Special Edition
Our Sponsors
Team Blazeman members
get great discounts from
some of the best brands!
Hello Blazeman Warriors,
We have some exciting news to share this
month! As many of you know, our mission is
both awareness and funding cutting-edge
scientific research to find a treatment and
eventual cure for ALS. Our warriors have
excelled at raising awareness everywhere they
go, which in turn has generated the financial support we need
for funding a cure. Thanks to everyone's hard work and
generous support, we have made our first research grant
to The Les Turner ALS Research Laboratory at
Northwestern University's Feinberg School of Medicine.
The grant, known as the Blazeman Post-Doc in ALS, provides
two years of funding in the laboratory of Dr. Teepu Siddique
and was awarded to Dr. Kaouther Ajroud, Ph.D. For more
information, read the article below. This partnership would not
have been possible without you - THANK YOU!!!
Get your discounts today!
For more information on
Blazeman Warrior Discounts,
contact info@waronals.com
On another medical note, we have also made a support
grant available for the 4th Annual ALS/MND Nursing
Symposium this September in Chicago, IL in conjunction with
the Les Turner Foundation and Northwestern University's
Feinberg School of Medicine. This grant will allow a nurse to
attend who would not otherwise be able to finance the trip. As
Jon's caregiver and a nurse myself, I cannot stress how
important this area is overlooked. I will also be in attendance
and look forward to sharing our story as well as bringing
awareness to our mission.
I am thrilled to share this news with you as we continuously
Make a donation today!
work in support of our mission to raise awareness and
resources in support of a cure for ALS. We're one step closer
and, for that, I thank you.
Join Team Blazeman!
Till next time....
The list of registered
Blazeman Warriors
keeps growing! We are
proud to have you
representing us on the
battlefields!
Clark Archibald
John Mcnamara
Kevin Perkins
Melissa Merson
Thomas Martwinski
Jennifer Bornemann
Kathleen Fetissoff
Linda Laird
Chris Ellinghaus
Fabrice Le Det
Petra Le Det
Nick Logan
Ran Korolik
Erik Feeney
Christopher Giordano
Charlie Dunne
Karen O'Riordan
Mia Richter
Jennifer Tebbetts
Debbie Ragals
Brian Breen
Dru Bornhoeft
Cheryl Iseberg
Richard Volpe
Christopher Price
Alexander Ha
Gregory Hoots
Tricia Ryan
Domnick Nelson
David Knight
Caryn Blanke
Douglas Munsee
Alexis Andrianopoulos
Glenn Hines
Philip Clark
Susan Langevin
Karen Duffy
Mike Duffy
Brian Duffy
Kevin Long
Steven Perunovich
Sean Dutra
Michael Ricci
Cathy Ruf
Ed Bullock
Ryan Van Praet
With strength, honor and affection,
Mary Ann Blais
Jon's Mom
Blazeman Foundation for ALS
Blazeman Foundation
Dedicates First Research
Grant to Northwestern
University
Doreen DiMeglio
Judy Pratt
Michael Keim
Barbara Altemus
April Colescott
Gabe Fiscus
Ken Fanelli
Larry O'Connell
Caryn De Filippo
Jennifer Brady
Diego Avalos
Megan Knepper
Brian Kochanek
Paul Nowicki
Ron Salmon
Barry Conrad
Christopher Demers
Jennie Eddy
Marty Peterson
Jack Keenan
Dennis Joyce
Rob Duguay
John Plumley
Kimberly Magee
Sean Waklee
Christine Suter
Collette Bates
Brad Culp
T. Connelly
Michael Carr
Richard Higgs
Sean McNamara
Jason Biggs
Henry Hoyle
John Purvis
Leah Roberts
Robert Maldonado
Bill Peloso
Shelley Farmer
Michele Solomon
Daniel Molloy
Michael Ireland
Michael Hicks, Jr.
Leanda Cave
Ryan Close
Courtney Greene
Thomas Simmons
Colin Lake
Tim Smit
Jordan Bryden
Kim Williams
Chris Parker
Shawn Mahoney
Lisa Unger
John Ryan
Dana Ryan
The Blazeman Foundation Post-Doctoral Fellow in ALS will
advance cutting-edge research
With a recent two-year $100,000 commitment to
Northwestern University Feinberg School of Medicine, the
Blazeman Foundation for ALS has issued their first research
grant. In partnership with the Les Turner ALS Foundation, the
Seekonk, Massachusetts-based organization will support the
research of the Blazeman Foundation Post-Doctoral Fellow
in ALS.
Recently designated to fill
the fellowship position,
Kaouther Ajroud, PhD, will
work in the Les Turner ALS
Research Laboratory in the
Davee Department of
Neurology and Clinical
Neurosciences under the
leadership of Teepu
Siddique, MD (photo,
right), Les Turner ALS
Foundation/Herbert C.
Wenske Foundation
Professor at the Feinberg
School of Medicine. Dr.
Ajroud's research will focus
on a newly-identified gene
associated with ALS, or
Conn Jackson
Michael Mathers
JD Mathers
Nancy Nicklas
John Wolski
Adolfo Roa
Jen McGuiggan
Charlie Komar
Alexander Karn
Tarcisco Alvarez-Rivero
Rodney Ward
Mark Helisek
Paul Mandell
Bob Gebbie
Jerry Sappington
Kimberly Daley
John Daley
Celeste Callahan
Michael Swyt
Kimberly Sass
Jeremiah Crandell
Christie and Mark Di Pietro
Susanna Di Pietro
Paul Fahey
Vernon Johnson
Mary Miller
Cami Stark
John Wright
Chris Tidmore
Anna Jenkins
Chris Stafford
Brian Layman
Todd Verkest
Brent Layman
Sean Chick
Kevin Davidson
Jane Dempsey
Fernando Sumaya
TEAMS
Beat ALS
Canadian Triathletes
Clan Westchester
D3 Multisport
OC Blazeman
ParkCity Clan
Providence Triathlon
Steve Perunovich Family & Friends
Team Kochanek
Team Long
Team Newton's War on ALS
Team Polar
Team raceAthlete
Coonbottom Tri Club
The Nelson for Blazeman Team
Tim Smit's War on ALS
amyotrophic lateral sclerosis, which is often referred to as "Lou
Gehrig's Disease." As the Blazeman Foundation Post-Doctoral
Fellow in ALS, she will continue to advance the laboratory's
research while benefitting from advanced training in the
neuromuscular disorder sub-specialty.
"We think Dr. Ajroud's research will have wide implications for
this disease, including sporadic ALS," Dr. Siddique commented.
"This gene and new targets identified in our genome-wide
study in sporadic ALS lead us closer to pinpointing the causes
of ALS, and ultimately, will lead to therapies to limit the effects
of ALS."
On May 2, 2005, twenty-year Multi-Sport veteran Jon Blais a.k.a. "Blazeman" at age 33 was diagnosed with the fatal
motor neuron disease ALS (Amyotrophic Lateral Sclerosis). Blazeman dubbed himself the "ALS Warrior Poet" and
brought his battle to the big island of Hawaii on October 15th that year, where he became the first person with ALS to
complete the Ironman World Championships. It was his last race. In 2006, a number of athletes, inspired by Jon's
2005 efforts, rolled across the finish line in Hawaii in honor of Jon and his battle against ALS. In 2007, the Blazeman
Foundation for ALS expanded Team Blazeman, comprised of "Blazeman Warriors" who have committed to raising
awareness and funding a search for a cure for ALS..."So Others May Live."
Forward email
This email was sent to jennifer.murphy@uconn.edu by blazemanmom@comcast.net.
Update Profile/Email Address | Instant removal with SafeUnsubscribe™ | Privacy Policy.
War On Als | 20 Commerce Way, Unit 12 | PMB 283 | Seekonk | MA | 02771
Email Marketing by