DUKE HOSPICE VOLUNTEERS CARING FOR OUR PATIENTS, THEIR LOVED ONES, AND EACH OTHER Duke Hospice Volunteer Newsletter May 2012 From the desk of Gricelle Font: Joining Duke HomeCare & Hospice’s family is a very exciting stage of my career. I have found a home here with such a dedicated group of professionals and volunteers working together to enrich the lives of the patients and families they serve on a daily basis. I look forward to years of service with you and am eager to offer my years of experience in social services, medical interpreting, and communications, some of which were with HAND (Health Arts Network @ Duke) and with the North Carolina Clinical Translational Sciences in Chapel Hill. Chapel Hill is also my home, where I live with my husband and our pets, Fifi and Bunky, a Cairn Terrier and a Chartreux. My 25 year old son Ian lives and works in Florida for Merrill Lynch. When not at DHCH, I enjoy gardening, cooking, and tennis. It was a delight to meet so many of you at the Volunteer Recognition Events and I look forward to meeting more of you soon. Thanks to everyone who participated in our volunteer recognition events. It was wonderful to have a chance to network and catch up with everyone who attended. Please know that you are all valued for the unique talents and the special kind of caring you offer to our patients, families, staff, and community. In recognizing hospice and palliative care volunteers for their work over the last 30 years, NHPCO president and CEO J. Donald Schumacher stressed that these caregivers [that is, YOU] are “angels working among us.” DHCH and their patients couldn’t agree more. Duke Home Care & Hospice Volunteer Opportunities: Hospice Tuck-In phone calling program. It occasionally happens that a caregiver will be so focused on the moment or the task in front of her / him that the concept of planning for the weekend (when many services are closed or on reduced schedules) slips right by until there’s a problem—shortages of medications or supplies, a foreseen but temporarily forgotten complication in the care routine, a scheduling glitch. A new program will make sure that the patient / family gets a call on Thursday to see how they are doing and to identify any needs for the coming weekend. A volunteer will call from the Durham office, check in with the family, and pass along any needs to the appropriate team member. Please give us a call if you would like to help. Recognizing our veterans at the end of life: We are developing a new program to recognize the service of our patients who are veterans. We are looking for volunteers who are veterans to help us present pins and certificates to veteran patients to let them know we value their service to our country. If you are a veteran and are interested, please contact Carolyn. If you know vets who would be interested in this program, please pass Carolyn’s contact information along. Nonveteran volunteers who would like to help with this program are also welcome. 1 All our programs value the volunteer support they receive and we have many requests for additional weekday clerical support at the Durham office as well as the Bereavement Center. If you have time to make a regular commitment, please consider these projects: Additional volunteers are needed to help with the monthly bereavement mailing on the 3rd Thursday morning of each month at Unicorn Bereavement Center in Hillsborough. Volunteers interested in helping with data entry projects needed at Hock Family Pavilion and the Durham office. Volunteers to make customer service phone calls weekday afternoons are needed at the Durham office. If you or someone you know might be interested in helping, give Carolyn a call. Volunteer Training manual update. It is time again to update the training manual used in our patient / family support volunteer training. Several volunteers have started to help us revise the training manual to reflect our new procedures, policies, research, and resources. If you have ideas or suggestions or would like to be involved in any way, please let us know. Speaking of Patient / Family support volunteer training: Our next training class is tentatively scheduled for the weekend of June 8-10. If you would like to work one-on-one with hospice patients and families or know someone in the community who would, please give Carolyn a call. Also, if you’d like to refresh your own training or share your experiences with the new recruits, Carolyn would love to hear from you too. Hock Family Pavilion Volunteer receptionist / ambassadors training is also coming soon. If you or anyone you know would like to volunteer to answer phones, greet visitors, and provide general support at HFP, please let us know so we can schedule training in late May or early June. Because the ambassadors staff the front desk at the HFP for 12 hours a day, 7 days a week, every day of the year, we have a continuing need for caring and compassionate people who will be the face of Duke Hospice to every new visitor to the inpatient unit. Maybe you? The May Admission Packet Assembly (aka PAPER SLAM!) workday will be Saturday, May 12 from 9 a.m.-noon at the Durham office. Call Carolyn if you would like to participate. This is a low investment / high impact project we undertake almost every month to keep the paperflow in the agency running smoothly. Please grab a friend or two and come along. Snacks are on us! Whoops! A patio in our Hospice at the Meadowlands Adopt-a-Patio Volunteer Program still needs to be adopted. The Meadowlands gardens are a source of beauty and delight to our patients and their families during their time at the Meadowlands. If you can imagine a small oasis of color, texture, and fragrance to delight the senses and can bring that image to life, give Carolyn a call. If you are a designer but not a planter (or vice versa), see if Carolyn can match you up with a partner to share the work. You and our patients will be glad you did. If you love to read and to discuss smart books with smart people, please join the Duke Hospice book club. Please call Carolyn if you would like to participate, help choose books for the group to read, or are willing to facilitate this group. We have a number of interesting new books in the Volunteer Services library. Come take a look and be inspired. 2 News from the DHCH Development Department: Just a few tickets left for the 10th annual Oh, What a Night! Gala to be held Saturday, June 2, 2012, at the Washington Duke Inn. Your $100 ticket includes dinner, dancing to the Craig Woolard Band, drinks, and live and silent auctions filled with an array of great (Oh, my gosh!!) trips (Aruba, New Bern, Hilton Head, Palm Beach, FL, or a cruise), jewelry (diamond hoop earrings and custom pieces), unique experiences, gift certificates to local upscale restaurants, original artwork, a oneof-a-kind guitar autographed by Paul McCartney and Ringo Starr (Oh, my gosh, again!!), and much more. Spots are quickly filling up, so if you’re planning to attend, please contact Dale Horton today at dale.horton@duke.edu or 919-479-0318 to purchase your ticket! Tables for 10 are also available for purchase. Visit www.dhch.duhs.duke.edu for more information. CultureVision: a new resource for understanding diversity Duke University Health System has recently subscribed to a comprehensive database that supports culturally competent patient care to more than 50 ethnic, cultural, religious, and ability groups. Is your patient a Wiccan or Burmese or Roma/Gypsy? There is information on all of these groups and more. Unfortunately, this database is limited at this time to Duke computers, but if you have questions about the ethnic or cultural practices around death and dying of a specific patient or caregiver, give us a call and so we can find you information that might help you better support your patient and family. Our next Care Shawl meeting will be on Thursday, July 19, 7 to 9 p.m. at Chapel Hill Bible Church. If you are interested in participating in a weekday group at the Durham office, please let Carolyn know. As you may know, this is one of our most popular volunteer activities. Some patient is waiting for your gift of love. What happens when a patient with a diagnosis of stage IV inflammatory breast cancer that has already spread to her spine refuses to follow the familiar path of surgery, radiation, and chemotherapy? And she also rejects alternative remedies outside mainstream medicine? The Diane Rehm Show of April 16, 2012, follows the story of Amy Berman, senior program officer of the John A. Hartford Foundation, from her diagnosis 18 months ago to her journey with palliative care for her disease. To listen to Amy’s story and the comments of Dr. Diane Meier, director of the Center to Advance Palliative Care at the Mount Sinai School of Medicine, go to http://thedianerehmshow.org/shows/2012-04-16/facing-death-choosing-quality-life-overaggressive-treatment “An Evening of Mindfulness” Wednesday, May 16, 6:30-8:00 p.m. at Duke Integrative Medicine, 3475 Erwin Rd, Durham. Experience the benefits of stress reduction with a national leader in the field, Dr. Jeff Brantley. Enhance your ability to cope with day-to-day stress—related to your family or your job. Reduce common physical symptoms and improve the quality of your life. Learn skills for dealing with anxiety, depression, and other psychological symptoms. Experience greater joy and enthusiasm for life. Registration for this FREE event is limited. Call 919-681-2958 for more info. We would love to hear your experiences with stress reduction techniques. 3 “Is my patient Latin or Hispanic; How to tell the differences…” Friday, May 18, 9-10 a.m. at the Durham office. Not all Spanish-speaking hospice patients and families share common cultural experiences with each other or with most of our hospice volunteers. In this brief presentation, Gricelle Font will discuss cultural differences (regional and continental), help you gather information and establish trust, and communicate effectively. Learn how to support your Spanish-speaking patients with heightened sensitivity and respect. “Perspectives on Grief” Friday, June 22, 8:30-10:00 a.m. at the Durham office. Kristen Register Lakis, a candidate for the M.Div. (Duke) and M.S.W. (UNC-CH) this spring, will introduce participants to perspectives on grief from the field of social work and the Christian tradition. This program is intended to increase your knowledge of clinical grief theory and faithbased perspectives on grief, to increase your awareness and knowledge of disenfranchised grief, and to increase your awareness of faith-based bereavement care. Watch for the First-Ever National Hospice and Palliative Care Organization (NHPCO) Virtual Conference for Volunteers and Volunteer Managers: Ignite the Future, July 30—August 3, 2012. Recognizing that the economy prevents hospice volunteers and their managers from traveling far for continuing education and training programs, NHPCO is organizing a virtual conference. You don’t need a plane ticket and you don’t need to pack in order to have a wonderful opportunity to learn and network. Thursday, August 2, is specifically designed for volunteers. Topics include spirituality at the end of life, self-compassion, non-communicative patients and families, ethics. Save the date. And let Carolyn know if you’d like to attend. A RESOURCE FOR YOU Continuing Education for May—“10 Suggestions for Living: Advice from a Tibetan Hermit and My Mother” by Stan Goldberg Dialing Reminder: All calls with a 919 area code must now be dialed using the ten-digit number. For more information contact: Carolyn Colsher, DHCH Volunteer Services Supervisor (919) 479-0385 (phone) (919) 970-0227 (pager) carolyn.colsher@duke.edu Gricelle Font, DHCH Volunteer Program Coordinator (919) 479-0499 gricelle.font@duke.edu Website: dhch.duhs.duke.edu Act as if what you do matters. It does. ---William James And thank you, as always, for everything you do for our patients and families. Carolyn and Gricelle Mission Statement: Duke HomeCare & Hospice will provide innovative, thoughtful care, using an interdisciplinary team approach, to achieve the best possible outcomes for the patients, families and communities we serve. 4