Greater New Orleans Community Substance Use Health Profile Appendix A: Data Sources Documentation Louisiana Early Event Detection System (LEEDS) (Emergency Department Syndromic Surveillance) Louisiana Early Event Detection System (LEEDS) is a web-based syndromic surveillance system that, on a daily basis, automatically processes hospital emergency department data to identify visits indicative of specific syndromes tracked by the Infectious Diseases Epidemiology Section of the Louisiana Office of Public Health (OPH). Syndromic Surveillance Syndromic Surveillance is the collection and analysis of pre-diagnostic as well as non-clinical disease indicators using pre-existing electronic data1, typically collected on a daily basis. The goal of Syndromic Surveillance is to rapidly detect early warning signs of both natural and manmade disease trends or outbreaks that might impact the health of the public. Syndromic Surveillance uses pre-diagnostic data in order to provide: earlier detection and awareness of outbreaks or disease trends of public health significance; ongoing monitoring of syndromes of public health importance; monitoring of seasonal disease trends, such as influenza during winter months; situational awareness during any identified cluster of cases or outbreak, during natural or man-made emergencies, or during high-profile events; and the potential to other track events such as hospital acquired infections, injuries and infections during hurricanes, environmental exposures, poisonings, bioterrorism events, exposure to toxins, and drug abuse trends. Louisiana Early Event Detection System (LEEDS) LEEDS tracks numerous syndromes and is used by the Infectious Diseases Epidemiology Section of the Louisiana Office of Public Health for important public health surveillance activities including: 1 Foodborne, waterborne and other gastrointestinal illness outbreak detection and surveillance Influenza-like illness surveillance Asthma surveillance Upper and lower respiratory tract infections surveillance Health effects due to air pollution – marsh fires, chemical disasters, etc. Healthcare-associated infections (HAI) surveillance Sosin DA. Biosecurity and Bioterrorism 2003; 1(4): 247-53. Document1 1 of 3 Greater New Orleans Community Substance Use Health Profile Appendix A: Data Sources Documentation Generic outbreak detection (skin and soft tissue infections (SSTI), rashes, detection of vaccine-preventable diseases) Bioterrorism agents surveillance (botulism, ricin, viral hemorrhagic fevers, pneumonias, anthrax, plague) Zoonotic diseases surveillance Drug and alcohol abuse surveillance Special pathogens surveillance Special event surveillance Data Collection LEEDS receives daily electronic data files from emergency departments. Specific data items reported to LEEDS include Facility Name, Date of Visit, Time of Visit, Age, Date of Birth, Gender, Patient's Residence Zip Code, Emergency Department Chief Complaint (text and/or ICD code), Emergency Department Discharge Disposition, and Emergency Department Discharge Diagnosis. To assure patient confidentiality, OPH does not ask for patient name or address. However, because of the potential need to investigate an outbreak or cluster detected through LEEDS, participating facilities include a unique, facility-defined patient identifier (ID) for each record submitted so that follow-up is possible. Eleven of the 12 hospital emergency departments in Greater New Orleans’ four parishes reported to the LEEDS system throughout calendar 2013, representing about 95 percent of all emergency room visits. It is expected in the future that all EDs will report to LEEDS. Behavioral Health Indicators Based on scanning complaint codes and text as well as discharge diagnostic codes and text, the LEEDS system identifies visits that are alcohol, drug and or mental health-associated. These visit counts can be monitored on a daily, weekly, monthly or annual basis. LEEDS can also be used to monitor symptomatic side effects related to consumption of certain drugs or adulterants. Future efforts will explore the potential for routinely identifying specific type of drugs, such as marijuana, heroin or prescription medications. The following methodological issues are noted: Drug-associated ED visits may involve intentional or accidental use of medicines. For instance, an individual may unintentionally take an overdose of a legally obtained prescription or over-the-counter drug from medicinal purposes. Alcohol and drug-associated ED visits represent a health care burden. Since coverage of EDs in Greater New Orleans is exceptional, LEEDS measures the magnitude of that burden. However, some cases may be treated in urgent care facilities outside a hospital setting. (LEEDS plans to begin collecting data from urgent care facilities as well.) LEEDS is useful for monitoring trends in alcohol and drug problems because, other things being equal, an increase in alcohol or drug use or substance use disorders will result in an increase in associated ED utilization. However, LEEDS does not measure the full magnitude of the “problem,” only part of the acute health care component. Further, different types of substance use may be more or less likely to result in ED visits. Therefore, the ability to validly count visits by type of drug would very useful, although Document1 2 of 3 Greater New Orleans Community Substance Use Health Profile Appendix A: Data Sources Documentation such counts would not in themselves measure the relative magnitude of problem across drug types. The impact of holidays and festivals can be tracked with daily and weekly counts. Moveable feasts, such as Mardi Gras, may distort monthly trend estimates. As reporting to LEEDS expands to include additional emergency departments and urgent care facilities, counts for all syndromes will likely increase, regardless of any underlying trend. One method to control for the increasing number of visits is to track the percentage of total visits represented by any specific syndrome. However, by itself, this does not provide an estimate of the magnitude of emergency and urgent health care provided for specific syndromes over time. Another strategy is to use a fixed set of facilities reporting throughout the period of interest. Both these methods can be confounded if facilities beginning reporting are substantially different in services provided from facilities already reporting or if facilities currently reporting change their service capacity, mix or mission. Improvements or other changes to algorithms used to identify syndromes may increase validity or reliability of syndromic surveillance, but can create historical discontinuities for long-term trend analysis unless the revised methodologies can be replicated backward or the old algorithms (if valid) can continue to be used for historical trends. Based on just a single known case with specific symptoms, a syndrome can be tracked backward and forward to identify similar cases and possible causes. While not emphasized here, LEEDS has been used to identify and monitor the introduction of illegal and or adulterated drugs with harmful side effects, providing situational awareness for potential public health responses. Contact for Further Information Jenna Iberg Johnson, LEEDS Coordinator Infectious Disease Epidemiology Section 1450 Poydras Street New Orleans, LA 70112 504-568-8312 Updated: 12/23/2013 Document1 3 of 3