Cancer Awareness in South West London Report using the Cancer Awareness Measure for the South West London: EXECUTIVE SUMMARY 24 September 2010 Legal notice © 2010 Ipsos MORI – all rights reserved. The contents of this report constitute the sole and exclusive property of Ipsos MORI. Ipsos MORI retains all right, title and interest, including without limitation copyright, in or to any Ipsos MORI trademarks, technologies, methodologies, products, analyses, software and know-how included or arising out of this report or used in connection with the preparation of this report. No license under any copyright is hereby granted or implied. The contents of this report are of a commercially sensitive and confidential nature and intended solely for the review and consideration of the person or entity to which it is addressed. No other use is permitted and the addressee undertakes not to disclose all or part of this report to any third party (including but not limited, where applicable, pursuant to the Freedom of Information Act 2000) without the prior written consent of the Company Secretary of Ipsos MORI. Executive Summary This executive summary presents the findings of a research study conducted by Ipsos MORI Social Research Institute measuring cancer awareness amongst residents of South West London. The survey was carried out on behalf of the South West London Cancer Network and a total of 5,009 interviews were conducted across the six boroughs that make up the SWLCN region. Where appropriate, comparisons are made to the ONS National Cancer Awareness Measurement Survey to provide benchmarks for the findings. The impact of cancer The majority of South West London residents report having been affected by cancer in some way, either personally or through friends or family having the disease. One in ten residents (12%) has personally had cancer themselves. Specific groups of residents – particularly women, white residents, those aged 45-54 and those from social grades AB – are particularly more likely to have been affected by cancer. Around a quarter of residents (26%) are able to correctly estimate the proportion of people who are likely to develop cancer at some point in their lives1.This is similar to residents across the country as a whole, but a greater proportion in South West London tend to underestimate its impact; this may be linked to slightly lower levels of incidence in the area. Warning signs of cancer Residents mention a range of possible warning signs and symptoms of cancer, the most commonly mentioned of which is an unusual lump or swelling (59%). However, the depth of residents’ awareness appears to be quite shallow, with only a relatively small proportion able to identify more than five signs of symptoms of cancer (13%). While prompted awareness of symptoms is significantly higher than unprompted, South West London residents appear to have lower levels of awareness than residents elsewhere in the country. It would appear that there is a strong link between personal experience of cancer and levels of awareness. Those groups of residents who are less likely to have had personal experience of cancer are also less likely to correctly identify its warning signs and symptoms. These residents include those from ethnic minorities, those from social grades DE and those 1 30-36 people in 100 2 © 2010 Ipsos MORI. aged 18-24. However, residents over the age of 65 are also less aware of the warning signs, despite the fact that they have a relatively high incidence of cancer. While knowledge and awareness of the symptoms is the first stage in the path towards treatment, it ultimately means little if the recognised symptoms are not presented to a medical professional in a timely fashion. The majority of residents would report most of the symptoms asked about within a couple of weeks; the exception to this would be unexplained weight loss. While South West London residents are slightly less likely than residents across the country as a whole to report the individual symptoms, when asked specifically about reporting a symptom that they thought might be cancer, the gap was much narrower. Interestingly, residents who are more likely to present their symptoms early are in fact those who have lower levels of cancer awareness and less personal experience of cancer (DE residents, those form ethnic minorities and younger residents). This highlights that awareness is not a barrier to presentation for all; there are other important factors that are influencing residents’ decisions about whether to present symptoms to a doctor. Apart from a lack of awareness, residents cite practical or convenience issues, such as not being able to get an appointment, being too busy or having too much to worry about as the main barriers to going to see the doctor. This is especially the case for white residents and those from social grades AB. For some residents, such as those from social grades DE and ethnic minority residents, fear of the consultation or the outcome affects whether they would put off going to see the doctor. For others, communication and a lack of confidence is also seen as a potential barrier. This includes being worried about wasting the doctor’s time, feeling their doctor is difficult to talk to, not feeling confident talking about their symptoms and being embarrassed. Awareness of the causes of cancer South West London residents clearly believe that lifestyle makes the greatest contribution to developing cancer in the UK, with around half (53%) ranking it as the most important factor. Second comes genetic inheritance (29%), while South West London residents rank environmental factors, ageing and chance as having lower levels of influence on occurrences of cancer in the UK. This follows a similar pattern to that for residents across the country. When asked about the actual causes of cancer, the factors highlighted by South West London residents are largely consistent with the priority ranking. They are dominated by avoidable lifestyle factors (especially smoking, 79%), followed by external factors such as 3 © 2010 Ipsos MORI. genes and the environment. Few residents do not know or did not mention any factors that affect a person’s chance of getting cancer (five per cent combined). There are key differences by sub-group, with those who are more likely to be at risk of developing cancer also the most likely to be aware of the causes of cancer, especially those that have more relevance to them. Younger residents and white residents are more likely to be aware of the lifestyle factors such as smoking and drinking alcohol, while those aged 65+ and those from ethnic minority backgrounds were more likely not to know. When prompted with specific causes of cancer, report knowledge was significantly higher. In almost identical results to residents across the country as a whole, South West London residents clearly believe that breast cancer is the most common form of cancer among women, with over four in five residents believing this to be true (82%). Few residents highlight other cancers, with breast cancer ten times more likely to be mentioned than the next most popular choice. In reality the three most common forms of cancer among women in South West London are breast, colorectal (bowel) and lung cancer. The results for common cancers among men are slightly more varied, with just under half (48%) thinking that prostate cancer is the most common form, while a quarter of residents (23%) believe that lung cancer is the most common, while one in ten residents (12%) think it is testicular cancer. Only four per cent of residents say they do not know. The three most common forms of cancer among men are prostate, lung and colorectal (bowel) cancer. Cancer screening The majority of South West London residents believe that there is an NHS breast cancer screening programme and an NHS cervical cancer screening programme (78% for both), although these figures are lower than for the country as a whole. In contrast, South West London residents are actually more aware of the NHS bowel cancer screening programme than residents across the county. Regardless, knowledge of this screening programme is much lower than for the other programmes (31%). Awareness of the screening programmes appears to be very much linked to personal experience of cancer and relevance (in terms of gender and age). Those residents who indicated they knew about the three NHS cancer screening programmes were then asked the age that people are first invited for screening for that programme. For breast cancer screening, three in ten residents (34%) provide the correct answer of 50-53 years. For the cervical cancer screening programme women are first invited for this at the age of 25, with one in five residents (22%) correctly reporting this age. For the 4 © 2010 Ipsos MORI. bowel cancer screening programme over a third of residents (36%) answer correctly (between 60-69); however only a slightly lower proportion of residents (32%) are more than five years from the correct answer, while just over a quarter (27%) do not know. 5 © 2010 Ipsos MORI.