ACCESS NOTE Please use this space as you need or prefer. Sit in chairs or on the floor, pace, lie on the floor, rock, flap, spin, move around, step in and out of the room. TRIGGER/CONTENT WARNING I will talk about trauma, abuse, violence, and murder of disabled people, as well as forced treatment and institutions. Please feel free to step out of the room at any time if you need to. BEYOND THE IMAGINED NORMAL DISABILITY, PRIDE, & CULTURE Bellevue College 30 October 2014 WAYS OF THINKING ABOUT DISABILITY Disability is special barrier to overcome for benefit of others Inspiration Disability is moral failure and laziness / punishment for sin Disability is a social construct, doesn’t exist in nature Charity Moral Social Disability is tragic object of pity Medical Diversity Disability is a health problem requiring treatment/cure Disability is natural and normal PATHOLOGY PARADIGM The One Normal Disability is Defect DIVERSITY PARADIGM Many Ways of Being Disability is Natural DISABLEMENT (PRODUCT & PROCESS) Society & Culture Biology & Neurology DEFINING ABLEISM An entire system of thinking and doing that hurts disabled people. Ableism is a form of structural oppression. UNDERSTANDING OPPRESSION Systematic disenfranchisement of a particular group as a result of the power belonging to a privileged group. Oppression = prejudice + systems of power ABLEISM WORKS ACROSS SYSTEMS Cissexism Heterosexism Classism Racism Ableism Patriarchy Ageism Journalism Law & Policy Sexuality Hate Crimes Education Medicine Pop Culture Incarceration Psychology Architecture POWER DIFFERENTIALS LAW PROCEDURE SOCIETY • Guardianship • Court involvement • Requiring waiver of decision-making • Deference to professional • Presumption of caregiver benevolence • Presumption of incompetence Seclusion Compliance Restraint Aversives Indistinguishability Medical Neglect Rape Financial Exploitation Police Brutality Family Abuse and Filicide Hate Crimes Institutions Endemic Violence and Abuse NONCOMPLIANCE? Photo by Rebecca Taplin. Lydia Brown, around 2004, fifth grade, reading an Animorphs novel instead of doing math homework, and rubbing shirt sleeve against face. DISABILITY PRIDE Photo by Disability Pride Philadelphia. Lydia Brown, 2012, marching in disability pride parade, holding colorful hand-drawn sign that says Autistic & Proud. ADA ANNIVERSARY MARCH 1993 Photo by Tari Susan Hartman. Black and white photo of disability rights march, including Justin Dart Jr., with marchers holding banner that says, “Injustice anywhere is a threat to justice everywhere.” Martin Luther King Jr. COMMUNICATION DIFFERENCES Photo by UNH Institute on Disability, Autism Summer Institute Typing Sound Writing Movement Pictures Speech Echolalia DISABILITY AS CULTURE • Autistic Community: Social communication badges • People First self-advocacy groups • Deaf identity and community • Ragged Edge Magazine • FWD: Feminists with Disabilities • Sins Invalid • Krip Hop Nation • Disability Cultural Centers • Sick and disabled queers (and QTPOC) Photo from Autistic Self Advocacy Network. Collection of social communication badges with green, yellow, and red cards to indicate different levels of comfort with social interaction. TOOLS FOR CHANGE Policy Advocacy Community Empowerment • Strengthening regulations on punitive interventions, abuse, and accessibility • Training for community members by other disabled people • Developing policies for holistic & nonviolent educational spaces • Collecting independent data • Training teachers, support staff, police, prosecutors, & community members • Creating safe spaces for disabled community • Educating disabled students on selfadvocacy and coalition-building • Funding community-based participatory research projects • Leaving evidence in subversive culture • Develop community-based alternatives for families or teachers in crisis THE TAKEAWAYS Acknowledge differences Recognize disability Teach disability history Affirm different ways of being Support shared spaces Reject the pathology paradigm CONTACT Lydia Brown www.autistichoya.com (blog) www.autistichoya.net (professional site) lydia@autistichoya.com (202) 618-0187 (voice or text message)