait of two weeks from referral to treatment; and – Treatment delivered in accordance with NICE guidelines for psychosis and schizophrenia - either in children and young people CG155 (2013) or in adults CG178 (2014). • Most initial episodes of psychosis occur between early adolescence and age 25 but the standard applies to people of all ages in line with NICE guidance. Page 9, Guidance to support the introduction of access and waiting time standards for mental health services in 2015/16 EIP Access and Waits • Clock Start – – Referral received with a primary or other reason for referral of ‘01 (Suspected) first episode psychosis’ • Clock Stop – – Care co-ordinator assigned following an attended face to face contact • No pauses • Measures and reporting session later in the year MHSDS Extracts Presented by Amina Butt Senior Information Analyst MHLDDS • Submit 50 tables in an IDB to OpenExeter • Most tables are validated to ensure that they contain activity during the reporting period • A spell index is maintained ensure a record for each person’s spell of care MHLDDS Extracts • The 50 tables are then transformed into 4 CSV files – – – – Header Record Event Episode 67 MHSDS • Submit 48 tables in an IDB • Most tables will be validated to ensure that they contain activity during the reporting period • Records will also be validated for referential integrity • No spell index! 68 MHSDS Extracts • After processing these tables are transformed into 48 tables in an xml file • Can be easily imported into Access or SQL • Quick Demo 69 Learning Disabilities Presented by Clare Burgeon 70 Learning Disabilities • LD Census – running 30th September 2015 – last time – Content in MHSDS • Assuring Transformation collection – some changes – When MHSDS is live, we will revisit content of AT collection • Triangulation of census, AT and data set 71 MHLDDS findings – May 2015 Change from previous Dec-14 Jan-15 Feb-15 Mar-15 Apr-15 May-15 month End of month counts People in contact with LD services* People in a learning disabilities ward 52,410 54,143 55,385 56,292 56,496 56,640 1,797 1,543 1,606 1,544 1,773 1,550 144 -223 Next Steps Presented by Aaron Leathley - Senior Data Sets Maintenance Analyst (Community & Mental Health) MHSDS Future Development Timeframe • April 2016 was put forward due to Forensic Mental Health Tariff reporting requirements • Initial review by SCCI in August • SCCI recommend delaying release 74 Requested changes for future MHSDS • • • • Bug fix release! Ward specific changes Forensic Mental Health Tariff Community Eating- Disorder Services for Children and Young People (CEDS-CYP) • Assuring Transformation 75 Bug Fixes - Minor Changes • Align tab name in Technical Output Specification and IDB for “MHS006 Mental Health Care Coordinator” (IDB/tab says MHS006AssignedCareCoOrd) • Other changes identified throughout implementation 76 Ward Specific Changes • Remove ward specific references to ‘Adult’ and ‘Older Peoples’ and change to ‘Functional’ and ‘Organic’ • May include an indicator to show whether the ward is locked/unlocked 77 Forensic Mental Health Tariff • Pilot item ‘Forensic Mental Health Care Cluster Code’ will be changed to required and a value list provided • Collection of Forensic 5 Pathways allocation • Collection of F-MHCT andHCR-20 assessments • Question over which version (v2 or v3) of HCR-20. May need to include both, subject to licensing arrangements 78 CEDS-CYP • Specifically for CEDS-CYP Teams funded under new NHS England arrangements • New team type in the ‘MHS102 Service or Team Type Referred To’ table and others… 79 Assuring Transformation • Changes to reflect updated version of current AT collection (include Care and Treatment Reviews, remove Winterbourne View items) • Revised AT collection potentially released in November 2015 • Specific changes will be identified in the revised version of the MHSDS Technical Output Specification 80 Questions and Answers