Quick read profile—Lower South West area consultation document Map based on information provided by and with the permission of the Western Australian Land Information Authority (Landgate), and the Australian Bureau of Statistics (ABS) About the Lower South West profile area The Lower South West profile area covers approximately 17,821 square kilometres (ABS 2012a) and includes six local government authorities (LGAs): the Shires of AugustaMargaret River, Boyup Brook, Bridgetown-Greenbushes, Busselton, Manjimup and Nannup. There are an estimated 58,446 people living in the Lower South West area (ABS 2012a). This area represents about 2.6 per cent of the West Australian population. Many people living in the Lower South West profile area will have the opportunity to participate in the Commission’s My Way project. Page 1 Quick read profile—Lower South West area consultation document Information about the Sector Development Plan and the area profile consultation documents The Disability Services Commission’s (the Commission) vision is that all people live in welcoming communities that support citizenship, friendship, mutual support and a fair go for everyone. The Commission is working together with key stakeholders to create a Sector Development Plan (the Plan). The Plan will provide the disability sector with direction and will identify opportunities for development. The Commission has written fifteen area profile consultation documents which cover all areas of WA as well as this summary document for each area—the quick read. Each area profile consultation document presents information about supports and services available in each profile area. We want to hear from people who live and work in each profile area to help us understand more about the disability supports and services people receive. The Commission will then use this information to develop local plans for each profile area along with an overall state-wide plan. How to have your say We are seeking feedback from interested stakeholders and have developed a list of questions covering a number of topics for your consideration. A feedback form template has also been provided which may assist you in consolidating your comments. Should you wish to use the template provided you can either complete it electronically or print it and hand write your comments. Forms can be returned to the Commission by email or post. email the template to sector.development@dsc.wa.gov.au post the template to: Disability Services Commission Sector Development Plan Feedback PO Box 441 West Perth WA 6872 The template has been supplied as a helpful tool but it is not compulsory that you use it or answer every question to provide your feedback. Any general comments can be provided to the Commission via email or post using the details above or they can be provided verbally or by attending a focus group. To provide feedback another way you can: provide verbal feedback by phoning Sector Development on 9426 9309 attend a focus group that will be hosted in local areas (these will be advertised on the www.dsc.wa.gov.au web site). If you have any questions or require further assistance, please email sector.development@dsc.wa.gov.au or phone 9426 9309. Page 2 Quick read profile—Lower South West area consultation document Contents Population characteristics 4 Networks and support groups 5 People using Commission-funded supports and services Local Area Coordination Shared management Supported living Shared supported accommodation (group homes) Individualised community living Support to pursue meaningful occupation and lifestyle— Alternatives to Employment (ATE), Post School Options (PSO) and recreation Support to families—includes Intensive Family Support and Family Living Initiative, and breaks for families and carers Support to optimise independence and wellbeing— disability professional services 6 6 6 7 7 7 8 9 Other community services Employment support Home and Community Care (HACC) 9 9 Demand for supports and services 10 Sector development issues 10–11 Tell us what you think—consultation questions 12–13 References 14 Appendix A Information about organisations providing support in the area 15–17 Page 3 Quick read profile—Lower South West area consultation document Lower South West area Population characteristics It is estimated that 3.9 per cent of the population in this area have a severe or profound core activity limitation. Across the state it is estimated that 3.1 per cent of the population has a severe or profound core activity limitation (ABS 2012b). 18 per cent of the population in this area was born overseas, which is below the WA average of 31 per cent (ABS 2012a). 4.20 per cent of the Lower South West population speaks a language other than English at home. This is significantly below consistent with the WA average of 21 per cent (ABS 2012a). People who identified as Aboriginal and Torres Strait Islander in the 2011 Census (ABS 2012a) represent 1.63 per cent of the population in the lower South West area. This is below the state-wide figure of three per cent. For all LGAs in this profile area, nearly eight per cent of the population provided unpaid assistance to a person with disability (ABS 2012a). This is consistent with the percentage recorded for the State (ABS 2012a). Other observations Across this area the median household weekly incomes are lower than the state figure of $1,415 with figures ranging from $821 to $1,096 (ABS 2012a). Weekly rental costs for a three bedroom house in a sample of towns in the area are between $300 to $315. The Perth metropolitan median weekly rent for a three bedroom house is $385 (REIWA 2012). Median house prices for a sample of towns in this area are generally lower than the Perth metropolitan median house price of $470,000. Prices range from $230,000 to $430,000 (REIWA 2012). Page 4 Quick read profile—Lower South West area consultation document Networks and support groups People get practical and moral support from their wider family, friends, neighbours and other families, this support is important. Informal and structured community groups also play a valuable role in supporting and strengthening people and families. People might find support through local church groups, sports and recreation activities, community networks, mothers’ groups, playgroups, self-help and peer support programs, disability-specific support groups, cultural groups and education and counselling services. You can also find information about local support groups through Local Area Coordinators (LACs), information services provided by Commonwealth Respite and Carelink Centres (CRCC), Carers WA or your LGA. Some support groups in the Lower South West profile area include: Bridgetown Terminus Community Centre: Contributes to the wellbeing of families in the Shire of Bridgetown/Greenbushes by providing support, personal development and learning opportunities in a non-competitive environment at a relatively low cost. Phone: 9761 2139 Web: http://www.bridgetown.wa.au . Henri Nouwen House Inc.: The group offers programs for people in crisis, with issues such as addictions, codependency and low self-esteem. Services include counselling, self-help, support and fellowship. Minimal fees are payable. Address: PO Box 601, Bridgetown, WA, 6255. Northcliffe Family Centre Inc.: A community run group which provides support to families in the south west town of Northcliffe. The services include a playgroup, Youth Voice, long day care (Karri Kids), vacation care, and a learning centre concept called Sharers and Carers. WA Special Families A state-wide Facebook support group accessed by invitation only People able to access the group must be a parent of, or someone caring for, a person with disability. Access through Facebook only. Page 5 Quick read profile—Lower South West area consultation document People using Commission-funded and provided services This section describes how people in this area used Commission-funded and provided supports and services in 2011−2012. It does not provide detail about how well services are working. Local information and support for individuals and families— Local Area Coordination (LAC) Many people with disability access the Commission’s Local Area Coordination (LAC) support across the state. LACs support children and adults with physical, sensory, neurological, cognitive and/or intellectual disability who are under 65 at the time they first apply for support. LACs work with individuals and communities to provide direct and personalised support to people with disability, their families and carers to live a fulfilled life. 301 people in this area were registered with LAC in 2011–2012 (Disability Services Commission (DSC) 2012). More than 55 per cent of these people were aged between five and 19 (this trend is common across WA). Most lived in Shire of Busselton (158), followed by Shire of Manjimup (55) and Shire of Augusta-Margaret River (51). Directing supports and services—shared management Most people with an individualised funding package from the Commission have their support managed and provided by a disability service organisation. Some people with Community Living or Family Living manage their funding through their LAC. Organisations are encouraged to offer shared management. A shared management approach gives people greater control over their supports and funding. To make sure expectations and responsibilities are met by each party, an agreement is developed. (See Appendix A for a list of organisations that offer shared management). Supported living Supported living describes the support provided to people with disability so they can live in their home and community. Supported living relies on individual funding allocation—which people apply for through the Combined Application Process (CAP) or Community Living Program. 65 people in this profile area were supported in shared supported accommodation or an individualised accommodation arrangement in 2011–2012 (DSC 2012). Page 6 Quick read profile—Lower South West area consultation document Shared supported accommodation (group homes) Seven people in this area lived in one of two shared support accommodation homes in 2011–2012 (DSC 2012). Individualised community living 57 people in this area used individual community living support and services and were assisted to live independently in the community in 2011–2012 (DSC 2012). Most of these people live in the Shire of Busselton (27), followed by Shire of Bridgetown-Greenbushes (12). Activ and Strive Warren Blackwood are providing most of the individualised community living support in this area (see Appendix A for a full list of providers). Nine people in this area have a community living package. Support to pursue meaningful occupation/lifestyle Post School Options (PSO) and Alternatives to Employment (ATE) are Commission-funded programs that support people in meaningful activities during their week. These programs rely on individual funding allocation. People of school-leaving age can apply for PSO and is allocated based on eligibility and support needs. Adults with disability can apply for ATE funding through CAP, which is allocated based on eligibility, support needs and priority of need. 49 people in this area received an ATE or PSO allocation in 2011–2012 (DSC 2012). More than 55 per cent of these people were aged between 15 and 24. Most people lived in Shire of Busselton (27). Recreation Eligible people with disability may access support from Commission-funded organisations to pursue recreational activities. People contact organisations directly to find out about how to access services. 20 people in this area used recreation support services in 2011–2012 (DSC 2012). Most of these people live in Shire of Busselton (16). Page 7 Quick read profile—Lower South West area consultation document Support to families Some services and supports aim to improve family wellbeing. In some cases these services are individually funded through the Family Living Initiative (FLI) or Intensive Family Support (IFS). FLI has a strong emphasis on planning. Families can apply for funding based on a plan that complements informal supports provided by families, carers, friends and the community. When families are under stress or at risk of breakdown people can apply for IFS funding through CAP. Funding is allocated based on eligibility, support needs and priority of need. 19 people and their families in this area received IFS funding in 2011–2012 (DSC 2012). Eight people have a plan and funding package through the FLI (DSC 2012). Breaks for families and carers To give themselves a break, families and carers can sometimes access respite services from Commission-funded organisations or Commonwealth funded programs. Individuals and families apply for respite opportunities directly with organisations that provide services based on a person’s need and vacancies. These services can be flexible, for example they can be provided in the person’s home and/or community, provided out-of-home in respite houses, and during school holidays. Commonwealth Respite and Care Link can provide information about organisations that provide respite, and can fund short-term or one-off respite. LACs can also help people to have a break or access supports. In this profile area in 2011-2012: 15 people received some form of family support funding from the Commission in which was managed through LAC. 58 people accessed Commission-funded respite support (DSC 2012). Page 8 Quick read profile—Lower South West area consultation document Developing independence and wellbeing Disability professional services Many people with disability access professional services, including therapy, to improve wellbeing, support their independence, and develop skills. In regional Western Australia comprehensive disability professional services are provided through the WA Country Health Service (WACHS). Services can also be accessed privately, or in some cases using Commonwealth funding. Comprehensive services are services that respond flexibly to the needs and goals of people with disability and their family. These services include speech and occupational therapy, physiotherapy and psychology support. In this profile area comprehensive disability professional services are provided by WACHS. Other community services Employment supports and services for people with disability Some people with disability access employment services to support them to find and keep a job. People choose (or are assessed and directed by Centrelink) to access Australian Disability Enterprises (ADE) or Disability Employment Services (DES), depending on their support needs. Information about ADEs and DESs operating in this area can be found at the following websites: ADE: www.australiandisabilityenterprises.com.au/About.aspx . DES: www.deewr.gov.au/Employment/Programs/DES/Pages/About.aspx. Home and Community Care Services (HACC) The Home and Community Care (HACC) program provides assistance to people who are aged, frail or with disability to live independently. Services include nursing care, allied health care, meals, domestic assistance, personal care, home maintenance, transport, respite, counselling, information and advocacy, social supports and assistance with essential activities such as shopping and banking. In the Perth metropolitan area, people can apply for HACC services and be assessed for eligibility via the Commonwealth Carelink and Respite Centre (CCRC). The HACC program has limited resources and services are allocated according to relative needs. Page 9 Quick read profile—Lower South West area consultation document Demand for supports and services Demand from people who need support and services is growing. As such, service provision is adapting to become more flexible and meet this demand. Service access When population is taken into account the following observations about service use in the Lower South West are made: The number of people accessing services in the lower South West area is similar to that in other areas of the state. A lower proportion of the population lives in shared supported accommodation and higher numbers access individualised community living. This trend is common across many regional areas of the state (DSC 2012). Future demand There is reasonable service coverage in this profile area. Into the future people in this area are likely to demand services that give them greater control over how they are provided support. Sector development issues This section considers any existing sector development initiatives and describes what may be emerging needs for this profile area. Consultations will provide an opportunity to consider sector development in more detail. Sector development initiatives Many people living in the area will have the opportunity to participate in the Commission’s My Way project. The project will provide opportunities for people with disability to have greater choice and control over their supports and services. My Way project has been developed to provide people with disability, their families and carers with individualised, person-centred support to explore possibilities and plan for the future and implement strategies. Potential areas for sector development Supporting the My Way project Sector development may be needed to ensure people and families to have opportunities to trial new ways of accessing and receiving support. Strategies may need to be developed to support people in thinking differently about what is possible and how services can be designed more flexibly. Page 10 Quick read profile—Lower South West area consultation document Creating employment opportunities Strategies may need to be developed to support people with disability to have adequate career/employment preparation, and planning and services to pursue further education, find employment or pursue meaningful lifestyles. Page 11 Quick read profile—Lower South West area consultation document Tell us what you think—consultation questions Below are questions that we would like to hear your responses to. Community 1. 2. 3. What other information would you like to add about the Lower South West area that is not in the area profile consultation document? What other disability or community support groups are active in this area? What other informal community support groups would help people in the area? Disability supports and services 4. 5. What difference are supports and services making? How well are disability-specific supports and services complementing other community supports? 6. Can you provide details of any partnerships that are working well in this area? 7. Do they match the needs of people in this area? 8. What supports are working well in this area? 9. Are there services and supports in this area that are not achieving the best outcomes? What kind of fine-tuning is needed? 10. Are there barriers to accessing services and supports in this area? What are they? Other community services 11. What needs to be done to support people with disability in the area to find and keep a job? 12. What are the main factors that help people with disability to achieve their employment goals? 13. What are the barriers to people with disability achieving their employment goals? 14. What examples can you provide of Home and Community Care (HACC) services that are working well for people with disability in this area? Service demand and coverage 15. Are you aware of any emerging trends where the changing needs of people with disability in this area are not fulfilled by current services? If so, what are they? 16. What supports and services are likely to be in demand in this area into the future? 17. What types of supports and services needed by local people are not available now? Page 12 Quick read profile—Lower South West area consultation document Service planning 18. Can you suggest any ways to improve the effectiveness of disability supports and services in WA? If so what are they? 19. Can you identify barriers to improving the effectiveness of disability supports and services in WA? 20. If so, what are the main barriers? 21. Can you suggest any ways to develop the disability sector in WA? If so, what are they? 22. Are there any emerging issues about the disability services sector, or issues facing people with disability, their families and carers? What do we need to think about when planning in this area? 23. Do service providers working in this area have the capacity to support people with disability, families and carers to share decision-making and management of their supports and services when they want to? General comments 24. Do you have any other feedback? Page 13 Quick read profile—Lower South West area consultation document References For more a more detailed list of references refer to the more detailed Lower South West Area Profile Consultation Document (available on the Sector Development Plan—Area Profile Consultation Documents page on the Commission website). Below are references that relate to data only. Australian Bureau of Statistics (ABS) 2012a, Census of Population and Housing, Basic Community Profiles, accessed 25 July 2012, www.abs.gov.au/websitedbs/censushome.nsf/home/communityprofiles?opendocument&na vpos=230 . Australian Bureau of Statistics (ABS) 2012b, Survey of Disability Ageing and Carers (SDAC) 2009, Small Area Estimates. Disability Services Commission (DSC) 2012, Annual Client Data Collection (ACDC) 2011–2012, Service User Data. Real Estate Institute of Western Australia 2012, Perth Suburb Profiles, Rental price for period October–December 2011 and house prices for period April 2011–April 2012, accessed 1 August 2012, http://reiwa.com.au/Research/Pages/Suburb-profileresults.aspx?suburb_id=121&census_code=SSC51036&geogroup_id=2627&geogroup_pare nt_id=3 . Support Groups Association Western Australia 2012, Connect Groups, Directory Search, accessed 20 August 2012, www.connectgroups.org.au/modules/directory/search.php?search_term=&location=6126&s earch=Submit+Search . Page 14 Quick read profile—Lower South West area consultation document Appendix A All efforts have been taken to ensure that the data contained in these profiles is as accurate and contemporary as possible. Refer to Appendix B of the more detailed Lower south west Profile Consultation Document for information about specific data limitations. For more detailed information, tables and charts relating to this area’s population, demographics and service use please refer to Appendix A in the more detailed Lower South West Area Profile Consultation Document (available on the Sector Development Plan— Area Profile Consultation Documents page on the Commission website). Organisations that offered shared management in the lower south west profile area in 2012 Activ Foundation Baptistcare Enable Southwest Family Support WA Multiple Sclerosis Society My Place Source: DSC 2012. Organisations used by people in the lower south west area for share supported accommodation in 2011–2012 Activ Foundation Source: DSC 2012. Organisations used by people in the lower south west area for individualised community living in 2011–2012 Activ Foundation Inc DSC - LAC (self-managing) Elba Inc Enable South West Intework Life Without Barriers Multiple Sclerosis Society My Place Strive Warren Blackwood Source: DSC 2012. Page 15 Quick read profile—Lower South West area consultation document Organisations used by people in the lower south west for Alternatives to Employment (ATE) and Post School Options (PSO) in 2011–2012 Activ Foundation Inc Baptistcare DSC - LAC (self-managing) Enable Southwest Intework Life Without Barriers Multiple Sclerosis Society My Place Strive Warren Blackwood Source: DSC 2012. Organisations used by people in the lower south west for recreation in 2011–2012 Multiple Sclerosis Society Strive Warren Blackwood WA Disabled Sports Association Source: DSC 2012. Organisations used by people in the lower south west area for Intensive Family Support (IFS) in 2011–2012 DSC - LAC (self-managing) Enable Southwest Intework Life Without Barriers Multiple Sclerosis Society Strive Warren Blackwood Source: DSC 2012. Organisations used by people in the lower south west for out-of-home respite in 2011–2012 Activ Foundation Inc Australian Red Cross (Lady Lawley Cottage) Family Support WA i.d.entity.wa Multiple Sclerosis Society Source: DSC 2012. Page 16 Quick read profile—Lower South West area consultation document Organisations used by people in the lower south west for flexible respite in 2011–2012 Activ Foundation Inc Enable Southwest Intework Kids' Camps Inc Life Without Barriers Multiple Sclerosis Society Strive Warren Blackwood Source: DSC 2012. Page 17