Community Research in Cancer: “CORICA” CPCRN – Los Angeles Roshan Bastani, Antronette Yancey, Annette Maxwell, Beth Glenn, William McCarthy, Ritesh Mistry, Barbara Berman, Weng Kee Wong, Leo Morales, Jennifer Tsui University of California, Los Angeles (UCLA) CPCRN Build Research Infrastructure in Community Cancer Early-Detection DISCOVERY Vaccine Preventable Cancers Tobacco Control Obesity Prevention DISSEMINATION Infrastructure • UCLA Center of Excellence in the Elimination of Health Disparities (CDC REACH US, 2007-2012) • Asian American Network for Cancer Awareness Research & Training (AANCART), NCI funded Community Networks Program, 2000-2010. • Lance Armstrong Survivorship Center (2006-2010) • Prevention Research Center, CDC (1999-2009) WORKING Project Working Out Regularly Keeps Individuals Nurtured and Going WORKING I: 2005-08; WORKING II: 2008-13, PI: Yancey NCMHD/NIH R24 Community Partner Academic Partner LA County Dept. of Health Services UCLA School of Public Health Community Investigator Team Representatives from health & human services organizations WORKING I Planning and Pilot Phase 2005-08 WORKING II Full Intervention Trial Phase WORKING III Dissemination Phase WORKING II Study Design Recruitment 60 sites, 25 workers/site Health and Human Services Agencies Baseline Assessment Organizational Change Intervention: •Policy changes •Program champions •Photovoice •PA Competition, etc. Intervention Control 30 sites, 750 workers 30 sites, 750 workers Outcomes: Follow up 6, 12, 18 months •Objective biometrics, step test •Self-reported practices, etc. •Worksite environmental audits Recent Success Story • North East Valley Health Corporation (Debra Rosen et al.) receives HRSA Grant: Patient Navigator Outreach and Chronic Disease Prevention Program • Breast, Cervix, CRC screening and F/U – 2 year project, $1 Million (Sept 2008) – UCLA CPCRN role: navigator training and project evaluation Dissemination Grant Submissions • Community Dissemination of An Evidence-based CRC screening Intervention (Maxwell) – Among Filipino Americans, Test 4 dissemination strategies for a CRC screening intervention proven effective in prior randomized trial among • Engaging Filipino American CBOs in Tobacco Control (Maxwell) – Test 4 dissemination strategies to increase usage of the California Smokers Helpline, an evidence-based cessation approach • Disseminating and Implementing Tobacco Prevention Education or Deaf and Hard of Hearing Youth (Berman) – Test 2 dissemination strategies for a first ever evidence-based tobacco prevention curriculum, Hands Off Tobacco! An AntiTobacco Program for Deaf Youth HPV Vaccine Informed Decision-Making Pilot • LA County Office of Women’s Health: Prevention Matters! Program 1-800 Health Hotline (est. 2002): • Health education and link callers to prevention services • Seven languages: Spanish, English, Mandarin, Cantonese, Korean, Vietnamese, Armenian • 10,000 callers/year: low-income, limited English proficiency, 92% uninsured • Capitalize on this infrastructure for HPV Vaccine education, tracking of access & uptake in county, including predictors HPV Vaccine Informed Decision-Making Pilot • Survey: – Conduct at least 100 interviews per language: English, Spanish, Cantonese, Mandarin, Korean, Armenian • Informed DecisionMaking Intervention: – Pilot test brief telephone and mail intervention – link callers to services Capacity Building • Annual Symposia: – – – – Cancer Disparities 2005 Obesity 2006 Vaccine Preventable Cancers 2007 Lessons Learned from Tobacco Control 2008 • Using What Works Trainings: – Participants: CBOs, Health Depts., Funding agency (Beach Cities Health Dept), grant applicants – Follow-up technical assistance • Cancer 101 (Promotores) • CBPR (African American 5-a-day) • Using secondary data and GIS for needs assessments (NBCCEDP) UCLA School of Public Health Jonsson Comprehensive Cancer Center Division of Cancer Prevention and Control Research CORICA UCLA CPCRN Community-based Organizations Examples of Community Partners Los Angeles County Department of Public Health California Department of Public Health NCI’s Cancer Information Service American Cancer Society California’s Comprehensive Cancer Control Plan National Breast and Cervical Cancer Early Detection Program (NBCCEDP) CDC’s Prevention Research Program (PRC) Multiple Community-based Organizations N=25+ Tri-Counties Cancer Detection Partnership Partnered for Progress Northeast Valley Health Corporation Community Clinics Association of Los Angeles Cabrillo Herald Cancer Association Clinica Monsenor Oscar A. Romero Clínicas Camino del Real Cabrillo Village Cooperative Housing Rancho Sespe Cooperative Housing Asian Pacific Healthcare Venture Filipino American Service Group, Inc. South Asian Network To Help Everyone Clinic California Food Policy Advocates Esperanza Community Housing Corporation Worksite Wellness Los Angeles Academic Institutions Examples of Activities Pilot Projects Clinica Romero Community Needs Assessment Survey Farm Workers Health Survey Worksite and Employee Wellness Survey Colorectal Cancer Health Education Adaptation for South Asians Using Telephone Health Hot-line for HPV Vaccine Promotion Breast and Cervical Cancer Screening in Mixtecos Assess No Smoking Policy at Farm Worker Housing Dissemination of the 5-A’s of Smoking Cessation Training and Capacity Building UCLA Center for Excellence in the Elimination of Health Disparities (REACH US) Use of Evidence-based Strategies (Using What Works) Technical Assistance Annual Symposia Research Projects Cancer screening (breast, cervix, CRC, hep B, HPV) Tobacco Control Obesity (nutrition, physical activity) Survivorship Policy, economics, outcomes Center of Excellence for the Elimination of Disparities (REACH US, 2007-2012, CDC) UCLA: LA County Dept. of Public Health: Yancey, Bastani, McCarthy, Maxwell, Glenn, Mistry, Guinyard, Mojica Simon, Gonzalez, Harding, Gunzenhauser, Fielding Community Organizations: • LA Urban League • Worksite Wellness LA • CA Black Women’s Health Project • Asian Pacific Health Care Venture • Latino Health Access • Esperanza Housing Corp. • Dissemination: – evidence- and practice-based strategies – initial focus on obesity prevention – future years: tobacco, screening – Promote organizational level change • Worksites, churches, schools, clinics Center of Excellence for the Elimination of Disparities (REACH US, 2007-2012, CDC) • Multiple ethnic groups – Low-income Latinos, African Americans and Asians • Build infrastructure and capacity – strengthen relationships, provide training to primary community partners – Community partners train their partners and implement strategies Cancer Screening • Latino Prostate Cancer screening: informed decision-making • Hepatitis B screening among Korean Church Attendees (UW) • Follow-up of Breast Abnormalities in Low-Income Korean American Women • Colorectal Cancer Screening among Filipino Americans • Breast Cancer Educational Programs in Deaf Women • Decision Making About Genetic Testing for Breast Cancer Risk among minority women Tobacco • School-based Anti-Tobacco Programs for Deaf/HH Youth • Secondary Analysis of California Tobacco Use Prevention Education Data • California Tobacco Use Prevention Education • Pathways of How Socioeconomic Context Affects Teen Smoking Obesity • Organizational Change for Obesity Prevention: The WORKING (Working Out Regularly Keeps Individuals Nurtured and Growing) Study • Instant Recess in Stadiums and Schools with the Professional Athletes Council • Systematic Observation of Physical Activity in Worksite Stairs (SOPAWS) • Healthy Eating And Active Communities (HEAC) Project • Comparison of Healthy and Unhealthy Weight-related Ads in Communities of Differing Race/Ethnicity and SES Publishing Data from CBO Initiated Projects • Pausa para tu salud: Integration of exercise breaks into workplace organizational routine may reduce weight and waistlines – Preventing Chronic Disease, 2008 Jan; 5 (1), A12 – Lara A, Yancey AK, Tapia-Conyer R, Flores Y, Kuri-Morales P, Mistry R, Subirats E, McCarthy WJ. • Adapting a 1% or Less Milk Campaign for a Hispanic/Latino Population: The Adelante Con Leche Semi-descremada 1% Experience – American Journal of Health Promotion, In Press – Hinkell AJ, Mistry R, McCarthy WJ, Yancey AK • Tobacco Use among South Asians: Results of a Community-University Collaboration – Ethnicity & Health, In Press – Glenn B, Surani Z, Chawla N, Bastani R • Rates and sociodemographic predictors of cancer screening among South Asians – Journal of Community Health, In Press – Glenn B, Bastani R, Surani Z, Chawla, N Community Seed Projects • LA County Department of Public Health Office of Women’s – • Cabrillo Village Housing Cooperative – • Design a needs assessment tool and conduct data collection in surrounding neighborhoods. South Asian Network – • Expand cancer prevention and control outreach to Mixteco population. Clinica Romero – • Assess cancer prevention activities within health and social service organization worksites. Tri-County Cancer Detection Project – • Dissemination and Evaluation of the 5-A’s of Tobacco Cessation. Partnered for Progress: Los Angeles County Cancer Detection Partnership – • Assess the impact and functioning of a no-smoking policy at affordable housing complexes. H/LATEN: Hispanic/Latino American Tobacco Education Network and NCI/CIS – • Enhance outreach to promote cancer screenings in Spanish-speaking low-income families. Cabrillo Economic Development Corporation – • Conduct health needs assessment in farm worker housing communities. Clinicas del Camino Real – • Use Telephone Hotline to collect data about HPV vaccine and pilot test education intervention. Adapt and disseminate materials for colorectal cancer screening in South Asians. Los Angeles Community Garden Council – Design survey to assess how community gardens impact fruits & vegetables access and consumption.