st r op
dy
h
l
mus
cu
Western Canada
e infowest@muscle.ca
Atlantic Canada
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Quebec
einfoquebec@muscle.ca
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Suite 900
Toronto, ON
M4P 2E5
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Vancouver, BC
V6H 1H6
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Dartmouth, NS
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T5T 2E3
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E3C 1N8
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Toronto, ON
M4P 2E5
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a
locations
y
c
a
r
rs of progress
1954-2014
825 Sherbrook St
Suite 204
Winnipeg, MB
R3A 1M5
t 1-888-518-0044
204-233-0022
f 204-975-3027
“I knew finding a cure would have to be a long-term goal,
that we’d have to be patient. I also knew a cure wasn’t going to
happen in my son’s lifetime, maybe not even in my own, but I
knew it would help future generations. In fact, the research the
organization has supported over the years is already beginning
to pay dividends, and that makes me very happy.”
“Behind all our efforts is a common motive,
compassion. And accompanying our success, when
that day comes, will be a common share of glory.”
—Arthur Minden,
Co-founder and first President of Muscular Dystrophy Canada
To view our digital
version, please visit
muscle.ca/annualreport
muscle.ca
Charitable Registration Number:
10775 5837 RR 0001
annual report • 2013 /2014
—Dr. David Green,
Founder of Muscular Dystrophy Canada
60 Years of Progress
impact
1992
impact
1960
More strides in research:
When Muscular Dystrophy Association of
Canada was founded, the causes were
unknown. Over the years, doctors and
scientists have identified the genes for spinal
muscular atrophy; Duchenne muscular
dystrophy; myotonic dystrophy type 1 and
type 2; facioscapulohumeral muscular
dystrophy, and limb-girdle muscular
dystrophy, among many others. Every
advancement contributes to developing new
therapies and brings us closer to a cure.
Six years into our existence,
MDAC has 36 research
projects underway at
20 medical centres
across the country.
B e ca u s e e v e r y e x t r a
moment with a loved one
ma t t e r s : Life expectancy in boys
with Duchenne muscular dystrophy
increases from 14.4 years in the 1960s
to 25.3 years in the 1990s.
1980
There are 22 clinics
across the country. Due to
these clinics, more people
register with MDAC. We
spend $1.6 million on direct
service—the highest
amount since
founding.
1959
Dr. Robert Korneluk
announces the discovery of
the genetic fault that causes
myotonic dystrophy. Results
in an extremely accurate
diagnostic test for the
community.
1986
impact
O r g a n i z a t i o n o f m e d i ca l
i n f o r ma t i o n i n C a n a d a :
The Canadian Neuromuscular Disease
Registry, launches in 2011 to gather
medical information to increase the
understanding of neuromuscular
diseases and help facilitate research
and clinical trials.
1956
1954
September 27
Official registration of Muscular
Dystrophy Association of Canada.
MDAC was founded by Dr. David
Green and Arthur Minden. Fire
Fighters take the lead in our first
public campaign in Toronto
—more than $200,000
is raised.
2014
Muscular Dystrophy Canada
programs, services and
research reflect the changing
needs and demographics
of people living with
neuromuscular
disorders.
Fire Fighters'
contribution to MDAC
exceeds $1 million
mark.
The roots of the Walk for
Muscular Dystrophy begin
with 269 Fire Departments
participating in the ‘March
Against Muscular
Dystrophy’.
1998
impact
Three hospitals open
clinics devoted to treatment
of neuromuscular disorders
and the expansion of
therapeutic and researchbased knowledge and
skills.
2000
Drs. Andrea Richter, Serge
Melançon, and Thomas Hudson,
a research team from the Montréal
General Hospital, identify the gene
responsible for a rare neuromuscular
disorder, Autosomal Recessive
Spastic Ataxia of CharlevoixSaguenay (ARSACS).
impact
A ground-breaking
Canadian discovery:
In 1987, Dr. Ronald G. Worton and his
colleagues isolate pieces of DNA from
the gene that causes Duchenne and
Becker muscular dystrophies, leading to
the identification of the muscle protein
dystrophin, an important structural
component within muscle tissue.
D r . To s h i f u m i Yo k ota a p p o i n t e d
F r i e n d s o f Ga r r e t t C u mm i n g
R e s e a r c h C h a i r , 2 0 1 1 : Dr. Yokota
researches new and innovative therapies for treating
muscular dystrophy. The ‘Friends of Garrett Cumming
Research Chair in Neuromuscular Research’ was
established at the University of Alberta. Funding was
raised through the efforts of the Cumming family and
matched by the Alberta Provincial Government
—a first in Canada!
1974
1965
Annual revenue
exceeds $1
million.
MDAC hires the first fulltime Services' staff member
after nurse Mary Ann
Wickham fills the volunteer
role for 11 years.
Dr. Guy Rouleau of the Montréal
General Hospital and his international
team of researchers announce that they
have identified the gene and the mutation
responsible for oculopharyngeal muscular
dystrophy. Drs. Klaus Wrogemann and
Cheryl Greenberg, researchers at the
University of Manitoba, announce they
have located a gene associated
with limb-girdle muscular
dystrophy.
1995
1969
1978
The Jerry Lewis Labour Day
Telethon airs in Canada.
The Telethon now supports
both MDAC and the Muscular
Dystrophy Association in the
United States, where the
Telethon began three
years prior.
Fourth International Congress
on Neuromuscular Diseases takes
place in Montréal, with MDAC as
a major sponsor. In attendance are
1,500 biochemists, neurologists, and
geneticists from around the world.
MDAC’s stature is enhanced through
contributions of MDAC-sponsored
researchers and excellent
program planning.
1989
First myoblast transfer
trials are performed by
Dr. George Karpati and his
Montréal team on nine
boys with Duchenne
muscular dystrophy.
Dr. Alex MacKenzie of the
Ottawa Hospital Research
Institute discovers a gene
implicated in the cause
of spinal muscular
atrophy (SMA).
impact
Responding to our
c o mm u n i t y ’ s n e e d s : In 2013,
Muscular Dystrophy Canada collaborates
with clinicians and allied health professionals
across the country to produce the first-ever
Guide to Respiratory Care for Neuromuscular
Disorders, which provides user-friendly
information to help identify, prevent, delay
and treat respiratory complications.
2003
We change our
name to Muscular
Dystrophy Canada.
2007
The Walk for Muscular
Dystrophy Canada
becomes our
signature event.
“There are many challenges
with living in a rural northern
community from temperature,
family outings, to accessible shops
and transportation. In the winter,
family outings consist of visiting department stores
that are wheelchair accessible. The wheelchairs
aren’t designed to handle -40 Celsius temperatures
for any length of time. The family is working with
municipal and territorial governments towards
making transportation and local facilities more
accessible. We’ve also enjoyed travelling to France
and England and we often travel to Alaska where
we visit accessible campgrounds.”
—Steve and Michelle Beaulieu, Whitehorse, YK
board of
our
Officers
Yazmine Laroche, Chair (ON)
Jeremy Dixon, Vice-Chair (AB)
Buzz Green, Vice-Chair (ON)
Michael Kaye, Secretary (BC)
Dave Ferguson, Treasurer (BC)
Muscular Dystrophy Canada’s vision
is to find a cure for neuromuscular
disorders in our lifetime.
directors
Directors
Debra Chiabai (ON)
Dr. Katie Manders (NS)
Dr. Ken Hastings (QC)
Dr. Lawrence Korngut (AB)
Dr. Louise R. Simard (MB)
Kara Reid (NB)
Kelly Zacharias (BC)
Ken Wilson (AB)
Michel Chalifoux (ON)
Nancy Cumming (AB)
Paul McGonigal (AB)
Rob Labossiere (MB)
Ron Nicol (QC)
Rhoda Beecher (ON)
Suzanne Rancourt (QC)
Catherine Sherrard,
Chief Executive Officer
vision
our
mission
Muscular Dystrophy Canada’s
mission is to enhance the lives of
those affected with neuromuscular
disorders by continually working
to provide ongoing support and
resources while relentlessly
searching for a cure through
well-funded research.
contents
4
6
8
10
12
14
16
18
20
21
22
24
25
From left to right: Steve and Michelle (back
row) and their sons, Finn, 15 and Ross, 18,
visit the Eiffel Tower in Paris, France.
Our Passion and Commitment
Is 60 Years' Strong
Courage & Determination
By Our Side
Determination Under a Microscope
Passion Makes a Difference
A Family's Passion
Leaders in Self-Determination
A Profile in Courage
A Caring Partner
Caring Enough to Give
Individual Donors
Major Funders & Donors
Treasurer's Report and Report of the
Finance and Audit Sub-Committee
Financial Summary
Our Passion and Commitment Is
60 years’ strong
I
n September 1954, Dr. David Green and Arthur Minden founded Muscular
Dystrophy Association of Canada (in 2003, the name was changed to Muscular
Dystrophy Canada). Together, along with a small group of parents with boys
affected by muscular dystrophy, they escalated efforts to “awaken public interest to
the need for a crusade” against the disorder.
With the objectives of building community
and finding a cure for neuromuscular
disorders, commitment to both services and
research became the group’s main focus.
appointed. His University of Alberta team
is working to make history again, as they
investigate a therapeutic option to end
muscular dystrophy.
Our current research program is based on This past year, through our collaboration
partnerships with organizations, including in the E-Rare-2 initiative, two Canadian
the Neuromuscular Research Partnership, teams were awarded funding to focus on
E-Rare-2 and the University of Alberta. neuromuscular research at the Ottawa
Thanks to these partnerships and the work Hospital Research Institute. We also
of leading-edge scientists, we’re able to awarded two additional grants through
gain more research investments, greater the Rachel Fund to better understand the
funding support from generous donors and genetic, cellular and biochemical processes
involved in myotonic dystrophy.
increased recognition for our community.
The Friends of Garrett Cumming Research
Chair made history when Dr. Toshifumi
Yokota, the inaugural Research Chair, was
Catherine Sherrard, Chief Executive Officer
4
|
Annual Report 2013/2014
towards people living with disabilities.
Today, many governments are working to
adapt laws to legislate inclusiveness and
improve building accessibility. And strong
advocacy work has made all the difference
as we helped to shape strategy and lifted our
voices to educate and inform.
In the past 60 years we’ve made great
strides and attained many milestones, all
due to the generosity of so many dear
friends and supporters. Our partnership with
Fire Fighters started at the very beginning.
They are always right there, by our side.
We’re both grateful and humbled by their
achievements and commitment.
Our Volunteer Chapter members are relentless
in their efforts to promote our mission and
vision at the local level. They also help us to
understand and meet member challenges.
The invaluable contributions and support of
our passionate volunteers, generous donors,
diligent researchers and scientists, dedicated
healthcare partners and tireless staff, have
strengthened our community.
Today, people affected by muscular dystrophy
are living longer, with a better quality of
life. Many are graduating from university
or college and are actively participating
in the workforce and in their communities.
Advances in the development of medical
equipment and assistive devices have
made a tremendous impact on individuals
and their families. People are able to live
more independently, with greater mobility
and increased comfort. Through it all, our
Services' team is there to listen and offer
assistance. They are in the community
helping people with neuromuscular
disorders, to navigate complex systems,
access resources and find creative solutions
to some of their challenges.
To all of our corporate partners, particularly
Royal Bank of Canada (RBC) and Safeway,
we thank you, once again, for your
commitment to our cause. RBC, for your
enduring corporate sponsorship for our
Quebec division’s annual corporate gala,
and Safeway, whose Make Muscles Move
Campaign, in Western Canada and North
West Ontario, funds research and mobility
grants, scholarships and conferences.
Increased longevity and visibility have
changed public awareness and attitudes
The outcomes and the impact of our research
and services’ initiatives and the contributions
Yazmine Laroche, Chair of the Board
of all our supporters are a tribute to the early
work of our founders, Fire Fighters and that
small group of fearless parents, 60 years
ago. With each successive year, the efforts
of dedicated researchers and scientists
narrows the distance between our reach
and our grasp, to find a cure for Canadians
affected by a neuromuscular disorder.
“Thank you all for your contribution
to 60 years of progress.”
With all of you marching alongside us
and cheering us on, Muscular Dystrophy
Canada’s programs, services and research
will continue to reflect the changing needs
and demographics of people living with
neuromuscular disorders. Until we unlock
the research puzzle and find a cure.
We cannot say it enough. Thank you all for
your contribution to 60 years of progress.
60 Years of Progress
|
5
Initially, these courageous men and women
start fundraising for muscular dystrophy
because it’s a tradition. Over time, they
realize they’ve become involved in so
much more than a charity of choice. They
look beyond the neuromuscular disorders
and the wheelchairs—and get to know the
individuals, the families and our community.
Neuromuscular
Assistive Devices Disorders
Cure
Rooftop Campouts
Research
muscular
dystrophy
|
Annual Report 2013/2014
Support
Congenital
muscular
dystrophy
Independence
Buck4Luck
Determination
Pub Nights
es
Ralli
FamilyDonors
ring
e
Volunte
s
Donor
Ad
Join
vo
ca
the Fight
Support
n
Joi e
Cure
Caring th
cy
Inspire
Spinal
muscular
atrophy
ht
Fig
Silent
Auctions
Cu
re
Support
60 Years of Progress
O
1 ver
m 50 n
disuscu euro
ord lar ers
Passion
Quality
of Life
HarleyAdvocacy
Davidson
Treatment
Tower Support
P
Climbs Genetic Mutation Caar Wssasion Raffles
h Inspire
Respiratory Care
’
6
Here in Canada, Arthur Minden, co-founder
of the newly formed, Muscular Dystrophy
Association of Canada, noted the high public
regard for Fire Fighters. Minden reached
out to volunteer and career Fire Fighters for
assistance. Their dedication to fundraising and
enhancing public awareness of neuromuscular
disorders continues to be our community’s
single-most important source of revenue. Over
the years, Fire Fighters have raised $76 million
for research, services and advocacy for people
living with muscular dystrophy.
Each year, Fire Fighters (and their families
and friends) from 800 Fire Departments
and Associations across Canada, connect
to brainstorm community event ideas. They
look forward to offering hope and inspiration,
sparking public interest and prompting people
to give generously to the cause. And each
year, since 1954, the Fire Fighters have come
through for Muscular Dystrophy Canada.
Community
Spinal muscular atrophy
e rs
Fir ghte
Fi ight
F
Back then, George Graney of Fire Engine
Company 1 in South Boston rounded up 20
Fire Fighters for a door-to-door campaign
that yielded $5,000 for the Crowley family.
Owing to his imagination and vision, Graney
realized the Fire Fighters could do so much
more. He approached the International
Association of Fire Fighters (IAFF) with an
idea. Today, Fire Fighters raise funds and
public awareness about muscular dystrophy
on an international level.
Supportive Programs & Services
Genetic
Mutation
A
ll too often, when help is needed, residents turn to their local, trusted Fire
Fighters—and they always come through. Perhaps that’s why, more than
60 years ago, a Massachusetts’ father of two children affected by muscular
dystrophy, asked his local Fire Fighters for assistance.
Inspire Independence
Myotonic
dystrophy
by our side
Genetic
Mutation
Information
courage & determination
“As you become more
involved, you look at
the person, not the
disability or the chair.”
Education
Ladder Sits
Wine Tours
Fire Fighter and friends, circa 1970, Kingston, ON.
Advocacy
Join the
Walk for
Muscular
Dystrophy
Pancake Breakfasts
Volunteering
FillBecker
The
Boot Cure
muscular dystrophy
Equipment
Awareness
60Years
of Progress
Long-term Board member, Kelly Zacharias,
refers to his own volunteer contribution to
our community as "my food for the soul."
The Smithers, B.C. Fire Rescue, Deputy Fire
Chief adds,
Empowerment
Hope
Baseball & Golf Tournaments
Together, MDC Walks
Stronger Making
Muscles Bottle Drives
Move
Fundraising
Research
Duchenne
Together,
Stronger
es
e
tiv
sis s
As vice
e
tD
por
Sup
60 Years of Progress
|
7
Dr. Toshifumi Yokota and his research team. From left to right: Yusuke Echigoya PhD (postdoctoral fellow), Joshua Lee (graduate student),
Merryl Rodrigues (undergraduate student), Toshifumi Yokota PhD (Principal Investigator), Aleksander Touznik (graduate student), Xinran (Hannah)
Yu (undergraduate student), Punit Virk (undergraduate student), Bo (Bob) Bao (undergraduate student).
Dr. Toshifumi Yokota.
determination
u n d e r a m i c r o s cop e
W
hen Muscular Dystrophy Canada was founded 60 years ago, individuals
affected by progressive muscle fatigue and weakness were destined to
live their lives without hope of treatment or even a cure. Today, however,
research scientists know that neuromuscular disorders are caused by genetic
mutations, and this knowledge has resulted in new therapeutic options.
One of the researchers working on these
new therapies is Dr. Toshifumi Yokota, the
inaugural Friends of Garrett Cumming
Research Chair, a position created through
a partnership between the University of
Alberta and Muscular Dystrophy Canada.
Dr. Yokota’s current work focuses on several
8
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Annual Report 2013/2014
muscular dystrophy-related projects—
including analyzing dystrophin revertant
fibres and imaging muscle membrane—but
it is his work on antisense and exon skipping
therapy that promises the most immediate
therapeutic benefits.
“A goal of exon skipping therapy is to switch
from Duchenne [muscular dystrophy]
to Becker—a milder form of muscular
dystrophy,” explains Dr. Yokota. Through
morpholino treatment (the use of DNA-like
molecules to cover a gene mutation, rather
like a band-aid), the mutated part of the gene
can be “skipped” over, potentially improving
muscle function in individuals affected by
muscular dystrophy.
According to Dr. Yokota, “things look
promising for drug approval in the near future.
Injected patients have shown improvement.
They can walk farther and they’ve shown
a restoration of protein.” He does caution,
however, that exon skipping therapy, which
is mutation specific, treats only the skeletal
muscles. “The heart muscle still needs to be
addressed and we’re working on that.”
Imagine: One day, an individual affected by
Duchenne muscular dystrophy might be able
“This news is most
encouraging! I am
amazed and very
pleased with the
progress made so far
by Dr. Yokota and
his team.”
—Garrett Cumming
to visit the doctor’s office for a bi-monthly
intravenous injection to stop or slow the
disorder’s progression! Until that day comes,
there is still lots of work to be done. But
Dr. Yokota’s discoveries—and his ongoing
research into other aspects of muscular
dystrophy—show the continued progress
that we are making towards a cure.
60 Years of Progress
|
9
“The
Walks
and the
fundraising for
muscular dystrophy are
always a family affair
and we attend as many
as we can. Ayla is
always excited about
the Walks and
especially happy to
see people there
she plays power
soccer with.”
—The Young
Family, Surrey,
BC
“The Walk is a great place
to build connections within
our diverse Muscular
Dystrophy Canada
community. I find it so
empowering; from talking to
people and connecting, you feel
really empowered to keep doing
what you’re doing, and even get
out of your comfort zone to try
something new, from what
you’ve heard or learnt on
the day.”
—Candisse
McCormick,
Calgary Chapter
President and Walk
organizer, Calgary,
AB
m a k e s a d i ff e r e n c e
A
t the annual Walk for Muscular Dystrophy we celebrate more than muscles.
We celebrate each other. Participants have knocked on doors. They’ve asked
friends, neighbours, co-workers and family members to donate on-line and
sign their pledge sheets.
Each year, this signature event brings
necessary fundraising dollars that contribute
to quality programs and services and scientific
10
|
Annual Report 2013/2014
research. From May to September, in cities
and towns across the country, we walk, wheel,
roll and run together.
No matter what role we’ve played in making
the day a success, the sense of community
is the same. We’re together. And we’re
walking and rolling to make muscles move.
—Wayne Holland, Halifax member
and Chapter President
—Amanda,
Peterborough,
ON
“I am so excited
to be this
year's Walk for
Muscular Dystrophy
Ambassador. I went
to it last year with
my family and
I enjoyed it a
lot.”
—Alisha,
Winnipeg, MB
passion
Old friends and new are gathered, to share
stories, exchange information and offer
support. The coordinators are there, too.
They’ve spent countless hours planning the
event right down to the after-walk party.
“The
best part
has indeed been
meeting the families and
making the connections over
the last couple of years. Also,
it has been an important learning
moment to realize the many different
forms of muscular dystrophy that people
in our community struggle with. My advice
to newcomers to the Walk is this: Don’t be
shy! Come out and mingle, share your
stories and
enjoy the day with
us.”
“We struggled to make
$5,000 to $6,000 then Rebecca
Bourbonnais (Revenue
Development Manager) came
aboard. We said this woman’s out
of her mind when she suggested
we could raise $30,000. We
introduced a new location for the
Walk; kids’ games; an information
booth; tried to engage our families
and concentrated on teams. It
grew from there. Now we’re
trying to get $60,000.”
“The
Regina Walk for
Muscular Dystrophy
is at a great location.
We have participated
in the Walk for 4 years
and I am always
impressed with the
growing numbers every
year and the friendly
environment! Muscular
Dystrophy Canada is
an important part of our
lives as my son Jaycee
has Duchenne muscular
dystrophy. He is 13 and
we volunteer to make a
difference in the world of
muscular dystrophy!”
“The
Committee
chair, whom we didn’t
know back then,
came to see us
after the Walk;
he was very
touched and told
us: ‘You’ve inspired
me so much…it warms my
heart.’ The Walk for Muscular
Dystrophy is a gathering of
families and friends, and it’s
an opportunity to meet
wonderful people.
—Guylaine Rivard,
mother of The Incredible Felix,
Quebec City, QC
—Demyen & Jaycee Culham,
Regina, SK
60 Years of Progress
|
11
a f a m i ly ' s
passion
A
sk Board treasurer, Dave Ferguson
about his long-term commitment
to Muscular Dystrophy Canada
and he reasons that it must be something
in the family DNA.
“I come from a pedigree of volunteers,” he
explains. Born and raised in Scotland, his
mother, father and other family members
were also community-minded.
In 1981, Ferguson joined the local volunteer
Fire Department in Cowichan Bay, B.C. after
moving wife, Barb and kids, Cathy and Cam
from Prince George. “Muscular Dystrophy
Canada did a presentation for Fire Fighters
and I kind of got hooked,” he now admits.
He became a Fire Fighter advisor for Central
Vancouver Island.
Suddenly, when the sons of a Duncan Fire Fighter
and a Mesachie Lake Fire Fighter were affected
by Duchenne muscular dystrophy, Ferguson
became even more invested in the cause.
One of those young men, Adam Sohye, is
now Godfather to Ferguson’s seven-yearold grandson, Draysen. Says Ferguson: “It’s
special for Barb and I to sit back and watch
that relationship develop.”
From left to right: Dave and Barb Ferguson,
Adam Sohye, Maddex and Koltin King, Cathy and Mike
King; Back row: Tricia and Cam Ferguson, Ty Ferguson,
Kalliana King, Danica Ferguson and Draysen King.
works part-time and together, she and Mike
are raising Koltin, 15, Kalliana, 13, Draysen, 7
and Maddex, 4.
|
Annual Report 2013/2014
years ago, with plans to shave her hair and
raise $50, she raised a whopping $14,600.
Before shaving her hair, she dyed it neon pink.
And Adam, whom she’s known “forever,” dyed
his hair pink, too.
From age 4, Cathy's brother, Cam, realized he
wanted to follow in his father’s footsteps, too.
He became a Fire Fighter and a strong supporter
of people with neuromuscular disorders.
Says his father: “It warms my heart to see
everyone involved with Muscular Dystrophy Canada.”
“I didn’t expect her to wear the jacket, pants,
boots and air pack. That’s between 60 and
70 pounds,” explains her brother, who is
both a volunteer Fire Fighter and a Civilian
Class Fire Fighter at Canadian Forces Base
“It warms my heart to see everyone involved with Muscular Dystrophy Canada.”
In 2012, Cam received Fire Fighter of the
At 13, Ferguson’s daughter, Cathy (Draysen’s Year Award from Muscular Dystrophy Canada.
mum) planned her first fundraising event at the “I don’t host ball tournaments and Walks by
Fire Hall—a 24-hour danceathon. She raised myself. I get huge support from family,” he
$1,000. “We look up to Dad,” Cathy says. “He’s explains, to remove the focus from himself as
our inspiration.”
so many Fire Fighters (and Fergusons) seem to
do. His family includes wife, Tricia and children,
These days, Cathy’s married to Mike King. She
Ty, 8, and Danica, 5. “The kids are out to
says he “jumped on the passion train with the
events, ball tournaments and Walks. Muscular
rest of the family.” Also a volunteer Fire Fighter,
Dystrophy Canada is a big part of our family.”
Mike’s equally committed to the family cause.
Cathy received the 2013 regional Mary Ann Last September, Fire Fighters planned a 5 km
Wickham Volunteer of the Year award. She walk in full gear for the first-ever Nanaimo
12
Safeway Walk For Muscular Dystrophy. “I said,
‘I’ll beat you!’” Cathy exclaims and her brother
countered, “‘If you think you can!’” She raised
$4,000 to Cam’s $1,500.
Esquimalt. “She marched side by side with
us. It was a proud moment.”
When Cathy and Mike’s son, Koltin
participated in the 2012 Great Lake Walk, (a
56 km event around Lake Cowichan held on
his 14th birthday) he planned to celebrate
the day by raising $1,400. According to his
mother, “he raised twice that and blew it out
of the water.”
Younger sister, Kalliana, considers Koltin a
hero. Yet, she’s a hero in her own right. Five
In 2012, Kalliana received the Caring Canadian
Award from the Governor General of Canada.
Kalliana and her mum also flew to Los Angeles to
receive Inspiration Awards from an organization
that celebrates extraordinary women. In 2011,
she received the B.C. Community Award from
the provincial Lieutenant Governor. In 2010,
Muscular Dystrophy Canada honoured Kalliana
with the regional Mary Ann Wickham Volunteer
of the Year award and the national Courage To
Inspire award.
Says Kalliana of people affected by muscular
dystrophy: “I tell my friends, this person is exactly
the same as you and I. Maybe they’re in a
wheelchair—doesn’t mean they’re not normal.”
60 Years of Progress
|
13
suctioning and a decrease in infections and the expertise of our team members, we
hospitalizations. Parents and caregivers sleep produced a strategic report for government
better. Patients feel better, have more energy.” officials and decision-makers. As an
instrument for change, this report identified
Says Stacey Lintern, Executive Director for gaps and opportunities in education, service,
Ontario and Nunavut: “Progressive muscle advocacy and research. It also recommended
weakness can put both adults and children a leadership role for Muscular Dystrophy
at risk for respiratory failure.” She continues, Canada with a focus on action priorities.
“Access to these devices will help prevent
unnecessary complications and promote This year, with the contributions of health
healthy and active lives for adults and children care content experts across Canada,
affected by neuromuscular disorders.”
we compiled and published a Guide To
“Access to these devices will help prevent
unnecessary complications and promote
healthy and active lives for adults and
children affected by neuromuscular disorders.”
With effective respiratory treatment, a
CoughAssist™ device can help patients
feel better and have more energy.
leaders
I n S e l f - D e t e r m i n at i o n
I
n April, thanks to Muscular Dystrophy Canada’s initiative and teamwork on
respiratory care, the Ontario Ministry of Health and Long-Term Care announced
increased funding for CoughAssist™ devices.
Now, eligible individuals, including those “The right treatment at the right time can
affected by neuromuscular disorders, have improve quality of life,” explains respiratory
wider access to this vital equipment through therapist, Faiza Syed of Toronto’s Hospital
the Ministry’s publicly funded Ventilator for Sick Children. “There’s less suctioning
Equipment Pool.
between treatments, less overnight
14
|
Annual Report 2013/2014
Although the Ontario announcement shows
progress, there is still much work to be
done. In some cases, individuals affected by
neuromuscular disorders who live outside
Ontario will continue to pay for a $5,500 to
$7,500 CoughAssist™. These individuals,
affected by weakened respiratory muscles,
often turn to Muscular Dystrophy Canada for
financial assistance.
Respiratory Care for Neuromuscular
Disorders. This informative handbook for
clients and families is also available online
and published in English and French.
iratory Care
Guide to RespGuuscular
om ide des soins
for Neurpo
respiratoires
ers
ur so
Di
lesrD
pe
maladie nersonnes qui ont une
uromuscu
laire
Over the past two years, Muscular Dystrophy
Canada has invested resources aimed at
providing all Canadians with neuromuscular
disorders with better access to respiratory
health information and services.
We conducted a series of regional, inperson information sessions on respiratory
health and options for care. Along with
60 Years of Progress
|
15
a profile
In Courage
W
orry about her impending death, prompted Francine Leduc, at 17,
to contact Muscular Dystrophy Canada. “Back then, they were saying
muscular dystrophy was a fatal disease,” explains the 60-year old Ville
LaSalle, Quebec resident. “I didn’t feel like I was dying!”
At age eight, Leduc started falling down.
She began experiencing muscle weakness
and fatigue.
As an adult, Leduc managed two women’s
clothing sales' businesses of her own
and worked full-time as an administrative
assistant. “Some employers wouldn’t hire
At 11, doctors diagnosed her with muscular me because of my health issues,” she says.
dystrophy. They recommended a cod liver oil ”I wanted to know what was going on, so I
tonic and bike-riding and swimming.
had a second biopsy but they didn’t know
if it was the residual effects of myositis
(inflammation of the muscles).”
her guidance. They advised her on funding
applications. And they listened.
At 40, her symptoms returned—only
stronger. “I had trouble climbing stairs, just
like when I was eight years old. After a third
biopsy, they said it was a mitochondrial
myopathy.” At 45, her neurologist convinced
her it was time to stop working.
Leduc was matched with another client with
mitochondrial myopathy for much-needed
peer support. “Back then I was very tired.
Nothing made sense anymore. I felt lost.”
She contacted Muscular Dystrophy Canada’s
Quebec division again in 1996. Staff offered
Thankfully, Leduc’s focus shifted. Since 2005,
she’s been matched with 15 people as their
mentor in a peer support program and she
continues to receive peer support. In 2004–
2005, Leduc received the Michel Louvain,
Client of the Year award for her advocacy and
support for both Muscular Dystrophy Canada
and for people living with neuromuscular
disorders. Leduc has also delivered
presentations at Muscular Dystrophy Canada
conferences and contributed to Quebec’s
journal of muscular dystrophy.
“I want some relief
so I can live a little
more fully.”
Yolande Théorêt-Leduc and daughter, Francine Leduc enjoy the
horticultural art exhibitions at Mosaïculture, Montréal 2013.
16
|
Annual Report 2013/2014
Today, Leduc’s life is full with volunteerism,
family, friends and her boyfriend, Serge
Bélisle. Yet, living with mitochondrial
myopathy remains “a huge challenge. And
there’s also the pain. As you get older, it
gets worse. I want some relief so I can live
a little more fully,” she confesses. As a
volunteer and activist, she looks forward to
continuing to create change. The objective?
Being heard. Taking action. And getting
things done.
60 Years of Progress
|
17
a caring
partner
S
afeway’s long-term corporate partnership with Muscular Dystrophy Canada has
made a significant impact within our community. Since 2008, with the assistance
of shoppers and staff, Safeway has raised over $6.58 million to fund leading-edge
research; grants; scholarship programs and conferences.
During August, employees at Safeway
stores across Western Canada and North
West Ontario raise millions of dollars for the
Safeway Make Muscles Move campaign.
In 2013, Safeway Mobility Grants gifted over
229 families affected by neuromuscular
disorders with independence. For the past
six years, Safeway Mobility Grants have
helped pay for 572 pieces of equipment,
including assistive devices, mobility
equipment and home modifications valued
at over $2.9 million.
Safeway also funds our Empowerment in
Action (formerly Youth in Action) conferences
and the Safeway Moving Muscles Scholarship
“We are the parents of two
boys with Duchenne muscular
dystrophy. With this diagnosis
comes a life of some pretty major
obstacles. Because of your support,
we were able to have an elevatorstyle lift installed. This elevator
will give our boys the freedom
to go from one level to another
without having to ask mum or dad
for help, it opens up their world
that much more.”
—The Mulligan Family,
2013 Grant Recipient, Saskatoon, Saskatchewan
18
|
Annual Report 2013/2014
Program, which provides students with $5,000
to pursue training or post-secondary education.
“Safeway's partnership
with Muscular Dystrophy
Canada has motivated me
to raise awareness and gain
support from customers.
In my native country (the
Philippines), there is a
lack of opportunity for
community involvement.
Safeway has inspired me to
fulfill my community roles
and help my fellow citizens
in ways I was formerly
unable to.”
“When you gave me funding towards
my power wheelchair, you gave me my
independence. Now I can continue
with my daily routine. I don’t need
to be housebound.”
—Lisa Chan, Affected by chronic inflammatory
demyelinating polyneuropathy (CIDP), 2013 Grant
Recipient, Vancouver, B.C.
—Jean Vicera,
In Western Canada, the Safeway Walk for
Muscular Dystrophy helps to raise awareness
and unite the diverse community of neighbours
affected by neuromuscular disorders.
Cashier, Safeway 826,
Grande Prairie, Alberta
“I’m writing to thank you for the
scooter. I find it too difficult to even
walk a short distance. With my
employment as a farmer it has changed
my life dramatically.”
—Mark Hofer,
Affected by limb-girdle muscular dystrophy,
2013 Grant Recipient, Treherne, Manitoba
We are honoured and grateful that Safeway
shoppers and employees are committed to
raising money and awareness in support
of families and individuals affected by
neuromuscular disorders. This generosity
makes a huge difference in the daily lives of
people within our community who are now
able to live with increased independence
and improved accessibility.
“We would like to express our
deepest gratitude for your support.
Because of you, our family has
been able to get better sleep at
night. The mattress you provided
for our son has been great. ”
—Brent and Rachelle Shipley,
Parents of Kevin Shipley,
Affected by Duchenne muscular dystrophy,
2013 Grant Recipient, Cardston, Alberta
Thank you
From left to right: Kira Dixon and her daughter Ella, along with Tammy Langille
and her son Garrett, 2013 Muscular Dystrophy Canada Ambassadors.
60 Years of Progress
|
19
A Humble Man’s Planned Gift Makes All The Difference
caring
E n o u gh To G i v e
I
f all the world’s a stage, our dedicated volunteers at 38 Chapters across the
country deserve a standing ovation for their starring and supporting roles. Our
passionate Chapter members bring us together and strengthen us.
They provide educational sessions, ongoing peer
support and mentorship. They conduct outreach
to share the stories of individuals affected
by muscular dystrophy with members of the
public, from children in daycare to students,
career professionals, Fire Fighters and the wider
community. They plan and organize countless
activities to spread some joy, advocate for
change, raise awareness and essential funds.
They do it all with grace. And with the
constant awareness that, without the
generosity of our caring donors, we could
not afford to offer the programs and services
that support our community.
|
Annual Report 2013/2014
We remember Mr. Painchaud as a humble man with a commitment to philanthropy that will touch
many lives. His thoughtful, planned gift will enhance Muscular Dystrophy Canada's mission of providing
ongoing support and resources while relentlessly searching for a cure through well-funded research.
Muscular Dystrophy Canada and my wife’s
medical benefits, I don’t know what I would
have done.”
individual
Graphic designer and photographer, Nick
Vidito, 27, was diagnosed with Duchenne
muscular dystrophy at age four. At seven, he
needed a manual wheelchair and at 12, a
power wheelchair.
Adrian Cancilla
Andrew L. Csabi
Jim and Fiona Green
John Robert Wells
Josee Boisvert
Nancy E. Cumming
The Velan Family
“…the Chapter
‘saves a lot of people
grief and headaches
when they don’t
know where to go.’ ”
At the Halifax Chapter, Wayne Holland, 55,
is both Chapter President and an active
member. Initially diagnosed with limbgirdle muscular dystrophy and later, Becker “I have benefited very well from the support
muscular dystrophy, for 15 years, along I’ve received,” says Vidito. “Muscular
with other volunteers, Holland has planned Dystrophy Canada has helped me with
activities (from family bowling tournaments funding for equipment and without this
to wheelchair hockey and Youth Nights). As equipment I couldn’t live my everyday life.” A
he explains it, the Chapter “saves a lot of former Halifax Walk for Muscular Dystrophy
people grief and headaches when they don’t ambassador, Vidito’s public speaking skills
have raised awareness and sourced Walk
know where to go.”
sponsors. Last year, he raised over $4,600.
Over the years, Holland has received partial Says Vidito: “I fundraise for muscular
funding for four wheelchairs; a lift system dystrophy to give back to people in need.”
for his bedroom and breathing apparatus
for sleep apnea. He admits, “If it weren’t for
20
On November 10, 2006, Mr. Edgar Painchaud of Montreal, QC, approached Muscular Dystrophy
Canada’s staff for help. Mr. Painchaud was affected by oculopharyngeal muscular dystrophy (OPMD).
The disorder is characterized by difficulty swallowing and keeping the eyes open. As his disorder
progressed, Mr. Painchaud counted on us for information and support that enabled him to cope
and maintain a level of independence. Sadly, Mr. Painchaud died at 83. In his will, he remembered
Muscular Dystrophy Canada with a generous bequest.
$10,000 – $49,999
$5,000 – $9,999
Anonymous
Colin J. Adair
Carmyn Aleshka
John A. Rae
Kathleen Wagner
Lloyd Lawrence
Louis Gagnon
Rodeen Stein
Sarah Fritzel
Sidney Terpstra
$1,000 – $4,999
Alan Bartley
Alan Clapp
Alexandre Bilodeau
Alfred Breton-Paré
André Bordeleau
Andrew Nataraj
Ann Thomas
Annette Allen
Anonymous
Anthony Munk
Audrey Bonneau
Barbara Atkins
Barry and Esther Caplan
Benoit Martel
Bill Knight
Brian Harrison
Brian Keller
Brigitte Cyr
Bruce E. Dempsey
Bruno Caria
Carole Auclair
Carolyn & Richard Renaud
Catherine Fortin
Cetam Montérégie
Chad M. Guidinger
Chris Peirce
Colin Dunford
Dallas Barber
Daniel Désautels
Daniel McNamara
Daran Simpson
David M. Quinton
David Sutherland
Deborah McPhedran
Don & Diane McLean
Donna Galesloot
Doreen Pye
Eleanor Black
Eugene Schuh
Evalyn Baranec
Geneviève Rho
Geoff Smith
Gilles & Andrea Brassart
Glenn & Statia Buckmaster
Greg Collins
Guillaume Fortin
Hanna Kolski
Isabelle Privé
Jamie Shtay
Jean Denis Talon
Jeanette Messercschmidt
Jeff Sand
Jeffrey W. Sparks
Jo-ann Burton
Joe & Rami Chowaniec
Joël Deschênes
John E. Heathcote
Joseph Franchomme
(Papou)
Ken G. Block
Larry J. Cooper
Laurent Breton
Leo Finn
Leo Seguin
Lisa Pottie and Laurie
Bryson
Lucie Cardinal
Marc Laplante
Marc Lauzon
Marcia Penwell
Margaret A. Moignard
Marie L. Meyer
Marie-Hélène Pastor
Marie-Johanne Lacroix
(Mamou)
Mel Hoppenheim
Merv Rogers
Michael Hobart
Michel Chalifoux
Mike Andreola
Nancy Leader-Guggisberg
Nathalie Roussin
Nora L. Kozak
Olive B. Baird
Pascale Rousseau
Pat Wilson
Paul W. Peters
Peter Matheos
Ralph & Pat Engele
Richard M. Hart
Robyn Johnston
Roger Légaré
Ron R. Jasinski
Ronald A. Wasylyk
Ross Ferguson
Shirley A. Russell
Simon-Pierre Paré
Sophie Jussaume
Stephane Goulet
Sylvain Girard
Tannis Bujaczek
Terry Codd
Till Davy
Todd W. Dyck
Tom W. Turpin
Troy Jager
Valentin H. Mody
Wayne Squibb
Yazmine Laroche
60 Years of Progress
|
21
corporate/
foundation
$100,000 & over
Alberta Gaming & Liquor
Commission
British Columbia Ministry
of Housing and Social
Development
Safeway
Lowe's Companies of
Canada ULC
TELUS
The Harold Ballard
Foundation
The Tenaquip Foundation
Toronto Dominion
Financial Group
Walmart
$5,000 – $9,999
Aero Mag 2000 Inc.
Anonymous
AVW Telav
$10,000 – $99,999
Blairmore Foundation
3249531 Canada Inc.
Blakes
A.W.B. Charitable
Bombardier
Foundation
Carver PA Corporation
AGAT Laboratories
CGI
Alberta Culture
Crédit Foncier de France
Bank of Nova Scotia
Desjardins Financial Group
Financial Group
Domra Construction Inc.
Bell Canada
Eric T. Webster Foundation
BMO Financial Group
Esi Technologies
Cadillac Fairview
Fiera Capital
Corporation Limited
FlexITy Solutions Inc
CGOV
Fondation Lorenzo Di-Fraja
CIBC Financial Group
Gaz Métro
Cisco Systems Canada
Genzyme Canada Inc
Deeley Harley-Davidson
Government Of Canada
Canada
Grifols Canada Ltd
Dollarama S.E.C./L.P.
Hydro Québec
Edmonton Civic Employees Industrielle Alliance
Charitable Assistance
K.G.H.M. Mining - Craig
Fund
Mine & Mcreedy West
Ernst & Young LLP
Lacombe Waste Services Fondation Intact
349977 Ontario Ltd.
Growing Tykes Child Care Lambton Metal Service
JL Desjardins Auto
Le Devoir
Collection Inc.
Malcolm Jenkins Family
London Drugs Foundation
Foundation Inc.
Loto-Québec
Marret Asset Management
Niagara Community
Inc.
Foundation
National Bank Financial
Province of New Brunswick Group
Royal Bank Financial Group NWM Private Giving
Scott Safety
Foundation
22
|
Annual Report 2013/2014
Tournoi de Golf Karl Palin
R.W. Tomlinson Limited
Trehaven Golf Tournament
Randstad Canada
SAQ
$5,000 – $9,999
Stokes International
Sun Life Financial Group BCHRMA Jingle Mingle
Easter Egg Fundraiser For
The Coté Sharp Family
Vanessa & Andrew
Foundation
Kristy Godin Fundraiser
The Edwards Family
Charitable Foundation
The George and Kay Goldlist
named funds
and Family Foundation
British Columbia Fire Fighter
The Slaight Family
Student Bursary Fund
Foundation
Fonds Jessica Chami
Tour de la Bourse
Jeannine Choueri
Union 52 Benevolent
Friends of Fraser Earle
Society
Fraser Earle
Voyage Encore Travel Inc
Ilsa Mae Fund
W/Five Seismic Co. Ltd
Joe & Rami Chowaniec
Weiser Lock-Spectrum
Lawrie Goldlist
Brands
Memorial Fund
Rodeen Stein & Family
third party Michael Quinn
$100,000 & over
Memorial Fund
Shad's R & R
Safeway Bursaries
Victoria Foundation
$25,000 – $99,999
Emily Stoneham Fund
Environmental Services
Assoc. of Alberta (ESAA)
realized
Lashburn Fundraiser
bequests
Menchie's In store
Estate Jeanette Lewis
Campaign
O'Reilly
Ride For Doug
Sussex Golf for Muscular Estate of Céline Dupont
Estate of Edgar Painchaud
Dystrophy
Estate of Frances Beloff
Tournoi de Golf Lallier
Howard
- Repentigny
Estate of George Maurice
$10,000 – $24,999
Thornton
Barrie Dragon Boat
Estate of Isabel Emma Gault
EPIC Campaign
Estate of Lena Gertrude
Halloween Howler
Adam
Mt. Stewart Co-ed Slow
Estate Of Lillian Philis Dugar
Pitch Tournament for
Estate of Margaret
Muscular Dystrophy
Mary Harris
Dr. Michael Rudnicki was appointed to the Order of Canada (May 2014)
and honoured, both for contributing to scientific breakthroughs in the area
of muscle development, and for his leadership in stem cell research.
Photo credit: Bruno Schlumberger / Ottawa Citizen. Reprinted by permission.
Estate of Marion
Theresa Heaman
Estate of Mary
Elizabeth Rowan
Estate of Mary
Josephine Abramoff
Estate of Norman Potechin
Estate of Peter Visser
Estate of Velma
Ethel Raggett
Estate of Wilhelmina Craner
The John A. Sanderson
& Family Trust
friends of
garrett
cumming
research chair,
muscular
dystrophy
canada
rachel fund
safeway
making muscles
move campaign
Tribute Communities
Brad Sparrow
James & Debra
Cumming
John & Janet Howard
Norlien Foundation
Raymond Myzyka
& Leona De Boer
“My father was slightly
affected by muscular
dystrophy. At 14, I had
problems opening bottles and
jars. My tongue became stiff.
I’m a level 1. My 10 year-old
twins are affected. They’re a
level 2. I worry about them.”
—Michelle Walsh,
Affected by Myotonic Dystrophy,
London, ON
Safeway
We apologize for any misspellings or omissions. Please call 416-488-0030 to inform us of
any changes. Names appearing in italics indicate those who are creators of the funds.
60 Years of Progress
|
23
treasurer’s report
and report of the finance and audit sub-committee
On behalf of the Finance and Audit Committee,
I am pleased to report on the financial results
for the fiscal year ended March 31, 2014.
Muscular Dystrophy Canada had expenditures
of $5.068 million in fiscal 2014, a decrease of
$94,000 over fiscal year 2013. This decrease
was largely a result of efforts to implement
organizational efficiencies. Muscular Dystrophy
Canada’s total surplus as at March 31, 2014
was $1,398,944 an increase of $864,943
over last year.
Muscular Dystrophy Canada continues to
have a sound financial position. Total assets
reached $11.103 million as of our fiscal yearend, March 31, 2014, a significant increase
of $1,678,000 over the position recorded at
March 31, 2013 year-end.
The total expenditures for charitable programs
and services in fiscal 2014 were $3.927 million.
Total funds raised increased to $10.987 million
in the year 2013/14, versus $10.352 million in The Finance and Audit Sub-Committee would
the previous year. Contributing to this total in like to recognize and extend their sincere
the past year was a very generous bequest that appreciation to all staff who have continued
was bestowed on Muscular Dystrophy Canada. to contribute significantly to the growth of
Muscular Dystrophy Canada, growth that
Chapter revenues increased to $1.134 million allows our organization to help approximately
in fiscal 2014. The commitment and dedication 9,000 Canadians who are affected by
of both our volunteers and our staff has resulted neuromuscular disorders.
in continued growth in revenue from the Walk
for Muscular Dystrophy Canada events which On a personal note, I would like to take this
are held across the country between May and opportunity to sincerely thank the members
September.
of the Finance and Audit Sub-Committee for
their time and support to Muscular Dystrophy
The Fire Fighter campaign continues Canada and those that we serve.
to represent the single most important
revenue source for Muscular Dystrophy
Canada. In the past year Fire Fighters, from
coast to coast, raised $3.190 million. The
year 2014 marks the 60th year that Fire
Fighters have continuously demonstrated Dave Ferguson
their remarkable commitment to those Treasurer
affected by neuromuscular disorders. The
Fire Fighters’ contribution allows Muscular
Dystrophy Canada to invest in well-funded
research, and to provide a full range of
programs and services.
financial s u m m a r y
17% EVENTS
Statement of Revenue and Expenditures
Revenues:
General Campaign & Donations
Other Revenue:
Legacies
Government Grants
Investment & Sundry Income
Total Funds Raised
Expenditures:
Fundraising
Fundraising Operating Support
Management Fees
2014
2013
$9,064,081
$9,886,596
1,125,269
73,847
10,263,197
247,669
30,939
10,165,204
215,939
10,479,136
194,367
10,359,571
5,411,062
5,197,255
573,097
1,534,338
1,138,801
236,724
444,157
3,927,117
895,467
1,709,739
1,260,328
267,375
372,005
4,504,914
Volunteer Support and Governance
518,554
352,410
Excess of Revenues Over Expenditures
Before the Undernoted
Amortization of Capital Assets
Net Gain on Investments
Excess of Revenue Over Expenditures
965,391
339,931
(110,976)
544,529
$1,398,944
(95,205)
289,275
$534,001
Disclosed in compliance with the Imagine Canada Ethical Fundraising & Financial Accountability Code
Total fundraising revenues
Total direct costs & fundraising expenses
Total donations receipted for tax purposes
Total expenditures on charitable activities
2014
10,263,197
3,983,130
3,697,085
3,927,117
2013
10,165,204
4,081,173
4,172,669
4,504,914
Complete audited financial statements available upon request.
Certain comparative figures have been reclassified to conform
to the current year’s financial statement presentation.
24
|
Annual Report 2013/2014
7% DIRECT RESPONSE
1% GAMING
7% DIRECT RESPONSE
1% WORKPLACE
GAMING
FUNDRAISING
1% WORKPLACE
1% GOVERNMENT
FUNDRAISING
2014 Source of Funds
28% FIRE FIGHTERS
13%
LEGACIES
13%
LEGACIES
10% VOLUNTEER
CHAPTERS
10% VOLUNTEER
CHAPTERS
5% SERVICES
OPERATING SUPPORT
5% SERVICES
2%OPERATING
OTHER PROGRAMS
SUPPORT
12% EDUCATION
& INFORMATION
17% ASSISTIVE DEVICES
2% SUNDRY &
1%
GOVERNMENT
INVESTMENT
INCOME
2%
SUNDRY &
INVESTMENT
INCOME
11% FUNDRAISING
OPERATING SUPPORT
2% OTHER PROGRAMS
2014 Use of Funds
4,081,173
1,047,748
33,395
5,162,316
Programs & Services:
Research
Services
Education & Information Services
Other Programs
Services Operating Support
8%
INDIVIDUAL
GIVING
8%
INDIVIDUAL
GIVING
2014 Source of Funds
28% FIRE FIGHTERS
3,983,130
1,048,235
36,709
5,068,074
Net Funds Available for Programs & Services
12% CORPORATE
& FOUNDATIONS
12% CORPORATE
& FOUNDATIONS
17% EVENTS
2014 Use of Funds
17% ASSISTIVE DEVICES
42% FUNDRAISING
6% RESEARCH
12% EDUCATION
& INFORMATION
6% RESEARCH
Condensed Statement of Financial Position as at March 31, 2014
2014
2013
Assets:
Cash & Investments
$10,355,159
$8,735,055
Capital Assets
236,756
283,823
Other Assets
510,767
406,550
Total Assets
11,102,682
9,425,428
Liabilities:
Accounts Payable & Accrued Liabilities
Deferred Revenue
Commitments for Research Grants
Deferred Contributions:
Neuromuscular Research
Services
Education
British Columbia Gaming
Total Liabilities
Net Assets:
Restricted for Endowment Purposes
Invested in Board Approved Priorities
Invested in Capital Assets
Unrestricted
Total Liabilities & Resources
845,388
211,499
801,204
1,858,091
1,123,024
207,383
979,343
2,309,750
2,327,351
1,412,653
174,913
334,764
4,249,681
1,990,599
761,583
228,228
537,118
3,517,528
6,107,772
5,827,278
770,028
1,053,375
236,756
2,934,751
4,994,910
737,283
278,133
283,823
2,298,911
3,598,150
11,102,682
9,425,428
5% VOLUNTEER
SUPPORT &
GOVERNANCE
5% VOLUNTEER
SUPPORT &
GOVERNANCE