global-ny.com prime-access.com Cross-Cultural Competency in US Health Care: Reach Beyond Your Longitude. TM What you should know about disparities, demographics, and disease NovemBER 2012 02Overview 04 Looking at the Numbers 05 General Market Demographic Insights 06 The Hispanic Paradox 09 Diabetes and Hispanic Americans 10 Case Study: Venice Family Clinic 11 Race in a Post-racial America 12 Social Class in America? 13 African American Mothers and infant mortality 16 LGBT: Lesbian, Gay, Bisexual, and Transgendered People 19 Patient-Physician Encounter: Physician’s News excerpt 21 Where Are You on the Cultural Openness Scale? 25 Race, Ethnicity, Culture 26 Quiz: How Culturally Competent Are You? 35 Links and Bibliography Foreword by Anthony Marucci What hasn’t already been said about the recent emergence of the US cross-cultural population? Since the 2010 Census confirmed that Hispanic, African American, and Asian American families have become the fastest growing segment of our society, marketers have had to face the reality that their lack of cultural fluency is now affecting them where it hurts them the most—their bottom line. The US health care system in particular—originally designed as a one size fits all system—is faced with a dual conundrum. A clear shift toward treating patients as consumers has now been augmented with a culturally, behaviorally, and linguistically different audience. Over 100 million consumers experience health and disease through a unique cultural lens composed of family dynamics, lifestyle habits, chronic condition prevalence, and language preferences, among others. As an example, let’s look at the Hispanic patient audience in the US. Out of 52 million Hispanics, 31% self-identify as non acculturated, with limited English language proficiency. Statistically, these patients are more likely to have difficulty understanding health information and communicating with doctors, resulting in a reactive role when dealing with health care. The remaining two-thirds of bicultural and acculturated US Latinos take on the role of seeking out health information, interpreting it, and guiding their family members through the health care system. According to the Association of American Medical Colleges (AAMC), nearly half of all US Hispanics (46%) report having no regular doctor, not getting all of the questions answered during their doctor visits, and not having access to an interpreter when needed. As a result, Hispanic patients continue to miss scheduled appointments, fail to adhere to medication regimens, and turn to the ER for care. Recently, Global Advertising Strategies and Prime Access—two cross-cultural marketing pioneers— joined forces to form the largest independently owned health care communications firm that focuses on engaging with US Hispanic, African American, Asian American, LGBT, and other diverse US audiences. The newly formed agency brings an unprecedented value to the changing health care market—from patient education, community outreach and advocacy, DTC awareness and acquisition, prescription to OTC conversion programs, CRM analysis, and HCP cultural competency, to the team of professionals whose breadth of experience is based on their insights of the health care industry dynamics as well as clinical and behavioral cultural nuances across diverse audiences. As a health care marketing veteran with over two decades of experience, I do remember the good old days of big name drugs, large campaigns, and high profit margins. Today, we are looking at a more intricate way of communicating with the health care consumer—engaging with them on a more personal, authentic level. Albeit complex at first glance, if done correctly, it offers higher ROIs and develops deep and long-lasting consumer relationships. The document that follows is an assessment of how culture influences our health care choices. As we say at the agency, it’s not about cross-cultural marketing; it’s about marketing to a cross-cultural America. Let’s get it done right! 02 Overview No matter your country of origin, race, sexual orientation, insurance status, or job status, any of these factors—even if temporary—can make you a victim of unequal health care. We are all vulnerable. Even as inequity has become more apparent to many health care stakeholders, real and continued disparity persists and seems intractable, no matter how many initiatives, directives, programs, policies, or regulations are enacted. In this paper, we share current social thinking about crosscultural patients and the health professionals who care for them. Through awareness and education, we seek to provide you with intelligence that will help you conceive and plan marketing and educational programs that bring health care to all people—with a greater consciousness of cultural and ethnic contexts. Overview The articles in this document encourage you to reflect on the human toll of inequities. What does it mean to be fully understood? And conversely, what does it feel like to be overlooked, misheard, or miscomprehended? Imagine being sick or undergoing an unfamiliar procedure, or in any way transacting with America’s complex health care system. Often we focus on one-way communication, but an effective experience between HCP and patient is dynamic and needs to be reciprocal. A clinician’s inability to adequately decode a patient’s nonverbal emotional expressions can contribute to patient dissatisfaction with the physician. Oftentimes, this dissatisfaction is reflected in a patient’s failure or inability to comply and adhere to recommended medical treatments.1 Satisfaction and empowerment should accrue to both members in this relationship. We discuss these interactions in two case examples from the PBS series, Unnatural Causes. You can read about a program in California for Hispanic patients with diabetes, and how the Venice Health Group has significantly reduced complications by maintaining tighter glucose control. We reprise an interview with Joseph R. Betancourt, M.D., M.P.H., director of the Disparities Solutions Center at Massachusetts General Hospital, and an expert in physician cultural training. Cultural competence needs to include aspects of gender and persons with disabilities, older adults, gays, lesbians, bisexuals, and transgendered people. We highlight recent policy and institutional developments, and how these will improve access and treatment—particularly for LGBT patients who are disproportionately affected in several disease categories. Elevating our own cultural competence can be a daily exercise. To that effect, we have included a self-test that may further enlighten our readers. The national conversation regarding health care over the past two years has occurred against a backdrop of a contracting economy, an election year, Supreme Court hearings, and the passage and upholding of the Affordable Care Act. The pharmaceutical industry was an important party to this major legislation. Now, at a time of fiscal constraints and heated debate about scarce resources, how do we insure inclusiveness and maintain our commitment to the health care needs of our diverse nation? We are experiencing a dynamic industry period, marked by both exciting drug developments and disappointing failures, patent losses, issues of access, costs, fragmentation, and increased demand from a growing aging population. Could it be any more complex? As daunting as the health care landscape is, we support you in your mission by specifically pushing for culturally competent initiatives. The insights you gain will hopefully help you re-imagine your strategies in providing health care efficacy to all of our citizens. 1 International Journal of Family Medicine Volume 2012, Article ID376907,5 pages doi:10.1155/2012/376907; Physician Cross-Cultural Nonverbal Communication Skills, Patient Satisfaction and Health Outcomes in the Physician-Patient Relationship Ken Russell Coelho and Chardee Galan 03 Looking at the Numbers: Cross-cultural demographics, demands, disparities The 2010 US Census As the most-referenced database, it quantifies the trends that help us grapple with the shifts that are impacting the cultural lives of many Americans. The trends are staggering—and tell us that cross-cultural intelligence is crucial to working with these important segments that are becoming more critical by the day. Hispanic culture is big and getting bigger Accounting for most of the US future population growth, Hispanics have reached a plurality in some states. This trend, also known as “majority-minority” (the very terms will eventually become defunct), includes Hawaii (77.1% minority), California (60.3%), New Mexico (59.8%), Texas (55.2%), and the District of Columbia (64.7%).1 Hispanics are the most populous minority, 52 million in 2011—16.3% of the total US population—and have increased 3.1% since 2010. According to the recent Adweek report, California is the state with the largest Hispanic population (14.4 million) and New Mexico has the greatest percent of Hispanics at 46.7%.1 And as you’ve likely noted, this year’s presidential candidates are sharply focused on reaching Hispanic voters—giving further credence to their emerging significance as a political block. African Americans are the second largest minority in the US At 42.3 million in 2011, up 1.6% from 2010. New York has the largest population of African Americans, and Texas has the largest numeric increase in one year (up 84,000) from 2010 to 2011.1 America’s age The nation’s median age ticked up slightly to 37.3 years in 2011 (from 37.2). The ≥ 65 group increased from 40.3 to 41.4 million and included 5.7 million people ≥ 85 years. Maine had the highest median age (43.2) and Utah the lowest (29.5). Florida had the highest percentage of ≥ 65 (17.6%), followed by Maine (16.3%). Utah had the highest percentage of total population younger than 5 (9.3%).1 Asians are the second fastest-growing group Numbering 18.2 million in 2011, they grew by 3.0% since 2010. California has the highest Asian population (5.8 million) and the largest annual increase (131,000).1 1 Adweek: The Start of Majority-Minority. Non-Hispanic Whites Now Account for Less Than Half of New Births. http://www.adweek.com/sa-article/start-majority-minority-140665 04 General Market Demographic Insights Multicultural women: African Americans, Asian Americans, and the Hispanic consumer Our roles are changing for the better1 86% 90% 90% 94% Asian American women African American women Caucasian women Hispanic women Women are caregivers: Make it easier, less stressful for them in the health care setting. They are caregivers by nature…. Empower them with tools that let them be effective. Recognize them for their efforts and hold them to a higher standard— they are extremely capable and resourceful. “Value” is superior to “price”: a product or service that satisfies multiple “need states”—such as time and convenience. Like their counterparts in mainstream American culture, multicultural women are the health care “providers” for the family. In terms of marketing, women are the single most powerful demographic target to reach. They wield the most power in many household purchasing decisions. They take the kids, and often their parents or other family members, to the doctor, and care for sick relatives at home or in health care settings. With all the dramatic changes that have occurred—in family structures, ethnic diversity, and income—women believe that their roles are changing for the better. 2 This optimism is rooted in the belief that they have had it better than their mothers, and that the future is even brighter for their daughters; this is true particularly among Hispanic and African American women. Education is more accessible due to technology, which their children easily adopt. Continued educational strides improve financial stability. Women’s own earning power in these groups has increased their belief that they will be contributing even more to their household income in the coming five years. (There was no increase in this “optimism” measure for Caucasians or Asian Americans). Women’s priorities are to pay off debt and/or increase general savings, followed by groceries, vacations/holidays, and clothes. Caucasian women in the study also included home improvement and/or redecorating. Women across the board experience stress in juggling their many roles, but in Nielsen research it was highest among Asian American women. For all women, how can we as health care marketers make it easier, simpler, convenient, or time-saving for them? Women are media-connected and are growing users of smartphones, as they are regarded as a highly valuable tool for communication and making their lives easier. Surprisingly, Nielsen found that Caucasian women have much lower smartphone ownership—33% vs. 61–65% of Hispanic, African American, or Asian American women. The smartphone becomes a way to manage health care and other commercial transactions that can answer these women’s needs as they conduct their daily lives. Television, internet, and word of mouth are predominant media choices. A balanced approach between new and traditional media is the ideal reach. The Nielsen Company. Women of Tomorrow. US Multicultural Insights. November 2011. p2. 2 05 The Hispanic Paradox: Becoming American Mrs. Rodriguez, age 59, arrives with her daughter for her appointment at her primary care center. Born in the Dominican Republic, and having brought her family to the United States with her husband 15 years ago, she was diagnosed with type 2 diabetes and hypertension two years ago. Mrs. Rodriguez takes care of her grandchildren so that her daughter can attend school and work part-time for a small signage business. But today her daughter has taken time off from work to go to the doctor with her. Her physician, as typical in this community, is overworked, understaffed, and underpaid. Nonetheless, he has scheduled 20 minutes with Mrs. Rodriguez today because he notes that on her last visit her diabetes and hypertension were both uncontrolled. Mrs. Rodriguez is 59, too young for Medicare, and has insurance through her husband’s job. Dr. Mike Alexander is 45 and is a family practitioner who shares the office with 3 other physicians—an FP, a cardiologist, and a pediatrician—in addition to a nurse practitioner and a receptionist/office manager. “How are you doing this morning, Mrs. Rodriguez?” She smiles, but her daughter speaks for her… Steve Larson (Associate Professor of Emergency Medicine, University of Pennsylvania School of Medicine) shares his experience treating the immigrant migrant population in Pennsylvania in the PBS series, Unnatural Causes: Is inequality making us sick? In the 90s, he worked with the Mexican population in Kimmet Square, PA. The myth among some health workers was, “They’re always late, they’re always dirty, and they all have infectious diseases.” His experience told him they were way off. After crunching the health data for this population, “Well, you’re actually quite wrong. These are young, healthy people, for the most part. They’re not here to drain the system. So that’s a myth!” “After only 5 years in the US, Latino immigrants are 1.5 times more likely to have hypertension than when they first arrive… and to be obese.” Consider: outreach, nutrition, and education, particularly for the children who become “latch-key.” And in California, Tony Iton (Director, Alameda County Public Health Dept.): “(Our) data told us, in our health department, that immigrant Latinos had the best health of anybody in the county (Alameda), by far. They had the lowest rates of death, lowest rates of heart disease, lowest rates of all the major killers. And that was a startling finding to us. We couldn’t understand why the poorest, most socially marginalized population actually had the best health. Better health, not just than other poor people, but better health than the wealthiest segments of our societies. And that’s profound.” Unnatural Causes: Is Inequality Making Us Sick? – Becoming American. Produced by California Newsreel with Vital Pictures. Presented by the National Minority Consortia. Public Engagement Campaign in Association with the Joint Center for Political and Economic Studies Health Policy Institute. 06 The Hispanic Paradox After a few years in the US, however, the data also show that Mexican families lose their advantage within a generation. “Instead of improving their health, life in the US often has the opposite effect… they see their health advantages within a generation undermined by the same social forces that erode the health of all of us.” As cultural experts, we know that Hispanic families are extended and tight-knit. They bring a strong culture, a tradition, and a social network that provides an immunity bubble. But with time, and like many Americans today, two parents are working, kids are in school, there’s less time for meals, and maintaining community and close family ties has become increasingly difficult. When stress increases, optimism wanes. Consider social media tools that link to mobile technology because Hispanics “over-index” in mobile and smartphone adoption and use. Uncover ways to support worktime screenings. There are two operating hypotheses for this paradoxically positive effect for Mexican immigrants. One is that immigrants who arrive here have on average better health than the ones who stay in Mexico. But the other, more likely reason is related to culture. According to Margarita Alegria (psychologist, Harvard Medical School, Cambridge Health Alliance), “I think the other explanation… is the role of very strong, cohesive family ties that hold Latino families together, even under hardship; and these very strong family ties facilitate people struggling through… disadvantageous conditions.”1 In the last few years, researchers are looking at the idea of “social isolation,” and trying to understand its role in health trends among all American families. One manifestation of social isolation is that one in four Americans says there is no one with whom they can discuss important matters… that number has tripled over the last 2 decades. Seminal research shows that isolation can kill. Lisa Beckman (epidemiologist, Harvard School of Public Health) says, “It was astounding. Overall, people who are really isolated are at increased risk not only of CV disease, but for infectious diseases, for diabetes, for strokes, for cancer… Being isolated is a chronically stressful situation.”2 In Unnatural Causes, we learn that after only 5 years in the US, Latino immigrants are 1.5 times more likely to have hypertension than when they first arrive. And to be obese. Rates of heart disease and diabetes also increase. According to Iton, the Public Health Director of Alameda County, “Immigrant Latinos, as they acculturate, as the stress levels accumulate, their children start to lose that sense of why it is that they are here, they lose that connection to their parent’s hopefulness. They become more American, they acquire American habits, American diets, American sensibilities. They’re gaining traction in the American way of life, but they’re losing that hopefulness that their immigrant parents brought with them that might actually be healthprotective.”2 Page 3 Unnatural Causes: Becoming American. www.unnaturalcauses.org Ibid Page 4 1 2 07 The Hispanic Paradox As a society, we can build hope. And we do that by giving people access to those things that give them the potential for success: that’s good education, access to good jobs, decent housing, and then a sense of belonging to a community, belonging to something larger than yourself, larger than your family. The potential right now is to try to take what we can see obviously in new immigrant communities—the health protective benefits of being a new immigrant—and understand and translate that into public health interventions now that affect the broader community. Anthony Iton (Director, Alameda County Health Dept.) “See, these protective factors begin to wear down. And then subsequently, over multiple generations, we can anticipate that they’ll look increasingly just like the American people as a population, because they live here. They become Americans.” Initiatives for migrant workers at three farms in southeast Pennsylvania; the farms are coordinating with La Comunidad Hispana, a social service agency, to open clinics on site. Like almost half of America’s workforce, these farm workers get no paid sick days. “If nothing else,” according to William Vega (psychiatric epidemiologist, David Geffen School of Medicine-UCLA), “the paradox is putting a spotlight on the fact that the US has very high levels of depression.” He found that among immigrants who are here 13 years or less, the depression rate is very low—8%. For US citizens, the rate is 18%–20% over their lifetime. But for immigrants, these depression levels increased in people who have been in the US over 13 years. Margeurite Harris (Clinical Health Director, Project Salud): “Workers don’t like to take time off… it’s money not being earned.” They often do not seek health care until symptomatic. Obesity is the main health issue here. They conduct screenings for the spectrum of chronic diseases arising from obesity. By 2050, one in four Americans will be Latino. “If well-being isn’t prioritized now, then what’s the landscape of our country going to look like twenty, thirty years from now?” asks Steve Larson. 08 Diabetes and Hispanic Americans (CDC 2012) Diabetes and Hispanic Americans In 2008, Hispanics were 1.6 times as likely to start treatment for end-stage renal disease related to diabetes, compared to non-Hispanic white men. In 2008, Hispanics were 1.5 times as likely as non-Hispanic whites to die from diabetes. Situation Results In response to the grave situation in New York and around the country regarding diabetes incidence among Latinos, Mount Sinai and the Hispanic Federation partnered to launch the first Latino Diabetes Awareness Day in New York City. Simultaneously, a Latino diabetes public education campaign focused on early detection, prevention, and proper care was announced. This initiative, along with a concentrated and targeted plan of Latino initiatives throughout the year, resulted in: Strategy Engage and connect policy makers, health professionals, activists, the media, and the community at large. A press conference was held on the Mount Sinai campus, followed by a community briefing which included participants from Mount Sinai, the Hispanic Federation, the American Diabetes Association, HHS, local and state lawmakers and key influentials. The ¡Infórmate! ¡Examínate! ¡Cuídate! (Get Informed! Get Tested! Get Healthy!) campaign unveiled, designed to draw local and national attention to the diabetes crisis; highlight healthy lifestyle choices; increase diabetes testing in NYS, identify leading care and treatment options; and encourage NY policy makers, health professionals, and residents to respond more forcefully and effectively. A public and media outreach plan was implemented before, during, and after, to ensure maximum exposure. Mount Sinai being named #1 Hospital by El Diario La Prensa readers, announced at Press Conference. Over 100 attendees were present at the press conference and community briefing, representing hospital staff, steering committee members, community-based organizations, and the National Association of Hispanic Nurses, among other partners and leading media vehicles, such as Telemundo, HITN, NSN, Queens Latino, and El Diario La Prensa. Over 140M impressions garnered in no-cost editorial coverage in leading online, print, television, and radio English and Spanish language media vehicles around the country. 09 Case Study: Venice Family Clinic Eliminating disparities in care: Diabetes management among the Latino population Project goal: To effectively manage diabetes, prevent costly and painful complications, and reduce unnecessary hospitalizations. Reason for project: Diabetes was prevalent in the Clinic’s patient population and taking a heavy toll on resources. There was a desire to track and demonstrate an effective use of the substantial resources being spent. Demonstrable outcome: What advice would you give By effectively capturing and measuring clinic outcomes and comparing them among providers, clinic sites, and national to organizations wanting to quality benchmarks, the clinic was able to show improved outcomes. improve care in similar ways? Sustained accomplishments: Take small steps. Don’t take There has been a sustained drop in the average blood glucose on too much at once. Starting levels in an increasing number of patients—a sign of more effective self-management. small allows one to measure Summary: what’s been done, which can Over 200,000 Americans die from diabetes-related complications each year. Deaths attributable to diabetes have inform future steps. Achieve increased by 48% in Los Angeles County since 1991. Mexicanearly success upon which Americans, who comprise the largest Latino population in the United States, are twice as likely to have diabetes as nonyou can build. Diabetes Hispanic whites. management is expensive and The goal of the Diabetes Care Management Program is to effectively manage diabetes, prevent costly and painful resource intensive. The focus complications and reduce unnecessary hospitalizations. must shift to prevention. If the A majority of Clinic patients are Latino immigrants, with low levels of formal education and health literacy. health care field succeeds in this The program provides culturally competent and comprehensive disease management services free of charge. Strategies transition by helping patients include culturally appropriate curricula; health education implement the necessary materials and resource guides that help multiple races and better manage their diabetes; and programmatic lifestyle changes, we will all be ethnicities efforts that include prevention strategies for family members and other at-risk patients, particularly those who are overweight rewarded with a reduction in and sedentary. health care disparities. http://www.venicefamilyclinic.org/ 10 Race in a Post-racial America In the African American community, health disparities are strongly linked to socioeconomic status. In fact, all health in the US is strongly correlated to socioeconomic status. In the phrase, “Wealth equals health,” epidemiologic research reveals that even if you control for economic status, race trumps. In the PBS series Unnatural Causes, we learn about the social gradient of health. In America, the “wealth-health gradient” looks like this: “Over 70% of affluent Americans report very good to excellent health—almost twice as many as poor Americans. No surprise. But in the middle levels, good health decreases significantly. This translates into a reverse slope for chronic disease.”1 As a physician, I’ve been followed around the store. When I go in to buy something, I’ve been looked at askance. I’ve seen a woman grab her purse when I come into the elevator. And for goodness’ sake—I’m Dr. Troutman! You know, why?… This shouldn’t happen to me, but it does. Adewale Troutman, MD (Director, Louisville Metro, Public Health & Wellness) “There are ways in which our society is organized that are bad for our health. And there’s no doubt that we could reconfigure ourselves in ways that would benefit our health.” NICHOLAS CHRISTAKIS (Medical sociologist, Harvard University) Diabetes: low-income Americans have twice the rate of disease as the affluent. And for those in the middle, it’s still almost twice the rate. A similar pattern holds for stroke and heart disease, eventually contributing to excess death, especially for middle and low-income Americans. Further, according to the research, if you’re an African American, no matter what your socioeconomic status, your health outcomes are going to be worse than your white counterpart. And it’s not genetics. Being black in America means you face a constant low-grade stress—being watched in a video store, being pulled over on the highway, being pulled out of the line by the TSA at the airport security. Recently, Mayor Bloomberg has had to respond to the “stop and frisk” policy in NYC that affects minorities more than whites. Racial discrimination can be an added stressor—overproduction of cortisol is linked with high blood pressure, increased rates of infant death, and coronary artery disease, all of which have high prevalence rates among African Americans. In a national landmark study conducted by former Surgeon General David Satcher and Adewal Troutman, MD (Director, Louisville Metro, Public Health & Wellness), “We found over 83,000 excess deaths per year in the African American community alone… That’s the equivalent of a major airliner filled with black passengers falling out of the sky every single day, every year.” According to Michael Marmot (epidemiologist, University College London), “If these inequalities in health, this gradient in health, was a fixed property of society and never changed, then you’d say, ‘We’re stuck.’ But that’s not the case. The magnitude of the inequalities in health changes over time. It can get rapidly worse, and if it can get rapidly worse, it ought to be possible to make it rapidly better.” Taken from the “Unnatural Causes Discussion Guide,” a project of California Newsreel. Copyright © 2008 California Newsreel. 1 11 Social Class in America? The most important determinant of health Class | Stress | Health When we consider health disparity in cross-cultural populations and their place in American society, we look at where new immigrants fit in the social class. According to Marmot and Syme, social class is the most important determinant of health above any other risk factor. “But what does social class mean? Is it housing, or medical care? Education? Or is it power? Confidence? A sense of security?” According to Syme, “They are all inextricably intertwined, we can’t take them apart. So it’s really a challenge.” “Racial discrimination can be an added stressor— overproduction of cortisol is linked with high blood pressure, increased rates of infant death, and coronary artery disease, all of which have high prevalence rates among African Americans.” But how do we carry social class in our bodies? How does it get under our skin? Consider life in the United States today. We worry about losing our jobs. We are uncertain about the economy, about our own health care. How much control do we have over our day-to-day life? Our own destiny? Are we working for “the man” or for ourselves? Where are we in the hierarchy? Syme asks, “What is your ability to influence the events that impinge on your life, even if it means not doing anything—but one way or the other, managing those pressures?” Marmot states, “There’re all sorts of ways we’ve devised for depriving people of a sense of control over their lives. Living in a community where it’s not safe to go out.” Or where there are no grocery stores (the so-called fresh food desert); where your company can downsize or force you to relocate or lose your job. The science of stress When we feel threatened or don’t have control in our lives, one critical biological reaction kicks in: the stress response. When the brain perceives any threat, it signals the adrenal glands to release potent stress hormones. Among them, cortical hormones. They flood your bloodstream with glucose, increase your heart rate, raise blood pressure. They put your body on alert.1 A normal stress response strikes when needed, then turns off. But what happens when pressures are relentless, and you lack the power and resources to control them? When the stress response stays turned on for months? Or years?2 McEwan: “Chronic cortisol can impair immune function. It can actually inhibit memory and can even cause areas of the brain to shrink.” This leads to inability to handle glucose and insulin, which is believed to lead to diabetes and cardiovascular disease. 1, 2 Pages 6, 7 Unnatural Causes: In Sickness and In Wealth, Transcript. www.unnaturalcauses.org 12 African American Mothers and infant mortality We know that a healthy lifestyle should lead to a healthy baby. Women who eat well, exercise, get prenatal care, and avoid alcohol, drugs, and cigarettes are more likely to have a good pregnancy. But one of the best predictors for a healthy pregnancy outcome is higher education. Kim Anderson was the picture of this profile. She is a successful Atlanta executive and lawyer, and she is African American. Her first pregnancy was proceeding on course, but she went into early labor and gave birth to a daughter 2.5 months pre-term. She weighed less than 2 lbs 13 oz and was in the neonatal unit for several weeks. Prematurity and low birth weight are the leading reasons that the US claims the dubious distinction of having one of the worst infant survival rates in the industrialized world. We fall behind dozens of countries. Babies born in Slovenia, Cyprus, Malta and Croatia stand a better chance of living to the age of one than a baby born here. Why do African American women—even healthy, educated, high socioeconomic ones—deliver a statistically significant number of premature infants? According to a segment in Unnatural Causes: When the Bough Breaks, as a country we pay an enormous price for our high rate of premature and low birth weight babies. Pre-term birth is the second leading cause of death for infants. If they’re lucky enough to survive, many face a lifetime of learning and medical problems. Studies show that prematurity increases the risk for hypertension, diabetes, and coronary artery disease. And the high cost of their medical care begins the moment they’re born. One month’s stay in a neonatal intensive care unit averages $68,000 dollars. According to James Collins (neonatologist, Children’s Memorial Hospital, Chicago): “Neonatology is a lot of things. Inexpensive is not one of them. And we spend a disproportionately high amount of our income as a society taking care of infants, a lot of whose problems probably could have been prevented if they had stayed in the womb until term.” Collins investigated the disparity in premature births and originally assumed that they were related to socioeconomic differences between African Americans and whites. He believed if we corrected the differences in economics and education levels to create parity, the gap would disappear. “We were very surprised to find that the gap actually widened as education and socioeconomic status improved, and then began to look at it from a bigger perspective and broader perspective, and really started to realize, well, maybe it’s something about lifelong minority status which is the driving factor here.” From Unnatural Causes: When the Bough Breaks, Transcript © California Newsreel 2008 13 Education Levels of African American Women and infant mortality The equation breaks down for educated Black mothers Predictors of full-term healthy births result from a healthy lifestyle of the mother: sound nutrition, exercise, prenatal checkups, not smoking and not using drugs. But in the end, one of the best correlates is higher education. But African American women with high levels of education are still at greater risk than would be expected. For example, infant mortality among white women with a college degree or higher is 4/1,000 births. While African American women with the same level of education or higher have infant mortality rates of 10/1,000—worse outcomes than white mothers who haven’t even graduated from high school. Based on continued study, the effect is not genetic, there is no “African gene for prematurity.” Instead it is believed to be related to something in the social milieu African American women grow up and live. When have infant mortality rates been closer between whites and African American mothers? During the 60s and 70s, with the civil rights movement, introduction of the War on Poverty, the health of African Americans improved overall, closer to whites. Education opportunities opened up with Affirmative Action, and hospitals were more integrated, there were more opportunities for better jobs and the health of African Americans improved. Infant mortality rates improved closer to the rate of white mothers. The 80s produced a serious recession that forced the cutting of many initiatives. In many ways, there has been no recovery from the backslide. Even so, something else is at play because the disparity between educated African American and white mothers still exists. Education… predicts infant mortality for both black women and white women. And the more educated you are, the less likely you are to have a low birth-weight baby, a preterm baby, or an infant death. Camara Phyllis Jones (Medical epidemiologist, Centers for Disease Control and Prevention) Like the case before, a study conducted by Collins and David2 indicates racism is contributing to the premature mortality. Being the subject of racism and discrimination is an unrelenting stressor that takes a toll over a lifetime. And despite the notion (hope) that we are living in a post-racial time, it is belied by the persistence of the effects of prejudice. Since you cannot escape the color of your skin, it’s hard to escape the chronic sense of disempowerment—leading to stress in the form of elevated cortisol. It’s an insidious, persistent hopelessness. In terms of infant mortality, researchers believe stress hormones are a normal part of the pregnancy cycle, and as they increase enough they trigger labor. But if a woman is producing excess amounts, premature labor can ensue. Hormones can also constrict the blood flow to the placenta, which could limit fetal growth and lead to prematurity. “Research suggests it’s not so much stress during pregnancy that may determine the health of a mother’s baby, but the cumulative experiences of the mother over the course of her entire life, regardless of race. Dr. Lu calls this hypothesis the ‘lifecourse perspective.’ ” From Unnatural Causes: When the Bough Breaks, Transcript © California Newsreel 2008 2 RICHARD DAVID (Neonatologist, Stroger Hospital of Cook County, Chicago); JAMES COLLINS (Neonatologist, Children’s Memorial Hospital, Chicago) 1 14 African American Women and infant mortality Racism is a societal-level problem. It’s institutionalized; it’s part of our educational system; it’s part of our media; it’s part of our culture. It’s one of the [pillars] that reinforces inequality in the society we live in.1 Richard David (neonatologist, Stroger Hospital of Cook County, Chicago) Imagine this: Camara Phyllis Jones is a family physician and epidemiologist at the CDC. She has studied the connection between health outcomes and racism. She looked at chronic diseases in 100,000 women. She asked them, “How often do you think of your race?” She wanted to understand how women internalize their race. Over half of white women said they never think about their race. For black women, nearly half think about their race every day, with over a fifth reporting they think about race constantly. Fleeda Jones from Emory University: “We wanted to understand more about what it feels like, what it means to a mother to be race-aware/vigilant.” Jones and her colleagues conducted focus groups with hundreds of black women to understand this. “If you have to take children outside of your neighborhood for the best educational opportunities; if you have concerns that they will be racially profiled; if there are concerns about the opportunities that they will have, all of that represents serious kinds of stresses that are experienced by African American women on a constant basis.” Jones: “It’s like gunning the engine of a car without ever letting up. Just wearing it out, wearing it out without rest. And I think that the stresses of everyday racism are doing that.” The everyday disempowerment is evidenced by a woman who provides this example: “You have a doctor that comes in that doesn’t really pay attention to what it is you’re saying, that invalidates what it is you’re saying.” Social determinism: the domino effect The search for answers to these perplexing questions led the Health Policy Institute of the Joint Center for Political and Economic Studies to establish a national commission to study infant mortality within a new context of “relationality”—the notion that relationships are constitutive of what it means to be human. The central role of relationships and their associated effects upon maternal and infant well-being have generated a new understanding of the infant mortality challenge. This new approach is grounded in social determinants of health theory; women and their babies must be viewed not only as individuals, but as members of families, communities, and larger systems that have either positive or negative impacts upon their psychological and physical states. The economies, opportunities, and environmental influences, as well as risk and the protective factors within their places of work, life, and play must be considered.3 From Unnatural Causes: When the Bough Breaks Transcript © California Newsreel 2008 Race, Stress, and Social Support: Addressing the Crisis in Black Infant Mortality. Copyright 2007 by the Joint Center for Political and Economic Studies. 1090 Vermont Ave., Suite 1100, NW, Washington, D.C. 20005 www.jointcenter.org 1 3 15 LGBT: Lesbian, Gay, Bisexual, and Transgendered People are affected by the same health care access issues as other Americans Strides have been made over the last decade in establishing rights for the LGBT population. For example, support for same-sex marriage and same-sex parents is growing steadily among Americans. A Pew Research Center survey conducted in July and released in September 2012 found for the first time that a majority of people surveyed—52%—said that gay men and lesbians should be allowed to adopt children, up from 46% in 2008 and 38% in 1999.1 AMA initiative focused on LGBT Americans Despite this progress, however, members of the LGBT population continue to experience worse health outcomes than their heterosexual counterparts. Contributing factors can be organized into four categories: 1) access to health care and health insurance; 2) impact of societal biases on physical health and well-being; 3) impact of societal biases on mental health and well-being; and 4) how societal biases can lead to risky behavior.3 Medical school training: Well-conceived, wide-spectrum curriculum offerings in this area are emerging. To meet this need, many schools are studying the approach of the School of Medicine at the University of California in San Francisco (UCSF). San Francisco is estimated to have the highest LGBT population in the United States. UCSF has been a pioneer in LGBT health—and it established the UCSF LGBT Resource Center, the only such office in a health education or health care setting in the nation. Initiative at UCSF For example: Rising second-year students, guided by the UCSF LGBT Center, examined each preclinical curriculum unit, noting whether it included any LGBTrelated content (and, if so, what). The resulting grid, complete with faculty contact information, was then carefully reviewed to identify each area in which LGBT content might be added, augmented, or revised. Identified areas included not only infectious disease, mental health, and sexual history-taking, but also cancer, endocrinology, cardiovascular disease, neurological development, addiction, tobacco use, hypertension, nutrition, geriatrics, and pediatric and adolescent medicine. The Department of Health and Human Services issued a response to inquiries from LGBT organizations, including the HRC (Human Rights Campaign), affirming that the nondiscrimination provision in the Affordable Care Act prohibits discrimination based on gender identity and sex stereotyping. These protections are critical. As many as one in five transgendered patients report being refused care because of their gender identity. 16 LGBT: Lesbian, Gay, Bisexual, and Transgendered people are affected by the same health care access issues as other Americans These protections are sorely needed. As many as one in five transgendered patients reports being refused care because of their gender identity. An estimated 8.8 million Americans (3.8% of the population) say they are lesbian, gay, bisexual or transgendered. Experts say the actual figure probably is higher, but data on this population are limited, and there are many LGBT people who do not report their sexual identity for fear of discrimination.1 Nearly 40% of lesbian, gay, and bisexual people put off medical treatment because they are concerned about the cost of health care, and nearly 40% said they do so because of a lack of adequate health insurance, according to a 2005 Harris Interactive survey of more than 2,000 adults (patients could give more than one answer). A survey conducted by the Rainbow Health Initiative of over 1,100 respondents, 834 of whom identified as LGBT/Queer and 48% of whom were people of color, indicated that the top three health priorities for the LGBT community are: HIV/AIDS, particularly for men of color who have sex with men Sexually transmitted diseases and infections (in addition to HIV) Chemical dependency, including tobacco addiction More than 20% of LGBT adults said they did not have health insurance coverage, compared to 6.7% of heterosexual adults in Minnesota statewide Almost one-third (32%) had not disclosed their sexual orientation or gender identity to their health care provider The majority of respondents (79%) prefer that their medical provider/clinic be LGBT competent, yet over one-third (36%) feel that their medical provider/clinic is not knowledgeable and/or competent about LGBT health Social Science & Medicine, Volume 74, Issue 11, Pages 1783–1790 Corinne Reczek, Debra Umberson http://www.ama-assn.org/amednews/2011/09/05/prsa0905.htm Virtual Mentor American Medical Association Journal of Ethics August 2010, Volume 12, Number 8: 638–643. MEDICAL EDUCATION The Medical School Curriculum and LGBT Health Concerns Statement of the American Medical Association to the Institute of Medicine RE: Lesbian, Gay, Bisexual and Transgender (LGBT) Health Issues and Research Gaps and Opportunities Presented by Saul Levin, MD, MPA American Medical Association Vice President, Science, Medicine and Public Health Gal Mayer, MD Vice Chair, AMA-GLBT Advisory Committee Medical Director, Callen-Lorde Community Health Center February 1, 2010 1 17 Awareness and Advocacy Efforts Tips for Health care Providers: Educate yourself. Learn about the specific health issues facing LGBT people. 1. Be sensitive. Make sure you and your staff know which pronouns are appropriate to use when referring to a transgendered patient or a samesex couple. Present visual cues. Displaying an HRC equal sign or another LGBT-friendly emblem will demonstrate that your office is a safe space for all. 2. Revise client forms. Allow options for male/female/transgendered and use neutral terms like “partner” or “spouse” rather than “single,” “married,” or “divorced.” Use “parent 1” and “parent 2” to include same-sex couples raising children. 3. Don’t assume. Avoid making assumptions about a patient based on their appearance. When taking a sexual history, ask, “Are your current or past sexual partners men, women, or both?” 4. Listen attentively. Be sensitive to the fact that this disclosure may be difficult for your patients. The National LGBT Cancer Network Lesbian cancer Because the large national cancer registries and surveys have not collected data about sexual orientation, lesbian-specific data are “hidden” in the research. There is evidence, however, that lesbians have a 2–3 times greater risk of developing breast cancer, as well as several other types of cancer. And as indicated in the earlier section on the stress impact of racism, the increased risks are not due to any physiologic or genetic differences between homosexual and heterosexual people. Rather, they are the result of the stress and stigma of living with homophobia and discrimination. This often results in behaviors that carry an increased risk. Health equity index Patient-centered care is the universal standard, regardless of race, gender, or sexual or gender identity. The one’s right to choose our HCP and is key to removing all barriers to equitable treatment. Center of Excellence for Transgender Health on Facebook 18 Patient-Physician Encounter: Physician’s News excerpt How does a physician strike a balance between being sensitive to the cultural background of his/her patients and treating each individual as a unique person, without stereotyping them? There are a set of core cross-cultural issues that vary across cultures but are important hot-button issues for all patients, such as styles of communication: the stoic patient versus the very expressive patient; issues of mistrust that might be more prevalent among certain populations; issues of decisionmaking; sexual and gender issues; traditions, customs, and spirituality. These are all issues that might play a role. Joseph R. Betancourt, M.D., M.P.H., Director of the Disparities Solutions Center, program director for multicultural education, and a practicing internist at Massachusetts General Hospital. Some cultural groups, such as South Asian patients, have higher expectations of health care quality and in this country feel less understood and acknowledged by their physicians.2 Personalizing, being present with the patients—in their world—so that they feel understood. In years past, a lot of what was done in the area of cultural competence was what we called the manual-based approach, where you’d pick up a small text that would have five to seven key things you needed to know to take care of a Hispanic or African American patient, for example. I’m Puerto Rican myself, and I would often read these things, and a lot of them didn’t apply to me or my family. A lot of them were stereotypical and I worried about that. It became clear to many people in the field that there’s no five-toseven unifying facts that you could teach about any large racial, ethnic or cultural group. The way to walk the balance is to learn about a particular community and whether there are prevalent health beliefs and behaviors, but also to have a set of tools and skills to explore the particular social and cultural factors that impact that patient in front of you. A simple question might get at the root of nonadherence: “You know, you’ve really had a tough time controlling your blood pressure. Before I go on and explain the pros and cons, and the evolution of hypertension, I want to get an understanding of how you view hypertension. What do you think makes your condition better or worse, and how do you think it should be treated?” By exposing the patient’s perspective in a very patient-centered way, you could then engage in a negotiation with them about how they can best address their hypertension, perhaps letting them know that, “Yes, your blood pressure can be higher in particular situations, but in fact, it’s higher than others almost all the time, and so medication will help it.” I think sometimes, as clinicians, we might be too quick to check “Patient noncompliant” or “Patient refusing,” and not take the time to ask that second- or thirdlevel question about the root of that nonadherence. 19 Patient-Physician Encounter: Physician’s News excerpt From a practical standpoint, how serious an obstacle is the time burden of a typical 15-minute clinical encounter to doing this right? Best Practice Time constraints on visit: Push for cultural competence, and Reimbursement that meets “pay for performance” standards JRB: Without a doubt, time is a challenge. In our 15-minute patient visits, it’s challenging to do anything well. Clearly, this is an added dimension that poses an additional challenge. All that being said, asking some of these questions—asking about a patient’s health beliefs, getting at their understanding—might, in fact, save time in the clinical visit. Too often, we’ll sit and explain things to a patient using the medical model and take up a lot of those 15 minutes speaking our “medicalese,” when in fact a cross-cultural patient-centered question might reveal a patient’s perspective quicker, put you in a position to negotiate faster, and use your time more effectively. Now, I’m not trying to be “Pollyannaish” or naive about this. I clearly think that this is an issue that we need to be careful about, but I do think that some of the better curricula around the country is [sic] cognizant of that practical challenge and tries [sic] to give providers key questions that they could use, in an as-needed fashion, that could help them save time. Also, this type of work should be done with an eye towards continuity—you don’t necessarily need to do it all in one visit. Effective communication actually saves time and makes the visit generally more efficient and higher-quality. In fact, some health insurers are offering pay-for-performance incentives for completion of cultural competency training, including Blues plans in Florida and Massachusetts, Aetna, as well as several larger employer groups around the country—such as Marriott, which understands that a quarter to a third of their [sic] employee base may be from ethnic minority groups. 20 Where Are You on the Cultural Openness Scale? CULTURAL OPENNESS SCALE A Metric for Tracking Increasing Multiculturalism CULTURAL OPENNESS is the degree to which the historic boundaries between ethnic and racial groups are perceived as being highly porous and easily crossed. Such porousness allows people to navigate without self-consciousness or social constraint within and across different cultural groups, absorbing the elements that work within their preferred lifestyle, but not necessarily at the cost of pride and participation in their native culture. 12345 Intercultural influence is a source of concern, and people who are different are eyed with mistrust. Acknowledge and understand the benefit of intercultural influences within society. Personally recognize and appreciate the benefits of intercultural influences in their own lives. Actively pursue and immerse oneself in intercultural experiences and situations. Organically and nonselfconsciously navigate within and across multiple cultural group boundaries. http://www.added-value.com/source/wp-content/uploads/2011/01/Cultural-Opennes_Cheskin-Added-Value-The-Futures-Company_January-2011.pdf http://www.added-value.com/source/2012/07/growing-pains-for-a-total-market-approach-to-diversity/ 21 What Does It All Mean? Illustrated through Mrs. Rodriguez Remember Mrs. Rodriguez? At the beginning of this paper, we left her as she and her daughter entered the examination room. Let’s consider what will make her time with her physician a valuable learning and teaching moment. Doctor: “Mrs. Rodriguez, it would help me if I could understand some of your thinking about diabetes. Would it be alright if I asked you about how diabetes affects your life?” Mrs. Rodriguez: “Yes, that’s OK with me, Doctor.” Doctor: “What do you think your diabetes does to you?” Mrs. Rodriguez: “As long as your body can get rid of the sugar, you are OK. But sooner or later you can’t handle the sugar, and you get sick. My uncle lost his eyes to diabetes.” Doctor: “Yes, those are all linked to diabetes and I agree with what you’ve said… Here’s another way to see it…” A culturally competent interaction will include several teaching moments for her disease(s): Acknowledgement of her daughter, while remaining clear that Mrs. Rodriguez is the patient (extended family members influence patient’s health care). Uncovering her cultural preferences relating to diet, exercise, natural or home remedies. How does Mrs. Rodriguez understand her disease? This allows the physican to correct misconceptions, or fill any gaps. “You are right about controlling sugar and the need to monitor… but there’s a bit more I’d like to share with you…” HCP clarifies by sharing appropriate biomedical details. Nutrition and family: How best to work with Mrs. Rodriguez to modify her nutrition based on her native Mexican diet, one with which she is already comfortable, and which will likely help her achieve better control upon modification. It is unreasonable to expect a patient to convert completely to a culturally unfamiliar diet. Her adherence: What barriers prevent her from fully complying? For example, the cost of replacing monitor strips. 22 What Does It All Mean? Illustrated through Mrs. Rodriguez An HCP, in this case Mrs. Rodriguez’s family physician, can never really know what the patient’s culture is unless he or she asks the patient. Likewise, the patient has a limited knowledge of the physician’s culture, including his or her understanding and acceptance of the biomedical model of health and disease. It is equally important for HCPs to share information about their background with their patients. 2 Mrs. Rodriguez’s physician negotiated a plan with her to keep a food diary. He provided her coupons for testing strips to supplement her supply. They agreed that if she needed more and could not afford them, he would provide further coupons. They agreed to schedule an appointment in 3 months. Race:Hispanic Ethnicity: Mexican American Culture: Homemaker, wife, mother/grandmother Being aware of a patient’s values, spirituality, and relationship dynamics, the physician can uncover and follow Mrs. Rodriguez’s cultural preferences. By negotiating in a culturally aware framework, the HCP and the patient will experience greater trust through a sense of being understood. By being culturally attuned to each other, Mrs. Rodriguez and her doctor (along with respecting her daughter’s role) are more likely to have a relationship based on mutual respect and to realize better overall health outcomes. In summary, we’ve illustrated the Four Steps to culturally competent care: 1. Ask about health beliefs and behaviors 2. Share biomedical point of view 3. Compare both views 4. Negotiate a plan http://www.vlh.com/shared/courses/course_info.cfm?courseno=1787. 23 What Does It All Mean? Conclusion Ethnic minorities make up more than one third of the population of the United States. The US model of health care—which values autonomy in medical decision making— is not easily applied to members of some racial or ethnic groups. Cultural factors strongly influence patients’ reactions to serious illness. Similarly, with regard to decision-making, the emphasis in the US on patient autonomy may contrast with preferences for more family-based, physician-based, or shared physician- and family-based decision-making among some cultures.1 Too many racial and ethnic minority patients experience lower-quality health care compared to white patients. This disparity is unacceptable. Access to quality care—which has been at the forefront of disparity policy discussion—is only part of the issue. Research has demonstrated that even when access to care is equal, racial and ethnic minority patients tend to receive lower quality care than do white patients. So even equal access can result in unequal care. Likewise, quality improvement that only focuses on the overall population and fails to address racial and ethnic differences can result in unequal quality. Consequently, cultural “intelligence” in health care has emerged as a crucial “pivot” point in reducing health outcomes disparity. As people who operate within the health care community, it is incumbent on us to increase our cultural competence and work within our organizations to take on this issue. The unmet need is there, and the opportunity to make a difference is pressing. Global Strategies, Inc. is committed to furthering stakeholder education through our insights and technology in the crosscultural health care community. Test your knowledge by taking the quiz, “How Culturally Competent Are You?,” on page 27. Also feel free to reach out to us. Providing cross-cultural intelligence to the health care community is our mission. Contact Anthony Marucci, VP of Business Development: amarucci@global-ny.com or 212.964.0030. Am Fam Physician. 2005 Feb 1;71(3):515-22. 24 Race, Ethnicity, Culture: What’s the difference? Culture is a more meaningful concept in the clinical encounter than race or ethnicity. In this context it has been defined as: Culture “The unique shared values, beliefs, and practices that are directly associated with a health-related behavior, indirectly associated with a behavior, or influence acceptance and adoption of the health education message.” (Pasick et al., 1994). Identity Race What is Ethnicity? Ethnicity Ethnicity is based on an individual’s identification as a member of a social group with a common background. This background is often geographic, political, or linguistic. Ethnic labels are an attempt to further differentiate racial categories. (Egede, 2006). The ethnic categories used in the 2010 US Census were: What is Race? Categories: – Hispanic or Latino US Census 2010 White – Not Hispanic or Latino Although historically treated as genetically discrete, racial categories are socially constructed and originally were based on morphological differences. Yet experts now contend that racial categories are not genetically discrete, are not reliably measured, and have little scientific meaning. Black, African American, Negro (Smedley & Smedley, 2005; Egede, 2006). Vietnamese American Indian Alaska Native Asian Indian Chinese Japanese Korean Hispanics or Latinos may be of any race. (Mexican Americans, for example, who derive their ancestry from the varied peoples of Mexico, can be considered a subgroup under Hispanic or Latino. Cuban Americans and Puerto Rican Americans would represent other subgroups. Many other ethnic groups exist, including German American, Haitian American, or Japanese American. Ethnicity, however, does not equal culture. Native Hawaiian Guamanian or Chamarr Samoan Pacific Islander Other J Gen Intern Med. 2006 June; 21(6): 667–669. doi: 10.1111/j.1525-1497.2006.0512.x PMCID: PMC1924616 Race, Ethnicity, Culture, and Disparities in Health Care. Leonard E. Egede, MD, MS 25 How Culturally Competent Are You? 1.Cross-cultural misunderstandings between providers and patients can lead to mistrust and frustration, but are unlikely to have an impact on objectively measured clinical outcomes. a. True b. False 2.When the patient and provider come from different cultural backgrounds, the medical history obtained may not be accurate. a. True b. False 3.When a provider expects that a patient will understand a condition and follow a regimen, the patient is more likely to do so than if the provider has doubts about the patient. a. True b. False 4.A really conscientious health care provider can eliminate his or her own prejudices or negative assumptions about certain types of patients. a. True b. False 5.When taking a medical history from a patient with a limited ability to speak English, which of the following is LEAST useful? a. Asking questions that require the patient to give a simple “yes” or “no” answer, such as “Do you have trouble breathing?” or “Does your knee hurt?” b. Encouraging the patient to give a description of her/his medical situation, and beliefs about health and illness. c. Asking the patient whether he or she would like to have a qualified interpreter for the medical visit. d. A sking the patient questions such as “How has your condition changed over the past two days?” or “What makes your condition get better or worse?” 6.During a medical interview with a patient from a different cultural background, which is the LEAST useful technique? a. Asking questions about what the patient believes about her or his illness, what caused the illness, how severe it is, and what type of treatment is needed. b. Gently explaining which beliefs about the illness are not correct. c. E xplain the “Western” or “American” beliefs about the patient’s illness. d. D iscussing differences in beliefs without being judgmental. 7.When a patient is not adhering to a prescribed treatment after several visits, which of the following approaches is NOT likely to lead to adherence? a. Involving family members. b. Repeating the instructions very loudly and several times to emphasize the importance of the treatment. c. Agreeing to a compromise in the timing or amount of treatment. d. S pending time listening to discussions of folk or alternative remedies. http://erc.msh.org/mainpage.cfm?file=3.0.htm&module=provider&language=English 26 How Culturally Competent Are You? 8.When a patient who has not adhered to a treatment regimen states that s/he cannot afford the medications prescribed, it is appropriate to assume that financial factors are indeed the real reasons and not explore the situation further. a. True b. False 9. Which of the following are the correct ways to communicate with a patient through an interpreter? a. Making eye contact with the interpreter when you are speaking, then looking at the patient while the interpreter is telling the patient what you said. b. Speaking slowly, pausing between words. c. Asking the interpreter to further explain the patient’s statement in order to get a more complete picture of the patient’s condition. d. None of the above. 10.If a family member speaks English as well as the patient’s native language, and is willing to act as interpreter, this is the best possible solution to the problem of interpreting. a. True b. False 11. Which of the following statements is TRUE? a. People who speak the same language have the same culture. b. T he people living on the African continent share the main features of African culture. c. C ultural background, diet, religious, and health practices, as well as language, can differ widely within a given country or part of a country. d. An alert provider can usually predict a patient’s health behaviors by knowing what country s/he comes from. 12. Which of the following statements is NOT TRUE? a. Friendly (non-sexual) physical contact is an important part of communication for many Latin American people. b. M any Asian people think it is disrespectful to ask questions of a health provider. c. M ost African people are either Christian or follow a traditional religion. d. Eastern Europeans are highly diverse in terms of customs, language and religion. 13. Which of the following statements in NOT TRUE? a. The incidence of complications of diabetes, including lower-limb amputations and end-stage renal disease, among the African American population is double that of European Americans. b. J apanese men who migrate to the US retain their low susceptibility to coronary heart disease. c. H ispanic women have a lower incidence of breast cancer than the majority population. d. Some Native Americans/American Indians and Pacific Islanders have the highest rate of type II diabetes mellitus in the world. 14.Because Hispanics have a lower incidence of certain cancers than the majority of the US population, their mortality rate from these diseases is correspondingly lower. a. True b. False 27 How Culturally Competent Are You? 15.Providers whose patients are mostly European-American, US-born, and middle-class still need to know about health practices from different world cultures. a. Trueb. False 16. Which of the following is good advice for a provider attempting to use and interpret non-verbal communication? a. T he provider should recognize that a smile may express unhappiness or dissatisfaction in some cultures. b. T o express sympathy, a health care provider can lightly touch a patient’s arm or pat the patient on the back. c. If a patient will not make eye contact with a health care provider, it is likely that the patient is hiding the truth. d. When there is a language barrier, the provider can use hand gestures to bridge the gap. 17.Some symbols—a positive nod of the head, a pointing finger, a “thumbs-up” sign—are universal and can help bridge the language gap. a. Trueb. False 18.Out of respect for a patient’s privacy, the provider should always begin a relationship by seeing an adult patient alone and drawing the family in as needed. a. Trueb. False 19.In some cultures, it may be appropriate for female relatives to ask the husband of a pregnant woman to sign consent forms or to explain to him the suggested treatment options if the patient agrees and this is legally permissible. a. Trueb. False 20. Which of the following is NOT TRUE of an organization that values cultural competence: a. T he organization employs or has access to professional interpreters that speak all or at least most of the languages of its clients. b. The organization posts signs in different languages and has patient education materials in different languages. c. The organization tries to hire staff that mirror the ethnic and cultural mix of its clients. d. The organization assumes that professional medical staff do not need to be reminded to treat all patients with respect. 21. A female Muslim patient may avoid eye contact and/or physical contact because: a. S he doesn’t want to spread germs. b. Muslim women are taught to be submissive. c. Modesty is very important in Islamic tradition. d. She doesn’t like the provider. 22. Which of the following statements is NOT TRUE: a. D iet is an important part of both Islam and Hinduism. b. North African countries have health care systems that suffer because of political problems. c. Arab people have not historically had an impact on the medical field. http://erc.msh.org/mainpage.cfm?file=3.0.htm&module=provider&language=English 28 29 Answers to Quiz 1.Cross-cultural misunderstandings between providers and patients can lead to mistrust and frustration, but are unlikely to have an impact on objectively measured clinical outcomes. (False: Low levels of cultural competence can impede the process of making an accurate diagnosis, cause the provider to order contraindicated medication, and reduce patient adherence to recommended treatment.) 2.When the patient and provider come from different cultural backgrounds, the medical history obtained may not be accurate. (True: Because of language and cultural barriers, the patient may not understand the questions or may be reluctant to report symptoms; in turn, the provider may misunderstand the patient’s description of symptoms.) 3.When a provider expects that a patient will understand a condition and follow a regimen, the patient is more likely to do so than if the provider has doubts about the patient. (True: This is an adaptation of the “Pygmalion theory” which has proven that students generally live up—or down—to the expectations of their teachers. (Rosenthal and Jacobson 1968).) 4.A really conscientious health provider can eliminate his or her own prejudices or negative assumptions about certain types of patients. (False: Most of us harbor some assumptions about patients, based on race, ethnicity, culture, age, social and language skills, educational and economic status, gender, sexual orientation, disability/ability, and a host of other characteristics. These assumptions are often unconscious and so deeply rooted that even when an individual patient behaves contrary to the assumptions, the provider views this as the exception to the rule. A conscientious provider will not allow prejudices to interfere with making an accurate diagnosis and designing an appropriate treatment plan.) 5.When taking a medical history from a patient with a limited ability to speak English, which of the following is LEAST useful? a. Asking questions that require the patient to give a simple “yes” or “no” answer, such as “Do you have trouble breathing?” or “Does your knee hurt?” b. Encouraging the patient to give a description of her/his medical situation, and beliefs about health and illness. c. Asking the patient whether he or she would like to have a qualified interpreter for the medical visit. d. Asking the patient questions such as “How has your condition changed over the past two days?” or “What makes your condition get better or worse?” (Answer: a. While it may seem easier to ask questions that require a simple “yes” or “no” answer, this technique seriously limits the ability of the patient to communicate information that may be essential for an accurate history and diagnosis. The most effective way to put the patient at ease and to ensure that the patient provides essential information about his or her symptoms is to combine two types of questions: 1) open-ended questions such as “Tell me about the pain in your knee,” and 2) more directed questions, such as “What makes the pain get better or worse?” Always get a qualified interpreter when possible.) http://erc.msh.org/mainpage.cfm?file=1.1.2.htm&module=providerquiz&language=English 30 Answers to Quiz 6.During a medical interview with a patient from a different cultural background, which is the LEAST useful technique? a. Asking questions about what the patient believes about her or his illness: what caused the illness, how severe it is, and what type of treatment is needed. b. Gently explaining which beliefs about the illness are not correct. c. E xplain the “Western” or “American” beliefs about the patient’s illness. d. Discussing differences in beliefs without being judgmental. (Answer: b. Although the provider may be tempted to correct the patient’s different beliefs about illness, this may lead the patient to simply withhold his/her thoughts in the future and interfere with building a trusting relationship. It is more effective to be nonjudgmental about differences in beliefs. The provider should keep in mind two goals: 1) the patient should reveal her/his medical history and symptoms to help the provider make an accurate diagnosis, and 2) the patient should develop trust in the provider’s medical advice and be willing and able to adhere to that advice. To accomplish these goals, it is essential to treat the patient with respect, openly discussing differences in health beliefs without specifying “correctness” or “incorrectness.” 7.When a patient is not adhering to a prescribed treatment after several visits, which of the following approaches is NOT likely to lead to adherence? a. Involving family members. b. Repeating the instructions very loudly and several times to emphasize the importance of the treatment. c. Agreeing to a compromise in the timing or amount of treatment. d. Spending time listening to discussions of folk or alternative remedies. (Answer: b. Non-adherence can be the result of many different factors that may require a variety of interventions. Simply repeating the instructions may not address the real issues that are keeping the patient from adhering to the regimen. In fact, repetition of instructions may be inappropriate and quite offensive if the patient has a communication disability. Family members can provide valuable support. It may also be necessary to set small, realistic goals in order to achieve long-term behavioral change. Finally, an understanding of the patient’s beliefs about other remedies may offer valuable clues to her/his reluctance to adhere to treatment.) 8.When a patient who has not adhered to a treatment regimen states that s/he cannot afford the medications prescribed, it is appropriate to assume that financial factors are indeed the real reasons and not explore the situation further. (False: In addition to exploring payment options with the patient, it is important for the provider to inquire about cultural and psychological factors that may impede adherence to the prescribed treatment regimen.) http://erc.msh.org/mainpage.cfm?file=1.1.2.htm&module=providerquiz&language=English 31 Answers to Quiz 9. Which of the following are the correct ways to communicate with a patient through an interpreter? a. Making eye contact with the interpreter when you are speaking, then looking at the patient while the interpreter is telling the patient what you said. b. Speaking slowly, pausing between words. c. Asking the interpreter to further explain the patient’s statement in order to get a more complete picture of the patient’s condition. d. None of the above. (Answer: d. Although it may seem natural to look at the interpreter when you are speaking, you want the patient to feel that you are speaking to her/him, so you should look directly at her/him, just as you would if you were able to speak her/his language. It is best to speak in a normal tone of voice, at a normal pace, rather than pausing between words. Because of differences in grammar and syntax, the interpreter may have to wait until the end of your sentence before beginning to interpret. Do pause after one or two sentences to allow the interpreter to speak. When you need further information, or need to clarify what the patient has said, clearly tell the interpreter what you want asked of the patient. Although you may ask the interpreter to add his or her opinion of what the patient really meant, try to get as close as possible to the patient’s actual words and intent.) 10.If a family member speaks English as well as the patient’s native language, and is willing to act as interpreter, this is the best possible solution to the problem of interpreting. (False: This is an inappropriate responsibility for families to take on and may actually place the provider in violation of the Civil Rights Act of 1964 and the August 30, 2000 Office for Civil Rights (OCR) Policy Guidance. The rationale for using professional interpreters is clear. Professional interpreters have been trained to provide accurate, sensitive two-way communication and uncover areas of uncertainty or discomfort. Family members are often too emotionally involved to tell the patient’s story fully and objectively, or lack the technical knowledge to convey the provider’s message accurately.) 11. Which of the following statements is TRUE? a. People who speak the same language have the same culture. b. The people living on the African continent share the main features of African culture. c. Cultural background, diet, religious, and health practices, as well as language, can differ widely within a given country or part of a country. d. An alert provider can usually predict a patient’s health behaviors by knowing what country s/he comes from. (Answer: c. The only assured similarity among people from around the world who come to you for care is the fact that they are your patients and they hope to be treated with respect and with concern for their individual health needs. As a health care practitioner, it is important to have a basic understanding of your patients’ cultures—and to recognize the similarities and differences among people from the same region of the world and the same country. Differences in cultures within a region can be pronounced. Each patient is the product of many cultural forces. People from the same continent, the same country, the same part of the country, and even the same city, may have major differences in cultural heritage, traditions, and language, as well as differences in socioeconomic status, education, religion, and sexual orientation. It is the combination of all of these factors that makes up a person’s “culture.”) http://erc.msh.org/mainpage.cfm?file=1.1.2.htm&module=providerquiz&language=English 32 Answers to Quiz 12. Which of the following statements is NOT TRUE? a. Friendly (non-sexual) physical contact is an important part of communication for many Latin American people. b. Many Asian people think it is disrespectful to ask questions of a health provider. c. Most African people are either Christian or follow a traditional religion. d. Eastern Europeans are highly diverse in terms of customs, language and religion. (Answer: c. A large percentage of Africans are Muslims, most of them living in North and West Africa, but there are also many Muslims in East Africa.) 13. Which of the following statements in NOT TRUE? a. The incidence of complications of diabetes, including lower-limb amputations and end-stage renal disease, among the African American population is double that of European Americans. b. Japanese men who migrate to the US retain their low susceptibility to coronary heart disease. c. Hispanic women have a lower incidence of breast cancer than the majority population. d. Some Native Americans/American Indians and Pacific Islanders have the highest rate of type II diabetes mellitus in the world. (Answer: b. The longitudinal NI-HON-SAN study and Honolulu Heart Program showed that dietary changes contributed to a significant increase in coronary heart disease among Japanese men who migrated to Hawaii and California. It highlighted the role that environmental factors can play in counteracting predispositions to disease.) 14.Because Hispanics have a lower incidence of certain cancers than the majority of the US population, their mortality rate from these diseases is correspondingly lower. (False: Despite the lower rate of breast, oral cavity, colorectal, and urinary bladder cancers among Hispanics, their mortality rate from these cancers is just as high as that of the rest of the population.) 15.Providers whose patients are mostly European American, US-born, and middle-class still need to know about health practices from different world cultures. (True: A growing number of people from majority US cultures are turning to traditional medicines as part of their health care strategies. Providers should be aware of any such practices that may affect their patients’ health.) http://erc.msh.org/mainpage.cfm?file=1.1.2.htm&module=providerquiz&language=English http://erc.msh.org/quiz.cfm?action=question&qt=all&module=provider&language=english 33 Answers to Quiz 16. Which of the following is good advice for a provider attempting to use and interpret non-verbal communication? a. The provider should recognize that a smile may express unhappiness or dissatisfaction in some cultures. b. To express sympathy, a health care provider can lightly touch a patient’s arm or pat the patient on the back. c. If a patient will not make eye contact with a health care provider, it is likely that the patient is hiding the truth. d. When there is a language barrier, the provider can use hand gestures to bridge the gap. (Answer: a. Although smiling is an expression of happiness in most cultures, it can also signify other emotions. Some Chinese, for example, may smile when they are discussing something sad or uncomfortable. The other pieces of advice are incorrect. The use and interpretation of body language depends entirely on the patient’s culture and personal preferences. What is appropriate in one culture may be embarrassing or offensive in another culture. Interpersonal greeting behaviors, for example, vary widely from one culture to another. Beliefs about touching are also highly variable, with some cultures placing a high value on physical contact, and others believing that physical contact of any kind is a sign of intimacy. Similarly, some cultures perceive direct eye contact as a sign of respect, while in other cultures, eye contact with elders and authority figures is to be avoided. Hand gestures in particular can lead to serious misunderstandings. For example, the “ok” sign, widely used in the US, is the symbol for coins or money in Japan. In several other cultures, the gesture represents a bodily orifice and is highly offensive.) 17.Some symbols—a positive nod of the head, a pointing finger, a “thumbs-up” sign—are universal and can help bridge the language gap. (False: Each of these symbols has a very different meaning in different cultures, and may be offensive.) 18.Out of respect for a patient’s privacy, the provider should always begin a relationship by seeing an adult patient alone and drawing the family in as needed. (False: In many of the world’s cultures, an individual’s health problems are also considered the family’s problems, and it is considered threatening to exclude family members from any medical interaction. The provider should ask the patient whether she/he would prefer to be seen alone or with the family. It should be the provider’s goal to help the patient to express her/his true preference about this—without offending any family members. The provider might ease any tension around this issue by assuring family members that they will be asked to return to the examining room in a short time.) 19.In some cultures, it may be appropriate for female relatives to ask the husband of a pregnant woman to sign consent forms or to explain to him the suggested treatment options if the patient agrees and this is legally permissible. (True: In many cultures, men are not involved in the activities surrounding pregnancy or childbirth. Yet they maintain the responsibility for making decisions and giving permission for treatment, medication, and hospital stays. A female relative may have to intervene between the provider and the husband.) http://erc.msh.org/mainpage.cfm?file=1.1.2.htm&module=providerquiz&language=English 34 Answers to Quiz 20. Which of the following is NOT TRUE of an organization that values cultural competence: a. The organization employs or has access to professional interpreters that speak all or at least most of the languages of its clients. b. The organization posts signs in different languages and has patient education materials in different languages. c. The organization tries to hire staff that mirror the ethnic and cultural mix of its clients. d. The organization assumes that professional medical staff do not need to be reminded to treat all patients with respect. (Answer: d. Even the most conscientious, committed staff who have been trained in cultural competence may need periodic reminders. In a busy practice, it is easy for providers to seek shortcuts, slipping into assumptions about the diverse populations they serve and failing to take the time needed to fully understand the health beliefs and values of each patient.) 21. A female Muslim patient may avoid eye contact and/or physical contact because: a. She doesn’t want to spread germs. b. Muslim women are taught to be submissive. c. Modesty is very important in Islamic tradition. d. She doesn’t like the provider. (Answer: c. Modesty is a very important aspect of a Muslim’s life. Handshakes between unrelated men and women are inappropriate according to Islamic norms. In addition, eye contact will often be avoided, especially in mixed-gender situations.) 22. Which of the following statements is NOT TRUE: a. Diet is an important part of both Islam and Hinduism. b. North African countries have health care systems that suffer because of political problems. c. Arab people have not historically had an impact on the medical field. (Answer: c. Health and healing has been a part of Arab tradition since the earliest historical recordings. Not only has Arab medicine been in existence for over one thousand years, but Arab medical texts and practices were very influential in the development of the Western medical tradition.) http://erc.msh.org/mainpage.cfm?file=1.1.2.htm&module=providerquiz&language=English Links and Bibliography End Notes | Sources for further study America’s Demographic and Cultural Transformation: Implications for Cancer. President’s Cancer Panel. 2009–2010 Annual Report. US Department of Health and Human Services. National Institutes of Health. National Cancer Institute. March 2011. Race, Ethnicity, Culture, and Disparities in Health Care. Editorial. Journal J Gen Intern Med. 2006 June; 21(6): 667–669. Leonard E. Egede, MD, MS, Division of General Internal Medicine, Center for Health Disparities Research, Medical University of South Carolina, Charleston, SC, USA; 2 Ralph H. Johnson VA Medical Center, Charleston, SC, USA. Physician Cross Cultural Nonverbal Communication Skills, Patient Satisfaction and Health Outcomes in the PhysicianPatient Relationship. International Journal of Family Medicine, Volume 2012. Ken Russell Coelho and Chardee Galan Department of Psychology, University of California, Berkeley, CA 94720, USA. http://www.hindawi.com/journals/ijfm/2012/376907/ref/ Marketing Intelligence: AdAge Insights. The Cultural Connection. How Hispanic Identity Influences Millenials. May 2012. Trend Report. Crain Communications. Resources: Johns Hopkins Center for Health Disparity Solutions http://www.jhsph.edu/research/centers-and-institutes/johns-hopkins-center-for-health-disparities-solutions/ Culture and Language Training for the Healthcare Workforce. http://www.callearning.com/tinymce/filemanager/files/one-sheet_CALLeaning.pdf The Culturally Competent Healthcare Provider. Blog: http://tasteslikechicken2me.wordpress.com/2009/03/17/the-culturally-competent-healthcare-provider/ Accessed August 2012. Building Cultural Intelligence: Nine Mega Skills by Richard D. Bucher, PhD., http://buildingcq.com/sampleassessment.htm Accessed August 2012. The Provider’s Guide to Quality and Culture. http://erc.msh.org/mainpage.cfm?file=4.7.0.htm&module=provider&language=English EthnoMed: Focusing on African-Americans, Asian, Pacific Islanders and Hispanic/Latinos. 1995–2012; University of Washington. Harborview Medical Center | Health Sciences Library. http://www.kingcounty.gov/healthservices/health/chronic/reach.aspx New Research Defines Cultural Openness and Its Impact on Marketing Strategy http://www.added-value.com/source/2011/01/new-research-defines-cultural-openness-and-its-impact-on-marketingstrategy/ Edelman Hosts Cheskin Added Value and The Futures Company Panel Discussion on the Influence of Ethnic Identity on Consumer Behavior. January 11, 2011, NEW YORK 35 Links and Bibliography Virtual Mentor, August 2010—Vol 12 www.virtualmentor.org. LGBT Health Concerns. Shane Snowden. American Medical Association. All rights reserved. The Agency for Healthcare Research and Quality Healthy People 2020 National Institute on Minority Health and Health Disparities. http://www.solvingdisparities.org/ Finding Answers: Disparities Research for Change, a national program of the Robert Wood Johnson Foundation at the University of Chicago. Accessed September 6, 2012. http://www.youtube.com/watch?v=3FyAqHhcTV8&feature=player_embedded. Virtual Lecture Hall. Delivering Culturally Competent Care: Managing Type 2 Diabetes in Diverse Populations. Accessed August 2012. http://www.vlh.com/myvlh/myvlh.cfm. Medical Directions, Inc. Diabetes Epidemiology in US Hispanics. Centers for Disease Control and Prevention. National Diabetes Fact Sheet: national estimates and general information on diabetes and prediabetes in the United States, 2011. Atlanta, GA: U.S. Department of Health and Human Services, Centers for Disease Control and Prevention, 2011. http://diabetes.niddk.nih.gov/statistics/index.aspx Eliminating Disparities in Care. Case Study: Diabetes Management among the Latino Population. Venice Family Clinic. Venice California. www.aha.org/content/00-10/08dispcase-diabmgmtlat.pdf Social Work in Public Health. Volume 25, Issue 3-4, 2010. Special Issue: Health Disparities. www.tandfonline.com/loi/whsp20 State of the Hispanic Consumer: The Hispanic Market Imperative. 2012. http://www.nielsen.com/us/en/insights/reports-downloads/2012/state-of-the-hispanic-consumer-the-hispanic-marketimperative.html An Elective Course in Cultural Competence for Healthcare Professionals. Emily Evans, PharmD, Am J Pharm Educ. 2006 June 15; 70(3): 55. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1636952/ Race, Stress, and Social Support: Addressing the Crisis in Black Infant Mortality. Dr. Fleda Mask Jackson. Joint Center for Political and Economic Studies, Health Policy Institute. www.jointcenter.org/hpi/sites/all/files/IM-Race%20and%20Stress.pdf Asian & Pacific Islander American Health Forum. Policy, Advocacy, and Data. http://www.apiahf.org/policy-and-advocacy/policy-priorities/health-equity The Myth of the “Model Minority” and What it Means for Health Care. June 27, 2012. http://www.rhrealitycheck.org/article/2012/06/27/model-minority-myths-and-maternal-health 36 Global Advertising Strategies is a fullPrime Access is a full-service marketing service cross-cultural and international and advertising agency that creates marketing and communications agency customized marketing programs targeted headquartered in New York. Its client base to the multicultural consumers and social consists of some of the world’s leading networks of the New American Marketplace, pharmaceutical, health care, wellness, and inclusive of Hispanic, African American Beyond Your lifestyle brands. Reach With over a decade of Longitude. and GLBT consumers. This includes the experience in cultivating and executing creation and execution of messaging for its successful campaigns within cross-cultural clients’ brands, across traditional, digital and international markets, Global knows and other new media. Prime Access and what it takes to establish and build a brand its award-winning campaigns have been identity across the many diverse cultural featured on CNBC Business News and groups within the US, and in unique in The New York Times, The Wall Street markets around the world. Journal, Fortune and Advertising Age. Our work has been honored by awards from the ANA, Medical Marketing & Media, and DTC Perspectives, among others. TM For more information, please visit Global’s website at: www.global-ny.com For more information, please visit the company website at: www.prime-access.com