IDF Africa Member Association Workshop Summary Report Introduction On the 23rd – 24th July 2012, the IDF Africa Region convened a development workshop for its 33 Member Associations (MAs) from 31 countries. Held immediately before the first IDF Africa Diabetes Congress in Arusha Tanzania, the workshop focused on developing priorities for the region for the next triennium (2013-2015) and identifying key areas for capacity building for the region and its MAs. The workshop had four aims: - Report regional progress so far Explore roles and relationships of key stakeholders for diabetes in Africa Identify the region’s strengths, weaknesses, opportunities and challenges Develop a regional strategy aligned to the IDF Strategic Plan 2013-2015. Discussions during the regional workshop were framed by a number of important global initiatives and developments. These included: - UN Political Declaration on NCD Prevention and Control 2011: The Political Declaration on NCDs was adopted last September by all 193 UN Member States and provides a global roadmap for diabetes/NCDs which can be tailored for different regions. It includes 22 actionoriented commitments that range from prevention, care, research, health systems, and resources. - IDF Global Diabetes Plan 2011-2021: IDF launched this ten year plan last year and the three global objectives provide a framework for action for IDF and its Member Associations. The objectives are to improve health outcomes for people with diabetes; prevent type 2 diabetes; and stop discrimination against people with diabetes. - IDF Strategic Plan 2013-2015: With a new triennium starting in 2013, IDF is developing a new global Strategic Plan. The draft of that Plan was also used as a guiding document. The workshop also drew from a number of strategic initiatives from the region, including the IDF Africa Diabetes Care Initiative (ADCI) 2010-212. This summary of the workshop covers key points on: 1. 2. 3. 4. The Challenge: Strengths, weaknesses, opportunities and threats in the Africa Region Objectives: What we are aiming to achieve Delivering results: How we are going to achieve our objectives Partners and stakeholders: Who we are going to work with and influence to achieve our objectives 5. Next Steps: Developing an IDF Africa Regional Strategy 2013-2015 The Challenge: SWOT Analysis During the workshop, MAs conducted a SWOT analysis to explore the key challenges and opportunities for IDF MAs and IDF Africa in responding to the diabetes epidemic. The SWOT analysis identified the internal organisational strengths and weaknesses within the Africa Region, as well as the external opportunities and threats that could either help or hinder IDF MAs in their efforts. This analysis helped MAs to identify objectives later in the workshop. Below are the key points that workshop participants identified: IDF Africa Region Strengths IDF Africa Region Weaknesses A high number of Member Associations Many dormant Member Associations Many young members Lack of sustained member commitment Committed, engaged and competent staff Existence of effective advocacy, tools awareness campaigns Lack of skilled and dedicated leadership and Limited capacity due to poor infrastructure in some Member Associations Support of IDF and World Diabetes Foundation Identical problems throughout the Region Lack of human and financial resources Poor communication and a lack of networking and sharing experiences Freedom to associate and partner with like-minded Poor governance & accountability (lack of constitution organisations and by-laws) External Opportunities Extensive activity on the ground on diabetes prevention and care National policies developed, including at the NCD level Health facility infrastructure available to build upon, including diagnostic and screening networks External Threats An increasing number of people with diabetes in the region Lack of government commitment to implement and follow-up on national policies Lack of specialists and technical expertise for diabetes in the region Lack of government subsidies and funding for diabetes in the region Objectives: What We Are Aiming to Achieve Workshop participants discussed the priorities for the region for the next triennium 2013-2015, using the framework of the three objectives in the Global Diabetes Plan. These are as follows: Improve health outcomes for all people with diabetes - Improve access to affordable healthcare for people with diabetes, including through advocacy and technical assistance. - Promote diabetes education - Improve healthcare infrastructure, including the provision of essential medicines and technologies, early detection, screening and training - Develop guidelines & protocols for diabetes care and management Prevent the development of type 2 diabetes - Promote education of the risk factors through awareness campaigns, particularly at primary school level - Promote risk assessment & early diagnosis, including screening programmes - Encourage policies on the food and beverage industries, particularly for marketing, labelling and imports Stop discrimination against people with diabetes - Encourage implementation of supportive legal and policy frameworks to combat discrimination against people with diabetes - Empower people with diabetes and educate people to stop discrimination - Improve the public image of diabetes - Advocate for the implementation of the IDF Charter of Rights and Responsibilities for People with Diabetes, with a view to developing an African version Delivering Results: How we are going to achieve our objectives MAs discussed the strategies needed to achieve the identified objectives in the IDF Africa Region. MAs established five clear areas for organisational development, with accompanying action points to drive the Region’s progress forward: 1. Communication: Four major areas were identified to strengthen communications within the IDF Africa Region. Firstly, MAs suggested the IDF Africa Region could improve coordination by establishing an updated directory of MAs and ensuring regular meetings and timely reporting. Secondly, a means to improve contact between MAs was suggested by identifying an individual within each MA to receive, disseminate and respond to information, with official contact details and the duty to respond to information within an established timeframe (7 working days was suggested.) Thirdly, MAs stated the need to develop a clear Communication Plan, with specific communication strategies to guide the Region. Finally, MAs wished to identify, evaluate and strengthen the Region’s existing communication channels, with new suggestions including a MA and Regional websites, a diary of events and regular activity reports from all MAs. 2. Infrastructure: Participants highlighted that basic infrastructure, both for the Region and for MAs, needs be considerably strengthened. MAs identified the need to establish a permanent Regional office, with appropriate infrastructure and resources. It was stressed that in Africa, facilities for diabetes need to be better equipped, renovated, and in some cases, fully constructed. MAs recognised that advocacy efforts are required to strengthen these facilities, and ensure that a minimum level of logistics and infrastructure is met to deliver essential diabetes treatment and care. 3. Resources: The challenge of increasing financial resources for the Region was discussed at length. MAs noted that regional staff and MAs needed to be trained in developing and implementing resource mobilisation strategies – including drafting project plans and grant applications. The role of MAs in mobilizing resources was also stressed, with fundraising activities suggested. Participants noted the importance of strengthening public-private partnerships as a sustainable means of acquiring resources for diabetes. 4. Governance: Various strategies were proposed to improve governance in the Region, particularly through leadership, engaging stakeholders and developing governance structures. MAs noted the importance of dedicated, committed and reliable leaders in driving progress on diabetes. The need to better engage stakeholders, through participatory management, diversifying partners and broadening the Region’s communication network, was also stressed. Major emphasis was placed on strengthening the governing structures of the Region and its Members. Participants suggested that a binding Regional Constitution with bylaws should be established, and the Region should implement Performance and Financial Auditing, Peer Review and produce an Annual Report. MAs also noted that the importance of national governance structures, compliance with Regional requirements and the importance of maintaining the rule of law throughout the region. 5. Transparency and Accountability: MAs identified these as two fundamental principles for the Region. Participants continually stressed that improving transparency and accountability will be critical for the organisational development of the IDF Africa Region. Partners and Stakeholders: Who we are going to work with and influence to achieve our objectives After establishing the strategies needed to achieve the IDF Africa Region’s objectives, MAs outlined the key actors that need to be worked with and influenced. MAs participated in an exercise to map relevant people and organisations into different categories: ‘the heart of the organisation’; ‘who you want to work with’; and ‘who you want to influence’. The outcome of the mapping exercise is below: Next Steps: Developing an IDF Africa Regional Strategy 2013-2015 Based upon this summary report of the MA workshop, IDF Africa supported by the IDF Executive Office will draft a Regional Strategy for the Africa Region for the next triennium 2013-2015. The Strategy will be written in consultation with IDF Africa MAs, and will be completed by the end of 2012. List of Member Associations represented during the meeting Association Burkinabe d'Aide aux Diabétiques Burundian Diabetes Association Cameroon Diabetes Association Association des Diabétiques de Côte d'Ivoire Association Vaincre le Diabète au Congo Eritrean National Diabetic Association Ethiopian Diabetes Association Gambian Diabetes Association Ghana Diabetes Association Association Guinéenne d'Education et d'Aide aux Diabétiques Diabetes Kenya Association Association Malgache contre le Diabète Diabetes Association of Malawi Association Malienne de Lutte contre le Diabète Association Mauritanienne de Lutte contre le Diabète Associacao Mocambicana dos Diabéticos Diabetes Association of Nigeria Diabaction-Congo Association Rwandaise des Diabétiques Association Sénégalaise de Soutien aux Diabétiques Diabetes South Africa Society for Endocrinology, Metabolism and Diabetes of South Africa Diabetes Association of Zanzibar Tanzania Diabetes Association Association Togolaise du Diabete Uganda Diabetes Association Zimbabwe Diabetic Association