Forget-me-nots The Heart Transplant Office’s contact numbers are: Phone: 866-748-1494 or 615-936-3500; Fax: 615-936-3829. Please call us and let us know if there is a change in your phone number, address, or insurance. Also, please call us if you can’t keep your clinic appointment. Remember to do your three month labs. Remember to wear sunscreen everyday to protect yourself! Don’t forget to check out our online support group at www.health.groups.yahoo.com/ group/vanderbilthearttransplant/. You can receive support other recipients, find links to other websites, and view photos and resources. WANT TO HELP OTHER TRANSPLANT RECIPIENTS? Would you like to become involved in the lives of other transplant recipients? Would you like to share your knowledge of living life posttransplant with someone who would like your support? If you are interested in getting involved with the Heart Transplant Support Network, then please call Anne Schmitt at 615-936-0398 for more information. If you would like to donate to the Vanderbilt Heart Transplant Program, there are two funds you can support. The Patient Assistance Fund and The Research & Education Fund both help people who have had or need transplants. Please mail all donations to the following address: Vanderbilt Heart Transplant “Patient Assistance Fund” or “Research & Education Fund” c/o Yvonne A. Moneypenny 808 Oxford House Nashville, TN 37232-4745 If you have questions, contact Yvonne Moneypenny at 615-936-0388. Old Fashioned Blueberry Milkshake 1 cup vanilla frozen yogurt or low fat ice cream 1 cup skim milk 1 teaspoon vanilla ½ cup fresh or frozen blueberries Place all ingredients into a blender and blend until smooth. Sprinkle a few extra blueberries on top, if desired. 908 Oxford House Nashville, TN 37232-4751 Nutrition facts: Serving size: 1 cup (recipe makes 2 servings) Calories: 255 calories Protein: 9.3 grams Fat: 3 grams Saturated: 1.8 grams Cholesterol: 18 milligrams Carbohydrate: 46 grams Sodium: 215 milligrams Calcium: 310 milligrams Modified from www.recipezaar.com/ Blueberry-Milkshake-214867 Heart Happenings A Newsletter for Heart Transplant OCTOBER 2009 • NUMBER 5 The New Heart Society of East Tennessee Jerry Barnsfield In May of 1991, a group of transplant recipients and their families and friends established The New Heart Society of East Tennessee. The group formed when fifteen transplant recipients realized they each had an experience to share with each other, with new transplant candidates and their caregivers, and with the general public. They wanted to promote organ and tissue donation and to share their stories. The New Heart Society was organized to inform others and share experiences. The intentions remain the same today as the group continues to share experiences and information from different transplant programs. We have members from transplant programs extending from Minnesota, through Indiana, Kentucky, Tennessee, Georgia, and Alabama. Each program contributes information to be shared among all of the groups. They formed the support group to inform new transplant candidates of what to expect and how to cope with the unknown. The purpose was to ease the apprehension of the unknown, to help support their caregivers, and to understand the importance of and the extent of their role in the success of the surgical procedure. Please join us! We meet once a month to eat, socialize, and share experiences. We are in contact with each other especially when someone requires help with medical appointments or everyday activities. We are here to help you and to help each other before, during, and after the transplant experience. A monthly newsletter (Heart Sounds) is offered to all who return our brochure. You can obtain a brochure from the Vanderbilt Transplant Social Work Office. For more information regarding The New Heart Society of East Tennessee, please contact Jerry Barnsfield at newheartsociety@knology.net or via phone at 865-694-0269 or 865-607-0505. Transplant Picnic 2009 The hospitalization period is daunting, as the recipient and caregivers must learn. As is the medication routine and the extent to which the patient will require assistance with daily activities. After hospital discharge, the patient is required to remain in proximity of the transplant center for daily medical attention. The routine of daily exercise, blood tests, and medication adjustments can be intimidating, but to know someone has been there before makes the adjustment easier. It makes it easier to understand the process of a transplant when one can see the positive results. With support from other recipients, the new transplant recipient can know how others have managed recovery, regained mobility, and endured the aches and pains of transplant. On Saturday September 12, the Vanderbilt Transplant Center hosted the Transplant Patient Reunion and Health Fair. In celebration of the Transplant Center’s 20th Anniversary, the center’s first joint program picnic, with heart, lung, kidney, pancreas, and liver recipients attending, was held. Hundreds of recipients and their loved ones came and enjoyed food, music, games, and meeting other recipients and their families! Pictured are the heart transplant recipients and staff members who attended. H1N1 Flu (Swine flu) Information The H1N1 flu (Swine Flu) virus is causing illness in people in the United States and countries around the world. The Centers for Disease Control (CDC) expects that illnesses may continue for some time. As a result, you or the people around you may become ill. If so, you need to know the symptoms and what to do if you become sick. Symptoms The symptoms of the H1N1 flu virus are much like symptoms of seasonal flu. The symptoms include: • Fever above 101oor 2 to 3 degrees above your normal body tempurature • Sore throat • Fatigue • Cough • Headache • Runny nose • Chills • Stuffy nose • Some people also report diarrhea and vomiting If you are having any of the above symptoms please call your Primary Care Physician’s office or the Transplant Center immediately Avoid Contact with Others If you are sick, you may be ill for a week or longer. You should stay home and keep away from others as much as possible, including avoiding travel and not going to work or school, for at least 24 hours after your fever is gone, except to get medical care or for other necessities. (Your fever should be gone without the use of fever-reducing medicine. Use only those medications that have been approved by the Transplant Center or PCP.) If you leave the house — wear a facemask and cover your coughs and sneezes with a tissue. Make sure to throw away the tissue into the trash when you are done. With seasonal flu, you may be contagious from one day before you develop symptoms to up to seven days after you get sick. People infected with the H1N1 are likely to have similar patterns of infectiousness as with seasonal flu. Treatment is Available for Those Who Are Seriously Ill It is expected that most people will recover without needing medical care. If you have severe illness or you are at high risk for flu complications, contact your PCP or the Transplant Center. We will determine whether flu testing or treatment is needed. Antiviral drugs can be given to treat those who become severely ill with influenza. These antiviral drugs are prescription medicines and must be prescribed by a health care professional. Emergency Warning Signs • If you become ill and experience any of the following warning signs, seek emergency medical care. •Difficulty breathing or shortness of breath • Pain or pressure in the chest or abdomen • Sudden dizziness • Confusion • Severe or persistent vomiting or flu like symptoms that improve but return with fever and worsening cough Protect Yourself, Your Family, and Community • Wash your hands often with soap and water, especially after you cough or sneeze. Alcohol-based disinfectant gels also work well • Avoid touching your eyes, nose and mouth — this is how germs are spread • Try to avoid close contact with sick people • If you are sick and sharing a common space with other household members in your home, wear a facemask, if available, to help prevent spreading the virus to others Vanderbilt Heart Transplant’s New Staff Members Tricia L. Grannemann, RN, BSN graduated from Barnes College of Nursing at the University of Missouri—St. Louis. She has a Bachelor of Science in Nursing degree and has been a nurse for 11 years. She has practiced primarily in critical care and cardiology. Tricia started at Vanderbilt in February 2009, after moving from Missouri. She comes from a very small town there, where she has lived for most of her life. She has friends and family in Tennessee though and has visited Nashville many times before moving here. So big city living is a big change for her. But, she loves the city and is excited to be working for Vanderbilt. Heart transplant is her home now and Tricia is looking forward to meeting each and every one of you. Vaccination At this time the H1N1 (Swine Flu) vaccine is being tested only in healthy children and adults. We are unsure if this vaccine will be safe for those patients who have decreased immune systems. The Transplant Center encourages you to get a regular flu vaccination this year and every year. If you have any questions, please call the Heart Transplant Center at (615) 936-3500 Reference www.cdc.gov/h1n1flu/sick.htm Centers for Disease Control and Prevention. “What to Do If You Get Flu-Like Symptoms” August 2009. Tara Kalinchak, Data Management Specialist, has been with Vanderbilt Heart Transplant for about 5 months. However, she has worked for Vanderbilt for 3 years. She is the Data Management Specialist for Transplant, so she is the one who answers the phone when you call. She started in the Pediatric Orthopedics department as a Nurse Tech. She also worked in Occupational Health, Ob/ GYN and Otolaryngology. She has been doing office administrative work for over 10 years and is honored to be a part of the transplant team. She looks forward to serving your needs in the near future. Steve Joggerst is the new transplant fellow. He was born and raised in Saint Louis, Mo and attended college at Saint Louis University. From there he moved to New York City to attend medical school at Columbia University. He met his wife in medical school and the two of them moved to Nashville in 2006 to begin residency at Vanderbilt. He and his wife have greatly enjoyed their time in Nashville. They do not have kids but do have two Labrador Retrievers named Cash and Carter. Steve will be moving to Houston, TX in July of 2010 to continue his Cardiology Training. Steve Janson, Data Management Specialist, grew up in Raleigh, North Carolina. After high school, Steve lived and studied in Scotland for a year before moving to Nashville to study drums/percussion at The Blair School of Music here at Vanderbilt. After graduating, he worked at the Occupational Health Clinic as a Patient Service Representative before moving to the Heart Transplant program. He has visited many different countries. He is the drummer for the local band Thief, based out of Murfreesboro. He encourages you to come to one of his shows, or to just stop by his desk sometime and say hello. Caroline Mauldin, formerly Caroline Makey, was recently married! Please be aware of her new name change. But she’s still our same wonderful Nurse Practioner. Getting the Calcium You Need Most of us have heard that we should drink milk for strong bones. But most people still have no idea how much calcium (the mineral in milk that promotes bone health) they actually need. So knowing how much calcium you need — and then actually getting that amount, is incredibly important. In general, adults ages 19 to 50 need 1000 mg calcium per day. Adults older than 50 and women that are postmenopausal should consume 1200 mg calcium per day. Getting enough calcium is especially important if you have had a transplant, since certain medications taken after transplant increase your body’s need for calcium and place you at higher risk of developing osteoporosis. Adults who have had a transplant should aim for 1200 to 1500 mg of calcium each day. Good sources of calcium include milk (300 mg per cup), yogurt (200 mg per 4 ounces) , low fat cheese (102 mg per ounce), calcium fortified orange juice (350 mg per cup), calcium fortified soy milk (300 mg per cup), nonfat dry milk (100 mg per tablespoon), turnip greens (100 mg per ½ cup cooked), collard greens (100 mg per ½ cup cooked), and kale (100 mg per ½ cup cooked). Also, you can increase the calcium content of many foods by adding nonfat dry milk to items like casseroles, or try substituting plain yogurt for sour cream in recipes. Please see back page for a refreshing recipe.