Equality Report How we perform against the NHS Equality Delivery System outcomes – Case Studies and evidence for 2gether NHS Foundation Trust February 2012 Glossary of abbreviations and terms EDS NHS ‘Protected characteristics’ ‘Disadvantaged groups’ ‘Local interests’ interest group’ BME GRIP CQC NIHCE/NICE or Equality Delivery System National Health Service The nine characteristics protected under the Equality Act 2010: 1. Age 2. Disability 3. Gender reassignment 4. Pregnancy/maternity 5. Marriage/civil partnership 6. Religion/belief 7. Race (or ethnicity) 8. Sex (or gender) 9. Sexual orientation Sometimes called ‘marginalised’, ‘hard-to-reach’ or ‘seldomheard’ groups, these are people who experience inequalities in health, healthcare and employment, but who are not specifically protected by the Equality Act. They can include homeless people, sex workers, people who misuse substances, people with low socio-economic status, and people living in rural isolation. ‘Local Patients, the public, voluntary sector organisations, members of the community, staff and staff side (trades union) organisations who have an interest in what we do. Black Minority Ethnic Gloucester Recovery in Psychosis Quality Care Commission National Institute for Health and Clinical Excellence Page 2 of 83 1. Introduction 1.1 The Equality Delivery System The Equality Delivery System (EDS) is a tool that has been developed by the NHS for use by organisations that commission and provide NHS services. We use the EDS in partnership with patients, the public and staff to review our equality performance and to identify future priorities and actions. The EDS consists of four goals: 1. Better health outcomes for all 2. Improved patient access and experience 3. Empowered, engaged and included staff 4. Inclusive leadership at all levels The goals are underpinned by 18 outcomes. These are set out in the appendices. The aim is to achieve equality in these outcomes across the nine characteristics protected by the Equality Act, i.e. age, disability, gender reassignment, pregnancy/ maternity, marriage/ civil partnership, religion/ belief, race, sex, and sexual orientation. 1.2 About this report This document describes some of the work that we have done which we believe shows how we achieve the EDS outcomes. We have described our ‘best practice’ and recognise that we may not achieve this quality of service consistently or perhaps not on every occasion, however it enables us to strive for excellence. For each of these goals and their related outcomes, we have set out: Examples of how we deliver our services How we are doing compared to regional or national averages where possible this information is available For people with protected characteristics why they may experience different outcomes Where appropriate information for other disadvantaged groups such as homeless people, sex workers, drug users, people with low socio-economic status (NB ‘disadvantaged groups’ are an optional extension of the EDS). How people from across the ‘protected characteristics’ are involved and engaged in decisions; How we have integrated equality considerations into our mainstream business processes; Where we think we can improve equality in this area, and the plans we have in place to achieve this. 1. Drawing up this report was the first stage in the EDS process. Page 3 of 83 2. We shared examples of our ‘best practice’ case studies at engagement events on the 6th December 2011, 16th, 19th and 27th January 2012. About fifty people attended and came from voluntary and community organisations, other public sector organisations, were service users or carers, and for this Trust, were our members and Governors plus staff. These people represent our ‘local interest’ groups. At these events we asked participants to describe the barriers they or others face in accessing health care or achieving healthy outcomes. We asked what an ‘excellent’ health service would look like and many people described services which reflected key aspects of our ‘best practice’ examples. 3. This report (as at February 2012) is just one stage in our processes. We are seeking your assessment of how we are doing. You can work with us to agree ‘grades’ for each outcome, based on the evidence in this report and your own assessment of how we are doing. For each outcome one of four grades is possible: Excelling – Purple Achieving – Green Developing – Amber Undeveloped – Red 4. The final stage will asking you to work with us to agree a number of equality objectives which we can embed into business planning. Objectives need to be agreed and published by 5th April 2012. 1.3 About the NHS in Gloucestershire Three NHS organisations provide services in Gloucestershire. All three organisations actively supported the countywide events and individual organisations have supplemented this with their own events. Briefly this is what they each do: NHS Gloucestershire NHS Gloucestershire is made up of two separate parts – the Commissioners and Gloucestershire Care Services. NHS Gloucestershire (Commissioners) NHS Gloucestershire is responsible for commissioning (buying) healthcare for the population of Gloucestershire (approximately 602,000 people). It is responsible for a budget of £910 million to spend this year (2010/11). NHS Gloucestershire commissions (buys) services from Gloucestershire Hospitals NHS Foundation Trust, 2gether NHS Foundation Trust, Gloucestershire Care Services, Great Western Ambulance Service, and voluntary sector organisations. NHS Gloucestershire also supports local GP Practices (and Clinical Commissioning Clusters) to buy health services to meet the needs of their local communities. Page 4 of 83 NHS Gloucestershire Care Services Gloucestershire Care Services provides a wide range of community health services to people living in Gloucestershire. These include: Community (or district) nursing Therapy services for adults and children (such as physiotherapy, occupational therapy, podiatry and speech & language therapy), 8 community hospitals providing inpatient, outpatient and emergency care Out-of-hours services Gloucestershire Care Services currently employs over 3,325 staff. For more information about equality and diversity in NHS Gloucestershire contact lucy.lea@glos.nhs.uk Gloucestershire Hospitals NHS Foundation Trust The Gloucestershire Hospitals NHS Foundation Trust provides acute elective care (which means it carries out planned operations, from hip and knee replacements, to heart surgery and cancer care) and specialist care (including emergency care, brain injury care). The Trust serves people in Gloucestershire and beyond. The organisation runs both Cheltenham General and Gloucestershire Royal Hospitals. The doctors and nurses also see patients at clinics in all of the community hospitals across the county. Gloucestershire Hospitals NHS Foundation Trust employs more than 7,500 staff and sees in excess of 700,000 patients each year. The organisation is a Foundation Trust. This means it has more control over its finances, and it has a Council of Governors and a large group of Members, who are made up of people from across Gloucestershire. Their role is to suggest ideas and to tell the Trust what it is doing right, and how it can be improved. For more information about equality and diversity in Gloucestershire Hospitals NHS Foundation Trust contact mike.seeley@glos.nhs.uk 1.4 2 About our organisation gether NHS Foundation Trust 2gether NHS Foundation Trust is the main provider of mental and social health care in Gloucestershire and Herefordshire. We provide services for individuals experiencing learning disabilities, mental health or substance misuse problems. Page 5 of 83 At any one time we provide services to over 10,000 people and offer education and support to carers, families and schools. We employ over 2000 staff across the two counties. As a Foundation Trust we have over 6000 members who influence our activities both directly by contacting the Trust and through locally elected representatives who sit on the Council of Governors. For more information about equality and diversity in 2gether NHS Foundation Trust contact Carol.sparks@glos.nhs.uk Page 6 of 83 2. Our performance against EDS Outcomes Goal 1: Better health outcomes for all Goal 1 states: “The NHS should achieve improvements in patient health, public health and patient safety for all, based on comprehensive evidence of needs and results”. There are five outcomes under Goal 1. Goal 1. Better health outcomes for all Narrative The NHS should achieve improvements in patient health, public health and patient safety for all, based on comprehensive evidence of needs and results Outcome 1.1 Services are commissioned, designed and procured to meet the health needs of local communities, promote well-being, and reduce health inequalities 1.2 Individual patients’ health needs are assessed, and resulting services provided, in appropriate and effective ways 1.3 Changes across services for individual patients are discussed with them, and transitions are made smoothly 1.4 The safety of patients is prioritised and assured. In particular, patients are free from abuse, harassment, bullying, violence from other patients and staff, with redress being open and fair to all 1.5 Public health, vaccination and screening programmes reach and benefit all local communities and groups Page 7 of 83 Outcome 1.1: Services are commissioned, designed and procured to meet the health needs of local communities, promote well-being, and reduce health inequalities This Trust does not commission services – lead responsibility sits with the commissioning arm of NHS Gloucestershire. However this Trust works closely with the commissioners to agree our services and take into account how health inequalities can be reduced. An example of how we do this is the work of the Intensive Health Outreach Team. This team works across services and sectors to meet the health needs of people with a learning disability and thereby reduce health inequalities. What are the health inequalities faced by those with a learning disability? There are about 11,000 adults with learning disabilities in Gloucestershire. This Outcomes: how are we doing? number is expected to rise by 15% by 2030, including a 59% increase in those aged 65 years and over because people are living longer. People experience ill health as often as or more often than the general population, but are less likely to seek or receive appropriate healthcare and often die at a younger age. Older adults are more likely to develop dementia, with those who have Down’s syndrome developing dementia up to 40 years earlier than the general population. Epilepsy is at least 20 times more common in people with a learning disability Family and other carers can find it difficult if they cannot access the support they need to help them care. Do we know how well or not we are doing compared with national figures? Local figures for dementia are currently only available at GP register level. However these figures probably under-estimate the true prevalence of dementia which may be difficult to diagnose in the early stages. This is being addressed locally as part of the implementation of the National Dementia Strategy. Meanwhile it is suggested that dementia is likely to be an increasing Goal 1 burden on the health economy in the coming years1. 8 Outcome 1.1: Services are commissioned, designed and procured to meet the health needs of local communities, promote well-being, and reduce health inequalities What services do we have which meet the health needs of local communities, which promote well-being, and reduce health inequalities? The Intensive Health Outreach Team was set up in 2009 to address the health inequalities set out in the Department of Health’s ‘Valuing People’ paper 2001, and Valuing people now: a new three-year strategy for people with learning disabilities : Department of Health - Publications. The 2001 paper sets out the higher prevalence of health needs as experienced by those with a learning disability, their higher levels of marginalisation and Outcomes: how are we doing? lower levels of access to health care. Working with the Commissioners in the county and in recognition of the poorer health outcomes for people with a learning disability the Intensive Health Outreach Team were seen as a way of enhancing mainstream services for this group of people. The purpose of the team is to bridge the gap between services, enabling more information to be available to ensure a better diagnosis. In addition the Intensive Health Outreach Team can work with carers to ensure they have the right skills and can better record and report symptoms which can again be used to improve the information available for a diagnosis. The team have no fixed working pattern. Each service user is assessed to determine their specific requirement for support taking into account risks and the intensity of support required. The team have developed a ‘reasonable adjustment’ tool which can be used for example when working in partnership with another health provider. This tool may be used where the team identify that an individual because of their health needs requires a forty minute consultation with their GP rather than twenty minutes and that to provide the person with access via a back door to the Surgery would address their levels of anxiety. Goal 1 These actions actively address health inequalities and improve health outcomes for an individual. 9 Outcome 1.1: Services are commissioned, designed and procured to meet the health needs of local communities, promote well-being, and reduce health inequalities How have we worked across services and different parts of the NHS to meet the health needs of local communities, promote well-being, and reduce health inequalities? The Commissioners set up a multi agency group which representatives of Gloucestershire NHS Hospitals Trust, included 2 gether NHS Foundation Trust, NHS Gloucestershire and GPs. This group looked broadly at what could be done to improve the health outcomes for people with a learning disability, looked at what was known about the population and what was known about their needs. Outcomes: how are we doing? The Intensive Health Outreach Team and the Learning Disability Hospital Liaison Nurses are both good examples of collaborative working which reflect the principles of the work of this group. The Learning Disability Hospital Liaison Nurses have a strategic role to improve health outcomes at the pre-admission stage, during a hospital admission and on discharge. They can ensure that the ‘reasonable adjustment tool’ is utilised and work collaboratively with the Intensive Health Outreach Team. The Intensive Health Outreach Team is able support service users in a wide range of settings including people's own homes, assessment and treatment units, care homes, local authority run respite centres as well as delivering care at the general hospitals alongside mainstream primary and secondary health services. The team has also been a valuable resource for signposting carers, and playing an educational role to other professionals, service users and carers. They can deliver services 24 hours per day. The Hospitals Trust now has in place a ‘flagging’ system to indentify someone who is known to have a learning disability. This can help with ensuring that Goal 1 health inequalities can be addressed on admission. Working with GPs it is now possible to track the journey of someone with a learning disability through all NHS services to better meet health needs. 10 Outcome 1.1: Services are commissioned, designed and procured to meet the health needs of local communities, promote well-being, and reduce health inequalities A case study An individual of 64 years of age with a diagnosis of Down’s syndrome, learning disability and Dementia and was referred to the Intensive Health Outreach Team in late 2010. This person also had many other health issues including an under active thyroid, arthritis, epilepsy, type 2 diabetes and a pace maker. Since the onset of Dementia there had been a loss of ability to move independently and this person would no longer use their few known words. All skills for self care and feeding had also been lost and this individual was now totally reliant on carers for all activities of daily living, and also was refusing Engagement to leave the house. This individual was living in a care home and had been referred to the Intensive Health Outreach Team by the East County Learning Disability Team which is another 2gether service. The Intensive Health Outreach Team visited the home. The team made an assessment to determine why this individual was so distressed. Their observations were taken over an extended day to ensure a comprehensive picture was obtained. They: observed pressure areas which had previously been undetected undertook blood glucose monitoring to provide baseline information for the GP considered whether medication was impacting on levels of distress observed that ‘poor positioning’ could be improved by Occupational Therapy input Goal 1 observed the person’s reaction to seeing reflections in the windows of the conservatory after dark 11 Outcome 1.1: Services are commissioned, designed and procured to meet the health needs of local communities, promote well-being, and reduce health inequalities The team took the following actions: Worked with the GP and the GP undertook a review of medication Through the GP, the team made contact with the District Nurse A new care plan was drawn up which supported physical and mental wellbeing Made a referral to Occupational Therapy for a review of equipment The team provided the care home staff with basic training to identify early warning signs of deteriorating health and thereby reduce the likelihood of hospital admission A joint care plan was developed with the GP for the care home staff Worked with care home staff to ensure that this person received the right level of personal care to reduce incontinence which was causing distress the team gave advice on promoting a suitable environment which included ensuring that the person was not left in the conservatory at times when their own or others’ reflections could be seen which because of the Dementia caused distress. What we have done to ensure that people with a learning disability and particularly those with dementia have been involved and engaged in improving services? Gloucestershire Voices is a group of people with LD who will speak up and act for all people living and working in the county who are struggling with different learning disabilities. The Big Plan is the Learning Disability strategy for Gloucestershire. It sets out how Gloucestershire County Council and NHS Gloucestershire intend to plan services for people with a Learning Disability, their families and carers over the next five years (2010-15). The Big Plan is informed by the work of the LD Goal 1 Partnership Board which is made up of clients, service users, carers and staff from the County Council, Social Care, NHS and voluntary organisations. 12 Outcome 1.1: Services are commissioned, designed and procured to meet the health needs of local communities, promote well-being, and reduce health inequalities What else will we do to reduce health inequalities for older people with dementia? When will we take action? The Intensive Health Outreach Team have identified that there can be issues of dehydration and poor nutrition for people with a learning disability and particularly those of an older age, with or without dementia. These same issues are experienced in services provided to older age adults regardless of the sector. In addition it can be that carers may not recognise general signs of ill health or recognise signs of dementia. Where the team take a referral, they will offer follow up training to the carers / providers with the intention that this will improve the wellbeing of the individual referred and others receiving care from the same provider. It will also reduce the likelihood of hospital admission or readmission. This can have significant health benefits and demonstrates more Improvements effective use of resources across NHS services and the third sector. The team will work with the 2gether Health Facilitation Team in 2012 to ensure training provided to the third sector maximises lessons learnt. The photograph below shows the Intensive Health Outreach Team receiving Goal 1 recognition and the annual Chief Executive award for their work in 2010. 13 Outcome 1.1: Services are commissioned, designed and procured to meet the health needs of local communities, promote well-being, and reduce health inequalities What other work or evidence does the Intensive Health Outreach Team have which might be relevant to this outcome or other outcomes? During and after the grading event on the 7th February a number of cases were described by the team which also relate to Outcome 1.2 and 1.3. All cases are individuals who have a learning disability: One individual was in the homeless shelter. District Nurses had difficulty engaging with the man because of his intimidating behaviour. The man had Trench Foot and was very vulnerable. The team worked with him to gain his trust and acceptance of them by taking part in social activities and communicating with him in a way which met his language skills. Over a period Other evidence of time they were able to gain his confidence and through linking with Podiatry services and the Tissue Viability Nurse improve his care and the treatment for his feet. District Nursing contact remains difficult because of his behaviour but there is now contact and input from the GP for medication. The team has very few referrals from Black or Minority Ethnic families or individuals. However one member of the team is Muslim and was recently able to help with a family who were concerned that their daughter’s cultural needs were not being met through existing providers. By working with the family in both English and the family’s mother tongue it was possible to do an initial health screening, provide information about the service in an alternative language and signpost the family to carer support. The team have few service users who are or have been pregnant. However one young female with a personality disorder was referred to the service because of Goal 1 her poor health and drug issues. Her health was affected by acquiring sexually transmitted diseases through unsuitable relationships. Through working with her, the team were able to identify that her drug usage was as a consequence and impact of a late abortion. 14 Outcome 1.1: Services are commissioned, designed and procured to meet the health needs of local communities, promote well-being, and reduce health inequalities She was unable to relate to young female staff or pregnant team members. The team therefore ensured that those team members who had contact with her were of an older age so that she would feel comfortable with them. By ensuring the right level of contact and the right staff mix, the team are able to ensure that the health needs of very vulnerable people can be assessed, and by making the right links with other agencies and providers appropriate care can be provided. Other evidence The team use Ri0 – the Trust’s electronic patient record and work with service users to complete as much data as possible. Religion or belief can be difficult to ascertain if the person’s language skills are limited and they do not live with their family. Service users in residential settings often have carers who are transient and background or family data may be very limited, so religion may not be known. The team have an operational policy which was written in 2009. It is in the process of being updated as it no longer reflects the working practices. The team no longer have beds as the focus of the work has moved to providng support and care in individual’s own environments. Where hospitalisation is required the team will support a service user into and out of local acute hospitals so that the same care is available to them as can be accessed by people who do not have a learning disability. This ensures that artificial barriers Goal 1 are not introduced into care. 15 Outcome 1.1: Services are commissioned, designed and procured to meet the health needs of local communities, promote well-being, and reduce health inequalities What was the general feedback from engagement events that might apply to this outcome? Local interest group feedback “[The NHS] needs to have a person-centred approach – we’re all individuals”. It’s vital that each service user is seen as an individual person first and foremost and that the diagnosis comes second – treat the individual rather than let the process take over. Good links with other agencies are vital to providing a good service, with a multi disciplinary and professional approach. There is currently a lack of collaborative working and transition between services, which effects service users e.g. in cases of dual diagnosis, duplications of assessments etc. Have services which allow flexibility to provide personalised assessment, care and place of care throughout person’s care pathway (including discharge). This case study was shared at all four engagement events. Participants were impressed with the approach taken by the team and the positive impact of their work. Participants agreed that preventing hospital admission was in the best interests of the individual and that hospital admission was costly. However questions were raised as to how or whether it was possible to demonstrate that intensive input prevented hospital admission and that this approach was ‘cost effective’. Work is being done with the Commissioners to look at these questions although the anecdotal evidence is that the service is cost effective. What was the feedback from our ‘Grading’ event on the 7 th February 2012 or what additional information was provided which has contributed to the overall grading? This case study addressed specific issues related to disability, physical Goal 1 health and age. 16 Outcome 1.1: Services are commissioned, designed and procured to meet the health needs of local communities, promote well-being, and reduce health inequalities The case study was not gender specific and religion/ belief; race; gender reassignment and sexual orientation were not highlighted as contributing to the health inequalities for this individual. However additional examples were given which indicated that the service is sufficiently flexible to ensure health needs can be addressed in an holistic way regardless of protected characteristic and the approach is used with all service users. A number of cases were described by the team which also relate to Outcome Local interest group feedback 1.2 and 1.3. All cases are individuals who have a learning disability: One individual was in the homeless shelter. District Nurses had difficulty engaging with the man because of his intimidating behaviour. The man had Trench Foot and was very vulnerable. The team worked with him to gain his trust and acceptance of them by taking part in social activities and communicating with him in a way which met his language skills. Over a period of time they were able to gain his confidence and through linking with Podiatry services and the Tissue Viability Nurse improve his care and the treatment for his feet. District Nursing contact remains difficult because of his behaviour but there is now contact and input from the GP for medication. The team has very few referrals from Black or Minority Ethnic families or individuals. However one member of the team is Muslim and was recently able to help with a family who were concerned that their daughter’s cultural needs were not being met through existing providers. By working with the family in both English and the family’s mother tongue it was possible to do an initial health screening, provide information about the service in an alternative language and signpost the family to carer support. Goal 1 17 Outcome 1.1: Services are commissioned, designed and procured to meet the health needs of local communities, promote well-being, and reduce health inequalities The team have few service users who are or have been pregnant. However one young female with a personality disorder was referred to the service because of her poor health and drug issues. Her health was affected by acquiring sexually transmitted diseases through unsuitable relationships. Through working with her, the team were able to identify that her drug usage was as a consequence and impact of a late abortion. By ensuring the right level of contact and the right staff mix, the team are able to ensure that the health needs of very vulnerable people can be assessed, and by making the right links with other agencies and providers Local interest group feedback appropriate care can be provided. The team use Ri0 – the Trust’s electronic patient record and work with service users to complete as much data as possible. Religion or belief can be difficult to ascertain if the person’s language skills are limited and they do not live with their family. Service users in residential settings often have carers who are transient and background or family data may be very limited, so religion may not be known. The team have an operational policy which was written in 2009. It is in the process of being updated as it no longer reflects the working practices. The team no longer have beds as the focus of the work has moved to providing support and care in individual’s own environments. Where hospitalisation is required the team will support a service user into and out of local acute hospitals so that the same care is available to them as can be accessed by people who do not have a learning disability. This ensures that artificial barriers are not introduced into care. The Trust actively works with its Governors and membership to keep them informed and involved in the delivery of services. A service experience Goal 1 committee meets on a regular basis (see Outcomes 2.3 & 2.4) and service user groups exist across the Trust (see Outcome 3.1). 18 Outcome 1.1: Services are commissioned, designed and procured to meet the health needs of local communities, promote well-being, and reduce health inequalities Whilst the original case study did not demonstrate work across all protected characteristics, the additional evidence covered most protected characteristics. There appeared to be a lack of well-developed reporting structures to Local interest group feedback ensure information could be easily captured to demonstrate evidence against the Equality Delivery System. It was accepted that as part of the holistic approach, health inequalities are identified and addressed on a one to one basis. The team have a remit to work with carers, care agencies and across NHS services. Training and support is available to all carers and this is integral to improving well-being and reducing inequality. There was evidence that although central Trust patient data reporting systems offer limited information about protected characteristics, within teams an holistic approach can put into practice work that may not be captured centrally. Goal 1 Initial / draft grading: Achieving 19 Outcome 1.2: Individual patients’ health needs are assessed, and resulting services provided, in appropriate and effective ways This case study looks at the health and social needs of a patient at Her Majesty’s Prison – Gloucester. This case study also looks at homeless people, their social exclusion, the impact this has on their health needs and how their needs can be assessed on an individual basis. It should also be considered alongside the case studies in Outcomes 1.1, 1.3 and 1.5. What are the health needs of the homeless? Locally, are we doing better or worse than the regional or national picture? Over half of all homeless people have long-term problems with their physical health. However, homeless people are one of the groups most excluded from health services. It can be difficult to access mainstream services without a Outcomes: how are we doing? permanent address, making it possible to end up with a situation where homeless people avoid services and the services avoid them.2 Homelessness is both a cause and effect of issues such as substance misuse, offending and mental ill health. These factors on their own make this group vulnerable to poor health and make tackling other problems such as housing and unemployment difficult.3 In addition to those regarded as statutorily homeless there are many people living in hostels and refuges, bed and breakfasts, squats, unsatisfactory accommodation, and on the floors or sofas of friends and families, that have not accessed the services provided by the local authority. This means that they are often not known to services, despite meeting the legal definition of homelessness.4 In 2010, Tewkesbury and Gloucester had higher rates of homelessness than the county as a whole and the South West, but equal rates to England. This Goal 1 means that in 2010 a total of 267 households in the county were homeless and in priority need (as assessed by the local authorities). 20 Outcome 1.2: Individual patients’ health needs are assessed, and resulting services provided, in appropriate and effective ways Mental health problems can lead to homelessness and be made worse by being homeless. Homeless people are also more likely than the general population to have a history of childhood neglect or abuse. Three quarters of single homeless people and more than four fifths of street sleepers have a history of substance misuse. 5 Drug users are seven times more likely to be homeless than the general population.6 Currently information on the health of homeless people in Gloucestershire is Outcomes: how are we doing? limited. However national data from 2010 highlighted the following health issues.7 The average life expectancy of a street homeless person is 42 years old. Street sleepers are 35 times more likely to attempt suicide than the general population. 80% of people using homeless services have one or more physical health needs. 70% of homeless people have one or more mental health needs compared to 30% of the general population. 80% of homeless people used a GP in the last six months. 40% had been to the Emergency Department at least once and 33% had been admitted to hospital. a third regularly eat less than two meals a day 31% of homeless people had an inpatient stay over a six-month period compared to 7% of the general population over a 12-month period. 77% of homeless people smoke compared to 21% of the general population. Goal 1 5 21 Outcome 1.2: Individual patients’ health needs are assessed, and resulting services provided, in appropriate and effective ways Over 50% of homeless people use drugs and 20% drink alcohol at harmful levels. The average length of stay in hospital for a homeless person is 6.2 days compared to 2.1 days for the general population. 2 Background Mr X is 39 years old; he is originally from the north of England but has lived in and around Gloucester for the last 10 years. He has no known contact with his family and is very reluctant to enter into any discussion on this; he has referred to a strict Roman Catholic upbringing but not in any detail. Many Outcomes: how are we doing? professionals who have had contact with him suspect that there is a history of abuse of some kind. He is heterosexual, has no disabilities and no history of serious illness or injury. He is of normal intelligence but states he never finished school and has no qualifications or work history of note. He states he began using drugs (heroin) at the age of 27 and considers this to be the start of his addiction problems. However he was a very heavy drinker from his teenage years which progressed to drug use during his twenties when he started using “recreational drugs” such as cocaine and amphetamine. Heroin use was a natural progression for him and he also has a very significant problem with benzodiazepines, codeine-based drugs and continues to drink very heavily. He has been in prison numerous times for petty offences such as affray and drunken criminal damage but also has convictions for burglary (committed to Goal 1 pay for drugs & alcohol). At the time of admission, Mr. X was homeless, having been evicted from social housing for non-payment of rent and anti-social behaviour. 22 Outcome 1.2: Individual patients’ health needs are assessed, and resulting services provided, in appropriate and effective ways He was not eligible for housing in any other social housing as he had a history of similar problems. He had no GP and had been accessing healthcare via the Homeless Healthcare Team and other support at the Vaughan Centre, Gloucester. He has active Hepatitis C. He was considered to have removed himself from active drug/alcohol treatment because he stopped attending a supervised consumption clinic for methadone and did not respond to attempted contact from his Care Coordinator. Outcomes: how are we doing? What have we done to ensure that services to people in prison address their immediate? Mr. X was referred to the Integrated Drug Treatment Team at the Prison. He was subsequently assessed and prescribed methadone maintenance, alcohol detoxification and diazepam stabilisation programmes. He remained under the Integrated Drug Treatment Team who continued to monitor his response to treatment and mental health. He stabilised physically but remained erratic in his behaviour with unrealistic expectations of himself and the treatment he was offered. He was offered access to psychosocial programs & support via the Substance Misuse Team including 1 to 1 sessions looking at drug use, relapse prevention, harm reduction, etc which are patient led using problem solving techniques’. However he found group situations difficult due to reduced attention span and poor short term memory, but responded better to 1 to 1 sessions where they could be offered. It can be difficult at times to offer one to Goal 1 one’s due to limited availability of therapeutic environments. 23 Outcome 1.2: Individual patients’ health needs are assessed, and resulting services provided, in appropriate and effective ways Ongoing physical health observations were undertaken by healthcare staff and Mr. X was referred onwards regarding his Hepatitis C infection. However this only involved monitoring of liver function and viral load as there was no possibility at that time of Mr. X being able to access and complete the required 48 weeks of antiviral treatment. How do we ensure that we work across services and traditional boundaries to meet the health needs of the homeless? Outcomes: how are we doing? For onward care, community agencies such as housing providers will offer assessment before release where possible. There is a new initiative called the “Atlas Project” locally that would be ideal for him as it involves intensive support, housing, access to healthcare, etc in a co-ordinated system, however places are limited. It would be hoped that he would engage with services and work to prevent relapse to drinking and drug use, however it would take a determined, coordinated and reliable service for him to truly engage. The issue of motivation is enormous with patients such as this as they have often attempted to address their problems in the past with variable results due to both their own capacity and that of services in being able to deliver what is needed where such complex issues are evident. Where all plans come together effectively the ideal scenario would put Mr. X in supported accommodation, he would not be drinking or using drugs and should mean less likelihood of reoffending. Once stability was established, Hepatitis C treatment should help prevent further deterioration in his health Goal 1 with the resultant liver problems that are currently almost inevitable. 24 Outcome 1.2: Individual patients’ health needs are assessed, and resulting services provided, in appropriate and effective ways How have we involved and engaged the homeless in ensuring that we can improve their health care? Gloucestershire PCT has set up the “Improving Health Services for Homeless People in Gloucestershire” project to fully understand the health needs in the population, set priorities, survey service users and stakeholders, target services to meet essential criteria and identify appropriate health interventions, systems and service provision. Research was completed and published in August 2011 which aimed to gain a detailed insight into the health needs of homeless people in Gloucestershire. The two key aspects of the research were to understand the Engagement physical and mental health problems faced by homeless people, and to understand their experience of health care in the county. This research focused on the collection and analysis of qualitative data through 60 in-depth interviews with people who have experience of homelessness and a series of interviews with representatives of key agencies/Stakeholders who worked with or represented homeless people. Interviewees raised issues around the following: Lack of time to raise all relevant issues with GPs, health visitors etc when anxious about homelessness. GP surgery staff / GPs and dentists often make verbal judgements / discriminatory remarks. Many GPs do not understand the reality of homelessness and living on benefit level incomes. Difficulty in maintaining a healthy diet if homeless and reliant on free Goal 1 meals. Illegal drugs are readily available and are often used by those with underlying mental health issues to self-medicate. 25 Outcome 1.2: Individual patients’ health needs are assessed, and resulting services provided, in appropriate and effective ways Specialist services, Homeless Healthcare Team, Vaughan Centre, Trinity, Family Haven, and Marah do not “judge”, but understand the reality of homelessness, and people trust the staff. Changes to drug maintenance services that take away the individual’s feelings of control cause anxiety and negativity – e.g. go from maintenance to clean within 12 months. Engagement Homelessness is an uncertain time and impacts significantly on mental health. This work has been presented to NHS Gloucestershire in the report ‘Improving Health Services for Homeless People in Gloucestershire – Health Needs Assessment’ Across the Trust patient or service user groups are widely used to gain feedback and influence how services are provided and reflect the needs of individuals in our services. There are added dimensions and difficulties in engaging with patients in the Prison Service because the population may be transient or they do not wish to engage. However regular meetings are held and staff actively respond to the feedback and support patients to attend. What else do we need to do and when are we going to do it? Improvements NHS Gloucestershire will publish a Homeless Health Needs Assessment for Gloucestershire in 2011, which will provide us with local health information which staff in this Trust will be able to access. The Gloucestershire Homeless Health Needs Assessment will inform what Goal 1 health services are provided for homeless people in the future. 26 Outcome 1.2: Individual patients’ health needs are assessed, and resulting services provided, in appropriate and effective ways Work needs to be undertaken across statutory, voluntary and Improvements Community organisations to understand the extent of homelessness in the county, particularly for those who are not considered to be statutorily homeless. The Integrated Drug Treatment Team continue to work proactively with prisoners and ensure that as far as possible appropriate care is provided for both physical and mental health. What was the general feedback from engagement events that might apply to this outcome? Local interest group feedback If a service user does not understand or accept the diagnosis they can feel out of control, and that things are being done to them, not with them – a holistic, person centred approach should stop this from happening. Certain communities are hidden or forgotten when we design or deliver services. We need to ensure that their voices are heard. Good links with other agencies are vital to providing a good service, with a multi disciplinary and professional approach. Use voluntary and community groups to reach isolated people and enable staff to spend more time tailoring care to patients. What was the feedback from our ‘Grading’ event on the 7 th February 2012 or what additional information was provided which has contributed to the overall grading? This case study reflect gender, age and in the main social exclusion. It demonstrated working across NHS services and work with the other sectors although it was accepted that more work needs to be undertaken across statutory, voluntary and Community organisations and this applied to all NHS organisations It was accepted patient data was either not collected or there was not Goal 1 much evidence for particular groups including the Traveller / Gypsy community, people from an Eastern European background and the trans community. 27 Outcome 1.2: Individual patients’ health needs are assessed, and resulting services provided, in appropriate and effective ways There was evidence of proving an holistic approach to care and that on a case by case basis there was evidence to demonstrate that staff took into account health inequalities however the patient data did not cover all Local interest group feedback protected characteristics. Patient groups are set up and it was acknowledged that there are added dimensions and difficulties in engaging with patients in the Prison Service because the population may be transient or they do not wish to engage and yet these groups were actively supported. There were some plans to improve the service but these were limited. It was accepted from the evidence provided against other outcomes that the Trust actively works with its Governors and membership to keep them informed and involved in the delivery of services. A service experience committee meets on a regular basis and service user groups exist across the Trust. Goal 1 Initial / draft grading: Achieving 28 Outcome 1.3: Changes across services for individual patients are discussed with them, and transitions are made smoothly This case study looks at the work of the Crisis Teams which work out of a variety of locations across the county and how they have supported the transition of care from a GP to their team and back again for a Traveller family. What are the difficulties that the Traveller Community experiences and what can Crisis Teams do to ensure a smooth transition? Most referrals to the Crisis Teams are made from GPs. Some GPs have good links and relationships with Traveller communities or with individual Traveller Outcomes: how are we doing? families. A referral to the Crisis Team will usually be made at the point that the GP has concerns about the wellbeing of an individual for example when displaying psychotic behaviour. This can be demonstrated by lack of sleep, behaviour that is bizarre and out of the ordinary, feelings of being unsafe, becoming obsessed with something or someone. The Crisis Team as part of any assessment have to think broadly about what might trigger the current condition and that would include considerations of substance misuse. The Crisis Team usually work with individuals and their families in their own homes although as an alternative appointments can be made for service users to attend a locality base. In this case a young man was referred to the Crisis Team by the GP at the point the GP became concerned that the individual may need hospital admission because of his symptoms. It was not possible or acceptable to the family for the young man to have an appointment, with the Crisis Team at the Team’s base, and there was no question of the team visiting the family on Goal 1 site. Through discussion with the GP and the family it was agreed that the Team would attend the Surgery. This reflected the needs of the family and the family’s concerns for the care of their family member. 29 Outcome 1.3: Changes across services for individual patients are discussed with them, and transitions are made smoothly The Surgery was seen as a ‘place of safety’ by the family and was a reflection of the relationship which the family had with the GP. The GP and the Crisis Team worked collaboratively to ensure that this solution was managed smoothly and successfully. The Crisis Team explained what services they provided and also explained their role. The Team were aware that if the young man’s condition were to deteriorate there was a risk that his behaviour might result in police intervention. Their initial task was to build a sense of confidence and understanding with the family and respond appropriately to the different reactions of individual family members. Of particular concern to the family was Outcomes: how are we doing? the anxiety that the team might in fact contact the police. However the team were able to explain under what circumstance police involvement might occur and under what circumstances hospital admission might be considered. Communication and understanding between the Team and family was critical in enabling the Team to provide an appropriate service. There was considerable discussion about ‘consent to share’ and how this worked. It was clear from discussions that the young man and the family wanted limited contact with the Crisis Team. It was agreed that a core group of only two staff would be involved in the young man’s care and that on all occasions one of the two core staff members would be at an appointment. The gender and age of the core staff were discussed and the team worked to preferences indicated. As part of a routine assessment the Team ask a range of standard questions about family background and any previous history of mental ill health. The family were not prepared to share or discuss this information and the Team had to work with limited information to support the young man. Goal 1 It was agreed that a medical review would take place with the Consultant Psychiatrist. Treatment options and medication plans were fully explained and discussed with the young man and his family. 30 Outcome 1.3: Changes across services for individual patients are discussed with them, and transitions are made smoothly One consequence of the medication was that his ability to drive would be impaired. This proved to be a difficult topic as the family’s business involved driving and the young man needed to contribute to the family income. Working closely with the family the team were able to bring an understanding of how the medication worked and why driving was prohibitive. This enabled the family to accept both the medication and the restrictions it imposed on the whole family. Outcomes: how are we doing? Over a period of time, the Team gained the confidence and trust of the family to the point that the core staff were allowed to visit the young man on site. However the family were clear about the restrictions which accompanied this which were based around a prescribed time to attend, no wearing of badges or Trust identity, and a limit on the length of time of the visit. This posed considerable problems for the team as the designated visiting time clashed with a regular and necessary team activity. To accommodate the prescribed time, the schedule for a number of team members had to be changed for the duration of the care package. However it was felt that it was both necessary and appropriate to make these adjustments for what proved to be a relatively short period of time. How does this compare with any regional or national data? Are we doing better or worse? Give an example: Our local data about how we deliver services to the Traveller community is limited although some information is contained in the Trust’s Single Equality Scheme. Contact between the Traveller community and mental health services occurs infrequently. Whilst some information is available from our Goal 1 electronic patient records much is dependant on what is recorded by the clinician and what the patient wishes to declare. 31 Outcome 1.3: Changes across services for individual patients are discussed with them, and transitions are made smoothly Are Traveller communities less likely to be involved in discussions or Outcomes: how are we doing? experience poor transition across services? Historically Gypsy and Traveller Communities were thought to form the biggest single minority ethnic group in Herefordshire. There are no official statistics of numbers for these communities in the county, but recent estimates suggest there are between 800 and 900 individuals. Source: Gypsy & Traveller Accommodation Assessment: Shropshire, Herefordshire, Telford and Wrekin and Powys, Centre for Urban & Regional Studies, University of Birmingham (July 2008) Providing services in rural communities can be more difficult than for some urban areas. Transition across services will rely on communication and relationships between our services and other health providers. Explain what we have done to work with the Traveller community to ensure that changes are discussed and that transitions occur smoothly. At the point that the young man’s symptoms had stabilised it was agreed with Engagement the family that his care would transfer back to the GP. The medication could be managed by the GP. Visits and care from the Crisis Team cease which enabled the family to return to a known and accepted relationship. The Team wanted to ensure that the family knew and understood that the illness experienced by the young man could re-occur and that if this was the case the family could contact the Team directly. There has been no further contact with the family since the transfer back to the GP but the Team believe that their contact with family was genuinely appreciated. Improvements Goal 1 What do we still need to do to improve discussions and improve transitions? What are we going to do and when? The services available from mental health teams needs to be known as widely as possible and the experiences of teams if shared can bring significant advantages to individuals and groups. 32 Outcome 1.3: Changes across services for individual patients are discussed with them, and transitions are made smoothly What was the general feedback from engagement events that might apply to this outcome? The NHS ‘expects patients to fit in with its systems and processes’. Frontline staff often lack the time or understanding to properly assess individuals’ needs, including in relation to their carers and ‘significant others’. This can disadvantage more vulnerable people and those with complex needs, such as those with learning disabilities, older people, the traveller community, and those who do not have English as a first language. Local interest group feedback Some participants reported negative experiences where healthcare professionals had been insensitive to or unaware of their needs including ‘unthinking actions’ (e.g. giving menus to people with visual impairments without additional support to understand them) to NHS staff acting on negative stereotypes associated with some communities (e.g. traveller community). Before accessing the service, people should know what it is and what is does. The service should be well funded and fully flexible – available 24 hours a day, 7 days a week, in suitable locations – to ensure the service is there when it’s really needed, is flexible to meet community needs, whilst also providing stability. There is still a poor general public attitude towards mental health. Assumptions and prejudice are far reaching. Fear of the stigma attached to using mental health services, the “labels” of diagnosis and the lack of understanding around this e.g. not knowing what will happen if they use a particular service, can prevent someone from seeking help. Some of our communities do not understand the NHS system, what is Goal 1 available, and how to access services. 33 Outcome 1.3: Changes across services for individual patients are discussed with them, and transitions are made smoothly People may not feel services are relevant to them principally related to ethnicity and culture, and this can apply to people for whom English is not their first language. Staff need better awareness of individual cultures, traditions and customs in order to better meet the needs of individuals, their carers and families People do not understand how we use their data. They are concerned that it will not remain confidential or anonymous. There may be limited confidence in public authorities using data effectively to improve services. Use voluntary and community groups to reach isolated people and enable staff to spend more time tailoring care to patients. Ensure staff are better informed about equality issues e.g. cultural awareness, legislation etc Goal 1 What was the feedback from our ‘Grading’ event on the 7 th February 2012 or what additional information was provided which has contributed to the overall grading? This case study was considered alongside the case studies in Outcomes 1.1, 1.2 and 1.5 which it was felt provided a wider view of transitions across services. Overall, age, gender, disability, sexual orientation were covered. Ethnicity and language were not covered although there was additional evidence suggested from Outcomes 2.1 and 2.2 which addressed these protected characteristics. Social exclusion was extensively highlighted in a number of the case studies. The Trust has identified that for the services it provides, individuals or groups with multiple protected characteristics were more likely to experience poor transition of care and may be less involved in decisions about their care. The case studies clearly demonstrated how an holistic approach was taken to address the needs of individuals. 34 Local interest group feedback Outcome 1.3: Changes across services for individual patients are discussed with them, and transitions are made smoothly It was not clear from the evidence how service changes and transitions for patients from protected groups compare with the changes and transitions for patients as a whole. It was accepted from the evidence provided against other outcomes that the Trust actively works with its Governors and membership to keep them informed and involved in the delivery of services. A service experience committee meets on a regular basis and service user groups exist across the Trust. There are some good examples of how transition across services and through mainstream services take place, but it was felt that this was not well evidenced across all protected characteristics. Goal 1 Initial / draft grade: Developing 35 Outcomes: how are we doing? Goal 1 Outcomes: how are we doing? Outcomes: how are we doing? Outcome 1.4: The safety of patients is prioritised and assured. In particular, patients are free from abuse, harassment, bullying, violence from other patients and staff, with redress being open and fair to all What have we done to reduce abuse, harassment, bullying and violence towards service users specifically where this behaviour is as a result of service users having one or more ‘protected characteristic’? Evidence for this outcome has not yet been collated or graded How do our patients’ experiences compare with any regional or national data? Are we doing better or worse? Are there any groups or communities which experience more abuse, harassment, bullying and violence than others because of one or more ‘protected characteristic’? If yes what are we doing to address this? 36 Improvements Engagement Outcome 1.4: The safety of patients is prioritised and assured. In particular, patients are free from abuse, harassment, bullying, violence from other patients and staff, with redress being open and fair to all What have we done to ensure that those who experience abuse, harassment, bullying and violence because of one or more ‘protected characteristic’ are engaged and involved in developing actions to improve this situation? Give an example: What work do we still need to do to improve the situation? What are we going to do and when? Local interest group feedback What was the general feedback from engagement events that might apply to this outcome? What was the feedback from our ‘Grading’ event on the 7 th February 2012 or what additional information was provided which has contributed to the overall grading? Goal 1 Evidence for this outcome has not yet been collated or graded 37 Outcome 1.5: Public health, vaccination and screening programmes reach and benefit all local communities and groups This case study looks at the role of the Children and Young Peoples Service as provided by 2gether NHS Foundation Trust. It shows how they work across services to ensure that screening for mental health problems can reach all communities and groups and enable mental ill health to be Outcomes: how are we doing? identified early in life. Why is early screening and intervention important? Are children and young people in Gloucestershire receiving better or earlier screening than the rest of the country? Gloucestershire is one of the healthiest counties to live in. Overall health outcomes are better than the English national average. However it is also known that half of lifetime mental health problems arise by the time people are 14 years old and three quarters by their mid-twenties.8 Around 25 – 50% of mental illness during adulthood could be prevented with effective intervention during childhood and adolescence.9 It is crucial to put in place programmes that improve early identification and intervention. According to the Indices of Multiple Deprivation only 7.4% of Gloucestershire residents live in neighbourhoods considered to be among the 20% most Outcomes: how are we doing? Goal 1 deprived in England. What are the Children and Young People’s Service doing to reach out to young people in these vulnerable groups? The Service has staff who deliver training to other frontline care workers across Gloucestershire to raise awareness of mental health and emotional wellbeing. They also share information about common mental health difficulties in children and young people and the importance of early intervention and prevention. Some of the training is targeted at BME communities as referrals for children and young people from these communities are low. 38 Outcomes: how are we doing? Outcome 1.5: Public health, vaccination and screening programmes reach and benefit all local communities and groups A programme is in place to support the Community Development workers to deliver mental health training and Mental Health First Aid. They have identified key stakeholders with whom there can be direct liaison, of particular importance are the contacts with the Islamic School, Afro Caribbean Association and the Chinese Association. Strong links have also been forged with dedicated Gloucestershire County Council education staff who work with ethnic minority groups and Travellers. The Community Development workers have developed a range of leaflets (Bengali Chinese Czech Gujarati Polish Urdu) to ensure communities understand their role. What has the service done to ensure that their work is ‘joined up’ across the NHS and other providers in the county? The Children and Young People Service has been commissioned by NHS Gloucestershire and Gloucestershire County Council to provide frontline training in mental health across the county to children’s services practitioners. There is a county wide co-ordinated training plan being developed which links with Gloucestershire County Council. There is provision in the service specification to target vulnerable groups where historically there is evidence that they have had difficulties accessing services. At a strategic level senior managers from the Children and Young People Service are working in forums to co-ordinate training to ensure that whilst content and delivery is consistent it can be targeted at and meet the needs of areas of known disadvantage. These forums include the Suicide Prevention Strategy Group and the Child Health Planning Group where the expertise and knowledge from across care sectors can be effectively utilised. Goal 1 Recently a multiagency campaign activity was planned to introduce the ‘5 ways to mental wellbeing’ through raising awareness and understanding with school age children. 39 Outcome 1.5: Public health, vaccination and screening programmes reach and benefit all local communities and groups The campaign also aims to reduce mental health stigma through increasing everyone’s understanding of their own health and to contribute to reducing the stigmas associated with the use of mental health service use. The plan was realised on World Mental Health day (10th October) with junior school children in Stow-on-the-Wold Primary School. A session of activity was facilitated by practitioners of the Children and Young Peoples Service and a balloon launch activity followed to reinforce the learning points. The Outcomes: how are we doing? event was supported by the Community Involvement Team. Very encouraging feedback was received from the Head Teacher of the participating school, press coverage was achieved and a plan is now in place to undertake a similar session on a monthly basis in different schools across Herefordshire and Gloucestershire. There has been much interest expressed and offers of support from partner organisations. Successful launch events and market place information stalls were held at ‘City Works’ in Gloucester for children’s service’s practitioners and health colleagues in partner agencies in July and September 2011. Over 60 attendees attended each event. 2 gether’s Children and Young people’s Service is actively working with Rethink to develop a ‘siblings’ programme for children and young people. The service were also chosen by Young Minds to develop/trial training for practitioners across the agencies about the emotional and mental health Goal 1 needs of care givers, funded by Comic Relief. 40 Outcome 1.5: Public health, vaccination and screening programmes reach and benefit all local communities and groups Are there any groups of children and young people who are particularly vulnerable? The 'Fair Society Healthy Lives' (The Marmot Review) 10 (see ‘Executive Summary’ and ‘Indicators’) and highlighted the challenges faced by people who start out life in difficult circumstances and the importance of early intervention, specifically in children’s lives because of the tendency for disadvantage to become multiplied as they go through life. Cycles of deprivation frequently repeat from generation to generation. Individuals can find it difficult to break these cycles without appropriate encouragement and support at key times in their lives. Some examples of groups (in no particular Outcomes: how are we doing? order) where children and young people in those groups will be particularly vulnerable: 1. Those experiencing mental ill health 2. Travellers 3. People with disabilities 4. People with brain injuries 5. Children in care 6. Children in single parent households 7. Carers in general and especially young carers 8. People who cannot speak or understand spoken/written English well 9. People for whom speech and/or hearing is not their principle means of communication 10. People in poverty 11. People with a Learning Difficulty 12. People who are visually impaired 13. People who need, but are not receiving health, or social care services 14. Black and minority ethnic communities Goal 1 15. People suffering from a life limiting illness 16. People whose lives are affected by the complex repercussions of disability, long-term illness, or social care needs, who encounter different services that do not ‘join up’ 17. Asylum seekers and refugees 41 Outcome 1.5: Public health, vaccination and screening programmes reach and benefit all local communities and groups How are the Children and Young Peoples Service ensuring that those who are vulnerable are engaged in reaching and benefitting all local communities and groups? There are a number of children and young people from BME communities Engagement who are members of the CYPS Children and Young People’s Board. This Board carries out a number of tasks including site visits and assessments of clinic locations to ensure they are child and young person friendly. They have also written and performed a play about mental health which they are performing in schools and to the public to reduce the stigma around mental health problems and encourage improved access to services. Primary mental health Workers are working with a number of practitioners from community groups and offering advice guidance consultation and Improvements supervision. What can the service do to reduce exclusion and when will this happen? Community Development Workers and Children and Young Peoples practitioners have devised feedback sheets to be used when visiting BME groups. This is to ensure that their needs are understood and that services Local interest group feedback Goal 1 are configured and delivered in acceptable ways. What was the general feedback from engagement events that might apply to this outcome? Fear of the stigma attached to using mental health services, the “labels” of diagnosis and the lack of understanding around this e.g. not knowing what will happen if they use a particular service, can prevent someone from seeking help. Certain communities are hidden or forgotten when we design or deliver services e.g. deaf people, carers, young people and people with learning disabilities. We need to ensure that their voices are heard. There is a lack of support in general from the other services that would help with early intervention. This may be linked to the perception of outside agencies that there is a “one-way relationship” with the Trust. 42 Outcome 1.5: Public health, vaccination and screening programmes reach and benefit all local communities and groups Make access to advocacy a high priority. There needs to be a strategic approach to this to encourage vulnerable groups to access advocacy What was the feedback from our ‘Grading’ event on the 7 th February 2012 or what additional information was provided which has contributed to the overall grading? This Trust does not undertake public health, vaccination or screening programmes. This responsibility lies with NHS Gloucestershire. However there was evidence of teams raising awareness of mental health issues. Local interest group feedback The Community Development Workers are instrumental in improving understanding of mental health amongst community groups. Specific work has begun with children and via schools in the county. From questioning there was evidence that staff had access to a Religious and Cultural Guide (see Outcome 4.2) to help them understand the impact that culture and religion can have on an individual or community response mental ill health. This has been widely promoted in the Trust. In addition, staff have access to equality and diversity training which can be focused on particular clinical service needs over and above generic equality and diversity training that is available to all staff. The Religious and Cultural Guide is available on the Trust’s staff intranet and the Trust web site as an example of good practice. The Trust has the lead for social inclusion in the county and a social inclusion strategy was developed and agreed in 2010/11 Case studies from Outcomes 1.1, 1.2 and 1.3 were also considered relevant to this Outcome as these demonstrated efforts to take action to educate groups and communities, other voluntary and statutory Goal 1 organisations, and carers. 43 Outcome 1.5: Public health, vaccination and screening programmes reach and benefit all local communities and groups It was accepted from the evidence provided against other outcomes that the Trust actively works with its Governors and membership to keep them informed and involved in the delivery of services. A service experience committee meets on a regular basis and service user groups exist across the Trust. Key disadvantaged groups were identified and there was evidence that work was targeted. Leaflets are available in a number of different languages. Additional evidence has been provided from Outcome 2.3 that the Trust has a Translation Policy, staff are encouraged to offer their services as a translator and British Sign Language and makaton can be provided. Goal 1 Initial / draft grading: Achieving 44 Goal 2: Improved patient access and experience Goal 2 states: “The NHS should improve accessibility and information, and deliver the right services that are targeted, useful, useable and used in order to improve patient experience”. There are four outcomes under Goal 2. Goal 2. Improved patient access and experience Narrative The NHS should improve accessibility and information, and deliver the right services that are targeted, useful, useable and used in order to improve patient experience Outcome 2.1 Patients, carers and communities can readily access services, and should not be denied access on unreasonable grounds Goal 2 2.2 Patients are informed and supported to be as involved as they wish to be in their diagnoses and decisions about their care, and to exercise choice about treatments and places of treatment 2.3 Patients and carers report positive experiences of their treatment and care outcomes and of being listened to and respected and of how their privacy and dignity is prioritised 2.4 Patients’ and carers’ complaints about services, and subsequent claims for redress, should be handled respectfully and efficiently 45 Outcome 2.1: Patients, carers and communities can readily access services, and should not be denied access on unreasonable grounds This case study looks at difficulties that older people from a black or minority ethnic background face with the onset of dementia and the work that the Community Development Workers have been doing to increase awareness, access and links between different service providers. What difficulties do older people from a black or minority ethnic background face in accessing dementia information or services? Age and Ethnicity - National Context Over the last two decades the number of elderly people (65+) from BME population groups in the United Kingdom has increased from 3% in the 1991 Goal 2 Outcomes: how are we doing? census to 8.2% in the 2001 census. This amounts to more than 530,000 BME elders. By 2051 it is estimated that there will be 7.4 million BME older people aged 50+, living in England & Wales, with 3.8 million 65+ (Manthorpe, 2011). Table 1: Age and Ethnicity - Local Context Ethnic Group Number White : Irish 1800 White : Other White 2200 Mixed : White & Black Caribbean 100 Mixed : White & Asian 100 Mixed : Other mixed 100 Asian or Asian British: Indian 700 Asian or Asian British : Pakistani 200 Asian or Asian British : Bangladeshi 100 Asian or Asian British : Other Asian 100 Black or Black British : Black Caribbean 600 Black or Black British : Black African 100 Chinese or other Ethnic Group : Chinese 300 Chinese or other Ethnic Group : Other 200 The estimated resident population by ethnic group aged 60+ (females) and 65+ (males) in mid 2009 is 6700 (MAIDeN). The majority live in Gloucester, Cheltenham and Stroud 46 Outcome 2.1: Patients, carers and communities can readily access services, and should not be denied access on unreasonable grounds Dementia is one of the most common disorders in old age. It is a syndrome which may be caused by a number of illnesses where there is progressive decline in multiples areas of function, including decline in memory, reasoning, communication skills and the ability to carry out daily activities. There may be impairment of emotional control, social behaviour and motivation, but no clouding of consciousness. Prevalence (the number of cases at any time) and incidence (the number of Outcomes: how are we doing? new cases per year) rise rapidly with age, approximately 6% of the population over 65, rising to 30% over 90 years of age may be affected. The impact of dementia is already hugely challenging to our society, with 800,000 people in the UK currently living with this condition. The number of people with dementia is expected to double to 1.4 million in the next 30 years. Currently the estimated number of people with dementia in minority ethnic groups is around 15,000 in England. However, future projections of dementia among BME elders will rise sharply as first generation migrants from the 1950s and 1970s move into the age risk for dementia. Dementia in BME elders is not necessarily recognised and research has shown that in general BME elders are at far more risk of misdiagnosis and delayed treatment. The Alzheimer’s Society publication Dementia UK (2007:36-37) has identified that 6.1% of all people with dementia from BME groups are living with early onset, compared with only 2.2% of the population Goal 2 as a whole. This indicates implications for policy, commissioning and care. 47 Outcome 2.1: Patients, carers and communities can readily access services, and should not be denied access on unreasonable grounds What have the Community Development Workers done to remove barriers to dementia services? Anecdotal evidence collected through direct contact with different BME communities in the county indicated that a number of barriers exist for specific groups to access NHS services. Barriers identified were: lack of awareness of services for non-English speaking communities specifically for the elderly (and increasingly so because of an ageing population) lack of knowledge about services available lack of understanding of illnesses experienced by older people specific lack of knowledge of dementia Outcomes: how are we doing? A number of events were held where translators and interpreters were present. Translators were known to the community and based in the local community which built confidence with attendees and also reduced the risk of information being inaccurately translated. Nuances of community language could be used to better and more accurately translate health terminology. A range of leaflets (Bengali Chinese Czech Gujarati Polish Urdu) have been produced by the Community Development Workers to improve understanding of their role. Dementia information sessions have been held for Asian Ladies and the Chinese community. Both events were well attended with 40 plus people. Feedback has been very positive and participants agreed that they had a better understanding that dementia is NOT a normal part of ageing. Most importantly people went away with the message that if they or family members are concerned about their memory, they can see their GP or ring the Managing Memory Service for support and help. It was understood that whilst dementia cannot be cured, early intervention with medication can help Goal 2 in slowing down the illness. A number of carers signed up the Positive Caring Programme after the sessions which is hopefully a reflection of the success of the awareness raising. The format for these events was informal as it was noted that formal settings and methods can themselves be a barrier to both engagement and understanding. 48 Outcome 2.1: Patients, carers and communities can readily access services, and should not be denied access on unreasonable grounds How have we worked with other providers and different parts of the NHS to improve access to dementia services? The events included representatives of the Alzheimer’s Society which was useful as part of drawing a distinction between Dementia and normal signs of ageing. A key part of raising awareness was also to explain the difference between depression, normal ageing and dementia. During facilitated discussions, groups and individuals were signposted to the ‘Let’s Talk Service’ as run by mental health services if depression might be an issue. Alternatively or as well as this, individuals and groups were signposted to the Community Outcomes: how are we doing? Development Worker Team to ensure that any specific resources needed to support access such as appropriate interpreters could be provided. This was to ensure that known barriers were addressed at the outset. These events also enabled service users and carers to access assessments of needs and benefits, and which in some cases enabled adaptations to be appropriately provided via Social Services. These were additional and unplanned benefits for attendees. A presentation about memory assessment services and information and education services provided by Managing Memory 2gether was given to members of the Forest Health Forum at their monthly evening meeting in Bream, Forest of Dean. Representatives from local statutory and non statutory health and social care organisations and members of the public attend the forum meetings. The Alzheimer’s Society in Gloucestershire has launched a new service Goal 2 Good 2 Go for younger people with dementia. The 2gether Trust had an information stand at the event and was represented by members of Managing Memory 2gether Team which included the lead nurse for younger people with dementia. 49 Outcomes: how are we doing? Outcome 2.1: Patients, carers and communities can readily access services, and should not be denied access on unreasonable grounds The Managing Memory 2gether service has developed a poster to raise awareness of services available for people with dementia and carers in the Cirencester Area and a general ‘business card’ and leaflet advertising the service Posters have been sent to all GP surgeries and other organisations in the area. This will be followed up with talks to GP surgeries. What have the Community Development Workers done to ensure that older people from a black or minority ethnic group could be involved in making dementia services more accessible? Key to engagement was finding an appropriate engagement model. Work was undertaken within communities and working with partners such as Gloucestershire County Council Social Services, the Community Development Support Team, the ‘Managing Memory Services Team’ at 2 gether; and the Dementia Awareness Group which is accountable through Engagement the County Dementia Board to the Primary Care Trust Commissioners. It was determined that engagement needed to be specific and directly meet the needs of individual groups or communities. In the main engagement was ‘personal’ i.e. on a one to one basis. It was targeted with information cascaded through existing groups and community networks which avoided resources were maximised and not duplicated. The needs of specific groups were met e.g. Black Elders Club and venues were organised in the heart of communities. The African Caribbean Community was also specific about the nature of the event they wanted. Sessions were larger or smaller depending on preference, and bespoke based on for example age or gender as in the Improvements Goal 2 case of the Asian Women’s Club. What else do we need to do to improve access for this group of people and when will we do it? Feedback from these events was being collating during November 2011 and will be used to inform the format of future events. This work highlighted the need for health, social care and local authority organisations and their frontline services to BME communities to be better integrated: 50 Outcome 2.1: Patients, carers and communities can readily access services, and should not be denied access on unreasonable grounds Improve and be smarter about communication Share practice Agree joint actions Ensure regular networking Continue with awareness raising of mental health and services to communities Provide mental health information to those under 16 years of age These needs extend beyond the specific needs of older people from BME communities and will be fed into other work undertaken by the Community Development Workers, the Children and Young People’s Service amongst others. Improvements Initial steps to address collaborative working across health, social care and local authority organisations led to the formation of a joint working party which includes membership from: the 2gether Community Development Worker Team Community Health Trainers Gloucestershire County Council’s Adult & Social Care Directorate Community Development Support Team Cheltenham Borough Council Gloucester City Council’s Benefit’s take-up team. The Forum’s membership of organisations is not restrictive and Carers Gloucestershire has expressed an interest in participating in the future. Further work will be undertaken with Carina Sharpley of Gloucestershire County Council to arrange an information session for Chinese carers in Goal 2 conjunction with the Managing Memory Services. The next step is to engage with the Polish Community. To meet their needs, a Polish community event is planned for the 27th November. 51 Outcome 2.1: Patients, carers and communities can readily access services, and should not be denied access on unreasonable grounds This will be supported by Community Agents (Gloucestershire County Council) the Community Development Workers (2gether NHS Foundation Trust) and the Primary Care Trust. This event is being funded by Cross Roads (third sector care provider). The purpose of this event is to give information on carers’ needs (specifically to those who care for individuals with mental ill health). This work will link directly with work being undertaken by the 2gether Carers Team and is consistent with BME Carers Action plan Improvements developed by Carers Gloucestershire to develop a network with specific outcomes for BME carers. A session for the African Caribbean community is planned for the end of January 2012. Work has also commenced with Delphine Butler, Gypsy and Travellers Community support worker from Gloucestershire County Council, signposting her to Managing Memory services and Benefits at City Council to enable her to support her service users.’ Community Development Workers are collaborating with statutory, 3 rd sector and independent services in Gloucestershire to produce a directory of Local interest group feedback Goal 2 services for people with dementia. What was the general feedback from engagement events that might apply to this outcome? People may not feel services are relevant to them principally related to ethnicity and culture, and this can apply to people for whom English is not their first language. Staff need better awareness of individual cultures, traditions and customs in order to better meet the needs of individuals, their carers and families Good links with other agencies are vital to providing a good service, with a multi disciplinary and professional approach. 52 Outcome 2.1: Patients, carers and communities can readily access services, and should not be denied access on unreasonable grounds All information should be readily available and easily accessible to all, in the most appropriate format e.g. pictorial, easy read forms Some of our communities do not understand the NHS system, what is available, and how to access services. Language barriers exist for minority groups, especially where there is no translator/interpreter available, leading to a delay in diagnosis and treatment. Goal 2 What was the feedback from our ‘Grading’ event on the 7 th February 2012 or what additional information was provided which has contributed to the overall grading? From questioning it was evident that the Trust has a Carers Charter (see Outcome 2.3). This is available in standard format and ‘easy access’. There was nothing specific about religious beliefs and the impact that this may have on how service users, carers and communities may access services. However from other outcomes it is evident that that staff had access to a Religious and Cultural Guide (see Outcome 4.2) to help them understand the impact that culture and religion can have on an individual or community response mental ill health. This has been widely promoted in the Trust. This has been developed by the Community Development Workers. It is hoped that this will break down some of the barriers which exist and enable individuals and communities to better access services. However across the case studies there was evidence to demonstrate access to services regardless of age, disability, religious belief, ethnicity, gender, sexual orientation, plus clear cases related to social exclusion. The Trust has the lead for social inclusion in the county and a social inclusion strategy exists. There is a draft action plan for 2012/13 There was evidence about access to services at a national level based on protected characteristics but no evidence to demonstrate how service users and communities with protected characteristics compare at a local level. It is acknowledged that patient data exists but not for all protected characteristics. 53 Outcome 2.1: Patients, carers and communities can readily access services, and should not be denied access on unreasonable grounds A range of leaflets (Bengali Chinese Czech Gujarati Polish Urdu) has been developed to reflect the local communities and the Trust has responded specifically to feedback from service users and carers in developing different formats for information about services. Local interest group feedback It was accepted from the evidence provided against other outcomes that the Trust actively works with its Governors and membership to keep them informed and involved in the delivery of services. A service experience committee meets on a regular basis and service user groups exist across the Trust. There was evidence from the case studies and data under Goal 1 that the Trust and individual services do take account of key disadvantaged groups and in the main these were groups who had more than one protected characteristic and therefore potentially faced multiple barriers or disadvantages. The Trust has plans to improve access and remove barriers and the Community Development Workers along with the Community Involvement Goal 2 Team are instrumental in this work. 54 Outcome 2.2: Patients are informed and supported to be as involved as they wish to be in their diagnoses and decisions about their care, and to exercise choice about treatments and places of treatment This case study looks at the support that the Children and Young People’s Service provides and how they work with the individual to ensure that choice can be exercised. What have the Children and Young Peoples Service done to ensure that an individual can be involved in choices about their care? A young person with low mood who was seriously self-harming was referred to the Children & Young People’s Service. During the course of the Outcomes: how are we doing? assessment and treatment, the young person disclosed that they were gay but hadn’t been able to tell family and friends. This was profoundly affecting their mental health as they were unable to share thoughts or feelings and were frightened of the consequences of coming out. The clinician involved was able to help the young person talk through their situation and discuss how to proceed. This enabled the young person to share information with their family including their sexual orientation. There were huge improvements in mood and overall emotional wellbeing. The young person is now more accepting of themselves, has the support of their family and has started a new relationship. The young person was signposted to range of support groups that might be useful. Having considered the situation the young person did not want to contact local support groups but was empowered to acknowledge their hopes and fears, and manage their feelings and relationships. This example Goal 2 is not uncommon as a referral to the Children and Young people’s Service . 55 Outcomes: how are we doing? Outcome 2.2: Patients are informed and supported to be as involved as they wish to be in their diagnoses and decisions about their care, and to exercise choice about treatments and places of treatment How does the Children and Young Peoples Service work across services and different providers? The Children and Young People’s Service has a very successful Parenting Team which works intensively with Children’s Centre’s, Health Visitors and School Nurses as well as participate in delivering outcomes identified at multi agency groups. Services are also accessed by Paediatricians, GPs and the full range of health practitioners working with children and young people. How well are we doing in Gloucestershire? Gloucestershire has achieved national recognition for the work done by the Parenting Team. Outcomes are recorded as part of the programme and are Outcomes: how are we doing? comparable with similar services. What are the Children and Young Peoples Service doing to ensure that vulnerable children and young people can be informed and included in making decisions about their care? Young people who are not heterosexual or who may question their sexuality often struggle with disclosing they might be gay or find it difficult to find people with whom they can discuss these very personal and private issues. This can severely affect their mental health and can lead to self harm or even suicide. Clinical staff are able to give the young person the time and space to explore the issues and work out what is most important for them. Clinical staff will be aware of the discrimination and homophobia which is present in society and the fears that often accompany coming out especially Goal 2 to friends and family. 56 Outcome 2.2: Patients are informed and supported to be as involved as they wish to be in their diagnoses and decisions about their care, and to exercise choice about treatments and places of treatment Whilst the issue of sexual orientation can have a huge impact on emotional and mental wellbeing the service recognises that additional barriers to accessing support may arise through language and cultural barriers. Evidence demonstrated that parents and carers from the Polish and Asian Outcomes: how are we doing? communities were under represented in the referrals because of these additional barriers. The Children and Young People’s Service has a very successful Parenting Team which delivers parenting programmes across the county according to NIHCE guidelines, as well as to parents and carers from vulnerable groups. To facilitate access to the Children and Young People’s Service, Parenting Group Facilitators have been identified and trained to deliver the programmes for the Polish and Asian communities. Facilitators are drawn from these communities so that others will have confidence in them. As part of developing these programmes key documents are translated for easier access. The service now runs dedicated groups in Polish twice per year and to Asian groups twice a year with the potential for more to be delivered if funds/time allows. The venues used are easily accessed within localities for example at local halls and Children’s Centres. Engagement How have the Children and Young Peoples’ Service engaged and involved its service users? The Children and Young Peoples’ Service has a dedicated participation worker, a Children & Young People’s Board and access to advocacy and support. Services are designed with children and young people involved to Goal 2 ensure they are accessible and comfortable to use. 57 Outcome 2.2: Patients are informed and supported to be as involved as they wish to be in their diagnoses and decisions about their care, and to exercise choice about treatments and places of treatment Recently the Children & Young People’s Board took part in Children’s Take Over Day within the Trust. One of the events for the day was a play written and performed publically by children and young people which was Engagement profoundly moving and insightful. Those involved gave interviews to Radio Gloucestershire. Parents and carers who have participated in the Parenting Programmes provide session by session feedback. Some have gone on to become facilitators in their own language to share the knowledge gained with peers. This has enabled other parents and carers to access programmes as there is an understanding of cultural norms and a common language What else do we need to do to ensure that children and young people from a BME background or those with issues related to sexual orientation can be involved and supported with their care, and can exercise choice about their treatments? More work needs to be done to combat the stigma attached to attending mental health services. The Children & Young People’s Board suggested the Improvements removal of the word ‘mental’ from the service title (formerly known as Child and Adolescent Mental Health Service) in order to make the service more socially acceptable. We also recognise the need to support colleagues who are actively combating discrimination against different sexual orientations in the care of young people. If appropriate and within the funding envelope, further work to address the needs of BME communities in this way will be developed as it has proved to Goal 2 be successful especially in delivering improved outcomes for families. 58 Outcome 2.2: Patients are informed and supported to be as involved as they wish to be in their diagnoses and decisions about their care, and to exercise choice about treatments and places of treatment What was the general feedback from engagement events that might apply to this outcome? The service provided should be non-judgemental and welcoming, to calm any fears that people may have about using mental health services, with more emphasis on prevention/early intervention. Fear of the stigma attached to using mental health services, the “labels” of diagnosis and the lack of understanding around this e.g. not knowing what will happen if they use a particular service, can prevent someone from seeking help. Staff may avoid asking questions for fear of appearing ignorant, but if questions aren’t asked, vital information may be missed. Issues are sometimes avoided, rather than practice changing to deal with differences. Local interest group feedback Certain communities are hidden or forgotten when we design or deliver services e.g. deaf people, carers, young people and people with learning disabilities. We need to ensure that their voices are heard. Good links with other agencies are vital to providing a good service, with a multi disciplinary and professional approach. Make access to advocacy a high priority. There needs to be a strategic approach to this to encourage vulnerable groups to access advocacy. What was the feedback from our ‘Grading’ event on the 7 th February 2012 or what additional information was provided which has contributed to the overall grading? This particular case study looked at age and in particular sexual orientation in young people. Evidence from other case studies for Outcomes 1.1, 1.2, 1.3, 1.5 and 2.1 provided evidence about involving service users and carers in choices about care related to disability, gender, ethnicity and social exclusion. No evidence was provided about the trans community and there Goal 2 was some information related to religion. 59 Outcome 2.2: Patients are informed and supported to be as involved as they wish to be in their diagnoses and decisions about their care, and to exercise choice about treatments and places of treatment There was only a small amount of evidence to demonstrate how information to service users and carers helps them to be involved in their care when compared with service users /patients / carers as a whole. A range of leaflets (Bengali Chinese Czech Gujarati Polish Urdu) are available and the Community Development Workers have provided a Religious and Cultural Guide for staff to enable staff to better inform and Local interest group feedback support service users and carers about their diagnoses and treatment. There was evidence that there were under represented groups within specific services and that this was likely to be associated with language barriers and cultural perspectives. Actions are being taken to address these disadvantages and ensure service users can be better informed about the care that is available. Leaflets for carers are available and the Trust has a Carers Charter. It is recognised that more work needs to be done within certain communities. There was no evidence to demonstrate how translation services can be accessed including access to British Sign Language, however this has now been updated following the grading of Outcome 2.3. The Trust does have a Translation Policy and staff are supported to act as translators via the Trust’s Staff bank. There are formal processes in place to access external translation services including British Sign Language and makaton. Goal 2 Initial / draft grading: Developing 60 Outcome 2.3: Patients and carers report positive experiences of their treatment and care outcomes and of being listened to and respected and of how their privacy and dignity is prioritised What positive experiences have patients and carers reported about: a) their treatment and care outcomes? b) being listened to and treated with respect? c) how their privacy and dignity has been prioritised? Table 2: Range of compliments received by 2gether in Quarter 2 (Service Experience Report) Outcomes: how are we doing? Service TOTAL Learning Disabilities TOTAL 13 Children & Young People TOTAL 1 Older Peoples TOTAL 94 Working Age Adults TOTAL 320 Herefordshire TOTAL 70 Total number of recorded compliments from service users / cares / other agencies 501 It should be noted that it has not been possible to produce these figures based on the ‘reasons’ for the positive experience as stated in this outcome. Positive experiences are very varied and examples of statements are: I would like to thank you and your team for your very prompt and sensible advice … your helpful letter gave me everything that I needed. I have received outstanding and dedicated care from the GRIP team….they have helped me keep my daughter at home…and even get back to work. This is a wonderful service and the level of care received is second to none. Goal 2 Corporate Numbers 3 I really can’t begin to tell you how grateful I am to you….you will never know how you changed my life…I know you saved me from ending it. The Trust also runs an annual awards scheme which is open to service users and carers to nominate individuals or teams for the quality of care they have provided. Each year the Trust receives many nominations with compliments. 61 Outcome 2.3: Patients and carers report positive experiences of their treatment and care outcomes and of being listened to and respected and of how their privacy and dignity is prioritised How do the positive experiences of our service users and carers differ from any regional or national data? Are we doing better or worse? Enabling people to experience NHS services that meet their needs continues to be a key national strategic goal. To support this vision, the Government published No Health without Mental Health (a cross-government mental health outcomes strategy for people of all ages) in February 2011. One of the six overarching objectives relates directly to service experience and states that services must ensure that people have a positive experience of care. The national context reinforces the critical importance of paying close attention Outcomes: how are we doing? to what patients and carers say about the services provided by 2gether NHS Foundation Trust. The Trust should respond appropriately to their comments, concerns and complaints and be proactive about the development of inclusive, quality services. Understanding the perspectives of service users and carers is a core value of our organisation. A high level of importance is placed on gathering feedback about how our services are experienced which enables us to be a learning organisation by addressing any areas for improvement, providing evidence of service experience outcome and to strive for the achievement of best practice. The Care Quality Commission National Patient Survey results published in August 2011 indicate that the experience of 2gether NHS Foundation Trust services in Gloucestershire between January and April 2011 was ‘about the same’ as in other mental health NHS Trusts in England. The Director for Social Inclusion has reviewed the Trust’s local processes for Goal 2 gathering service satisfaction information. This revealed that there are many ways of gathering local satisfaction information. For example we can collect information via computer surveys, service specific questionnaires, and hotelstyle feedback cards. 62 Outcome 2.3: Patients and carers report positive experiences of their treatment and care outcomes and of being listened to and respected and of how their privacy and dignity is prioritised However this means that the information is requested in ways that do not necessarily allow for correlation across services and that the resulting information does not necessarily reach a central source for analysing the information for the organisation. In order to offer strategic and efficient ideas about developing such local surveys a Task and Finish group is recommended Outcomes: how are we doing? to review the work gathered and make recommendations about a way forward. The Trust has developed a Carers Charter which sets out what carers can expect from the Trust. Are there any groups or communities of service users or carers who are less likely to report positive experiences, less likely to be listened to or respected, and less likely to have their privacy and dignity is prioritised? If yes what will we do to address this? The Care Quality Commission in collaboration with the National Mental Health Development Unit published a census report in April 20114. This report holds important broad information regarding the ethnicity and gender of in-patients in NHS and independent mental and learning disabilities services in England and Wales. It highlights how people’s service experience still differs depending on their ethnicity and gender. In addition, people with a learning disability often Goal 2 have difficulty in getting their experiences heard and understood. 63 Outcome 2.3: Patients and carers report positive experiences of their treatment and care outcomes and of being listened to and respected and of how their privacy and dignity is prioritised What we have done to ensure that people who are less likely to be listened to, respected or have their privacy and dignity prioritised because of one or more ‘protected characteristic’ have been involved and engaged in making changes which will improve their experiences? The Learning Disabilities Service routinely invite a group of people who have learning disabilities to review new 2gether initiatives (for example leaflets and other publications) to ensure that they are accessible to people who finding reading challenging. The group have met on several occasions and are providing a valuable resource to influence the development of equitable and accessible resources. This group called the ‘4 Me About Me Group’, won an award at the 2011 annual awards event that recognises and celebrates Engagement outstanding achievements. Two service user group members attended the event and were presented with their certificate of achievement. Inclusion work has been underway to involve service users, carers and communities in understanding the Trust’s new model of service delivery called “Fair Horizons”. A reference group event was held on 1 st March 2011 and service users, carers and people from a variety of communities attended. The event yielded much positive engagement, helpful questioning and contributed ideas to further the development plans. A second event was held on the 14th June 2011. Participants have requested more information on how dual diagnosis will be managed and more information about the Trust’s response to supporting people from the wide variety of ethnic backgrounds that are a feature of our communities. All engagement events are captured in the Trust’s full equality Goal 2 impact assessment for Fair Horizons. 64 Outcome 2.3: Patients and carers report positive experiences of their treatment and care outcomes and of being listened to and respected and of how their privacy and dignity is prioritised A small group of people with dementia and carers have been meeting every few months since February 2010. The group was formed primarily to support Engagement the development of the Managing Memory Service. The insights shared and ideas generated through this work have contributed to: a new session for the Managing Memory programme for people with dementia and their carers called ‘Living Well with Dementia’ a ‘business card’ and leaflet advertising Managing Memory 2gether feedback postcards for those assessed by the Memory Assessment Service focus groups of carers, community partner organisations, service users and 2 gether staff have developed a Carers Charter. What else do we need to do to improve the experiences of patients, service users and carers? What are we going to do and when? Systems have been successfully put in place to generate compliment reporting Improvements from Trust services in Herefordshire. More work is needed to develop a robust system of teamwork across the Trust to ensure that learning is achieved routinely from service experience feedback. The Service Experience department have been working with colleagues in Herefordshire to build an understanding of our service experience systems. Connections with Herefordshire’s Multiagency Public Experience Committee and Herefordshire Local Involvement Network (LINk) and Herefordshire’s Goal 2 Mental Health Network have developed and meetings are attended routinely. 65 Local interest group feedback Outcome 2.3: Patients and carers report positive experiences of their treatment and care outcomes and of being listened to and respected and of how their privacy and dignity is prioritised What was the general feedback from engagement events that might apply to this outcome? All information should be readily available and easily accessible to all, in the most appropriate format e.g. pictorial, easy read forms Service users should be consulted about every aspect of their care and treatment in a sensitive manner. If a service user does not understand or accept the diagnosis they can feel out of control, and that things are being done to them, not with them – a holistic, person centred approach should stop this from happening. We should also be responsive and understanding to carers needs, applying the holistic approach to them just as much as the person that they care for. What was the feedback from our ‘Grading’ event on the 7 th February 2012 or what additional information was provided which has contributed to the overall grading? Information is available via the Community Development Workers in respect of their work and this is fed into the service experience report which would cover ethnicity, religion and age. Outcome 1.5 also provides information about how a young person was supported and was listened to in respect of accessing non statutory services in connection with their sexual orientation. Questions were asked about addressing the needs of service users with sensory impairment. It was not known whether our inpatient facilities have hearing loops although equipment can be hired locally. The Trust has a Carers Charter which is available in standard and easy access format. Goal 2 The Trust is compliant with single sex accommodation and a declaration to this effect is on the Trust web site click here. 66 Goal 2 Local interest group feedback Outcome 2.3: Patients and carers report positive experiences of their treatment and care outcomes and of being listened to and respected and of how their privacy and dignity is prioritised The Care Quality Commission National Patient Survey 2011 for people who use community mental health services shows that for this Trust, service users views on: the responsiveness of Health and Social Care Workers whether their views on medication were taken into account the usefulness of talking therapies their understanding of their care plan their views of their care co-ordinator the care review process and crisis care were all in the intermediate level of Trust responses when compared across 65 NHS Trusts in England. Some responses were very close to the top 20% (best) patient responses. The national Count Me In Census which compares inpatient data across the country has been officially ‘retired’ however inpatient data can be extracted from the patient data base Ri0. Nationally young black men are be more likely to be detained under the Mental Health Act and have higher than average representation in inpatient facilities. The Trust considers that people with multiple protected characteristics are less likely to report positive experiences and less likely to have their privacy an dignity prioritised. In 2010 this was identified as pregnant and young mothers in in-patient wards who based on their gender, mental health and family status had no appropriate facilities which respected their family life. Through the work of one nurse, a family room was opened. This nurse won an award at the Trust’s 2010 awards ceremony for her work and acknowledgement of the needs of this group of service. The Trust recognises the particular disadvantages of young men in prison who have drug and / or alcohol misuse and are homeless. The multiple disadvantages are actively managed by the Prison nurses to ensure there is joined up working across NHS and non-statutory services to enable continued physical care and mental health care to be provided (see Outcome 1.2). Regular sessions take place with prisoners to raise issues related to their care and enable these to be addressed. 67 Goal 2 Local interest group feedback Outcome 2.3: Patients and carers report positive experiences of their treatment and care outcomes and of being listened to and respected and of how their privacy and dignity is prioritised The Trust has a new policy on Translation (2011) which enables staff to use their language skills via the Staff Bank as well as formal process to access external translation services. British Sign Language and makaton are also referenced and available. The Trust’s new website enables Google Translate to be used translate the text on the web pages. The Trust continues to develop leaflets in a range of languages. The Community Development Workers have produced A Religious and Cultural Guide which is available on the Trust’s intranet and Trust web site. This provides guidance to staff which enables them to respect the needs of service users and carers based on their religious or cultural norms and thereby offer dignity and positive experiences. 68 Outcome 2.4: Patients’ and carers’ complaints about services, and subsequent claims for redress, should be handled respectfully and efficiently What have we done to improve how we handle patient and carer complaints? Give an example: A new, more personalised approach was taken to acknowledging expressions of dissatisfaction with our services by offering a swift conversation with a member of the service experience team. This approach has also been requested by carers who have been keen to explain their concern in greater depth prior to an investigation being launched (point raised by Carers Goal 2 Outcomes: how are we doing? Gloucester through the Service Experience Feedback report for Quarter 2) The time taken to acknowledge a complaint improved in the quarter July to September 2011. 98% of complaints were acknowledged within the 3 day target compared with only 88% in the previous quarter. Table 3: Time to Acknowledge Complaints - October 2010 to September 2011 69 Outcome 2.4: Patients’ and carers’ complaints about services, and subsequent claims for redress, should be handled respectfully and efficiently What have we done to ensure that complaints which span more than one service or NHS Trust are handled respectfully and efficiently? The Trust draws its information from a variety of sources including: Patient Advice and Liaison Service report (Gloucestershire) Compliments, Comments and Concerns Information Narrative reports made by members of the Service Experience Outcomes: how are we doing? Committee Feedback from community groups that are seldom heard Gloucestershire LINk information Feedback from Carers Gloucestershire Ad hoc meetings with stakeholders (eg Gloucestershire Young Farmers) Public Experience meeting in Herefordshire Herefordshire Public Involvement Team Herefordshire LINk Herefordshire Carers Support Through a review of all data available it is possible to respond to concerns which are raised which span more than one NHS service provider and to demonstrate where effective action has been taken. Where the Trust is asked to note specific concerns related to onward referral it is possible through a review of clinical notes that to demonstrate that for example referral to Cancer Care specialists has been made when clinical indicators (noted in NICE Guidelines) are evident on medical assessment. Table 4 shows the range of complaints received by the Trust and where those complaints relate to services Goal 2 across more than one service or Trust. 70 Outcome 2.4: Patients’ and carers’ complaints about services, and subsequent claims for redress, should be handled respectfully and efficiently Goal 2 Outcomes: how are we doing? Outcomes: how are we doing? Table 4 – Complaints by Type – October 2010 to September 2011 Are there any groups or communities which are more likely to experience a poor or inefficient response because of one or more ‘protected characteristic’? At the moment the Trust does not capture complaints and experiences by ‘protected characteristic’. However the opportunity to do so and learn considerably more through this information is being considered as part of the review of data for 2012 – 13. The Trust recognises that better data will help improve responses to people in the future and use the learning experiences to improve how we deliver our services to those who may otherwise experience poor outcomes, barriers to access and poor responses when complaints and issues are raised. 71 Outcome 2.4: Patients’ and carers’ complaints about services, and subsequent claims for redress, should be handled respectfully and efficiently What we have done to ensure that those who are more likely to experience a poor or inefficient response because of one or more ‘protected characteristic’ have been engaged and involved in changing and improving the response they can expect? Progress is being made in implementing recommendations to involve service Engagement users and carers in this medical professional training in the Trust. The Director of Medical Education is leading an initiative to: Recruit a pool of service users and carers who wish to participate Set up support for them and systems for payment Arrange for service user and care representatives to attend induction for junior doctors Invite representatives to attend the Medical Education Board on a regular basis Invite participation in other medical training sessions Explore the possibility of developing a library of recorded interviews with service users and carers for use in training sessions. What work do we still need to do to improve the response that we give? What are we going to do and when? Give examples: The Trust is committed to ensuring that the experience of services is in line with its core values. The following actions are examples of ways in which we will Improvements progress: General practice development training, for example, that undertaken to share the Carers Charter, where invite carers will be invited to take part in the delivery of training. This will enable staff to hear first hand in a collegial activity the narrative experience from people who use service. Induction Training undertaken by the Service Experience Team will make reference to the expectation of a high standard of customer care approach Goal 2 expected of all staff in 2gether. The Service Experience Team will develop a specific training package to be delivered with Team and Clinical managers who wish to enhance the customer service approaches in their teams. 72 Outcome 2.4: Patients’ and carers’ complaints about services, and subsequent claims for redress, should be handled respectfully and efficiently Improvements Teams are expected to display anonymous compliments in public areas of their service to encourage positive feedback for best service experience practice. A list of compliments will feature routinely in our weekly staff newsletter. Where a complaint about staff attitude is investigated and upheld the relevant HR policy will be enacted. If appropriate specific customer care training will be offered to the staff member. What was the general feedback from engagement events that might apply to this outcome? Local interest group feedback People do not understand how we use their data. They are concerned that it will not remain confidential or anonymous. There may be limited confidence in public authorities using data effectively to improve services. People do not know how to complain, or they are worried they will be treated differently if they do raise a complaint. The NHS ‘expects patients to fit in with its systems and processes’. Frontline staff often lack the time or understanding to properly assess individuals’ needs, including in relation to their carers and ‘significant others’. This can disadvantage more vulnerable people and those with complex needs, such as those with learning disabilities, older people, the traveller community, and those who do not have English as a first language. GP’s are not listening to patient needs but this may be due to lack of information available. Ensure service user involvement at every level – recruitment, training, care plans recovery, treatment etc. Good links with other agencies are vital to providing a good service, with a multi disciplinary and professional approach. Services should regularly review how they are meeting outcomes and promote a continuous cycle of feedback and evaluation with service users. Goal 2 What was the feedback from our ‘Grading’ event on the 7 th February 2012 or what additional information was provided which has contributed to the overall grading? This Outcome is yet to be graded. 73 Appendix A Equality Delivery System - Goals and Outcomes Goal Narrative Outcome 1. Better health outcomes for all The NHS should achieve improvements in patient health, public health and patient safety for all, based on comprehensive evidence of needs and results 1.1 Services are commissioned, designed and procured to meet the health needs of local communities, promote well-being, and reduce health inequalities 1.2 Individual patients’ health needs are assessed, and resulting services provided, in appropriate and effective ways 2. Improved patient access and experience The NHS should improve accessibility and information, and deliver the right services that are targeted, useful, useable and used in order to improve patient experience 3. Empowered, engaged and well-supported staff The NHS should Increase the diversity and quality of the working lives of the paid and non-paid workforce, supporting all staff to better respond to patients’ and communities’ needs 4. Inclusive leadership at all levels NHS organisations should ensure that equality is everyone’s business, and everyone is expected to take an active part, supported by the work of specialist equality leaders and champions 1.3 Changes across services for individual patients are discussed with them, and transitions are made smoothly 1.4 The safety of patients is prioritised and assured. In particular, patients are free from abuse, harassment, bullying, violence from other patients and staff, with redress being open and fair to all 1.5 Public health, vaccination and screening programmes reach and benefit all local communities and groups 2.1 Patients, carers and communities can readily access services, and should not be denied access on unreasonable grounds 2.2 Patients are informed and supported to be as involved as they wish to be in their diagnoses and decisions about their care, and to exercise choice about treatments and places of treatment 2.3 Patients and carers report positive experiences of their treatment and care outcomes and of being listened to and respected and of how their privacy and dignity is prioritised 2.4 Patients’ and carers’ complaints about services, and subsequent claims for redress, should be handled respectfully and efficiently 3.1 Recruitment and selection processes are fair, inclusive and transparent so that the workforce becomes as diverse as it can be within all occupations and grades 3.2 Levels of pay and related terms and conditions are fairly determined for all posts, with staff doing equal work and work rated as of equal value being entitled to equal pay 3.3 Through support, training, personal development and performance appraisal, staff are confident and competent to do their work, so that services are commissioned or provided appropriately 3.4 Staff are free from abuse, harassment, bullying, violence from both patients and their relatives and colleagues, with redress being open and fair to all 3.5 Flexible working options are made available to all staff, consistent with the needs of the service, and the way that people lead their lives. (Flexible working may be a reasonable adjustment for disabled members of staff or carers.) 3.6 The workforce is supported to remain healthy, with a focus on addressing major health and lifestyle issues that affect individual staff and the wider population 4.1 Boards and senior leaders conduct and plan their business so that equality is advanced, and good relations fostered, within their organisations and beyond 4.2 Middle managers and other line managers support and motivate their staff to work in culturally competent ways within a work environment free from discrimination 4.3 The organisation uses the “Competency Framework for Equality and Diversity Leadership” to recruit, develop and support strategic leaders to advance equality outcomes 74 3. Appendix B: Patient Data Introduction to Patient Data For the purposes of introducing the Equality Delivery System (EDS) in 2012 – 2013, the Trust has identified data which it hopes will indicate how our services are delivered in line with the Equality Act 2010 and the outcomes from the EDS. Why look at our patient data? Our starting point has been to consider how our patient profile compares with the profile of the county. The county figures have been taken from the Office of National Statistics estimates as at June 2010. The purpose of making this comparison is to identify whether or not there might be barriers to groups or communities accessing our services. We know from the national data that some people as a consequence of specific characteristics such as age, gender, ethnicity, sexual orientation, religion or belief, disability, through gender reassignment, or through pregnancy / maternity may experience barriers to accessing NHS services or have poorer health. These specific characteristics are defined as ‘protected characteristics’ in the Equality Act 2010 and are aspects we need to consider when delivering services. Using electronic data capture systems Patient profile data has been extracted from our electronic patient record system called Ri0. Not all our patient data is held on this system and some of our services use other electronic patient records systems. Our Improving Access to Psychological Therapies Services (known as IAPT) uses a specific patient record system called IAPTUS. Data for our patients in the Prison Service is also held separately. Over time we hope to be able to extract consistent data from all our patient systems to better understand the profile of our patients. However for the purposes of this first report data has been extracted only from Ri0. 75 The generic patient record system Ri0 was introduced into the Trust during 2010. Over a period of months it was rolled out to all services excluding those named above. How accurate is our data? Ri0 can hold a vast set of information and is being populated by staff as new referrals are made and historic data has also been transferred where possible. This has been a huge task and although every effort has been made to ensure both historic data and new data is as comprehensive as possible there is a continual process of checking and updating data. Staff are still adapting how they capture information and how they explain to patients the need to capture this information. In some cases this means that our data remains limited in some respects but will improve year on year. What can we report on for 2012 – 2013? For the purposes of this report, six extracts are included: A comparison of Trust caseload information by age, gender and ethnicity with local and national population statistics Using three specific services which have been included in case studies describing outcomes against the Equality Delivery System, a comparison of their caseloads by age, gender and ethnicity with overall Trust caseload, and local and national population statistics. Local and national population statistics and patient data are described based on age, ethnicity and gender. This provides the Trust and our stakeholders with a basic set of data on which we can build in future years. What is the difference between a referral and a caseload figure? A ‘caseload’ is all the people who are currently receiving care from the Trust. This may be considered to be the Trust’s ‘population’. ‘Referrals’ are new cases coming into our services. Our ‘caseload’ data will provide the best comparison between our patients and the local and national population profile. Other data has been used to supplement ‘caseload’ where this is available. 76 If we can reduce barriers and improve access to our services then changes will firstly show in the demographic make-up of referrals which will in turn influence the demographic make-up of our caseload data. However the speed of changes will depend on the rate of ‘turnover’, that is how quickly our patients can access our services, complete their treatment and be discharged. This rate of ‘turnover’ varies a great deal between different services. Comparison between Trust, local and national populations by age 2gether Gloucestershire Gloucestershire* UK* Trust Trust Local Local National National Age Group caseload Percentage Population Percentage Population Percentage 0-9 843 6.04% 66 11.07% 7305 11.73% 10-14 800 5.73% 35 5.95% 3567 5.73% 15-19 929 6.66% 38 6.42% 3912 6.28% 20-24 840 6.02% 35 5.85% 4310 6.92% 25-29 761 5.45% 32 5.32% 4250 6.83% 30-34 779 5.58% 31 5.24% 3891 6.25% 35-39 746 5.35% 38 6.32% 4202 6.75% 40-44 907 6.50% 46 7.67% 4632 7.44% 45-49 928 6.65% 46 7.68% 4566 7.33% 50-54 756 5.42% 40 6.74% 3981 6.39% 55-59 591 4.24% 37 6.27% 3578 5.75% 60-64 535 3.83% 40 6.70% 3764 6.04% 65-69 508 3.64% 32 5.36% 2932 4.71% 70-74 556 3.99% 26 4.30% 2468 3.96% 75-79 812 5.82% 21 3.55% 2002 3.22% 80-84 1037 7.43% 16 2.76% 1493 2.40% 85+ 1624 11.64% 17 2.81% 1411 2.27% Comparison between Trust, local and national populations by gender 2gether Gloucestershire Gloucestershire* UK* Trust Trust Local Local National National Gender Caseload Percentage Population Percentage Population Percentage Female 7513 53.85% 302 50.86% 31619 50.78% Male 6438 46.15% 292 49.14% 30643 49.22% 77 Comparison between Trust, local and national populations by ethnicity 2gether Gloucestershire Gloucestershire* UK* Trust Trust Local Local National National Ethnicity Caseload Percentage Population Percentage Population Percentage Description A 10249 93.80% 531.8 90.26% 45682 83.35% White: British B 58 0.53% 4.5 0.76% 574 1.05% White: Irish C 232 2.12% 16.5 2.80% 1933 3.53% White: Other White D 61 0.56% 3.0 0.51% 311 0.57% Mixed: White and Black Caribbean E 5 0.05% 1.0 0.17% 132 0.24% Mixed: White and Black African F 17 0.16% 2.3 0.39% 302 0.55% Mixed: White and Asian G 35 0.32% 1.9 0.32% 243 0.44% Mixed: Other Mixed H 34 0.31% 8.6 1.46% 1434 2.62% Asian or Asian British: Indian J 23 0.21% 3.0 0.51% 1007 1.84% Asian or Asian British: Pakistani K 11 0.10% 1.4 0.24% 392 0.72% Asian or Asian British: Bangladeshi L 20 0.18% 1.3 0.22% 386 0.70% Asian or Asian British: Other Asian M 83 0.76% 3.2 0.54% 615 1.12% Black or Black British: Black Caribbean N 26 0.24% 3.3 0.56% 799 1.46% Black or Black British: Black African P 29 0.27% 0.6 0.10% 126 0.23% Black or Black British: Other Black R 12 0.11% 3.8 0.64% 452 0.82% Chinese or Other Ethnic Group: Chinese S 31 0.28% 3.0 0.51% 423 0.77% Chinese or Other Ethnic Group: Other Comparison between percenages on caseload by specific services, Trust caseload overall and local and national populations by age 2gether Gloucestershire Gloucestershire UK Memory Monitoring Trust Local National Age Group CYPS LD Service caseload Population Population 0-9 37.63% 0.09% 0.00% 6.04% 11.07% 11.73% 10-14 33.96% 0.43% 0.00% 5.73% 5.95% 5.73% 15-19 25.81% 5.66% 0.00% 6.66% 6.42% 6.28% 20-24 0.76% 11.31% 0.00% 6.02% 5.85% 6.92% 25-29 0.85% 9.51% 0.04% 5.45% 5.32% 6.83% 30-34 0.49% 10.11% 0.04% 5.58% 5.24% 6.25% 35-39 0.36% 6.77% 0.00% 5.35% 6.32% 6.75% 40-44 0.13% 11.57% 0.18% 6.50% 7.67% 7.44% 45-49 0.00% 12.60% 0.27% 6.65% 7.68% 7.33% 50-54 0.00% 10.71% 0.75% 5.42% 6.74% 6.39% 55-59 0.00% 7.46% 1.11% 4.24% 6.27% 5.75% 60-64 0.00% 7.28% 2.04% 3.83% 6.70% 6.04% 65-69 0.00% 3.08% 4.43% 3.64% 5.36% 4.71% 70-74 0.00% 2.40% 8.50% 3.99% 4.30% 3.96% 75-79 0.00% 0.60% 16.47% 5.82% 3.55% 3.22% 80-84 0.00% 0.34% 24.48% 7.43% 2.76% 2.40% 85+ 0.00% 0.09% 41.70% 11.64% 2.81% 2.27% 78 Comparison between percenages on caseload by specific services, Trust caseload overall and local and national populations by gender 2gether Gloucestershire Gloucestershire UK Memory Monitoring Trust Local National Gender CYPS LD Service caseload Population Population Female 39.52% 43.96% 61.71% 53.85% 50.86% 50.78% Male 60.48% 56.04% 38.29% 46.15% 49.14% 49.22% Comparison between percenages on caseload by specific services, Trust caseload overall and local and national populations by ethnicity 2gether Gloucestershire Gloucestershire UK Memory Monitoring Trust Local National Ethnicity CYPS LD Service caseload Population Population Description A 90.70% 95.43% 96.40% 93.80% 90.26% 83.35% White: British B 0.26% 0.28% 0.86% 0.53% 0.76% 1.05% White: Irish C 3.67% 1.40% 2.06% 2.12% 2.80% 3.53% White: Other White D 1.50% 0.28% 0.00% 0.56% 0.51% 0.57% Mixed: White and Black Caribbean E 0.05% 0.28% 0.00% 0.05% 0.17% 0.24% Mixed: White and Black African F 0.41% 0.28% 0.06% 0.16% 0.39% 0.55% Mixed: White and Asian G 0.77% 0.09% 0.00% 0.32% 0.32% 0.44% Mixed: Other Mixed H 0.31% 0.19% 0.23% 0.31% 1.46% 2.62% Asian or Asian British: Indian J 0.36% 0.00% 0.06% 0.21% 0.51% 1.84% Asian or Asian British: Pakistani K 0.15% 0.00% 0.00% 0.10% 0.24% 0.72% Asian or Asian British: Bangladeshi L 0.21% 0.09% 0.00% 0.18% 0.22% 0.70% Asian or Asian British: Other Asian M 0.77% 0.47% 0.29% 0.76% 0.54% 1.12% Black or Black British: Black Caribbean N 0.31% 0.47% 0.00% 0.24% 0.56% 1.46% Black or Black British: Black African P 0.36% 0.19% 0.00% 0.27% 0.10% 0.23% Black or Black British: Other Black R 0.00% 0.09% 0.06% 0.11% 0.64% 0.82% Chinese or Other Ethnic Group: Chinese S 0.15% 0.47% 0.00% 0.28% 0.51% 0.77% Chinese or Other Ethnic Group: Other Background It is the aim to create an interactive report that will enable an update of diversity information for the Trust at any point it is required. Based on an initial discussion with Carol Sparks – Deputy HR Director it is proposed to concentrate on readily available information (gender, age and ethnicity) initially. Three communities were identified as being of interest because known barriers or health inequalities exist. These three communities are: 79 Black and minority ethnic communities Eastern European people Travellers The ability to distinguish the latter two has only been available to Trust staff since the implementation of RiO in April and November 2010 respectively. accuracy for the data is fairly limited at present. This means that the Similarly, there is little national and local data about these two groups as they have been traditionally included in the ‘White Other’ category (C). The Traveller Community Unfortunately the information available for this group is particularly small and therefore does not constitute a statistically significant sample for this report. The Eastern European Community This is a relatively new community in Gloucestershire and work udnertaken by the Community Development Worker Team suggests that language barriers and lack of knowledge of the services the Trust provides may hinder individuals accessing our services. 80 Nov-10 Dec-10 Jan-11 Feb-11 Mar-11 Apr-11 May-11 Jun-11 Jul-11 Aug-11 Sep-11 Oct-11 3 2 16 8 5 5 14 7 6 9 1 1 3 1 1 1 2 1 14 13 14 29 31 33 34 45 45 50 50 42 13 9 13 14 41 30 61 71 51 15 42 64 2 1 1 1 1 1 2 1 1 1 14 10 22 8 1 30 40 External referrals Internal referrals Total Caseload Total attendances Admissions Inpatients Discharges Occupied Bed Days (excl on leave) Referrals Internal referrals Average 6 1 33 35 1 0 11 Caseload External referrals Total Caseload 60 18 16 14 12 10 8 6 4 2 - 50 40 30 20 Oct-11 Sep-11 Aug-11 Jul-11 Jun-11 May-11 Apr-11 Mar-11 Jan-11 Dec-10 Nov-10 Total attendances Feb-11 - Oct-11 Sep-11 Aug-11 Jul-11 Jun-11 May-11 Apr-11 Mar-11 Feb-11 Jan-11 Dec-10 Nov-10 10 Occupied Bed days excl. Leave Total attendances Occupied Bed Days (excl on leave) 80 70 60 50 40 30 20 10 - Oct-11 Sep-11 Aug-11 Jul-11 Jun-11 May-11 Apr-11 Mar-11 Feb-11 Jan-11 Dec-10 Nov-10 Oct-11 Sep-11 Aug-11 Jul-11 Jun-11 May-11 Apr-11 Mar-11 Feb-11 Jan-11 Dec-10 Nov-10 45 40 35 30 25 20 15 10 5 - There is a wide spread of services that in the past twelve months provided a service to this group. There are slightly more men than women who receive Trust services and there is a wide spread in age groups. 81 Black and Minority Ethnic Communities Nov-10 Dec-10 Jan-11 Feb-11 Mar-11 Apr-11 May-11 Jun-11 Jul-11 Aug-11 Sep-11 Oct-11 44 20 41 43 40 32 26 60 35 20 25 20 17 19 14 10 15 13 18 19 22 17 18 11 385 391 387 398 412 400 393 404 398 399 410 388 655 665 788 718 888 791 887 953 941 918 890 763 3 4 3 2 4 3 4 6 6 4 1 2 4 3 5 2 2 3 6 7 6 2 3 1 480 539 438 384 436 382 424 381 461 418 412 378 Referrals Total Caseload Total attendances Oct-11 Sep-11 Aug-11 Nov-10 Oct-11 Sep-11 Aug-11 Jul-11 Jun-11 May-11 Apr-11 Mar-11 Feb-11 Jan-11 Dec-10 - Jul-11 10 Jun-11 20 May-11 40 30 Mar-11 50 Jan-11 60 Feb-11 450 400 350 300 250 200 150 100 50 - 70 Nov-10 Average 34 16 397 821 4 4 428 Caseload External referrals Dec-10 Internal referrals Apr-11 External referrals Internal referrals Total Caseload Total attendances Admissions Inpatients Discharges Occupied Bed Days (excl on leave) Occupied Bed days excl. Leave Total attendances Occupied Bed Days (excl on leave) 1,200 600 1,000 500 800 Oct-11 Sep-11 Aug-11 Jul-11 Jun-11 May-11 Apr-11 Mar-11 Feb-11 Jan-11 Dec-10 Oct-11 Sep-11 Aug-11 Jul-11 Jun-11 May-11 Apr-11 Mar-11 Feb-11 100 - Jan-11 200 Dec-10 200 Nov-10 300 400 Nov-10 400 600 There is a fairly equal spread between genders and a wide variety of services with have input with clients in this group. S Slottje – Information Department 29/11/2011 Gloucestershire County Health Profile: The Annual Report of the Director of Public Health 2009 – 2010 1 2 Department of Health (2010) Healthcare for Single Homeless People, London. [online] Available from: http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_11 4250 82 3 National Audit Office (2005) More than a roof: Progress in tackling homelessness, London. [online] Available from: http://www.nao.org.uk/publications/0405/more_than_a_roof.aspx Crisis (2008) “Hidden Homelessness.” Policy Watch. 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