DUKE HOSPICE VOLUNTEERS CARING FOR OUR PATIENTS, THEIR LOVED ONES, AND EACH OTHER Duke Hospice Volunteer Newsletter August 2012 August and September are chockfull of educational opportunities for our Duke Hospice volunteers. Check them out, register and be challenged by our engaging speakers and seminars. First up is the First-Ever National Hospice and Palliative Care Organization (NHPCO) Virtual Conference for Volunteers and Volunteer Managers: Ignite the Future. Volunteer Day, Thursday, August 2, from 10:30 to 6:30 at our Durham office. This is a wonderful opportunity to learn and network. You can attend one session or the entire day. Please call Carolyn if you would like more information or to RSVP. We will provide snacks and lunch for those volunteers who spend the day at our virtual conference. Schedule includes: 10:30 – 12:00 Plenary: Volunteers: The Heart of Hospice Volunteers: Exceptionalism in Care and Practice 12:30 - 1:30 Spirituality at the End of Life Spirituality and religion touch deeply sensitive issues for many people. Facing death and dying can bring up these issues, not just for hospice patients but also for clinicians and volunteers. This session will highlight common spiritual needs and issues at end of life, and provide helpful suggestions for volunteers regarding their interactions with patients. 2:00 – 3:00 Surviving Ourselves--Change, Loss and Self-Compassion To effectively hold the stories of others requires a hospice volunteer to have a significant understanding of their own personal story — particularly as it relates to change, loss and grief. This session will offer participants the opportunity to explore the concepts of the wounded healer, disenfranchised grief, compassion fatigue and self-compassion in relationship to personal loss history. 3:30 – 4:30 When Communication Is Difficult: Reaching the Cognitively Impaired Patient For hospice volunteers as well as staff, the communication essential to making a connection can seem difficult, if not impossible, when the patient has a dementia disease. Understanding the diseases which lead to cognitive impairment is important, but understanding the key to communication is essential. This session will provide participants with skills to communicate differently when there is dementia – to be “with patients in the moment,” to use past memories to spark new conversation and to understand even when conversation is no longer possible. 1 5:00 – 6:00 Raising Your Ethical Antennae Of all the members of the interdisciplinary team, volunteers spend the longest stretches of time with patients and families. Thus, they are uniquely positioned to pick up on issues that may be impeding care or causing conflict. Sometimes these problems involve ethical issues, but volunteers are not well equipped to identify or articulate ethical dilemmas. This lively presentation will provide a working understanding of healthcare ethics and its role in patient care, as well as real-world tools for recognizing and articulating ethical problems. Case examples of The Disappointed Sister, Culture Clash, Drunk and Disorderly, Suffer in Silence? and The Tattling Temp will engage learners and reinforce concepts. Friday, August 3 from 8:30 a.m. – 10:00 a.m. Disenfranchised Grief in the 21st Century: New Problems, New Strategies Webinar, Duke Hospice office in Durham. Dr. Kenneth J. Koka, professor of gerontology at the College of New Rochelle and sr. consultant to the Hospice Foundation of America will present. This webinar describes disenfranchised grief as grief that is not openly acknowledged, socially sanctioned, or publicly mourned. The presentation explores the contexts and causes of disenfranchised grief as well as complications arising from disenfranchisement and emphasizes the cultural factors that can disenfranchise grief. There will be a strong emphasis on interventive strategies that can enfranchise grief. Register with Carolyn for this event. Friday, August 10 from 8:30 a.m. – 4:30 p.m. Dying Well and Caring Well for the Dying, Duke Divinity School, $20 includes seminar, lunch and parking. Assuming a Christian starting point, this seminar brings together doctors, a psychiatrist, academics, and a funeral director to address perspectives and practices in death and dying. Register or get more information from ICEOL@div.duke.edu Friday, September 7 from 7:30 p.m. – 9:30 p.m. Real Happiness: The Power of Meditation, Reynolds Theater, Duke University West Campus. Advance price $15 ($20 day of lecture). New York Times bestselling author Sharon Salzberg, cofounder of the Insight Meditation Society, tells us that happiness that is not shaken by conditions begins with imagining that such stable and open happiness exists, and could exist for us. We also need wisdom in order to know how to make such happiness real. This implies patience, perspective, and an ability to see things as they are. During this evening we will explore our notions of happiness, strength, aloneness and possibility. We'll practice meditation along with dialogue and discourse. Suitable for both beginning and more experienced meditators. For tickets or more information, call 919-286-1207. Friday, September 14 from 8:30 a.m. – 4:00 p.m., Durham Hilton, 3800 Hillsborough Rd., Durham. One Day at a Time … Creative Approaches to Care for Those with Memory Disorders. Nationally renowned dementia expert Teepa Snow will present a daylong workshop for professionals and caregivers. You will gain skills and knowledge to allow you to care for and communicate more effectively with those who have memory disorders, dementia and / or Alzheimer’s Disease. Everyone in our community is invited to attend (registration is $60). Contact April Perry at april.perry@duke.edu to register or for more information. Carolyn can give you information on the discounted rate for Duke Hospice Volunteers. 2 Duke Home Care & Hospice Volunteer Opportunities: Craft opportunity: Crocheting Hearts of Hospice heartshaped bookmarks as mementos for families / caregivers to be used by in-patient unit staff in time-ofdeath rituals. Sue Blancato has identified this new opportunity and is interested in gathering like-minded volunteers to crochet these beautiful teal and purple (hospice colors) hearts. An experienced crocheter can make one in 15-30 minutes. For the novice, we have crocheting instructions. For everyone, we have the bookmark pattern as well as materials to get you started. Give it a try. The families love them. We are also looking for someone to design a simple card to be given to families/loved ones to explain the bookmark. Due to the success of her initial groups, Sue is scheduling an additional session for Friday, August 10 at 1:00 p.m. at the Durham office. If you are interested in participating, contact Sue at sueblancato@ymail.com. Recognizing our veterans at the end of life: Our volunteer veteran’s recognition program is off to a great start! These moving ceremonies have prompted powerful stories and heartfelt expressions of gratitude from family and friends to our dying vets. We are looking for additional volunteers who are veterans to help us present pins and certificates to veteran patients to let them know we value their service to our country. If you are a veteran and are interested, please contact Carolyn. If you know vets who would be interested in this program, please pass Carolyn’s contact information along. Nonveteran volunteers have been enormously helpful and are certainly welcome to participate. The August Admission Packet Assembly (aka PAPER SLAM!) workday will be Saturday, August 25 from 9 a.m.-noon at the Durham office. Call Carolyn if you would like to participate. This is a low investment / high impact project we undertake almost every month to keep the paperflow in the agency running smoothly. Please grab a friend or two and come along. Snacks are on us! All our programs value the volunteer support they receive and we have many requests for additional weekday clerical support at the Durham office as well as the Bereavement Center. If you have time to make a regular commitment, please consider this important project: We need volunteers to make customer service phone calls weekday afternoons from the Durham office. If you or someone you know might be interested in helping, give Carolyn a call. Patient family / support volunteer focused-weekend training will run September 22-24. If you or some generous-hearted person you know are interested in training for some of the most rewarding volunteer work you’ll ever do contact Carolyn Colsher for more information and to register for a place in the class. If you love to read and to discuss smart books with smart people, please join the Duke Hospice book club. Under Rana Davis’s guiding hand, the group will be reading and discussing Losing My Mind: An Intimate Look at Life with Alzheimer’s by Thomas DeBaggio, Monday, August 20 at 6 p.m. at our Durham office. If you would like to participate or want more information, contact Rana at rcmccutchen@earthlink.net or call Carolyn for Rana’s phone number. For more information see the Continuing Education BookNotes article of August 2010. 3 The 2012-13 season at Playmakers Repertory Theater in Chapel Hill cranks up in September with John Logan’s Tony Award winner “Red” and runs through the spring with a full schedule of Tony and Pulitzer winners and theater classics galore. If you would like to be on the contact list for the free tickets available through their Spotlight on Service program, please let Carolyn know. Our volunteers who attend these performances rave about their quality and sign up early. Patient / family support volunteers—Training update. A new module on seizures is being added to the training manual. Please contact Carolyn for your copy of the information handout. And a question for you volunteers on the front line—in the homes and nursing facilities that are the homes of our patients: Do you ever get stumped by a situation in your volunteer work? Use the resources of your hospice team to support your work with your patients and families. Call Carolyn or Gricelle to talk things over or to ask to be connected to the nurse, social worker, chaplain or nursing assistant caring for your patient. Cake and Conversation—Many thanks from Carolyn to the many volunteers who joined her for this opportunity to share special events in our lives and to network. Special thanks to Anne Weston for organizing the event and providing so many special touches. Dialing Reminder: All calls with a 919 area code must now be dialed using the ten-digit number. August is expected to be another sizzler of a month. Please refer to last month’s continuing education article on living well in the heat. Take care of yourself and watch out for your patient’s comfort. A RESOURCE FOR YOU Continuing Education for August: Helping You Prevent Falls at Home. For more information contact: Carolyn Colsher, DHCH Volunteer Services Supervisor (919) 479-0385 (phone) (919) 970-0227 (pager) carolyn.colsher@duke.edu Gricelle Font, DHCH Volunteer Program Coordinator (919) 479-0499 gricelle.font@duke.edu Website: dhch.duhs.duke.edu When we honestly ask ourselves which person in our lives means the most to us, we often find that it is those who, instead of giving much advice, solutions, or cures, have chosen rather to share our pain and touch our wounds with a gentle and tender hand. The friend who can be silent with us in a moment of despair or confusion, who can stay with us in an hour of grief and bereavement, who can tolerate not knowing, not curing, not healing and face with us the reality of our powerlessness, that is a friend who cares. Henri Nouwen And thank you, as always, for everything you do for our patients and families. Carolyn and Gricelle Mission Statement: Duke HomeCare & Hospice will provide innovative, thoughtful care, using an interdisciplinary team approach, to achieve the best possible outcomes for the patients, families and communities we serve. 4