Page 1 Personal budgets workbook 1. How to use this workbook This work book forms part of the suite of learning materials that have been developed to support the implementation of part one of the Care Act 2014. These materials summarise and explain the ‘Care and Support Statutory Guidance’ (October 2014) [“the guidance”] and are designed to help those involved in care and support services to understand and implement the Act. The suite of learning materials contains workbooks, PowerPoint presentations and other material for each of the following topic areas: 1. Introduction and overview 2. Information and advice 3. First contact and identifying needs, including assessment and eligibility, and independent advocacy 4. Charging and financial assessment, including deferred payment agreements 5. Person centred care and support planning, including personal budgets, direct payments and review 6. Transition to adulthood 7. Integration, cooperation and partnerships This workbook is about the personal budgets requirements of the Act and its statutory guidance. It has been written for learning facilitators and includes exercises, suggested group discussions, points of reflection and case studies that facilitators can use either in their entirety or to pick and choose from as they see fit when designing a learning programme based on the PowerPoint presentation. The workbook can also be used by individuals who wish to learn more about this topic area. You can watch the presentation, read the notes below, and undertake the exercises at a pace and time to suit you. As well as this workbook and PowerPoint presentation, there are also handouts and a shorter, overview presentation on this topic area. Handouts provide easy to print resources that summarise key factual information from the guidance. The implementation of the Act requires whole systems change and underpinning this is a need for cultural change. These learning materials alone will not affect such change, but they are one tool that can be used to support people along the journey. In many instances, implementing the Act successfully will require those involved in the care and support system to change the way they work i.e. behaviour change. Page 2 Research suggests that the way people behave is influenced by their knowledge, skills and attitudes: Knowledge Skills Behaviour Attitudes The PowerPoint presentation and handouts are designed to increase knowledge about the Act or guidance. The questions and exercises in the workbook are designed to spark conversations that encourage people to reflect on their own attitudes and the attitudes of others. They aim to give learners the opportunity to discuss the complexities of implementing the changes in practice, and/or provide a safe way of challenging attitudes that go against good practice. The case studies are designed to provide an opportunity for people to analyse and practice their skills. Key learning point These are used in the workbook as a way of highlighting changes that are likely to have a significant impact on practice i.e. the major changes that the Act brings in. The facilitators’ hints and tips in the workbook signpost facilitators to existing good practice resources on this topic area and/or highlight key changes that are likely to have the most significant impact on practice. The aim is to help facilitators to design interactive learning programmes that are appropriate for their audience. Page 3 Facilitator’s hints and tips To successfully facilitate this module we suggest that you need to: have read the relevant sections of the Act, regulations and guidance have a good understanding of best practice in this topic area remember that there are various modules available and you need to choose the most suitable ones for your learning programme also remember that you can pick and mix questions, exercises and case studies from this workbook or from other topic areas design your training session in a way that accounts for the learning pyramid so as to maximize the experience and learning outcomes for your participants Average retention rates Lecture 5% Reading 10% Passive teaching methods Audio visual 20% Demonstration 30% Discussion 50% Participatory teaching methods Practice by doing 75% Teach others 90% Source: Adapted from National Training Laboratories, Bethel, Maine Page 4 2. Who is it for? This workbook is about personal budgets. It explores section 26 of the Care Act and chapter 11 of the statutory guidance. It is intended to be used to develop learning programmes for: people who have a role in care and support planning and the deployment of personal budgets. staff employed by local authorities and other organisations who are responsible for care and support planning and the administration and monitoring of personal budgets. managers of people undertaking care and support planning and the deployment of personal budgets. 3. Contents This workbook starts with an overview, which summaries the topic area, and identifies relevant key words. It then contains the following sections that match the slides in the PowerPoint presentation: Introduction Elements of the personal budget Calculating the personal budget Agreeing the final budget Use of a personal budget Use of a carer’s personal budget Appeals/disputes Summary Appendices: links to key resources; handouts Page 5 4. Overview Personal budgets are a key part of the government’s aspirations for a personcentred care and support system. The Care Act places personal budgets into law for the first time, making them the norm for people with care and support needs. Personal budgets are designed to enable people to exercise greater choice and take control over how their care and support needs are met. This in practice will mean that people will know from the outset how much money is available to meet their needs including the proportion the local authority will pay and the amount (if any) they will pay. They will be able to choose from a range of options as to how the money is managed, they will have choice over who is involved in preparing the care and support plan jointly with the local authority and a greater choice and control over the way the personal budget is used to purchase care and support, and from whom. When calculating the personal budget, local authorities should ensure that the method used produces equitable outcomes to ensure fairness in care and support packages. However, whatever the method used, the most important principles in setting the personal budget are: transparency, timeliness and sufficiency. The personal budget that the local authority calculates must be sufficient to meet the person’s needs that the local authority is required to meet and must also take into account any reasonable preferences to meet needs as agreed and detailed in the care and support plan, or support plan. This should ensure that the person, their carer and, where applicable, their independent advocate, is fully aware of how the budget was calculated, know the amount so they can plan their care and support accordingly and can have confidence that the amount includes all relevant costs that will be sufficient to meet their identified needs as set out in the plan. The costs of intermediate care and reablement to meet eligible needs, however, must be excluded from the personal budget. The person, carer or advocate must be able to challenge the local authority on the sufficiency of the final amount. The Act sets out that the personal budget must be broken down into: the amount the person must pay (following the financial assessment) and the remainder of the budget that the authority will pay. The personal budget must reflect the cost to the local authority taking into consideration quality and local market conditions. It is not intended that direct payments are less than is required to purchase care and support on the local market. The final budget should be finalised at the end of the care and support planning process. There are three main ways in which a personal budget can be deployed: through a managed account held by the local authority with support provided in line with the Page 6 person’s wishes; through a managed account held by a third party (often called an individual service fund or ISF) with support provided in line with the persons wishes; or a direct payment. In addition a mix of all three of these approaches can be used. What is essential is that the person is given choice and flexibility in how they use and manage their personal budget and that the local authority does not limit or constrain the person’s options and choices, for example with a restricted list of providers. Local authorities must ensure that whatever way the personal budget is used, the decision is recorded in the plan and they have an ongoing duty to keep the person’s plan and personal budget under review - see the review workbook. Those overseeing personal budgets must also be alert to the risks of abuse when a service user has taken their personal budget as a direct payment, particularly by the personal assistant to a direct payment holder who is also their employer. However, personal budgets are a good way of helping people protect themselves from harm as evidenced by examples in the Making Safeguarding Personal programme. See ‘safeguarding through direct payments’ in the Direct Payments module. The personal budget for carers must be used to meet their caring needs and help to ensure continuation of their caring role, taking into account agreed outcomes as part of the support plan. Local authorities must have regard to the wellbeing principle of the Act as it may be the case that the carer needs a break from caring responsibilities to look after their own physical/mental health and emotional wellbeing. Decisions on which services are provided to meet carers’ needs, and which are provided to meet the needs of the adult for whom they care, will impact on one of their personal budgets to include the costs of meeting those needs. Where local authorities are meeting the needs of both the carer and the adult needing care concurrently, they should consider joint plans and aligned or joint personal budgets, providing all parties agree. 5. Key words The suite of learning materials contains a glossary of key words used in the statutory guidance. The following key words, which are defined in the glossary, are relevant to this topic area: care and support plan, carer’s assessment, direct payment, eligible needs, individual service fund, independent advocate, needs assessment, outcomes, personal budget, reablement, support plan, top-up and wellbeing. Page 7 6. Introduction Slide 1 Notes 1. This work book forms part of the suite of learning materials that have been developed to support the implementation of part one of the Care Act 2014. These materials summarise and explain the statutory guidance and are designed to help those involved in care and support services to understand and implement the Act. 2. This presentation is about personal budgets. It is intended for: people who have a role in care and support planning and the deployment of personal budgets staff employed by local authorities who are responsible for care and support planning, administering and monitoring personal budgets managers of people undertaking care and support planning and the deployment of personal budgets. 3. The aim of the presentation is to help you reflect on the implications of the Act for your role, so that you will know what you must do differently and what you may need to do differently. Slide 2 Page 8 Slide 3 Notes 1. Personal budgets (PBs) are a key part of the government’s aspirations for a person-centred care and support system. Why? PBs have been part of government policy for a while and the Care Act guidance states that “independent research shows that where implemented well, personal budgets can improve outcomes and deliver better value for money.”1 2. The key point is that the allocation of a clear upfront indicative (or ‘ball-park’) allocation at the start of the planning process will help people to develop the plan and make appropriate choices over how their needs are met. 3. It is vital that the process used to establish the personal budget is transparent and the method used robust so that people have confidence that the personal budget allocation is correct and therefore sufficient to meet their care and support needs. 4. The personal budget is the mechanism that, in conjunction with the care and support plan, or support plan, enables the person (and their advocate if they have one) to exercise greater choice and take control over how their care and support needs are met. 5. What does exercising greater choice and achieving more control mean? Knowing, before care and support planning begins, roughly how much money is available to meet needs and having clear information about the proportion the local authority will pay, and what amount (if any) they will pay Being able to choose from a range of options for how the money is managed, e.g. taking a direct payment, or the local authority managing the budget Having a choice over who is involved in preparing the care and support plan for how the personal budget will be spent, including from family or friends 1 C Glendinning et al (2008) Evaluation of the Individual Budgets Pilot Programme Audit Commission (2010) Financial Management of Personal Budgets. Audit Commission (2011) Improving Value for Money in Adult Social Care. Ipsos Mori (2011) Users of Social Care Budgets. Page 9 Having greater choice and control over the way the personal budget is used to purchase care and support, and from whom. Key learning point The allocation of a clear upfront indicative (or ‘ball-park’) allocation at the start of the planning process will help people to develop the plan and make appropriate choices over how their needs are met. Example: Making it Real – how it feels when I am in Control “I know the amount of money available to me for care and support needs, and I can determine how this is used (whether it’s my own money, direct payment, or a council managed personal budget)” “I can get access to the money quickly without having to go through overcomplicated procedures” “I am able to get skilled advice to plan my care and support, and also be given help to understand costs and make best use of the money involved where I want and need this” Facilitator’s hints and tips One of the key issues that it might be worth discussing here is the need to raise awareness of personal budgets. At a basic level there is a need to provide clear information in different forms, but this in itself is not enough. Along with local authority staff, primary care and hospital staff involved in discharge, care agencies and voluntary and community sector organisations have a key role in signposting people to further information and advice about personal budgets. It might be useful to facilitate a discussion about the degree to which this currently happens. For minority groups there is a need for a more proactive approach which works through trusted networks and groups to explain personal budgets and the scope they provide for setting up support which is in tune with people’s cultural needs. You could ask participants to discuss the degree to which this currently happens. You could get participants to think about how they could do this better for specific minority groups (e.g. Muslim women with mental health problems). Page 10 Slide 4 Notes 1. The piloting of personal budgets was first proposed in the Prime Minister’s Strategy Unit report ‘Improving the Life Chances of Disabled People’ in 20052 and repeated in the Adult Social Care Green Paper in the same year. 2. Individual budgets were piloted by 13 local authorities in England between 2005 and 2007, the original model intending to combine the various funding streams people with care and support needs draw upon in their lives into one pot, including social care but also a range of other funding. The evaluation of the individual budget pilots concluded that they were cost-effective in relation to social care outcomes and were welcomed by budget holders because they offered greater opportunities for choice and control. 3. Personal budgets, including those with only social care funding, were subsequently rolled out from 2007 and have had the support of successive governments from all sides of the political spectrum. 4. Personal health budgets were announced by the Minister of State for Care Services Norman Lamb on 30 November 2012. This follows the three year pilot programme in the NHS, which ended in October 2012, and the publication of an independent evaluation report, led by the University of Kent3. 5. Personal health budgets are initially available for people who are eligible for NHS Continuing Healthcare, who have had a 'right to ask' for a personal health budget since April 2014 and this became a 'right to have' a budget from October 2014. Clinicians can also offer personal health budgets to others that they feel may benefit from the additional flexibility and control. The NHS Mandate commits to a further roll out of personal health budgets to people who could benefit from April 2015. 2 3 PMSU (2005) Improving the Life Chances of Disabled People Personal Health Budget Evaluation Page 11 6. The Care Act confirms personal budgets in law for people with eligible assessed needs and carers, including the right to direct payments. Key learning point The Care Act confirms personal budgets in law for people with eligible assessed needs and carers, including the right to direct payments. Slide 5 Notes 1. At the end of March 2014, 648,000 people or 62% of all those eligible for community based services, were accessing care and support through a personal budget across England; this represents a continued increase year-on-year, from 29.2% in 2010-11, to 43% in 2011-12, to 56.2% in 2012-13. 2. Of these numbers, 23.6% of people have their personal budget managed through a direct payment. Other personal budgets are either managed accounts where the council continues to arrange services for the person, or Individual Service Funds. 3. Experiences vary from poor to excellent, area to area and in take up between different groups of people, with more than 80% of people with a learning disability having personal budgets as opposed to less than 30% of people with a mental health problem. This is despite evidence that suggests people with mental health problems can be amongst the groups most likely to benefit. 4. The Personal Budgets Outcomes and Evaluation Tool (POET)4 Survey for personal budget holders and for carers of personal budget holders have been developed over several years as a way for people to report their experiences of personal budgets. 4 http://www.thinklocalactpersonal.org.uk/_library/POETSummaryFINAL.pdf Page 12 5. The latest survey in 2012-13 was undertaken with 22 volunteer councils across England. The POET survey tool gathers views and experiences from personal budget holders and their family carers. The tool is designed to measure how well the council is managing to implement personal budgets and to what effect. Specific questions investigate people’s experience of the personal budget process and the impact of the personal budget on their everyday life. 6. The tool aims to provide councils with a way of examining the outcomes and experiences of people using personal budgets and use the learning to review and improve local delivery of PBs. 7. In total, 2,022 personal budget holders completed the 2013 POET survey (with 20 councils having more than 50 respondents). As well as responding to the main survey questions, 488 of these personal budget holders also wrote comments about their experience of personal budgets. 8. In total, 1,386 carers completed the POET survey (with 15 councils having more than 50 respondents); 490 of these carers also wrote comments about the impact of personal budgets on their own lives. 9. Personal budget holders and carers varied in how long they or the person supported had held a PB, whether they received social care support before their personal budget, how their PB was managed, what support people used in planning their PB and whether the views of PB holders and carers were reflected in the support plan. 10. Over 70 per cent of people who hold a PB reported a positive impact on being independent, getting the support they need and want and being supported with dignity. 11. Over 60 per cent reported a positive impact on physical health, mental wellbeing and control over their support. 12. A further 50 per cent reported a positive impact on feeling safe in and outside their home, and in their relationships with paid supporters. The survey found only small numbers of people reporting any negative impact. 13. There were some areas where holding a PB had made little or no difference for example getting and keeping a paid job (working-age adults) or volunteering; and over 50 per cent of personal budget holders reported that their budget made no difference in: choosing where to live/who to live with, relationships with family and relationships with friends. Page 13 Facilitator’s hints and tips It might be useful to get participants to complete a mini self–assessment exercise or the full care and support planning self-assessment tool. Please read each of the statements and tick those statements that apply to you, your team or your organisation. Personal budgets and self-funding Can the people who use your service: decide the kind of support they need and when, where and how to receive it know the amount of money available to them for their care and support needs determine how this is used (whether it is their own money, direct payment, or a council managed personal budget) get access to the money quickly without having to go through over-complicated procedures get skilled advice to plan their care and support, and also be given help to understand costs and make best use of the money involved, where they want and need this. Can you: describe the elements of a personal budget explain how a personal budget is calculated within your organisation describe the system your local authority currently uses to calculate personal budgets explain any charges that the local authority imposes for putting in place arrangements to meet a person's eligible needs but whose financial resources are above the financial limit list any elements of care and support that are excluded from the personal budget identify the organisations within your local area who are able to provide support for people to help manage their personal budgets describe the process in place within your local authority for agreeing and signing off a personal budget allocation/plans list the main ways that personal budgets are allocated to the individual explain the arrangements that your organisation has in place for people to hold an individual service fund (ISF) or an account managed by a third party describe any situations where the use of pooled budgets would be beneficial Tick Page 14 Slide 6 Notes 1. This diagram illustrates the main elements of the care and support planning process. 2. If the local authority has a duty to meet a person’s needs (because it is required to or decides to meet needs) it must help the person decide how their needs are to be met, through the preparation of a care and support plan for those with ongoing needs or support plan for carers. The plan must describe what needs the person has, and which needs the local authority is to meet. 3. Everybody whose needs are met by the local authority will have a personal budget as part of the care and support plan/support plan that identifies the cost of their care and support and the amount that the local authority will make available. 4. An indicative amount should be agreed with the person at the start of care and support planning, with the final amount of the personal budget confirmed through this process. 5. At all times the wishes of the person must be considered and respected. 6. The person can choose for the personal budget allocation to remain with the local authority to arrange care and support on their behalf, and in line with their wishes, or be placed with a third-party provider on the same basis, often called an individual service fund (ISF). Note that where an ISF type arrangement is not available locally, the local authority should explore arrangements to develop this offer and be receptive to requests from personal budget recipients to create these arrangements with specified providers. 7. When someone has a personal budget they can take some or all of the budget as a direct payment, i.e. people can choose how much control they wish to take over the arrangement of their care or support. Note there is a learning module on direct payments for more detail on this. Page 15 8. The local authority is under an ongoing duty to keep the person’s plan and personal budget under review, to ensure that their needs continue to be met; they will review the plan periodically, involving the person and agreeing any necessary changes. Key learning point Everybody whose needs are met by the local authority will have a personal budget as part of the care and support plan/support plan that identifies the cost of their care and support and the amount that the local authority will make available. Facilitator’s hints and tips Personalisation is primarily an ethos requiring profound cultural change and different ways of thinking and working. Much of the early story of personalisation revolved around designing the Resource Allocation System. Getting the process right is important but shifting the culture of care should be the primary goal and this requires changes in attitude and thinking. If you have not already done so you might want to ask participants to complete the self-assessment in the person-centred care and support planning workbook. You might want to use the following table to discuss culture change: Drivers What are the policy, economic and good practice drivers for personal budgets? Current practice Describe current practice in your organisation Barriers What are the barriers preventing current practice from delivering the vision? Potential solutions What might some of the potential solutions be? Vision What outcomes do people who need support and their families and carers want (see the Making it Real ‘I statements’)? You could complete this table in discussion with the participants, and if you do, we suggest that you start with the ‘drivers’ followed by the ‘vision’, then complete ‘current practice’ followed by ‘barriers’ and finally ‘potential solutions’. Page 16 7. Elements of the personal budget Slide 7 Notes 1. The personal budget must always be an amount sufficient to meet the person's care and support needs and must include the cost to the local authority of meeting the person’s needs which the local authority is under a duty to meet, or has exercised its power to do so. 2. It is vital that the process used to establish the personal budget is transparent and the method used robust, so that people have confidence that the personal budget allocation is correct and therefore sufficient to meet their care and support needs. 3. The personal budget may be an integrated one which sets out other amounts of public money that the person is receiving, such as money provided through a personal health budget or benefits. 4. Integrated health and care, and integration of other aspects of public support are the long-term vision of the Government. This will provide the individual with a seamless experience, and can help to remove unnecessary bureaucracy and duplication that may exist where a person’s needs are met through money from multiple funding streams. 5. Local authorities should take a lead in driving the integration of support services for their population, e.g. this may involve agreeing with partner organisations, a lead organisation that agrees to oversee monitoring and assurance of all budgets the person is receiving, while still allowing each body to fulfil their statutory obligations. Key learning point The personal budget may be an integrated one which sets out other amounts of public money that the person is receiving, for example personal health budgets. Page 17 Example Akram has severe learning disabilities and has a history of self-harm. He previously lived in a long-stay in-patient unit. He now receives an integrated personal budget allowing him to live in his own flat supported at times of his choice by people he has chosen. Akram is now a part of his community and his incidents of self-harm have reduced in frequency and intensity. Questions What other public monies might a person be eligible for? To what degree does the local authority currently provide integrated personal budgets? What are the barriers? What are the opportunities? Facilitators hints and tips The PB myth-buster tool is taken from NHS England (2013) Integrating Personal budgets – myths and misconceptions (online). It is a helpful tool in discussing the challenges to developing integrated personal budgets. As a facilitator it is imperative that you have read the report and some of the resources referenced in it, as this will give you the necessary information to successfully facilitate the discussion. Key learning point The local authority should take the lead in agreeing with partner organisations a lead organisation that agrees to oversee monitoring and assurance of all budgets the person is receiving, while still allowing each body to fulfill their statutory obligations. Page 18 Questions Thinking of your answers to the previous questions what things might need to be done differently, to achieve integrated personal budgets, by: Your local authority? You? Slide 8 Notes 1. The brokerage fee that a local authority may charge when putting in place the necessary arrangements to meet eligible needs of a person whose financial resources are above the financial limit, but who has requested the local authority meet their needs, is not part of the personal budget, since it does not relate directly to meeting needs, but it may be presented alongside the budget to help the person understand the total charges to be paid. 2. An additional payment or a “top-up” a person makes in order to be able to secure the care and support of their choice (where this costs more than the local authority would normally pay for such a type of care) does not form part of the personal budget. 3. The Care and Support (Personal Budget Exclusion of Costs) Regulations 2014 set out that the provision of intermediate care and reablement to meet eligible needs, must be excluded from the personal budget. This will mean that where either intermediate care or reablement is being provided to meet eligible needs (i.e. needs under section 18, 19 or 20 of the Care Act) the cost of this must not be calculated in the personal budget. Page 19 4. Reablement is one of four categories (crisis response, home-based intermediate care, bed-based intermediate care and reablement) identified by the National Audit of Intermediate Care; historically the other three have been provided by health staff. 5. Because there is a tendency for the terms “reablement”, “rehabilitation” and “intermediate care” to be used interchangeably, the Guidance clarifies the differences. “Intermediate care” is a structured programme of care provided for a limited period of time, to assist a person to maintain or regain the ability to live independently at home. “Reablement” is a particular type of intermediate care, which has a stronger focus on helping the person to regain skills and capabilities to reduce their needs, in particular through the use of therapy and training. It is defined as services to help people live independently, provided in the person’s own home, by a team of mainly social care professionals. 6. In cases where intermediate care/reablement is provided to meet needs, either in isolation or combined with longer-term care and support, the plan should describe what the package consists of and how long it will last. Key learning point Where either intermediate care or reablement is being provided to meet eligible needs the cost must not be included in the personal budget. Facilitator’s hints and tips One of the key issues to explore here is the interface between reablement and the take-up of personal budgets. Much of the difficulty is a result of organisations trying to bolt together an existing reablement process with a new personal budget process. Good practice suggests that there may be a need to rethink the customer pathway based on the principle that reablement is not a particular service but a journey that everyone should be supported through. For further information see the report by Helen Anderson Associates. There is a useful graphic on page 10 that might be a useful tool to structure the discussion on. Questions Thinking about the key learning point above; does this have any implications for your local authority? Does your local authority currently use the PB to show ‘other’ amounts such as top-ups? What are the implications for your local authority, and also service users? Page 20 8. Calculating the personal budget Slide 9 Notes 1. Good practice in personal budgets demands that the agreed budget is sufficient to enable the individual to achieve active citizenship. It is vital that the method used to calculate the personal budget is robust so that people have confidence that the personal budget allocation is correct and therefore sufficient to meet their assessed eligible unmet needs. 2. There are many variations of systems used to arrive at personal budget amounts, ranging from complex algorithmic-based resource allocation systems (RAS), to more ‘ready-reckoner’ or non-points based approaches. 3. Regardless of the approach used, the following specific elements are key. A mechanism for understanding needs and/or outcomes (often through a supported self-assessment questionnaire – but not always). A mechanism for scoring/weighting these needs and/or outcomes (often through a scoring framework, or ready reckoner). A mechanism for translating these scoring/weightings into an indicative upfront resource allocation (often through a financial framework). A mechanism for arriving at a final resource allocation (or personal budget). 4. Complex RAS models of allocation may not work for all client groups, especially where people have multiple complex needs, or where needs are comparatively Page 21 costly to meet, such as for deaf-blind people. It is important that these factors are taken into account, and that a ‘one size fits all’ approach to resource allocation is not taken. 5. Regardless of the process used, the most important principles in setting the PB are: Transparency: Authorities should make their allocation processes publicly available as part of their general information offer, or provide this on a bespoke basis for each person the authority is supporting in a format accessible to them. This will ensure that people fully understand how the personal budget has been calculated, both in any indicative amount given and the final personal budget allocation. Where a complex RAS process is used, local authorities should pay particular consideration to how they will meet this transparency principle, to ensure people are clear how the personal budget was derived Timeliness: It is crucial when calculating the personal budget to arrive at an upfront allocation which can be used to inform the start of the care and support planning process. This ‘indicative allocation’ will enable the person to plan how their needs are met. After refinement during the planning process, this indicative amount is then adjusted to be the amount that is sufficient to meet the needs which the local authority is required to meet under section 18 or 20(1), or decides to meet under section 19(1) or (2) or 20(6). This adjusted amount then forms the personal budget recorded in the care plan Sufficiency: The amount that the local authority calculates the personal budget to be must be sufficient to meet the person’s needs which the local authority is required to meet under section 18 or 20(1), or decides to meet under section 19(1) or (2) or 20(6) and must also take into account the reasonable preferences to meet needs as detailed in the care and support plan, or support plan. 6. These principles should ensure that the person, their carer, and their independent advocate if they have one: are fully aware of how their budget was calculated know the amount at a stage which enables them to plan their care and support accordingly can have confidence that the amount includes all relevant costs that will be sufficient to meet their identified needs in the way set out in the plan. 7. This should prevent disputes from arising, but it must also be possible for the person, carer or advocate to challenge the local authority on the sufficiency of the final amount. Page 22 8. The Care Act emphasizes the need for carer blind assessment which predetermines the need for carer neutral allocation systems. Example The assessment is carried out initially assuming no informal carer support. Carer support is then factored in and the monetary allocation adjusted to take account of the support the carer is willing and able to provide. The points allocated for need are never amended regardless of carer support. This system means that if a Personal Budget holder’s circumstances change and the carer is incapacitated or unable to provide care for a period, then the council can adjust the Personal Budget without the need for further assessment. Key learning point Regardless of the process used, the most important principles in setting the personal budget are: Transparency; Timeliness; Sufficiency. Facilitator’s hints and tips To ensure that a personal budget is sufficient it is important to accurately cost a support plan. There are two critical issues that need attention when trying to develop accurately costed support plans. Information: really good and easily accessible accurate information about the availability of support in someone's locality, and its cost – which enables people to make informed choices and prioritise alternative support arrangements – with help to do this if required. Culture: It is vital to have a process of agreeing and signing off support plans that makes it absolutely explicit how much an aggregated support plan will cost. This is probably less about technology and spreadsheets and more about a culture of support planning that knows the importance of including cost information - and that without it no decisions can be made. It will be important to keep in mind the two key issues above when discussing the questions below. The focus is often on the technicalities of budget setting when actually there is once again a need for cultural change. In trying to tease out current practice and the attitudes that sit behind it you might find it useful to have some worked examples of costed support plans that use different approaches, e.g. complex RAS system versus a ready reckoner approach. Page 23 Questions What systems does your local authority currently use to calculate personal budgets? Is it a ‘one size fits all’ approach? How transparent, timely and sufficient are the current systems? What issues may you need to consider going forward? Slide 10 Notes 1. The Act sets out that the PB must be an amount that reflects the cost to the local authority. In establishing the ‘cost to the local authority’, consideration should be given to the cost of the service at an appropriate quality, through local provision to ensure that the personal budget reflects local market conditions. 2. There may be concern that the ‘cost to the local authority’ results in the direct payment being a lesser amount than is required to purchase care and support on the local market due to local authority bulk purchasing and block contract arrangements. For example: a local authority has a block contact with a care agency whose charge per hour to the local authority is £12.50 per hour. The charge for an individual purchasing the same care is £17.50 per hour. By basing the personal budget on the price of quality local provision, i.e. the £17.50 per hour, this concern should be allayed. Page 24 Example Andrew has chosen to meet his needs by receiving care and support from a PA. The local authority has a block contract with an agency which has been providing support to Andrew twice per week. Andrew would now like more flexibility in the times at which he receives support in order to better meet his needs by allowing him to undertake other activities and consider employment. He therefore requests a direct payment so that he can make his own arrangements with another agency, which is happy to arrange a much more flexible and personalised service, providing Andrew with the same carer on each occasion, and at a time that works best for him. The cost to the local authority of the block contracted services is £12.50 per hour. However, the more flexible support costs £17 per hour (inclusive of other employment costs). The local authority therefore increases Andrew’s direct payment from £62.50 to £85 per week to allow him to continue to receive the care he requires. The solution through a direct payment delivers better outcomes for Andrew and therefore the additional cost is reasonable and seen as value for money as it may delay future needs developing. The local authority also agrees it is more efficient for them to allow Andrew to arrange and commission the hours he wants to receive support and handle the invoicing himself. 3. However, a request for needs to be met via a direct payment does not mean that there is no limit on the amount attributed to the personal budget and there may be cases where it is more appropriate to meet needs via directly provided care and support, for example: Where there is no local market for a particular kind of care and support that the person wishes to use the direct payment for, except for services provided by the local authority. Where the costs of an alternate provider arranged via a direct payment would be substantially more than the local authority would be able to arrange the same support for, whilst achieving the same outcomes for the individual. 4. In cases such as these, the care plan should be reviewed to ensure that it is accurate and that the personal budget allocation is correct. The authority should work with the person, their carer and independent advocate to agree on how best to meet their care and support needs. It may be that the person can take a mixture of direct payment and local authority arranged care and support, or the local authority can work with the person to discuss alternate uses for the personal budget. 5. The focus on wellbeing in the Care Act requires personal budget allocation systems to focus on funding outcomes. Currently there is insufficient consideration given to: Harnessing community capital and resources Page 25 Use of assistive technologies Sharing resources across services by placing them directly in the community Example An example of a tool that can help people think more innovatively by summarising what the areas of difficulty are and the levels of support needed is the 247 Grid. Below is an example of a 247 Grid. James is a 28 year old man with Autism. He currently lives at home with his Mum and Dad. James’s aspirations are to live in his own flat and this is something that his parents would like as they know James will not be able to live with them forever. Two of the skills James needs to develop to be able to live in his own flat are shopping and cooking. James and his circle of support have used the 247 grid to map out his week, including the support he needs. James receives a small personal budget and he pools this together with a friend who also needs support around shopping. Pooling their budget means that they have enough left over to support them to do a social activity together on a Saturday. James has managed to access a cookery course at his local college and his Mum helps him to practice his cookery skills twice a week. 9-11 11-12 12-2 Mon Fri Housework & Cooking Gym Volunteering Plan shopping FE Course 6-8 8-10 Pub Qui Lunch Thurs Getting up and Breakfast Weds 4-6 Gardening & Cooking FE Course Tues 2-4 Gym Volunteering Weekly shopping Swim Out with friend Church Visit brother Evening Meal 7-9 Astronomy club Sat Sun Support Code: Blue = Independent Purple = Family support Green = Community Orange = Personal Assistant support (pooled with friend) Page 26 Case study Florence Brown is 75 years old and lives alone in a house that she used to share with her husband (who died six months ago) and her two daughters. She suffers from COPD5, is frail and has restricted mobility. She has been admitted to hospital several times for short-periods because of respiratory infections. She used to smoke heavily but gave up when she was first diagnosed five years ago. She receives practical and emotional support from one of her daughters (Mary) who lives nearby, who is divorced with no children. She also has supportive neighbours. The other daughter (Jane) is willing to do what she can, but lives 100 miles away with her husband and three young children and works full-time. Assessment summary Florence has two eligible needs: Maintaining a habitable home environment – Florence is unable, without assistance, to keep her home sufficiently clean to make it safe for her given her respiratory condition. Maintaining and managing nutrition – Florence is able to consume food and drink, and do some food preparation with assistance, but she would be unable to access it without assistance. The first need is an unmet need. Even after pulmonary rehabilitation Florence is unable to meet this outcome. The second need is currently being met by Mary who prepares her Mum’s evening meal every night and takes her shopping. Florence has one ineligible need: Accessing necessary facilities or services in the local community – Florence is unable to meet this outcome without assistance but accessing the community is not something Florence is bothered about and hence it does not have a significant impact on her wellbeing. Mary also has eligible needs: Engaging in work, training, education or volunteering – it appears that Mary’s caring responsibilities are preventing her from training to be a teacher. Engaging in recreational activities – it appears that Mary’s caring responsibilities are preventing her from engaging in recreational activities Florence and Mary agree a combined care and support plan. The assessor (Joe) explains that the next step is for a personal budget to be determined that can pay for all of the services needed except for those provided 5 Chronic obstructive pulmonary disease (COPD) is the name for a collection of lung diseases including chronic bronchitis, emphysema and chronic obstructive airways disease. People with COPD have difficulties breathing. Page 27 directly by Mary. Joe explains that budget will be based on what it would cost the Council to provide these services, and that to begin with Florence will pay the full cost as she has savings that are above the upper capital limit, but as paying for care and support will mean that her savings will drop below the limit in the near future the charge will move from full-cost to means-tested. Mary has read what it says on the Council web site and is concerned about how the sum allowed is calculated. She also worries what would happen if she were taken ill – would her Mum have to go through the whole process again to access support? Questions 1. What could you do to reassure Florence and Mary and give them the confidence that their personal budget is sufficient? 2. What could you do to safeguard against the need to repeat the whole process should Mary be taken ill? Suggested answers 1. The key issue here is ensuring that the allocation process is transparent and that the information is clearly communicated to Florence and Mary. All too often allocation processes are complex and the information about how the budget is calculated is not clearly presented to budget holders. 2. The Care Act emphasises the need for carer blind assessment which predetermines the need for carer neutral allocation systems. This means that if a carer is incapacitated then the council can adjust the Personal Budget without the need for further assessment. Page 28 9. Agreeing the final budget Slide 11 Notes 1. The personal budget should be finalised at the end of the care and support planning process – to ensure that there is scope for it to increase (should the budget prove insufficient during support planning) or decrease (should the budget prove to be more than is required, for example, where unpaid support such as agreed carers support or universal services have been identified as appropriate to meet some needs during the support planning process). 2. Some local authorities are devolving responsibility for finalising budgets anticipated to come out at a fairly low level to frontline staff and/or social work team managers so as to avoid unnecessary delays and minimise the use of panels. 3. Generally, the agreement of the final budget and support plan should not involve scrutiny of specific elements of the plan on the basis of their cost alone. Consideration should be given to the cost of meeting needs as part of a wider evaluation of other aspects, such as value for money and anticipated outcomes. 4. Due regard should be taken to the use of approval panels in both the timeliness and bureaucracy of the planning and signing-off process. In some cases, panels may be an appropriate governance mechanism to sign-off large or unique personal budget allocations and/or plans. Where used, panels should be appropriately skilled and trained, and local authorities should refrain from creating or using panels that seek to amend planning decisions, micro-manage the planning process or are in place purely for financial reasons. Key learning point Some local authorities are devolving responsibility for finalising budgets anticipated to come out at a fairly low level to frontline staff and/or social work team managers so as to avoid unnecessary delays and minimise the use of panels. Page 29 Example This is one example of how a local authority has addressed the issue. Care managers can agree Personal Budgets with support plans costing up to £200 per week and team managers can approve Personal Budgets up to £400 per week. Personal Budgets with higher cost support plans have to go to team meetings or an authority-wide practice development meeting for approval. Questions Thinking about the key learning point above, is this an approach your local authority has taken yet? If no, what might be some of the implications of implementing such an approach? If yes, what issues, if any, have arisen as a result? How might these issues be addressed? 10. Use of a personal budget Slide 12 Notes 1. The person should have the maximum possible range of options for managing the personal budget, including how it is spent and how it is used. Directing spend is as important for those choosing the council-managed option or individual service fund as for direct payments. Evidence from the POET survey suggests Page 30 that people using council-managed personal budgets are currently not achieving the same level of outcomes as those using direct payments, and in too many cases do not even know they have been allocated a personal budget or, if they do, do not know the amount that has been allocated. 2. The survey also noted the importance of ensuring that help is available to the person to plan their budgets. Over 80 per cent of respondents reported having help, older people were less likely to get help, and people with council-managed budgets or direct payments looked after by someone else were most likely to get help to plan their budgets. Getting support to plan was associated with better outcomes for people from all social care groups except people with mental health issues. 3. For all social care groups, councils making the personal budget process easier was robustly associated with better outcomes for personal budget holders, and similarly for carers. These findings suggest that: Councils need to get aspects of the process close to the principles of selfdirected support They need to personalise their processes as well as the support people get at the end of the planning process, as different people have different preferences and needs and these should be reflected in the ‘customer journey’ for each person – for example, the type and level of assistance in planning support, the mechanism for managing the budget, e.g. DP, ISF, etc. The process needs to be streamlined, timely and clear, with only those limitations on flexibility that are really necessary. 4. Local authorities should take care not to inadvertently limit options and choices, e.g. “pre-paid cards” must not be used to constrain choice or be only available for use with a restricted list of providers. 5. There are three main ways in which a personal budget can be deployed: managed account held by the local authority with support provided in line with the persons wishes managed account held by a third party (often called an individual service fund or ISF) with support provided in line with the person’s wishes. Where ISF approaches to personal budget management are available locally, the local authority should provide people with information and advice on how the ISF arrangement works, how the provider(s) will manage the budget on behalf of the person, and advice on what to do if a dispute arises direct payment. 6. In addition a person may choose a ‘mixed package’ that includes elements of some or all three of the approaches above Page 31 Facilitator’s hints and tips It is important to ensure that people can make informed decisions about which deployment option would be best for them and the support they would need to make that option work. Below are some suggested exercises you could use to help explore the issues. Give some scenarios and get people to break down assumptions about which deployment option may ‘suit’ that particular person. Get participants to think through what information they give out and the opportunities they provide for people to discuss different deployment options. Discuss (particularly in relation to older people) whether there is currently a flexible interface between reablement and personal budgets. Discuss how easy it is within their current practice for personal budget holders to move between deployment options. 7. Local authorities must ensure that whatever way the personal budget is used, the decision is recorded in the plan and the person is given as much flexibility as is reasonably practicable in how their needs are met. The mixed package approach can be a useful option for people who are moving to direct payments for the first time. This allows a phased introduction of the direct payment, giving the person time to adapt to the direct payment arrangements. 8. Local authorities should give consideration to how choice could be increased by pooling budgets together, for example people living in the same household such as an adult and carer, or people within a community with similar care and support needs or aspirations. Facilitator’s hints and tips ISFs should be an important part of any local strategy to increase the uptake of personal budgets. Providers can lead the way in individualising support arrangements and extending choice and control. There are incremental steps that providers and local authorities in partnership can take, for example: Partial disaggregation Micro-commissioning Full disaggregation Depending on the experience of your participants it might be useful to discuss approaches to ISFs. The report Choice and Control for All by Groundswell Partnership is a useful resource that could help you structure this discussion. Page 32 Key learning point The person should have the maximum possible range of options for managing the personal budget, including how it is spent and how it is used. Directing spend is as important for those choosing the council-managed option or individual service fund as for direct payments. Questions What evidence do you systematically collect on the outcomes people are achieving (for example, use of the POET tool)? Does the evidence you collect allow you to compare the outcomes for different groups? What further data on outcomes and use of personal budgets might it be useful to collect? Facilitator’s hints and tips An added issue here is that even in local authorities where personal budgets have been well established, the supply of services is not keeping up with changing needs and preferences. Local authorities, in their role of market facilitation, need to take a more active role in encouraging the development of provider services. Depending on the level of experience and key learning needs of your participants, it might be useful to have a discussion about market facilitation. For further resources to help frame this discussion see the report What is Market Facilitation by IPC. Page 33 11. Use of a carer’s personal budget Slide 13 Notes 1. The assessment of the carer’s desired outcomes must include their wishes and/or aspirations concerning paid employment, education, training or recreation if the provision of support can contribute to the achievement of those outcomes. The carer is entitled to have their eligible unmet needs met in the same way as the service user. The manner in which the personal budget will be used to meet the carer’s needs should be finalised as part of the planning process. 2. Examples of “replacement care”: To enable them to attend their own health appointments To go shopping and pursue other recreational activities It might be that regular replacement care overnight is needed so that the carer can catch up on their own sleep In other circumstances, longer periods of replacement care may be needed, for example to enable carers to have a longer break from caring responsibilities or to balance caring with education or paid employment. Example Making it Real – What do carers want? “I want space to be someone other than a carer” “I want time to pursue my own hobbies and interests” “I want access to flexible support in the evenings and at weekends” “I want someone I can call on in an emergency any time day or night” “I want a sensible approach to managing risks that don’t stop me and my family having a life” 3. Local authorities must have regard to the wellbeing principle of the Act as it may be the case that the carer needs a break from caring responsibilities to look after their own physical/mental health and emotional wellbeing, social and economic wellbeing and to spend time with other members of the family and personal relationships. Examples of wellbeing: Page 34 a course of relaxation classes training on stress management gym or leisure centre membership adult learning development of new work skills or refreshing existing skills (so they might be able to stay in paid employment alongside caring or take up return to paid work) pursuit of hobbies such as the purchase of a garden shed purchase of a laptop so they can stay in touch with family and friends. Example Divya has four young children and provides care for her father who is nearing the end of his life. Her father receives a direct payment, which he uses to pay for a family member for a period of time to give his daughter a break from her caring role. Divya received a carer’s direct payment, which she uses for her children to attend summer play schemes so that she get some free time to meet with friends and socialise when the family member provides care for her father. This gives Divya regular breaks from caring which are important to the family unit. Questions Again, what information might it be useful to collect in relation to outcomes achieved and use of personal budget? How do the provisions in the Act affect the way you provide support to carers? What needs to change? Page 35 Slide 14 Notes 1. Decisions on for whom a particular service is to be provided may affect issues such as whether the service is chargeable, and who is liable to pay any charges. It is therefore important that it is clear to all individuals involved whose needs are intended to be met by a particular type of support, to whom the support will be provided directly, and therefore who may pay any charges due. 2. Decisions on which services are provided to meet carer’s needs, and which are provided to meet the needs of the adult for whom they care, will therefore impact on which individual’s personal budget includes the costs of meeting those needs. 3. Local authorities should consider how to align personal budgets where they are meeting the needs of both the carer and the adult needing care concurrently. 4. Local authorities should consider joint plans and joint personal budgets. 5. Despite the Act allowing carers to be charged, local authorities should be very cautious of this so as not to disrupt the caring relationship and therefore shift costs to the authority in the longer term. Evidence on the cost implications of supporting carers can be found in pages 48-52 of the Impact Assessment. Key learning point Local authorities should consider how to align personal budgets where they are meeting the needs of both the carer and the adult needing care concurrently. Page 36 Questions Thinking about the key learning point above, what might be some of the difficulties with doing this? How might you overcome them? Slide 15 Notes 1. In situations such as these, the carer could request a direct payment, and use that to commission their own replacement care from an agency, rather than using an arranged service from the local authority or a third party. The local authority should take steps to ensure that the wishes of the adult requiring care are taken into account during these decisions. For example, the adult requiring care may not want to receive replacement care in this manner. 2. If such a type of replacement care is charged for (and it may not be), then it would be the adult needing care that would pay, not the carer, because they are the direct recipient of the service. This is in part why it is so important that the adult needing care is involved in the decision-making and agrees to receiving that type of care. The decisions taken by the carer and adult requiring care should be agreed and recorded in the support plan. 3. If a dispute arises and the person refuses to pay the charge, the local authority must, as far as it is feasible, identify some other way of supporting the carer. Page 37 Example David has been caring for his wife, Elaine, who has dementia, for the last 2 years. He does all the cooking, driving and general household duties for her. David receives a personal budget which he receives in the form of a direct payment. David wants to use his direct payment to pay for membership at the golf club. He had planned on finding a ‘sitter’ to look after Elaine so that he could play golf. The problem is that Elaine does not want anyone she doesn’t know coming into the house and so she will not agree to the support plan. Question Thinking about the example above; what could you do to support David and Elaine to find a solution and agree on a joint support plan? Question What safeguarding issues may you need to consider? Page 38 12. Appeals/disputes Slide 16 Notes 1. The local authority should take all reasonable steps to limit appeals or disputes regarding the personal budget allocation. 2. Reducing appeals and disputes will include thorough effective care and support planning, and transparency in the personal budget allocation process. 3. Additionally, many disputes may be avoided by informing people of the timescales that are likely to be involved in different stages of the process. Keeping people informed how their case is progressing may help limit the number of disputes. 4. As at July 2014, complaints provision for care and support is set out in Local Authority Social Services and NHS Complaints Regulations 2009. The Act will introduce new rights to appeal certain decisions in 2016 (consultation on this due end 2014). Page 39 13. Summary Slide 17 Facilitator’s hints and tips What is important here is to get people to think outside their own role and that of their organisation. Links need to be made across organisations for example the personalisation agenda creates opportunities for the Voluntary and Community sector to be at the forefront of driving radical change in how care is designed and a key role in supporting people to access personalised support. Think Local Act Personal (TLAP)’s work suggests that there are benefits in taking a strategic approach combining a range of linked activities such as: Building mutual support and self-help Facilitating connections between individuals and resources Enabling inclusion in community activities Strengthening community ownership Reshaping services You may wish to use the list above and the information in the resource that is referenced to help structure the conversation in response to the questions below. Questions What has struck you most about this session? Thinking about what you have learnt about personal budgets (and on any other modules you have completed so far). What links can you make between topic areas? How might the necessary changes impact on your current arrangements? What might the key challenges be? Page 40 Exercise What are your top three priorities in relation to personal budgets? Complete the action plan to identify the next steps for each priority Page 41 Appendices Links to key resources Audit Commission (2010) Financial management of personal budgets. This report examines personal budgets in adult social care and considers the financial management and governance implications for councils. It reviews the approaches to transition from providing services to providing personal budgets, the choices for allocating money, and how councils can plan for the financial implications. It is aimed at finance staff and staff in adult social care departments interested in personal budgets. Healthcare Financial Management Association (HFMA) (2012) Practical Guide Direct Payments for Healthcare. This is a practical guide produced by members of the HFMA’s Commissioning Finance Group working closely with the Department of Health’s personal health budget pilot sites. The guide provides an overview of the approach and focuses on the practical issues involved in the financial management of direct payments for healthcare. Carers Trust (2012) Progressing personalisation – A review of personal budgets and direct payments for carers. This review explores implementation of personalisation for carers, focusing specifically on personal budgets and direct payments in relation to support provided to carers. It reviews evidence on current implementation and identifies areas for further policy and practice development in view of proposed changes to the law in the draft Care and Support Bill. Department of Health (2008) Managing the money – resource deployment options for personal budgets. The term ‘resource deployment’ is used within this paper to describe the ways in which an individual or their appointed representative can decide how to manage their financial allocation within a personal budget .The paper reflects the experiences and illustrates the examples of resource deployment drawn from the current system of community care, in particular direct payments, the work of In Control and the work of the thirteen individual budgets pilots. Department of Health (2010) Practical approaches to safeguarding and Personalisation. This briefing paper sets out how personalisation of support and more effective safeguarding can be mutually supportive. It shows how self-directed support can help to prevent or reduce the risk of harm and abuse. Local Government Association and Association of Directors of Adult Social Services (2014) Making Safeguarding Personal 2013/14: Selection of tools used by participating councils. A very useful collection of practical ways to actively involve adults in their own assessment, planning and control. Page 42 Local Government Association Knowledge Hub: Adult Safeguarding Community of Practice Group. Interactive site where those working in adult safeguarding can post helpful documents and exchange information to improve practice. You need to register to access this site. In Control (2005) The seven steps to being in control of my support. This guide in a poster format outlines the seven steps to being in control which includes: my money, making my plan, getting my plan agreed, organising my money, organising my support, living life, and seeing how it worked. Association of Directors of Adult Social Services (ADASS) (2010) Putting People First: Making resource allocation work in a financial environment. Good practice for personalised financial resource allocation. Social Care Institute for Excellence (SCIE) (2010) Enabling risk, ensuring safety: Self-directed support and personal budgets. This shortened report contains an outline of some of the most recent research and emerging documented practice on risk enablement and frontline practice in the context of self-directed support and personal budgets. SCIE (2011) Keeping personal budgets personal: learning from the experiences of older people, people with mental health problems and their carers. This report is a summary of people’s experiences of using self-directed support and personal budgets. The national evaluation of the Department of Health individual budgets pilots concluded that while individual budgets could enhance people’s sense of control and satisfaction with services, there was substantial variation in the benefits and experiences of older people and people with mental health problems. The aim of the research was to identify good practice in the area. NHS England (2012) Personal health budgets guide: Integrating personal budgets – early learning. This guide is one of two focusing on the integration of personal budgets across health and social care. Improving the experience and quality of care for people and supporting them to achieve better health and social care outcomes are the most important aspects of integration. This early learning guide focuses on the customer journey for integrated personal budgets. It draws out the central messages from the pilot programme and describes the six stages of the journey, with pointers to support successful local delivery. NHS England (2012) Personal health budget guide: Integrating personal budgets – myths and misconceptions. This guide is the second of two intended for local use by those delivering personal health budgets and personal budgets in social care, as a concise guide to current learning about integrating personal budgets, and as a prompt for local policy and practice development. It touches on issues relating to the wider challenge of integrating health and social care systems and services only as necessary context for its primary focus – integrating personal budgets. The guide Page 43 sets out the most common real and perceived barriers to personal budget integration as a series of myths. For each myth, a response explains the issue where necessary, refutes the myth where possible/appropriate, and presents a practical way forward. NHS England (2012) Personal health budgets – ways in which money can be held and managed. This good practice guide is for people working in the NHS who are implementing personal health budgets. It describes the different ways a person can receive a personal health budget and manage their money, details the different options available and provides examples of how these can work in practice. Groundswell (2012) Choice and control for all. This report looks at the role of individual service funds in delivering fully personalised care and support. Think Local Act Personal (2013) Improving personal budgets for older people. This report was requested by ADASS in order to explore challenges, identify positive practice and make recommendations for central and local government action on improving personal budgets for older people. Think Local Act Personal (2013) 2nd National personal budgets survey. This is a summary of the Personal Budgets Outcomes and Evaluation Tool (POET) survey which was run with 22 volunteer councils in England in 2012-13. It follows on from the first POET survey published in 2011. The POET surveys for personal budget holders and for carers of personal budget holders have been developed over several years as a way for people to report their experiences of personal budgets. The report contains main findings and next steps. Think Local Act Personal (2013) Making it Real for Carers. Includes a guide to help assess what is working and what needs to work better. This can also be used as a checklist to inform an organisation’s business planning processes and frameworks. Think Local Act Personal (2012) Making it real – marking progress towards personalised, community based support. This is a framework, led and developed by a partnership with members of the National Co-production Advisory Group, made up of people who use services and carers. It draws attention to a new phase in which we use a citizen-focussed agenda to change the kind of information that the sector values, and the way in which we judge success. National Development Team for inclusion (NDTi) (2012) Paths to personalisation in mental health. This guide has been produced to help all those involved understand how things will need to be done differently to make personalisation a reality for people with mental health needs. This is a whole system guide, so hopefully it will give some information, guidance and signposts for people, whoever and wherever they are. The guide provides information about what personalisation means for mental health services and supports, offers examples of what needs to be in place to Page 44 make things work, and provides pointers to good practice and sources of advice and information. Think Local Act Personal (2011) Personal Budgets: Taking Stock, Moving Forward. This paper provides an overview of the latest evidence – giving the clearest picture yet of how the sector is progressing with the delivery of personal budgets. There has been some important progress made, with encouraging evidence showing improved outcomes for people. However, research also suggests action is needed in a number of key areas. As an immediate first step, this paper points to where to go for further information to help address some of the challenges that have been identified and lists a number of useful documents for further reading. Think Local Act Personal (2013) Self-Directed Support: Reducing process, increasing choice and control. Self-Directed Support is a tool which disabled people can use to support their inclusion as a valued member of our society, with roles and responsibilities to help with functioning of their community. Self-Directed Support is part of the journey to reach Independent Living. Handouts Handouts, exercises and case studies relevant to this topic area: Handout: Sufficiency of the personal budget Exercise: Personal Budgets Myth Buster Tool Case study: Florence and Mary (person-centred care and support planning)